Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 In a message dated 4/2/01 11:48:32 AM Eastern Daylight Time, Scherb@... writes: << And have you noticed how once a dr sticks his dx on your child, then everyone chimes in " Well we knew that! " It would help so much if they said something before. Then you could start treatment sooner. >> , I never had that happen! LOL The doc that dx'd Seth is the only one who believes he is autistic. LOL Maybe that's why I find it difficult to believe, even though he has every symptom. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 > << And have you noticed how once a dr sticks his dx on your child, > then > everyone chimes in " Well we knew that! " It would help so much if > they said > something before. Then you could start treatment sooner. > >> > , I had this happen. When Matt was first diagnosed with ASD, his pediatrician said " I always thought there was something else up besides the DOwn syndrome. And I suspected autism, but didnt' want to alarm you until you saw an expert? Then, we went to a different psychiatrist (Insurance stuff!) about 2 years later, who claimed that Matt did not have autism, but something else that escapes me now (brain fart!). I didn't believe him, as he saw Matt for a total of 1/2 hour before coming up with this wonderful diagnosis and it was the same as the children he was used to seeing in his residential facility-not one for children with Mental Retardation, but one for children who were severely acting out. So I told the ped what this guy said and he said " I never really believed that Matt was autistic. " From my experience as a nurse, most docs are like that. You, as a nurse, have to plant the idea for something in their heads, leaving it to be " their " idea, and then they " discover " it! S ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 > << And have you noticed how once a dr sticks his dx on your child, > then > everyone chimes in " Well we knew that! " It would help so much if > they said > something before. Then you could start treatment sooner. > >> > , I had this happen. When Matt was first diagnosed with ASD, his pediatrician said " I always thought there was something else up besides the DOwn syndrome. And I suspected autism, but didnt' want to alarm you until you saw an expert? Then, we went to a different psychiatrist (Insurance stuff!) about 2 years later, who claimed that Matt did not have autism, but something else that escapes me now (brain fart!). I didn't believe him, as he saw Matt for a total of 1/2 hour before coming up with this wonderful diagnosis and it was the same as the children he was used to seeing in his residential facility-not one for children with Mental Retardation, but one for children who were severely acting out. So I told the ped what this guy said and he said " I never really believed that Matt was autistic. " From my experience as a nurse, most docs are like that. You, as a nurse, have to plant the idea for something in their heads, leaving it to be " their " idea, and then they " discover " it! S ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 , Your post made me think about some of the drs we have had for especially the one in the E.R.once who informed us that he had d.s. he was 3 at the time so i kinda think we knew. Whenever a friend of mine hears a dr story she always asks this ??? What do you call a dr who graduated last in his class?????????????? DOCTOR !! Carole --- J Stolz <stolzfamily@...> wrote: > > > << And have you noticed how once a dr sticks his > dx on your child, > > then > > everyone chimes in " Well we knew that! " It would > help so much if > > they said > > something before. Then you could start treatment > sooner. > > >> > > > , > I had this happen. > When Matt was first diagnosed with ASD, his > pediatrician said " I always > thought there was something else up besides the DOwn > syndrome. And I > suspected autism, but didnt' want to alarm you until > you saw an expert? > Then, we went to a different psychiatrist (Insurance > stuff!) about 2 > years later, who claimed that Matt did not have > autism, but something > else that escapes me now (brain fart!). I didn't > believe him, as he saw > Matt for a total of 1/2 hour before coming up with > this wonderful > diagnosis and it was the same as the children he was > used to seeing in > his residential facility-not one for children with > Mental Retardation, > but one for children who were severely acting out. > So I told the ped what this guy said and he said " I > never really believed > that Matt was autistic. " From my experience as a > nurse, most docs are > like that. You, as a nurse, have to plant the idea > for something in their > heads, leaving it to be " their " idea, and then they > " discover " it! > > S > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for > less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > ===== Carole, wife of Rich, mom to and , m-i-l to and , grandmom to ,9,with d.s.and a.s.d. and 6 with adhd and possible a.s.d.and Logan 2 year old chatterbox and Seth,9month old in to