Re: Got the results back from Entomologist

[Guest guest]

Interesting... you're not alone. I went to an entomologist too and I

brought him samples of what was attacking me.

When I first turned in the stuff, the guy who received it said with

certainty that it was going to come back as "debris" because he had

lots of people bring debris to them. This was in New York City, so

it was interesting to find out there were so many people bringing

debris to an entomologist.

Well, surprisingly, it didn't come back as just debris. The

entomologist called it "an unidentified organism". But along with

that organism he also found fibers and debris. I remember that

during the beginning stages of the disease, I had some weird

larvae-like stuff, and that could definitely not be debris, that's

why it came back as unidentified.

Honestly, I think the real organism that we're battling is an

opportunistic entity that can pick up fibers OR mold to attack us

(this is just my personal observation after almost 2 years with the

disease.) So if you're in a wet environment, it's using the mold in

your environment to attack you. When I left my mold-infested

apartment I got rid of the mold spores but I was left with the

fibers. It's the same thing, exhibits the exact same behavior, but

it is in the form of fibers now. I also saw glitter, by the way,

this is very interesting. I think that came from material I owned. I

used to have a makeup box that was silver colored. I noticed how

gradually began fading and the pieces of glitter started to appear

everywhere, same thing happened with other materials, such as ink. I

had things marked with black markers and it suddenly began fading in

some areas and appearing in others.

So I'm afraid you do have Morgellons. This sounds like Morgellons to

me. (Not an expert opinion, though

:-) )

All the best,

Jess

On 4/27/2012 9:41 PM, birdluvr4evr wrote:

"One trap had shiny particles (glitter?) and some fabric

fibers. The other trap had 2 masses of fabric fibers,

along with lots of scattered individual fibers. Neither

trap had any insects, mites or parasites."

I guess I'm imagining the crawling all over my body. And

the feathery feelings as if things are coming out of my

pores. And when my scalp is alive with crawling things and

I put Lice Shampoo on they go absolutely wild, so much so

I can hardly wait the 10 minutes or so till they die. How

in heaven's name could I imagine it?

My primary care physician referred me to an allergist and

the referral came today. Effective 5/1 I will have a new

primary care doc. I hope he will be better than she was.

Because of changing docs I'll need to get a new referral

from the new doc and I can't get in to see him till 5/23.

So much red tape! I decided if the bugs are tormenting me

at 2 or 3 am I'll go to the emergency room. It will be $50

a shot vs $0 for my primary. But when you're being

tormented money is no object and time is of the essence.

I'll tell you what!! I will never use Permethrin Cream

again. It was good the 14 hrs I had it on but OHMYGOSH!!

The next 2 days they attacked me with a vengance.

Sharon

[Guest guest]

Sometimes I think I had an uneasy accord with the mites. If I did not viciously

attack them, they would do the same. I would remove or get rid of their hiding

places, I would be swarmed for a couple of days. If I tried to put something on

my body to deter them, as soon as it wore off, they attacked relentlessly.

Someone told me once that because they are spiders, they will act with

vengeance. So I always dealt with everything with as little intimidation

tactics as possible. Sounds crazy right? But sometimes it seemed to work.

Unfortunately, not always.

But just because you could not show them an example, does not mean you have

nothing. You are obviously being grievously harassed.

My traps often showed fluorescent strings. I wonder if it was the dish soap. I

just don't know.

Today while examining a speck I found on my body, I determined it was dirt or

something, but I remember it looked kind of weird. Well, I looked at a picture

of a mite in color and it was exactly like what I had found. Wish I had kept

the sample.

Although I have no doubt that something is biting me, even here at the hotel, I

also do not know if it is one, two or three things involved. Maybe mites,

fungus, bacteria all working together. But it is something. Don't give up on

yourself or doubt yourself. I am so sorry to hear about your insurance issues.

I have many of those same problems.

Hang in there, Terry

>

> " One trap had shiny particles (glitter?) and some fabric fibers. The other

trap had 2 masses of fabric fibers, along with lots of scattered individual

fibers. Neither trap had any insects, mites or parasites. "

>

> I guess I'm imagining the crawling all over my body. And the feathery feelings

as if things are coming out of my pores. And when my scalp is alive with

crawling things and I put Lice Shampoo on they go absolutely wild, so much so I

can hardly wait the 10 minutes or so till they die. How in heaven's name could I

imagine it?

>

> My primary care physician referred me to an allergist and the referral came

today. Effective 5/1 I will have a new primary care doc. I hope he will be

better than she was. Because of changing docs I'll need to get a new referral

from the new doc and I can't get in to see him till 5/23. So much red tape! I

decided if the bugs are tormenting me at 2 or 3 am I'll go to the emergency

room. It will be $50 a shot vs $0 for my primary. But when you're being

tormented money is no object and time is of the essence.

>

> I'll tell you what!! I will never use Permethrin Cream again. It was good the

14 hrs I had it on but OHMYGOSH!! The next 2 days they attacked me with a

vengance.

>

> Sharon

>

[Guest guest]

Sharon could it be lyme

Bartonella fungus etc

N maybe no bugs

Maybe sorehead reaction to somethin n lice shampoo?

I understand where ur at

My dermatologist didnt see bugs but. Still think probably comin out my skin

Black things

Though maybe its fungus

N I think I do have bartonela

Its stressful and confusing

Take care

One day be thing of past for us all

X

------------------------------

On Fri, Apr 27, 2012 19:41 PDT birdluvr4evr wrote:

> " One trap had shiny particles (glitter?) and some fabric fibers. The other trap

had 2 masses of fabric fibers, along with lots of scattered individual fibers.

