Question

September 24, 2007

Also, how long did they make you wait

after it was implanted before they would do the injections?

From:

[mailto: ] On Behalf Of Crone

Sent: Monday, September 24, 2007

4:02 PM

Subject: RE: question

Hi -

My scar looked horrible. My cardiologist told me it would be

pretty small, he was wrong. It is over an inch long and a half an inch

thick and it was very red and very puffy. I went to a dermatologist and

she told me it was a keloid, so basically I don't scar very well. Surgery

was an out because that would just product more scarring. I was mainly

concerned because I got married this summer and my dress was strapless.

What I ended up doing is getting 3 shots of steroids in the scar. One

shot in the middle and then one on each side. The puffiness went away

dramatically but it is still a pinkish/red. You can only get the shots

every 4-6 weeks (one at a time) and if you get too many it will make your scar

too thin. I was very happy with the results of getting these shots

because now the skin is flat! It doesn't hurt too bad, just a little

prick I guess. Anyways, it is the bes thing I have done for my scar

because those expensive scar creams/gels, don't work! Good luck!

Baker

<laurarnrochester (DOT) rr.com> wrote:

Is there anything that can be done for the

scar tissue? My latest obsession is that I can’t stand my scar.

It’s really awful looking. Has anyone gone to dermatology or anything?

AM

Subject: Re: question

Hi Stacie,

My incisions never heal very smoothly. I form a lot of

scar tissue, which can look like bubbles or lumps. However, I think you

should have your doctor take a look at it especially if it is red/inflamed.

Sydney

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September 24, 2007

They didn't really give me a time frame because it didn't interfere with my ICD at all, the shot just deals with the skin. The dermatologist did the injections for me, it took about 1 minute. I was in and out very quickly! The needle poked into the scar and it didn't go deep at all because the steroid is supposed to thin out the skin. I guess they don't have a need to go any further! Baker <laurarn@...> wrote: Also, how long did they make you wait after it was implanted before they would do the injections? From: [mailto: ] On Behalf Of CroneSent: Monday, September 24, 2007

4:02 PM Subject: RE: question Hi - My scar looked horrible. My cardiologist told me it would be pretty small, he was wrong. It is over an inch long and a half an inch thick and it was very red and very puffy. I went to a dermatologist and she told me it was a keloid, so basically I don't scar very well. Surgery was an out because that would just product more scarring. I was

mainly concerned because I got married this summer and my dress was strapless. What I ended up doing is getting 3 shots of steroids in the scar. One shot in the middle and then one on each side. The puffiness went away dramatically but it is still a pinkish/red. You can only get the shots every 4-6 weeks (one at a time) and if you get too many it will make your scar too thin. I was very happy with the results of getting these shots because now the skin is flat! It doesn't hurt too bad, just a little prick I guess. Anyways, it is the bes thing I have done for my scar because those expensive scar creams/gels, don't work! Good luck! Baker <laurarnrochester (DOT) rr.com> wrote: Is there anything that can be done for the scar tissue? My latest obsession is that I can’t stand my scar. It’s really awful looking. Has anyone gone to dermatology or anything? AM Subject: Re: question Hi Stacie, My incisions never heal very smoothly. I form a lot of scar tissue, which can look like bubbles or lumps. However, I think you should have your doctor take a look at it especially if it is red/inflamed. Sydney ----- Original Message ----- From: __________ NOD32 2547 (20070924) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Need a vacation? Get great deals to amazing places on Travel. __________ NOD32 2547 (20070924) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com

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September 24, 2007

Thanks. I’m going to definitely look

into that.

From:

[mailto: ] On Behalf Of Crone

Sent: Monday, September 24, 2007

4:56 PM

Subject: RE: question

They

didn't really give me a time frame because it didn't interfere with my ICD at

all, the shot just deals with the skin. The dermatologist did the

injections for me, it took about 1 minute. I was in and out very

quickly! The needle poked into the scar and it didn't go deep at all

because the steroid is supposed to thin out the skin. I guess they don't

have a need to go any further!

Baker <laurarnrochester (DOT) rr.com>

wrote:

Also, how long did they make you wait

after it was implanted before they would do the injections?

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September 24, 2007

Hi Stacie,

My incision does not lay flat anymore. Since my replacement last year I have a "bubble like appearance" where the skin ends and the underarm area begins. For me I am sure it is due to the excess weight I have on my body. I am now on a Medifast Diet and am sure it will change as I lose weight.

Take care,

See what's new at AOL.com and Make AOL Your Homepage.

