meds

[Guest guest]

Hi ,

Thanks for the suggestion. We have pretty well ruled out the change

of seasons being the reason. It also happens during the summer months.

He has been on the Catapres TSS patch (clonidine patch) for almost 3

years now for his aggression,etc. It is more than likely that he is

building a resistance to the med. Unfortunately it is unsafe to raise

his dose any further.

Wish us luck!

[Guest guest]

Hi everyone!

Great news here, the doctors have re-evaluated the dosage of my son's

medicine and have decided it is safe to do an increased dose of the

Catapres. We applied the larger dose patch last night and this

morning was already better. I don't expect things to be perfect but

it would be nice to have him not so aggressive. I hope this also

helps with the trouble sleeping at night. Only time will tell. I

will be happy if he can just make it through the day without harming

anyone. Compared to the aggression the obsessing seems mild. Wish

us luck!! :-)

Kay

[Guest guest]

Dana Carvalho wrote:

>

> Hi Fran,

> My daughter is doing well, no current crisis, and I've been reading all

> the messages about meds and so I want to take advantage of this lull

> before middle school to get your advice about her meds and maybe you can

> even explain a part of her diagnosis I don't understand.

I'll do the best I can.

> When she was diagnosed w/OCD I took her to Dr. March at Duke for a

> second opinion. I didn't doubt the OCD, I felt there was more that her

> first doc was missing. To tell you the truth I was not impressed with

> March, altho I know he's a big shot in this field, I, as well as the

> friend I brought with me , thought he was a bit obtuse and arrogant.

I often think that the 'big names' are not the people who you want to be

your own doc. This is not always true, of course, but I have seen it

often enough. Sometimes someone who works with or is training with them

is a better choice.

> Anyway here's his diagnosis:

> Axis 1: Anxiety/Affective Disorder NOS,300.00

> Ossessive-Compulsive Disorder, 300.03

> Transient Tic Disorder, 307.21

> Her GAF on Axis 5 is 70. He also said " her overdependence on her

> mother, which reflects necessary dependence ina prosthetic sense as well

> as primary attachment or relational disorder, is beginning to collide

> with separation-individuation themes "

> I understand the dependence ina prosthetic sense but what's the

> attachment or relational disorder? And that part about

> separation-individuation themes, I think he was refering to her

> sullen,slightly edgy attitude in his office. He thought it was directed

> at me but it was because she didn't like him (he told her she could play

> with the toys and then he kept interrupting her with questions and she

> told me she thought he was a butt-head).

Trust your own judgement as a parent. It's difficult at best for

someone to do a complete evaluation on someone, including the

neurobiological as well as the psychodynamic, in one visit.

> He also said " by history she evidences an irritible internalizing

> temperament which currently manifests as anxiety/affective disorder NOS.

> Currently? Does that mean it can change? To what?

Anxiety/affective disorder NOS (NOS means Not Otherwise Specified) is an

incredibly broad and general diagnosis. It means he thinks she was

anxious or depressed at a clinical level. If he is correct, and it does

continue, it will have to change into something specific. OCD is

already one anxiety disorder, and we know that depression often

accompanies it. It's worth being watchful for signs of depression in

any case, but beyond that, I would not worry to much about this dx. It

is just too general to be really meaningful.

> This diagnosis was 2 years ago when she was 9.

If she still has tics, then the tic disorder is no longer transient and

may be Tourette.

> One problem she's always had is that she is forgetful in terms of

> following directions and dreamy or spacey at times. This looks like

> problems sequencing and focusing and could be some attention problems (I

> have ADHD) but it also could be her internal focusing and ritualizing -

> she's busy in there andnot listening to the outside world.

It is very difficult to tell if ADD or OCD is causing the 'spaceyness'.

If she is introspective or self-reflective, she may be able to describe

to you what's going on in her head.

> One of her

> latest things is constanly doing a dance routine and steps she worked on

> with her friends for a talent show. This can be disconcerting for me

> when we're out in stores or whatever and I stop to talk to a friend or

> look at an item and she's got a blank stare on her face and she's

> counting or singing " Backstreet boys " under her breath and repeating

> steps over and over as if she's alone in her room. She doesn't look like

> a little kid anymore so it looks a little strange.

It is possible that this repeating of the dance routine, counting and

songs in inappropriate contexts could represent a series of complex

motor tics.

> Her doctor , who only sees her every 3-4 months, and then only to check

> in and supervise meds, says she's doing well academically so don't worry

> about ADD.

