more questions

[Guest guest]

In a message dated 5/8/02 9:50:54 AM Eastern Daylight Time,

k.smith@... writes:

> If labels do not determine placements what things do?

>

Hey Jo Ann,

Well, labels aren't supposed to determine placement, individual needs of

the child are supposed to. Doesn't mean that's how it works though. For

instance, soon as the transition people here in PHilly read Maddie's file and

saw DS AND autism, they wanted to put her in a multiply-handicapped

classroom. NEVER MIND the fact that it would be the worst thing in the

world for her AND for the other kids in that classroom. As we all know

well, they like to pigeon-hole our kids.

<<When going to school to look at your child's records what would be the

things that one would look for>>

Well, in Maddie's file is number one, her Lifebook. Plus TONS of info that

I've copied and given to them numerous times. They also have a one page

paper with the basics on it......meds, how she learns, what she likes.

<< Is there any good way to tell the school that the teacher and aide aren't

doing the right things when working with your child. (Or is it possible that

these people have " plateaued out " ---- couldn't resist saying that!!)>>

LOLOLOL Jo Ann!!! Good one!!!! *I* think your best bet is to go into

them and work with them. Reality is that there probably isn't a whole lot

you can do about removing them anyway (or having your child moved). I find

that I have to have a totally hands on approach no matter where Maddie goes

to school. Down to the nitty gritty. Example: I bought the books for

her library time. Asked them to work it daily into her schedule, so they

do. Then I find out that it wasn't enough!! I have to DEMONSTRATE to

these people HOW to do it!!!! They said she wasn't interested...NO

WONDER!!! They were sitting down and reading the darn book as if they were

narrators!!! WORDS have NO meaning to Maddie!!!!!!! Course she was bored

out of her mind!!!!! I had to SHOW them how I pat BArney, they Maddie pats

Barney, I kiss Barney, then Maddie kisses Barney, I rub the ball in the

picture, then Maddie does....HELLO!!!!!!! Amazing!! This is the major

thing that Greenspan talks about; getting to the child's level is the only

way to reach them. SO many just don't understand how to do that.

<<What do we do on vacation? does not like to sight see, we are very

fortunate to have a TV VCR in our van and she watches videos so she is a good

rider. We want to travel and see Michigan and the rest of the country like

other retired people. Will this only happen through the post card collection

that I am working on??>>

We travel with Maddie. It's very hard, but we do it. Last year, we went

to Disneyworld, the year before Chicago, the year before, Boston, we go to

the Jersey shore every summer. Maddie doesn't like it either, but she's

one of the gang, like it or not. We DO make concessions though. ALWAYS

bring something for her to dangle or entertain her. And many times, my

oldest will order up room service (he likes to do this) while the rest of us

go to restaurants. You might not have been here to hear my story about

being in the restaurant in Epcot, where Miss Maddie chucked a sucked on

butter soggy big hunk of bread clear across the room to smack a poor

unsuspecting woman in the face. Such is life...;-) This year however, we

are thinking about a trip to Italy, and I will probably get someone to stay

here with Maddie. We just want to do things with the other kids sometimes

and Rome is definitely NOT ready for Maddie.....nor her for it!! LOL

Donna

[Guest guest]

Lynne,

I'm glad you asked this---I've done BFL before but I have a similar

question, and like you, a giant hand. my palm is approx. 3.25 wide by

4 " high and my fist is giant. My palm may even be slightly bigger

than my husband's who is 6'2 " --though his fist is bigger than mine.

I need another system " eyeballing " my fist and palm leaves too much

leeway. I think I'd do better with grams or ounces for measureing

carbs. and proteins.

all the best,

[Guest guest]

BFL is a 40/40/20 ratio - that is, 40% of your daily calories comes

from protein, 40% from carbs and 20% from fats. Here is a good

example of how to break it down to meals when your fist/palm is

too 'expanding'(amazing how much you can make your palm hold when

its something you want to eat!lol):

*How Much Should I Be Eating Per Day?*

Here is a brief overview of how to figure out how much you should be

eating per day. To determine your daily caloric intake, take your

current body weight and multiply by:

8-10 if you are mostly interested in losing body fat

12 if you want to gain muscle and lose fat

15 if you want to gain muscle

(Example: 150 x 10 = 1500)

*Note dont assume you only want to lose bodyfat! For every pound of

muscle you gain, you can add 50 more calories a day! Muscle is the

bodys natural fatburning furnace so if your daily calories seem way

low, aim for building some muscle!*

The Body For Life program is a 40/40/20 eating ratio meaining that

40% of your daily calories come from protein, 40% of your daily

caloriescome from carbs and 20 % of your daily calories comesfrom

fat. So as an example:

1500 x .40 = 600 calories from protein

1500 x .40 = 600 caloris from carbs

1500 x .20 = 300 calories from fat

Now remember this:

1 gram of protein = 4 calories, 1 gram of carbs = 4 calories and 1

gram of fat = 9 calories.