January 15, 2008

--- sh0rtastic <sh0rtastic@...> wrote:

> does anyone know how i could estimate how many

> calories my life lift

> work out is burning daily?

>

> is life lift anaerobic exercise or aerobic exercise?

>

> _heather

>

Hi again ,

I keyed in " calorie conversion chart " and came up with

a whole page of ways and sites to do just that.

Hopefully, one of them will tell you what you are

looking for. ;-)Virginia

;-) Virginia

Finally, brethren, whatsoever things are true, whatsover things are honest,

whatsoever things are pure, whatsoever things are of good report; if there be

any virtue, and if there be any praise, think on these things. Philippians 4:8

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

February 21, 2008

Ellen, you must get your own BP cuff and start taking your own BP

measurements.

Is there any way you can live separately from him? That man's going to kill

you.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Ellen

The stress . set off my bipolar husband tremendously. . I am also wondering

if any of you out there have felt pressure in

your head from time to time that was caused by HBP. Because I did a

little research which said that often people with HBP don't even know

it. So is head pressure a sign?

February 21, 2008

Yes, I have a BP cuff, but it scares the cr** out of me, and I refuse to use it

any more. I posted on why before. I may take my BP at the grocery soon. Yes,

I have plans to move out for a month to maintain my equilibrium, but I'm on a

waiting list for an extended stay villa, and there's only one available. So it

may be a while. Meantime, I get relief from tai chi, and all the wonderful

alternative med. practitioners I go to. I'm 63, and have been married since I

was 19, so for me to make a major life change would also be stressful. I've

never had a full-time job since I was first married, and I also have leukemia.

I also just " go to my room, " we've lived in separate bedrooms since 1989. Do

you have any comment about the questions I asked below re HBP?

Ellen

Valarie wrote:

> Ellen, you must get your own BP cuff and start taking your own BP

> measurements.

>

> Is there any way you can live separately from him? That man's going to kill

> you.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Ellen

>

> The stress . set off my bipolar husband tremendously. . I am also wondering

> if any of you out there have felt pressure in

> your head from time to time that was caused by HBP. Because I did a

> little research which said that often people with HBP don't even know

> it. So is head pressure a sign?

February 21, 2008

No other comments. If your cuff scares you, get a new cuff.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Ellen

Yes, I have a BP cuff, but it scares the cr** out of me, and I refuse to use

it

any more.

Do you have any comment about the questions I asked below re HBP?

February 21, 2008

Yes, a manual one first. Then if you get electronic one you can check it.

Valarie wrote:

>

> No other comments. If your cuff scares you, get a new cuff.

>

> Val

>

> From: hyperaldosteronism

> <mailto:hyperaldosteronism%40>

> [mailto:hyperaldosteronism

> <mailto:hyperaldosteronism%40>] On Behalf Of Ellen

>

> Yes, I have a BP cuff, but it scares the cr** out of me, and I refuse

> to use

> it

> any more.

>

> Do you have any comment about the questions I asked below re HBP?

>

> [

>

March 16, 2008

Hi Stacie, My son Ross has this happen. He can go months without it happening, then wham, it starts up and sometimes goes on like that for a few nights. His EP told him that because he has a slow heart rate at night, the pacer portion of his ICD paces the heart back to a normal rhythm, so it feels as though it is beating really fast. He has both ends of the spectrum, fast and slow heart rates... He hasn't ever been shocked during the slow heart rate episodes, but he does get very nervous that his ICD might zap him. He tries to take slow deep breaths to calm his fears, and it usually works. I also have this happen at night, although I do not have an ICD, but I do have rhythm glitches in my heart. My son and I are both on Atenolol and it helps to block the goofy rhythm problems. I would talk to your Doctor to make sure all is ok, just to be on the safe side. It can truly be

scary! Laurie (Ross' Mom)LIghtingpaw <lightingpaw@...> wrote: has anyone on here ever woken up in the middle of the night sweatign and there heart pumping like ythey just ran a race ? the last two nights this has been happening !!! just wondering if aanyone asle has had this happen to thim ! stacie ,24 shocking life ofr shocking people !!!!

March 16, 2008

Hi Stacie:

Yes, I've woken up with my heart racing and I usually associate it with

waking up with a start or a jolt.

Sometimes when I'm falling asleep, just as I start dozing off, I'll

twitch or jolt myself awake and my heart will

be racing. I had asked my cardiologist about this and he told me it was

nothing to worry about...

Hope all is well with you and that you have an great weekend!

Sincerely,

Jody Champlin

LIghtingpaw wrote:

> has anyone on here ever woken up in the middle of the night sweatign

> and there heart pumping like ythey just ran a race ? the last two

> nights this has been happening !!! just wondering if aanyone asle has

> had this happen to thim !