Tourette/OCD/ADD occur together often enough that it may be worthwhile

to get a consultation with someone who is familiar with diagnosing and

treating what we call TS+. Where do you live? I may be able to help

you with suggestions or give you info for contacting the local Tourette

Syndrome Association. Around 50% of people with TS have OCD and/or ADD,

whereas only a small percentage of people with OCD or ADD have TS, so

often the docs who really know TS are familiar with the 'tiad' of

TS/OCD/ADHD. I may be off-base, someone would need to see her in person

to make a diagnosis. I just think there are enough questions to make it

worthwhile.

> That's another question I have for you. She scores in the

> 99th and 94th percentile for math and reading and her IQ is 133. She

> can get all A's on auto pilot. My concern is that her high intelligence

> and lack of challenge in school masks an attention or sensory

> integration or sequencing problem. It's not that I want her to do

> better, I don't want her to have to work so hard in her head if that's

> what's happening. Also, when she gets into middle school and the work

> gets more complex, I'm afraid she will struggle and not understand why.

The best people to evaluate this are Occupational Therapists at a

Children's Hospital. It is also possible that her I.Q. has been

undermeasured, if she can do that well on autopilot and has attential

difficulties at the time the test was administered. That's not really

important, except that I hear your concern about attentional issues

coming through again.

> The other stuff she

> does like picking, tics etc don't bother her except when people ask or

> comment about them - then she gets mad at that person! She saw Reid

> , the guy who co-wrote " Stop Obssessing " ,when she was picking

> until she had bloody scabs all over her body. He was wonderful and was

> highly amused when she was able to stop partly from the techniques he

> taught her and partly because she hated seeing him " he's gross mom, he's

> always talking about gross stuff like boogers and eating scabs and

> stuff " .

This is funny. Picking is interesting in that it is a self-injurious

behavior (SIB) that can be a tic, a compulsion without an obsession, or

a form of trichotillomania, all of which are probably closely related

anyway. It sounds like Reid had a great approach. The standard

approaches to SIBs are SSRIs, like Paxil, and behavior therapy.

Treatment is often quite difficult and it sounds like you found a great

therapist.

> I hope you don't mind my long email and all my questions - they've been

> building up for awhile. I'm in no hurry for answers, any light you can

> shed will be appreciated.

It sounds like you are a very thoughtful parent who is seeking optimal

treatment for your child, which is great. As far as meds go, she is

still on a pretty low dose of Paxil. Since she had mood-related

reactions to Luvox and Zoloft, it's a good idea to watch for

mood-related reactions whenever the Paxil is increased. As far as

evaluations go , it might be helpful for her to see a child neurologist

or psychiatrist who is interested in TS as well as OCD and ADD, and an

Occupational Therapist at a children's hospital or a good pediatric

department. It sounds like you and she are both coping with a lot of

challenges!

Fran

[Guest guest]

Dear List,

I really appreciate Jule's observations concerning medications and their

value for our children. I know that medications are a necessity for my son

and I am thankful for the medications that he is now taking; however, it is

important to remember that for each of our children there is a best choice

of medications and it takes patience and experimentation to find the ideal

combination and dosages. Another factor that is important to remember is

that as our children's bodies change their medications and dosages may have

to be adjusted to the growth and chemical changes associated with

maturation. Flexibility and accomodation to change or essential.

Take care.

Louis

louisharkins_4@...

ICQ: 38330756

Voicemail: 1-888-835-3268 Ext. 30071

Fax: 1-408-293-2266 Ext. 30071

/subscribe/ and

/subscribe/ocdandhomeschooling

----Original Message Follows----

From: j.monnens@...

Reply-onelist

onelist

Subject: meds

Date: Thu, 20 May 1999 14:56:22 -0400

From: j.monnens@...

Hi all:

Just my 2 cents on the issue of whether or not to use meds. We all have

concerns about BSE's and other side effects, and I don't think we rush into

medicating our kids willy nilly. But I do have a problem when people put

psych meds into a special category. If your child was diabetic, would you

not give him insulin? If your child needs glasses would you tell him just

to sit closer to the teacher? OCD is at least in part a neurochemical

imbalance in the brain which the SSRIs help to correct, just as tylenol

lowers a fever. It seems to me the bigger issue than whether or not to

medicate is the agony we go through sometimes finding the one(s) that work

best for our particular child.

