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The only other good option I can think of is homeopathy. If you can

contact a homeopath, they should be able to help. Otherwise, a good

homeopathic first aid book and OTC remedies can also really help in

situations like this.

I'm sorry your son is having such a rough time.

Rene

>

> My son needs to take tylenol for tooth-related pain. He is Feingold

> and therefore cannot take advil. We have a Feingold-safe compounded

> tylenol.

>

> Is it unsafe for him to take it a couple times per day for less than

a

> week?

>

> If it is unsafe, what options should I consider? His pain makes him

> cry.

>

> Thanks.

>

>

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  • 6 months later...

http://www.autism.com/dan/scientificfoundations.htm#Tylenol

http://notmercury.blogspot.com/2006/03/glutathione-what-is-it-and-

why-should.html

http://www.vaccinetruth.org/glutathione.htm

Just a few sites that discuss the connection of Tylenol lowering gsh

levels.

As for chelation being " bad for the kidney and liver " ANY drug that

is metabolized by the kidneys or liver can stress both organs.

Taking too much Tylenol will hurt and even permentantly damage the

kidney (overdosing on cocaine is not as dangerous as overdosing on

Tylenol) When doing chelation you must monitor kidney and liver

functions via simple lab testing. We have been chelating sucessfully

for almost 3 years now with huge dumps of lead and aluminum and now

finally some mercury. Isn't that more dangerous to leave in a childs

body?!??! I think a blanket statement like " isn't that bad " is not

fair because SO MANY things we do on a daily bases is BAD for our

organs (even drinking a simple beer taxes the liver!)

Tina

>

> Isnt chelation bad for the liver and kidneys??

> Re: [ ] Tylonal

>

>

> In a message dated 10/6/07 11:32:32 PM Central Daylight Time,

> thefitzenreiterfamily@... writes:

>

> > Can anyone direct me to a link about why our kids can't use

Tylenol?

> >

> >

>

> I don't have a link right off the bat but I don't think ANYONE

should take

> Tylenol. It is my understanding that acetominophens are bad for

the liver.

>

> **************************************

> See what's new at http://www.aol.com

>

>

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I wouldn't. I'd try sponging him with cool water or put him in a

cool bath. Maybe give him some Virastop or Olive leaf extract to

help him fight the virus.

Sheresa

>

> Hi all,

>

> I need some quick advice. My 5 yr old ASD boy is sick. He's been

> running a fever for about 6 days now. We've been able to keep it

in

> check with just motrin (dye free) until now. He is getting

> progressively worse. I gave him motrin at 10:15 this morning and

it

> brought the fever down to about 99 for a short time. It's now

about 2

> p.m. and the fever is back up to 101 and he is miserable. I know

101

> isn't that high so I hesitate to give him anything else.

However,he is

> miserable...in tears because he hurts so bad. He is non-verbal so

he

> can't tell me how he is feeling. I think he probably has the flu

or

> possibly RSV. I can't dose the motrin again until after 4. Do I

dare

> give him tylenol? Thanks for any guidance!!!

>

>

>

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This is probably gonna sound weird but I've witness it a few times it

worked with my son. When he's sick he normally just lie down and looks

helpless but when I give suppository(I bought the Children's kind, the

brand is called " Fleet " ), he would just drop a very big and nasty BM

and after that, he is up and playing around. It's just amazing that it

worked!!! Also add some OLE or virastop to address virus, also

multiple strain of probiotics.

Grace

> >

> > Hi all,

> >

> > I need some quick advice. My 5 yr old ASD boy is sick. He's been

> > running a fever for about 6 days now. We've been able to keep it

> in

> > check with just motrin (dye free) until now. He is getting

> > progressively worse. I gave him motrin at 10:15 this morning and

> it

> > brought the fever down to about 99 for a short time. It's now

> about 2

> > p.m. and the fever is back up to 101 and he is miserable. I know

> 101

> > isn't that high so I hesitate to give him anything else.