everything.Be wise in the way you act toward outsiders;make the most of every oppotunity.Colossians4:5 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Hi I have been so flat out lately, havent had time to check my hotmail inbox so sorry if there is an message from you patiently waiting. I went for a sleep study last night. Do you by any chance have sleep apnea as well? Evidently I do, so that explains some of the tiredness anyway. When I woke in the unit this morning with some kamakaze nurse ripping the sticky pads off my face at 6am, my only complaint was how sore my arm was. They had one of those finger pulse thingys on my finger all night, which didnt bother me at all, but keeping my finger out straight all night caused a major muscle bunch right up into my elbow, it is still really very sore, I can see a ridge of muscle right up my forearm and it hurts like hell to press. This morning I couldnt move my finger or my arm for a few hours without wincing. Nurse said she had never heard of anyone having that before. She asked if I usually have problems with muscle stiffness. Understatement of the year LOL! I clean forgot you have endo. WOW, maybe we were seperated at birth! I am now 100% sure that I have Menieres. I have wondered about it for a while, however the past 2 weeks I have been so dizzy, all day everyday, and if I turn or tilt my head, the room slightly spins. It is not very bad, but bad enough for me to be spaced out, banging into things, losing balance, cant walk in a straight line, nauseous from the dizziness, etc. As it is nonstop, I am getting really sick of it. I rang the surgeon who has been doing all the testing,and asked for something to stop the dizziness, and I have to pick up the script tomorrow. I havent been officially diagnosed, until I see him next week however it is a foregone conclusion I think, with my mother and grandmother both with it. Hey this is too weird isnt it? If you have sleep apnea then we must be related!!!!! How are you both going ? Will check my hotmail account tomorrow and catch up there as well. Things have been full on here, with Jai sicker - peeing 42 plus times per day again. More about that later... Interested in the endo, how much of a prob is it for you? My symptoms are bleeding into the pouch of douglas (where ever that is LOL) the blood is always there. Last scan it was 50 mls. There are septations there now as well as a cyst. Guess this is due to the inflammation from the blood pooling there. What do you think? The Drs have not thought of endo here, although I have had this for years, and the quantity of blood etc is getting larger. Also, my periods are now lasting only 1 1/2 days at most, which seems really weird, although from my reading it seems as though that can go either way with endo. My hormonal levels were just checked, and all is normal except my corticol is low (not sure what this means, Dr just ignored it) Am trying to decide if he will think I am paranoid if I ask him if it is possible if I have endo so thought I would get some more info first. Does any of that ring a bell with you???? Talk to you soon Lots of love :-) > , > > I know we correspond off list, but I thought I should remind you that our > symptoms seem to be absolutely the same!! Are we twins?? I have > Fibromyalgia, PCOS, hearing loss, thought to have meneires, but actually > have mondini's, and endometriosis. We are in the same boat!! > > > > Diagnosis > > > Well, it seems to be coming thick and fast lately. > First I was told that I have Fybromyalgia. > Then I was told that I had severe hypermobility. > First I find out I have polycystic ovaries (yeah I knew this before, > but finally got confirmation) > Then I just found out I have significant hearing loss in one ear, > this coupled with the dizziness is most probably Menieres (have a > appoint in April for the specialist to go through all the test > results as he had to scan to eliminate the possibility of a tumour > etc, if that is clear, he will rule in Menieres, for certain) > On Tuesday I have a sleep study as it is pretty certain that I have > sleep apnea. > I am also flaring up again with my regular symptoms (could be > sjogrens) eyes extrememly dry, I am soo tired, aching etc > Lastly, I read an article on endometriosis, and I am suspicious. > Seems to explain some very longstanding problems in that dept. > Whew, and here I thought that I had one thing, and it would explain > all my symptoms. Seems as though that is not the case. > ANyone here got much experience with polycystic ovaries or Menieres? > bye for now > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Being Sick Community > > Visual problems with colors? > Click the link below and select the modify link to your right. Then select > the **Send Plain Text Email** option. This will stop you receiving emails > with colored or enlarged fonts. > /join > > Members Lounge:- > Photo Album, memorial page, members profiles, birthdays, locations, medical > resources, counselling via email and a whole bunch of free things. > http://www.elderwyn.com/members > > Message Archives and Digest Attachment Pictures:- > /messages > > Chat:- > Scheduled Daily Chats at # on IRC DALnet. > /files/chat.htm > > Bookmarks:- > Add a website URL you have found useful. > /links > > Personal Complaints or problems:- > Please contact a moderator either via email > <-owner@y...