Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 Hey , I'm sorry to hear that your tests are not improving and that you have to increase your Prednisone. I have done a quick check on bone marrow tests for you and came up with this one: www.health.sa.gov.au/cancare/treats/tests/bmbiop.htm so I hope this site will give you the information that you are looking for or at least a bit of an idea of what will happen. Good luck and I hope the bone marrow tests go well for you with little pain and discomfort. Take care, Marilyn mhogg69@... Bone Marrow Test Hey group, I know i don't write very often, I am newer to the group and am still taking it all in. I just went to my Rhuemy and found out none of my counts are getting better. It's been two months now, and the dr says that the tests keep coming back the same. How very depressing. He has upped my Prednisone to 60mg. and has ordered me to have a bone marrow test done. I've heard these are pretty painful, I'm such a wimp, but if anyone knows exact details to these tests, ie: how long it takes, how painful, what they do to ease the pain, how long the pain last, I would be greatly appreciative. Hope the rest of you are having a great day! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 I have had the bone marrow test. You go to the doctors office. There is not any preparation in advance, or at least there wasn't for me. You will see the doctor and receive and injection of demerol or some such pain killer in advance. The breast bone and hip are the two most favorite places to have the bone marrow aspirated. Most use the hip. After the pain killer has had a few minutes to kick in, you will get anouther injection to numb the removal area (hip in the lumbar area for me). This will make the procedure relatively painless. The doctor will come in and take a large needle to take the samples. You will be face down and won't see it. All I felt was pressure, but not pain. I could feel him working, but could not tell what he was doing other than the pressure I felt. He said it was going to hurt some, and I was waiting for it, but he said he was done before I felt pain. I chose to have a wheel chair to take me to the car because the meds made my blood sugar drop to the basement. It was 45 when they were done. So, I needed the chair because I am diabetic, not because of the procedure. You may or may not be given meds for the pain once the numbing agent wears off. I would suggest you get some if you are a pain wimp. You will move VERY slow for a few days. I think it was a good 2-3 weeks before the pain was totally gone but you will be very sore the first few days and walking will be painful. Toleralble, if you go slow, but painful. I did not take pain killers because they mess up my blood sugar so badly. I would prefer to suffer pain than low blood sugar. I think from start to finish, (not counting the struggle to establish good sugar levels) It took 10 minutes or so to get the vitals, answer questions and get the demerol. Waited about 10-15 minutes for it to kick in, and 10-15 minutes for the procedure. Get dressed and leave. Pretty simple in office procedure. Hope this helps, if you have other questions, ask me. I may have forgotten something. I would not worry about the test. It is preetty easy. I would take the day off or do the treatment on a Friday. I would expect to miss work for a couple of days if you have a job where you are on your feet because your hip will be quite painful.I had a sit down job with occasional walking but ended up calling someone to bring stuff to me because it was so hard to get around the first 2 days. Plan food in advance so you just have to " nuke " something if you are home alone. See if you can get help with kids if you have small ones who need tending or if children are 5 and up, let them babysit mom for a special treat when you get better. Thinking of you and sending peaceful thoughts your way. Caroline Jurski <ejurski@...> wrote: Hey group, I know i don't write very often, I am newer to the group and am still taking it all in. I just went to my Rhuemy and found out none of my counts are getting better. It's been two months now, and the dr says that the tests keep coming back the same. How very depressing. He has upped my Prednisone to 60mg. and has ordered me to have a bone marrow test done. I've heard these are pretty painful, I'm such a wimp, but if anyone knows exact details to these tests, ie: how long it takes, how painful, what they do to ease the pain, how long the pain last, I would be greatly appreciative. Hope the rest of you are having a great day! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 Mine was painful, very painful, but they didnt use anything to numb the hip area or give me any pain meds prior to it. I had no idea what a bone marrow aspiration was so we didnt know what I was in for. Several years later I found out that most surgeons use lidocane and pain meds when doing the proceedure. So as long as you have that it will probably be fine, like Caroline's was. Jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 I had my marrow test at my onset, the numbing shot hurt the most for me, then the next needle, they took the marrow, as soon as the needle was removed the pain completely stopped for me. They put a band - aid on it and I had no further pain. Everyone handles pain differently. The nurses said I handled it about average. GOOD LUCK rjones20@... Bone Marrow Test > Hey group, > I know i don't write very often, I am newer to the group and am still taking > it all in. I just went to my Rhuemy and found out none of my counts are > getting better. It's been two months now, and the dr says that the tests > keep coming back the same. How very depressing. He has upped my Prednisone > to 60mg. and has ordered me to have a bone marrow test done. I've heard > these are pretty painful, I'm such a wimp, but if anyone knows exact details > to these tests, ie: how long it takes, how painful, what they do to ease the > pain, how long the pain last, I would be greatly appreciative. > Hope the rest of you are having a great day! > > > > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 Hi , Sorry about the Pred dosage being increased, maybe that will help you feel better, until your doc can figure out what other meds you might need. The bone marrow test. I have had about 5 done. one in the chest area, the rest in the lower back. When I knew they were going to do a " bone marrow test, " I'd get very nervous. They would give me something for stress, such as a valium. So, don't be afraid to ask for something for your nerves. The test itself...wasn't bad. It did not take long. There was no " pain " for me, just a " pressure " feeling. Also, I had no pain afterwards. It's mostly the thought of what they are doing, and that big ole' needle. Just keep thinking. " This is only temporary.. and will soon be over... " and it will be. Please let us know how it goes. When taking marrow from my back, they had me sit on the edge of the hospital bed and lean over the back of a chair...I was hospitalized at the time of the tests, as they were trying to figure out what was wrong with me. Wishing you the best..~~tricia~~ Please visit the stills disease web site. www.stillsdisease.org -- Bone Marrow Test Hey group, I know i don't write very often, I am newer to the group and am still taking it all in. I just went to my Rhuemy and found out none of my counts are getting better. It's been two months now, and the dr says that the tests keep coming back the same. How very depressing. He has upped my Prednisone to 60mg. and has ordered me to have a bone marrow test done. I've heard these are pretty painful, I'm such a wimp, but if anyone knows exact details to these tests, ie: how long it takes, how painful, what they do to ease the pain, how long the pain last, I would be greatly appreciative. Hope the rest of you are having a great day! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 With the bone marrow test, most pain is psychosamatic (I think I spelled that right). Anyways, I had a bone marrow test years ago and after the doc told me what was going to happen (big needle, digging around, etc), it made it worse and I would have fainted if I hadn't already been laying down. Same thing happened to Blaine. He actually yelled for the doc to stop (with the needle) and the doc hadn't even started yet. I recommend deep breathing and trying to remain calm. You " shouldn't " feel anything after the initial shot. Good luck. Bone Marrow Test > Hey group, > I know i don't write very often, I am newer to the group and am still taking > it all in. I just went to my Rhuemy and found out none of my counts are > getting better. It's been two months now, and the dr says that the tests > keep coming back the same. How very depressing. He has upped my Prednisone > to 60mg. and has ordered me to have a bone marrow test done. I've heard > these are pretty painful, I'm such a wimp, but if anyone knows exact details > to these tests, ie: how long it takes, how painful, what they do to ease the > pain, how long the pain last, I would be greatly appreciative. > Hope the rest of you are having a great day! > > > > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2002 Report Share Posted May 18, 2002 , Go to webmd.com. They can answer your questions about most any test you can think of. They explain what they do, how it goes, how long, etc... Lots of luck:) Love to all, Casaria and Tasie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2002 Report Share Posted May 19, 2002 Dear , I feel bad that you have to do a bone marrow test, but when I think back on it, I am glad that they did it, but I will not lie to you. It is one of the most painful things out there. My hospital didn't not use anything to numb the area. They just went straight in. I had it done while I was hospitalized with a serious " flare " last year. In my case, I had a panic attack I think, and I went into a spasm through my whole body and hyper-ventilated myself. To sum it up, I made it worse than it was, but because I had no pain relief medicine or something to numb the area, it was one of the worse things that I ever had to do. The other thing is kidney stones and a failing kidney! I think kidney pain is much worse than having a