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Re: Bone Marrow Test

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Hey , I'm sorry to hear that your tests are not improving and that you have

to increase your Prednisone. I have done a quick check on bone marrow tests for

you and came up with this one:

www.health.sa.gov.au/cancare/treats/tests/bmbiop.htm

so I hope this site will give you the information that you are looking for or at

least a bit of an idea of what will happen. Good luck and I hope the bone

marrow tests go well for you with little pain and discomfort.

Take care,

Marilyn

mhogg69@...

Bone Marrow Test

Hey group,

I know i don't write very often, I am newer to the group and am still taking

it all in. I just went to my Rhuemy and found out none of my counts are

getting better. It's been two months now, and the dr says that the tests

keep coming back the same. How very depressing. He has upped my Prednisone

to 60mg. and has ordered me to have a bone marrow test done. I've heard

these are pretty painful, I'm such a wimp, but if anyone knows exact details

to these tests, ie: how long it takes, how painful, what they do to ease the

pain, how long the pain last, I would be greatly appreciative.

Hope the rest of you are having a great day!

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I have had the bone marrow test. You go to the doctors office. There is not any

preparation in advance, or at least there wasn't for me. You will see the doctor

and receive and injection of demerol or some such pain killer in advance. The

breast bone and hip are the two most favorite places to have the bone marrow

aspirated. Most use the hip. After the pain killer has had a few minutes to kick

in, you will get anouther injection to numb the removal area (hip in the lumbar

area for me). This will make the procedure relatively painless. The doctor will

come in and take a large needle to take the samples. You will be face down and

won't see it. All I felt was pressure, but not pain. I could feel him working,

but could not tell what he was doing other than the pressure I felt. He said it

was going to hurt some, and I was waiting for it, but he said he was done before

I felt pain. I chose to have a wheel chair to take me to the car because the

meds made my blood sugar drop to the basement. It was 45 when they were done.

So, I needed the chair because I am diabetic, not because of the procedure. You

may or may not be given meds for the pain once the numbing agent wears off. I

would suggest you get some if you are a pain wimp. You will move VERY slow for a

few days. I think it was a good 2-3 weeks before the pain was totally gone but

you will be very sore the first few days and walking will be painful.

Toleralble, if you go slow, but painful. I did not take pain killers because

they mess up my blood sugar so badly. I would prefer to suffer pain than low

blood sugar. I think from start to finish, (not counting the struggle to

establish good sugar levels) It took 10 minutes or so to get the vitals, answer

questions and get the demerol. Waited about 10-15 minutes for it to kick in, and

10-15 minutes for the procedure. Get dressed and leave. Pretty simple in office

procedure. Hope this helps, if you have other questions, ask me. I may have

forgotten something. I would not worry about the test. It is preetty easy. I

would take the day off or do the treatment on a Friday. I would expect to miss

work for a couple of days if you have a job where you are on your feet because

your hip will be quite painful.I had a sit down job with occasional walking but

ended up calling someone to bring stuff to me because it was so hard to get

around the first 2 days. Plan food in advance so you just have to " nuke "

something if you are home alone. See if you can get help with kids if you have

small ones who need tending or if children are 5 and up, let them babysit mom

for a special treat when you get better.

Thinking of you and sending peaceful thoughts your way. Caroline

Jurski <ejurski@...> wrote: Hey group,

I know i don't write very often, I am newer to the group and am still taking

it all in. I just went to my Rhuemy and found out none of my counts are

getting better. It's been two months now, and the dr says that the tests

keep coming back the same. How very depressing. He has upped my Prednisone

to 60mg. and has ordered me to have a bone marrow test done. I've heard

these are pretty painful, I'm such a wimp, but if anyone knows exact details

to these tests, ie: how long it takes, how painful, what they do to ease the

pain, how long the pain last, I would be greatly appreciative.

Hope the rest of you are having a great day!

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Mine was painful, very painful, but they didnt use anything to numb the hip

area or give me any pain meds prior to it. I had no idea what a bone marrow

aspiration was so we didnt know what I was in for. Several years later I

found out that most surgeons use lidocane and pain meds when doing the

proceedure. So as long as you have that it will probably be fine, like

Caroline's was.

Jenn

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I had my marrow test at my onset, the numbing shot hurt the most for me,

then the next needle, they took the marrow, as soon as the needle was

removed the pain completely stopped for me. They put a band - aid on it and

I had no further pain. Everyone handles pain differently. The nurses said I

handled it about average. GOOD LUCK

rjones20@...