> However,he is

> > miserable...in tears because he hurts so bad. He is non-verbal so

> he

> > can't tell me how he is feeling. I think he probably has the flu

> or

> > possibly RSV. I can't dose the motrin again until after 4. Do I

> dare

> > give him tylenol? Thanks for any guidance!!!

> >

> >

> >

>

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> miserable...in tears because he hurts so bad. He is non-verbal so he

> can't tell me how he is feeling. I think he probably has the flu or

> possibly RSV. I can't dose the motrin again until after 4. Do I dare

> give him tylenol? Thanks for any guidance!!!

Try giving olive leaf extract and vitamin C. At my house, those

eliminated viral illnesses within 36 hours, and reduced fevers

significantly.

Dana

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101 is not that high. Fevers are a good sign that the body has enough

energy to fight something. Warm wash-clothes on the head or moderately warm

baths

(not lukewarm as you might think), will bring the fever down. At night,

when you can't follow the fever to see if it is going up, then give the fever

reducers. But during the day, I just watch my kids and give them warm wash

clothes.

Heidi N

************************************** See what's new at http://www.aol.com

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  • 1 month later...

What is the reason you are taking Tylenol regularly?

Roni

hary722001 <hary722001@...> wrote:

Anyone know how far we should space taking tylenol from the morning

synthroid dose?

Sherry

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

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For me, I wait about an hour before I take anything else.

Roni

hary722001 <hary722001@...> wrote:

I almost never take tylenol (or anything at all), which is why I

don't the rules. I think I have a pinched nerve in my neck. It

has been like that for quite a while, but lately is driving me

nuts. I thought I would try some tylenol and see if I can't get

some relief.

> Anyone know how far we should space taking tylenol from

the morning

> synthroid dose?

>

> Sherry

>

>

>

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

Mobile. Try it now.

>

>

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Tylenol might not be a big deal, I'm sure chuck will know more. For a

pinched nerve maybe try ice and heat as well. I'd definitely try some

gingko, msm, prim rose, Glucosamine Sulfate and Chondroitin Sulfate combined

with Yucca, Aloe Vera, Horsetail, White Willow and Alfalfa and specific

vitamins and minerals to nutritionally help those areas affected by

arthritis (or any inflammation for that matter). www.lifenetmarketing.com

-- Tylenol

Anyone know how far we should space taking tylenol from the morning

synthroid dose?

Sherry

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Thanks for the tip. I don't tolerate some of those supplements, but

you list plenty of options.

>

> Tylenol might not be a big deal, I'm sure chuck will know more.

For a

> pinched nerve maybe try ice and heat as well. I'd definitely try

some

> gingko, msm, prim rose, Glucosamine Sulfate and Chondroitin

Sulfate combined

> with Yucca, Aloe Vera, Horsetail, White Willow and Alfalfa and

specific

> vitamins and minerals to nutritionally help those areas affected by

> arthritis (or any inflammation for that matter).

www.lifenetmarketing.com

>

> -- Tylenol

>

> Anyone know how far we should space taking tylenol from the

morning

> synthroid dose?

>

> Sherry

>

>

>

>

>

>

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Hi Sherry,

With meds or Supplements, in particular calcium and iron, I believe we should

wait four

hours after taking our thyroid medication. For food, we should wait two hours

after we eat

to take meds or take meds first and wait one hour before you eat anything. Hope

this

helps.

Venizia

In hypothyroidism , " hary722001 " <hary722001@...> wrote:

>

> Anyone know how far we should space taking tylenol from the morning

> synthroid dose?

>

> Sherry

>

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Crystal wrote:

>

>

> Tylenol might not be a big deal, I'm sure chuck will know more....

I prefer aspirin. It's easier on the kidneys. However, I don't think

Tylenol will interfere with thyroxines much, unless the binder is

calcium carbonate. That is not common with acetaminophen meds. One hour

spacing should be sufficient.

Chuck

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I can't remember exactly why, but an endo i used to see in Florida told me to

NEVER take Tylenol with Synthroid. He recommended ibuprofin instead.

