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Morning stiffness, which is sometimes described as a thickening or

" jelling-up " of the synovial fluid, was one of the first symptoms to respond

early on to the antibiotics for me. Perhaps you need to try switching or

adding on another antibiotic? I still get some generalized stiffness and

swelling but the exaggerated effect in the morning or after sitting a long

time has not come back. It began to go away about two months into my

tetracycline treatment. Liz G

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In a message dated 5/21/99 7:45:50 AM Eastern Daylight Time,

briarwood@... writes:

<< You were fortunate if you didn't have stiffness. That was one of the

first

symptoms that sent me to my gp. With the AP I have found it has lessened

80%, but some days after a lot of activity it is worse. Hope this helps.

Too bad you are getting it now. :>)

>>

Hi Bev,

Now I am beginning to understand why they say there are 100 types of

arthritis! 2 people have written to me that their stiffness only began after

going on the AP and yours has lessened.

This only confirms that we are indeed complex and very individualized

creatures.

Anita,

RA 26 years, Fibro, AP 16 months

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In a message dated 5/21/99 4:47:05 AM Eastern Daylight Time,

denisej@... writes:

<< How long have you been off methotrexate? Maybe your immune system is

starting to work again now that you're off that. >>

Hi ,

I have Fibro also, which I keep forgetting to post. I started the AP on Jan

30 1998, and 1 week later took my last shot of Mtx and quit it cold turkey.

So I have been off Mtx for over a year.

Do you guys really think I'm herxing or just in a huge flare? My knees

flaring for 3 months at least, now last month it is elbows and ankles for the

very first time in these 26 years. Heels so bad in the a.m. can hardly walk,

then it leaves pretty much but I can't walk or stand very long.

I am doing the elimination diet, started today.

Thanks, Anita

RA 26 years, Fibro, AP 16 months

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In a message dated 5/21/99 2:34:15 AM Eastern Daylight Time,

arjay@... writes:

<< AP has made such a difference in my

life and how I view the rest of it--I'm a real AP zealot I feel like

I've dodged a giant bullet. I think it will work for all of us and I

thank God that I went into that bookstore >>

Hi ,

Yes, indeedy, how fortunate for you. God was watching over you for sure. To

have found the cure when you have had it for only such a short time. We long

termers are in for a mighty long haul. Some of us may never get better but

one thing for sure, we won't give up the fight. Onward, forward, rah rah rah.

Anita

RA 26 years, Fibro, AP 16 months

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In a message dated 5/22/99 12:50:24 AM Eastern Daylight Time,

denisej@... writes:

<< I don't know what the elimination diet is, could you tell me? >>

Hi ,

I am eliminating foods from my diet that *may* be causing me so much pain and

stiffness. I am starting with the foods I love and eat the most and then

will omit others and add back which don't bother me. Geoff sent the protocol

for it.

Cya, Anita

RA 26 years, Fibro, AP 16 months

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  • 5 years later...

It does help some with spasticity. Like everything, it depends on the individual. I was so stifft to start with, and it hasn't made a difference in that.

Marcie

In a message dated 11/25/2004 8:51:39 AM Central Standard Time, saranyasaranye@... writes:

What is it that causes increased stiffness with LDN? I already had plenty of that before starting. I thought LDN was supposed to help with spasticity. Let's hope we all enjoy the day and eat wisely.

Saranya

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What is it that causes increased stiffness with LDN? I already had

plenty of that before starting. I thought LDN was supposed to help

with spasticity. Let's hope we all enjoy the day and eat wisely.

Saranya

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I AM NOT SURE BUT I CAN SAY , AFTER 1 MONTH OF LDN , THAT INITIALLY THE STIFFNESS WAS WORSE BUT IS BEGINNING TO LESSON A LITTLE. IT HAS ALMOST STOPPED THE TIMES OF MUSCLE BECOMING STIFF AND HOLDING FOR A FEW SECONDS (DON'T KNOW IF ANYONE ELSE HAS THIS)

DeLores

decrosby@...

-----Original Message-----From: saranyasaranye [mailto:saranyasaranye@...] Sent: Thursday, November 25, 2004 9:48 AMlow dose naltrexone Subject: [low dose naltrexone] StiffnessWhat is it that causes increased stiffness with LDN? I already had plenty of that before starting. I thought LDN was supposed to help with spasticity. Let's hope we all enjoy the day and eat wisely. Saranya

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I don't think I've seen an explanation for the stiffness. I THINK it only occurs in those of us with MS, but I'm not certain of that either. I also don't understand why LDN improves symptoms for some. It isn't actually fixing anything, as is evidenced by the return to pre LDN status if you quit taking it for few days? Perhaps it somehow improves nerve conduction? Does anyone have the explanations for these questions?

JT

[low dose naltrexone] Stiffness

What is it that causes increased stiffness with LDN? I already had plenty of that before starting. I thought LDN was supposed to help with spasticity. Let's hope we all enjoy the day and eat wisely. Saranya

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  • 1 year later...
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what is your dosage?

--- ahchapman@... wrote:

> Hi All, I've been reading posts here for about 3

> years (and occasionally

> participating). Something caught my eye when I read

> Gayle's letter to the group.

> It was about stiffness ....and even though stiffness

> is discussed

> frequently... and I hope this hasn't been discussed

> at length also..(MS brain you know)...

> I'm wondering why stiffness would appear or increase

> due to taking

> LDN..Endorphin production doesn't relate to

> stiffness does it ?

> I've mentioned before that I happen to be someone

> who has continued to

> take LDN only as a cost effective

> anti-depressant...since I seem to be one of

> those few where it has not stopped my " progression "

> nor caused any positive

> change in me except for mood (not a small thing)..

> At this point, I'm trying to

> recall if the stiffness which is always with me,

> began when I began taking LDN.

> (Note: a diary would be a great idea). Am

> considering going back to Prozac

> after reading Gayle's letter. Any thoughts on this

> would be appreciated.

> Take care,

>

__________________________________________________

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