Hi

[Guest guest]

hi connie, great to meet you ! shawna, mom to nathan 9yrs w/ds pdd and

nicholas 7yrs, wife to geoff.

>From: " Dan Hopkins " <dan_hopkins@...>

>Reply-egroups

><egroups>

>Subject: hi

>Date: Wed, 9 Aug 2000 22:35:40 -0400

>

>Hi All,

>

>Since there have been some introductions lately, I thought I would use the

>occasion of my children's birthday to " step out of lurking " and say hello.

>

>My name is Connie and I have four sons, three of them celebrated their 5th

>birthday today. is the reason I am lurking here. Familiar story,

>I could never figure out what was going on with him until I found that

>issue of Disability Solutions on the web. I tuned in here a while back and

>so many stories I've read sound sooo familiar. We spent the last week of

>July at KKI getting our official DS-ASD diagnosis.

>

> is a " shadow maker " and spinner and shoe licker!! He is non

>verbal, a total fish in the water (we live in Florida), and a source of

>joy, amazement and frustration for me. He was born 12 weeks early, one of

>a set of fraternal triplets, who have all had varying degrees of medical

>and developmental problems. My oldest son is 6. I have gained much from

>my lurking, mostly a sense of belonging. No one else ever seemed to " get

>it. " Not parents of children with " just DS. " Not parents of multiples

>with " just DS. " I hope I can contribute something to the group. Thanks

>for allowing me to lurk.

>

>Connie (out of the closet)

>

>

>

[Guest guest]

Hi Krissy!

Welcome to the group! Sorry I'm so far behind on my e-mails right now...I just

started school again, and the workload is really cutting into my puter time

lol

I'm , I joined this group as a caregiver to my son, . I've found so

much love and support here that it's just unreal. This is a really special group

of people, and I'm so glad that you've found us!

, momma to

^^ the sweetest angel

(12-23-98 to 6-9-00)

Pearson's syndrome/ Kearns-Sayre syndrome

Krissy Wegmann wrote:

> Hi Everyone,

>

> I would just like to introduce myself to you all. My name is Krissy, and I

> am a 15 year old from New Jersey. I, myself, have Lyme Disease, but my very

> close Aunt is the reason for joining this group. She has a disease called

> Scleroderma. Most people haven't heard of it. It's not that rare, but it is

> not very well known. Scleroderma is the hardening of the tissue in your

> body. Sclero meaning hard and derma meaning skin. There is no cure for it.

> The longest someone has lived with it is 20 years. Most of the time it

> either effects your internal organs or it effects you externally (hardens

> and stiffens your skin so you become immobile). Sometimes, it will effect

> you both internally and externally. My Aunt has this disease

> internally. It has hardened parts of her lungs and esophagus as well as

> other organs. I was just wondering if anyone else has this disease or knows

> someone who does. Please, contact me if possible. For more information on

> Scleroderma, you can visit my site. The URL is:

> http://members.tripod.com/Scleroderma/Scleroderma/index.html

> I am currently working on relocating this site. It was originally at

> Homestead, but I recently moved it to tripod. I haven't finished all the

> details to it yet. Please visit the " Links " part of the site and sign my

> " Old " Guest book.

>

> Hope to hear more from you all. God Bless.

>

> Peace,

> Krissy

>

> ____________________________________________________________________________

> ~*The world is full of zanies and fools

> Who don't believe in sensible rules

> And don't believe what sensible people say

> And because-these-daff-and-dooly-ite-dopes

> Keep-building-up-impossible-hopes,

> ImPoSsIbLe, things are happening EvErYdAY.*~

>

> *Whitney Houston* and Hammerstein's " Cinderella "

>

> _________________________________________________________________________

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>

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>

> “Hold on to what is good, even if it's a handful of earth. Hold on to what you

believe, even if it's a tree that stands by itself. Hold on to what you must do

even, if it's a long way from here. Hold on to your life, even if it's easier to

let go. " - Pueblo Prayer

[Guest guest]

Hi !!

