A question (not specifically mito related)

[Guest guest]

Hi all.

Sorry, this is not specifically mito related, but I thought I would

throw it to the best " experts " I know!

Gracie was recently seen in the local ER for what turned out to be a UTI

with anuria. She seems to be responding well to the antibiotic. Gracie

is 3 yo, this is the first UTI she's had.

Upon follow-up with our GP, he has referred her to a pediatric urologist

as he says that she needs to be evaluated for kidney reflux. When I

questioned why he would feel that way, all he would say to me is that it

is " standard procedure " to refer to a urologist after only one UTI.

Also, I found it a bit odd that he didn't want her to see a local

urologist, but rather wants to send her to the children's hospital that

Matty went to (although it is an hour or more away from where we live).

This coming from the same GP who for months refused to say that Gracie

had any problems at all that needed specialist follow-up (regarding the

fatigue, low muscle tone, speech and developmental delays, etc.)

Also, I'm a bit confused as it was my understanding that it is not

uncommon for little girls (particularly little girls still in diapers)

to get UTI's. And considering that this is the first time we have dealt

with UTI (it is not an ongoing problem), it seems weird to me that he

would make a costly referral to a specialty hospital where they have

already arranged to do at least x-rays and an ultrasound.

So, my question to you all is, do you know anything about kidney reflux?

Is it, in fact, standard procedure to make this kind of referral after

the first incidence of infection? My feeling is that there is something

that our GP is not telling me, something that maybe showed up on testing

at our local ER? There, they did blood work (which all looked fine to

me) and x-rays, as well as a urinalysis.

Thanks for any information or insight you might have for me!!

H.

momma to

^^ (PS & KSS)

(And Gracie and Adri too!!)

[Guest guest]

Hi ,

Well as someone that's been treated for UTI's over the past year I can honestly say that what your Dr has proposed to you sounds to the extreme.

I was on medication called Hiprex, and had MSU's every 6 weeks to check for reoccurrence of infections, but never had to go through any of the stuff Gracie is scheduled for.

I would ask your Dr why. It doesn't ring true to me either.

Hows things in general hon?

Love Aisha

[Guest guest]

Aisha,

Things are going okay. Same old same old. LOL

Gracie's appointment with the Developmental Peds people is next

week (finally!!) so I'm hoping that we learn more then. I'll just be glad

to know, one way or the other, what is going on with her. It's so frustrating

to deal with problem after problem and not know why it is happening, or

how to help.

Since I posted last week about her newest speech problems (the

stuttering), it has gotten worse...she's still stuttering but is now drawing

out the sounds too..like instead of it just being I-I-I-I-I want a cookie....now

it's Eeeeye-eeeye-eeeye-eeeye want a cooooookie...um, I think they call

that prolongation. So that's something that we'll have to keep an eye on,

too, as interruptions in the normal flow of speech such as these can be

indicative of a neuro problem.

Otherwise, things are pretty much the same. LOL

How are you doing?

*hugs*

Aisha Elderwyn wrote:

Hi , Well as someone that's

been treated for UTI's over the past year I can honestly say that what

your Dr has proposed to you sounds to the extreme. I was on medication

called Hiprex, and had MSU's every 6 weeks to check for reoccurrence of

infections, but never had to go through any of the stuff Gracie is scheduled

for. I would ask your Dr why. It doesn't ring true to me either. Hows

things in general hon? Love Aisha

The Being Sick Community

Visual problems with colors?

Click the link below and select the modify link to your right.

Then select the **Send Plain Text Email** option. This will stop you receiving

emails with colored or enlarged fonts.

Members Lounge:-

Photo Album, memorial page, members profiles, birthdays, locations,

medical resources, counselling via email and a whole bunch of free things.

http://www.elderwyn.com/members

Message Archives and Digest Attachment Pictures:-

messages/

Chat:-

Scheduled Daily Chats at # on IRC DALnet.

/chat.htm

Sharing our resources:-

Add a website URL you have found useful.

Personal Complaints or problems:-

Please contact a moderator either via email <-owneregroups>

or visit:-

/Moderators.htm

Subscription Details:-

1) Individual email - means that every email sent to the list you

receive.

2) Daily Digest - sends you 25 messages in one single email for

you to browse. This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into eGroups at your

convenience and receive no email.

To modify your subscription settings please visit mygroups

To subscribe or unsubscribe

subscribe/

~~~~~~~~~~~~~~~

“Hold on to what is good, even if it's a handful of earth. Hold

on to what you believe, even if it's a tree that stands by itself. Hold

on to what you must do even, if it's a long way from here. Hold on to your

life, even if it's easier to let go." - Pueblo Prayer