Neither trap had any insects, mites or parasites. "

>

>I guess I'm imagining the crawling all over my body. And the feathery feelings

as if things are coming out of my pores. And when my scalp is alive with

crawling things and I put Lice Shampoo on they go absolutely wild, so much so I

can hardly wait the 10 minutes or so till they die. How in heaven's name could I

imagine it?

>

>My primary care physician referred me to an allergist and the referral came

today. Effective 5/1 I will have a new primary care doc. I hope he will be

better than she was. Because of changing docs I'll need to get a new referral

from the new doc and I can't get in to see him till 5/23. So much red tape! I

decided if the bugs are tormenting me at 2 or 3 am I'll go to the emergency

room. It will be $50 a shot vs $0 for my primary. But when you're being

tormented money is no object and time is of the essence.

>

>I'll tell you what!! I will never use Permethrin Cream again. It was good the

14 hrs I had it on but OHMYGOSH!! The next 2 days they attacked me with a

vengance.

>

>Sharon

>

[Guest guest]

Wow Terry, I can so relate to this. I also got attacked by the mites

in response to MY initial attacks. They didn't attack me first, I

found them in a piece of furniture and I thought they were just 2 or

3, so I decided to wipe them all out. After that, out of nowhere

there were hundreds and all over me. I remember putting garlic in my

scalp and that really pissed them off and didn't deter them, they

just got angrier and angrier and I would spend literally HOURS

fighting with them, they never gave up. Then when I would spray my

floors with vinegar and other substances that killed them, I felt

prickles all over me in response, I could literally FEEL their

anger. Yes, they do act with vengeance. These things are horrendous.

On 4/28/2012 2:58 AM, mitesbegone wrote:

Sometimes I think I had an uneasy accord with the mites.

If I did not viciously attack them, they would do the

same. I would remove or get rid of their hiding places, I

would be swarmed for a couple of days. If I tried to put

something on my body to deter them, as soon as it wore

off, they attacked relentlessly. Someone told me once that

because they are spiders, they will act with vengeance. So

I always dealt with everything with as little intimidation

tactics as possible. Sounds crazy right? But sometimes it

seemed to work. Unfortunately, not always.

But just because you could not show them an example, does

not mean you have nothing. You are obviously being

grievously harassed.

My traps often showed fluorescent strings. I wonder if it

was the dish soap. I just don't know.

Today while examining a speck I found on my body, I

determined it was dirt or something, but I remember it

looked kind of weird. Well, I looked at a picture of a

mite in color and it was exactly like what I had found.

Wish I had kept the sample.

Although I have no doubt that something is biting me, even

here at the hotel, I also do not know if it is one, two or

three things involved. Maybe mites, fungus, bacteria all

working together. But it is something. Don't give up on

yourself or doubt yourself. I am so sorry to hear about

your insurance issues. I have many of those same problems.

Hang in there, Terry

>

> "One trap had shiny particles (glitter?) and some

fabric fibers. The other trap had 2 masses of fabric

fibers, along with lots of scattered individual fibers.

Neither trap had any insects, mites or parasites."

>

> I guess I'm imagining the crawling all over my body.

And the feathery feelings as if things are coming out of

my pores. And when my scalp is alive with crawling things

and I put Lice Shampoo on they go absolutely wild, so much

so I can hardly wait the 10 minutes or so till they die.

How in heaven's name could I imagine it?

>

> My primary care physician referred me to an allergist

and the referral came today. Effective 5/1 I will have a

new primary care doc. I hope he will be better than she

was. Because of changing docs I'll need to get a new

referral from the new doc and I can't get in to see him

till 5/23. So much red tape! I decided if the bugs are

tormenting me at 2 or 3 am I'll go to the emergency room.

It will be $50 a shot vs $0 for my primary. But when

you're being tormented money is no object and time is of

the essence.

>

> I'll tell you what!! I will never use Permethrin

Cream again. It was good the 14 hrs I had it on but

OHMYGOSH!! The next 2 days they attacked me with a

vengance.

>

> Sharon

>

[Guest guest]

But even if it is Morgellons, it is treatable and curable, right?

Terry

> >

> >

> > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along with lots of scattered

> > individual fibers. Neither trap had any insects, mites or parasites. "

> >

> > I guess I'm imagining the crawling all over my body. And the feathery

> > feelings as if things are coming out of my pores. And when my scalp is

> > alive with crawling things and I put Lice Shampoo on they go

> > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > till they die. How in heaven's name could I imagine it?

> >

> > My primary care physician referred me to an allergist and the referral

> > came today. Effective 5/1 I will have a new primary care doc. I hope

> > he will be better than she was. Because of changing docs I'll need to

> > get a new referral from the new doc and I can't get in to see him till

> > 5/23. So much red tape! I decided if the bugs are tormenting me at 2

> > or 3 am I'll go to the emergency room. It will be $50 a shot vs $0 for

> > my primary. But when you're being tormented money is no object and

> > time is of the essence.

> >

> > I'll tell you what!! I will never use Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > attacked me with a vengance.

> >

> > Sharon

> >

> >

>

[Guest guest]

One day someone, likely with Phd after their name, is going to have an

astounding discovery about these things and all of us here will just nod our

heads, because we already knew it.