Just a different perspective on this.

Jule in Cleveland

------------------------------------------------------------------------

Looking for a new hobby? Want to make a new friend?

Come join one of the nearly 150,000 e-mail communities at ONElist!

------------------------------------------------------------------------

The is sponsored by the OCSDA. You may visit their

web site at http://www.ocdhelp.org/ and view schedules for chatroom support

at http://www.ocdhelp.org/chat.html

_______________________________________________________________

Get Free Email and Do More On The Web. Visit http://www.msn.com

[Guest guest]

I would like a little advice on medications please.

Molly was originally on 100 mg of Zoloft which made a huge dent in her

ritual behavior. She was still struggling however so her psych upped to her

150mg. I did not see any difference and requested we drop her back down.

At the same time her doc put her on Tenex, 1 mg in the AM. This was to

help her explosive behavior and hopefully make her less confrontational. I

felt besides making her tired it seemed to depress her. She lost her spark.

I talked to her doc and took her off of it this week. So............any

suggestions on a med that might make her able to be less confrontational and

explosive and possible be able to focus better?

I see her doc the week after next and would like to have some questions for

her.

Its hard to determine whats what because we decreased the Zoloft, started

CBT and then of course there is puberty.

I am not a big supporter of sedating her. I would rather she learns a bit

of self control. I also worry about the drugs because substance abuse is a

big issue in my whole entire family.

So, any words of wisdom will be appreciated.

Thanks

patti in nh

[Guest guest]

Patti:

My understanding is that Risperdal is often used with kids that have rages.

Most of the drugs are sedating, however. The biggest problem my son has

with Risperdal is weight gain. This was good up to a point -- he used to

be very thin. I don't think that any of these meds are addicting. I would

suggest that you make one change at a time so you can tell which med is

causing which effects. As has been said before, the SSRIs (like Zoloft,

etc.) often must be given in higher doses than for depression in order to

be effective for OCD. My husband and 11 yo both take 60 mg of Prozac.

Jule in Cleveland

[Guest guest]

HI Patti:

How long did you have Molly at 150 mg? Not being a doc I can only share

our experience with meds and encourage you to talk to Molly's psychiatrist

about her med management.

Steve did have behavioral side effects when he was titrating up on meds.

It was hard to handle but did get better as he finished the 12 week

recommended trial period at the high dosage for OCD. We also found that at

high dosages Steve was quite " doped up " and luckily the CBT has helped him

drop his dosage considerably.

What helped us with the behavioral problems was to implement the

professional parenting plan. IT takes a lot of work but provides a very

consistent environment which can help them cope without being so explosive.

Working with meds can be very frustrating and tries everyone's patience.

OUr kids respond so individually to their meds and as you say puberty is

part of the equation. Good luck, take care, aloha, Kathy (H)

kathyh@...

At 04:13 PM 02/12/2000 -0500, you wrote:

>From: " Patti R. " <pross@...>

>

>I would like a little advice on medications please.

>

>Molly was originally on 100 mg of Zoloft which made a huge dent in her

>ritual behavior. She was still struggling however so her psych upped to her

>150mg. I did not see any difference and requested we drop her back down.

>At the same time her doc put her on Tenex, 1 mg in the AM. This was to

>help her explosive behavior and hopefully make her less confrontational. I

>felt besides making her tired it seemed to depress her. She lost her spark.

>I talked to her doc and took her off of it this week. So............any

>suggestions on a med that might make her able to be less confrontational and

>explosive and possible be able to focus better?

>I see her doc the week after next and would like to have some questions for

>her.

>

>Its hard to determine whats what because we decreased the Zoloft, started

>CBT and then of course there is puberty.

>

>I am not a big supporter of sedating her. I would rather she learns a bit

>of self control. I also worry about the drugs because substance abuse is a

>big issue in my whole entire family.

>

>

>So, any words of wisdom will be appreciated.

>

>Thanks

>patti in nh

[Guest guest]

Hi Beth:

At 10:53 AM 04/15/2000 -0500, you wrote:

> today she is doing a little better, can I give the paxil and work in

>the zolft? I just feel like I can't take much more of this.She really has

>a hard time with anything touching her bottom.Please help if you can,I

>could hardly write this letter.Love Beth in IN.

>

> You may subscribe to the OCD-L by emailing

>

> In the body of your message write:

> subscribe OCD-L your name.