Beth

... wonder if this one will post.... ;)

Chuck B <gumboyaya@...> wrote:

Crystal wrote:

>

>

> Tylenol might not be a big deal, I'm sure chuck will know more....

I prefer aspirin. It's easier on the kidneys. However, I don't think

Tylenol will interfere with thyroxines much, unless the binder is

calcium carbonate. That is not common with acetaminophen meds. One hour

spacing should be sufficient.

Chuck

---------------------------------

Be a better pen pal. Text or chat with friends inside . See how.

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This Prevpac that I am taking is literally ruining my life. I have to take

tylenol extra strength everyday because of the headaches this stuff gives me.

I think I read that you aren't supposed to take anything other than tylenol

while taking this stuff. I haven't noticed it interfering with my thyroid meds

.... but then again, all my focus is going to try and make it through finals

:-(

In a message dated 12/4/07 8:49:33 PM, gumboyaya@... writes:

>

> Crystal wrote:

> >

> >

> > Tylenol might not be a big deal, I'm sure chuck will know more....

>

> I prefer aspirin. It's easier on the kidneys. However, I don't think

> Tylenol will interfere with thyroxines much, unless the binder is

> calcium carbonate. That is not common with acetaminophen meds. One hour

> spacing should be sufficient.

>

> Chuck

>

>

>

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Take a look at this . Make sure this stuff is for you. It says 14 days,

maybe

the two weeks will cure you and you'll be done with it.

http://www.rxlist.com/cgi/generic/prevpac.htm

Roni

bear339@... wrote:

This Prevpac that I am taking is literally ruining my life. I have to

take

tylenol extra strength everyday because of the headaches this stuff gives me.

I think I read that you aren't supposed to take anything other than tylenol

while taking this stuff. I haven't noticed it interfering with my thyroid meds

.... but then again, all my focus is going to try and make it through finals

:-(

In a message dated 12/4/07 8:49:33 PM, gumboyaya@... writes:

>

> Crystal wrote:

> >

> >

> > Tylenol might not be a big deal, I'm sure chuck will know more....

>

> I prefer aspirin. It's easier on the kidneys. However, I don't think

> Tylenol will interfere with thyroxines much, unless the binder is

> calcium carbonate. That is not common with acetaminophen meds. One hour

> spacing should be sufficient.

>

> Chuck

>

>

>

**************************************

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products.

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Roni-

Thank you soooo much for this information. Yes, the prevpac is what I'm

taking. I only got about half way through it as I am pretty tired but so far it

has

REALLY explained and helped alot.

Thanks again,

In a message dated 12/5/07 1:40:15 PM, matchermaam@... writes:

> Take a look at this . Make sure this stuff is for you. It says 14

> days, maybe

> the two weeks will cure you and you'll be done with it.

>

> http://www.rxlist.http://www.rxlishttp://www.

>

> Roni

>

> bear339@b wrote:

> This Prevpac that I am taking is literally ruining my life. I have to take

> tylenol extra strength everyday because of the headaches this stuff gives

> me.

> I think I read that you aren't supposed to take anything other than tylenol

> while taking this stuff. I haven't noticed it interfering with my thyroid

> meds

> ... but then again, all my focus is going to try and make it through finals

> :-(

>

>

>

> In a message dated 12/4/07 8:49:33 PM, gumboyaya@... writes:

> >

> > Crystal wrote:

> > >

> > >

> > > Tylenol might not be a big deal, I'm sure chuck will know more....

> >

> > I prefer aspirin. It's easier on the kidneys. However, I don't think

> > Tylenol will interfere with thyroxines much, unless the binder is

> > calcium carbonate. That is not common with acetaminophen meds. One hour

> > spacing should be sufficient.

> >

> > Chuck

>

**************************************

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products.

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Beth wrote:

>

>

> I can't remember exactly why, but an endo i used to see in Florida told

> me to NEVER take Tylenol with Synthroid. He recommended ibuprofin instead.

Anything that is in your stomach at the same time as thyroxine can

interfere. However, Tylenol is not any more (or less) problematic than

anything else, including food. It does have an effect on globulin

levels, which could interfere slightly with some tests, but I could find

nothing in the literature about why ibuprofin would be preferable.