> > >

> > > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along with lots of scattered

> > individual fibers. Neither trap had any insects, mites or parasites. "

> > >

> > > I guess I'm imagining the crawling all over my body. And the

> > feathery feelings as if things are coming out of my pores. And when my

> > scalp is alive with crawling things and I put Lice Shampoo on they go

> > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > till they die. How in heaven's name could I imagine it?

> > >

> > > My primary care physician referred me to an allergist and the

> > referral came today. Effective 5/1 I will have a new primary care doc.

> > I hope he will be better than she was. Because of changing docs I'll

> > need to get a new referral from the new doc and I can't get in to see

> > him till 5/23. So much red tape! I decided if the bugs are tormenting

> > me at 2 or 3 am I'll go to the emergency room. It will be $50 a shot

> > vs $0 for my primary. But when you're being tormented money is no

> > object and time is of the essence.

> > >

> > > I'll tell you what!! I will never use Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > attacked me with a vengance.

> > >

> > > Sharon

> > >

> >

> >

>

[Guest guest]

I think it is possible that you have Bart along with Lyme. Need to be looked at

by a professional who treats Lyme. The co-infections can be identified as well.

As to treatment and therapy, well that is another story. But I have faith that

with good health, it will bring hope.

Hang in there, Terry

>

> > " One trap had shiny particles (glitter?) and some fabric fibers. The other

trap had 2 masses of fabric fibers, along with lots of scattered individual

fibers. Neither trap had any insects, mites or parasites. "

> >

> >I guess I'm imagining the crawling all over my body. And the feathery

feelings as if things are coming out of my pores. And when my scalp is alive

with crawling things and I put Lice Shampoo on they go absolutely wild, so much

so I can hardly wait the 10 minutes or so till they die. How in heaven's name

could I imagine it?

> >

> >My primary care physician referred me to an allergist and the referral came

today. Effective 5/1 I will have a new primary care doc. I hope he will be

better than she was. Because of changing docs I'll need to get a new referral

from the new doc and I can't get in to see him till 5/23. So much red tape! I

decided if the bugs are tormenting me at 2 or 3 am I'll go to the emergency

room. It will be $50 a shot vs $0 for my primary. But when you're being

tormented money is no object and time is of the essence.

> >

> >I'll tell you what!! I will never use Permethrin Cream again. It was good the

14 hrs I had it on but OHMYGOSH!! The next 2 days they attacked me with a

vengance.

> >

> >Sharon

> >

>

[Guest guest]

What entomologist did you use in NYC? The ones I used didn't believe I could be

infested by mites. I was able to sort of coexist withnmy mites for a couple of

years before I stupidly bought my son in law's old computer and suddenly I was

gettingbalot more bites and this time although I sprayed they attacked me back

before they kind of left me alone. I still think they're cheyletiella mites from

my daughter's cats but have never been able to Id. Also therevwas mold in my old

apartment but when I moved with next to nothing I brought them with me anyway. I

would like to use heat but I can't in this new building and I wouldn't use

propane in an apartment anyway. Exterminators don't know how to heat for mites,

the temp has to be around 170 much higher than for bedbugs and you may have to

do it a number ofbtimes.

> > >

> > > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along with lots of scattered

> > individual fibers. Neither trap had any insects, mites or parasites. "

> > >

> > > I guess I'm imagining the crawling all over my body. And the

> > feathery feelings as if things are coming out of my pores. And when my

> > scalp is alive with crawling things and I put Lice Shampoo on they go

> > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > till they die. How in heaven's name could I imagine it?

> > >

> > > My primary care physician referred me to an allergist and the

> > referral came today. Effective 5/1 I will have a new primary care doc.

> > I hope he will be better than she was. Because of changing docs I'll

> > need to get a new referral from the new doc and I can't get in to see

> > him till 5/23. So much red tape! I decided if the bugs are tormenting

> > me at 2 or 3 am I'll go to the emergency room. It will be $50 a shot

> > vs $0 for my primary. But when you're being tormented money is no

> > object and time is of the essence.

> > >

> > > I'll tell you what!! I will never use Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > attacked me with a vengance.

> > >

> > > Sharon

> > >

> >

> >

>

[Guest guest]

I actually went to an exterminating company close to where I lived.

They offered a free bug identification by the entomologist Lou

Sorkin (who works at the Museum of Natural History). He's been

featured in the NY Times talking about bed bug infestations in NY.

The exterminating company was Broadway Exterminating and I believe

it was on Amsterdam and 98-99th st. But I wasn't happy with his ID,

he said that my "mites" were "baby spiders" even though they were

all about the same size, so they could not be babies. And I also

doubt they were spiders, they didn't have any webs, they basically

burrowed in the wood and they lived in groups of several dozens.

They didn't exhibit normal spider behavior, but who knows. I will

probably never know what they were. He ID'ed some of the Morgellons

organisms as "unidentified organism" and also my fibers as "debris."

Jess

On 4/28/2012 10:06 AM, miteymaid wrote:

What entomologist did you use in NYC? The ones I used

didn't believe I could be infested by mites. I was able to

sort of coexist withnmy mites for a couple of years before

I stupidly bought my son in law's old computer and

suddenly I was gettingbalot more bites and this time

although I sprayed they attacked me back before they kind

of left me alone. I still think they're cheyletiella mites

from my daughter's cats but have never been able to Id.

