Guest guest Posted March 25, 2008 Report Posted March 25, 2008 Marcos- Thanks.I will try to make an order form. So you guys can order- Me2 tees . The Warrior shirts are free for my cml family but if you want to either donate a shirt for a child in hospital or get one for a friend/family that would be tooo cool. Chi --- Marcos Perreau Guimaraes <montereyunderwater@...> wrote: > Hi China, > I have also some left side/shoulder pain once in a > while this last 3 > years, even now I am PCRU. I mentioned it to the dr > a few times and he > wasn't too concerned, although he did check it up. > Pretty much > everything from toes to head on my left side got > broken or cut at one > point or another, and my left shoulder is not so > good, what probably > doesn't help. > You certainly should tell it to your dr, but no > reason to panic. Could > be a lot of things, like gas (mild aerophagia), gall > bladder duct > getting irritated by the gleevec, etc. Good post by > the way, and yes I > want a t-shirt although I can contribute > something, it doesn't have > to be free. Size large for me. Thanks a lot, > Take care, > Marcos. > > > On Mon, Mar 24, 2008 at 7:30 PM, china neal > <chimera46@...> wrote: > > > > > > > > > > Fellow Warriors- > > > > Thank goodness we are all so passionate about our > > friend,our disease. It is complacency that would > kill > > us. The journey is a private one when it comes > down to > > it- we each make our own decision- what is right > for > > one may not be right for another. But life > decisions > > should be made with as much information as > possible. > > I love my Hem/Onc but I know he is learning with > me. > > He is not afraid to consult or do research. He was > > not offended when I told him I asked Dr. Druker a > > question. The advice on the posts is priceless > from > > those who have survived and are doing more than > > surviving many are even thriving.The technology of > CML > > meds is evolving daily. I love that we can be so > real > > with each other with all of are various pains cml > > quirks. > > > > We are family- we may not always agree brothers > and > > sisters but we are bound by our blood . By the way > if > > I may complain. I feel like crap. Pain in my left > > side and right shoulder- different from the > usually > > cramps and bone pain.Night sweats again. I'm > supposed > > to be in remission but this doesn't feel good. I > > switched from four 100 mg to one 400mg gleevec > because > > I heard it was easier on the stomach. Now I'm > > wondering if I made a mistake. I'm feeling sort of > > paranoid- noticed a dark spot on my tongue today. > I > > don't want to see cancer hiding in every nook and > > cranny of my body but... I know we are susceptible > to > > secondary cancers and I have an almost 14 year old > to > > raise. > > > > On a more positive note- I am having T- shirts > printed > > as a fundraiser first for LLS and then for other > > cancer research with the logo- ME 2. It answers > the > > question- Has Cancer impacted your life? well- Me > too. > > I figure I should be able to sell a shirt to > everyone > > in the world. The first shipment say- Warrior or > > Family or Friend. I'm donating Warrior shirts to > > children's hospitals- my goal is that every child > > diagnosed with cancer will leave the hospital with > a > > warrior shirt. I will send a FREE Warrior shirt to > > anyone on this post if you send me your T shirt > size > > and where tos end it.Eventually - I will make > > shirts/hats/sweatshirts that say- Cure, Survivor, > > Thriving- well you get the picture. 100% of the > > profits will go to Cancer Foundations. > > > > Love to you all. We are all on the same side- we > are > > family. > > > > --- Marcos Perreau Guimaraes > > > > > > <montereyunderwater@...> wrote: > > > > > Hi Therese, > > > I wasn't thinking you chose a BMT without > reasons, > > > you mentioned > > > gleevec stopped working and I can understand you > had > > > some tough > > > decisions to make, and BMT was certainly a > sensible > > > option at that > > > point, I am sincerely glad you did well with it > and > > > I can only imagine > > > you had some really rough time and lot of > courage to > > > pull through. I > > > never suggested you take it as a game, sorry if > it > > > sounded that way, > > > it was just about taking sides, and we sometime > tend > > > to take sides > > > even when it is not a game. Well, before being a > cml > > > warrior, I have > > > been a soldier, I guess I did that too . My > point > > > was that the ones > > > who talked about other options weren't just > trying > > > to scare marry just > > > because we don't like BMT, I got HLA tested with > my > > > brother in case > > > of. But just after dx it is not so easy to stay > calm > > > and read about > > > cml, it was a scary time for all of us, and we > > > wanted marry to take > > > more time to think about options and not to rush > > > into following the > > > first advice from the first oncologist she saw. > As I > > > mentioned on > > > another post, cml is a rare condition and most > > > oncologists have little > > > experience with cml patients. I hope I clarified > my > > > previous post and > > > I apologize if you felt offended, and wish > sincerely > > > you are not > > > pissed at me anymore > > > Cheers, > > > Marcos. > > > > > > On Mon, Mar 24, 2008 at 6:30 AM, Therese Stone > > > <kidme2003@...> wrote: > > > > > > > > > > > > > > > > > > > > Hey Marcos: > > > > > > > > It takes a tremendous amount of planning and > dx to > > > make any decision > > > > regarding your medical care. I do not consider > > > what any one of us are going > > > > through " a game " . I am giving my opinion on my > > > experiences with my treatment > > > > of CML. > > > > > > > > I payed my dues to all of this and have > experience > > > to share with those that > > > > might be backed into the corner I was in. As > far > > > as treatment for the CML my > > > > options were getting very limited. I decided > not > > > to wait to blast crisis > > > > before the latest and greatest trial came > along. I > > > needed to take action. My > > > > CML was past wait and see stage. > > > > > > > > The doctors I see all agreed it was time to > > > consider a transplant. After 14 > === message truncated === ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote
Guest guest Posted March 25, 2008 Report Posted March 25, 2008 Chi, I'm looking forward to this. Please add a spot on the form with price to donate. This is wonderful! Take care, Zazzy > > > > > > > > > > > > > > > > > > > > > > > > > Hey Marcos: > > > > > > > > > > It takes a tremendous amount of planning and > > dx to > > > > make any decision > > > > > regarding your medical care. I do not consider > > > > what any one of us are going > > > > > through " a game " . I am giving my opinion on my > > > > experiences with my treatment > > > > > of CML. > > > > > > > > > > I payed my dues to all of this and have > > experience > > > > to share with those that > > > > > might be backed into the corner I was in. As > > far > > > > as treatment for the CML my > > > > > options were getting very limited. I decided > > not > > > > to wait to blast crisis > > > > > before the latest and greatest trial came > > along. I > > > > needed to take action. My > > > > > CML was past wait and see stage. > > > > > > > > > > The doctors I see all agreed it was time to > > > > consider a transplant. After 14 > > > === message truncated === > > > > ______________________________________________________________________ ______________ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > Quote
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