the week after

[Guest guest]

Karrie is at one week of being off all meds, except for the Lithium, which

has just been re-introduced. The changes are remarkable!

Karrie is much more verbal and articulate. She read one of the books I made

for her to her sister and me. We sent it to the school social worker who

leads the reading buddies program on Fridays. He lets Karrie read her books

so that she has an opportunity to be successful, also. She's eating it up!

Her behavior is much more manageable. She still has the occasional striking

out with her hands or feet, but now I'm thinking it is more of a behavioral

modification that I need to do. She is sleeping better (but still can't

address the central sleep apnea, since no one seems to know what to do about

it). She doesn't seem as tired anymore, her color is so much better. She

seems more like my Karrie!

It's been a horrible week with the school, though. Karrie had a sinus

infection with lots of drainage. It's being treated with meds, but she still

will gag on the drainage in the morning and spit it up. The school nurse

called 3 times this week telling me I had to come and get her. I finally had

the doctor send a fax stating that she's being treated, it's not contagious,

and that upper respiratory congestion is part of her syndrome. Sigh...always

something!

Been reading all the posts...way to go and !!!!

Sue mom to Kate 16 and Karrie 9 w/ds and a few less other issues!