Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 She's always carried upright I use a homemade woven wrap (basically just a length of cloth) and carry her in various tummy-to-tummy positions. Now that she's got more core strength and better head control, I'm starting to do some hip carries and back carries too. With the woven wrap she doesn't slouch - I snug it up so that there's no room for that. She does tend to lean to the one side even wrapped, but I'm getting better and more creative at wrapping so that she can't The other thing I use to carry her is an Ergo Baby r. It's a soft-structured-carrier, basically a soft front-pack (like the old snugglies), but supportive. She can't slouch in that either as I cinch it up tight to my chest/belly. I'm actually not that " crunchy " lol. I kind of fell into attachment parenting because it just feels right to me, and the babywearing is something I wanted to do as it's good for the babes, and very convenient (hands free so I can tidy, cook, take care of the pets, and chase around my son and foster kids). I've had a few people recommend chiro, but I'm just not comfortable with it. I did a lot of looking into it, and any " research " I find that supports using chiro on infants is put out there by the chiropractic association - hardly unbiased. On the other hand I found a couple reputable, solid papers that were not affiliated with the chiropractic association - these studies showed that chiro is not proven effective in treating infants or children and that it can actually cause harm. I'm really glad it's worked for some parents, I'm just not comfortable with it myself. Physio on the other hand? Bring it > > First, thank you again for the warm welcome and all the info y'all are providing > > Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... > > She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse > > I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. > > I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH > > So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? > > As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. > > I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. > > It's so hard watching her get worse and not being able to DO anything about it! > > Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! > > Thanks again! > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 She's always carried upright I use a homemade woven wrap (basically just a length of cloth) and carry her in various tummy-to-tummy positions. Now that she's got more core strength and better head control, I'm starting to do some hip carries and back carries too. With the woven wrap she doesn't slouch - I snug it up so that there's no room for that. She does tend to lean to the one side even wrapped, but I'm getting better and more creative at wrapping so that she can't The other thing I use to carry her is an Ergo Baby r. It's a soft-structured-carrier, basically a soft front-pack (like the old snugglies), but supportive. She can't slouch in that either as I cinch it up tight to my chest/belly. I'm actually not that " crunchy " lol. I kind of fell into attachment parenting because it just feels right to me, and the babywearing is something I wanted to do as it's good for the babes, and very convenient (hands free so I can tidy, cook, take care of the pets, and chase around my son and foster kids). I've had a few people recommend chiro, but I'm just not comfortable with it. I did a lot of looking into it, and any " research " I find that supports using chiro on infants is put out there by the chiropractic association - hardly unbiased. On the other hand I found a couple reputable, solid papers that were not affiliated with the chiropractic association - these studies showed that chiro is not proven effective in treating infants or children and that it can actually cause harm. I'm really glad it's worked for some parents, I'm just not comfortable with it myself. Physio on the other hand? Bring it > > First, thank you again for the warm welcome and all the info y'all are providing > > Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... > > She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse > > I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. > > I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH > > So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? > > As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. > > I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. > > It's so hard watching her get worse and not being able to DO anything about it! > > Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! > > Thanks again! > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 She's always carried upright I use a homemade woven wrap (basically just a length of cloth) and carry her in various tummy-to-tummy positions. Now that she's got more core strength and better head control, I'm starting to do some hip carries and back carries too. With the woven wrap she doesn't slouch - I snug it up so that there's no room for that. She does tend to lean to the one side even wrapped, but I'm getting better and more creative at wrapping so that she can't The other thing I use to carry her is an Ergo Baby r. It's a soft-structured-carrier, basically a soft front-pack (like the old snugglies), but supportive. She can't slouch in that either as I cinch it up tight to my chest/belly. I'm actually not that " crunchy " lol. I kind of fell into attachment parenting because it just feels right to me, and the babywearing is something I wanted to do as it's good for the babes, and very convenient (hands free so I can tidy, cook, take care of the pets, and chase around my son and foster kids). I've had a few people recommend chiro, but I'm just not comfortable with it. I did a lot of looking into it, and any " research " I find that supports using chiro on infants is put out there by the chiropractic association - hardly unbiased. On the other hand I found a couple reputable, solid papers that were not affiliated with the chiropractic association - these studies showed that chiro is not proven effective in treating infants or children and that it can actually cause harm. I'm really glad it's worked for some parents, I'm just not comfortable with it myself. Physio on the other hand? Bring it > > First, thank you again for the warm welcome and all the info y'all are providing > > Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... > > She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse > > I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. > > I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH > > So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? > > As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. > > I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. > > It's so hard watching her get worse and not being able to DO anything about it! > > Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! > > Thanks again! > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 We didn't opt for chiro either. We do yoga as it's part of benjamin's daycare routine. There is some positive info out there about that. My sis in law used an ergo and swore by it ( she loved the hands free). Again u are off to an awesome start! I hope you thouroughly enjoy motherhood! T Sent from my iPhone On Oct 24, 2010, at 11:01 AM, " chilliwackpitbull " <chilliwackpitbull@...