Bone Marrow Test

> Hey group,

> I know i don't write very often, I am newer to the group and am still

taking

> it all in. I just went to my Rhuemy and found out none of my counts are

> getting better. It's been two months now, and the dr says that the tests

> keep coming back the same. How very depressing. He has upped my Prednisone

> to 60mg. and has ordered me to have a bone marrow test done. I've heard

> these are pretty painful, I'm such a wimp, but if anyone knows exact

details

> to these tests, ie: how long it takes, how painful, what they do to ease

the

> pain, how long the pain last, I would be greatly appreciative.

> Hope the rest of you are having a great day!

>

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

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Hi ,

Sorry about the Pred dosage being increased, maybe that will

help you feel better, until your doc can figure out what other meds

you might need.

The bone marrow test. I have had about 5 done. one in the chest

area, the rest in the lower back. When I knew they were going to

do a " bone marrow test, " I'd get very nervous. They would give me

something for stress, such as a valium. So, don't be afraid to ask

for something for your nerves. The test itself...wasn't bad. It did not

take long. There was no " pain " for me, just a " pressure " feeling. Also,

I had no pain afterwards. It's mostly the thought of what they are doing,

and that big ole' needle. Just keep thinking. " This is only temporary..

and will soon be over... " and it will be. Please let us know how it goes.

When taking marrow from my back, they had me sit on the edge of the

hospital bed and lean over the back of a chair...I was hospitalized at the

time of the tests, as they were trying to figure out what was wrong with me.

Wishing you the best..~~tricia~~

Please visit the stills disease web site.

www.stillsdisease.org

-- Bone Marrow Test

Hey group,

I know i don't write very often, I am newer to the group and am still taking

it all in. I just went to my Rhuemy and found out none of my counts are

getting better. It's been two months now, and the dr says that the tests

keep coming back the same. How very depressing. He has upped my Prednisone

to 60mg. and has ordered me to have a bone marrow test done. I've heard

these are pretty painful, I'm such a wimp, but if anyone knows exact details

to these tests, ie: how long it takes, how painful, what they do to ease the

pain, how long the pain last, I would be greatly appreciative.

Hope the rest of you are having a great day!

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Guest guest

With the bone marrow test, most pain is psychosamatic (I think I spelled that

right). Anyways, I had a bone marrow test years ago and after the doc told me

what was going to happen (big needle, digging around, etc), it made it worse and

I would have fainted if I hadn't already been laying down.

Same thing happened to Blaine. He actually yelled for the doc to stop (with the

needle) and the doc hadn't even started yet.

I recommend deep breathing and trying to remain calm. You " shouldn't " feel

anything after the initial shot. Good luck.

Bone Marrow Test

> Hey group,

> I know i don't write very often, I am newer to the group and am still

taking

> it all in. I just went to my Rhuemy and found out none of my counts are

> getting better. It's been two months now, and the dr says that the tests

> keep coming back the same. How very depressing. He has upped my Prednisone

> to 60mg. and has ordered me to have a bone marrow test done. I've heard

> these are pretty painful, I'm such a wimp, but if anyone knows exact

details

> to these tests, ie: how long it takes, how painful, what they do to ease

the

> pain, how long the pain last, I would be greatly appreciative.

> Hope the rest of you are having a great day!

>

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

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Guest guest

,

Go to webmd.com. They can answer your questions about

most any test you can think of. They explain what

they do, how it goes, how long, etc...

Lots of luck:)

Love to all,

Casaria and Tasie

__________________________________________________

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Dear ,

I feel bad that you have to do a bone marrow test, but when I think back on it,

I am glad that they did it, but I will not lie to you. It is one of the most

painful things out there. My hospital didn't not use anything to numb the area.