>

> stacie ,24 shocking life ofr shocking people !!!!

>

March 16, 2008

think for your reply i am paced alot for slow heart rate i'm on both atenol and amiodrone and dig to control my rythmias among others i do get paced alot but nomraly my slow pace is diffrent from this ! even at night ! i ahve been zapped before in my sleep ! just very unusal for me to wake up with it raceing ! i think i will ask my doctor ! stacie,24 shocking life for shocking people Laurie Gertenbach <dlrgertenbach@...> wrote: Hi

Stacie, My son Ross has this happen. He can go months without it happening, then wham, it starts up and sometimes goes on like that for a few nights. His EP told him that because he has a slow heart rate at night, the pacer portion of his ICD paces the heart back to a normal rhythm, so it feels as though it is beating really fast. He has both ends of the spectrum, fast and slow heart rates... He hasn't ever been shocked during the slow heart rate episodes, but he does get very nervous that his ICD might zap him. He tries to take slow deep breaths to calm his fears, and it usually works. I also have this happen at night, although I do not have an ICD, but I do have rhythm glitches in my heart. My son and I are both on Atenolol and it helps to block the goofy rhythm problems. I would talk to your Doctor to make sure all is ok, just to be on the safe side. It can truly be scary!

Laurie (Ross' Mom)LIghtingpaw <lightingpawsbcglobal (DOT) net> wrote: has anyone on here ever woken up in the middle of the night sweatign and there heart pumping like ythey just ran a race ? the last two nights this has been happening !!! just wondering if aanyone asle has had this happen to thim ! stacie ,24 shocking life ofr shocking people !!!!

March 16, 2008

----- Original Message ----From: Lightingpaw

> has anyone on here ever woken up in the middle of the night sweating and their heart pumping like they just ran a race ?

stacie:

I can't even wake up my wife in the middle of the night when I'm sweating and my heart is ppumping like I just ran a race. When I was young I was afraid we'd wake the nkids. Now I can't even wake the wife. If it wasn't for our sex life, I don't think she's get any real sleep at all.

From California where waking up in the middle of the night sweating used to mean your partner said something like, "Oh my god. My husband's home!"

Mahanaze

March 16, 2008

Bill:

Keep those laughs coming! LOL You are too much! ;-)

Jody Champlin

Holden, MA

MARTHA or BILL MAHAN wrote:

-----

Original Message ----

From: Lightingpaw

> has anyone on here ever woken up in the middle of the

night sweating and their heart pumping like they just ran a race ?

stacie:

I can't even wake up my wife in the middle of the night when I'm

sweating and my heart is ppumping like I just ran a race. When I was

young I was afraid we'd wake the nkids. Now I can't even wake the

wife. If it wasn't for our sex life, I don't think she's get any real

sleep at all.

From California where waking up in the middle of the night

sweating used to mean your partner said something like, "Oh my god. My

husband's home!"

Mahanaze

March 16, 2008

----- Original Message ----From: Jody Champlin

Holden, MA

That's what Keeps Pa happy at night. 9And alive as long as he's not holdin' anyone else.)

From California where Ma and Pa live in the country; Mommy and Daddy live in the city;

om and Dad live in the suburbs; Mother and Father live in a gated community, and mater and pater live in the minds of yuppies.

Mahanaze

MARTHA or BILL MAHAN wrote:

----- Original Message ----From: Lightingpaw

> has anyone on here ever woken up in the middle of the night sweating and their heart pumping like they just ran a race ?

stacie:

I can't even wake up my wife in the middle of the night when I'm sweating and my heart is ppumping like I just ran a race. When I was young I was afraid we'd wake the nkids. Now I can't even wake the wife. If it wasn't for our sex life, I don't think she's get any real sleep at all.

From California where waking up in the middle of the night sweating used to mean your partner said something like, "Oh my god. My husband's home!"

Mahanaze

March 17, 2008

I

have been waiting for the right post for me to say hello to you folks in!

When I read this one I knew it was it …. Please know Stacie that I

am not saying that the story I am about to tell you has ANYTHING to do with

your condition, it was just similar complaints from an unexpected patient!

I

have been a firefighter/paramedic/educator for 36 years now, and I have been

called out on the same symptoms you describe hundreds of times. The

cause of the symptoms range from life threatening to bordering on comic,

as in the case I am about to describe. These symptoms should NOT be taken

lightly unless you know what triggers them and know medically they are nothing

to worry about. They can, as I mentioned, be life threatening tachycardia’s

that need to be cardioverted either emergently or electively that night but

most often they were from other causes. I take it that these were two separate

events both waking you from sleep and self relieving??? That is

comforting since it is not the usual presentation for the life threatening

causes, but should still be evaluated!