> wrote: She's always carried upright I use a homemade woven wrap (basically just a length of cloth) and carry her in various tummy-to-tummy positions. Now that she's got more core strength and better head control, I'm starting to do some hip carries and back carries too. With the woven wrap she doesn't slouch - I snug it up so that there's no room for that. She does tend to lean to the one side even wrapped, but I'm getting better and more creative at wrapping so that she can't The other thing I use to carry her is an Ergo Baby r. It's a soft-structured-carrier, basically a soft front-pack (like the old snugglies), but supportive. She can't slouch in that either as I cinch it up tight to my chest/belly. I'm actually not that " crunchy " lol. I kind of fell into attachment parenting because it just feels right to me, and the babywearing is something I wanted to do as it's good for the babes, and very convenient (hands free so I can tidy, cook, take care of the pets, and chase around my son and foster kids). I've had a few people recommend chiro, but I'm just not comfortable with it. I did a lot of looking into it, and any " research " I find that supports using chiro on infants is put out there by the chiropractic association - hardly unbiased. On the other hand I found a couple reputable, solid papers that were not affiliated with the chiropractic association - these studies showed that chiro is not proven effective in treating infants or children and that it can actually cause harm. I'm really glad it's worked for some parents, I'm just not comfortable with it myself. Physio on the other hand? Bring it First, thank you again for the warm welcome and all the info y'all are providing Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. It's so hard watching her get worse and not being able to DO anything about it! Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! Thanks again! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 We didn't opt for chiro either. We do yoga as it's part of benjamin's daycare routine. There is some positive info out there about that. My sis in law used an ergo and swore by it ( she loved the hands free). Again u are off to an awesome start! I hope you thouroughly enjoy motherhood! T Sent from my iPhone On Oct 24, 2010, at 11:01 AM, " chilliwackpitbull " <chilliwackpitbull@...> wrote: She's always carried upright I use a homemade woven wrap (basically just a length of cloth) and carry her in various tummy-to-tummy positions. Now that she's got more core strength and better head control, I'm starting to do some hip carries and back carries too. With the woven wrap she doesn't slouch - I snug it up so that there's no room for that. She does tend to lean to the one side even wrapped, but I'm getting better and more creative at wrapping so that she can't The other thing I use to carry her is an Ergo Baby r. It's a soft-structured-carrier, basically a soft front-pack (like the old snugglies), but supportive. She can't slouch in that either as I cinch it up tight to my chest/belly. I'm actually not that " crunchy " lol. I kind of fell into attachment parenting because it just feels right to me, and the babywearing is something I wanted to do as it's good for the babes, and very convenient (hands free so I can tidy, cook, take care of the pets, and chase around my son and foster kids). I've had a few people recommend chiro, but I'm just not comfortable with it. I did a lot of looking into it, and any " research " I find that supports using chiro on infants is put out there by the chiropractic association - hardly unbiased. On the other hand I found a couple reputable, solid papers that were not affiliated with the chiropractic association - these studies showed that chiro is not proven effective in treating infants or children and that it can actually cause harm. I'm really glad it's worked for some parents, I'm just not comfortable with it myself. Physio on the other hand? Bring it First, thank you again for the warm welcome and all the info y'all are providing Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. It's so hard watching her get worse and not being able to DO anything about it! Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! Thanks again! ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Hello,I can't help with the Canada questions, but I wanted to share some advice that our doc gave us in regards to positioning when Mariella was diagonised. He said to not hold her in the infant (fetal) position. And to hold her on the side opposite of her curve when feeding her. He said we could "force position" her sleeping if possible before she started rolling over. For us this was an easy task because we co-slept with her. She would automatically turn towards mom when she was sleeping, so I simply changed sides of the bed that I slept on.I should mention that the doc said, "I don't know if these things will work, but it's worth a try."There is also a DVD that you can order from www.infantilescoliosis.org that shows a few stretches that you can do on infants.Hope that helps : )~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosisinfantile scoliosis treatment From: chilliwackpitbull@...Date: Sun, 24 Oct 2010 05:58:53 +0000Subject: More questions First, thank you again for the warm welcome and all the info y'all are providing Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. It's so hard watching her get worse and not being able to DO anything about it! Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 Hello,I can't help with the Canada questions, but I wanted to share some advice that our doc gave us in regards to positioning when Mariella was diagonised. He said to not hold her in the infant (fetal) position. And to hold her on the side opposite of her curve when feeding her. He said we could "force position" her sleeping if possible before she started rolling over. For us this was an easy task because we co-slept with her. She would automatically turn towards mom when she was sleeping, so I simply changed sides of the bed that I slept on.I should mention that the doc said, "I don't know if these things will work, but it's worth a try."There is also a DVD that you can order from www.infantilescoliosis.org that shows a few stretches that you can do on infants.Hope that helps : )~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosisinfantile scoliosis treatment From: chilliwackpitbull@...Date: Sun, 24 Oct 2010 05:58:53 +0000Subject: More questions First, thank you again for the warm welcome and all the info y'all are providing Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. It's so hard watching her get worse and not being able to DO anything about it! Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2010 Report Share Posted October 24, 2010 - that does help thanks! I have a simple question - how do you know which is the side of the curve and which is the opposite? Audrey's spine bends in a " C " , with the back of the " C " on her left (the side that's humping out) and the open side of the " C " on her right (the side she leans or curves towards). She likes to lay on her left side in bed when she nurses (at home we nurse side lying - it's her favourite). I don't often end up feeding her outside the house, but when I do she'll nurse either side. No worries holding baby in the fetal position - she's a big back archer and leg straightener. I'll check out that DVD le > > > Hello,I can't help with the Canada questions, but I wanted to share some advice that our doc gave us in regards to positioning when Mariella was diagonised. He said to not hold her in the infant (fetal) position. And to hold her on the side opposite of her curve when feeding her. > He said we could " force position " her sleeping if possible before she started rolling over. For us this was an easy task because we co-slept with her. She would automatically