Also therevwas mold in my old apartment but when I moved

with next to nothing I brought them with me anyway. I

would like to use heat but I can't in this new building

and I wouldn't use propane in an apartment anyway.

Exterminators don't know how to heat for mites, the temp

has to be around 170 much higher than for bedbugs and you

may have to do it a number ofbtimes.

> > >

> > > "One trap had shiny particles (glitter?)

and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along

with lots of scattered

> > individual fibers. Neither trap had any insects,

mites or parasites."

> > >

> > > I guess I'm imagining the crawling all over

my body. And the

> > feathery feelings as if things are coming out of

my pores. And when my

> > scalp is alive with crawling things and I put

Lice Shampoo on they go

> > absolutely wild, so much so I can hardly wait

the 10 minutes or so

> > till they die. How in heaven's name could I

imagine it?

> > >

> > > My primary care physician referred me to an

allergist and the

> > referral came today. Effective 5/1 I will have a

new primary care doc.

> > I hope he will be better than she was. Because

of changing docs I'll

> > need to get a new referral from the new doc and

I can't get in to see

> > him till 5/23. So much red tape! I decided if

the bugs are tormenting

> > me at 2 or 3 am I'll go to the emergency room.

It will be $50 a shot

> > vs $0 for my primary. But when you're being

tormented money is no

> > object and time is of the essence.

> > >

> > > I'll tell you what!! I will never use

Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The

next 2 days they

> > attacked me with a vengance.

> > >

> > > Sharon

> > >

> >

> >

>

[Guest guest]

I also had heard of Lou Sorkin because of his interest in bedbugs and showed him

some sticky tape but he didn't see anything. He didn't believe mites could cross

over either although he said sometimes he would feel a prick and examine himself

and see nothing. I had been hoping if he was so involved with bedbugs he'd do

the same for this problem, but wasn't to be. I'm in Brooklyn but went up to

Broadway Exterminating. Only the owner knew anything but he was too busy to be

of much help, recommended miticides they carried but just spraying perimeters

was a waste of time. That was several years ago. I bought my own pestides and

hired my own exterminator but you can't put poison everywhere and often which is

why 's use of Lysol might be the way to go although spraying any of these

chemicals a lot is no fun. I would really like to know how many people in and

around NYC are afflicted so maybe the city or someone would attack this like

they're doing with the bedbugs, there's a financial incentive there.

> > > >

> > > > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > > other trap had 2 masses of fabric fibers, along with lots of scattered

> > > individual fibers. Neither trap had any insects, mites or parasites. "

> > > >

> > > > I guess I'm imagining the crawling all over my body. And the

> > > feathery feelings as if things are coming out of my pores. And when my

> > > scalp is alive with crawling things and I put Lice Shampoo on they go

> > > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > > till they die. How in heaven's name could I imagine it?

> > > >

> > > > My primary care physician referred me to an allergist and the

> > > referral came today. Effective 5/1 I will have a new primary care doc.

> > > I hope he will be better than she was. Because of changing docs I'll

> > > need to get a new referral from the new doc and I can't get in to see

> > > him till 5/23. So much red tape! I decided if the bugs are tormenting

> > > me at 2 or 3 am I'll go to the emergency room. It will be $50 a shot

> > > vs $0 for my primary. But when you're being tormented money is no

> > > object and time is of the essence.

> > > >

> > > > I'll tell you what!! I will never use Permethrin Cream again. It was

> > > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > > attacked me with a vengance.

> > > >

> > > > Sharon

> > > >

> > >

> > >

> >

>

[Guest guest]

Something I just remembered. For months and maybe even more, sitting at my desk

in my office, things would land on me and cause me to itch all over. Sometimes I

would see them swing down on a web or silky thread. IF ONLY I HAD KNOWN THEN

WHAT I KNOW NOW! I would grab a broom or a vacuum and clean the ceiling and air

over my desk, get back to work and forget about it. I suspected they were baby

spiders or spider mites, not knowing the signicicance. I have learned there is

no such thing as an insignificant mite.

Sharon

> > > > >

> > > > > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > > > other trap had 2 masses of fabric fibers, along with lots of scattered

> > > > individual fibers. Neither trap had any insects, mites or parasites. "

> > > > >

> > > > > I guess I'm imagining the crawling all over my body. And the

> > > > feathery feelings as if things are coming out of my pores. And when my

> > > > scalp is alive with crawling things and I put Lice Shampoo on they go

> > > > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > > > till they die. How in heaven's name could I imagine it?

> > > > >

> > > > > My primary care physician referred me to an allergist and the

> > > > referral came today. Effective 5/1 I will have a new primary care doc.

> > > > I hope he will be better than she was. Because of changing docs I'll

> > > > need to get a new referral from the new doc and I can't get in to see

> > > > him till 5/23. So much red tape! I decided if the bugs are tormenting

> > > > me at 2 or 3 am I'll go to the emergency room. It will be $50 a shot

> > > > vs $0 for my primary. But when you're being tormented money is no

> > > > object and time is of the essence.

> > > > >

> > > > > I'll tell you what!! I will never use Permethrin Cream again. It was

> > > > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > > > attacked me with a vengance.

> > > > >

> > > > > Sharon

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

There are doctors who listen and investigate. We just have to find them.

Sharon

> > > >

> > > > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > > other trap had 2 masses of fabric fibers, along with lots of scattered

> > > individual fibers. Neither trap had any insects, mites or parasites. "

> > > >

> > > > I guess I'm imagining the crawling all over my body. And the

> > > feathery feelings as if things are coming out of my pores. And when my

> > > scalp is alive with crawling things and I put Lice Shampoo on they go

> > > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > > till they die. How in heaven's name could I imagine it?