Then convert the above figures to grams:

600 divided by 4 calories per gram = 150 grams of protein

600 divided by 4 calories per gram = 150 grams of carbs

300 divided by 9 calories per gram = 33.3 grams of fat

(The above is a daily total)

Now break it down per meal ~ Body forLife requires 6 small meals:

150 grams divided by 6 = 25 grams of protein per meal

150 grams divided by 6 = 25 grams of carbs per meal

33.3 grams dvided by 6 = 5.5 grams of fat per meal

So in this example, you would be eating 25 grams EACH of protein &

carbs per BFL minimeal & 5.5 grams of fat!

And the way to do this? PLAN! Plan out all your meals and you wont

be tempted to stray off course!

<<joni>>

*who likes the numbers layed out for her*

[Guest guest]

wow joanie, thanks for laying it out like this...one question though,

if you're steadily losing weight do you have to keep recalculating to

adjust for weightloss?

will you check these numbers for me?

Right now I'm 166# (5'9 " )and I'd like to lose fat and gain muscle so

I'll multiply by 12.

116x12=1992

1992 x .40 = 796 calories from protein

1992 x .40 = 796 calories from carb

1992 x .20 = 398 calories from fat

796/4 = 199 grams of protein

796/4 = 199 grams of carbs

398/9 = 44 grams of fat

199/6 = 33 grams of protein per meal

199/6 = 33 grams of carb per meal

44/6 = 7 grams of fat per meal

I can certainly live with these numbers, but they seem high to me---I

always read posts and most people seem to be in the low 20's for

their grams of carb and protein....

thanks,

victoria

[Guest guest]

This breakdown is really great! But, it kinda stinks for me. I can

only have 18 gms of protein/carbs per meal and 4 grms fat. I guess

this just gives me that much more motivation to increase my lean

muscle.

One more week until I check my bf again, hopfully, I will be able to

adjust a little.

Brett

> wow joanie, thanks for laying it out like this...one question

though,

> if you're steadily losing weight do you have to keep recalculating

to

> adjust for weightloss?

>

> will you check these numbers for me?

>

> Right now I'm 166# (5'9 " )and I'd like to lose fat and gain muscle

so

> I'll multiply by 12.

>

> 116x12=1992

>

> 1992 x .40 = 796 calories from protein

> 1992 x .40 = 796 calories from carb

> 1992 x .20 = 398 calories from fat

>

> 796/4 = 199 grams of protein

> 796/4 = 199 grams of carbs

> 398/9 = 44 grams of fat

>

> 199/6 = 33 grams of protein per meal

> 199/6 = 33 grams of carb per meal

> 44/6 = 7 grams of fat per meal

>

>

> I can certainly live with these numbers, but they seem high to me--

-I

> always read posts and most people seem to be in the low 20's for

> their grams of carb and protein....

>

>

> thanks,

> victoria

[Guest guest]

>

So two glasses of water, and a sauna without the funnel would use

> 16 liters daily. That would last 42 days nominally, but probably

less

> than a month of real world use.

=========================

Thanks, Saul.

What I'm really trying to get straight in my mind is....is it more

economical to get the concentrator rather than a tank and regulator.

It's not even what's more convenient; just what's the better deal in

the long run. I'm starting to get serious about this and just want

to do all my homework.

Thanks for your patience with me. Remember what is second nature to

you is all new (foreign even) to me.

Gail

[Guest guest]

>

So two glasses of water, and a sauna without the funnel would use

> 16 liters daily. That would last 42 days nominally, but probably

less

> than a month of real world use.

=========================

Thanks, Saul.

What I'm really trying to get straight in my mind is....is it more

economical to get the concentrator rather than a tank and regulator.

It's not even what's more convenient; just what's the better deal in

the long run. I'm starting to get serious about this and just want

to do all my homework.

Thanks for your patience with me. Remember what is second nature to

you is all new (foreign even) to me.

Gail

[Guest guest]

Wanda: here is some of my old knowledge to help you figure it all out. On the

upside calculate the usage of the bottle at 2/3rds. On the downside use 1/2,

your usage will fall inbetween. There are plenty of other factors and here are

the ones I remember from my diving and construction days. Cost of transport to

refill bottle. the value of your time if you want to include it. How big a

bottle can you transport and handle? They come in all sizes from the convenient

one Saul sells to ones that ones as large as a medium size man, and also in

other configurations. Plug in the capital cost of the bigger bottles . Do not

forget that every five years the bottles must be retested for safety, during

that time you will lose the use of the bottle. In many cities Oxygen bottles are

typically rented ie you pay for the fill and are charged rental for the bottle.

So the calculation has lots of variables. Also the pricing may vary a little

between competiors in any metropolitian area say 5,or 7 percent. We would

ignore small price differences because quality of service was so critical in our

business. Also Saul gave it to you in liters in the US they still use cubic

feet. So this looks to me as an interesting cost calculation problem. How far

do you want to take it?

Dwight Munson

Re: More questions

>

So two glasses of water, and a sauna without the funnel would use

> 16 liters daily. That would last 42 days nominally, but probably

less

> than a month of real world use.