turn towards mom when she was sleeping, so I simply changed sides of the bed that I slept on. > I should mention that the doc said, " I don't know if these things will work, but it's worth a try. " > There is also a DVD that you can order from www.infantilescoliosis.org that shows a few stretches that you can do on infants. > Hope that helps : ) > > ~ > Noah 5 years old > 9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8* > And Mariella 1 yr old - resolved Infantile Scoliosis > > > > > > infantile scoliosis treatment > From: chilliwackpitbull@... > Date: Sun, 24 Oct 2010 05:58:53 +0000 > Subject: More questions > > > > > > > > > > > > > > > > > > > > > > > > > > > > > First, thank you again for the warm welcome and all the info y'all are providing > > > > Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... > > > > She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. > > > > I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH > > > > So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? > > > > As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. > > > > I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. > > > > It's so hard watching her get worse and not being able to DO anything about it! > > > > Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! > > > > Thanks again! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 I would recommend gently stretching her against the curve as much as you can. Also, make sure she is not falling into her curve in the car seat by rolling up a towel or something to prop her concave side up and to keep her lil spine in the most straight position, as possible. Also, when holding, hold her against the curve. Like mentioned earlier “A New Direction,” DVD gives good advice on this and the pioneer of ET also speaks about this and other important, related issues. Hang in there. HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of chilliwackpitbull Sent: Sunday, October 24, 2010 9:16 AM infantile scoliosis treatment Subject: Re: More questions Thanks! I'll push for the PT referral now, rather than waiting until after the ortho referral's gone through (which was the ped's initial plan, but we may be waiting MONTHS for that ortho appointment). I did ask the ped about the wrapping/wearing, and she said it was fine. However she was really surprised that Audrey has a curve so young, said it's pretty much unheard of in babes taht young, and I got the sense she wasn't very informed? I find our pediatricians here in town are basically just GPs for babies/children - they do regular checkup stuff, and if they find anything they just refer the child to BCCH's appropriate department - they don't seem to diagnose or treat anything themselves beyond ear aches and such. As for tummy time, we try to do a little bit every day, but Audrey is NOT a fan When she's on her tummy her curve becomes very noticeable and I think it's uncomfortable for her. As I said, I do wear her a bit, which helps build up those core muscles, and when she's not being worn she's often carried in arms - I'm big on attachment parenting and have a busy demanding household so she spends very little time where she's not being carried in some way or another. As a result she's been able to lift her head and push up from her tummy since she was 3 weeks old! We did go swimming at the pool for the first time the other day, and she was much happier to do her tummy time in the water. I think we're going to try to go to the pool a couple of times a week, since she liked it so much > > First, thank you again for the warm welcome and all the info y'all are providing > > Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... > > She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse > > I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. > > I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH > > So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? > > As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. > > I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. > > It's so hard watching her get worse and not being able to DO anything about it! > > Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! > > Thanks again! > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Thanks for the tips Just called BCCH and the referral's been put through to Dr. R's assistant, who now has to process it - he should actually see the referral on Monday (a week today), and then get in touch with us to schedule an appointment. Trying to get ahold of the ped about a PT referral. Where on the ISOP site can I find that DVD? Thanks! le > > > > First, thank you again for the warm welcome and all the info y'all are > providing > > > > Tonight I took baby Audrey to see my cousin so she could have a look at > her back. My cousin knows nothing about baby scoliosis, but is very familiar > with curvatures and contractures from her work, and is brutally honest so I > knew she'd tell me whether she saw what I'm seeing, or if I'm just being > paranoid and seeing things that aren't there... > > > > She could clearly see the curve in Audrey's spine, and where her ribs are > starting to bulge out. So it's not my imagination - baby's back is getting > worse > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to > get an appointment booked for Audrey to see the orthopedist. If that's not > successful, I'll call her pediatrician and put pressure on there. > > > > I can't find the words to explain how distressing it is to watch my baby's > back get worse right in front of my eyes, and she doesn't even have a > diagnosis yet, or even an appointment to get diagnosed! I'm just sick over > it So is my DH > > > > So, some questions - for those Canadians who travelled to the US for their > babies medical treatments - did you need to get a passport for your babies? > Hubby and I have passports, but baby does not - should I be applying for one > for her now? > > > > As for contacting the Shriners Hospital in SLC - is there any point in > doing that when we haven't even got a diagnosis yet? Really, all I have at > this point is a single set of xrays showing a 13 degree curve. However my > baby's back is VISIBLY getting worse, to the naked and untrained eye. > > > > I just feel like she's getting worse and I'm losing time; yet my hands are > tied while I wait for her to see the specialist and hopefully get a > diagnosis so that we can start actually talking about how to get her better. > > > > It's so hard watching her get worse and not being able to DO anything > about it! > > > > Also, a possibly silly question - is there anything I should/shouldn't do > with her in terms of positioning or activities? I asked the ped this, and > she said no, just live life as normal. I told her I try to minimize the time > baby spends in positions that seem to encourage her lean (like her car seat > and bouncy chair), and she said that was fine, but didn't give me any other > advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), > and have a couple woven wraps I just bought on their way in the mail and I > plan to wear her more once they get here. I would think the wearing would be > good for her (supported in a good position for orthopedic/posture > development and builds core muscles)? But it seems she's straightest when > lying flat on her back, so maybe I shouldn't be wearing her and should have > her laying flat a lot? Ack! I just don't know! > > > > Thanks again! > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Great news that they received the paper work. Hopefully Ram( think that's her name ?) will get you is soon. Let us know what happens Mom to Thaddeus Sent from my iPhoneOn Oct 25, 2010, at 9:17 AM, "chilliwackpitbull" <chilliwackpitbull@...