What

I primarily wanted to share was a memory of a call your post reminded me

of. I worked for City of San Diego and was stationed at one of their fire

stations. The engine Capt use to be a paramedic and we VERY VERY good, we

always loved having his back up on calls. Not only technically good, but

he was good with people too, no medicine we carry is as effective as a calming

touch or comforting word at the right time.

It

is 3:30 AM and we get a call for Chest Pain, pt conscious. We arrive to

find our off duty tonight Capt as the patient … he gave a nervous laugh

when I walked in and said it was OK, he was fine ( yet he was pale and very

sweaty …NOT good signs in the presence of chest pain that he called

in). But when he explained what happened it all made sense….

He

was sleeping and dreamed he was back in the Navy. He said he was doing

routine tasks that had nothing to do with medicine when he sees his commanding

officer coming at him with defib paddles in hand!

He

asked, “what are you doing?”

CO

said “ I’m gonna shock you, your in VFib!”

Our

Capt protested he was not, he was fine and not even feeling ill and noted that

he was not even hooked up to a monitor!

CO

said: “Don’t matter, your in VFib and I’m gonna shock you!”

CO

ripped his shirt off in one quick movement placed the paddles on his chest, the

defibrillator could be heard charging as he screamed for the CO to STOP!!

He

said he then woke up with crushing sub sterna chest pain radiating down his

arms, drenched in sweat and the heart pounding as you described so he called

911 sure she was having a heart attack.

Within

the 4 minutes it took us to get there she said he fully woke up, all the

symptoms were 85-90% gone, no chest pain no palpitations, we hooked him up to

the ECG and his rhythm was totally normal.

We

offered to take him in for a check up if he wanted but said he had DEFINITLY

run a few too many medical calls that week and he should at least call in sick

a couple shifts! He didn’t ( I knew he would not, he loves his job

as much as I did) and he was fine….did make him rethink a few lifestyle

issues he worked on so maybe it even did HIM some good!

I

hope, Stacie, that yours have just such an ending. You do need to learn

the cause and deal with that, just treating the symptoms is usually bordering

on useless if you don’t fix the cause of the symptoms.

From:

[mailto: ] On Behalf Of LIghtingpaw

Sent: Saturday, March 15, 2008 6:08 PM

Subject: question

has anyone on here ever woken up in the middle of the

night sweatign and there heart pumping like ythey just ran a race ? the

last two nights this has been happening !!! just wondering if aanyone asle has

had this happen to thim !

stacie ,24 shocking life ofr shocking people

!!!!

March 18, 2008

thinks wow what a storie ! yes i talked with ym doctor seems i'm having runs just below "fire power line " basicaly my heart IS going into vtach but not highe enough orlong enough in one run to cause the debifribaltor to react ! when my defibrilator has fired off before in sleep alot of times i sl;ept right through ti a few times i woke to ti fireing off ! talk about a wake up call ! i do remindber one time this las december i paased out in biglots thinkfuly "seanw as with me and alerted a store clerk to the need of help b then layed at my side why they took care of me and called 911" andways i could hear what was goign on aroudn me in my mind i was thinking this was al some huge dream ! abnnd keep asking my self was it a dream or real just before i passed out my heart went out i knew it had and i made to sit down in the middle of the floor in the middle of the store since there was now where to sit down

anyways they yelled for soemone to call 911 after sean alertign thim they though i was havign a seize ! i awoke from the dfireing of the icd i knew it fired ! i could feel it it fired of four times ! the fire dseptamernt gets there says i look fine dos not beleave i ahve a icd agreues with em that i no way no how could knwo if it wheent off finaly they hooked me up to the montire my heart reat was still very high abotu the 170s but my fire point is 200 so they took em to the hospital ! anyways long storey short i did call my doctor she beleves i am having runs just under the shock rate and that they shoculd be montider she feels they will clear up when they get my digixon level back under control ! think you very much for you post and i ahev never taken my heart issuses lightly ! or any of ,y health issues ! i sure hope this finds you and everyoen easle doing well

