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Hi Belinda,

Hope things get better soon.

Your post reminded me that we had a problem once where skin was taken off if the

nappy wasn't changed immediately. It was very shocking to us that poo could

have such an effect on skin.

Hope things improve soon.

Did you try kefir? Would you like some grains.

Best wishes Sandy

> >

> > Dear All, my son has just started taking off his nappy and getting the

> > poo out of it. It always happens at bedtime and appears as if he has

> > to get the poo away from his skin.He has always had gut problems which

> > we have hasd little success in helping him with despite years of

> > biomed and SCD. He is as high as a kite just before this happens and

> > the poo smells of sick.

> > He has never done this before and I am really scared and dont know

> > where to start?

> > Evidence could point to emotional stress as he is 7 and I have a new

> > baby 8 weeks old, but the poo is so vile i think thats a coincidence

> > and that there is infection, bugs, parasites?

> > the GP ran a routine sample which showed nothing , guess ill have to

> > do a more thorough stool test?

> > Anyone have this and could offer some advice? I try not to over react

> > but you have to shower him, clean up etc.

> > Looking forward to hearing from someone

> > Belinda

> >

> >

>

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Hi ,

A good question.  We avoid strep therm in probios but kefir

apparently has strep strains too.  We always found probiotics - with

just a few exceptions - harder to tolerate than fermented foods.

 Maybe it is the maltodextrin etc that we are especially sensitive

too.

http://users.chariot.net.au/~dna/kefirpage.html#composition-of-KG

If you scroll down a bit you will see kefir contains a lot of different

strains of bacteria.

Best wishes,

Sandy

> >

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Hi ,

A good question.  We avoid strep therm in probios but kefir

apparently has strep strains too.  We always found probiotics - with

just a few exceptions - harder to tolerate than fermented foods.

 Maybe it is the maltodextrin etc that we are especially sensitive

too.

http://users.chariot.net.au/~dna/kefirpage.html#composition-of-KG

If you scroll down a bit you will see kefir contains a lot of different

strains of bacteria.

Best wishes,

Sandy

> >

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Hi Belinda,

a good starting point for looking at stools and what they might mean can be

found here:

http://www.enzymestuff.com/rtstools.htm

I cant find 'sick' smelling stools but 'stinky stools' might be a good category

to look at. Really bad smelling stools in our house means bacterial

overgrowth....

Is he trying to get the poo away from his skin because it is irritating it do

you think? Does his skin look sore after he poos? The poo could be acidic and

burning his skin or have high levels of ammonia or oxalates in it, that would

definitely cause irritation to the skin.

What does the poo look like, can you describe it, this info might help in

working out what is going on in your ds gut.

Nikki x

>

> Dear All, my son has just started taking off his nappy and getting the poo out

of it. It always happens at bedtime and appears as if he has to get the poo

away from his skin.He has always had gut problems which we have hasd little

success in helping him with despite years of biomed and SCD. He is as high as a

kite just before this happens and the poo smells of sick.

> He has never done this before and I am really scared and dont know where to

start?

> Evidence could point to emotional stress as he is 7 and I have a new baby 8

weeks old, but the poo is so vile i think thats a coincidence and that there is

infection, bugs, parasites?

> the GP ran a routine sample which showed nothing , guess ill have to do a more

thorough stool test?

> Anyone have this and could offer some advice? I try not to over react but you

have to shower him, clean up etc.

> Looking forward to hearing from someone

> Belinda

>

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  • 3 weeks later...

Sue, I agree I would be very upset in this situation- is there anything you can do? Can you choose to go back into a cast or consult with the primary doctor? Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast. You can read Bexon's Story on www.GirltoMom.com)From: juliechafin2005

<juliechafin2005@...>infantile scoliosis treatment Sent: Wed, December 8, 2010 5:47:21 AMSubject: Re: help please

Sue,

I would be more upset about the fact that they did not consult you first than I would be about the brace itself. Braces are a little hard to adapt to at first. My Abby is in her first cast. But, she wore a brace for about 5 weeks prior to getting her first cast applied. It took her about one week to fully gain back all of her mobility. You will see that the adjustment will come quickly. But, I would address the fact that they left you out in the cold about the decision. That is not at all right. I would have had a fit. But, things will be OK. You will see. :)

- , mom of Abby (16 months old) 48* down to 17* in first cast

>

> Hi, We have just had a hideous day where we signed a consent form for Abi's 9th plaster jacket and the consultant decided (without talking to us) to mould her for a brace. We only found out in recovery when realising she wasn't wearing a plaster jacket anymore! All we have been told is to take Abi back to collect the brace tomorrow from the Orthotics department. Can anyone tell me how long it will take Abi to get used to the brace please? She has been in plaster jackets since 20 months and is now 3 yrs 5 months so learnt to walk wearing a cast.

>

> Also how do we tell if the curves are getting worse? We don't even know the basics such as how often a brace is changed and if there should be any check ups inbetween so any advice would be great.

>

> We fought long and hard to get Abi into the right type of jacket here in the UK and I can't believe we have come to the end of the road so suddenly. I just feel really sad and very scared.

>

> Sue, mum to Abi in Oxford, UK

>

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Im sorry they surprised you w/ this Sue. I think she will adjust fine if

its a well made brace and they provide it to Abi promptly. Please insist

on getting a copy of her last xrays (in cast)and compare them to the in

brace xrays. Have they given you any numbers at all to work with?