> wrote: Thanks for the tips Just called BCCH and the referral's been put through to Dr. R's assistant, who now has to process it - he should actually see the referral on Monday (a week today), and then get in touch with us to schedule an appointment. Trying to get ahold of the ped about a PT referral. Where on the ISOP site can I find that DVD? Thanks! le > > > > First, thank you again for the warm welcome and all the info y'all are > providing > > > > Tonight I took baby Audrey to see my cousin so she could have a look at > her back. My cousin knows nothing about baby scoliosis, but is very familiar > with curvatures and contractures from her work, and is brutally honest so I > knew she'd tell me whether she saw what I'm seeing, or if I'm just being > paranoid and seeing things that aren't there... > > > > She could clearly see the curve in Audrey's spine, and where her ribs are > starting to bulge out. So it's not my imagination - baby's back is getting > worse > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to > get an appointment booked for Audrey to see the orthopedist. If that's not > successful, I'll call her pediatrician and put pressure on there. > > > > I can't find the words to explain how distressing it is to watch my baby's > back get worse right in front of my eyes, and she doesn't even have a > diagnosis yet, or even an appointment to get diagnosed! I'm just sick over > it So is my DH > > > > So, some questions - for those Canadians who travelled to the US for their > babies medical treatments - did you need to get a passport for your babies? > Hubby and I have passports, but baby does not - should I be applying for one > for her now? > > > > As for contacting the Shriners Hospital in SLC - is there any point in > doing that when we haven't even got a diagnosis yet? Really, all I have at > this point is a single set of xrays showing a 13 degree curve. However my > baby's back is VISIBLY getting worse, to the naked and untrained eye. > > > > I just feel like she's getting worse and I'm losing time; yet my hands are > tied while I wait for her to see the specialist and hopefully get a > diagnosis so that we can start actually talking about how to get her better. > > > > It's so hard watching her get worse and not being able to DO anything > about it! > > > > Also, a possibly silly question - is there anything I should/shouldn't do > with her in terms of positioning or activities? I asked the ped this, and > she said no, just live life as normal. I told her I try to minimize the time > baby spends in positions that seem to encourage her lean (like her car seat > and bouncy chair), and she said that was fine, but didn't give me any other > advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), > and have a couple woven wraps I just bought on their way in the mail and I > plan to wear her more once they get here. I would think the wearing would be > good for her (supported in a good position for orthopedic/posture > development and builds core muscles)? But it seems she's straightest when > lying flat on her back, so maybe I shouldn't be wearing her and should have > her laying flat a lot? Ack! I just don't know! > > > > Thanks again! > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 i couldn't find the video on ISOP, but did find it on youtube.here is the link: - it is in 3 parts - parts 2 & 3 are the next videos in the cue - to the right.From: chilliwackpitbull <chilliwackpitbull@...>To: infantile scoliosis treatment Sent: Mon, October 25, 2010 9:17:36 AMSubject: Re: More questions Thanks for the tips Just called BCCH and the referral's been put through to Dr. R's assistant, who now has to process it - he should actually see the referral on Monday (a week today), and then get in touch with us to schedule an appointment. Trying to get ahold of the ped about a PT referral. Where on the ISOP site can I find that DVD? Thanks! le > > > > First, thank you again for the warm welcome and all the info y'all are > providing > > > > Tonight I took baby Audrey to see my cousin so she could have a look at > her back. My cousin knows nothing about baby scoliosis, but is very familiar > with curvatures and contractures from her work, and is brutally honest so I > knew she'd tell me whether she saw what I'm seeing, or if I'm just being > paranoid and seeing things that aren't there... > > > > She could clearly see the curve in Audrey's spine, and where her ribs are > starting to bulge out. So it's not my imagination - baby's back is getting > worse > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to > get an appointment booked for Audrey to see the orthopedist. If that's not > successful, I'll call her pediatrician and put pressure on there. > > > > I can't find the words to explain how distressing it is to watch my baby's > back get worse right in front of my eyes, and she doesn't even have a > diagnosis yet, or even an appointment to get diagnosed! I'm just sick over > it So is my DH > > > > So, some questions - for those Canadians who travelled to the US for their > babies medical treatments - did you need to get a passport for your babies? > Hubby and I have passports, but baby does not - should I be applying for one > for her now? > > > > As for contacting the Shriners Hospital in SLC - is there any point in > doing that when we haven't even got a diagnosis yet? Really, all I have at > this point is a single set of xrays showing a 13 degree curve. However my > baby's back is VISIBLY getting worse, to the naked and untrained eye. > > > > I just feel like she's getting worse and I'm losing time; yet my hands are > tied while I wait for her to see the specialist and hopefully get a > diagnosis so that we can start actually talking about how to get her better. > > > > It's so hard watching her get worse and not being able to DO anything > about it! > > > > Also, a possibly silly question - is there anything I should/shouldn't do > with her in terms of positioning or activities? I asked the ped this, and > she said no, just live life as normal. I told her I try to minimize the time > baby spends in positions that seem to encourage her lean (like her car seat > and bouncy chair), and she said that was fine, but didn't give me any other > advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), > and have a couple woven wraps I just bought on their way in the mail and I > plan to wear her more once they get here. I would think the wearing would be > good for her (supported in a good position for orthopedic/posture > development and builds core muscles)? But it seems she's straightest when > lying flat on her back, so maybe I shouldn't be wearing her and should have > her laying flat a lot? Ack! I just don't know! > > > > Thanks again! > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Its on the homepage of www.infantilescoliosis.org But, just send me the addy where you would like it sent and I’ll have my office send one out today. My personal email is: isop06@... Thanks, HRH From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of chilliwackpitbull Sent: Monday, October 25, 2010 10:18 AM infantile scoliosis treatment Subject: Re: More questions Thanks for the tips Just called BCCH and the referral's been put through to Dr. R's assistant, who now has to process it - he should actually see the referral on Monday (a week today), and then get in touch with us to schedule an appointment. Trying to get ahold of the ped about a PT referral. Where on the ISOP site can I find that DVD? Thanks! le > > > > First, thank you again for the warm welcome and all the info y'all are > providing > > > > Tonight I took baby Audrey to see my cousin so she could have a look at > her back. My cousin knows nothing about baby scoliosis, but is very familiar > with curvatures and contractures from her work, and is brutally honest so I > knew she'd tell me whether she saw what I'm seeing, or if I'm just being > paranoid and seeing things that aren't there... > > > > She could clearly see the curve in Audrey's spine, and where her ribs are > starting to bulge out. So it's not my imagination - baby's back is getting > worse > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to > get an appointment booked for Audrey to see the orthopedist. If that's not > successful, I'll call her pediatrician and put pressure on there. > > > > I can't find the words to explain how distressing it is to watch my baby's > back get worse right in front of my eyes, and she doesn't even have a > diagnosis yet, or even an appointment to get diagnosed! I'm just sick over > it So is my DH > > > > So, some questions - for those Canadians who travelled to the US for their > babies medical treatments - did you need to get a passport for your babies? > Hubby and I have passports, but baby does not - should I be applying for one > for her now? > > > > As for contacting the Shriners Hospital in SLC - is there any point in > doing that when we haven't even got a diagnosis yet? Really, all I have at > this point is a single set of xrays showing a 13 degree curve. However my > baby's back is VISIBLY getting worse, to the naked and untrained eye. > > > > I just feel like she's getting worse and I'm losing time; yet my hands are > tied while I wait for her to see the specialist and hopefully get a > diagnosis so that we can start actually talking about how to get her better. > > > > It's so hard watching her get worse and not being able to DO anything > about it! > > > > Also, a possibly silly question - is there anything I should/shouldn't do > with her in terms of positioning or activities? I asked the ped this, and > she said no, just live life as normal. I told her I try to minimize the time > baby spends in positions that seem to encourage her lean (like her car seat > and bouncy chair), and she said that was fine, but didn't give me any other > advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), > and have a couple woven wraps I just bought on their way in the mail and I > plan to wear her more once they get here. I would think the wearing would be > good for her (supported in a good position for orthopedic/posture > development and builds core muscles)? But it seems she's straightest when > lying flat on her back, so maybe I shouldn't be wearing her and should have > her laying flat a lot? Ack! I just don't know! > > > > Thanks again! > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 Sounds like you and got this all worked out. Plus the DVD will demonstrate this a bit too.~Noah 5 years old9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8*And Mariella 1 yr old - resolved Infantile Scoliosisinfantile scoliosis treatment From: chilliwackpitbull@...Date: Sun, 24 Oct 2010 18:43:05 +0000Subject: Re: More questions - that does help thanks! I have a simple question - how do you know which is the side of the curve and which is the opposite? Audrey's spine bends in a "C", with the back of the "C" on her left (the side that's humping out) and the open side of the "C" on her right (the side she leans or curves towards). She likes to lay on her left side in bed when she nurses (at home we nurse side lying - it's her favourite). I don't often end up feeding her outside the house, but when I do she'll nurse either side. No worries holding baby in the fetal position - she's a big back archer and leg straightener. I'll check out that DVD le > > > Hello,I can't help with the Canada questions, but I wanted to share some advice that our doc gave us in regards to positioning when Mariella was diagonised. He said to not hold her in the infant (fetal) position. And to hold her on the side opposite of her curve when feeding her. > He said we could "force position" her sleeping if possible before she started rolling over. For us this was an easy task because we co-slept with her. She would automatically turn towards mom when she was sleeping, so I simply changed sides of the bed that I slept on. > I should mention that the doc said, "I don't know if these things will work, but it's worth a try." > There is also a DVD that you can order from www.infantilescoliosis.org that shows a few stretches that you can do on infants. > Hope that helps : ) > > ~ > Noah 5 years old > 9 months of casting in SLC; 2 1/2 years of bracing; Currently treatment-free at 8* > And Mariella 1 yr old - resolved Infantile Scoliosis > > > > > > infantile scoliosis treatment > From: chilliwackpitbull@... > Date: Sun, 24 Oct 2010 05:58:53 +0000 > Subject: More questions > > > > > > > > > > > > > > > > > > > > > > > > > > > > > First, thank you again for the warm welcome and all the info y'all are providing > > > > Tonight I took baby Audrey to see my cousin so she could have a look at her back. My cousin knows nothing about baby scoliosis, but is very familiar with curvatures and contractures from her work, and is brutally honest so I knew she'd tell me whether she saw what I'm seeing, or if I'm just being paranoid and seeing things that aren't there... > > > > She could clearly see the curve in Audrey's spine, and where her ribs are starting to bulge out. So it's not my imagination - baby's back is getting worse > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to get an appointment booked for Audrey to see the orthopedist. If that's not successful, I'll call her pediatrician and put pressure on there. > > > > I can't find the words to explain how distressing it is to watch my baby's back get worse right in front of my eyes, and she doesn't even have a diagnosis yet, or even an appointment to get diagnosed! I'm just sick over it So is my DH > > > > So, some questions - for those Canadians who travelled to the US for their babies medical treatments - did you need to get a passport for your babies? Hubby and I have passports, but baby does not - should I be applying for one for her now? > > > > As for contacting the Shriners Hospital in SLC - is there any point in doing that when we haven't even got a diagnosis yet? Really, all I have at this point is a single set of xrays showing a 13 degree curve. However my baby's back is VISIBLY getting worse, to the naked and untrained eye. > > > > I just feel like she's getting worse and I'm losing time; yet my hands are tied while I wait for her to see the specialist and hopefully get a diagnosis so that we can start actually talking about how to get her better. > > > > It's so hard watching her get worse and not being able to DO anything about it! > > > > Also, a possibly silly question - is there anything I should/shouldn't do with her in terms of positioning or activities? I asked the ped this, and she said no, just live life as normal. I told her I try to minimize the time baby spends in positions that seem to encourage her lean (like her car seat and bouncy chair), and she said that was fine, but didn't give me any other advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), and have a couple woven wraps I just bought on their way in the mail and I plan to wear her more once they get here. I would think the wearing would be good for her (supported in a good position for orthopedic/posture development and builds core muscles)? But it seems she's straightest when lying flat on her back, so maybe I shouldn't be wearing her and should have her laying flat a lot? Ack! I just don't know! > > > > Thanks again! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 So I spoke with our pediatrician, who is going to personally call Dr. R at BCCH and ask that Audrey be seen within the next week or two. She's also going to call our local Child Development Center and put in the physio referral to get started asap. So good news > > > > > > First, thank you again for the warm welcome and all the info y'all are > > providing > > > > > > Tonight I took baby Audrey to see my cousin so she could have a look at > > her back. My cousin knows nothing about baby scoliosis, but is very familiar > > with curvatures and contractures from her work, and is brutally honest so I > > knew she'd tell me whether she saw what I'm seeing, or if I'm just being > > paranoid and seeing things that aren't there... > > > > > > She could clearly see the curve in Audrey's spine, and where her ribs are > > starting to bulge out. So it's not my imagination - baby's back is getting > > worse > > > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to > > get an appointment booked for Audrey to see the orthopedist. If that's not > > successful, I'll call her pediatrician and put pressure on there. > > > > > > I can't find the words to explain how distressing it is to watch my baby's > > back get worse right in front of my eyes, and she doesn't even have a > > diagnosis yet, or even an appointment to get diagnosed! I'm just sick over > > it So is my DH > > > > > > So, some questions - for those Canadians who travelled to the US for their > > babies medical treatments - did you need to get a passport for your babies? > > Hubby and I have passports, but baby does not - should I be applying for one > > for her now? > > > > > > As for contacting the Shriners Hospital in SLC - is there any point in > > doing that when we haven't even got a diagnosis yet? Really, all I have at > > this point is a single set of xrays showing a 13 degree curve. However my > > baby's back is VISIBLY getting worse, to the naked and untrained eye. > > > > > > I just feel like she's getting worse and I'm losing time; yet my hands are > > tied while I wait for her to see the specialist and hopefully get a > > diagnosis so that we can start actually talking about how to get her better. > > > > > > It's so hard watching her get worse and not being able to DO anything > > about it! > > > > > > Also, a possibly silly question - is there anything I should/shouldn't do > > with her in terms of positioning or activities? I asked the ped this, and > > she said no, just live life as normal. I told her I try to minimize the time > > baby spends in positions that seem to encourage her lean (like her car seat > > and bouncy chair), and she said that was fine, but didn't give me any other > > advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), > > and have a couple woven wraps I just bought on their way in the mail and I > > plan to wear her more once they get here. I would think the wearing would be > > good for her (supported in a good position for orthopedic/posture > > development and builds core muscles)? But it seems she's straightest when > > lying flat on her back, so maybe I shouldn't be wearing her and should have > > her laying flat a lot? Ack! I just don't know! > > > > > > Thanks again! > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 That is great news. Our med records have been sent off to the shriners and to slc directly. Hopefully we will hear something soon. We still haven't heard from Edmonton or calgary and it has been a month. Tired of the waiting game. Sent from my BlackBerry® wireless handheldFrom: chilliwackpitbull <chilliwackpitbull@...>Sender: infantile scoliosis treatment Date: Mon, 25 Oct 2010 18:46:55 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: More questions So I spoke with our pediatrician, who is going to personally call Dr. R at BCCH and ask that Audrey be seen within the next week or two. She's also going to call our local Child Development Center and put in the physio referral to get started asap.So good news > > > > > > First, thank you again for the warm welcome and all the info y'all are> > providing > > > > > > Tonight I took baby Audrey to see my cousin so she could have a look at> > her back. My cousin knows nothing about baby scoliosis, but is very familiar> > with curvatures and contractures from her work, and is brutally honest so I> > knew she'd tell me whether she saw what I'm seeing, or if I'm just being> > paranoid and seeing things that aren't there...> > > > > > She could clearly see the curve in Audrey's spine, and where her ribs are> > starting to bulge out. So it's not my imagination - baby's back is getting> > worse > > > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to> > get an appointment booked for Audrey to see the orthopedist. If that's not> > successful, I'll call her pediatrician and put pressure on there.> > > > > > I can't find the words to explain how distressing it is to watch my baby's> > back get worse right in front of my eyes, and she doesn't even have a> > diagnosis yet, or even an appointment to get diagnosed! I'm just sick over> > it So is my DH > > > > > > So, some questions - for those Canadians who travelled to the US for their> > babies medical treatments - did you need to get a passport for your babies?> > Hubby and I have passports, but baby does not - should I be applying for one> > for her now?> > > > > > As for contacting the Shriners Hospital in SLC - is there any point in> > doing that when we haven't even got a diagnosis yet? Really, all I have at> > this point is a single set of xrays showing a 13 degree curve. However my> > baby's back is VISIBLY getting worse, to the naked and untrained eye.> > > > > > I just feel like she's getting worse and I'm losing time; yet my hands are> > tied while I wait for her to see the specialist and hopefully get a> > diagnosis so that we can start actually talking about how to get her better.> > > > > > It's so hard watching her get worse and not being able to DO anything> > about it!> > > > > > Also, a possibly silly question - is there anything I should/shouldn't do> > with her in terms of positioning or activities? I asked the ped this, and> > she said no, just live life as normal. I told her I try to minimize the time> > baby spends in positions that seem to encourage her lean (like her car seat> > and bouncy chair), and she said that was fine, but didn't give me any other> > advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo),> > and have a couple woven wraps I just bought on their way in the mail and I> > plan to wear her more once they get here. I would think the wearing would be> > good for her (supported in a good position for orthopedic/posture> > development and builds core muscles)? But it seems she's straightest when> > lying flat on her back, so maybe I shouldn't be wearing her and should have> > her laying flat a lot? Ack! I just don't know!> > > > > > Thanks again!> > > > > > > > > > > > ------------------------------------> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2010 Report Share Posted October 25, 2010 We also watched it on you tube. Nothing like instant gratification!Sent from my iPhoneOn Oct 25, 2010, at 11:35 AM, M Carol <mcarol595@...> wrote: i couldn't find the video on ISOP, but did find it on youtube.here is the link: - it is in 3 parts - parts 2 & 3 are the next videos in the cue - to the right.From: chilliwackpitbull <chilliwackpitbull@...