Re: Update on and his behaviors

[Guest guest]

In a message dated 2/26/2004 10:24:23 PM Eastern Standard Time,

cindysue@... writes:

>

> Oh yea, we fired the behavioral psychologist - he was pretty stupid for

> someone with a PhD.

As a former boss of mine used to say, " Never confuse education with

intelligence. "

Kathy, Liam's mom( 5)

[Guest guest]

In a message dated 2/27/04 7:05:14 AM Central Standard Time,

writes:

> Hi Everyone. had a follow up appointment at KKI yesterday and he

> behaved very well this time! While we were there to see the neurologist, we

> talked to Dr. Capone in the waiting room. The depakote is working and I have

> a very loving child now with few episodes of aggressive behaviors. The only

> drawback of this medication is a 20% increase in body weight. My little guy

> now weighs 100 pounds! We'll have to change the medicine around a bit. I'm

> waiting to find out what changes will be made.

>

> As far as afterschool care, we found a 17 year old who is homeschooled and

> loves working with the MR population (as does her parents). Her mom works in

> my building with individuals with MR who are working on vocational skills

> (that program runs our mail for us) and her parents provide respite services.

> is happy to have a young person in the home who makes herself

> comfortable. The best thing I did for is to pull him out of his

afterschool

> program. How many kids who are 10 really want to stay at school for an

> additional few hours??? So it's working. My stress level is way down, but

best of

> all, is happy.

>

> Oh yea, we fired the behavioral psychologist - he was pretty stupid for

> someone with a PhD. He never did a family assessment, didn't develop a

treatment

> plan and would not accomadate our schedules. He made many benighted and

> presumptive statements, too. The first one was during his first visit to the

> home and he said he didn't know what the problem was, was a sweet

> little boy. He spent 5 minutes observing him at his afterschool program

(

> fell asleep) and a few minutes at our home. That was clue #1. He also said

> " you don't want respond to because you are afraid it's going to get

> worse (meaning the physical aggression). Had he done a comprehensive family

> assessment, he would have known that I have lupus with chronic hives (bringing

> in the groceries and holding the dog leash can bring about hives - and

> getting hit stung like hell from the hives). He continuously compared his own

> children (who aren't neurologically impaired) to . He needs to go back

> to school and take some family therapy classes. He also questioned the

> doctors judgement - and to me, the doctors at KKI are the real experts and we

have

> the utmost faith and trust in them.

>

>

,

I'm so glad that is doing well. How wonderful that you found someone

to care for him after school that he enjoys.

What " behaviors " or " issues " do you see the depakote helping with? It is one

of the few meds that we haven't tried with . I have hesitated since I

don't know that we could make it through the period of adjustment while his body

gets used to the medication.

Too bad about the behavioral psychologist. We have had bad experiences with

two of them. One was clueless the other totally lacked follow through. We are

now starting with a behavioral psych from our county to see what he can offer

us.

Anyway, Glad to hear the good news.

Karyn

[Guest guest]

Your boss got that right. Many are educated but have NO COMMON SENSE! LOL!

When we were interviewing Sped's for Micah I had one call who had her masters

degree and she questioned why I had to have one who could sign. I explained

that Micah was for the most part non-verbal and relied on the little signing he

had, but that he also needed someone who could help him to communicate with his

peers in nursery school (typical nursery school). She said " Well don't you want

him to talk? " DUH!!! I said " Your kidding right? Of course we want him to

talk BUT UNFORTUNATELT he can't right now and needs to communicate through

another venue. " Needless to say she is not our SPED teacher. Where do they get

these people???

Loree

Re: Update on and his behaviors

In a message dated 2/26/2004 10:24:23 PM Eastern Standard Time,

cindysue@... writes:

>

> Oh yea, we fired the behavioral psychologist - he was pretty stupid for

> someone with a PhD.

As a former boss of mine used to say, " Never confuse education with

intelligence. "

Kathy, Liam's mom( 5)

[Guest guest]

I am so happy for you . I know you have had a long hard road and when

something good starts to click it is such a joy and relief. I pray he continues

to do so well.

Loree

Update on and his behaviors

Hi Everyone. had a follow up appointment at KKI yesterday and he

behaved very well this time! While we were there to see the neurologist, we

talked to Dr. Capone in the waiting room. The depakote is working and I have a

very loving child now with few episodes of aggressive behaviors. The only

drawback of this medication is a 20% increase in body weight. My little guy now

weighs 100 pounds! We'll have to change the medicine around a bit. I'm waiting

to find out what changes will be made.

As far as afterschool care, we found a 17 year old who is homeschooled and

loves working with the MR population (as does her parents). Her mom works in my

building with individuals with MR who are working on vocational skills (that

program runs our mail for us) and her parents provide respite services.

is happy to have a young person in the home who makes herself comfortable. The

best thing I did for is to pull him out of his afterschool program. How

many kids who are 10 really want to stay at school for an additional few

hours??? So it's working. My stress level is way down, but best of all,

is happy.

Oh yea, we fired the behavioral psychologist - he was pretty stupid for

someone with a PhD. He never did a family assessment, didn't develop a

treatment plan and would not accomadate our schedules. He made many benighted

and presumptive statements, too. The first one was during his first visit to

the home and he said he didn't know what the problem was, was a sweet

little boy. He spent 5 minutes observing him at his afterschool program

( fell asleep) and a few minutes at our home. That was clue #1. He also

said " you don't want respond to because you are afraid it's going to get

worse (meaning the physical aggression). Had he done a comprehensive family

assessment, he would have known that I have lupus with chronic hives (bringing

in the groceries and holding the dog leash can bring about hives - and getting

hit stung like hell from the hives). He continuously compared his own children

(who aren't neurologicall y impaired) to . He needs to go back to school

and take some family therapy classes. He also questioned the doctors judgement

- and to me, the doctors at KKI are the real experts and we have the utmost

faith and trust in them.

Anyways, I wanted to provide an update, especially for those who have children

with behavioral issues that are more severe than your average child with DS.

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[Guest guest]

,

I'm so glad that is doing well. How wonderful that you found someone

to care for him after school that he enjoys.

What " behaviors " or " issues " do you see the depakote helping with?

Decreased physical aggressiveness, substantially -

Mood swings diminished

Impulsive behaviors

Has helped with his obsession with lights/shadows

It also appears he's not as anxious.

It's been wonderful for him and he tolerates the medicine well. We do use the

sprinkles, we started on depakane and it caused alot of tummy problems (mostly

constant gas).

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