=========================

Thanks, Saul.

What I'm really trying to get straight in my mind is....is it more

economical to get the concentrator rather than a tank and regulator.

It's not even what's more convenient; just what's the better deal in

the long run. I'm starting to get serious about this and just want

to do all my homework.

Thanks for your patience with me. Remember what is second nature to

you is all new (foreign even) to me.

Gail

OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

THERE IS NO MEDICAL ADVICE HERE!

This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

oxyplus-unsubscribeegroups

oxyplus-normalonelist - switch your subscription to normal mode.

[Guest guest]

Wanda: here is some of my old knowledge to help you figure it all out. On the

upside calculate the usage of the bottle at 2/3rds. On the downside use 1/2,

your usage will fall inbetween. There are plenty of other factors and here are

the ones I remember from my diving and construction days. Cost of transport to

refill bottle. the value of your time if you want to include it. How big a

bottle can you transport and handle? They come in all sizes from the convenient

one Saul sells to ones that ones as large as a medium size man, and also in

other configurations. Plug in the capital cost of the bigger bottles . Do not

forget that every five years the bottles must be retested for safety, during

that time you will lose the use of the bottle. In many cities Oxygen bottles are

typically rented ie you pay for the fill and are charged rental for the bottle.

So the calculation has lots of variables. Also the pricing may vary a little

between competiors in any metropolitian area say 5,or 7 percent. We would

ignore small price differences because quality of service was so critical in our

business. Also Saul gave it to you in liters in the US they still use cubic

feet. So this looks to me as an interesting cost calculation problem. How far

do you want to take it?

Dwight Munson

Re: More questions

>

So two glasses of water, and a sauna without the funnel would use

> 16 liters daily. That would last 42 days nominally, but probably

less

> than a month of real world use.

=========================

Thanks, Saul.

What I'm really trying to get straight in my mind is....is it more

economical to get the concentrator rather than a tank and regulator.

It's not even what's more convenient; just what's the better deal in

the long run. I'm starting to get serious about this and just want

to do all my homework.

Thanks for your patience with me. Remember what is second nature to

you is all new (foreign even) to me.

Gail

OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

alternative self-help subjects.

THERE IS NO MEDICAL ADVICE HERE!

This list is the 1st Amendment in action. The things you will find here are

for information and research purposes only. We are people sharing information

we believe in. If you act on ideas found here, you do so at your own risk.

Self-help requires intelligence, common sense, and the ability to take

responsibility for your own actions. By joining the list you agree to hold

yourself FULLY responsible FOR yourself. Do not use any ideas found here

without consulting a medical professional, unless you are a researcher or health

care provider.

You can unsubscribe via e-mail by sending A NEW e-mail to the following

address - NOT TO THE OXYPLUS LIST! -

DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the

message! :

oxyplus-unsubscribeegroups

oxyplus-normalonelist - switch your subscription to normal mode.

[Guest guest]

In a message dated 8/16/2004 4:29:58 PM Central Standard Time, dp@... writes:

I have interpreted these as "dizzy spells," or as the diagnostic manual says :

With hypokalemic alkalosis, muscular weakness, polydipsia, polyuria, nocturia, paresthesia, tetany, headaches, and abnormal electrocardiographic features may develop.

But you are right, there is a fugal, or loss-of-time quality. The wakeup is a siezure suspicion item too. Dr Grim?

Hi ,

After rereading my msg. I realized that I made it sound like I was just feeling blah during these "seizures". That's not the case, by any means. The blah feeling was an overall feeling I had most of the day. The seizures were actually the full fledged jerking motions of the body, including the legs and upper torso.

Since going on Spiro, I've been drinking much LESS water, and was wondering if that may have something to do with it.....

bevAnnie

http://www.angelfire.com/tn/shepherdsrest

[Guest guest]

Don't mess around with body-jerking. You are consulting a neurologist?

Original Message:

>From: bev2454@...

>hyperaldosteronism

>Subject: Re: more questions

>Date: Mon, 16 Aug 2004 20:29:05 EDT

>In a message dated 8/16/2004 4:29:58 PM Central Standard Time,

>dp@... writes:

>> I have interpreted these as " dizzy spells, " or as the diagnostic manual

>> says :

>>

>> With hypokalemic alkalosis, muscular weakness, polydipsia, polyuria,

>> nocturia, paresthesia, tetany, headaches, and abnormal electrocardiographic

features

>> may develop.

>>

>> But you are right, there is a fugal, or loss-of-time quality. The wakeup is

>> a siezure suspicion item too. Dr Grim?

>

>Hi ,

>After rereading my msg. I realized that I made it sound like I was just

>feeling blah during these " seizures " . That's not the case, by any means. The

blah

>feeling was an overall feeling I had most of the day. The seizures were

>actually the full fledged jerking motions of the body, including the legs and

upper

>torso.

>

>Since going on Spiro, I've been drinking much LESS water, and was wondering

>if that may have something to do with it.....

