Re: severe chronic pain from chrondo

[Guest guest]

origamiprincess05 <origamiprincess05@...> wrote:

Hello everyone,

I am new to this group. I have severe chronic pain from this

condition and wondered if any of you out there are disabled from

their chondomalacia? Also has anyone heard of kneecap removal to

stop the pain? I appreciate any answers that would help me to know

if anything can be done for this severe pain.

Thanks.

origamiprincess.

hi princess, It sounds like to need to have a talk with your doctor. You may

have to be seen by a pain specialist if the surgeon cannot help you. It doesn't

seem right that you should be in that much pain also if your in bed a lot and

off your feet you could get a blood clot in leg. I know because I've had them

and that also hurts. Are you taking pain med now?? Hope this helps.

Lin

[Guest guest]

Before I had my operation (3 months ago) I could only walk 2 blocks before the

pain became unbearable. The operation mainly removed part of a torn meniscus,

but he also smoothed out the chondromalacia. However, he left my kneecap

maltracking (because he assumed that through PT I would be able to build up the

thigh muscles, esp. the VMO, to pull the kneecap back on track). I still have

to use knee tape to keep the kneecap from rubbing against the femur in order to

do the exercises to build up my thigh muscles. However, they ARE slowly

building up. (I can feel them after exercising. After not being able to

exercise for 4 years, it's an actual thrill to feel my muscles reacting to the

exercise!)

You should have your kneecap removed only as an ABSOLUTE LAST RESORT. Your leg

needs your kneecap as a fulcrum. There is a doc who does " kneecap

replacements " , http://www.patellapain.com/arthritis_of_the_patella.htm , a

little more than halfway down the page. More commonly. you could get a

unicompartmental replacement. This would involve replacing the backside of your

kneecap and the trochlea, but would also replace the articular surface of the

(probably) lateral femur and the lateral meniscus on the tibia, which you might

not need.

Ann

severe chronic pain from chrondo

Hello everyone,

I am new to this group. I have severe chronic pain from this

condition and wondered if any of you out there are disabled from

their chondomalacia? Also has anyone heard of kneecap removal to

stop the pain? I appreciate any answers that would help me to know

if anything can be done for this severe pain.

Thanks.

origamiprincess.

[Guest guest]

**Comments by Ann

Re: severe chronic pain from chrondo

origamiprincess05 <origamiprincess05@...> wrote:

Hello everyone,

I am new to this group. I have severe chronic pain from this

condition and wondered if any of you out there are disabled from

their chondomalacia? Also has anyone heard of kneecap removal to

stop the pain? I appreciate any answers that would help me to know

if anything can be done for this severe pain.

Thanks.

origamiprincess.

hi princess, It sounds like to need to have a talk with your doctor. You may

have to be seen by a pain specialist if the surgeon cannot help you. It doesn't

seem right that you should be in that much pain also if your in bed a lot and

off your feet you could get a blood clot in leg. I know because I've had them

and that also hurts.

**NOT TO MENTION you could get a heart blockage or stroke!!!! I know you're

in terrible pain, but if you take to bed, you'll become an invalid and regret

it. If your current docs aren't helping you, you should get new docs. You

shouldn't be in so much pain. Someone needs to help you.

Ann

[Guest guest]

Re: severe chronic pain from chrondo

> You should have your kneecap removed only as an ABSOLUTE LAST RESORT.

Your leg needs your kneecap as a fulcrum. There is a doc who does " kneecap

replacements " , http://www.patellapain.com/arthritis_of_the_patella.htm , a

little more than halfway down the page. More commonly. you could get a

unicompartmental replacement. This would involve replacing the backside of

your kneecap and the trochlea, but would also replace the articular surface

of the (probably) lateral femur and the lateral meniscus on the tibia, which

you might not need.

You might take a good hard look at the Avon replacement. That one seems to

be the most up-to-date.

http://www.avonpatella.com/

Mike

MT