> > > Subscription Details:- > 1) Individual email - means that every email sent to the list you receive. > 2) Daily Digest - sends you 25 messages in one single email for you to > browse. 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Guest guest Posted December 5, 2001 Report Share Posted December 5, 2001 It was our regualr md that mentiond it to me, i had no idea, other than nathan's behavior was more than we could handle, then we got refered to a pshychiatrist and after a 3-4 hour appt they told us he was autistic, and thats when we started considering meds to help calm him plus behavior mangement thrugh his psychologist team he sees. shawna ===== shawna __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2001 Report Share Posted December 17, 2001 > > Hi, > > What kind of doctor did y'all take your kids to to get a diagnosis? > > Thanks, > > We went to a pediatric psychologist! Best thing we ever did! > > > > > > --------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Kennedy Kreiger is where I took her. But, I took her to a dev. ped. instead of the CARD group. The CARD group was $1,800 and I just don't have that kind of money and my insurance won't cover it. I was hoping that since the dev. ped. works at Kennedy Kreiger he would be able to give us an accurate diagnosis. He did say that her age made it difficult. He is also running a bunch of blood/urine/genetic tests that will hopefully help. The infants & toddlers said that since I have a formal diagnosis now they could put in a request for the County psychologist to evaluate her. I said o.k. I figure what the heck. Thank you! Pati Re: diagnosis Are you consider taking her to Kennedy Kreiger? That is where we got 's diagnoses. They were very thorough I felt. It is expensive and will take all day for all the testing that they do but well worth it I think. One of the reason for not having a real clear diagnoses may be her age too. Elaine Should I get a second opinion? I did take her to a top notch place (a division of Hopkins hospital), specializing in autism. Should I have her evaluated by a psychologist? My insurance will not pay for it, that is why I went to a dev. ped. as a first step. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 land (Montgomery County). How about you? Pati Re: diagnosis What state are you in? Elaine Kennedy Kreiger is where I took her. But, I took her to a dev. ped. instead of the CARD group. The CARD group was $1,800 and I just don't have that kind of money and my insurance won't cover it. I was hoping that since the dev. ped. works at Kennedy Kreiger he would be able to give us an Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 This is really getting interesting!! My husband and I are currently building a house just outside of Hagerstown in Boonsboro, MD. I received the application for state benefits and need to fill it out and send it in. I had to have a diagnosis first, which I just got. I hope that the diagnosis I got will work. The man at the state said that sometimes you can get approved for aid, but there is a waiting list for services. Do you know if that includes the insurance? Thanks so much for the info, I will try to get approved. How old is ? Pati Re: diagnosis Pa-Chambersburg. Not far from Hagerstown at all. Is your daughter eligible for SSI benefits? If so, she would be eligible for the state insurance that goes with it. Here in Pa it is called ACCESS. It can only be used in state though, but it would I think, pay for full testing at KKI. Elaine land (Montgomery County). How about you? Pati Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Also, if you wouldn't mind-What do SSI benefits include? They sent me an application with no explanation of what I was applying for. Thanks. Pati Re: diagnosis Pa-Chambersburg. Not far from Hagerstown at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 I do feel that my sons Asperger Diagnosis was also from lack of Oxygen at birth. He had the cord around his neck if I am not mistaken twice and he was on 40% oxygen for 4-6 hours. Of course I also think there is some family history that goes along with it so I guess you can take your choice HAHAHAHA. Anyway Lack of Oxygen does cause neurological problems. Lea diagnosis I just got my daughter's written report from the developmental pediatrican today where we went for a diagnosis. is is 2 1/2. The doctor said under the diagnostic impressions that some of her abilities could be considered as a pervasive development disorder, others receptive-expressive lang. disorder, and others mental retardation, thus he feels her best diagnosis is encephalopathy, which according to my ped. is a very general term that means neourological disorder. My problem is, I don't know what to do with this diagnosis. Should I be considering an ABA