> > > >

> > > > My primary care physician referred me to an allergist and the

> > > referral came today. Effective 5/1 I will have a new primary care doc.

> > > I hope he will be better than she was. Because of changing docs I'll

> > > need to get a new referral from the new doc and I can't get in to see

> > > him till 5/23. So much red tape! I decided if the bugs are tormenting

> > > me at 2 or 3 am I'll go to the emergency room. It will be $50 a shot

> > > vs $0 for my primary. But when you're being tormented money is no

> > > object and time is of the essence.

> > > >

> > > > I'll tell you what!! I will never use Permethrin Cream again. It was

> > > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > > attacked me with a vengance.

> > > >

> > > > Sharon

> > > >

> > >

> > >

> >

>

[Guest guest]

I wish there was someone who, if they just didn't know, would say that. I can

deal with lack of knowledge, but when these people try to just conveniently say

this or that so that don't appear less knowledgeable, then they fall into the

" idiot " category.

Makes me so mad...Terry

> > > > >

> > > > > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > > > other trap had 2 masses of fabric fibers, along with lots of scattered

> > > > individual fibers. Neither trap had any insects, mites or parasites. "

> > > > >

> > > > > I guess I'm imagining the crawling all over my body. And the

> > > > feathery feelings as if things are coming out of my pores. And when my

> > > > scalp is alive with crawling things and I put Lice Shampoo on they go

> > > > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > > > till they die. How in heaven's name could I imagine it?

> > > > >

> > > > > My primary care physician referred me to an allergist and the

> > > > referral came today. Effective 5/1 I will have a new primary care doc.

> > > > I hope he will be better than she was. Because of changing docs I'll

> > > > need to get a new referral from the new doc and I can't get in to see

> > > > him till 5/23. So much red tape! I decided if the bugs are tormenting

> > > > me at 2 or 3 am I'll go to the emergency room. It will be $50 a shot

> > > > vs $0 for my primary. But when you're being tormented money is no

> > > > object and time is of the essence.

> > > > >

> > > > > I'll tell you what!! I will never use Permethrin Cream again. It was

> > > > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > > > attacked me with a vengance.

> > > > >

> > > > > Sharon

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I can not imagine that there is not a similar problem with mites in these areas.

But, right now it seems like it is just flying under the " bed bug " radar. Maybe

it is just too much to handle.

> > > > >

> > > > > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > > > other trap had 2 masses of fabric fibers, along with lots of scattered

> > > > individual fibers. Neither trap had any insects, mites or parasites. "

> > > > >

> > > > > I guess I'm imagining the crawling all over my body. And the

> > > > feathery feelings as if things are coming out of my pores. And when my

> > > > scalp is alive with crawling things and I put Lice Shampoo on they go

> > > > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > > > till they die. How in heaven's name could I imagine it?

> > > > >

> > > > > My primary care physician referred me to an allergist and the

> > > > referral came today. Effective 5/1 I will have a new primary care doc.

> > > > I hope he will be better than she was. Because of changing docs I'll

> > > > need to get a new referral from the new doc and I can't get in to see

> > > > him till 5/23. So much red tape! I decided if the bugs are tormenting

> > > > me at 2 or 3 am I'll go to the emergency room. It will be $50 a shot

> > > > vs $0 for my primary. But when you're being tormented money is no

> > > > object and time is of the essence.

> > > > >

> > > > > I'll tell you what!! I will never use Permethrin Cream again. It was

> > > > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > > > attacked me with a vengance.

> > > > >

> > > > > Sharon

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Interesting. About 2 years before I left Tennessee, we noticed 100's of little white spiders hanging down in the garage when we came home. I was very busy at the time, but did vacuum them a few months later. Then, 3 years later, I had them in the apartment I moved to and where I came down with this. Course, I did have the 5 bird's nests in my dryer outtake vent that infected my clothes. Wonder how they are related to this. Other posters mentioned them too. I did have the black specks all over that apartment but not in this one. Bet the fungus/mold that sets up attracts. From: birdluvr4evr <no_reply > bird mites Sent: Saturday, April 28, 2012 6:27 PM Subject: Re: Got the results back from Entomologist

Something I just remembered. For months and maybe even more, sitting at my desk in my office, things would land on me and cause me to itch all over. Sometimes I would see them swing down on a web or silky thread. IF ONLY I HAD KNOWN THEN WHAT I KNOW NOW! I would grab a broom or a vacuum and clean the ceiling and air over my desk, get back to work and forget about it. I suspected they were baby spiders or spider mites, not knowing the signicicance. I have learned there is no such thing as an insignificant mite.

Sharon

> > > > >

> > > > > "One trap had shiny particles (glitter?) and some fabric fibers. The

> > > > other trap had 2 masses of fabric fibers, along with lots of scattered

> > > > individual fibers. Neither trap had any insects, mites or parasites."

> > > > >

> > > > > I guess I'm imagining the crawling all over my body. And the

> > > > feathery feelings as if things are coming out of my pores. And when my

> > > > scalp is alive with crawling things and I put Lice Shampoo on they go

> > > > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > > > till they die. How in heaven's name could I imagine it?

> > > > >

> > > > > My primary care physician referred me to an allergist and the

> > > > referral came today. Effective 5/1 I will have a new primary care doc.