Chuck

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Beth wrote:

>

>

> I can't remember exactly why, but an endo i used to see in Florida told

> me to NEVER take Tylenol with Synthroid. He recommended ibuprofin instead.

Anything that is in your stomach at the same time as thyroxine can

interfere. However, Tylenol is not any more (or less) problematic than

anything else, including food. It does have an effect on globulin

levels, which could interfere slightly with some tests, but I could find

nothing in the literature about why ibuprofin would be preferable.

Chuck

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  • 3 months later...
Guest guest

as I understood it, if you're on Gleevec, Tylenol can be used, sparingly, but

not to access.

I would think, not at the same time. I have not been on Gleevec since 2004,

when I got into the Sprycel trial, so I could be wrong, someone will chime in if

I am. Bobby

Tammy Ferns <tammy@...> wrote:

Okay, I'm reading a lot of responses that say NO on Tylenol and YES to

IBprofen??

I was told the opposite by the doc.

Ugh! What's real?

Tammy

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

SKYPE: RCD1929

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Guest guest

Hi Marcos,

I don't think we differ at all on this subject, I just think that you

stated the danger more eloquently than I did.

I agree that the danger with Tylenol is its toxicity to the liver. I

just tried to explain why it can be so toxic.....because serum levels

get increased due to the inhibition of the glucurinidation of the

Tylenol.

So in other words, when taken with Gleevec, the level of Tylenol in

your blood can rise to toxic levels even though a person is taking

the recommended daily dose. This is why some doctors have said that

taking half the recommended daily dose should be ok.

But again, my feeling is that if all things are equal (a person is

able to take either Tylenol or Advil and both drugs could give the

person the same benefit they're looking for ie, get rid of a

headache), then my feeling is take the Advil. However, if a person

stands to benefit more from taking the Tylenol (for whatever reason),

then it should be " possible " to take it providing that the person is

careful with the dosing. You made a good point about having your

liver enzymes checked too.

Tracey

-- In , " Marcos Perreau Guimaraes "

<montereyunderwater@...> wrote:

>

> For once I am going to differ a bit with Tracey. From what I have

> read/heard tylenol (=aceminatophen) is toxic for the liver above the

> recommended dose, even without gleevec, and should never be

overdosed

> (ibuprofen can). As gleevec is also potentially toxic for the liver

> the combination even with a normal dose of tylenol could be

dangerous

> and liver should be monitored. The only toxicity related fatality

they

> had on the early gleevec trials was I think somebody who had liver

> failure taking a full dose of tylenol for a long time. The 4 drs I

saw

> (2 cml specialists) said that as long as liver counts are normal I

> could take some tylenol but I should not go over half the daily

limit.

> If it's not enough then to alternate with ibuprophen or aspirin (if

> platelets are ok). But aceminatophen has advantages on both

ibuprophen

> and aspirin and the drs told me to try that first.

> Marcos.

>

> On Wed, Mar 26, 2008 at 11:58 AM, Tracey <traceyincanada@...> wrote:

> >

> >

> >

> >

> > The issue with Tylenol is that when it's taken with Gleevec, your

serum

> > level of Tylenol can go much higher than it should (because

Gleevec

> > inhibits the glucurinidation of the Tylenol) so a dose of 500mg

could

> > potentially be double that.

> >

> > Some doctors say to avoid Tylenol all together because of the

> > unpredictable drug level while others say that as long as you

don't

> > take too much of it, you should be ok.

> >

> > My personal feeling is that if you can take an alternative (such

as

> > Advil) then why risk overloading your liver by using Tylenol. If

you

> > can't take the other drugs for some reason, then talk to your

doctor

> > about how much Tylenol is safe for you to take.

> >

> > Tracey

> >

> >

>

>

>

> --

> Marcos Perreau Guimaraes

> Suppes Brain Lab

> Ventura Hall - CSLI

> Stanford University

> 220 Panama street

> Stanford CA 94305-4101

> 650 614 2305

> 650 630 5015 (cell)

> marcospg@...

