Guest guest Report post Posted July 26, 2001 Hi, Sky, I am Marsha, I live in South Central Texas, USA. Both my girls have asthma, allergies and the youngest also has reflux. Your name is very pretty. Marsha Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 26, 2001 Hi Sky Welcome to the list and jump in whenever you feel like it! Everyone on here is very kind and supportive. :-) Colleen Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 26, 2001 Hello Sky welcome you will love it here great people and a lot of support!!!!! take care and I'll talk to you all later. Jessi () 17 y/o Quote Share this post Link to post Share on other sites
Guest guest Report post Posted July 27, 2001 Hi Sky! Welcome to our cyber family! Feel free to talk whenever you want to! You mentioned in your personal info that you have sugar problems? Can you please tell us what kind of problems are they? Ling hi hello, i just joined this group. there is alot of people here. i enjoy meeting all of you. sky Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 6, 2001 Dear Kathy H., Thanks for your response. Yes, we are now down to a very low dose of Luvox and are probably going to just work with that. Annie is now able to deal MUCH MUCH better with her OCD than she could two years ago, so I think this may work. We have a great therapist who is very, very good with CBT, and a good psychiatrist as well - amazingly, in Reno. So next week we go back to the psychiatrist to say, yes, it was the Luvox making her psychotic and what do you suggest now? We may go on trying other SSRIs (this is number 2) or maybe just see if we can squeak by like this. School may be hard on such a low dose, but it would have been impossible the way she has been these last three months!! Take care Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 15, 2001 In a message dated 8/13/01 11:08:04 PM Eastern Daylight Time, judykeller@... writes: > I hope I can just read them and not respond. I usually hate > myself after the fact for my lack of eloquence. LOL > Take care, > Judy, Lack of eloquence?!?!? I don't think so!!!! I loved your response to the " Celebrate " thread!!!! Especially regarding the word *retarded*. Great post!! Donna Quote Share this post Link to post Share on other sites
Guest guest Report post Posted August 15, 2001 In a message dated 8/15/01 3:27:49 PM EST, duffey48@... writes: << Judy, Lack of eloquence?!?!? I don't think so!!!! I loved your response to the " Celebrate " thread!!!! Especially regarding the word *retarded*. Great post!! Donna >> Thanks Donna! So far, no one has attacked me. I wrote that 5 minutes before I had to go to work and all night at work I was thinking why didn't I just lurk like usual. Well, anyway, I didn't say anything that wasn't true. Thanks again, Judy Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 24, 2001 In a message dated 9/24/01 12:45:50 PM Pacific Daylight Time, tamiller@... writes: www.cableone.net/tamiller Hi Anne, A big welcome to our group and congratulations on the birth of . She is beautiful! We have several other moms in our group who have two children with Down Syndrome. I am sure you will be hearing from them, soon! I am Marcia and have twins, Sara and . Sara has Down Syndrome, does not and they are six. Lucas is our other son, who is 10. I so enjoy my little girl, Sara. She brings us much joy and is such a girl, in terms of loving and nurturing her dolls, loving to have her fingernails painted, enjoys her ballet lessons, and she never ceases to surprise us with what she will dress-up in, the silkier and softer, the better. Her brothers bring a rough and tumble balance to her life and have been a huge inspiration for her, pulling her along and motivating her in all areas. I look forward to hearing more about you and your family. Thank you so much for sharing the photos. To view a photo of our family, go to: http://hometown.aol.com/rrietmann/myhomepage/profile.html Marcia Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 24, 2001 Hi Anne and a warm welcome to the group. We too have 4 children and our youngest 2 have Down syndrome. on is 9, is 8, Emma is 5 1/2 and Nicki is 4 1/2. We decided not to have an amnio with the girls and were most surprised when we discovered Nicki also has Ds. I had the triple screen blood test when preg with Emma but the risk of Ds was so low. Plus I almost had Placenta Previa so had MANY ultrasounds to check on that condition and they always did the measurements of the baby - nothing was ever picked up. Emma and Nicki are such great friends and company for each other. My DH and I were watching them last night and thought how wonderfully things have worked out. They sure are inseparable. I am a firm believer that things always happen for a reason. on and think they girls are amazing and take