! stacie,24 shockign life for shocking peopleDan Mohrbacher <dan@...> wrote: I have been waiting for the right post for me to say hello to you folks in! When I read this one I knew it was it …. Please know Stacie that I am not saying that the story I am about to tell you has ANYTHING to do with your condition, it was just similar complaints from an unexpected patient! I have been a firefighter/paramedic/educator for 36 years now, and I have been called out on the same symptoms you describe hundreds of times. The cause of the symptoms range from life threatening to bordering on comic, as in the case I am about to describe. These symptoms should NOT be taken lightly unless you know what triggers them and know medically they are nothing to worry about. They can, as I mentioned, be life threatening tachycardia’s that need to be cardioverted either emergently or electively that night but most often they were from other causes. I take it that these were two separate events both waking you from sleep and self relieving??? That is comforting since it is not the usual presentation for the life threatening causes, but should still be evaluated! What I primarily wanted to share was a memory of a call your post reminded me of. I worked for City of San Diego and was stationed at one of their fire stations. The engine Capt use to be a paramedic and we VERY VERY good, we always loved having his back up on calls. Not only technically good, but he was good with people too, no medicine we carry is as effective as a calming touch or comforting word at the right time. It is 3:30 AM and we get a call for Chest Pain, pt conscious. We arrive to find our off duty tonight Capt as the patient … he gave a nervous laugh when I walked in and said it was OK, he was fine ( yet he was pale and very sweaty …NOT good signs in the presence of chest pain

that he called in). But when he explained what happened it all made sense…. He was sleeping and dreamed he was back in the Navy. He said he was doing routine tasks that had nothing to do with medicine when he sees his commanding officer coming at him with defib paddles in hand! He asked, “what are you doing?” CO said “ I’m gonna shock you, your in VFib!” Our Capt protested he was not, he was

fine and not even feeling ill and noted that he was not even hooked up to a monitor! CO said: “Don’t matter, your in VFib and I’m gonna shock you!” CO ripped his shirt off in one quick movement placed the paddles on his chest, the defibrillator could be heard charging as he screamed for the CO to STOP!! He said he then woke up with crushing sub sterna chest pain radiating down his arms, drenched in sweat and the heart pounding as you described so he called 911 sure she was having a heart attack. Within the 4 minutes it took us to get there she said he fully woke up, all the symptoms were 85-90% gone, no chest pain no palpitations, we hooked him up to the ECG and his rhythm was totally normal. We offered to take him in for a check up if he wanted but said he had DEFINITLY run a few too many medical calls that week and he should at least call in sick a couple shifts! He didn’t ( I knew he would not, he loves his job as much as I did) and he was fine….did make him rethink a few lifestyle issues he worked on so maybe it even did HIM some good! I hope, Stacie, that yours

have just such an ending. You do need to learn the cause and deal with that, just treating the symptoms is usually bordering on useless if you don’t fix the cause of the symptoms. From: [mailto: ] On Behalf Of LIghtingpawSent: Saturday, March 15, 2008 6:08 PM Subject: question has anyone on here ever woken up in the middle of the night sweatign and there heart pumping like ythey just ran a race ? the last two

nights this has been happening !!! just wondering if aanyone asle has had this happen to thim ! stacie ,24 shocking life ofr shocking people !!!!

March 19, 2008

Hi Dan, I KNOW I shouldnt ask you the following question, but, the answer you give won't change anything anyways.

A little bit of history here,,,my husband has had a defibrillator since 1996. In 2005 his kidneys were failing fast, and he was put on a kidney transplant waiting list. We were able to find a live donor, and Tom was *this* close to getting the transplant. On May 15, 2006, Tom woke up early, told me he was very short of breath. I told him I would call an ambulance because I did not want him walking out to our car. The firemen got here first, followed a minute later by the ambulance. Tom was put on a stretcher. On their way out the front door, I saw Tom's head slump down. I could tell he was in cardiac arrest when he was being put in the ambulance. I wasn't worried, "He's got a defibillalltor." 45 minutes later, after working on him in the ambulance, I was told that he was dead. The ambulance never left my house., for the 5 minute drive to the hospital.

(Big sigh of hesitation here).........Would Tom have had a chance, had he been rushed to the hospital? In the weeks to follow, I was able to get a run report, (I think thats what it was called) with details of every procedure they tried on Tom, with the words. 'no response' after each line.

Thanks,

Subject: RE: question

Dan Mohrbacher <dan@...> wrote:

I have been waiting for the right post for me to say hello to you folks in! When I read this one I knew it was it …. Please know Stacie that I am not saying that the story I am about to tell you has ANYTHING to do with your condition, it was just similar complaints from an unexpected patient!