program and all the other suggestions for PDD? I see other people on this sight have a clear diagnosis. Should I get a second opinion? I did take her to a top notch place (a division of Hopkins hospital), specializing in autism. Should I have her evaluated by a psychologist? My insurance will not pay for it, that is why I went to a dev. ped. as a first step. Also, as a side note, my daughter displays the same behaviors as many of the other people on this sight, major speech & cogn. development delays, major repetitive behaviors, sensory issues (craver), fearless, scared of new places and crowds, stays up for hours at night. She seems to want to interact with people sometimes but can't understand language. Lastly, she had emergency open heart surgery at five weeks old (TAPVR) to re-arrange the arteries around the heart and repair a hole. This was a birth defect that had been overlooked until she turned BLUE during a feeding at five weeks and was rushed to the hospital. The doctor thinks that this lack of oxygen to her brain, from birth to five weeks, may be responsible for her issues now. Does anyone else have a situation like this? Sorry for the novel!! I just want to give you the whole picture. Details are my specialty Pati Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 I guess I'm wondering, does the cause matter when trying to decide on treatment methods, esp. ABA, and GF & CF diets. From what I have read, there seems to be certain sub-groups under the spectrum that respond differently to treatments and I'm not sure if the cause of their disorder matters. Pati diagnosis I just got my daughter's written report from the developmental pediatrican today where we went for a diagnosis. is is 2 1/2. The doctor said under the diagnostic impressions that some of her abilities could be considered as a pervasive development disorder, others receptive-expressive lang. disorder, and others mental retardation, thus he feels her best diagnosis is encephalopathy, which according to my ped. is a very general term that means neourological disorder. My problem is, I don't know what to do with this diagnosis. Should I be considering an ABA program and all the other suggestions for PDD? I see other people on this sight have a clear diagnosis. Should I get a second opinion? I did take her to a top notch place (a division of Hopkins hospital), specializing in autism. Should I have her evaluated by a psychologist? My insurance will not pay for it, that is why I went to a dev. ped. as a first step. Also, as a side note, my daughter displays the same behaviors as many of the other people on this sight, major speech & cogn. development delays, major repetitive behaviors, sensory issues (craver), fearless, scared of new places and crowds, stays up for hours at night. She seems to want to interact with people sometimes but can't understand language. Lastly, she had emergency open heart surgery at five weeks old (TAPVR) to re-arrange the arteries around the heart and repair a hole. This was a birth defect that had been overlooked until she turned BLUE during a feeding at five weeks and was rushed to the hospital. The doctor thinks that this lack of oxygen to her brain, from birth to five weeks, may be responsible for her issues now. Does anyone else have a situation like this? Sorry for the novel!! I just want to give you the whole picture. Details are my specialty Pati Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Are you consider taking her to Kennedy Kreiger? That is where we got 's diagnoses. They were very thorough I felt. It is expensive and will take all day for all the testing that they do but well worth it I think. One of the reason for not having a real clear diagnoses may be her age too. Elaine Should I get a second opinion? I did take her to a top notch place (a division of Hopkins hospital), specializing in autism. Should I have her evaluated by a psychologist? My insurance will not pay for it, that is why I went to a dev. ped. as a first step. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 What state are you in? Elaine Kennedy Kreiger is where I took her. But, I took her to a dev. ped. instead of the CARD group. The CARD group was $1,800 and I just don't have that kind of money and my insurance won't cover it. I was hoping that since the dev. ped. works at Kennedy Kreiger he would be able to give us an Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2002 Report Share Posted November 21, 2002 Pa-Chambersburg. Not far from Hagerstown at all. Is your daughter eligible for SSI benefits? If so, she would be eligible for the state insurance that goes with it. Here in Pa it is called ACCESS. It can only be used in state though, but it would I think, pay for full testing at KKI. Elaine land (Montgomery County). How about you? Pati Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Did your daughter have an MRI of the brain? If she has encephalopathy due to lack of oxygen at 5 weeks, there may be changes on the MRI to support this diagnosis. Sam Abdul-Rahim >From: " PATRICIA HOYT " <phoyt916@...