> montereyunderwater@...

> www.stanford.edu/~marcospg/

>

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Guest guest

I don't know exactly why, never researched it, but drs often don't

like ibuprophen. When I was still with a high WBC the dr didn't want

me to take ibuprophen or aspirin at all. The thing I know is you can

take tylenol without food, where ibuprophen or aspirin is rough on the

stomach and should not be taken on an empty stomach. I know we were

pretty much \saying the same thing, it was just a small jibe as I

often started a post with I second what Tracey said :)

Marcos.

On Wed, Mar 26, 2008 at 2:18 PM, Tracey <traceyincanada@...> wrote:

>

>

>

>

> Hi Marcos,

>

> I don't think we differ at all on this subject, I just think that you

> stated the danger more eloquently than I did.

>

> I agree that the danger with Tylenol is its toxicity to the liver. I

> just tried to explain why it can be so toxic.....because serum levels

> get increased due to the inhibition of the glucurinidation of the

> Tylenol.

>

> So in other words, when taken with Gleevec, the level of Tylenol in

> your blood can rise to toxic levels even though a person is taking

> the recommended daily dose. This is why some doctors have said that

> taking half the recommended daily dose should be ok.

>

> But again, my feeling is that if all things are equal (a person is

> able to take either Tylenol or Advil and both drugs could give the

> person the same benefit they're looking for ie, get rid of a

> headache), then my feeling is take the Advil. However, if a person

> stands to benefit more from taking the Tylenol (for whatever reason),

> then it should be " possible " to take it providing that the person is

> careful with the dosing. You made a good point about having your

> liver enzymes checked too.

>

> Tracey

>

> -- In , " Marcos Perreau Guimaraes "

> <montereyunderwater@...> wrote:

> >

> > For once I am going to differ a bit with Tracey. From what I have

> > read/heard tylenol (=aceminatophen) is toxic for the liver above the

> > recommended dose, even without gleevec, and should never be

> overdosed

> > (ibuprofen can). As gleevec is also potentially toxic for the liver

> > the combination even with a normal dose of tylenol could be

> dangerous

> > and liver should be monitored. The only toxicity related fatality

> they

> > had on the early gleevec trials was I think somebody who had liver

> > failure taking a full dose of tylenol for a long time. The 4 drs I

> saw

> > (2 cml specialists) said that as long as liver counts are normal I

> > could take some tylenol but I should not go over half the daily

> limit.

> > If it's not enough then to alternate with ibuprophen or aspirin (if

> > platelets are ok). But aceminatophen has advantages on both

> ibuprophen

> > and aspirin and the drs told me to try that first.

> > Marcos.

> >

> > On Wed, Mar 26, 2008 at 11:58 AM, Tracey <traceyincanada@...> wrote:

> > >

> > >

> > >

> > >

> > > The issue with Tylenol is that when it's taken with Gleevec, your

> serum

> > > level of Tylenol can go much higher than it should (because

> Gleevec

> > > inhibits the glucurinidation of the Tylenol) so a dose of 500mg

> could

> > > potentially be double that.

> > >

> > > Some doctors say to avoid Tylenol all together because of the

> > > unpredictable drug level while others say that as long as you

> don't

> > > take too much of it, you should be ok.

> > >

> > > My personal feeling is that if you can take an alternative (such

> as

> > > Advil) then why risk overloading your liver by using Tylenol. If

> you

> > > can't take the other drugs for some reason, then talk to your

> doctor

> > > about how much Tylenol is safe for you to take.

> > >

> > > Tracey

> > >

> > >

> >

> >

> >

> > --

> > Marcos Perreau Guimaraes

> > Suppes Brain Lab

> > Ventura Hall - CSLI

> > Stanford University

> > 220 Panama street

> > Stanford CA 94305-4101

> > 650 614 2305

> > 650 630 5015 (cell)

> > marcospg@...

> > montereyunderwater@...