"I donn't blame myself, any more that is. I didn't ask for all these health problems, so it's not my fault (took me a long time to figure that out)"

Me too - especially when you are trained to think that you should be "doing" and "working" and all of that ...

"the ulcer on my leg is because I have had blood clots in that leg over the years so the circulation is really bad. I had caught myself on a little piece of wood outside and scratched it. <snip> So I was left with the sitting on my butt routine--really easy with a 4 years old and anal fistulas!! Very frustrating to say the least so it is taking forever to heal."

YUCK and OUCH!

Have you tried calendula cream? Its really good stuff. If you need me to send you some just say - the homeopathic version is better, but its a cream that you would find in a natural therapies/ health food type shop. Its excellent for healing wounds.

"My docs all know that if I don't agree or if there's anything I will question and if I'm not satisfied I'll continue to question. I see all kinds of doc--primary-rheumotologist-orthopod-GI-vasular surgeon-general surgeon--I hit pretty much everybody"

WOWsies - You are collecting ologists! Am glad you take no crap from them! You go girl!!

"The meds I take are Prednisone, Imuran, Imodium,Didronel,Calcitonin, all different pain meds, sleeping pill TOO MANY!!"

ACK Prednisone and Imuran! Are they weaning you off the prednisone in favour of the Imuran? What is your main illness again - I've lost the plot - will have to go and look at the members profile!!

"I don't sit and wait any more, I have lost too much of my own life from waiting for doctors to decide what they want to do. it's a very frustrating thing but you have to stand up for yourself and educate yourself now a days or you're in trouble......."

Right on hon. Took me over 25 Drs in about 18 months, if that, to find people who knew what they were doing. Damn its hard when you are really ill and unable to move around also! If it wasnt for all our external research and persistance we would never have found the connections that fitted all the pieces together. Its pretty pathetic when you have to be the one to find out what you have, but its worth all the hassel.

Hang in there babe! Sounds like you are fighting a tough battle but you certainly got a good attitude about it!

*hugs*

Love Aisha

[Guest guest]

Aisha

Thanks for the info on the calendula cream, I'm going to call the natural

foods store and see if they have it. I've been doing this for over 2 months

and the progression has seems to slow to a snails pace, so I am game to try

anything.

As far as the prednisone (I take for Crohns disease) I will never go below 10

mg, but adrenals are shot and don't respond. So it's my buddy for life

unfortunately. that's why I cringe whenever I hear people having to take it

even for short times, because I have necrosis in my rt hip from the steroids

so I'll be looking at hip replacement in the not to far future. If I keep

going I can become the bionic woman...!! I wonder if I will set off the metal

detectors at the airport??

Aisha, I am glad you are such a wealth of information..I'll let you know if I

can get it.

Thanks--love and hugs

[Guest guest]

Hi ...i would also add in lactobacillus acidophillus capsules to add

friendly bacteria to your body to help it heal as well

Sheena:)

rbutt62129@... wrote:

> Aisha

> Thanks for the info on the calendula cream, I'm going to call the natural

> foods store and see if they have it. I've been doing this for over 2 months

> and the progression has seems to slow to a snails pace, so I am game to try

> anything.

[Guest guest]

Thanks Sheena. Never thought of it. I have some in the house my daughters

uses when she has to be on antibiotics. I'll take all the help I can find.

Hugs

[Guest guest]

Hi ,

Welcome to the group. I'm so sorry about your son, I just can't imagine

what you must be going through.

As for you not having an illness, I think the extreme grief you must be

going through more than counts.

(hugs)

Dee Wallace

>From: " " <codey@...>

>Reply-egroups

> " " <egroups>

>Subject: hi

>Date: Tue, 7 Nov 2000 00:03:38 +1000

>

>Hi,

>

>I dont know if I belong here or not. Aisha asked me to join, but as I have

>been reading the member profiles, I just dont know.