> >Reply-Autism_in_Girls > " Autism_in_Girl " <Autism_in_Girls > >Subject: diagnosis >Date: Thu, 21 Nov 2002 21:55:56 -0500 > >I just got my daughter's written report from the developmental pediatrican >today where we went for a diagnosis. is is 2 1/2. The doctor said >under the diagnostic impressions that some of her abilities could be >considered as a pervasive development disorder, others receptive-expressive >lang. disorder, and others mental retardation, thus he feels her best >diagnosis is encephalopathy, which according to my ped. is a very general >term that means neourological disorder. > >My problem is, I don't know what to do with this diagnosis. Should I be >considering an ABA program and all the other suggestions for PDD? I see >other people on this sight have a clear diagnosis. > >Should I get a second opinion? I did take her to a top notch place (a >division of Hopkins hospital), specializing in autism. Should I have >her evaluated by a psychologist? My insurance will not pay for it, that is >why I went to a dev. ped. as a first step. > >Also, as a side note, my daughter displays the same behaviors as many of >the other people on this sight, major speech & cogn. development delays, >major repetitive behaviors, sensory issues (craver), fearless, scared of >new places and crowds, stays up for hours at night. She seems to want to >interact with people sometimes but can't understand language. > >Lastly, she had emergency open heart surgery at five weeks old (TAPVR) to >re-arrange the arteries around the heart and repair a hole. This was a >birth defect that had been overlooked until she turned BLUE during a >feeding at five weeks and was rushed to the hospital. The doctor thinks >that this lack of oxygen to her brain, from birth to five weeks, may be >responsible for her issues now. Does anyone else have a situation like >this? Sorry for the novel!! I just want to give you the whole picture. >Details are my specialty Pati > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 You know I am still new in all of this and I have absolutely no clue. Lea diagnosis I just got my daughter's written report from the developmental pediatrican today where we went for a diagnosis. is is 2 1/2. The doctor said under the diagnostic impressions that some of her abilities could be considered as a pervasive development disorder, others receptive-expressive lang. disorder, and others mental retardation, thus he feels her best diagnosis is encephalopathy, which according to my ped. is a very general term that means neourological disorder. My problem is, I don't know what to do with this diagnosis. Should I be considering an ABA program and all the other suggestions for PDD? I see other people on this sight have a clear diagnosis. Should I get a second opinion? I did take her to a top notch place (a division of Hopkins hospital), specializing in autism. Should I have her evaluated by a psychologist? My insurance will not pay for it, that is why I went to a dev. ped. as a first step. Also, as a side note, my daughter displays the same behaviors as many of the other people on this sight, major speech & cogn. development delays, major repetitive behaviors, sensory issues (craver), fearless, scared of new places and crowds, stays up for hours at night. She seems to want to interact with people sometimes but can't understand language. Lastly, she had emergency open heart surgery at five weeks old (TAPVR) to re-arrange the arteries around the heart and repair a hole. This was a birth defect that had been overlooked until she turned BLUE during a feeding at five weeks and was rushed to the hospital. The doctor thinks that this lack of oxygen to her brain, from birth to five weeks, may be responsible for her issues now. Does anyone else have a situation like this? Sorry for the novel!! I just want to give you the whole picture. Details are my specialty Pati Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Thank you! I will check into it! is' doctor has been negative about doing CAT scan, MRI, etc. because he believes that finding the cause isn't that important because it would not change the way she is treated and he says often those types of tests don't show anything. I'm not sure I agree with that. I believe an accurate diagnosis is important in understanding your child and helping them. What do you think? Pati diagnosis >Date: Thu, 21 Nov 2002 21:55:56 -0500 > >I just got my daughter's written report from the developmental pediatrican >today where we went for a diagnosis. is is 2 1/2. The doctor said >under the diagnostic impressions that some of her abilities could be >considered as a pervasive development disorder, others receptive-expressive >lang. disorder, and others mental retardation, thus he feels her best >diagnosis is encephalopathy, which according to my ped. is a very general >term that means neourological disorder. > >My problem is, I don't know what to do with this diagnosis. Should I be >considering an ABA program and all the other suggestions for PDD? I see >other people on this sight have a clear diagnosis. > >Should I get a second