> > www.stanford.edu/~marcospg/

> >

>

>

>

>

--

Marcos Perreau Guimaraes

Suppes Brain Lab

Ventura Hall - CSLI

Stanford University

220 Panama street

Stanford CA 94305-4101

650 614 2305

650 630 5015 (cell)

marcospg@...

montereyunderwater@...

www.stanford.edu/~marcospg/

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Guest guest

Thank you for the responses. I knew Tylenol was stronger because of the

Gleevec, so if I take any, I only take 1/2 of the normal dose. I don't take

it often.

Good to know that I could take Ibuprophen if needed.

Thanks for all the info!! Thanks for the recap on the teleconference

Tracey!!

Tammy

_____

From: [mailto: ] On Behalf Of Marcos

Perreau Guimaraes

Sent: Wednesday, March 26, 2008 5:30 PM

Subject: Re: [ ] Re: Tylenol

I don't know exactly why, never researched it, but drs often don't

like ibuprophen. When I was still with a high WBC the dr didn't want

me to take ibuprophen or aspirin at all. The thing I know is you can

take tylenol without food, where ibuprophen or aspirin is rough on the

stomach and should not be taken on an empty stomach. I know we were

pretty much \saying the same thing, it was just a small jibe as I

often started a post with I second what Tracey said :)

Marcos.

On Wed, Mar 26, 2008 at 2:18 PM, Tracey <traceyincanada@

<mailto:traceyincanada%40> > wrote:

>

>

>

>

> Hi Marcos,

>

> I don't think we differ at all on this subject, I just think that you

> stated the danger more eloquently than I did.

>

> I agree that the danger with Tylenol is its toxicity to the liver. I

> just tried to explain why it can be so toxic.....because serum levels

> get increased due to the inhibition of the glucurinidation of the

> Tylenol.

>

> So in other words, when taken with Gleevec, the level of Tylenol in

> your blood can rise to toxic levels even though a person is taking

> the recommended daily dose. This is why some doctors have said that

> taking half the recommended daily dose should be ok.

>

> But again, my feeling is that if all things are equal (a person is

> able to take either Tylenol or Advil and both drugs could give the

> person the same benefit they're looking for ie, get rid of a

> headache), then my feeling is take the Advil. However, if a person

> stands to benefit more from taking the Tylenol (for whatever reason),

> then it should be " possible " to take it providing that the person is

> careful with the dosing. You made a good point about having your

> liver enzymes checked too.

>

> Tracey

>

> -- In groups (DOT) <mailto:%40> com, " Marcos

Perreau Guimaraes "

> <montereyunderwater@...> wrote:

> >

> > For once I am going to differ a bit with Tracey. From what I have

> > read/heard tylenol (=aceminatophen) is toxic for the liver above the

> > recommended dose, even without gleevec, and should never be

> overdosed

> > (ibuprofen can). As gleevec is also potentially toxic for the liver

> > the combination even with a normal dose of tylenol could be

> dangerous

> > and liver should be monitored. The only toxicity related fatality

> they

> > had on the early gleevec trials was I think somebody who had liver

> > failure taking a full dose of tylenol for a long time. The 4 drs I

> saw

> > (2 cml specialists) said that as long as liver counts are normal I

> > could take some tylenol but I should not go over half the daily

> limit.

> > If it's not enough then to alternate with ibuprophen or aspirin (if

> > platelets are ok). But aceminatophen has advantages on both

> ibuprophen

> > and aspirin and the drs told me to try that first.

> > Marcos.

> >

> > On Wed, Mar 26, 2008 at 11:58 AM, Tracey <traceyincanada@...> wrote:

> > >

> > >

> > >

> > >

> > > The issue with Tylenol is that when it's taken with Gleevec, your

> serum

> > > level of Tylenol can go much higher than it should (because

> Gleevec

> > > inhibits the glucurinidation of the Tylenol) so a dose of 500mg

> could

> > > potentially be double that.

> > >

> > > Some doctors say to avoid Tylenol all together because of the

> > > unpredictable drug level while others say that as long as you

> don't

> > > take too much of it, you should be ok.

