Help

November 5, 2006

I live in ville And my son is 21 months and has had the fevers since he

was 13 months or so . It took a little while for me to notice a pattern. He had

fevers every 24 days or so fevering as high has 105.5 for 4-6 days. Mouth sores

and generally feeling badly (mostly when the fever is over 103). I also got the

run around then I put my foot down and he first was tested for cyclic

neutropenia 1 blood draw a week for 4 weeks than I saw a specialist at Emory

Children's center a Dr. Koburenski she is a immunology doctor. I went in there

and she knew exactly what was wrong with him (all the other doctors just looked

at me confused) the number is (404) 778-2400 that is the main number just ask

for her. Good Luck I hope this helps Write me back tell me how it goes. E-mail

in private and I will give you my number if you want to talk in more detail bye

now

ville Ga

mother of Kaden (3) and Landon 21mo

michele sawyer <mmsawyer2001@...> wrote:

I really need some help. My daughter Caitlyn is 11. I can trace the

fevers for 6 years. I too have been getting " Its a virus. " My boys never have

it. We finally changed peds and got a referal to an ID dr. The ID dr said that

he really did not see a need to see her. I cried all the way home when I

received this message from my voicemail. Caitlyn has the exact symptoms of your

children. She gets the metallic breath, Fevers as high as 104.5 that last 4-5

days, Ulcers on her throat (strep is negative). Abd pain, but no vomiting. I

live in the Atlanta area and would love to hear who anybody goes to see. How do

I help my baby?

Michele

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December 2, 2006

tough call -how much is teenage defiancy and whether it is or not how

to deal - unfortunately I don't have advice all under 7 here- I'm sure

others will jump in soon - I just know it sounded like me (not an

abusive) but a very " obsessive " relationship all about him in H.S (no

OCD here though)so that's why I say hard to tell - welcome -good luck-

sorry I'm not helpful also I'm not in the area but try the OCF website

eileen

Quoting MELANIE FARRISH <mfarrish@...>:

> MELANIE FARRISH <mfarrish@...> wrote:

> I have a daughter that is 17 years old and was

> recently diagnosed with OCD. She has been going to

> therapy since June. Although I believe she is getting

> along well with her therapist - things are not going

> well at home. Her therapist recently moved to NC (I

> am in Virgina) and is coming every other Sunday back

> to Virginia and seeing her. She was also seeing a

> Psychiatrist in Lynchburg, but I did not feel that the

> Psychiatrist was taking any time with her - she has

> been on Zoloft (50) and it may be helping the OCD some

> - but her anxiety level is off the charts. Her

> obsession unforunately these days is with a 16 year

> old boy that is abusive (he has his own family issues)

> and she is completely out of control when it comes to

> him. Everything revolves around him.

>

> Both my husband and I are at the point of exhaustion.

> We don't have any faith in our parenting skills at

> this point and are at our wits end. I cannot get her

> to go see another psychiatrist and she doesn't want to

> see another therapist. She is extremely defiant and

> we don't know where to turn. She is suppose to meet

> with her therapist tomorrow. Our plans are to come to

> the meeting (she doesn't know this) if she did she

> probably wouldn't go. Is there anyone in or near the

> Farmville, Virginia area that does OCD therapy. If

> that person could also help with the medication it

> would be wonderful. I have not had much success

> working with two different people. She is a senior in

> high school and won't graduate if she misses to much

> school. The boy she is obssessed with is also in her

> school.

>

> Help! any suggestions!!!!!!!!!

>

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December 2, 2006

We brought our therapist to the meetings. We also had a

neurodevelopmental eval done (insurance should pay for this for you

under general health) - and brought the eval with me. Read up as

much as possible what your son's diagnoses and symptoms are and

formulate an argument on paper for further testing or classification

based upon how these diagnoses and symptoms affect his ability to

learn when you request a child study team eval or re-eval. Request

that the special ed supervisor for the district attend and relay your

experiences or frustrations if necessary. They will know that you

mean business. Also, bring in some literature that speaks to your

son's needs for more support in school. If you need more help, e

mail me. Might also want to check out some other like

Sped Law, ect that deal with the IEP or special ed

processes.