baby. When I had gotten out of the hospital I went back to my doctor and he told me that he was insisting that the hospital does bone marrow procedures differently at this hospital. My spasm was so bad, that my fingers were interlocked within each other for over a 1/2 hour. I couldn't talk. My face was frozen and paralyzed. My doctor actually sat at the foot of my bed and rubbed my head with a wet cloth until I came off of the hyperventilation. My toes were locked and you could not pry my fingers. I never had such a hard time, but please remember , even though I am telling you this...we all react different from pain. We all deal with it in our own way. I made this situation worse than it had to be, but I was really upset that they didn't numb the area for some type of relief. I know that different hospitals have different procedures for them. I would have your doctor explain ALL of it to you and step by step what he will be doing. I don't like being surprised. I am the type of person that likes to know something's ahead of time and this bone marrow was not discussed with me at all. My doctor just walked into my room and told me that they were doing it right then and there. I wasn't prepared at all and panicked because I heard how horrible they were. I think some peace of mind of just some direction or when it is going to be, I could of prepared myself a little better, although they are very painful. There is no easy way around it. , I hope that you don't have to have one, but if you do, everyone will be here for you and try to help. Call on us. Love, Sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2002 Report Share Posted May 19, 2002 Dear , I am sorry you have to go through the bone marrow test. I am sure if they use some sort of pain reliever you will be fine. Plus you will know what is going on. Unfortunately when I had my bone marrow test, I wasn't told what was going on. It was a last minute decision. I was in the hospital at the time. I wasn't given any type of pain reliever. They took a section out of my tail bone. It was very painful. This was many years a go. So I am sure now they must use some type of pain reliever. I know it must be scary but I am sure you will be fine. Plus the procedure doesn't take that long. I will be praying that you start feeling better soon. Keep us posted when you can. Love, jatw@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2002 Report Share Posted May 20, 2002 Try getting a marrow biopsy without any anesthesia at all. It hurt enough to cause my own endorphins to kick in. I've had two. The 2nd time they knocked me out, thank goodness. I woke up with 3 holes that time though. Has anyone here had a bone marrow biopsy, and had it reveal anything helpful?? Mine did not- Just ruled other things out. Brent Re: Bone Marrow Test With the bone marrow test, most pain is psychosamatic (I think I spelled that right). Anyways, I had a bone marrow test years ago and after the doc told me what was going to happen (big needle, digging around, etc), it made it worse and I would have fainted if I hadn't already been laying down. Same thing happened to Blaine. He actually yelled for the doc to stop (with the needle) and the doc hadn't even started yet. I recommend deep breathing and trying to remain calm. You " shouldn't " feel anything after the initial shot. Good luck. Bone Marrow Test > Hey group, > I know i don't write very often, I am newer to the group and am still taking > it all in. I just went to my Rhuemy and found out none of my counts are > getting better. It's been two months now, and the dr says that the tests > keep coming back the same. How very depressing. He has upped my Prednisone > to 60mg. and has ordered me to have a bone marrow test done. I've heard > these are pretty painful, I'm such a wimp, but if anyone knows exact details > to these tests, ie: how long it takes, how painful, what they do to ease the > pain, how long the pain last, I would be greatly appreciative. > Hope the rest of you are having a great day! > > > > > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Dear Brent, I also had the bone marrow test without any type of anesthesia, OUCH! Thank goodness these days it seems they are now using anesthesia. I had this done when my blood platelets were extremely low. It was to rule out cancer. jatw@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 In a message dated 5/20/02 11:18:19 PM Central Daylight Time, brent@... writes: > Has anyone here had a bone marrow biopsy, and had it reveal anything > helpful?? Mine did not- Just ruled other things out. > I think all they are able to do is rule things out. It was one of the tests I had when I was in the hospital and they were trying to diagnose me. The idea of anesthetic with the test is certainly a good one! Mine was done without it, and I did O.K. until the resident administering the test said to his little band of medical students, " These don't hurt. Patients just get anxious. " Well, I was furious, and risked heaven knows what as he still had the needle in me when he was saying that, but I said, " Oh yeah, smart a**, and how many of these have you had that