>bevAnnie

>http://www.angelfire.com/tn/shepherdsrest

>

>

[Guest guest]

Annie, I am not qualified to ask the questions drinking less water following

spiro therapy suggest...there are many things.

But I can say that I found an even more thorough (and daunting) article about

our condition, and its many related (HPA complex) conditions :

http://www.emedicine.com/med/topic3193.htm

What you have described worries me because of the siezure aspect of

body-jerking, and stroke isn't worth waiting for. There may be Cushing or

other HPA involvements. Your endo and a good neurologist should be cnsulted w/o

delay.

I know how it is to try and figure out what the heck is causing THAT when

something new happens, especially w/a new med. It can drive you up a wall.

They may not know enough, or wish to discuss it (look at this article), but they

know more than we do...

Best to you!

Original Message:

>From: bev2454@...

>hyperaldosteronism

>Subject: Re: more questions

>Date: Mon, 16 Aug 2004 20:29:05 EDT

>In a message dated 8/16/2004 4:29:58 PM Central Standard Time,

>dp@... writes:

>> I have interpreted these as " dizzy spells, " or as the diagnostic manual

>> says :

>>

>> With hypokalemic alkalosis, muscular weakness, polydipsia, polyuria,

>> nocturia, paresthesia, tetany, headaches, and abnormal electrocardiographic

features

>> may develop.

>>

>> But you are right, there is a fugal, or loss-of-time quality. The wakeup is

>> a siezure suspicion item too. Dr Grim?

>

>Hi ,

>After rereading my msg. I realized that I made it sound like I was just

>feeling blah during these " seizures " . That's not the case, by any means. The

blah

>feeling was an overall feeling I had most of the day. The seizures were

>actually the full fledged jerking motions of the body, including the legs and

upper

>torso.

>

>Since going on Spiro, I've been drinking much LESS water, and was wondering

>if that may have something to do with it.....

>bevAnnie

>http://www.angelfire.com/tn/shepherdsrest

>

>

[Guest guest]

If you were aware they

were going on then it was not likely a seizure in the classical sense.

Dot know what to make of them. Maybe muscle spasms from low K?-but

should like you are getting a good antialdo effect if drinking is going

down.

How much nocturia did you have before Inspra?

bev2454@... wrote on 8/16/04, 7:29 PM:

In a message dated 8/16/2004 4:29:58 PM Central

Standard Time, dp@... writes:

I

have interpreted these as "dizzy spells," or as the diagnostic manual

says :

With hypokalemic alkalosis, muscular weakness, polydipsia, polyuria,

nocturia, paresthesia, tetany, headaches, and abnormal

electrocardiographic features may develop.

But you are right, there is a fugal, or loss-of-time quality. The

wakeup is a siezure suspicion item too. Dr Grim?

Hi ,

After rereading my msg. I realized that I made it sound like I was just

feeling blah during these "seizures". That's not the case, by any

means. The blah feeling was an overall feeling I had most of the day.

The seizures were actually the full fledged jerking motions of the

body, including the legs and upper torso.

Since going on Spiro, I've been drinking much LESS water, and was

wondering if that may have something to do with it.....

bevAnnie

http://www.angelfire.com/tn/shepherdsrest

[Guest guest]

Hello

i'm wonderin if the moldy one was the mailed scoby, or the GT? Pouring a bit of

vinegar over the remaining one was good. But if it's been 3 weeks and is still

sweet, there's something's not right. At your temp's, it'd take longer, but

that long???? i don't think so. So now, i'm wonderin if you used enough

starter, and if so, was it pretty strong? Stong is good.....weak isn't acidic

enough to prevent mold. Also, is this a smoking household? I've read

repeatedly that KT cultures subjected to tobacco smoke will mold very easily, as

the smoke is highly alkaline and throws off the balance.

Let's go from here.....

Blessings

mark

more questions

Hi all.

So I've been at this process for about a month now. I started one

batch from GT's brew and one from a scoby I got in the mail. I'm on

round 2 or so of my brewing and I ran into an issue. I have (had) 2

jars growing from the same brew, each with scoby. They seemed to be

taking a really long time to brew (still sweet and not very

acidic). After being gone for a weekend, I noticed that one of the

scobies had developed mold. Yes, actual green fuzzy mold. I had to

toss the whole batch. The other container had no mold but is still

quite sweet. Out of paranoia, I opened that one up and floated a

bit of white vinegar over the scoby to bring down the pH and protect

from mold. So this gallon jar has been going for 3 weeks and is

still sweet. It smells a bit like KT but it's still nowhere near

where I'd want to be drinking it. Should I just let it keep going

as long as there is no mold? Should I add heat, perhaps? trying to

bring up the temp for a bit? (It's usually around 68-70 in that

vicinity.)

Thanks.

[Guest guest]

Hi Mark,

There is no smoking in my house, tobacco or otherwise...