>To: infantile scoliosis treatment Sent: Mon, October 25, 2010 9:17:36 AMSubject: Re: More questions Thanks for the tips Just called BCCH and the referral's been put through to Dr. R's assistant, who now has to process it - he should actually see the referral on Monday (a week today), and then get in touch with us to schedule an appointment. Trying to get ahold of the ped about a PT referral. Where on the ISOP site can I find that DVD? Thanks! le > > > > First, thank you again for the warm welcome and all the info y'all are > providing > > > > Tonight I took baby Audrey to see my cousin so she could have a look at > her back. My cousin knows nothing about baby scoliosis, but is very familiar > with curvatures and contractures from her work, and is brutally honest so I > knew she'd tell me whether she saw what I'm seeing, or if I'm just being > paranoid and seeing things that aren't there... > > > > She could clearly see the curve in Audrey's spine, and where her ribs are > starting to bulge out. So it's not my imagination - baby's back is getting > worse > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to > get an appointment booked for Audrey to see the orthopedist. If that's not > successful, I'll call her pediatrician and put pressure on there. > > > > I can't find the words to explain how distressing it is to watch my baby's > back get worse right in front of my eyes, and she doesn't even have a > diagnosis yet, or even an appointment to get diagnosed! I'm just sick over > it So is my DH > > > > So, some questions - for those Canadians who travelled to the US for their > babies medical treatments - did you need to get a passport for your babies? > Hubby and I have passports, but baby does not - should I be applying for one > for her now? > > > > As for contacting the Shriners Hospital in SLC - is there any point in > doing that when we haven't even got a diagnosis yet? Really, all I have at > this point is a single set of xrays showing a 13 degree curve. However my > baby's back is VISIBLY getting worse, to the naked and untrained eye. > > > > I just feel like she's getting worse and I'm losing time; yet my hands are > tied while I wait for her to see the specialist and hopefully get a > diagnosis so that we can start actually talking about how to get her better. > > > > It's so hard watching her get worse and not being able to DO anything > about it! > > > > Also, a possibly silly question - is there anything I should/shouldn't do > with her in terms of positioning or activities? I asked the ped this, and > she said no, just live life as normal. I told her I try to minimize the time > baby spends in positions that seem to encourage her lean (like her car seat > and bouncy chair), and she said that was fine, but didn't give me any other > advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), > and have a couple woven wraps I just bought on their way in the mail and I > plan to wear her more once they get here. I would think the wearing would be > good for her (supported in a good position for orthopedic/posture > development and builds core muscles)? But it seems she's straightest when > lying flat on her back, so maybe I shouldn't be wearing her and should have > her laying flat a lot? Ack! I just don't know! > > > > Thanks again! > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Good news! GREAT advocating for your child! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: chilliwackpitbull <chilliwackpitbull@...>infantile scoliosis treatment Sent: Mon, October 25, 2010 11:46:55 AMSubject: Re: More questions So I spoke with our pediatrician, who is going to personally call Dr. R at BCCH and ask that Audrey be seen within the next week or two. She's also going to call our local Child Development Center and put in the physio referral to get started asap. So good news > > > > > > First, thank you again for the warm welcome and all the info y'all are > > providing > > > > > > Tonight I took baby Audrey to see my cousin so she could have a look at > > her back. My cousin knows nothing about baby scoliosis, but is very familiar > > with curvatures and contractures from her work, and is brutally honest so I > > knew she'd tell me whether she saw what I'm seeing, or if I'm just being > > paranoid and seeing things that aren't there... > > > > > > She could clearly see the curve in Audrey's spine, and where her ribs are > > starting to bulge out. So it's not my imagination - baby's back is getting > > worse > > > > > > I'm going to call BCCH again on Monday to see if I can (politely!) push to > > get an appointment booked for Audrey to see the orthopedist. If that's not > > successful, I'll call her pediatrician and put pressure on there. > > > > > > I can't find the words to explain how distressing it is to watch my baby's > > back get worse right in front of my eyes, and she doesn't even have a > > diagnosis yet, or even an appointment to get diagnosed! I'm just sick over > > it So is my DH > > > > > > So, some questions - for those Canadians who travelled to the US for their > > babies medical treatments - did you need to get a passport for your babies? > > Hubby and I have passports, but baby does not - should I be applying for one > > for her now? > > > > > > As for contacting the Shriners Hospital in SLC - is there any point in > > doing that when we haven't even got a diagnosis yet? Really, all I have at > > this point is a single set of xrays showing a 13 degree curve. However my > > baby's back is VISIBLY getting worse, to the naked and untrained eye. > > > > > > I just feel like she's getting worse and I'm losing time; yet my hands are > > tied while I wait for her to see the specialist and hopefully get a > > diagnosis so that we can start actually talking about how to get her better. > > > > > > It's so hard watching her get worse and not being able to DO anything > > about it! > > > > > > Also, a possibly silly question - is there anything I should/shouldn't do > > with her in terms of positioning or activities? I asked the ped this, and > > she said no, just live life as normal. I told her I try to minimize the time > > baby spends in positions that seem to encourage her lean (like her car seat > > and bouncy chair), and she said that was fine, but didn't give me any other > > advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an Ergo), > > and have a couple woven wraps I just bought on their way in the mail and I > > plan to wear her more once they get here. I would think the wearing would be > > good for her (supported in a good position for orthopedic/posture > > development and builds core muscles)? But it seems she's straightest when > > lying flat on her back, so maybe I shouldn't be wearing her and should have > > her laying flat a lot? Ack! I just don't know! > > > > > > Thanks again! > > > > > > > > > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2010 Report Share Posted October 26, 2010 Good luck! Let us know when you're in! HRH > That is great news. Our med records have been sent off to the shriners > and to slc directly. Hopefully we will hear something soon. We still > haven't heard from Edmonton or calgary and it has been a month. > Tired of the waiting game. > > Sent from my BlackBerry® wireless handheld > > Re: More questions > > So I spoke with our pediatrician, who is going to personally call Dr. R at > BCCH and ask that Audrey be seen within the next week or two. She's also > going to call our local Child Development Center and put in the physio > referral to get started asap. > > So good news > > >> > > >> > > First, thank you again for the warm welcome and all the info y'all >> are >> > providing >> > > >> > > Tonight I took baby Audrey to see my cousin so she could have a look >> at >> > her back. My cousin knows nothing about baby scoliosis, but is very >> familiar >> > with curvatures