opinion? I did take her to a top notch place (a >division of Hopkins hospital), specializing in autism. Should I have >her evaluated by a psychologist? My insurance will not pay for it, that is >why I went to a dev. ped. as a first step. > >Also, as a side note, my daughter displays the same behaviors as many of >the other people on this sight, major speech & cogn. development delays, >major repetitive behaviors, sensory issues (craver), fearless, scared of >new places and crowds, stays up for hours at night. She seems to want to >interact with people sometimes but can't understand language. > >Lastly, she had emergency open heart surgery at five weeks old (TAPVR) to >re-arrange the arteries around the heart and repair a hole. This was a >birth defect that had been overlooked until she turned BLUE during a >feeding at five weeks and was rushed to the hospital. The doctor thinks >that this lack of oxygen to her brain, from birth to five weeks, may be >responsible for her issues now. Does anyone else have a situation like >this? Sorry for the novel!! I just want to give you the whole picture. >Details are my specialty Pati > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 I am new at all this too! Thanks for the input! Pati diagnosis I just got my daughter's written report from the developmental pediatrican today where we went for a diagnosis. is is 2 1/2. The doctor said under the diagnostic impressions that some of her abilities could be considered as a pervasive development disorder, others receptive-expressive lang. disorder, and others mental retardation, thus he feels her best diagnosis is encephalopathy, which according to my ped. is a very general term that means neourological disorder. My problem is, I don't know what to do with this diagnosis. Should I be considering an ABA program and all the other suggestions for PDD? I see other people on this sight have a clear diagnosis. Should I get a second opinion? I did take her to a top notch place (a division of Hopkins hospital), specializing in autism. Should I have her evaluated by a psychologist? My insurance will not pay for it, that is why I went to a dev. ped. as a first step. Also, as a side note, my daughter displays the same behaviors as many of the other people on this sight, major speech & cogn. development delays, major repetitive behaviors, sensory issues (craver), fearless, scared of new places and crowds, stays up for hours at night. She seems to want to interact with people sometimes but can't understand language. Lastly, she had emergency open heart surgery at five weeks old (TAPVR) to re-arrange the arteries around the heart and repair a hole. This was a birth defect that had been overlooked until she turned BLUE during a feeding at five weeks and was rushed to the hospital. The doctor thinks that this lack of oxygen to her brain, from birth to five weeks, may be responsible for her issues now. Does anyone else have a situation like this? Sorry for the novel!! I just want to give you the whole picture. Details are my specialty Pati Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 I'm pretty sure that a child who is sick should NOT recieve a flu shot until they are better. Call a pharmacist and ask them, sometimes they are less biased than docs when it comes to these things. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 The more accurate the diagnosis the better. You might also consider a second opinion from a pediatric neurologist, if you haven't done that already. Sam >From: " PATRICIA HOYT " <phoyt916@...> >Reply-Autism_in_Girls > " Autism_in_Girl " <Autism_in_Girls > >Subject: Re: diagnosis >Date: Fri, 22 Nov 2002 10:57:11 -0500 > >Thank you! I will check into it! >is' doctor has been negative about doing CAT scan, MRI, etc. because >he believes that finding the cause isn't that important because it would >not change the way she is treated and he says often those types of tests >don't show anything. I'm not sure I agree with that. I believe an >accurate diagnosis is important in understanding your child and helping >them. What do you think? Pati > > diagnosis > >Date: Thu, 21 Nov 2002 21:55:56 -0500 > > > >I just got my daughter's written report from the developmental >pediatrican > >today where we went for a diagnosis. is is 2 1/2. The doctor said > >under the diagnostic impressions that some of her abilities could be > >considered as a pervasive development disorder, others >receptive-expressive > >lang. disorder, and others mental retardation, thus he feels her best > >diagnosis is encephalopathy, which according to my ped. is a very general > >term that means neourological disorder. > > > >My problem is, I don't know what to do with this diagnosis. Should I be > >considering an ABA program and all the other suggestions for PDD? I see > >other people on this sight have a clear diagnosis. > > > >Should I get a second opinion? I did take her to a top notch place (a > >division of Hopkins hospital), specializing in autism. Should I >have > >her evaluated by a psychologist? My insurance will not pay for it, that >is > >why I