Bonnie

>

> Our son has OCD and slight ADD. We are having trouble with the

school.

> They are doing everything to convince us of course that he is fine,

and

> have gone so far as to call him a " spoiled child " , who only likes

being in

> special classes because he can gloat to the other kids. GIVE me A

BREAK!

> He is in speech and adaptive PE but that will go nowhere to pull

him out of

> the dive he is in do to the school's refusal to address the issue.

>

> We have a 504 plan that is not being upheld. Now that we are more

in the

> know, we tend to notice we are being treated less and less kindly.

>

> We need an Advocate. We need someone to accompany us to the

meetings that

> know all the loop holes that the school is trying to shovel on us.

Where

> can we find such a person, organization, in the Southern CA area?

PLEASE

> HELP! Our boy's Psychiatrist has referred us to one group, but

they are

> way too expensive. Because this is a " Mental Disorder " our

insurance

> covers very little. ANY ideas?

>

December 3, 2006

Hi ,

I am sorry for your pain, I do know how you feel. My son is 17, high

school senior dropout because of OCD. First of all, the 50mg dose of

Zoloft will not begin to help OCD. That is way too little. My son was

taking 200mg per day and IT NEVER HELPED HIM. After 10 days in the

hospital and being changed to 100mg of Anafranil per day he is finally

having some good days. As far as defiance, I wondered that about my son

as well, but some very caring people here asked me was he defiant

before OCD struck and I had to say no. Unless you have some OCD issues

yourself you cannot understand what these kids go thru. Try to relax,

take the pressure/expectations off your daughter and remember school

will be there next year when she is better. Tell her you only want her

well and therapy alone will not do it. Has she been on any other meds?

Does the med DR she sees for RX have experience with OCD?

Good Luck!

Bill

December 4, 2006

Sorry to hear it is so rough right now - I can't help but wanted to send you a

cyber hug {{{ HUG }}}

Take care Jaxx (New Zealand)

January 4, 2007

what are you like at data entry? lots of places apparently require people to do this, and its as easy to do it at home as in the workplace with the right system. other alternatives are something like avon where you leave a catalogue and come back and collect it and the order later. Also i would ring some employment agencies in your area to see if they can come up with any ideas for you/ cheers Jewellyhamptonta <tondalaya@...> wrote: Good Evening, I am a mother of twins that have autism. I am a full time employee outside of my home and at this point I am looking for something so that I can work from home and be able to contribute to my household. If anyone on this message group knows of any companies where

you can work from home or business opportunities please email directly. I am at my wits end. Also, I live in Pittsburgh. Thanks

January 5, 2007

Have you looked at Sansone's walkaerobics workouts? I've only tried a couple so far but I like them because the movements are so simple even a complete klutz like me can do them without tripping over myself (most of the time anyway). She has beginner videos and more advanced ones. I've been doing the beginner ones and am ready for intermediate or advanced (faster, some with weights or resistance bands, bigger movements). Many people have lost lots of weight with her videos. She's very sincere and encouraging but some people find her a little too sweet or goofy or something. I think she's great though! www.lesliesansone.com.

help

I truly want to lose weight but I want a workout that will work for me. I just want a nice slow workout to start so thats why I thought of but anyone will do.

January 5, 2007

Lucas wrote:

> I truly want to lose weight but I want a workout that will work for

> me. I just want a nice slow workout to start so thats why I thought of

> but anyone will do.

have you tried leslie sansone walk away the pounds?

:*carolyn.