> The Archives and Features List for the OCD and

> Parenting List may be accessed by going to

> , enter your email address and password, then point

>and click.

>

>

[Guest guest]

Hi Beth:

I could not quite make out what e is taking on what days. Is she

taking Zoloft and paxil at the same time? If so I suggest you contact her

psychiatrist or psychopharmacologist and discuss this practice. Generally

two SSRIs are not prescribed together to avoid serotonin syndrome.

CBT holds out more hope for dealing with the not wearing anything on her

bottom problem. I hope you can get some effective E & RP for her around this

symptom soon and then you will very likely not have to worry so much about

her SSRI dosage. Good luck, take care, aloha, Kathy (H)

kathyh@...

At 10:53 AM 04/15/2000 -0500, you wrote:

Hi everyone, e was on paxil,20mg.I could tell she was having a hard

time again.She wore the same dress for 3weeks to school,and still NO

underpants or socks.When we went to see her DR. I asked if we could try

Zolft again since we got 6 months with no symptoms before.I don't care if

it only lasts for 6 months ,I'd take it.When I gave her the zolft ,and the

second day she couldn't get dressed for school..I gave her the paxil and

some risperdal before she went to bed, and today she is doing a little

better, can I give the paxil and work in the zolft? I just feel like I

can't take much more of this.She really has a hard time with anything

touching her bottom.Please help if you can,I could hardly write this

letter.Love Beth in IN.

[Guest guest]

Thanks Kathy and Louis!

This was something that I had never heard of..... it seems that since

we give so many different meds to our ocder's that the Dr.s would

explain some of these things to us.

We have an appt. tomorrow.....I will be sure to talk to 's Dr.

and find out if there are certain meds (even over the counter) that

we should avoid.

I learn so much from this list!!!!!!

Thanks so much!

mary from La.

Kathy Hammes wrote:

> Hi :

>

> Sorry if I worried you. Since Anafranil is an SRI, not an SSRI, it is

> prescribed sometimes in combination with SSRIs like Luvox. The serotonin

> syndrome is characterized by agitation, excitability, confusion, delirium,

> fever, sweating, nausea, diarrhea, ataxia, myoclonus and muscle rigidity.

>

> Taking blood levels which is standard for those on Anafranil (from what I

> have read/heard) should ensure there is no risk of this syndrome which is

> observed when people switch too fast from an MAOI to an SSRI. I have also

> read that taking SJW and an SSRI may be dangerous because it might

> precipitate serotonin syndrome. As you know I am not a doc, just a mom, so

> I suggest you discuss any concerns you may have with 's doc.

>

> Take care, aloha, kathy (H)

> kathyh@...

>

> At 10:52 AM 04/16/2000 -0500, you wrote:

> >Kathy,

> >

> >What is serotonin syndrome?

> >

> > is taking luvox and anafranil as well as buspar and Klonopin.

> >

> >Thanks Kathy!

> >mary from La.

> >

>

> ------------------------------------------------------------------------

> eGroups eLerts

> It's Easy. It's Fun. Best of All, it's Free!

> 1/3079/3/_/531051/_/955953228/

> ------------------------------------------------------------------------

>

> You may subscribe to the OCD-L by emailing

> listserv@... .

> In the body of your message write:

> subscribe OCD-L your name.

> The Archives and Features List for the OCD and

> Parenting List may be accessed by going to

> , enter your email address and password, then point and

click.

[Guest guest]

:

Also ask your pharmacist. While a truly good doc will be knowledgeable

about med interactions and side effects, many simply prescribe the drugs

peddled by the most aggressive drug rep or the company that paid for their

free trip to the Bahamas for some continuing ed thing. Just FWIW.

Jule

[Guest guest]

<< Some days is absolutely

perfect, or as perfect as he can get......other days, he's like Damien from

the Omen.....

Hi, Everyone..........Man........I feel sooooooooo behind on life!!! I am

suppose to be 15 hrs. a week and have been working 30-40. I've got no time

for e-mail anymore. .......this is Gareth, too. I have always said

he was Dr.J and Mr Hyde. And those Mr. Hyde days drive me up the

wall..........'What did *I* do now?' " What brought this on?' A thousand

questions as to " why today???? " I have yet to come up with an answer. Our

lives have been a roller coaster, too, Maureen. ALSO.........the teeth

grinding is back with this Paxil. He hasn't done that for two years now.