delight in every achievement. Welcome again and look forward to hearing more about your family. Carolyn (from New Zealand) Mum to on, , Emma (Ds) and Nicki (Ds) www.geocities.com/nz_mom/sykesfamily.html Hi > Hi,we have 4 children. No multiple births, but my last two children > have been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey > (ds) is 2 and my new born is a week old (ds). This has been > hard finding out also had DS. We didn't have an amnio, but > we did have a high risk based on our triple screen test. I really > had hoped it wouldn't happen again, but God had different plans. > Here is a link for our family web page if you would like to see > pictures of our family. I belong to the ROA list serve on and > judi recommended I join this group. Thanks for the info Judi. > Anne > > www.cableone.net/tamiller > > > > http://DSyndrome.com/Multiples > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 24, 2001 Anne: So glad you joined us! This list is filled with lots of caring supportive families. Hugs Judi --- tamiller@... wrote: > Hi,we have 4 children. No multiple births, but my > last two children > have been born with Down Syndrome. Jimmy is 7, > Danny is 5, Mikey > (ds) is 2 and my new born is a week old > (ds). This has been > hard finding out also had DS. We didn't > have an amnio, but > we did have a high risk based on our triple screen > test. I really > had hoped it wouldn't happen again, but God had > different plans. > Here is a link for our family web page if you would > like to see > pictures of our family. I belong to the ROA list > serve on and > judi recommended I join this group. Thanks for the > info Judi. > Anne > > www.cableone.net/tamiller > > __________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 24, 2001 Anne! Welcome to our " family! " And CONGRATS on the birth of ! I saw your web site and your family is so beautiful!! is so precious! How much did she weigh?? She looks big! I am the list owner... so tech questions here! ) I don't have kids... YET. Just me and my fiance living here in Buffalo NY. I'm a medical student and Aref (my fiance) is a PSC Ph.D student here at UB. More info on me and why I got so into DS is on my web site www.DSyndrome.com ! Not required reading... just for your info! )) Welcome! I look forward to hearing more about your fabulous four! Cheers! Sara --On Monday, September 24, 2001, 7:39 PM +0000 tamiller@... wrote: > Hi,we have 4 children. No multiple births, but my last two children > have been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey > (ds) is 2 and my new born is a week old (ds). This has been > hard finding out also had DS. We didn't have an amnio, but > we did have a high risk based on our triple screen test. I really > had hoped it wouldn't happen again, but God had different plans. > Here is a link for our family web page if you would like to see > pictures of our family. I belong to the ROA list serve on and > judi recommended I join this group. Thanks for the info Judi. > Anne > > www.cableone.net/tamiller > > > > http://DSyndrome.com/Multiples > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 24, 2001 Marcia! Great new web site!! Can't wait to see more pics ! Cheers! Sara --On Monday, September 24, 2001, 4:15 PM +0000 Rrietmann@... wrote: > In a message dated 9/24/01 12:45:50 PM Pacific Daylight Time, > tamiller@... writes: > > > www.cableone.net/tamiller > > > > > Hi Anne, > > A big welcome to our group and congratulations on the birth of . > She is beautiful! We have several other moms in our group who have two > children with Down Syndrome. I am sure you will be hearing from them, > soon! > > I am Marcia and have twins, Sara and . Sara has Down Syndrome, > does not and they are six. Lucas is our other son, who is 10. I > so enjoy my little girl, Sara. She brings us much joy and is such a > girl, in terms of loving and nurturing her dolls, loving to have her > fingernails painted, enjoys her ballet lessons, and she never ceases to > surprise us with what she will dress-up in, the silkier and softer, the > better. Her brothers bring a rough and tumble balance to her life and > have been a huge inspiration for her, pulling her along and motivating > her in all areas. > > I look forward to hearing more about you and your family. Thank you so > much for sharing the photos. To view a photo of our family, go to: > http://hometown.aol.com/rrietmann/myhomepage/profile.html > > Marcia > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 24, 2001 --- Dear Sara, was 8 pounds 3 ounces and 20 inches long when she was born. She is absolutely adorable. I am originally from Rochester NY. I lived there until my husband and I moved to Phoenix. We were there twelve years and now we have lived in Nebraska for two years. My husband (then fiance) went to SUNY