HRH

> Hi, We have just had a hideous day where we signed a consent form for

> Abi's 9th plaster jacket and the consultant decided (without talking to

> us) to mould her for a brace. We only found out in recovery when realising

> she wasn't wearing a plaster jacket anymore! All we have been told is to

> take Abi back to collect the brace tomorrow from the Orthotics department.

> Can anyone tell me how long it will take Abi to get used to the brace

> please? She has been in plaster jackets since 20 months and is now 3 yrs

> 5 months so learnt to walk wearing a cast.

>

> Also how do we tell if the curves are getting worse? We don't even know

> the basics such as how often a brace is changed and if there should be any

> check ups inbetween so any advice would be great.

>

> We fought long and hard to get Abi into the right type of jacket here in

> the UK and I can't believe we have come to the end of the road so

> suddenly. I just feel really sad and very scared.

>

> Sue, mum to Abi in Oxford, UK

>

>

>

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I agree with 100%. They should have consulted with you. Even if it

was at the last minute from plaster theatre.

HRH

> Sue,

> I would be more upset about the fact that they did not consult you first

> than I would be about the brace itself. Braces are a little hard to adapt

> to at first. My Abby is in her first cast. But, she wore a brace for

> about 5 weeks prior to getting her first cast applied. It took her about

> one week to fully gain back all of her mobility. You will see that the

> adjustment will come quickly. But, I would address the fact that they

> left you out in the cold about the decision. That is not at all right. I

> would have had a fit. But, things will be OK. You will see. :)

>

> - , mom of Abby (16 months old) 48* down to 17* in first cast

>

>

>>

>> Hi, We have just had a hideous day where we signed a consent form for

>> Abi's 9th plaster jacket and the consultant decided (without talking to

>> us) to mould her for a brace. We only found out in recovery when

>> realising she wasn't wearing a plaster jacket anymore! All we have been

>> told is to take Abi back to collect the brace tomorrow from the

>> Orthotics department. Can anyone tell me how long it will take Abi to

>> get used to the brace please? She has been in plaster jackets since 20

>> months and is now 3 yrs 5 months so learnt to walk wearing a cast.

>>

>> Also how do we tell if the curves are getting worse? We don't even know

>> the basics such as how often a brace is changed and if there should be

>> any check ups inbetween so any advice would be great.

>>

>> We fought long and hard to get Abi into the right type of jacket here in

>> the UK and I can't believe we have come to the end of the road so

>> suddenly. I just feel really sad and very scared.

>>

>> Sue, mum to Abi in Oxford, UK

>>

>

>

>

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You got that right, LeeAnn. Us mums ALWAYS now what we see and feel on

our littles! Parental instint is everything.

HRH

> This was scary for everyone of us as parents and to the kids. They will

> adjust before u do. Keep in mind each is differant and that we want them

> better...so cast/braces change according to curve and kid. The dr. should

> suggest 3-4 mos per cast and 4-6 mos. per brace. Lots of back rubs when

> checking for red spots from brace. If you feel anything different say a

> day apart notify dr asap. My 13yr old has been in numerous casts and

> braces...there are a lot of little things u will notice,balance off then

> gets bettter,feet or knees further apart, gets less of a gap, so on and so

> forth. Maybe Abi's dr feels that a brace would help her to get to the next

> step. We have had the same thing happen go for said cast and end up in

> brace. It takes a few days to get used to adjusting it and checking for

> spots...she'll be able to get a bath!!!  Guess thats all i can offer as

> help. Just know that you and your family are not alone and that SOMETIMES

> us moms do know what

> we see and feel.on our kids.

>

>

>

>

> From: juliechafin2005 <juliechafin2005@...>

> Subject: Re: help please

> infantile scoliosis treatment

> Date: Wednesday, December 8, 2010, 8:47 AM

>

>

>  

>

>

>

> Sue,

> I would be more upset about the fact that they did not consult you first

> than I would be about the brace itself. Braces are a little hard to adapt

> to at first. My Abby is in her first cast. But, she wore a brace for about

> 5 weeks prior to getting her first cast applied. It took her about one

> week to fully gain back all of her mobility. You will see that the

> adjustment will come quickly. But, I would address the fact that they left

> you out in the cold about the decision. That is not at all right. I would

> have had a fit. But, things will be OK. You will see. :)

>

> - , mom of Abby (16 months old) 48* down to 17* in first cast

>

>

>>

>> Hi, We have just had a hideous day where we signed a consent form for

>> Abi's 9th plaster jacket and the consultant decided (without talking to

>> us) to mould her for a brace. We only found out in recovery when

>> realising she wasn't wearing a plaster jacket anymore! All we have been

>> told is to take Abi back to collect the brace tomorrow from the

>> Orthotics department. Can anyone tell me how long it will take Abi to

>> get used to the brace please? She has been in plaster jackets since 20

>> months and is now 3 yrs 5 months so learnt to walk wearing a cast.

>>

>> Also how do we tell if the curves are getting worse? We don't even know

>> the basics such as how often a brace is changed and if there should be

>> any check ups inbetween so any advice would be great.

>>

>> We fought long and hard to get Abi into the right type of jacket here in

>> the UK and I can't believe we have come to the end of the road so

>> suddenly. I just feel really sad and very scared.

>>

>> Sue, mum to Abi in Oxford, UK

>>

>

>

>

>

>

>

>

>

>

>

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  • 1 year later...

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