> > > > I hope he will be better than she was. Because of changing docs I'll

> > > > need to get a new referral from the new doc and I can't get in to see

> > > > him till 5/23. So much red tape! I decided if the bugs are tormenting

> > > > me at 2 or 3 am I'll go to the emergency room. It will be $50 a shot

> > > > vs $0 for my primary. But when you're being tormented money is no

> > > > object and time is of the essence.

> > > > >

> > > > > I'll tell you what!! I will never use Permethrin Cream again. It was

> > > > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > > > attacked me with a vengance.

> > > > >

> > > > > Sharon

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Sharon-I had those glitter specks too.AaOn Apr 27, 2012, at 9:41 PM, birdluvr4evr <no_reply > wrote:

"One trap had shiny particles (glitter?) and some fabric fibers. The other trap had 2 masses of fabric fibers, along with lots of scattered individual fibers. Neither trap had any insects, mites or parasites."

I guess I'm imagining the crawling all over my body. And the feathery feelings as if things are coming out of my pores. And when my scalp is alive with crawling things and I put Lice Shampoo on they go absolutely wild, so much so I can hardly wait the 10 minutes or so till they die. How in heaven's name could I imagine it?

My primary care physician referred me to an allergist and the referral came today. Effective 5/1 I will have a new primary care doc. I hope he will be better than she was. Because of changing docs I'll need to get a new referral from the new doc and I can't get in to see him till 5/23. So much red tape! I decided if the bugs are tormenting me at 2 or 3 am I'll go to the emergency room. It will be $50 a shot vs $0 for my primary. But when you're being tormented money is no object and time is of the essence.

I'll tell you what!! I will never use Permethrin Cream again. It was good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they attacked me with a vengance.

Sharon

[Guest guest]

Yes it isOn Apr 28, 2012, at 3:50 AM, mitesbegone <no_reply > wrote:

But even if it is Morgellons, it is treatable and curable, right?

Terry

> >

> >

> > "One trap had shiny particles (glitter?) and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along with lots of scattered

> > individual fibers. Neither trap had any insects, mites or parasites."

> >

> > I guess I'm imagining the crawling all over my body. And the feathery

> > feelings as if things are coming out of my pores. And when my scalp is

> > alive with crawling things and I put Lice Shampoo on they go

> > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > till they die. How in heaven's name could I imagine it?

> >

> > My primary care physician referred me to an allergist and the referral

> > came today. Effective 5/1 I will have a new primary care doc. I hope

> > he will be better than she was. Because of changing docs I'll need to

> > get a new referral from the new doc and I can't get in to see him till

> > 5/23. So much red tape! I decided if the bugs are tormenting me at 2

> > or 3 am I'll go to the emergency room. It will be $50 a shot vs $0 for

> > my primary. But when you're being tormented money is no object and

> > time is of the essence.

> >

> > I'll tell you what!! I will never use Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > attacked me with a vengance.

> >

> > Sharon

> >

> >

>

[Guest guest]

Thank you thank you!!!

Terry

> > > >

> > > >

> > > > " One trap had shiny particles (glitter?) and some fabric fibers.

> > The

> > > > other trap had 2 masses of fabric fibers, along with lots of

> > scattered

> > > > individual fibers. Neither trap had any insects, mites or

> > parasites. "

> > > >

> > > > I guess I'm imagining the crawling all over my body. And the

> > feathery

> > > > feelings as if things are coming out of my pores. And when my

> > scalp is

> > > > alive with crawling things and I put Lice Shampoo on they go

> > > > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > > > till they die. How in heaven's name could I imagine it?

> > > >

> > > > My primary care physician referred me to an allergist and the

> > referral

> > > > came today. Effective 5/1 I will have a new primary care doc. I

> > hope

> > > > he will be better than she was. Because of changing docs I'll

> > need to

> > > > get a new referral from the new doc and I can't get in to see

> > him till

> > > > 5/23. So much red tape! I decided if the bugs are tormenting me

> > at 2

> > > > or 3 am I'll go to the emergency room. It will be $50 a shot vs

> > $0 for

> > > > my primary. But when you're being tormented money is no object and

> > > > time is of the essence.

> > > >

> > > > I'll tell you what!! I will never use Permethrin Cream again. It

> > was

> > > > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > > > attacked me with a vengance.

> > > >

> > > > Sharon

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

Is it really? I am sure it is " treatable " , I have my doubts whether it's " curable. " So far, I haven't heard of anyone being cured. Does anyone here know anyone who's been fully cured?

Thanks,JessOn Mon, Apr 30, 2012 at 10:01 AM, Aandraya <aandraya@...> wrote:

 

Yes it isOn Apr 28, 2012, at 3:50 AM, mitesbegone <no_reply > wrote:

 

But even if it is Morgellons, it is treatable and curable, right?

Terry

> >

> >

> > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along with lots of scattered

> > individual fibers. Neither trap had any insects, mites or parasites. "

> >

> > I guess I'm imagining the crawling all over my body. And the feathery

> > feelings as if things are coming out of my pores. And when my scalp is

> > alive with crawling things and I put Lice Shampoo on they go

> > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > till they die. How in heaven's name could I imagine it?