>

>My son Zeke passed away due to leukaemia just 10 hours ago. I am so lost,

>feel so empty and its hard to see through the tears.

>

>I see you all are a support group for people with an illness primarily. I

>dont have one myself, which is why I dont know if I belong here.

>

>Im sorry.

>

>.

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

[Guest guest]

, I am so sorry about your little boy. Of course you are welcome here.

This group is wonderful & caring. Feel free to talk about any thing you

like. Again, I am so sorry. Huggs ne

----Original Message Follows----

From: " " <codey@...>

Reply-egroups

" " <egroups>

Subject: hi

Date: Tue, 7 Nov 2000 00:03:38 +1000

Hi,

I dont know if I belong here or not. Aisha asked me to join, but as I have

been reading the member profiles, I just dont know.

My son Zeke passed away due to leukaemia just 10 hours ago. I am so lost,

feel so empty and its hard to see through the tears.

I see you all are a support group for people with an illness primarily. I

dont have one myself, which is why I dont know if I belong here.

Im sorry.

.

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

[Guest guest]

It sounds like you belong here. Not everyone has thier profile listed.

On the other hand, if it has been only 10 hours, no matter what we say

to you, it can't possibly erase the pain yet. It's too fresh. So sit

back and let the tears flow.

** , Stinky's caretaker**

Our purpose in life is to have

a life of purpose.

[Guest guest]

Dear ,

I, for one, am glad you are here. Please feel free to talk all you need ok. There are others here who have unfortunately lost their children also. They too have no illness etc but have stayed on to share and be supported.

Right now you probably don't know what to do, so please, just write to us about how you feel. No one here will judge you. All you will get is lots of support and love.

You never need apologise for how you feel. No vent is ever too long or short, bitchy or selfish. We are all here cause illness has affected our lives in some form. Yours in the most cruellest form.

You are very welcome here .

*gentle hugs*

Aisha

[Guest guest]

Thank you . My tears havent stopped since it happened. I am finding it

so very hard. I have lost 2 boys now, my twin boys. Life is just so unfair.

Re: hi

It sounds like you belong here. Not everyone has thier profile listed.

On the other hand, if it has been only 10 hours, no matter what we say

to you, it can't possibly erase the pain yet. It's too fresh. So sit

back and let the tears flow.

** , Stinky's caretaker**

Our purpose in life is to have

a life of purpose.

The Being Sick Community

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subscribe/

~~~~~~~~~~~~~~~

" Hold on to what is good, even if it's a handful of earth. Hold on to what

you believe, even if it's a tree that stands by itself. Hold on to what you

must do even, if it's a long way from here. Hold on to your life, even if

it's easier to let go. " - Pueblo Prayer

[Guest guest]

Thank you . My tears havent stopped since it happened. I am finding it

so very hard. I have lost 2 boys now, my twin boys. Life is just so unfair.

Re: hi

It sounds like you belong here. Not everyone has thier profile listed.

On the other hand, if it has been only 10 hours, no matter what we say

to you, it can't possibly erase the pain yet. It's too fresh. So sit

back and let the tears flow.

** , Stinky's caretaker**

Our purpose in life is to have

a life of purpose.

The Being Sick Community

Visual problems with colors?

Click the link below and select the modify link to your right. Then select

the **Send Plain Text Email** option. This will stop you receiving emails

with colored or enlarged fonts.

Members Lounge:-

Photo Album, memorial page, members profiles, birthdays, locations, medical

resources, counselling via email, and a whole bunch of free things.

http://www.elderwyn.com/members

Message Archives and Digest Attachment Pictures:-

messages/

Chat:-

Scheduled Daily Chats at # on IRC DALnet.

chat.html

Sharing our resources:-

Add a website URL you have found useful.

Personal Complaints or problems:-

Please contact a moderator should you require assistance with anything

technical or if you are upset by another. The email address for the

moderators is <-owneregroups>

Subscription Details:-

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2) Daily Digest - sends you 25 messages in one single email for you to

browse. This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into eGroups at your

convenience and receive no email.

To modify your subscription settings please visit

mygroups

To subscribe or unsubscribe

subscribe/