I wish I could tell you if the scoby that went south was from the

mailed batch or the other batch but with life the way it is, I have

gotten them confused. Either way, it was a second generation scoby

so I'm not sure that should matter, really. I'm thinking the

starter was not strong enough, perhaps. It's strange because the

current batch (the one taking a super long time) does have a hint of

a kombucha flavor but the predominant is sweet. The scoby looks

good and has grown in thickness and there is some very mild

carbonation happening in there. The other thing I was thinking is

that maybe the tea I added was too warm and sent the culture into

shock? Is that possible? I'm thinking that maybe I'll add some

heat from a heating pad for a while and see what happens? What do

you think?

> Hello

>

> i'm wonderin if the moldy one was the mailed scoby, or the GT?

Pouring a bit of vinegar over the remaining one was good. But if

it's been 3 weeks and is still sweet, there's something's not

right. At your temp's, it'd take longer, but that long???? i don't

think so. So now, i'm wonderin if you used enough starter, and if

so, was it pretty strong? Stong is good.....weak isn't acidic

enough to prevent mold. Also, is this a smoking household? I've

read repeatedly that KT cultures subjected to tobacco smoke will

mold very easily, as the smoke is highly alkaline and throws off the

balance.

>

> Let's go from here.....

>

> Blessings

> mark

> more questions

>

> Hi all.

> So I've been at this process for about a month now. I started

one batch from GT's brew and one from a scoby I got in the mail.

I'm on round 2 or so of my brewing and I ran into an issue. I have

(had) 2 jars growing from the same brew, each with scoby. They

seemed to be taking a really long time to brew (still sweet and not

very acidic). After being gone for a weekend, I noticed that one of

the scobies had developed mold. Yes, actual green fuzzy mold. I

had to toss the whole batch. The other container had no mold but is

still quite sweet. Out of paranoia, I opened that one up and

floated a bit of white vinegar over the scoby to bring down the pH

and protect from mold. So this gallon jar has been going for 3

weeks and is still sweet. It smells a bit like KT but it's still

nowhere near where I'd want to be drinking it. Should I just let it

keep going as long as there is no mold? Should I add heat,

perhaps? trying to bring up the temp for a bit? (It's usually

around 68-70 in that vicinity.)

Thanks.

[Guest guest]

Hi

Hmmmm.......... well, if you think the tea *might* have been a bit warm, temp

shock could easily be the cause. While the yeasts can take pretty high

temp's...up to 120 degrees, the bacteria which are so important can be killed at

a hundred degrees. And since our body temp is about 98, if the tea feels even

slightly warm, that means the temp is higher than our own, which means 100

degrees easily. This is why *my big thing about kt* is to stress that you've

always gotta wait for the tea solution to actually feel cool to the touch. I

feel this little but *very* important point is generally overlooked, which is

why i always stress it.

but you say the scoby has grown and seems fine. I'f it's not temp related

damage, try getting it a bit warmer. Not above 80 tho, at-least i'd not

recomment it.

by chance you wash the jars or what-ever w/ antibacterial soap? even a minute

reside could spell disaster. ..........i'm desparate here trying to figure out

what could be not exactly right..... it's not in sunlight?........was the last

batch you decanted from pretty ripe?

i wanna figure this out!

Blessings, Metta

mark

more questions

>

> Hi all.

> So I've been at this process for about a month now. I started

one batch from GT's brew and one from a scoby I got in the mail.

I'm on round 2 or so of my brewing and I ran into an issue. I have

(had) 2 jars growing from the same brew, each with scoby. They

seemed to be taking a really long time to brew (still sweet and not

very acidic). After being gone for a weekend, I noticed that one of

the scobies had developed mold. Yes, actual green fuzzy mold. I

had to toss the whole batch. The other container had no mold but is

still quite sweet. Out of paranoia, I opened that one up and

floated a bit of white vinegar over the scoby to bring down the pH

and protect from mold. So this gallon jar has been going for 3

weeks and is still sweet. It smells a bit like KT but it's still

nowhere near where I'd want to be drinking it. Should I just let it

keep going as long as there is no mold? Should I add heat,

perhaps? trying to bring up the temp for a bit? (It's usually

around 68-70 in that vicinity.)

Thanks.

[Guest guest]

Hi again

thought about it more.....are you sure you added the right amount of sugar? Too

much would keep it sweet longer than nornal. Now don't tell anyone, but once,

many moons ago, i forgot to add the sugar to a batch and wondered why that one

made no baby and didn't taste right!

what-ever it is someone here'll figure this out....i know i'm trying ;-)

Metta

mark

[Guest guest]

Hey ,

It's your scoby's daddy here

Here's what I gather>

1. The temp is sometimes below 70F. Temps below 70 will still brew,

but at a crawling pace.

2. Your first batch possibly did not get sour enough to provide an

adequate acidity by using 1 cup in the current batch.

For this batch that is brewing right now, I would allow it to sour

maybe a bit more than you might like, as much as you can stand. Then

use a cup of this in the next batch. This should keep the culture on

track, and eliminate the chance of mold.