Geneseo for college. We graduated many many years ago (1985). Thanks for the welcome! UB is a great school. I had three friends graduate from there. Anne Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 24, 2001 Hi Anne, My name is and I have 4 children. Quinn is 5, Sara and Maggie are 2, and Teddy is 10 months (and just started walking!!!!!). Welcome to the group. It is really great here. Hi > Hi,we have 4 children. No multiple births, but my last two children > have been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey > (ds) is 2 and my new born is a week old (ds). This has been > hard finding out also had DS. We didn't have an amnio, but > we did have a high risk based on our triple screen test. I really > had hoped it wouldn't happen again, but God had different plans. > Here is a link for our family web page if you would like to see > pictures of our family. I belong to the ROA list serve on and > judi recommended I join this group. Thanks for the info Judi. > Anne > > www.cableone.net/tamiller > > > > http://DSyndrome.com/Multiples > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 24, 2001 Wow! It's a small world!! I think (also on the list) also grew up in Rochester NY. How about you all take a trip over here?? ))) sure was a big baby! I also weighed 8lbs 3oz when I was born! )) So glad she is happy and healthy!! Keep us updated! Cheers! Sara --On Monday, September 24, 2001, 9:36 PM +0000 tamiller@... wrote: > --- Dear Sara, > > was 8 pounds 3 ounces and 20 inches long when she was born. > She is absolutely adorable. I am originally from Rochester NY. I > lived there until my husband and I moved to Phoenix. We were there > twelve years and now we have lived in Nebraska for two years. My > husband (then fiance) went to SUNY Geneseo for college. We graduated > many many years ago (1985). Thanks for the welcome! UB is a great > school. I had three friends graduate from there. > > Anne > > > > http://DSyndrome.com/Multiples > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 24, 2001 ..Hi I also have two children with DS (6 Years) and (4 Years). It is hard dealing with it happening twice. What should have been joyful events were clouded by fear, anxiety and shock. All of which including emergency trips down to the neonatal unit at Sick Kids 'in Toronto(both my kids were very ill) made it very difficult to bond with them. My thoughts are with you. Today my children are the best of friends and have a very special bond(and communication system!)I love them dearly and I am so glad that they are in my life although we have our challenges for sure! Take one day at a time. tamiller@... wrote: > > Hi,we have 4 children. No multiple births, but my last two children > have been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey > (ds) is 2 and my new born is a week old (ds). This has been > hard finding out also had DS. We didn't have an amnio, but > we did have a high risk based on our triple screen test. I really > had hoped it wouldn't happen again, but God had different plans. > Here is a link for our family web page if you would like to see > pictures of our family. I belong to the ROA list serve on and > judi recommended I join this group. Thanks for the info Judi. > Anne > > www.cableone.net/tamiller > > > http://DSyndrome.com/Multiples > > Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 25, 2001 , After your second child was born with DS, did you ever get testing to see if you are a carrier. I haven't because I always thought (I think incorrectly) that if the children have Trisomy 21 than Translocation wasn't an issue. Does anyone know about that? My husband and I have been wondering if we should have gotten tested after the first child. I am very thankful both of mine have been healthy, and I truly feel very deeply for all those families that have to go through those deep struggles for health. It is so great to find so many families with more than one child with DS. I really feel so lonely about this. I know there are people out there who feel sorry for us, and that is the last thing I want people to feel. Well, one day at a time and not dwell on the future! That is truly what I need to focus on! Anne Quote Share this post Link to post Share on other sites