Another thing that has started this past 6 weeks is this swollen, painful

belly at night. His Ped. said he's developed a 'lactose intolerance'. WHY

NOW!!!!!!!! The kid is 12 yrs old!!!!! The Lactaid pills have really

helped that problem. I asked about the celiac test and his Ped. didn't think

Gareth had that problem.......... " weighs too much " I had to laugh!!!

Joan........glad for Andy. Keep up the good work, kid!!!

Take care, everyone.

Margaret

[Guest guest]

thanks joan and maryBeth for your responses. Elie has NEVER been on either

Paxil or Prozac. But the Risperdal has caused (I believe a really big

weight gain. Add to that a sluggish, phlegmatic personality (when he isn't

wildly running to hit someone) and you get pounds. We use skim milk only

and limit it to 24 oz. a day. We are now limiting the amount of bread (a

big carbo kid). his change to table food this summer has been a relief. We

are working on the one good sized portion. He can have two pieces of cake -

we just make the pieces really skinny. He still gets his icecream - the no

sugar no fat kind and only 1/2 cup. He eats no junk food thank goodness.

We will see what the docto recommends - meanwhile I have upped the risperdal

to 1/2 morning (just before b'fast) and evening (just after supper). can't

have him beating up the school!

Sara

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

Sara, I have thought the same thing about aggression- it's an impulsive

behavior, and that's more the key than anything else, reining in the

impulsive behaviors. That sounds plausible. And if Elie is having a tough

start because everything is new again, that could compound the difficulty-

he lashes out because he's feeling bad about probably several things.

I also believe that our kids are on cycles for their behaviors. We have PB

on claritin almost year round- he seems to have some seasonal allergies and

this way we have one more thing accounted for- maybe, haha!

Also, I would suspect Paxil over Risperdal as being a contributing factor

with E's troubles right now. It has a much shorter half-life than other

SSRI's. There was something on one of the TV news shows the other night

about how difficult it can be for *some* people to get off of SSRI's Paxil

being a bigger problem than some of the others. You must taper off very

very slowly and it can cause some side effects- both physical and

depression, among others. Check the website for 20/20- I think that's the

show that I saw it on.

Also, Ben was on Paxil for only a very short time (about 15 months

ago) and he was *very* aggressive on it- I mean, immediately aggressive.

We didn't know if it was a rebound effect from coming off of Prozac, but we

have been loathe to try it ever again.

We also did just go through a very brief trial of Zyprexa (instead of

Risperdal). It is supposed to be a later generation of Ripserdal, and

while it can work better for some kids, there are anecdotes about even

worse weight gain on zyprexa than on Risperdal. I read some posts on the

autism NG (bit.listserv.autism ) and some kids went from Zyprexa to

Risperdal because they gained 40# on Zyprexa. I get the pediatric

psychopharmacology newsletter that now comes form Brown U (used to be " Just

the Facts " from U of Wisc.) and there was a notice about the weight gain as

well.

We stopped the Zyprexa and went back to Risperdal- it was clear that 1/4 of

a 20 mg tab (5 mgs) was way too much for PB. He was out of it- zombie

like, no personality. I told the Dr. I didn't want to risk him gaining

more weight and didn't feel like messing around with this stuff, trying to

cut an even smaller piece of this pill. He agreed. (The Risperdal tends

to not help his OCD-type behaviors, and doesn't seem to help impulsiveness.

He is certainly not sedated on it.

I think that this stuff for some kids makes them HUNGRY, but it also seems

to slow down metabolism. We have worked on getting more swimming for PB,

more running around outside, and cut back on extra empty calories. Even

200 fewer calories a day (going to 2 fig newtons instead of 4, going to

skim milk, and not pushing him to clean his plate if he isn't voluntarily

doing that) can help. He had gained about 8 # since May, and my slim boy

was getting a big gut and butt.

One last thing- I don't know about boys' physiological development, and

what happens as they start producing more testosterone as they grow. Don't

know if things even out once they go through puberty or if it's ongoing, in

stages. My HUNCH is that it's the latter, in which case, our kids will go

through stuff that we aren't prepared for yet. I have heard that esp. for

boys with autism, puberty can be very tough with regard to dealing with all

of these hormonal changes.

Don't know if any of this will help. I don't think it's likely one simple

thing, but multiple factors. Good luck!

And G-d bless us all, whose kids are going back to school! And for those

who homeschool, G-d bless you with fortitude to continue doing what you're

doing.