When bottling, I often pour the last bit of kombucha into a small jar

that stays at room temp, this gets really sour and makes great starter

for another batch or vinegar.

It sounds to me like a warmer place would definitely help things along.

Keep us posted &

Take Care,

Beau

On Sun, 28 Nov 2004 21:31:23 -0500, Mark-n-Suze

<limelite-1@...> wrote:

>

> Hi again

>

> thought about it more.....are you sure you added the right amount of sugar?

Too much would keep it sweet longer than nornal. Now don't tell anyone, but

once, many moons ago, i forgot to add the sugar to a batch and wondered why that

one made no baby and didn't taste right!

>

> what-ever it is someone here'll figure this out....i know i'm trying ;-)

>

> Metta

> mark

>

>

>

>

>

[Guest guest]

For me .

bringing up the temp, always speeds it up.

pam

>

> Hi all.

> So I've been at this process for about a month now. I started one

> batch from GT's brew and one from a scoby I got in the mail. I'm

on

> round 2 or so of my brewing and I ran into an issue. I have (had)

2

> jars growing from the same brew, each with scoby. They seemed to

be

> taking a really long time to brew (still sweet and not very

> acidic). After being gone for a weekend, I noticed that one of

the

> scobies had developed mold. Yes, actual green fuzzy mold. I had

to

> toss the whole batch. The other container had no mold but is

still

> quite sweet. Out of paranoia, I opened that one up and floated a

> bit of white vinegar over the scoby to bring down the pH and

protect

> from mold. So this gallon jar has been going for 3 weeks and is

> still sweet. It smells a bit like KT but it's still nowhere near

> where I'd want to be drinking it. Should I just let it keep going

> as long as there is no mold? Should I add heat, perhaps? trying

to

> bring up the temp for a bit? (It's usually around 68-70 in that

> vicinity.)

>

> Thanks.

>

>

[Guest guest]

Mark,

Interesting question. I suppose it's possible that I added too much

sugar. I applied some heat yesterday so I want to give that a day or

so to see if I notice any significant change. Absent any real change

though, what do you think I should try next? I was thinking about

this possibility and I figured that I could split the batch and the

scoby into 2 separate batches, and to each I could add some

unsweetened tea to balance out the sweetness. What do you think?

> Hi again

>

> thought about it more.....are you sure you added the right amount

of sugar? Too much would keep it sweet longer than nornal. Now

don't tell anyone, but once, many moons ago, i forgot to add the

sugar to a batch and wondered why that one made no baby and didn't

taste right!

>

> what-ever it is someone here'll figure this out....i know i'm

trying ;-)

>

> Metta

> mark

[Guest guest]

Sara,

You asked:

In the same notes, it indicates avoid training

right pre-frontal cortex (Fp2, F4, F8) except in

mirror protocols. Does that mean if you train F4, you

need to train F3 simultaneously?

Because of the emotional regulation issues and the darker emotional character of

the right prefrontal area, I do usually recommend that trainers not fool around

there until they are pretty comfortable with what they are doing. Of course

training between two frontal sites is training the difference between them, so

it may be safer. The Balance or alpha asymmetry protocols, which also train the

difference between the sites, are also fairly safe.

You asked:

What is considered " good " alpha in the back? If

there is a front-to-back reversal with higher beta in

the parietals in comparsion to the frontals, what

would be considered enough alpha in the back before

training beta down?

Remember that I judge alpha adequacy in relation to theta. If alpha/theta ratios

in the parietals are around 1.5 or higher with eyes closed, that's pretty good

alpha--enough to support the functions back there if you choose to try reducing

beta. Also training down beta and up alpha if the ratio is a bit lower than 1.5

may work okay.

4. If I train alpha up in the parietals, will that

bring beta down in the parietals?

Sometimes it will, since alpha and beta are usually antagonists, but in very

slow EEG's, with lots of theta and delta, it's possible to see both rise at the

same time, so it's not a guarantee.

Pete

[Guest guest]

Alpha is known in neurological terms as DPR (dominant posterior rhythm), so

looking at O1 or O2 or P3, Pz or P4 makes most sense. I would be most

interested in eyes closed measures. I think your estimates of the SMR range are

right on. Of course you may need to adjust them a little to get your best

response, but you should be pretty close to the range.

How did you get a coherence reading at Oz?! The TLC Assess doesn't measure it

there, because we'd be comparing with Fz. In any case, getting the frontals

going and the SMR up would be my highest priorities. I'd be more inclined to

train alpha up/theta down, or the alpha/theta ratio or even a windowed squash

with alpha in the window in the parietals before I worried too much about the

coherence.

Pete

>

> From: Jane Gurin <doglover80590@...>

> Date: 2005/02/23 Wed PM 04:53:14 EST

>

> Subject: More questions

>

> --When you're dealing with a child and trying to

adjust frequencies, which peak alpha numbers do you

rely on? Peak alpha (eyes closed)ranges from 8.42 at

F3, to 8.84 at T4, to 8.55 at P4. So, is it safe to

set SMR at 10-13 or 9.5-12? And then beta at 13-16?

