Re: Just Joined Site - would like to chat with people going through what i am

[Guest guest]

Just Joined Site - would like to chat

with people going through what i am

> Now i am having pain in my fingers too ??

I know you say you can't take anti-inflammatories, but have you tried Vioxx?

I had pain in my fingers too, but when I started taking Vioxx for my CP the

pain in my fingers went totally away, although it only cut my CP pain by

about 25 to 50%.

I also have had inflammatory problems over the last 20 years, yet the

doctors can find no connection. I have had part of my colon removed because

of chronic inflammation and infection, tendonitis surgery in both elbows,

gout (which I am taking allopurinol for--and will for the rest of my life),

sinus inflammation and infection (two surgeries), plantars faciatis, and

serious pain in my fingers and shoulders. The only inflammation that is

currently causing me fits is the CP, but that has had me almost disabled

over the last year.

Mike

MT

[Guest guest]

I understand how you feel. I've had this for 2 years, but lately

it's been so bad I can hardly walk or stand, let alone work or enjoy

life. I now love sleeping so that I don't feel pain anymore! I'm

only 25 and I'm angry that it took so long to get diagnosed and that

this happened so young. I haven't tried the knee brace yet, but I

heard they're good. Why can't you do an arthosope? I'm looking

forward to that, I'm hoping it will do some good, but I have to do

physical therapy first. I'm getting strange pains in my foot and I

wonder if it's related. It often does a " charley horse " thing. I'm

trying the glucosmine, too. So far, I haven't had any luck, but I'm

supposed to give it a few months, I hear.

> I am glad I found this site, other people who have same problem

and

> lots of you... lots of information and links here too

> I have been suffering with Chondromalacia for 5 years or so now

but

> usually with rest and physio therapy it would go away for a while.

> This time though it is not going away at all. It started up back

in

> about April or May last year and by July I had to cut back my

hours

> at work and by September it snapped and I could not walk for a

month

> & then after that only a little. I was in severe pain even laying

> down. It took forever to get in to see doctors and get tests. I

took

> anti-inflammatories and pain meds, that seemed to help after a

while

> and then started physio therapy again.(physio hurt alot at first

but

> it does help but will not cure me) X-rays showed nothin except

knee

> slighty off (where i felt it snap) and other tests show nothin and

> then the MRI showed that the cartlidge is deterirating but the

> specialist told me nothin he could do. My family doctor says

nothin

> I can do except that when i am older they can do knee replacement.

> They did prescribe a knee brace and i had orthotics made for my

> shoes as they said i am flat footed. I love my knee brace &

> orthotics seem to have helped a lot too. I also have sciatic nerve

> pain which they do not know why of that either. I got new mattress

> and pillows and i use ice for my knee. I was sent to a doctor who

is

> specialist in Physiaty ( i think thats it) and all he did was give

> me more stretches and excersizes, and said come back in 6 months.

I

> have to take pain medicine (oxycodone) every day for months now.

I

> just started on Glycosomine to see if that will help. I can't take

> anti-inflammatory anymore as making me sick. I have been reading

> books and now searching on -line for all the info I can get -

First

> book I read was the DR. s Knee Book and it is a really good

> book. I have read about all these things that they can do but am

> told nothing can be done for me????

> Now i am having pain in my fingers too ?? They said if it

continues

> they will do a bone scan. I have learned that you have to

research

> and kind of diagnose yourself, yourself? Doctors are of little

help

> in explaining it thats for sure. I went back to work but only 12

> hours a week and I have a family to provide for as am a single

> parent. I don't understand why they can't do arthroscope or

anything

> for me at all ??? even if i am pain free for a few months that

> would be better than pain every day all day??? Does anyone have

> any suggestions or advice for me ? I am 36 years old and have a

> lot to accomplish still? ahhhhhhhhhhhhhhhhhhhhhh

[Guest guest]

Mike Bernhardt <mlbernhardt@...> wrote:

Just Joined Site - would like to chat

with people going through what i am

> Now i am having pain in my fingers too ??

I know you say you can't take anti-inflammatories, but have you tried Vioxx?

I had pain in my fingers too, but when I started taking Vioxx for my CP the

pain in my fingers went totally away, although it only cut my CP pain by

about 25 to 50%.

I also have had inflammatory problems over the last 20 years, yet the

doctors can find no connection. I have had part of my colon removed because

of chronic inflammation and infection, tendonitis surgery in both elbows,

gout (which I am taking allopurinol for--and will for the rest of my life),

sinus inflammation and infection (two surgeries), plantars faciatis, and

serious pain in my fingers and shoulders. The only inflammation that is

currently causing me fits is the CP, but that has had me almost disabled

over the last year.

Mike

MT

[Guest guest]

To Lin - yes my pain is mostly in the baby finger too and when its cold it it

hurts the most - when yu have chondromalacia for a long time my understanding is

it becomes arthritis - osteoarthritis and from what i have read that spreads

throughout your body once yu have it in one place? this is just my guess ... i

have sciatica pain also but have fell on my tailbone a few times in my life but

reading up on sciatica i read that it can be from arthritis too that also

attacks the articular cartlidge in your tailbone area? i have no idea what can

be done for pain in hands but for your back there are simple stretches and ways

to stand and bend and sleep etc that can help... also keeping at a healthy

weight and strengthening your ab muscles helps ... i lost 80 pounds and my back

is not as bad as it used to be but it did not help my knee but i am sure my knee

would be worse if i still had that extra weight on me ...Good Luck Lin

To Mike

Hi .. wow sounds like you have a had a rough time ...thanks for your reply...

and the doctor gave me a whole pile of Viox samples but I never tried them

yet... she told me to go off the Mobicox and see if i felt better and i stopped

getting sick (i needed to know if it was the oxycodone makin me sick or the

Mobicox) Currently i am trying Glycosomine to see if that helps then if not i

will try the Vioxx - although its not covered on my drug plan but i have enough

samples to know if it will work...so...

i also have been getting bad sinus infections off and on for about a year and

half now- never get a normal cold i get this sinus thing instead- wierd- and my

elbows crack sometimes & cause some mild pain ...doctor said i have loose

joints...from what i have been reading arthritis can move through your body once

yu have it in one area if thats of any help? Good Luck to u ...

KeL

" W. Marcy " <wmarcy1083@...> wrote:

Mike Bernhardt <mlbernhardt@...> wrote:

Just Joined Site - would like to chat

with people going through what i am

> Now i am having pain in my fingers too ??

I know you say you can't take anti-inflammatories, but have you tried Vioxx?

I had pain in my fingers too, but when I started taking Vioxx for my CP the

pain in my fingers went totally away, although it only cut my CP pain by

about 25 to 50%.

I also have had inflammatory problems over the last 20 years, yet the

doctors can find no connection. I have had part of my colon removed because

of chronic inflammation and infection, tendonitis surgery in both elbows,

gout (which I am taking allopurinol for--and will for the rest of my life),

sinus inflammation and infection (two surgeries), plantars faciatis, and

serious pain in my fingers and shoulders. The only inflammation that is

currently causing me fits is the CP, but that has had me almost disabled

over the last year.

Mike

MT