January 5, 2007

If you like dancing, try the bellydance

for fitness workouts. They are short and fun. I also like Crunch: Fat Burning

Dance Party and I see there are tons of dancy workouts. Try looking at http://www.collagevideo.com/ and typing

dance in the search window and you will see a ton of them. And you can preview

them there (well 60 seconds of them lol) I also like to use ballet type

workouts for strength training. You’d be amazed how sore you can get from

it even if you lift weights. My favorite is the New York City Ballet Workout. At

that same site you can also search for what you are looking for by your level

and type of exercise you want. If you take a look there and ask

here about what interests you, maybe someone will have tried it and can let you

know how they liked it. That’s what I usually do lol (peeking at

dancey workouts the dance off the inches ones look cheesy but fun) Oh I like

the Yoga Booty Ballet workouts too and they are sort of dancy and yoga-like in

one. Really enjoyable. And Turbo Jam is sort of dancey and kickboxy and super

fun. You can look at these at www.beachbody.com

Lucas wrote:

> I truly want to lose weight but I want a workout that will work for

> me. I just want a nice slow workout to start so thats why I thought of

> but anyone will do.

,___

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January 14, 2007

We have realized through the years that our son CRAVES deep sensory pressure in his jaw area. Alot of the time he bites his own hand --- not really bites as he never bleeds -- but he presses his hand and fingers REALLY hard into his mouth/teeth. But he also LOVES to "chin" us in the arms, back, head, etc. --- never hard enough to leave bruises -- but like I said you can tell he just craves the pressure. We have tried thera-tubes, etc for him to chew on to get that sensory stimulation -- but actually what he likes best are those plastic dog bone toys ( I know -- this may be gross, but we got a new puppy and soon realized that the plastic toys were disappearing and yes, our son had them!! -- oh course, I cleaned them up real good and they are now his for whenever he needs to "chew"). He also likes to chew on his toothbrush sometimes -- which is actually good for his teeth and gums, so we let him do that too. Or, you can get a pillow and place it between your arm, shoulder, wherever and hug your son tight and let him "chin" into the pillow. You could also try deep joint compressions in his hands/wrist area --- that could possibly help with the hitting?? I don't know about that one --- good luck!!

Lou

Help

Do any of your ASD kids press their chin as hard as they can on your

arm, back or anything close? I thought this was a behavior when my

child was mad. He use to run up to me and just press his chin as hard

as he could on my arm. I am wondering. From out of no where he is

pressing his chin and I have all the bruises to prove it. What can I

do? Any help is appreciated. He also is hitting me as he walks

by...Thanks

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January 14, 2007

Great advice; I thought I was the only one dealing with this hitting and chewing

everything up, including the TELEPHONE CORD and my ALARM CLOCK cord....no phone

and late for school.... AND shoe laces AND MY MOUSE CORD!!! Its like having a

new puppy in the house; not kidding

--

L. Hewatt

" Whoever survives a test, whatever it may be, must tell his

story. That is his duty. "

Elie Wiesel

" Only the really plain people know about love - the very fascinating

ones try so hard to create an impression that they soon exhaust their

talents. "

~~Katharine Hepburn

We have realized through the years that our son CRAVES deep sensory pressure in his jaw area. Alot of the time he bites his own hand --- not really bites as he never bleeds -- but he presses his hand and fingers REALLY hard into his mouth/teeth. But he also LOVES to "chin" us in the arms, back, head, etc. --- never hard enough to leave bruises -- but like I said you can tell he just craves the pressure. We have tried thera-tubes, etc for him to chew on to get that sensory stimulation -- but actually what he likes best are those plastic dog bone toys ( I know -- this may be gross, but we got a new puppy and soon realized that the plastic toys were disappearing and yes, our son had them!! -- oh course, I cleaned them up real good and they are now his for whenever he needs to "chew"). He also likes to chew on his toothbrush sometimes -- which is actually good for his teeth and gums, so we let him do that too. Or, you can get a pillow and place it between your arm, shoulder, wherever and hug your son tight and let him "chin" into the pillow. You could also try deep joint compressions in his hands/wrist area --- that could possibly help with the hitting?? I don't know about that one --- good luck!!