I have been a firefighter/paramedic/educator for 36 years now, and I have been called out on the same symptoms you describe hundreds of times. The cause of the symptoms range from life threatening to bordering on comic, as in the case I am about to describe. These symptoms should NOT be taken lightly unless you know what triggers them and know medically they are nothing to worry about. They can, as I mentioned, be life threatening tachycardia’s that need to be cardioverted either emergently or electively that night but most often they were from other causes. I take it that these were two separate events both waking you from sleep and self relieving??? That is comforting since it is not the usual presentation for the life threatening causes, but should still be evaluated!

What I primarily wanted to share was a memory of a call your post reminded me of. I worked for City of San Diego and was stationed at one of their fire stations. The engine Capt use to be a paramedic and we VERY VERY good, we always loved having his back up on calls. Not only technically good, but he was good with people too, no medicine we carry is as effective as a calming touch or comforting word at the right time.

It is 3:30 AM and we get a call for Chest Pain, pt conscious. We arrive to find our off duty tonight Capt as the patient … he gave a nervous laugh when I walked in and said it was OK, he was fine ( yet he was pale and very sweaty …NOT good signs in the presence of chest pain that he called in). But when he explained what happened it all made sense….

He was sleeping and dreamed he was back in the Navy. He said he was doing routine tasks that had nothing to do with medicine when he sees his commanding officer coming at him with defib paddles in hand!

He asked, “what are you doing?”

CO said “ I’m gonna shock you, your in VFib!”

Our Capt protested he was not, he was fine and not even feeling ill and noted that he was not even hooked up to a monitor!

CO said: “Don’t matter, your in VFib and I’m gonna shock you!”

CO ripped his shirt off in one quick movement placed the paddles on his chest, the defibrillator could be heard charging as he screamed for the CO to STOP!!

He said he then woke up with crushing sub sterna chest pain radiating down his arms, drenched in sweat and the heart pounding as you described so he called 911 sure she was having a heart attack.

Within the 4 minutes it took us to get there she said he fully woke up, all the symptoms were 85-90% gone, no chest pain no palpitations, we hooked him up to the ECG and his rhythm was totally normal.

We offered to take him in for a check up if he wanted but said he had DEFINITLY run a few too many medical calls that week and he should at least call in sick a couple shifts! He didn’t ( I knew he would not, he loves his job as much as I did) and he was fine….did make him rethink a few lifestyle issues he worked on so maybe it even did HIM some good!

I hope, Stacie, that yours have just such an ending. You do need to learn the cause and deal with that, just treating the symptoms is usually bordering on useless if you don’t fix the cause of the symptoms.

From: [mailto: ] On Behalf Of LIghtingpawSent: Saturday, March 15, 2008 6:08 PM Subject: question

has anyone on here ever woken up in the middle of the night sweatign and there heart pumping like ythey just ran a race ? the last two nights this has been happening !!! just wondering if aanyone asle has had this happen to thim !

stacie ,24 shocking life ofr shocking people !!!!

March 19, 2008

I’m so sorry to hear about your

husband.

This is my speculation as a nurse

practitioner who works in the emergency department.

If the ICD didn’t bring him back, he

was most likely in asystole (flat line) unless of course the ICD failed.

Advanced Cardiac Life Support protocol is

standardized between all prehospital and hospital providers.. most likely there

weren’t doing anything differently than the emergency department

personnel would do.

My guess would be hyperkalemia (high

potassium) from kidney failure. Were you given a cause of death?

Again, I’m so sorry.

From: [mailto: ] On Behalf Of Cheeky

Sent: Tuesday, March 18, 2008 8:13

PM

Subject: Re: question

Hi Dan, I

KNOW I shouldnt ask you the following question, but, the answer you give won't

change anything anyways.

A little bit

of history here,,,my husband has had a defibrillator since 1996. In

2005 his kidneys were failing fast, and he was put on a kidney transplant

waiting list. We were able to find a live donor, and Tom was *this*

close to getting the transplant. On May 15, 2006, Tom woke up

early, told me he was very short of breath. I told him I would call

an ambulance because I did not want him walking out to our car. The

firemen got here first, followed a minute later by the ambulance. Tom was

put on a stretcher. On their way out the front door, I saw Tom's head

slump down. I could tell he was in cardiac arrest when he was being

put in the ambulance. I wasn't worried, " He's got a

defibillalltor. " 45 minutes later, after working on him

in the ambulance, I was told that he was dead. The ambulance never

left my house., for the 5 minute drive to the hospital.

(Big sigh of

hesitation here).........Would Tom have had a chance, had he been rushed

to the hospital? In the weeks to follow, I was able to get a run

report, (I think thats what it was called) with details of every procedure

they tried on Tom, with the words. 'no response' after each line.