went to a dev. ped. as a first step. > > > >Also, as a side note, my daughter displays the same behaviors as many of > >the other people on this sight, major speech & cogn. development delays, > >major repetitive behaviors, sensory issues (craver), fearless, scared of > >new places and crowds, stays up for hours at night. She seems to want to > >interact with people sometimes but can't understand language. > > > >Lastly, she had emergency open heart surgery at five weeks old (TAPVR) to > >re-arrange the arteries around the heart and repair a hole. This was a > >birth defect that had been overlooked until she turned BLUE during a > >feeding at five weeks and was rushed to the hospital. The doctor thinks > >that this lack of oxygen to her brain, from birth to five weeks, may be > >responsible for her issues now. Does anyone else have a situation like > >this? Sorry for the novel!! I just want to give you the whole picture. > >Details are my specialty Pati > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 I think you are right. I won't be getting it while she is sick, but I'm not sure if I should get it at all because of the Mercury issue. On the other hand, she does get sick alot and I hate to see her suffer through the winter with illnesses. I will talk to her doctor about the mercury issue, but I won't be surprised if he downplays it like everything else! Is anyone else getting flu shots for their kids? Pati Re: diagnosis I'm pretty sure that a child who is sick should NOT recieve a flu shot until they are better. Call a pharmacist and ask them, sometimes they are less biased than docs when it comes to these things. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Thanks Sam. Pati diagnosis > >Date: Thu, 21 Nov 2002 21:55:56 -0500 > > > >I just got my daughter's written report from the developmental >pediatrican > >today where we went for a diagnosis. is is 2 1/2. The doctor said > >under the diagnostic impressions that some of her abilities could be > >considered as a pervasive development disorder, others >receptive-expressive > >lang. disorder, and others mental retardation, thus he feels her best > >diagnosis is encephalopathy, which according to my ped. is a very general > >term that means neourological disorder. > > > >My problem is, I don't know what to do with this diagnosis. Should I be > >considering an ABA program and all the other suggestions for PDD? I see > >other people on this sight have a clear diagnosis. > > > >Should I get a second opinion? I did take her to a top notch place (a > >division of Hopkins hospital), specializing in autism. Should I >have > >her evaluated by a psychologist? My insurance will not pay for it, that >is > >why I went to a dev. ped. as a first step. > > > >Also, as a side note, my daughter displays the same behaviors as many of > >the other people on this sight, major speech & cogn. development delays, > >major repetitive behaviors, sensory issues (craver), fearless, scared of > >new places and crowds, stays up for hours at night. She seems to want to > >interact with people sometimes but can't understand language. > > > >Lastly, she had emergency open heart surgery at five weeks old (TAPVR) to > >re-arrange the arteries around the heart and repair a hole. This was a > >birth defect that had been overlooked until she turned BLUE during a > >feeding at five weeks and was rushed to the hospital. The doctor thinks > >that this lack of oxygen to her brain, from birth to five weeks, may be > >responsible for her issues now. Does anyone else have a situation like > >this? Sorry for the novel!! I just want to give you the whole picture. > >Details are my specialty Pati > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2002 Report Share Posted November 22, 2002 Message: 18 Date: Thu, 21 Nov 2002 23:41:13 -0500 From what i have seen, gf/cf works particularly well on children who developed well and had subsequent regression, and even more so for children who have a history of antibiotic use. I have aspergers and althouth i do not have that history, personally g.cf and enzymes helped me a lot as an adult. 10 months on, people are commenting on how well i look. nobody has ever told me i look well before. addressing the issue of phenols through enzymes seems to be efficacious vor many children who have add/adhd and very red ears. Geraldine. From: " PATRICIA HOYT " <phoyt916@...> Subject: Re: diagnosis I guess I'm wondering, does the cause matter when trying to decide on treatment methods, esp. ABA, and GF & CF diets. From what I have read, there seems to be certain sub-groups under the spectrum that respond differently to treatments and I'm not sure if the cause of their disorder matters. Pati __________________________________________________________________ The NEW Netscape 7.0 browser is now available. Upgrade now! http://channels.netscape.com/ns/browsers/download.jsp Get your own FREE, personal Netscape Mail account today at http://webmail.netscape.com/ Quote Link to comment Share on other sites More sharing options...
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