you know so much about how it feels. " Well, he shut up and I survived, and it felt good to say it. One day at a time, Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Most Pain from bone marrow test psychosamatic?? I DONT THINK SO!!!!! Try having it done without an anesthetic or pain meds and you sure as hell wont be saying your pain is pyschosamatic!!! Why would you even say something like that? -Original Message----- From: Rouse [mailto:micheller@...] Sent: Saturday, May 18, 2002 4:17 PM Stillsdisease Subject: Re: Bone Marrow Test With the bone marrow test, most pain is psychosamatic (I think I spelled that right). Anyways, I had a bone marrow test years ago and after the doc told me what was going to happen (big needle, digging around, etc), it made it worse and I would have fainted if I hadn't already been laying down. Same thing happened to Blaine. He actually yelled for the doc to stop (with the needle) and the doc hadn't even started yet. I recommend deep breathing and trying to remain calm. You " shouldn't " feel anything after the initial shot. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 - Marcia, Yes I have had a bone marrow biopsy, but they numbed my hip before they did it and gave me a narcotic drug but was awake. I felt nothing. Other than when they screwed that thing in my hip at first. They found nothing from doing this test and like you just to rule out things. My worst test was a muscel biopsy. Never again, they can't numb the area very much or it would ruin the muscel for they test. Jeane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 In a message dated 5/21/02 11:26:33 PM Central Daylight Time, gobulldawgs@... writes: > Most Pain from bone marrow test psychosamatic?? I DONT THINK SO!!!!! ...Why > would you even say something > like that? > The doctor who said it to me was a young, arrogant resident who was very full of himself. He is probably one of those who graduated last in his class and is still called " doctor. " lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2008 Report Share Posted July 12, 2008 Dear : Sorry for not getting back to you until the next day, but I have a hard time getting to the compt. with two teens & then farm chores. I will pray for a neg. for you. They were looking for Non-Hodgkin Lymphoma when they did my bone marrow test. It was neg! That's before they found out that my problem was HCV & not cancer. I went to that cancer Spec. for over 4 years before they finally found out that my problems were due to Hep. C & not cancer. I sometimes wonder if I don't have Lymphoma because HCV can cause it & why would they think I had it? I can't trust Dr. very much anymore. Oh , it must be so hard to have just gotten over breast cancer & now this! Don't you just hate the waiting game. Not only do you have to wait such a nightmareish long time for the tests, but then wait again for the results! I find that one of the hardest things about this disease, it's the waiting time! Yes, please do keep us posted. Your In My Prayers, Donna--- Thank you for sharing - I'm not looking forward to this at all. Ihope that your test showed a negative result. > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> > Looking for the perfect gift? Give the gift of Flickr! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2008 Report Share Posted July 12, 2008 Dear : Sorry for not getting back to you until the next day, but I have a hard time getting to the compt. with two teens & then farm chores. I will pray for a neg. for you. They were looking for Non-Hodgkin Lymphoma when they did my bone marrow test. It was neg! That's before they found out that my problem was HCV & not cancer. I went to that cancer Spec. for over 4 years before they finally found out that my problems were due to Hep. C & not cancer. I sometimes wonder if I don't have Lymphoma because HCV can cause it & why would they think I had it? I can't trust Dr. very much anymore. Oh , it must be so hard to have just gotten over breast cancer & now this! Don't you just hate the waiting game. Not only do you have to wait such a nightmareish long time for the tests, but then wait again for the results! I find that one of the hardest things about this disease, it's the waiting time! Yes, please do keep us posted. Your In My Prayers, Donna--- Thank you for sharing - I'm not looking forward to this at all. Ihope that your test showed a negative result. > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> > Looking for the perfect gift? Give the gift of Flickr! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 --- Dear : I forgot to remind you that you have to look after the puncture hole in your hip. It maybe a small hole, but remember that it goes right into your liver. You don't want any other bacteria or virus on top of what you all ready have! Sincerely yours Donna > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________________ > > Looking for the perfect gift? Give the gift of Flickr! > > > > http://www.flickr.com/gift/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 --- Dear : I forgot to remind you that you have to look after the puncture hole in your hip. It maybe a small hole, but remember that it goes right into your liver. You don't want any other bacteria or virus on top of what you all ready have! Sincerely yours Donna > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________________ > > Looking for the perfect gift? Give the gift of Flickr! > > > > http://www.flickr.com/gift/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 Yes I read that infection is a big risk -thanks for thinking of me. > > --- Dear : I forgot to remind you that you have to look after > the puncture hole in your hip. It maybe a small hole, but remember > that it goes right into your liver. You don't want any other bacteria > or virus on top of what you all ready have! Sincerely yours Donna > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________________ > > > Looking for the perfect gift? Give the gift of Flickr! > > > > > > http://www.flickr.com/gift/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 Yes I read that infection is a big risk -thanks for thinking of me. > > --- Dear : I forgot to remind you that you have to look after > the puncture hole in your hip. It maybe a small hole, but remember > that it goes right into your liver. You don't want any other bacteria > or virus on top of what you all ready have! Sincerely yours Donna > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________________ > > > Looking for the perfect gift? Give the gift of Flickr! > > > > > > http://www.flickr.com/gift/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 I do not have any experience with either of these things but just know I will be praying for Isaac. Di Bone Marrow Test > Isaac (10 yrs old) has had low white blood counts for the last 2 months > and at the hematologist/oncologist's suggestion, he will have a bone > marrow test/biopsy tomorrow. The 2 diagnoses that have been mentioned to > us involve myelodysplastic syndrome and monosomy 7. Dr also mentioned > either of these diagnoses would involve lengthy chemotherapy. Anyone have > any experience with either of these or any suggestions/ideas of what to > expect with tomorrow's bone marrow testing? > > Thanks, > Jill > Mom to Isaac, 10, DS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 I don't know if my response will get there before the test or not, but my daughter had a bone marrow test when she was a newborn. They thought she was born with leukemia (who knew?). My remembrance is the test has significant sedation/pain killers and is pretty quick. They must get a needle into the bone where the marrow is and extract a small amount for testing. Since he's 10, his marrow is very developed and should be relatively easy to extract. A newborn's marrow isn't developed and it was difficult to get hers. I will hold you in my prayers. Eleanor _____ From: [mailto: ] On Behalf Of Di Sent: Friday, February 20, 2009 7:46 AM jill briggs; Subject: Re: Bone Marrow Test I do not have any experience with either of these things but just know I will be praying for Isaac. Di Bone Marrow Test > Isaac (10 yrs old) has had low white blood counts for the last 2 months > and at the hematologist/oncologist's suggestion, he will have a bone > marrow test/biopsy tomorrow. The 2 diagnoses that have been mentioned to > us involve myelodysplastic syndrome and monosomy 7. Dr also mentioned > either of these diagnoses would involve lengthy chemotherapy. Anyone have > any experience with either of these or any suggestions/ideas of what to > expect with tomorrow's bone marrow testing? > > Thanks, > Jill > Mom to Isaac, 10, DS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 Jill, I don't have any information to give. Please know that the Rizk family is thinking about and praying for you guys today! Barb On Feb 19, 2009, at 3:43 PM, jill briggs wrote: > Isaac (10 yrs old) has had low white blood counts for the last 2 > months and at the hematologist/oncologist's suggestion, he will have > a bone marrow test/biopsy tomorrow. The 2 diagnoses that have been > mentioned to us involve myelodysplastic syndrome and monosomy 7. Dr > also mentioned either of these diagnoses would involve lengthy > chemotherapy. Anyone have any experience with either of these or any > suggestions/ideas of what to expect with tomorrow's bone marrow > testing? > > Thanks, > Jill > Mom to Isaac, 10, DS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2009 Report Share Posted February 21, 2009 Jill, I just read this message - please let us know what they find. Hang in there! Bone Marrow Test > Isaac (10 yrs old) has had low white blood counts for the last 2 months > and at the hematologist/oncologist's suggestion, he will have a bone > marrow test/biopsy tomorrow. The 2 diagnoses that have been mentioned to > us involve myelodysplastic syndrome and monosomy 7. Dr also mentioned > either of these diagnoses would involve lengthy chemotherapy. Anyone have > any experience with either of these or any suggestions/ideas of what to > expect with tomorrow's bone marrow testing? > > Thanks, > Jill > Mom to Isaac, 10, DS > > Quote Link to comment Share on other sites More sharing options...
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