MB

[Guest guest]

Whoops! Sorry, Sara, I read a chunk of another post right after yours that

mentioned Paxil and I didn't go back to yours and carefully re-read. Well,

if Elie's only on Risperdal, then at least you have fewer meds to account

for in terms of which is affecting what. Now thatI think about it, we also

adjusted the Risperdal back a bit- I thought PB was getting too hyper

again. He takes .75 at bedtime only.

PS How do YOU like your new job, new town, new home?

MB

>>thanks joan and maryBeth for your responses. Elie has NEVER been on either

Paxil or Prozac. But the Risperdal has caused (I believe a really big

weight gain. Add to that a sluggish, phlegmatic personality (when he isn't

[Guest guest]

The more I think about it, I do have odd reactions to meds. Me and my dad,

both, sometimes react the opposite. Some meds that put other people out, wire

me. When I took one of my dad's fional (sp?) for a migraine, it put me on the

roof for 4 hours, then I crashed. Dad was told that most medicines had some of

both kinds of meds, those that wire you and those that knock you out, just

depended on which one you were sensitive to. Maybe it's the same way with our

kids, when they react opposite to how they're supposed to. I know 2 years ago

when had scarlet fever we were supposed to give him Tylenol and children's

Motrin. He laughed for 4 HOURS STRAIGHT!! Motrin is a mood intensifier for me,

whatever mood I'm in it quadruples it. Needless to say, has never had

children's Motrin again.

Loriann

[Guest guest]

<< he was surprised 's psychiatrist doesn't use several drugs in

" cycles " ....in other words, he also knew that kids with DS build a tolerance

to drugs after awhile........some normal kids too! and that you have to try

several every couple of months....stop them....and then start them

again......so, in other words, one drug isn't going to cut it for 24/7 for

365 days a year! >>

Hi, Everyone.....................this is very interesting!!! Perhaps I

need to get Gareth off this Paxil and back on Luvox or Prozac. Those two

worked best for him as far as the OCD behaviors go. As for the Zyprexa, we

tried that briefly, too. Made him schizo BIG time!!!! Talk about the

walking Devil.......very agitated and aggressive. Adderall does the same.

MB.........I never gave the hormones a thought. His

brother is a year older and not going through puberty yet. Guess I just

assumed Gareth would go though that AFTER his brother!!! Boy am I naive!!!

But at 12 yrs. old and starting to get pubic hairs, I guess it's something I

need to consider NOW!!!! QUESTION.........does any one have

their child on one of those oxygen machines for sleep apnea??? My DH uses

one and Gareth's getting pretty bad with his apnea. Whenever I stop in at

night, he's always raising his head and gasping for air. I know it's not his

asthma acting up. Take care, Everyone.

Margaret

[Guest guest]

In a message dated 8/27/00 6:24:33 PM Pacific Daylight Time, mfroof@...

writes:

<< does any one have

their child on one of those oxygen machines for sleep apnea??? >>

Yes, we have oxygen available for Amy for the sleep apnea and also for

when she has cyanosis. They also set up a hospital bed for her, which you

can regulate and elevate the head part. Amy cannot sleep completely flat

and using more than one pillow never worked because she would throw all the

pillows on the floor. Things have been much better with the hospital bed

set up at home and of course the oxygen for breathing difficulties.

Lupi ( Lupi2Basil@... ),

with husband-Steve parents of:

Amy-24 (Ds-ASD), ( -17 (AS), Chris-22 (LD)

[Guest guest]

In a message dated 8/27/00 8:24:33 PM Central Daylight Time, mfroof@...

writes:

<< QUESTION.........does any one have

their child on one of those oxygen machines for sleep apnea??? My DH uses

one and Gareth's getting pretty bad with his apnea. Whenever I stop in at

night, he's always raising his head and gasping for air. I know it's not

his

asthma acting up. >>

Margaret, does Gareth have his tonsils and adenoids? had sleep apnea

until she had surgery to remove them. Apparently, her adenoids were huge and

her tonsils were a mess.

Maureen

[Guest guest]

I'm just glad 's temps are taken care of with Tylenol, because he WILL NOT

get Motrin again. He spiked 105 with the first 3 teeth he cut, and the doctor

told me children don't get a fever when they cut their teeth. Did you know that

at 105 degrees, you can hallucinate? wasn't verbal at the time, but you

could just watch him tracking things across the room, and not the jerky tracking

very smooth.

