- 's mom

[Guest guest]

HI & welcome to our group!

Let me say, how incredibally rude that one Dr. was who made such a

rude comment about 's head shape! Good grief, that's horrible

to say, especially for a Dr. to say something so incredibally rude &

insensitive.

Are you considering corrective surgery for 's head shape? It

sounds like is a tough little guy having been thru so much so

young. I am so sorry to hear of his troubles. It must be quite

stressful on your family.

We're glad you have joined our group. We look forward to getting to

know YOU & your family - I hope you can get an appt soon with the

craniofacial clinic. Best of luck & be sure to keep us updated.

Debbie Abby's mom DOCgrad

Michigan USA

> Hi all.. I just joined this group tonight so thought I would send a

> quick message to say hi and introduce myself, My name is and

I

> am in Australia, I am a single mum to 4 darling children and my

> youngest (22 months) has positional plagiocephaly.. The back

> of his head was totaly flat for a long time,but as he has gotten

> older it has gotten a little rounder.

> was born with a cleft palate and feeding him was hard,, and

> whenever I popped him on his tummy he brought up everything I had

> worked so hard to get him to eat so he was always on his back..

Also

> he has some developmental delays and has never rolled over or

> crawled,, (or even walked at this stage),so his only mile stone has

> been sitting at about 8 months of age,and up untill then he was

just

> on his back. Anyways that explains the cause of the positional

> plagiocephaly ,I always thought it was just his head shape till

after

> his palate surgery (at 10 months old) a team of doctors came to

look

> at him and his surgeon rolled him over to point out his " extreme

> plagiocephaly " (to quote his words) to the other doctors.Like this

> didnt freak me out enough one of the other doctors had to add with

a

> wise nod " oohh yes,, cot death head " ,how insensitive is that? I had

> no idea what this was and now they were discussing cot death and my

> son in the same sentence .As you can imagine I totaly freaked at

this

> point and demanded to know what they were talking about,,and was

> greatly relieved once they gave me a brief explination(and I mean

> very brief!!).So we plodded on for another few months with me

> thinking that was the way his head was and would be and thats that.

> But now with his developmental delays we are seeing a new doctor

who

> pointed out that not only his head very flat at the back but

> also " lopsided " when looking at him from the front so we are

waiting

> now for an appointment with the craniofacial dept at the hospital.

> Anyways I think after that long winded introduction I will cut it

> short and just say hi to everyone in the group and looking forward

to

> getting to know you all.

> and family )