They just went straight in. I had it done while I was hospitalized with a

serious " flare " last year. In my case, I had a panic attack I think, and I went

into a spasm through my whole body and hyper-ventilated myself. To sum it up, I

made it worse than it was, but because I had no pain relief medicine or

something to numb the area, it was one of the worse things that I ever had to

do. The other thing is kidney stones and a failing kidney! I think kidney pain

is much worse than having a baby. When I had gotten out of the hospital I went

back to my doctor and he told me that he was insisting that the hospital does

bone marrow procedures differently at this hospital. My spasm was so bad, that

my fingers were interlocked within each other for over a 1/2 hour. I couldn't

talk. My face was frozen and paralyzed. My doctor actually sat at the foot of

my bed and rubbed my head with a wet cloth until I came off of the

hyperventilation. My toes were locked and you could not pry my fingers. I

never had such a hard time, but please remember , even though I am telling

you this...we all react different from pain. We all deal with it in our own

way. I made this situation worse than it had to be, but I was really upset that

they didn't numb the area for some type of relief. I know that different

hospitals have different procedures for them. I would have your doctor explain

ALL of it to you and step by step what he will be doing. I don't like being

surprised. I am the type of person that likes to know something's ahead of time

and this bone marrow was not discussed with me at all. My doctor just walked

into my room and told me that they were doing it right then and there. I wasn't

prepared at all and panicked because I heard how horrible they were. I think

some peace of mind of just some direction or when it is going to be, I could of

prepared myself a little better, although they are very painful. There is no

easy way around it. , I hope that you don't have to have one, but if you

do, everyone will be here for you and try to help. Call on us.

Love, Sue #2

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Dear ,

I am sorry you have to go through the bone marrow test. I am sure if they

use some sort of pain reliever you will be fine. Plus you will know what is

going on.

Unfortunately when I had my bone marrow test, I wasn't told what was going

on. It was a last minute decision. I was in the hospital at the time. I

wasn't given any type of pain reliever. They took a section out of my tail

bone. It was very painful. This was many years a go. So I am sure now they

must use some type of pain reliever. I know it must be scary but I am sure

you will be fine. Plus the procedure doesn't take that long.

I will be praying that you start feeling better soon. Keep us posted when

you can.

Love,

jatw@...

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Try getting a marrow biopsy without any anesthesia at all. It hurt enough to

cause my own endorphins to kick in. I've had two. The 2nd time they knocked

me out, thank goodness. I woke up with 3 holes that time though.

Has anyone here had a bone marrow biopsy, and had it reveal anything

helpful?? Mine did not- Just ruled other things out.

Brent

Re: Bone Marrow Test

With the bone marrow test, most pain is psychosamatic (I think I spelled

that right). Anyways, I had a bone marrow test years ago and after the doc

told me what was going to happen (big needle, digging around, etc), it made

it worse and I would have fainted if I hadn't already been laying down.

Same thing happened to Blaine. He actually yelled for the doc to stop (with

the needle) and the doc hadn't even started yet.

I recommend deep breathing and trying to remain calm. You " shouldn't " feel

anything after the initial shot. Good luck.

Bone Marrow Test

> Hey group,

> I know i don't write very often, I am newer to the group and am still

taking

> it all in. I just went to my Rhuemy and found out none of my counts are

> getting better. It's been two months now, and the dr says that the tests

> keep coming back the same. How very depressing. He has upped my

Prednisone

> to 60mg. and has ordered me to have a bone marrow test done. I've heard

> these are pretty painful, I'm such a wimp, but if anyone knows exact

details

> to these tests, ie: how long it takes, how painful, what they do to ease

the

> pain, how long the pain last, I would be greatly appreciative.

> Hope the rest of you are having a great day!

>

>

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

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Dear Brent,

I also had the bone marrow test without any type of anesthesia, OUCH! Thank

goodness these days it seems they are now using anesthesia. I had this done

when my blood platelets were extremely low. It was to rule out cancer.

jatw@...

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In a message dated 5/20/02 11:18:19 PM Central Daylight Time,

brent@... writes:

> Has anyone here had a bone marrow biopsy, and had it reveal anything

> helpful?? Mine did not- Just ruled other things out.

>

I think all they are able to do is rule things out. It was one of the tests I

had when I was in the hospital and they were trying to diagnose me. The idea

of anesthetic with the test is certainly a good one! Mine was done without

it, and I did O.K. until the resident administering the test said to his

little band of medical students, " These don't hurt. Patients just get

anxious. " Well, I was furious, and risked heaven knows what as he still had

the needle in me when he was saying that, but I said, " Oh yeah, smart a**,

and how many of these have you had that you know so much about how it feels. "

Well, he shut up and I survived, and it felt good to say it.

One day at a time,

Marcia

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Most Pain from bone marrow test psychosamatic?? I DONT THINK SO!!!!! Try

having it done without an anesthetic or pain meds and you sure as hell wont

be saying your pain is pyschosamatic!!! Why would you even say something

like that?

