- Right Ventricular Dysplasia

[Guest guest]

Hi . My name is Tami and I am new to this group too. I was

also diagnosed with ARVD also, but in 97. I have three small

children too....13, 11, and 6. I am now 41. Did you say that you

were just diagnosed? I have an ICD which was implanted also in 97.

My ICD went off for the first time in January of this year....seven

times. If you have any questions, please feel free to write me at my

personal e-mail address...kieser@.... I can answer anything

you need to know.....I've dealt with this disease for four years.

Take care. Tami from Michigan

> Hi Folks,

>

> I started getting these messages and I am not sure why. I do enjoy

reading

> them though and would like to know a little bit more about who you

> wonderful people are and how I might join in on this support

network. Feel

> free to email me privately if that is better. lmunson@p...

>

> I am a 40 year old, married, female w/ 3 children 12,10,7. I was

diagnosed

> with RV Dysplasia 2 1/2 years ago and given an ICD. I was symptom

free

> till January 31st of this year when it fired 5 times. Docs

hospitalized

> me, changed my meds to betapace and reprogrammed the device. Two

weeks

> later took me back to the EP Lab and determined that the leads were

not

> working as should. So doc replaced one lead and then decided to

give me a

> whole new device. I have been relatively sympton free (I think we

all have

> flips and flops if you know what I mean) and for the most part have

resumed

> most normal activities. I will say that having a device and never

having

> it fire and having a device and having it fire are two different

> things. Emotionally, I am almost there! (smile) But my new hobby

has

> been surfing the web for others like myself.

>

> I guess I am curious how some of you out there deal with firings on

a

> regular basis.

>

> I'd love to hear from anyone - I'd love to give support and get it!

>

> Thanks for letting me share.

>

>