--Alpha coherences are low: 30% EC at Oz and in the

30s at P3 and P4 and even lower at other sites. Would

you train up alpha coherence in a child (aged 7)? If

so, would you do that before the central and frontal

windowed squashes? If I do alpha coherence training,

do I set alpha at 6.5-10.5?

Van Deusen

http://www.brain-trainer.com

16246 SW 92nd Ave, Miami, FL 33157

305/251-0337 or (cellular) 305/321-1595

[Guest guest]

Valarie -

If it puts you at ease - Charlie has no side effects or reactions what so ever.

Kate did get tummy aches on one brand, but does great now that she has switched,

no headache, no side effects, nothin'. also had horrible reactions to

one brand - IV and SC, but was switched brands and now runs at max rate with NO

side effects.

Dayna

>

> From: " osdbmom " <osdbmom@...>

> Date: 2006/03/19 Sun PM 10:36:53 EST

>

> Subject: more questions

>

>

[Guest guest]

osdbmom wrote:

> ok, so Dale, I understand your percentages you posted the other

> day.Regarding IVIG reactions, I mean. But then almost everyone I read

> on this board's child has flu like reactions, or nausea, or headaches,

> or fatigue for a few days afterwards. So, do you mean the difference

> between a REACTION(like, allergic or dystonic) and a side effect? Is

> that what I am reading about with the other kids, just a side effect,

> vs a reaction? Please just clear me up here, so I know what I am

> looking at.

Everyone getting IVIG will have a headache if the product is run in too

fast. The body has to adjust to this foreign protein being introduced.

Too many doctors and infusion centers rush the first IVIG. It should

be done very, very, slowly. It should take forever for a first dose.

It is HARD on the body. So, you'll see more people with reactions after

the first dose. They generally find that the 2nd infusion is better and

so forth as the body becomes adjusted to this product.

There are some people on this list who because of the way the hospital

is set up -- get a different product everytime they infuse. They

generally see more side effects than others. It's hard on a body to do

that. It's important to get on a product and stick to it.

Katy went home the first time and was fine -- about 24 hours later she

got a headache that was a killer because they had run it in too fast.

Then about 6 weeks down the road when she was still having post

headaches, we changed brands and after that she had what I would say is

NO REACTION whatsoever. The only exceptions were if she were already

sick, then she might feel a tad bit sicker (flu like symptoms) after

IVIG because it started working -- and that's a good sign -- not a bad

one! But that was only when she was sick which was considerably less

after she started IVIG.

The statitics report that 55% of all IVIG users have never had a single

side effect. Not the first time -- not ever. Period. I assume that

that means that they feel the same before and after with no change. I

know a lot of adult patients who look forward to IVIG day because they

order their favorite movie, their favorite ice cream and make it a

" queen for the day " time.

I would like to assure you that I was one of the 44% who reported side

effects -- that's the way the survey was designed, because she had had

initial side effects and occasional side effects, I felt I had to report

them even though they were not usual or recurring. With Katy many,

many, many IV's she was rushing the nurse to get finished so that she

could hurry up and not be late for a theatre rehearsal or dance class.

Now, I repeat, the first few times are the worst. If there's going to

be a reaction it usually will be the first one. That's because the body

is adjusting to foreign protein being admitted to the body. Then the

second one is easier with less side effects if any, and the third one is

easier, etc. If after 6 months you are still having some side effects,

first, I would be very surprised, then I would recommend your changing

products to see if that will relieve whatever side effects you are having.

And yes, there are rare cases where the child just cannot tolerate IVIG.

Their bodies, for some reason, just react every single time. There's

some patients on this list who are still having major complications with

IVIG. But it is very, very rare. Studies have shown that even for

those patients, SCIG is often the answer -- that way the blood stream is

not overly bombarded with so much foreign protein all at the same time.

By it soaking it gently and slowly it becomes more tolerable.

There will be a higher number of problems on this list than anywhere in

the population of PID because people come here to find solutions.

People who don't have problems don't look for solutions. Right????

Now, think it through: you could be exchanging sinus infections and

constant asthma problems for a couple of hours of feeling flu-like?

Would it be worth it? I can't promise you that your kids will be like

the 55% who reported absolutely never having side effects. But, I can

assure you that if they have side effects early on -- they can usually

be alieved by adjustments. I believe Macy needed some extra fluid

dilution with hers, Katy needed to change products at the beginning

because of continuing headaches, others have introduced pre-medications,

a little tinkering here, a little tinkering there. Each time it gets

better as their bodies adjust to the new stuff in their systems.

But I assure you of this: of the 1,186 patients who were using IVIG at

the time of this survey -- no one reported any problems other than what

I listed for you before. Nothing life-threatening, nothing permanent.

And 652 reported that they had 0 side effects, ever.

That's all I know to tell you -- they will probably have no side effects

-- but if they do, they should be treatable and preventable with some

adjustments.