-Original Message-----

From: Rouse [mailto:micheller@...]

Sent: Saturday, May 18, 2002 4:17 PM

Stillsdisease

Subject: Re: Bone Marrow Test

With the bone marrow test, most pain is psychosamatic (I think I spelled

that right). Anyways, I had a bone marrow test years ago and after the doc

told me what was going to happen (big needle, digging around, etc), it made

it worse and I would have fainted if I hadn't already been laying down.

Same thing happened to Blaine. He actually yelled for the doc to stop (with

the needle) and the doc hadn't even started yet.

I recommend deep breathing and trying to remain calm. You " shouldn't " feel

anything after the initial shot. Good luck.

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- Marcia, Yes I have had a bone marrow biopsy, but they numbed my hip before

they did it and gave me a narcotic drug but was awake. I felt nothing. Other

than when they screwed that thing in my hip at first. They found nothing from

doing this test and like you just to rule out things. My worst test was a muscel

biopsy. Never again, they can't numb the area very much or it would ruin the

muscel for they test. Jeane

>

>

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In a message dated 5/21/02 11:26:33 PM Central Daylight Time,

gobulldawgs@... writes:

> Most Pain from bone marrow test psychosamatic?? I DONT THINK SO!!!!! ...Why

> would you even say something

> like that?

>

The doctor who said it to me was a young, arrogant resident who was very full

of himself. He is probably one of those who graduated last in his class and

is still called " doctor. " lol

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  • 6 years later...
Guest guest

Dear : Sorry for not getting back to you until the next day, but I have a hard time getting to the compt. with two teens & then farm chores. I will pray for a neg. for you. They were looking for Non-Hodgkin Lymphoma when they did my bone marrow test. It was neg! That's before they found out that my problem was HCV & not cancer. I went to that cancer Spec. for over 4 years before they finally found out that my problems were due to Hep. C & not cancer. I sometimes wonder if I don't have Lymphoma because HCV can cause it & why would they think I had it? I can't trust Dr. very much anymore. Oh , it must be so hard to have just gotten over breast cancer & now this! Don't you just hate the waiting game. Not only do you have to wait such a nightmareish long time for the tests, but then wait again for the results! I find that one of the

hardest things about this disease, it's the waiting time! Yes, please do keep us posted. Your In My Prayers, Donna---

Thank you for sharing - I'm not looking forward to this at all. Ihope that your test showed a negative result. > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> >

Looking for the perfect gift? Give the gift of Flickr!

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Dear : Sorry for not getting back to you until the next day, but I have a hard time getting to the compt. with two teens & then farm chores. I will pray for a neg. for you. They were looking for Non-Hodgkin Lymphoma when they did my bone marrow test. It was neg! That's before they found out that my problem was HCV & not cancer. I went to that cancer Spec. for over 4 years before they finally found out that my problems were due to Hep. C & not cancer. I sometimes wonder if I don't have Lymphoma because HCV can cause it & why would they think I had it? I can't trust Dr. very much anymore. Oh , it must be so hard to have just gotten over breast cancer & now this! Don't you just hate the waiting game. Not only do you have to wait such a nightmareish long time for the tests, but then wait again for the results! I find that one of the

hardest things about this disease, it's the waiting time! Yes, please do keep us posted. Your In My Prayers, Donna---

Thank you for sharing - I'm not looking forward to this at all. Ihope that your test showed a negative result. > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> >

Looking for the perfect gift? Give the gift of Flickr!

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--- Dear : I forgot to remind you that you have to look after

the puncture hole in your hip. It maybe a small hole, but remember

that it goes right into your liver. You don't want any other bacteria

or virus on top of what you all ready have! Sincerely yours Donna

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__________________________________________________________________

> > Looking for the perfect gift? Give the gift of Flickr!

> >

> > http://www.flickr.com/gift/

> >

>

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--- Dear : I forgot to remind you that you have to look after

the puncture hole in your hip. It maybe a small hole, but remember

that it goes right into your liver. You don't want any other bacteria

or virus on top of what you all ready have! Sincerely yours Donna

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__________________________________________________________________

> > Looking for the perfect gift? Give the gift of Flickr!

> >

> > http://www.flickr.com/gift/

> >

>

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Guest guest

Yes I read that infection is a big risk -thanks for thinking of me.