Guest guest Report post Posted September 25, 2001 Hi Anne, Welcome to the group. We also have 4 kids. Amy is 13, Kelsey is 11. We also have 19 month old twins, Davey and Will. Davey has DS. We found out about Davey before he was born. During one of our routine twin ultrasounds, they found fluid in Davey's chest cavity. Luckily all is well and everyone is healthy. I truly believe god doesn't give us what we can't handle. Although I am usually pretty quiet on this list, I really enjoy hearing about everyone's families. Hi Hi,we have 4 children. No multiple births, but my last two childrenhave been born with Down Syndrome. Jimmy is 7, Danny is 5, Mikey(ds) is 2 and my new born is a week old (ds). This has beenhard finding out also had DS. We didn't have an amnio, butwe did have a high risk based on our triple screen test. I reallyhad hoped it wouldn't happen again, but God had different plans.Here is a link for our family web page if you would like to seepictures of our family. I belong to the ROA list serve on andjudi recommended I join this group. Thanks for the info Judi.Annewww.cableone.net/tamiller Quote Share this post Link to post Share on other sites
Guest guest Report post Posted November 12, 2001 A lot of Folks have said Predsone is a nasty drug ( So sorry you have to take it ( Afagans are Crochet right??? Never learned to do that ( I can knit! I am trying to make scrap quilts for the girls right now !!! It's taking me a while but it is something they can say Mama made. I'm just so sorry it took me a while to answer your post ( I hope you are having a HAPPY DAY ) {{{ Sunshine Hugs }}} Helen Hi HelenJust times get really rough... I have been on prednisone twice now... The first time at 60 mgs daily the second time at 40 mgs a day with only maybe 4 months inbetween where I was off the stuff... Now I have to have two moellers pulled on the bottom because of all the meds I have had... I am so tired... No desire for the holidays... I am trying though... Lots of homemade gifts this year I think... I have to force myself to get motivated... My oldest son goes to UIUC so I am making him an afghan with his school colors which are the bears colors... Orange, white, and Blue...Thankyou for answering me Helen... It means alot... God Bless Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 1, 2001 im beyond down lately. not any better, pain is so bad. no help from doctors. forced to go back into diapers. so humiliating. didnt get accepted into the nursing program at school. beyond broke and daughters birthday is in 2 weeks and I cant buy her a single thing for her bday or xmas. cant even afford the nessesities. life really stinks. im such a failure sandra Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 2, 2001 Hi . " im beyond down lately. not any better, pain is so bad. no help from doctors. forced to go back into diapers. so humiliating. didnt get accepted into the nursing program at school. beyond broke and daughters birthday is in 2 weeks and I cant buy her a single thing for her bday or xmas. cant even afford the nessesities. life really stinks. im such a failure " No. You are ill, not a failure. Nobody could live a normal functional life if they had illnesses and disabilities like yours to contend with. You must be strong if you have survived this long with pain and illness like you describe. It is not your fault that your illness prevents you from doing things that healthy people can do. That does not make you a failure. Take care, CZ _________________________________________________________ Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 10, 2001 ----- Original Message ----- > I havent posted in I dont know how long. I went on a two week hiatus. Two > weeks ago i decided that i need a break from taebo..for at least a few days. > I felt unmotivated and i really couldnt force myself to get up and do > it..although i did manage to do the original 8 minute once. I dont know why, > but i started dreading the workouts and such. after two plus months working > out and loving it.. I just think it came down to being tired and feeling run > down from working out or something. > So a week off was definately a good thing and i needed it cause earlier > last week i felt energized and excited again to start working out again =] Krissy, good for you for listening to your body. There is nothing wrong with taking a break. Too keep motivated, you might try doing some cross training, e.g., take a long, fast walk, work out at a gym, ... . You also might need some more taebo tapes. There are tons of them! Congratulations on improving your eating. You are doing terrific! Just take it one day at a time. Elena Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 10, 2001 In a message dated 12/9/01 11:54:33 PM Eastern Standard Time, karottz@... writes: > > I'm feeling positive again which is good. And im not going to beat myself > over minor setbacks [like reforming my drinking pepsi alot again] well > shouldnt say alot..ive just had maybe three or four this past week when it > was usually 0 or one. > That is a great attitude Krissy!! Way to get back on track!! who's eating has been a disaster lately! Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 10, 2001 Nice to hear from ya Kriss. Hope your feeling better soon Darcy > Hi, > > I havent posted in I dont know how long. I went on a two week hiatus. Two > weeks ago i decided that i need a break from taebo..for at least a few days. > I felt unmotivated and i really couldnt force myself to get up and do > it..although i did manage to do the original 8 minute once. I dont know why, > but i started dreading the workouts and such. after two plus months working > out and loving it.. I just think it came down to being tired and feeling run > down from working out or something. > So a week off was definately a good thing and i needed it cause earlier > last week i felt energized and excited again to start working out again =] > but i got a dreaded cold and i felt all shitty all last week. > > >>tae boisn't only good for your body but its good for your heart and soul. > >>once you > >>start u get so addicted, if a day goes by and you didn't work out you will > >>be > >>upset with yourself, thats how addicitive it is. > > what Chill said is so true. after my week long break that is how i felt. I > felt bad that i couldnt do it all week. I mean i could have forced myself to > do it but in the concern of health i decided not to. feeling it would only > make things worse. so I didnt and even though i felt bad about not being > able to work out again. yesterday and today i got back on track yesterday i > worked out for 30 minutes and today i worked out for 45 and drank my 8 > glasses of water which i am very happy about =] > > and ive also think i started to kick the habit of eating at work everyday. > even though i only brown paper bagged it at work twice last week. I finally > dont crave the food anymore..and simply eat it because i have to eat and > because i didnt have time to make one. So no excuses on my part tommarrow I > will make my own lunch and as long as i fill it with fresh fruit and stuff I > will be happy to eat it! > > I'm feeling positive again which is good. And im not going to beat myself > over minor setbacks [like reforming my drinking pepsi alot again] well > shouldnt say alot..ive just had maybe three or four this past week when it > was usually 0 or one. > > anywoo just thought id say hi and tell you all how im doing > and just like to welcome all the newest ppl that just joined...=] > toodles > krissy > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Share this post Link to post Share on other sites
Guest guest Report post Posted December 10, 2001 Nice to hear from ya Kriss. Hope your feeling better soon Darcy > Hi, > > I havent posted in I dont know how long. I went on a two week hiatus. Two > weeks ago i decided that i need a break from taebo..for at least a few days. > I felt unmotivated and i really couldnt force myself to get up and do > it..although i did manage to do the original 8 minute once. I dont know why, > but i started dreading the workouts and such. after two plus months working > out and loving it.. I just think it came down to being tired and feeling run > down from working out or something. > So a week off was definately a good thing and i needed it cause earlier > last week i felt energized and excited again to start working out again =] > but i got a dreaded cold and i felt all shitty all last week. > > >>tae boisn't only good for your body but its good for your heart and soul. > >>once you > >>start u get so addicted, if a day goes by and you didn't work out you will > >>be > >>upset with yourself, thats how addicitive it is. > > what Chill said is so true. after my week long break that is how i felt. I > felt bad that i couldnt do it all week. I mean i could have forced myself to > do it but in the concern of health i decided not to. feeling it would only > make things worse. so I didnt and even though i felt bad about not being > able to work out again. yesterday and today i got back on track yesterday i > worked out for 30 minutes and today i worked out for 45 and drank my 8 > glasses of water which i am very happy about =] > > and ive also think i started to kick the habit of eating at work everyday. > even though i only brown paper bagged it at work twice last week. I finally > dont crave the food anymore..and simply eat it because i have to eat and > because i didnt have time to make one. So no excuses on my part tommarrow I > will make my own lunch and as long as i fill it with fresh fruit and stuff I > will be happy to eat it! > > I'm feeling positive again which is good. And im not going to beat myself > over minor setbacks [like reforming my drinking pepsi alot again] well > shouldnt say alot..ive just had maybe three or four this past week when it > was usually 0 or one. > > anywoo just thought id say hi and tell you all how im doing > and just like to welcome all the newest ppl that just joined...=] > toodles > krissy > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Share this post Link to post Share on other sites