and contractures from her work, and is brutally honest >> so I >> > knew she'd tell me whether she saw what I'm seeing, or if I'm just >> being >> > paranoid and seeing things that aren't there... >> > > >> > > She could clearly see the curve in Audrey's spine, and where her >> ribs are >> > starting to bulge out. So it's not my imagination - baby's back is >> getting >> > worse >> > > >> > > I'm going to call BCCH again on Monday to see if I can (politely!) >> push to >> > get an appointment booked for Audrey to see the orthopedist. If that's >> not >> > successful, I'll call her pediatrician and put pressure on there. >> > > >> > > I can't find the words to explain how distressing it is to watch my >> baby's >> > back get worse right in front of my eyes, and she doesn't even have a >> > diagnosis yet, or even an appointment to get diagnosed! I'm just sick >> over >> > it So is my DH >> > > >> > > So, some questions - for those Canadians who travelled to the US for >> their >> > babies medical treatments - did you need to get a passport for your >> babies? >> > Hubby and I have passports, but baby does not - should I be applying >> for one >> > for her now? >> > > >> > > As for contacting the Shriners Hospital in SLC - is there any point >> in >> > doing that when we haven't even got a diagnosis yet? Really, all I >> have at >> > this point is a single set of xrays showing a 13 degree curve. However >> my >> > baby's back is VISIBLY getting worse, to the naked and untrained eye. >> > > >> > > I just feel like she's getting worse and I'm losing time; yet my >> hands are >> > tied while I wait for her to see the specialist and hopefully get a >> > diagnosis so that we can start actually talking about how to get her >> better. >> > > >> > > It's so hard watching her get worse and not being able to DO >> anything >> > about it! >> > > >> > > Also, a possibly silly question - is there anything I >> should/shouldn't do >> > with her in terms of positioning or activities? I asked the ped this, >> and >> > she said no, just live life as normal. I told her I try to minimize >> the time >> > baby spends in positions that seem to encourage her lean (like her car >> seat >> > and bouncy chair), and she said that was fine, but didn't give me any >> other >> > advice. Do any of you babywear? I wear Audrey a bit (in a wrap or an >> Ergo), >> > and have a couple woven wraps I just bought on their way in the mail >> and I >> > plan to wear her more once they get here. I would think the wearing >> would be >> > good for her (supported in a good position for orthopedic/posture >> > development and builds core muscles)? But it seems she's straightest >> when >> > lying flat on her back, so maybe I shouldn't be wearing her and should >> have >> > her laying flat a lot? Ack! I just don't know! >> > > >> > > Thanks again! >> > > >> > > >> > > >> > > ------------------------------------ >> > > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 helloneed help in these ques... 1-HOW OFTEN SHOULD YOU REVIEW SMOKING STATUS?3,6,12 MONTHS2-IF YOU STIMULATE THE SALIVARY FLOW IN ONE SIDE OF THE MOUTH-WHERE DOES THE SALIVA APPEAR?BILATERAL, IPSILATERAL,CONTRALATERAL ETC3- WAT R THE ELECTRIC PULP TEST READINGS?? 4-Epulis is a characteristic of which condition? thanks Anu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 12 MONTHIPSILATERAL0 - 40 NORMAL ,40 - 80 PULPITIS OVER 80 DEAD PULP From: Anu Arora <dr.anuarora@...> Sent: Saturday, 3 March 2012, 20:25 Subject: more questions helloneed help in these ques... 1-HOW OFTEN SHOULD YOU REVIEW SMOKING STATUS?3,6,12 MONTHS2-IF YOU STIMULATE THE SALIVARY FLOW IN ONE SIDE OF THE MOUTH-WHERE DOES THE SALIVA APPEAR?BILATERAL, IPSILATERAL,CONTRALATERAL ETC3- WAT R THE ELECTRIC PULP TEST READINGS?? 4-Epulis is a characteristic of which condition? thanks Anu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 Here we are guys Arthur already wrote it Sent from on Android From: ARTHUR TADEVOSYAN <arthur_tadevosyan@...>; To: < >; Subject: Re: more questions Sent: Sat, Mar 3, 2012 9:23:10 PM 12 MONTHIPSILATERAL0 - 40 NORMAL ,40 - 80 PULPITIS OVER 80 DEAD PULP From: Anu Arora <dr.anuarora@...> Sent: Saturday, 3 March 2012, 20:25 Subject: more questions helloneed help in these ques... 1-HOW OFTEN SHOULD YOU REVIEW SMOKING STATUS?3,6,12 MONTHS2-IF YOU STIMULATE THE SALIVARY FLOW IN ONE SIDE OF THE MOUTH-WHERE DOES THE SALIVA APPEAR?BILATERAL, IPSILATERAL,CONTRALATERAL ETC3- WAT R THE ELECTRIC PULP TEST READINGS?? 4-Epulis is a characteristic of which condition? thanks Anu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 Many thanks Lyudmyla & Arthur. From: Lyudmyla Huhley <huhley2006@...>" " < >; "arthur_tadevosyan@..." <arthur_tadevosyan@...> Sent: Saturday, 3 March 2012, 21:34Subject: Re: more questions Here we are guys Arthur already wrote it Sent from on Android From: ARTHUR TADEVOSYAN <arthur_tadevosyan@...>; < >; Subject: Re: more questions Sent: Sat, Mar 3, 2012 9:23:10 PM 12 MONTH IPSILATERAL 0 - 40 NORMAL ,40 - 80 PULPITIS OVER 80 DEAD PULP From: Anu Arora <dr.anuarora@...> Sent: Saturday, 3 March 2012, 20:25Subject: more questions hello need help in these ques... 1-HOW OFTEN SHOULD YOU REVIEW SMOKING STATUS?3,6,12 MONTHS 2-IF YOU STIMULATE THE SALIVARY FLOW IN ONE SIDE OF THE MOUTH-WHERE DOES THE SALIVA APPEAR?BILATERAL, IPSILATERAL,CONTRALATERAL ETC 3- WAT R THE ELECTRIC PULP TEST READINGS?? 4-Epulis is a characteristic of which condition? thanks Anu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2012 Report Share Posted March 3, 2012 TO BE HONEST I ASKED ONE OF THE GUYS WHO PASSED. WE JUST HAVE TO GO WITH THIS ANSWER. I THINK IT MAKE MORE SENSE THEN THE OTHER TWO .THANKS. From: Divi Divi <divi_ore@...> " " < > Sent: Saturday, 3 March 2012, 22:43 Subject: Re: more questions Hello Arthur, can you please provide the reference for answering Ipsilateral , I have been trying to find this out since ages .. Could not find it anywhere !Divi From: ARTHUR TADEVOSYAN <arthur_tadevosyan@...> " " < > Sent: Saturday, 3 March 2012 9:23 PM Subject: Re: more questions 12 MONTHIPSILATERAL0 - 40 NORMAL ,40 - 80 PULPITIS OVER 80 DEAD PULP From: Anu Arora <dr.anuarora@...> Sent: Saturday, 3 March 2012, 20:25 Subject: more questions helloneed help in these ques... 1-HOW OFTEN SHOULD YOU REVIEW SMOKING STATUS?3,6,12 MONTHS2-IF YOU STIMULATE THE SALIVARY FLOW IN ONE SIDE OF THE MOUTH-WHERE DOES THE SALIVA APPEAR?BILATERAL, IPSILATERAL,CONTRALATERAL ETC3- WAT R THE ELECTRIC PULP TEST READINGS?? 4-Epulis is a characteristic of which condition? thanks Anu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2012 Report Share Posted March 4, 2012 THIS INFORMATION I GOT FROM USER MANUAL OF THE PULP TESTER. From: Kanika Kohli <kanika_sahil@...> " " < > Sent: Sunday, 4 March 2012, 10:52 Subject: Re: more questions Hi arthurI dont agree with the pulp test readings as i think if pulp is necrosed,it wont respond so for dead pulp value should be zero. From: ARTHUR TADEVOSYAN <arthur_tadevosyan@...> " " < > Sent: Saturday, 3 March 2012 9:23 PM Subject: Re: more questions 12 MONTHIPSILATERAL0 - 40 NORMAL ,40 - 80 PULPITIS OVER 80 DEAD PULP From: Anu Arora <dr.anuarora@...> Sent: Saturday, 3 March 2012, 20:25 Subject: more questions helloneed help in these ques... 1-HOW OFTEN SHOULD YOU REVIEW SMOKING STATUS?3,6,12 MONTHS2-IF YOU STIMULATE THE SALIVARY FLOW IN ONE SIDE OF THE MOUTH-WHERE DOES THE SALIVA APPEAR?BILATERAL, IPSILATERAL,CONTRALATERAL ETC3- WAT R THE ELECTRIC PULP TEST READINGS?? 4-Epulis is a characteristic of which condition? thanks Anu Quote Link to comment Share on other sites More sharing options...
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