>

> --- Dear : I forgot to remind you that you have to look after

> the puncture hole in your hip. It maybe a small hole, but remember

> that it goes right into your liver. You don't want any other bacteria

> or virus on top of what you all ready have! Sincerely yours Donna

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> __________________________________________________________________

> > > Looking for the perfect gift? Give the gift of Flickr!

> > >

> > > http://www.flickr.com/gift/

> > >

> >

>

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Guest guest

Yes I read that infection is a big risk -thanks for thinking of me.

>

> --- Dear : I forgot to remind you that you have to look after

> the puncture hole in your hip. It maybe a small hole, but remember

> that it goes right into your liver. You don't want any other bacteria

> or virus on top of what you all ready have! Sincerely yours Donna

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> __________________________________________________________________

> > > Looking for the perfect gift? Give the gift of Flickr!

> > >

> > > http://www.flickr.com/gift/

> > >

> >

>

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  • 7 months later...

I do not have any experience with either of these things but just know I

will be praying for Isaac.

Di

Bone Marrow Test

> Isaac (10 yrs old) has had low white blood counts for the last 2 months

> and at the hematologist/oncologist's suggestion, he will have a bone

> marrow test/biopsy tomorrow. The 2 diagnoses that have been mentioned to

> us involve myelodysplastic syndrome and monosomy 7. Dr also mentioned

> either of these diagnoses would involve lengthy chemotherapy. Anyone have

> any experience with either of these or any suggestions/ideas of what to

> expect with tomorrow's bone marrow testing?

>

> Thanks,

> Jill

> Mom to Isaac, 10, DS

>

>

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I don't know if my response will get there before the test or not, but my

daughter had a bone marrow test when she was a newborn. They thought she was

born with leukemia (who knew?). My remembrance is the test has significant

sedation/pain killers and is pretty quick. They must get a needle into the

bone where the marrow is and extract a small amount for testing. Since he's

10, his marrow is very developed and should be relatively easy to extract. A

newborn's marrow isn't developed and it was difficult to get hers.

I will hold you in my prayers.

Eleanor

_____

From: [mailto: ] On Behalf

Of Di

Sent: Friday, February 20, 2009 7:46 AM

jill briggs;

Subject: Re: Bone Marrow Test

I do not have any experience with either of these things but just know I

will be praying for Isaac.

Di

Bone Marrow Test

> Isaac (10 yrs old) has had low white blood counts for the last 2 months

> and at the hematologist/oncologist's suggestion, he will have a bone

> marrow test/biopsy tomorrow. The 2 diagnoses that have been mentioned to

> us involve myelodysplastic syndrome and monosomy 7. Dr also mentioned

> either of these diagnoses would involve lengthy chemotherapy. Anyone have

> any experience with either of these or any suggestions/ideas of what to

> expect with tomorrow's bone marrow testing?

>

> Thanks,

> Jill

> Mom to Isaac, 10, DS

>

>

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Jill, I don't have any information to give. Please know that the Rizk

family is thinking about and praying for you guys today!

Barb

On Feb 19, 2009, at 3:43 PM, jill briggs wrote:

> Isaac (10 yrs old) has had low white blood counts for the last 2

> months and at the hematologist/oncologist's suggestion, he will have

> a bone marrow test/biopsy tomorrow. The 2 diagnoses that have been

> mentioned to us involve myelodysplastic syndrome and monosomy 7. Dr

> also mentioned either of these diagnoses would involve lengthy

> chemotherapy. Anyone have any experience with either of these or any

> suggestions/ideas of what to expect with tomorrow's bone marrow

> testing?

>

> Thanks,

> Jill

> Mom to Isaac, 10, DS

>

>

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Jill,

I just read this message - please let us know what they find. Hang in

there!

Bone Marrow Test

> Isaac (10 yrs old) has had low white blood counts for the last 2 months

> and at the hematologist/oncologist's suggestion, he will have a bone

> marrow test/biopsy tomorrow. The 2 diagnoses that have been mentioned to

> us involve myelodysplastic syndrome and monosomy 7. Dr also mentioned

> either of these diagnoses would involve lengthy chemotherapy. Anyone have

> any experience with either of these or any suggestions/ideas of what to

> expect with tomorrow's bone marrow testing?

>

> Thanks,

> Jill

> Mom to Isaac, 10, DS

>

>

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