Lou

Help

Do any of your ASD kids press their chin as hard as they can on your

arm, back or anything close? I thought this was a behavior when my

child was mad. He use to run up to me and just press his chin as hard

as he could on my arm. I am wondering. From out of no where he is

pressing his chin and I have all the bruises to prove it. What can I

do? Any help is appreciated. He also is hitting me as he walks

by...Thanks

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

January 15, 2007

Hi Everyone,

I hear what you guys are going through and I have my share of stories, but what do you do to discipline? I keep redirecting over and over and over and over and it just isn't working. We aren't rich and can't afford to buy new furniture just because he wants to eat it. Now he is eating the blinds. Our home is a wreck. What do you do???

Thanks,

Help

Do any of your ASD kids press their chin as hard as they can on your arm, back or anything close? I thought this was a behavior when my child was mad. He use to run up to me and just press his chin as hard as he could on my arm. I am wondering. From out of no where he is pressing his chin and I have all the bruises to prove it. What can I do? Any help is appreciated. He also is hitting me as he walks by...Thanks

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

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January 15, 2007

Hi Everyone,

I hear what you guys are going through and I have my share of stories, but what do you do to discipline? I keep redirecting over and over and over and over and it just isn't working. We aren't rich and can't afford to buy new furniture just because he wants to eat it. Now he is eating the blinds. Our home is a wreck. What do you do???

Thanks,

Help

Do any of your ASD kids press their chin as hard as they can on your arm, back or anything close? I thought this was a behavior when my child was mad. He use to run up to me and just press his chin as hard as he could on my arm. I am wondering. From out of no where he is pressing his chin and I have all the bruises to prove it. What can I do? Any help is appreciated. He also is hitting me as he walks by...Thanks

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

Bored stiff? Loosen up...Download and play hundreds of games for free on Games.

January 15, 2007

here's my take on discipline...if one can train the most difficult of

dogs (in 95% of cases), then our kids who are brighter than most give

credit can learn right/wrong thru repetion of correcting the behavoir

and positive reinforcers. which is the basis behind dog obediance

training.

yes it much more physcially and emotionally demanding on us as

parents with our kids. it involves setting lots of concrete rules

and enforcing them 100% of the time. our kids can find the loophole

in any form of discipline. once they find there can be a loophole,

it becomes an obsessive, compulsive battle of the wills to find it

again. and we all know how some of our kids take OCD to extreme.

that said, we used the book, 123 magic as a guide. today at 5yo (we

started at 2yo when nonverbal with the method), i get compliments on

his behavior when in public. (at home, he knows the loopholes and

how tired mommy can be, so i get much more of the discipline issues

from him). anyhow, hope this helps...and i know all will not agree

with me. that is ok too. we all know our kids better than anyone!!

so do what works best for your family and your sanity!! hugs

>

> Hi Everyone,

>

> I hear what you guys are going through and I have my share of

stories, but what do you do to discipline? I keep redirecting over

and over and over and over and it just isn't working. We aren't rich

and can't afford to buy new furniture just because he wants to eat

it. Now he is eating the blinds. Our home is a wreck. What do you

do???

>

> Thanks,

>

> Help

>

> Do any of your ASD kids press their chin as hard as they can on

your

> arm, back or anything close? I thought this was a behavior when my

> child was mad. He use to run up to me and just press his chin as

hard

> as he could on my arm. I am wondering. From out of no where he is

> pressing his chin and I have all the bruises to prove it. What can

I

> do? Any help is appreciated. He also is hitting me as he walks

> by...Thanks

>

> Check out the new AOL. Most comprehensive set of free safety and

security tools, free access to millions of high-quality videos from

across the web, free AOL Mail and more.

>

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January 15, 2007