> > >

> > > My personal feeling is that if you can take an alternative (such

> as

> > > Advil) then why risk overloading your liver by using Tylenol. If

> you

> > > can't take the other drugs for some reason, then talk to your

> doctor

> > > about how much Tylenol is safe for you to take.

> > >

> > > Tracey

> > >

> > >

> >

> >

> >

> > --

> > Marcos Perreau Guimaraes

> > Suppes Brain Lab

> > Ventura Hall - CSLI

> > Stanford University

> > 220 Panama street

> > Stanford CA 94305-4101

> > 650 614 2305

> > 650 630 5015 (cell)

> > marcospg@...

> > montereyunderwater@...

> > www.stanford.edu/~marcospg/

> >

>

>

>

>

--

Marcos Perreau Guimaraes

Suppes Brain Lab

Ventura Hall - CSLI

Stanford University

220 Panama street

Stanford CA 94305-4101

650 614 2305

650 630 5015 (cell)

marcospgcsli (DOT) <mailto:marcospg%40csli.stanford.edu> stanford.edu

montereyunderwater@ <mailto:montereyunderwater%40gmail.com> gmail.com

www.stanford.edu/~marcospg/

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Dear Marcos, I am one of the very few who had liver issues with gleevec. In

fact, AST and ALT as high as 2000. The docs at MSKCC said absolutely no Tylenol

at that time. Not because of increased levels of gleevec, but because of how

hard it is for the liver to metabolize it. Now that my liver has returned to

normal, I do on occasion take Excedrin for headaches and that does contain

acetominophen. I have been fine with that. I also have an occasional wine or

beer without any problem. If I had pain I was to take ibuprofen, but not often

as it can cause stomach bleeding. Lynn F.

Re: [ ] Re: Tylenol

For once I am going to differ a bit with Tracey. From what I have

read/heard tylenol (=aceminatophen) is toxic for the liver above the

recommended dose, even without gleevec, and should never be overdosed

(ibuprofen can). As gleevec is also potentially toxic for the liver

the combination even with a normal dose of tylenol could be dangerous

and liver should be monitored. The only toxicity related fatality they

had on the early gleevec trials was I think somebody who had liver

failure taking a full dose of tylenol for a long time. The 4 drs I saw

(2 cml specialists) said that as long as liver counts are normal I

could take some tylenol but I should not go over half the daily limit.

If it's not enough then to alternate with ibuprophen or aspirin (if

platelets are ok). But aceminatophen has advantages on both ibuprophen

and aspirin and the drs told me to try that first.

Marcos.

On Wed, Mar 26, 2008 at 11:58 AM, Tracey <traceyincanada@...> wrote:

>

>

>

>

> The issue with Tylenol is that when it's taken with Gleevec, your serum

> level of Tylenol can go much higher than it should (because Gleevec

> inhibits the glucurinidation of the Tylenol) so a dose of 500mg could

> potentially be double that.

>

> Some doctors say to avoid Tylenol all together because of the

> unpredictable drug level while others say that as long as you don't

> take too much of it, you should be ok.

>

> My personal feeling is that if you can take an alternative (such as

> Advil) then why risk overloading your liver by using Tylenol. If you

> can't take the other drugs for some reason, then talk to your doctor

> about how much Tylenol is safe for you to take.

>

> Tracey

>

>

--

Marcos Perreau Guimaraes

Suppes Brain Lab

Ventura Hall - CSLI

Stanford University

220 Panama street

Stanford CA 94305-4101

650 614 2305

650 630 5015 (cell)

marcospg@...

montereyunderwater@...

www.stanford.edu/~marcospg/

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I take Sprycel and cannot take Ibuprofin...when I was on Gleevec I was not

allowded to tack Tylenol

Tammy Ferns <tammy@...> wrote: Okay, I'm reading a lot

of responses that say NO on Tylenol and YES to IBprofen??

I was told the opposite by the doc.

Ugh! What's real?

Tammy

Peace, Light & Love

---------------------------------

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