Loriann

[Guest guest]

thank god nathan isnt over reactive to ibuprophen---motrin, its the only

thing that brings down those high temps he gets to frequently and at the

drop of a hat. shawna

>From: " Lori " <hsmyangel@...>

>Reply-egroups

><egroups>

>Subject: Re: Re: Meds

>Date: Sun, 27 Aug 2000 16:08:13 -0000

>

>The more I think about it, I do have odd reactions to meds. Me and my dad,

>both, sometimes react the opposite. Some meds that put other people out,

>wire me. When I took one of my dad's fional (sp?) for a migraine, it put

>me on the roof for 4 hours, then I crashed. Dad was told that most

>medicines had some of both kinds of meds, those that wire you and those

>that knock you out, just depended on which one you were sensitive to.

>Maybe it's the same way with our kids, when they react opposite to how

>they're supposed to. I know 2 years ago when had scarlet fever we

>were supposed to give him Tylenol and children's Motrin. He laughed for 4

>HOURS STRAIGHT!! Motrin is a mood intensifier for me, whatever mood I'm in

>it quadruples it. Needless to say, has never had children's Motrin

>again.

>

>Loriann

>

>

>

[Guest guest]

doesnt she slide down in the bed, we roll up nathan's HOB for him too and he

always slides way down, and likes to sleep on his stomach, weve tried

rooling up the feet to to counter it but he just turns sideways and then

lays flat in the middle part the goof. nathan isnt on any O2 or machines,

and doesnt get cyanotic, has a history or sleep probs and has another sleep

study coming in a few weeks, it was a nightmare b4, they will probably have

to versed him again. shawna.

>From: Lupi2Basil@...

>Reply-egroups

>egroups

>Subject: Re: Re: Meds

>Date: Sun, 27 Aug 2000 22:24:06 EDT

>

>In a message dated 8/27/00 6:24:33 PM Pacific Daylight Time, mfroof@...

>writes:

>

><< does any one have

> their child on one of those oxygen machines for sleep apnea??? >>

>

> Yes, we have oxygen available for Amy for the sleep apnea and also for

>when she has cyanosis. They also set up a hospital bed for her, which

>you

>can regulate and elevate the head part. Amy cannot sleep completely

>flat

>and using more than one pillow never worked because she would throw all the

>pillows on the floor. Things have been much better with the hospital bed

>set up at home and of course the oxygen for breathing difficulties.

>

>Lupi ( Lupi2Basil@... ),

>with husband-Steve parents of:

>Amy-24 (Ds-ASD), ( -17 (AS), Chris-22 (LD)

>

>

>

[Guest guest]

nathan had a T/A too and it greatly inproved his breathing especially at

noc, lots less snoring, his were inlarged too, now we mainly notice it worse

with colds, which is still often, he is even on biaxin at this current time.

Do our kids ever build up general immunities? im beginning to wonder.

shawna.

>From: MRASMUS@...

>Reply-egroups

>egroups

>Subject: Re: Re: Meds

>Date: Mon, 28 Aug 2000 00:55:03 EDT

>

>In a message dated 8/27/00 8:24:33 PM Central Daylight Time, mfroof@...

>writes:

>

><< QUESTION.........does any one have

> their child on one of those oxygen machines for sleep apnea??? My DH

>uses

> one and Gareth's getting pretty bad with his apnea. Whenever I stop in

>at

> night, he's always raising his head and gasping for air. I know it's not

>his

> asthma acting up. >>

>

>Margaret, does Gareth have his tonsils and adenoids? had sleep

>apnea

>until she had surgery to remove them. Apparently, her adenoids were huge

>and

>her tonsils were a mess.

>

>Maureen

>

>

>

[Guest guest]

In a message dated 8/28/00 4:20:15 PM Central Daylight Time,

mashawnag@... writes:

<< Do our kids ever build up general immunities? im beginning to wonder.

shawna >>

I used to wonder this too when was younger. She is now nine and I

would say that she has been much healthier - fewer colds, sinus infections,

stomach viruses, etc. - for about the past two years. I forget, how old is

?

Maureen

[Guest guest]

Lupi & anyone who's child has sleep apnea,

Has anyone ever had their child's Epiglotis scoped to see if it is blocking

the airway when your child sleeps? Our ENT says this is not uncommon for

children with Downs and the Epiglotis is oversized and floppy. is

haviny surgery Thursday to correct this problem. They will lazer part of it,

to give him more airway room and eliminate the apnea at night.