Could something go terribly, unforseeably wrong -- of course -- you

could have a car wreck on the way to IVIG! I can't promise you that it

won't, but I can assure you that I know of no person dying from IVIG or

suffering any permanent damage since they began purifying IVIG as it is

today. And there's a greater chance (55%) that they will walk away

without any reaction, than there is that there will be trouble (44%).

On the other hand, there's a much greater risk that these kids will

experince permanent life-threatening infections without IVIG or like

Katy -- just not have " a life " because of chronic illness, fatigue and

body aches.

I hope some of that helps,

In His service,

Dale

[Guest guest]

osdbmom wrote:

> ok, so Dale, I understand your percentages you posted the other

> day.Regarding IVIG reactions, I mean. But then almost everyone I read

> on this board's child has flu like reactions, or nausea, or headaches,

> or fatigue for a few days afterwards. So, do you mean the difference

> between a REACTION(like, allergic or dystonic) and a side effect? Is

> that what I am reading about with the other kids, just a side effect,

> vs a reaction? Please just clear me up here, so I know what I am

> looking at.

Everyone getting IVIG will have a headache if the product is run in too

fast. The body has to adjust to this foreign protein being introduced.

Too many doctors and infusion centers rush the first IVIG. It should

be done very, very, slowly. It should take forever for a first dose.

It is HARD on the body. So, you'll see more people with reactions after

the first dose. They generally find that the 2nd infusion is better and

so forth as the body becomes adjusted to this product.

There are some people on this list who because of the way the hospital

is set up -- get a different product everytime they infuse. They

generally see more side effects than others. It's hard on a body to do

that. It's important to get on a product and stick to it.

Katy went home the first time and was fine -- about 24 hours later she

got a headache that was a killer because they had run it in too fast.

Then about 6 weeks down the road when she was still having post

headaches, we changed brands and after that she had what I would say is

NO REACTION whatsoever. The only exceptions were if she were already

sick, then she might feel a tad bit sicker (flu like symptoms) after

IVIG because it started working -- and that's a good sign -- not a bad

one! But that was only when she was sick which was considerably less

after she started IVIG.

The statitics report that 55% of all IVIG users have never had a single

side effect. Not the first time -- not ever. Period. I assume that

that means that they feel the same before and after with no change. I

know a lot of adult patients who look forward to IVIG day because they

order their favorite movie, their favorite ice cream and make it a

" queen for the day " time.

I would like to assure you that I was one of the 44% who reported side

effects -- that's the way the survey was designed, because she had had

initial side effects and occasional side effects, I felt I had to report

them even though they were not usual or recurring. With Katy many,

many, many IV's she was rushing the nurse to get finished so that she

could hurry up and not be late for a theatre rehearsal or dance class.

Now, I repeat, the first few times are the worst. If there's going to

be a reaction it usually will be the first one. That's because the body

is adjusting to foreign protein being admitted to the body. Then the

second one is easier with less side effects if any, and the third one is

easier, etc. If after 6 months you are still having some side effects,

first, I would be very surprised, then I would recommend your changing

products to see if that will relieve whatever side effects you are having.

And yes, there are rare cases where the child just cannot tolerate IVIG.

Their bodies, for some reason, just react every single time. There's

some patients on this list who are still having major complications with

IVIG. But it is very, very rare. Studies have shown that even for

those patients, SCIG is often the answer -- that way the blood stream is

not overly bombarded with so much foreign protein all at the same time.

By it soaking it gently and slowly it becomes more tolerable.

There will be a higher number of problems on this list than anywhere in

the population of PID because people come here to find solutions.

People who don't have problems don't look for solutions. Right????

Now, think it through: you could be exchanging sinus infections and

constant asthma problems for a couple of hours of feeling flu-like?

Would it be worth it? I can't promise you that your kids will be like

the 55% who reported absolutely never having side effects. But, I can

assure you that if they have side effects early on -- they can usually

be alieved by adjustments. I believe Macy needed some extra fluid

dilution with hers, Katy needed to change products at the beginning

because of continuing headaches, others have introduced pre-medications,

a little tinkering here, a little tinkering there. Each time it gets

better as their bodies adjust to the new stuff in their systems.

But I assure you of this: of the 1,186 patients who were using IVIG at

the time of this survey -- no one reported any problems other than what

I listed for you before. Nothing life-threatening, nothing permanent.

And 652 reported that they had 0 side effects, ever.

That's all I know to tell you -- they will probably have no side effects

-- but if they do, they should be treatable and preventable with some

adjustments.

Could something go terribly, unforseeably wrong -- of course -- you

could have a car wreck on the way to IVIG! I can't promise you that it

won't, but I can assure you that I know of no person dying from IVIG or

suffering any permanent damage since they began purifying IVIG as it is

today. And there's a greater chance (55%) that they will walk away

without any reaction, than there is that there will be trouble (44%).

On the other hand, there's a much greater risk that these kids will

experince permanent life-threatening infections without IVIG or like

Katy -- just not have " a life " because of chronic illness, fatigue and

body aches.

I hope some of that helps,

In His service,

Dale