~~~~~~~~~~~~~~~

" Hold on to what is good, even if it's a handful of earth. Hold on to what

you believe, even if it's a tree that stands by itself. Hold on to what you

must do even, if it's a long way from here. Hold on to your life, even if

it's easier to let go. " - Pueblo Prayer

[Guest guest]

Thank you Aisha,

Right now I feel so alone, empty, mad, upset and angry. I dontknow why this has happened to me again. The hardest part of all was not when he passed away to peacefully in my arms, but when the ambulance came and took him away. *tears* And now all I can think of is my precious little boy, somewhere, alone, without me. He has never gone a day without me being by his side in his 5 years 10 months of age. Now he is and its breaking my heart. It feels like he is still alive, but I cant get to him, like im not allowed to see my boy and someone is playing a trick on me.

I miss my little lion king. He is braver than I will ever be.

I have to rest, im so exhasuted but I cant sleep. I just dont know anything anymore or what to do anymore. im lost.

Re: hi

Dear ,

I, for one, am glad you are here. Please feel free to talk all you need ok. There are others here who have unfortunately lost their children also. They too have no illness etc but have stayed on to share and be supported.

Right now you probably don't know what to do, so please, just write to us about how you feel. No one here will judge you. All you will get is lots of support and love.

You never need apologise for how you feel. No vent is ever too long or short, bitchy or selfish. We are all here cause illness has affected our lives in some form. Yours in the most cruellest form.

You are very welcome here .

*gentle hugs*

Aisha

[Guest guest]

Thank you Aisha,

Right now I feel so alone, empty, mad, upset and angry. I dontknow why this has happened to me again. The hardest part of all was not when he passed away to peacefully in my arms, but when the ambulance came and took him away. *tears* And now all I can think of is my precious little boy, somewhere, alone, without me. He has never gone a day without me being by his side in his 5 years 10 months of age. Now he is and its breaking my heart. It feels like he is still alive, but I cant get to him, like im not allowed to see my boy and someone is playing a trick on me.

I miss my little lion king. He is braver than I will ever be.

I have to rest, im so exhasuted but I cant sleep. I just dont know anything anymore or what to do anymore. im lost.

Re: hi

Dear ,

I, for one, am glad you are here. Please feel free to talk all you need ok. There are others here who have unfortunately lost their children also. They too have no illness etc but have stayed on to share and be supported.

Right now you probably don't know what to do, so please, just write to us about how you feel. No one here will judge you. All you will get is lots of support and love.

You never need apologise for how you feel. No vent is ever too long or short, bitchy or selfish. We are all here cause illness has affected our lives in some form. Yours in the most cruellest form.

You are very welcome here .

*gentle hugs*

Aisha

[Guest guest]

Dearest ,

"Right now I feel so alone, empty, mad, upset and angry. I dontknow why this has happened to me again. The hardest part of all was not when he passed away to peacefully in my arms, but when the ambulance came and took him away. *tears* And now all I can think of is my precious little boy, somewhere, alone, without me. He has never gone a day without me being by his side in his 5 years 10 months of age. Now he is and its breaking my heart. It feels like he is still alive, but I cant get to him, like im not allowed to see my boy and someone is playing a trick on me."

I'm sitting here crying with you sweetie. I'm sure that barely covered the surface of what you are feeling.

I cannot possibly know how you feel, all I know is that if I am this sad, you must be almost numb. I wish there were something I could do. Words are so useless in times of emotion.

"I have to rest, im so exhasuted but I cant sleep. I just dont know anything anymore or what to do anymore. im lost."

summed it up perfectly. Time and tears. Kick back and let then flow. No one expects to out live their children. Let alone struggle with them, see them fight on while all you can do is love. You did everything you could for your Zeke. I am sure he knows that, as do we all. I cannot imagine what that feels like. Such pain, sorrow, loss. This time in your life must seem like a nightmare.