Thanks,

Subject: RE:

question

Dan Mohrbacher

<danAedAdvocates> wrote:

I have been waiting for the right post for me to say hello to you folks

in! When I read this one I knew it was it …. Please know

Stacie that I am not saying that the story I am about to tell you has ANYTHING

to do with your condition, it was just similar complaints from an unexpected

patient!

I have been a firefighter/paramedic/educator for 36

years now, and I have been called out on the same symptoms you describe

hundreds of times. The cause of the symptoms range from life threatening

to bordering on comic, as in the case I am about to describe. These

symptoms should NOT be taken lightly unless you know what triggers them and

know medically they are nothing to worry about. They can, as I mentioned,

be life threatening tachycardia’s that need to be cardioverted either

emergently or electively that night but most often they were from other

causes. I take it that these were two separate events both waking you

from sleep and self relieving??? That is comforting since it is not

the usual presentation for the life threatening causes, but should still be

evaluated!

What I primarily wanted to share was a memory of a call your

post reminded me of. I worked for City of San Diego and was stationed at one of their

fire stations. The engine Capt use to be a paramedic and we VERY VERY

good, we always loved having his back up on calls. Not only technically

good, but he was good with people too, no medicine we carry is as effective as

a calming touch or comforting word at the right time.

It is 3:30 AM and we get a call for Chest Pain, pt

conscious. We arrive to find our off duty tonight Capt as the patient

… he gave a nervous laugh when I walked in and said it was OK, he was

fine ( yet he was pale and very sweaty …NOT good signs in the presence of

chest pain that he called in). But when he explained what happened it all

made sense….

He was sleeping and dreamed he was back in the Navy. He

said he was doing routine tasks that had nothing to do with medicine when he

sees his commanding officer coming at him with defib paddles in hand!

He asked, “what are you doing?”

CO said “ I’m gonna shock you, your in VFib!”

Our Capt protested he was not, he was fine and not even feeling

ill and noted that he was not even hooked up to a monitor!

CO said: “Don’t matter, your in VFib and I’m

gonna shock you!”

CO ripped his shirt off in one quick movement placed the paddles

on his chest, the defibrillator could be heard charging as he screamed for the

CO to STOP!!

He said he then woke up with crushing sub sterna chest pain

radiating down his arms, drenched in sweat and the heart pounding as you

described so he called 911 sure she was having a heart attack.

Within the 4 minutes it took us to get there she said he

fully woke up, all the symptoms were 85-90% gone, no chest pain no

palpitations, we hooked him up to the ECG and his rhythm was totally

normal.

We offered to take him in for a check up if he wanted but said

he had DEFINITLY run a few too many medical calls that week and he should at

least call in sick a couple shifts! He didn’t ( I knew he would

not, he loves his job as much as I did) and he was fine….did make him

rethink a few lifestyle issues he worked on so maybe it even did HIM some good!

I hope, Stacie, that yours have just such an ending. You

do need to learn the cause and deal with that, just treating the symptoms is

usually bordering on useless if you don’t fix the cause of the symptoms.

From:

[mailto: ]

On Behalf Of LIghtingpaw

Sent: Saturday, March 15, 2008

6:08 PM

Subject: question

has anyone on here ever woken up in the middle of the night

sweatign and there heart pumping like ythey just ran a race ? the last two

nights this has been happening !!! just wondering if aanyone asle has had this

happen to thim !

stacie ,24 shocking life ofr shocking people !!!!

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March 19, 2008

now that is what scares me. i also have an icd/pacer and until now, for some silly reason i felt safe. would you not go into an irregular rhythm that the icd would not fire? (unless of course as you suggested, the device failed for some reason).

i am sure that, even if just for a fleeting moment, all of us in this position have questioned our own mortality and something like that happening just brings it back to the forefront...........

i also am so sorry for your loss cheeky

evie

question

has anyone on here ever woken up in the middle of the night sweatign and there heart pumping like ythey just ran a race ? the last two nights this has been happening !!! just wondering if aanyone asle has had this happen to thim !

stacie ,24 shocking life ofr shocking people !!!!