> >

> > My primary care physician referred me to an allergist and the referral

> > came today. Effective 5/1 I will have a new primary care doc. I hope

> > he will be better than she was. Because of changing docs I'll need to

> > get a new referral from the new doc and I can't get in to see him till

> > 5/23. So much red tape! I decided if the bugs are tormenting me at 2

> > or 3 am I'll go to the emergency room. It will be $50 a shot vs $0 for

> > my primary. But when you're being tormented money is no object and

> > time is of the essence.

> >

> > I'll tell you what!! I will never use Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > attacked me with a vengance.

> >

> > Sharon

> >

> >

>

[Guest guest]

Aa: What in the world could cause that? Glitter specks?

Sharon

>

> > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along with lots of

> > scattered individual fibers. Neither trap had any insects, mites or

> > parasites. "

> >

> > I guess I'm imagining the crawling all over my body. And the

> > feathery feelings as if things are coming out of my pores. And when

> > my scalp is alive with crawling things and I put Lice Shampoo on

> > they go absolutely wild, so much so I can hardly wait the 10 minutes

> > or so till they die. How in heaven's name could I imagine it?

> >

> > My primary care physician referred me to an allergist and the

> > referral came today. Effective 5/1 I will have a new primary care

> > doc. I hope he will be better than she was. Because of changing docs

> > I'll need to get a new referral from the new doc and I can't get in

> > to see him till 5/23. So much red tape! I decided if the bugs are

> > tormenting me at 2 or 3 am I'll go to the emergency room. It will be

> > $50 a shot vs $0 for my primary. But when you're being tormented

> > money is no object and time is of the essence.

> >

> > I'll tell you what!! I will never use Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > attacked me with a vengance.

> >

> > Sharon

> >

> >

>

[Guest guest]

I had glitter specks too! I didn't know so many people had them.I don't know the reason for them, but I can give you my theory: I personally believe these fungi picked up debris. I had a silver colored makeup box. After a while, the box started to lose gradually its silver paint and then at about the same time I began finding silver (glitter) particles everywhere, so I made the connection. Check your stuff, do you have anything with silver paint that has faded away?

This is just my hypothesis, not sure if it's the actual explanation, but it makes sense to me considering I saw the same behavior with other materials (such as ink.)Jess

On Mon, Apr 30, 2012 at 8:53 PM, birdluvr4evr <no_reply > wrote:

 

Aa: What in the world could cause that? Glitter specks?

Sharon

>

> > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along with lots of

> > scattered individual fibers. Neither trap had any insects, mites or

> > parasites. "

> >

> > I guess I'm imagining the crawling all over my body. And the

> > feathery feelings as if things are coming out of my pores. And when

> > my scalp is alive with crawling things and I put Lice Shampoo on

> > they go absolutely wild, so much so I can hardly wait the 10 minutes

> > or so till they die. How in heaven's name could I imagine it?

> >

> > My primary care physician referred me to an allergist and the

> > referral came today. Effective 5/1 I will have a new primary care

> > doc. I hope he will be better than she was. Because of changing docs

> > I'll need to get a new referral from the new doc and I can't get in

> > to see him till 5/23. So much red tape! I decided if the bugs are

> > tormenting me at 2 or 3 am I'll go to the emergency room. It will be

> > $50 a shot vs $0 for my primary. But when you're being tormented

> > money is no object and time is of the essence.

> >

> > I'll tell you what!! I will never use Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > attacked me with a vengance.

> >

> > Sharon

> >

> >

>

[Guest guest]

Oh bummer Jess, I sure hope it is curable!!!

Terry

> > > >

> > > >

> > > > " One trap had shiny particles (glitter?) and some fabric fibers. The

> > > > other trap had 2 masses of fabric fibers, along with lots of scattered

> > > > individual fibers. Neither trap had any insects, mites or parasites. "

> > > >

> > > > I guess I'm imagining the crawling all over my body. And the feathery

> > > > feelings as if things are coming out of my pores. And when my scalp is

> > > > alive with crawling things and I put Lice Shampoo on they go

> > > > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > > > till they die. How in heaven's name could I imagine it?

> > > >

> > > > My primary care physician referred me to an allergist and the referral

> > > > came today. Effective 5/1 I will have a new primary care doc. I hope

> > > > he will be better than she was. Because of changing docs I'll need to

> > > > get a new referral from the new doc and I can't get in to see him till

> > > > 5/23. So much red tape! I decided if the bugs are tormenting me at 2

> > > > or 3 am I'll go to the emergency room. It will be $50 a shot vs $0 for

> > > > my primary. But when you're being tormented money is no object and

> > > > time is of the essence.

> > > >

> > > > I'll tell you what!! I will never use Permethrin Cream again. It was

> > > > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > > > attacked me with a vengance.

> > > >

> > > > Sharon

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

What about Zoe and Rose? I think 99-100% for those two.From: " NY" <helpnynow@...>bird mites Sent: Monday, April 30, 2012 6:51:10 PMSubject: Re: Re: Got the results back from Entomologist

Is it really? I am sure it is "treatable", I have my doubts whether it's "curable."So far, I haven't heard of anyone being cured. Does anyone here know anyone who's been fully cured?

Thanks,JessOn Mon, Apr 30, 2012 at 10:01 AM, Aandraya <aandraya@...> wrote:

Yes it isOn Apr 28, 2012, at 3:50 AM, mitesbegone <no_reply > wrote:

But even if it is Morgellons, it is treatable and curable, right?

Terry

> >

> >

> > "One trap had shiny particles (glitter?) and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along with lots of scattered

> > individual fibers. Neither trap had any insects, mites or parasites."