Please be gentle with yourself. Take one day at a time, each hour as it passes and each moment as it happens. I wish I was there to hold you and just cry with you. For I would.We all would.

Its almost 2am here so it must be late where you are, try and sleep, but if you need to write, write. There is always someone here when you need them. I must go rest also. You are stronger then you know , and you are not alone. We are all here for you.

Lots of love,

Aisha.

[Guest guest]

You will feel very welcome here. I am so glad you had the courage to email

the froup so soon. You will get a lot of love and support and find people

who you can relate to. I am sorry about both of your boys and will keep you

and your family in my prayers,

Love Colleen

[Guest guest]

Oh ,

You most certainly belong here. I sent you an e-mail personally

earlier today. My name is , and I joined this group as a caregiver

to my son, . passed away just 5 months ago today, but I

have remained a member of this group because of all the love,

encouragement, support, and shoulders to cry on that I have found here.

Please do stay. Please know that we love and support you through what

has to be the saddest time of your life. We are grieving with you.

with love,

wrote:

> Hi, I dont know if I belong here or not. Aisha asked me to join, but

> as I have been reading the member profiles, I just dont know. My son

> Zeke passed away due to leukaemia just 10 hours ago. I am so lost,

> feel so empty and its hard to see through the tears. I see you all are

> a support group for people with an illness primarily. I dont have one

> myself, which is why I dont know if I belong here. Im sorry. .

>

>

> The Being Sick Community

>

> Visual problems with colors?

> Click the link below and select the modify link to your right. Then

> select the **Send Plain Text Email** option. This will stop you

> receiving emails with colored or enlarged fonts.

>

>

> Members Lounge:-

> Photo Album, memorial page, members profiles, birthdays, locations,

> medical resources, counselling via email, and a whole bunch of free

> things.

> http://www.elderwyn.com/members

>

> Message Archives and Digest Attachment Pictures:-

> messages/

>

> Chat:-

> Scheduled Daily Chats at # on IRC DALnet.

> chat.html

>

> Sharing our resources:-

> Add a website URL you have found useful.

>

>

> Personal Complaints or problems:-

> Please contact a moderator should you require assistance with anything

> technical or if you are upset by another. The email address for the

> moderators is <-owneregroups>

>

> Subscription Details:-

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> receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to

> browse. This is an excellent option if you receive alot of email.

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> convenience and receive no email.

> To modify your subscription settings please visit

> mygroups

>

> To subscribe or unsubscribe

> subscribe/

>

> ~~~~~~~~~~~~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on to

> what you believe, even if it's a tree that stands by itself. Hold on

> to what you must do even, if it's a long way from here. Hold on to

> your life, even if it's easier to let go. " - Pueblo Prayer

[Guest guest]

,

Although I couldn't possible understand exactly what you're feeling

right now, I know the feelings that you are speaking of.

In a way, 's passing in my arms was not nearly the hardest

part. was in a hospital when he passed away, but I know how very

difficult it was for me to lay him in the bed, and turn around and walk

out that door and leave my baby there. It was harder than caring for him

ever was, harder than giving him my blessings and letting him go, harder

than anything I have ever done in my entire life. It is unfair, you are

so right. There is nothing in the world that I can say right now to make

your pain ease. This I know.

Even today, a full 5 months later, I sometimes feel like is

still alive, but beyond my reach. I know in my head that has

passed, but in my heart, he is alive, just waiting for me to find him

and play with him and give him a bath and take care of him...to hold him

in my arms and love him once more.

Oh hon, I so wish that there was something that I could say that

would make a single bit of difference. If I were there, I would hold you

in a tight hug right now. I can so sympathize with your loss and with

all of the conflicting feelings you are probably having right now.

Please know that I'm here to talk if you ever, ever want to. Either on

list or if you want to email me privately at whyten@....

with love,

, momma to

^^

12/23/98-6/9/00

Pearson's syndrome and

Kearns-Sayre syndrome

wrote:

> Thank you Aisha, Right now I feel so alone, empty, mad, upset and

> angry. I dontknow why this has happened to me again. The hardest part

> of all was not when he passed away to peacefully in my arms, but when

> the ambulance came and took him away. *tears* And now all I can think

> of is my precious little boy, somewhere, alone, without me. He has

> never gone a day without me being by his side in his 5 years 10 months

> of age. Now he is and its breaking my heart. It feels like he is still

> alive, but I cant get to him, like im not allowed to see my boy and

> someone is playing a trick on me. I miss my little lion king. He is

> braver than I will ever be. I have to rest, im so exhasuted but I cant

> sleep. I just dont know anything anymore or what to do anymore. im

> lost.

>

> Re: hi

> Dear , I, for one, am glad you are here. Please feel

> free to talk all you need ok. There are others here who have

> unfortunately lost their children also. They too have no

> illness etc but have stayed on to share and be

> supported. Right now you probably don't know what to do, so

> please, just write to us about how you feel. No one here

> will judge you. All you will get is lots of support and

> love. You never need apologise for how you feel. No vent is

> ever too long or short, bitchy or selfish. We are all here

> cause illness has affected our lives in some form. Yours in

> the most cruellest form. You are very welcome here

> . *gentle hugs* Aisha

>

>

> The Being Sick Community

>

> Visual problems with colors?

> Click the link below and select the modify link to your right. Then

> select the **Send Plain Text Email** option. This will stop you

> receiving emails with colored or enlarged fonts.

>

>

> Members Lounge:-

> Photo Album, memorial page, members profiles, birthdays, locations,

> medical resources, counselling via email, and a whole bunch of free

> things.

> http://www.elderwyn.com/members

>

> Message Archives and Digest Attachment Pictures:-

> messages/

>

> Chat:-

> Scheduled Daily Chats at # on IRC DALnet.

> chat.html

>

> Sharing our resources:-

> Add a website URL you have found useful.

>

>

> Personal Complaints or problems:-

> Please contact a moderator should you require assistance with anything

> technical or if you are upset by another. The email address for the

> moderators is <-owneregroups>

>

> Subscription Details:-

> 1) Individual email - means that every email sent to the list you

> receive.

> 2) Daily Digest - sends you 25 messages in one single email for you to

> browse. This is an excellent option if you receive alot of email.

> 3) Web only/No mail - means that you can pop into eGroups at your

> convenience and receive no email.

> To modify your subscription settings please visit

> mygroups

>

> To subscribe or unsubscribe

> subscribe/

>

> ~~~~~~~~~~~~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on to

> what you believe, even if it's a tree that stands by itself. Hold on

> to what you must do even, if it's a long way from here. Hold on to

> your life, even if it's easier to let go. " - Pueblo Prayer

[Guest guest]

,

I am so sorry to hear about your son. I can't imagine what you are feeling

rite now, however, I do want you to know that you and your family will always

be in my prayers. This group is wonderful!

Tons of Prayers and hugs to you,

#4

[Guest guest]

Welcome to the group.

This group is a support group for all things. The emotional and the

Physical.

I am so sad to hear about the loss of your son(s).

I can only imagine what you are feeling at this moment,

If you need to talk or vent, here is a great place to do it.

No vent is to long or to short. Or to many.

I do hope this makes sense, i am never good at putting my thoughts

into words.

--

Hugs to you

Tasha

wrote:

Hi, I dont know if I belong

here or not. Aisha asked me to join, but as I have been reading the member

profiles, I just dont know. My son Zeke passed away due to leukaemia

just 10 hours ago. I am so lost, feel so empty and its hard to see through

the tears. I see you all are a support group for people with an illness

primarily. I dont have one myself, which is why I dont know if I belong

here. Im sorry. .