> >

> > I guess I'm imagining the crawling all over my body. And the feathery

> > feelings as if things are coming out of my pores. And when my scalp is

> > alive with crawling things and I put Lice Shampoo on they go

> > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > till they die. How in heaven's name could I imagine it?

> >

> > My primary care physician referred me to an allergist and the referral

> > came today. Effective 5/1 I will have a new primary care doc. I hope

> > he will be better than she was. Because of changing docs I'll need to

> > get a new referral from the new doc and I can't get in to see him till

> > 5/23. So much red tape! I decided if the bugs are tormenting me at 2

> > or 3 am I'll go to the emergency room. It will be $50 a shot vs $0 for

> > my primary. But when you're being tormented money is no object and

> > time is of the essence.

> >

> > I'll tell you what!! I will never use Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > attacked me with a vengance.

> >

> > Sharon

> >

> >

>

[Guest guest]

And los...From: " NY" <helpnynow@...>bird mites Sent: Monday, April 30, 2012 6:51:10 PMSubject: Re: Re: Got the results back from Entomologist

Is it really? I am sure it is "treatable", I have my doubts whether it's "curable."So far, I haven't heard of anyone being cured. Does anyone here know anyone who's been fully cured?

Thanks,JessOn Mon, Apr 30, 2012 at 10:01 AM, Aandraya <aandraya@...> wrote:

Yes it isOn Apr 28, 2012, at 3:50 AM, mitesbegone <no_reply > wrote:

But even if it is Morgellons, it is treatable and curable, right?

Terry

> >

> >

> > "One trap had shiny particles (glitter?) and some fabric fibers. The

> > other trap had 2 masses of fabric fibers, along with lots of scattered

> > individual fibers. Neither trap had any insects, mites or parasites."

> >

> > I guess I'm imagining the crawling all over my body. And the feathery

> > feelings as if things are coming out of my pores. And when my scalp is

> > alive with crawling things and I put Lice Shampoo on they go

> > absolutely wild, so much so I can hardly wait the 10 minutes or so

> > till they die. How in heaven's name could I imagine it?

> >

> > My primary care physician referred me to an allergist and the referral

> > came today. Effective 5/1 I will have a new primary care doc. I hope

> > he will be better than she was. Because of changing docs I'll need to

> > get a new referral from the new doc and I can't get in to see him till

> > 5/23. So much red tape! I decided if the bugs are tormenting me at 2

> > or 3 am I'll go to the emergency room. It will be $50 a shot vs $0 for

> > my primary. But when you're being tormented money is no object and

> > time is of the essence.

> >

> > I'll tell you what!! I will never use Permethrin Cream again. It was

> > good the 14 hrs I had it on but OHMYGOSH!! The next 2 days they

> > attacked me with a vengance.

> >

> > Sharon

> >

> >

>

[Guest guest]

Hi ,

I do remember Rose saying she was around 90% better, not sure if it

ever got to 100%. I didn't follow Zoe too closely... not sure.

But I remember a report on CNN where they said that the few doctors

who treated Morgs had tried anti-parasiticals, antifungals and

antibiotics, and that they only had (some) success with antibiotics,

only in some people, and on those in whom it worked, it was

temporarily.

That's the impression  I got from people on this newsgroup as well.

Jess

On 4/30/2012 9:58 PM, Goldstein@... wrote:

 

What about Zoe and Rose?  I think 99-100% for

those two.

From: " NY"

<helpnynow@...>

bird mites

Sent: Monday, April 30, 2012 6:51:10 PM

Subject: Re: Re: Got the results

back from Entomologist

Is it really? I am sure it is "treatable", I have my

doubts whether it's "curable."

So far, I haven't heard of anyone being cured.

Does anyone here know anyone who's been fully cured?

Thanks,

Jess

On Mon, Apr 30, 2012 at 10:01 AM,

Aandraya <aandraya@...>

wrote:

 

Yes it is

On Apr 28, 2012, at 3:50 AM, mitesbegone

<no_reply >

wrote:

 

But even if it is Morgellons, it

is treatable and curable, right?

Terry

> >

> >

> > "One trap had shiny

particles (glitter?) and some

fabric fibers. The

> > other trap had 2 masses

of fabric fibers, along with lots

of scattered

> > individual fibers.

Neither trap had any insects,

mites or parasites."

> >

> > I guess I'm imagining

the crawling all over my body. And

the feathery

> > feelings as if things

are coming out of my pores. And

when my scalp is

> > alive with crawling

things and I put Lice Shampoo on

they go

> > absolutely wild, so much

so I can hardly wait the 10

minutes or so

> > till they die. How in

heaven's name could I imagine it?

> >

> > My primary care

physician referred me to an

allergist and the referral

> > came today. Effective

5/1 I will have a new primary care

doc. I hope

> > he will be better than

she was. Because of changing docs

I'll need to

> > get a new referral from

the new doc and I can't get in to

see him till

> > 5/23. So much red tape!

I decided if the bugs are

tormenting me at 2

> > or 3 am I'll go to the

emergency room. It will be $50 a

shot vs $0 for

> > my primary. But when

you're being tormented money is no

object and

> > time is of the essence.

> >

> > I'll tell you what!! I

will never use Permethrin Cream

again. It was

> > good the 14 hrs I had it

on but OHMYGOSH!! The next 2 days

they

> > attacked me with a

vengance.

> >

> > Sharon

> >

> >

>