The Being Sick Community

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~~~~~~~~~~~~~~~

“Hold on to what is good, even if it's a handful of earth. Hold

on to what you believe, even if it's a tree that stands by itself. Hold

on to what you must do even, if it's a long way from here. Hold on to your

life, even if it's easier to let go." - Pueblo Prayer

[Guest guest]

, you're little boy may not be with you in the sense that you can

not feel him or see him, but he isn't alone. Not only are the angels

there to keep him safe for you but it sounds like he is with his

brother. And his brother is there to guide him and

show him the way. And they can both here you, even if you can't hear

them.

And you aren't alone, cos they are watching you and there are tons of

people who care about you and ready to help you.

** , Stinky's caretaker**

Our purpose in life is to have

a life of purpose.

[Guest guest]

,

I know that your post was a couple days ago, but please except my condolenses

on the loss of your angel Zeke. By the sounds of what Aisha wrote he had a

special Dad who never let him down or be alone. I know in my heart his

brother was waiting with open arms.

I am so sorry. You do belong, and stay a while.

Love and hugs

[Guest guest]

Hi ,

Thank you for your nice words. I would do anything with and for my son. I

was a single dad at when I was 18 (He was born when I was 17) and from then,

I havent learnt to be strong and respomsible, but i`m finding it hard to be

strong now. I do know my boys are together again. Thats the only thing that

makes me ok about his passing.

Love and hugs

Re: hi

,

I know that your post was a couple days ago, but please except my

condolenses

on the loss of your angel Zeke. By the sounds of what Aisha wrote he had a

special Dad who never let him down or be alone. I know in my heart his

brother was waiting with open arms.

I am so sorry. You do belong, and stay a while.

Love and hugs

The Being Sick Community

Visual problems with colors?

Click the link below and select the modify link to your right. Then select

the **Send Plain Text Email** option. This will stop you receiving emails

with colored or enlarged fonts.

Members Lounge:-

Photo Album, memorial page, members profiles, birthdays, locations, medical

resources, counselling via email, and a whole bunch of free things.

http://www.elderwyn.com/members

Message Archives and Digest Attachment Pictures:-

messages/

Chat:-

Scheduled Daily Chats at # on IRC DALnet.

chat.html

Sharing our resources:-

Add a website URL you have found useful.

Personal Complaints or problems:-

Please contact a moderator should you require assistance with anything

technical or if you are upset by another. The email address for the

moderators is <-owneregroups>

Subscription Details:-

1) Individual email - means that every email sent to the list you receive.

2) Daily Digest - sends you 25 messages in one single email for you to

browse. This is an excellent option if you receive alot of email.

3) Web only/No mail - means that you can pop into eGroups at your

convenience and receive no email.

To modify your subscription settings please visit

mygroups

To subscribe or unsubscribe

subscribe/

~~~~~~~~~~~~~~~

" Hold on to what is good, even if it's a handful of earth. Hold on to what

you believe, even if it's a tree that stands by itself. Hold on to what you

must do even, if it's a long way from here. Hold on to your life, even if

it's easier to let go. " - Pueblo Prayer

[Guest guest]

,

Words are just so inadequate, I really hoestly wish I could do more. Even

thinking about lossing one of my kids (age 4 and 16) shake s me to the core.

We always think that kids need their parents but I think parents need their

kids just as much, if not more.

My kids and I have always believed in the Christmas saying that every time a

bell rings an angel gets their wings. I will ring all the bells in my house

double to make sure your angels get theirs.

If there's anything, please email privatley if you'd like

Love and hugs

[Guest guest]

Dear ne,

Thank you for welcoming me here. I am sorry for replying so late. I have

been inundated with emails and I am finding it very hard to keep up. But

thank you dearly for making me feel welcomed.

Hugs

Re: hi

, I am so sorry about your little boy. Of course you are welcome here.

This group is wonderful & caring. Feel free to talk about any thing you

like. Again, I am so sorry. Huggs ne