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March 19, 2008

I am soo sory about your husband. Please accept my condolences, my thoughts and prayers. TURK Baker <laurarn@...> wrote: I’m so sorry to hear about your husband. This is my speculation as a nurse practitioner who works in the emergency department. If the ICD didn’t bring him back, he was most likely in asystole (flat line) unless of course the ICD failed. Advanced Cardiac Life Support protocol is standardized between all prehospital and hospital providers.. most likely there weren’t doing anything differently than the emergency department personnel would

do. My guess would be hyperkalemia (high potassium) from kidney failure. Were you given a cause of death? Again, I’m so sorry. From: [mailto: ] On Behalf Of CheekySent: Tuesday, March 18, 2008 8:13 PM Subject: Re: question Hi Dan, I KNOW I shouldnt ask you the following question, but, the answer you give won't change anything anyways. A little bit of history here,,,my husband has had a defibrillator since 1996. In

2005 his kidneys were failing fast, and he was put on a kidney transplant waiting list. We were able to find a live donor, and Tom was *this* close to getting the transplant. On May 15, 2006, Tom woke up early, told me he was very short of breath. I told him I would call an ambulance because I did not want him walking out to our car. The firemen got here first, followed a minute later by the ambulance. Tom was put on a stretcher. On their way out the front door, I saw Tom's head slump down. I could tell he was in cardiac arrest when he was being put in the ambulance. I wasn't worried, "He's got a defibillalltor." 45 minutes later, after working on him in the ambulance, I was told that he was dead. The ambulance never left my house., for the 5 minute drive to the hospital. (Big sigh of hesitation here).........Would Tom have had a chance, had he been rushed to the hospital? In the weeks to follow, I was able to get a run report, (I think thats what it was called) with details of every procedure they tried on Tom, with the words. 'no response' after each line. Thanks, Subject: RE: question Dan Mohrbacher <danAedAdvocates> wrote: I have been waiting for the right post for me to say hello to you folks in! When I read this one I knew it was it …. Please know Stacie that I am not saying that the story I am about to tell you has ANYTHING to do with your condition, it was just similar complaints from an unexpected patient! I have been a firefighter/paramedic/educator for 36 years now, and I have been called out on the same symptoms you describe hundreds of times. The cause of the symptoms range from life threatening to bordering on comic, as in the case I am about to describe. These symptoms should NOT be taken lightly unless you know what triggers them and know medically they are nothing to worry about. They can, as I mentioned, be life threatening tachycardia’s that need to be

cardioverted either emergently or electively that night but most often they were from other causes. I take it that these were two separate events both waking you from sleep and self relieving??? That is comforting since it is not the usual presentation for the life threatening causes, but should still be evaluated! What I primarily wanted to share was a memory of a call your post reminded me of. I worked for City of San Diego and was stationed at one of their fire stations. The engine Capt use to be a paramedic and we VERY VERY good, we always loved having his back up on calls. Not only technically good, but he was good with people too, no medicine we carry is as effective as a calming touch or comforting word at the right time. It is 3:30 AM and we get a call for Chest Pain, pt conscious. We arrive to find our off duty tonight Capt as the patient … he gave a nervous laugh when I walked in and said it was OK, he was fine ( yet he was pale and very sweaty …NOT good signs in the presence of chest pain that he called in). But when he explained what happened it all made sense…. He was sleeping and dreamed he was back in the Navy. He said he was doing routine tasks that had nothing to do with medicine when he sees his commanding officer coming at him with defib paddles in hand! He asked, “what are you

doing?” CO said “ I’m gonna shock you, your in VFib!” Our Capt protested he was not, he was fine and not even feeling ill and noted that he was not even hooked up to a monitor! CO said: “Don’t matter, your in VFib and I’m gonna shock you!” CO ripped his shirt off in one quick movement placed the paddles on his chest, the defibrillator could be heard charging as he screamed for the CO to

STOP!! He said he then woke up with crushing sub sterna chest pain radiating down his arms, drenched in sweat and the heart pounding as you described so he called 911 sure she was having a heart attack. Within the 4 minutes it took us to get there she said he fully woke up, all the symptoms were 85-90% gone, no chest pain no palpitations, we hooked him up to the ECG and his rhythm was totally normal. We offered to take him in for a check up if he wanted but said he had DEFINITLY run a few too many medical calls that week and he should at

least call in sick a couple shifts! He didn’t ( I knew he would not, he loves his job as much as I did) and he was fine….did make him rethink a few lifestyle issues he worked on so maybe it even did HIM some good! I hope, Stacie, that yours have just such an ending. You do need to learn the cause and deal with that, just treating the symptoms is usually bordering on useless if you don’t fix the cause of the symptoms. From: [mailto: ] On Behalf Of LIghtingpawSent: Saturday, March 15, 2008 6:08 PM Subject: question has anyone on here ever woken up in the middle of the night sweatign and there heart pumping like ythey just ran a race ? the last two nights this has been happening !!! just wondering if aanyone asle has had this happen to thim ! stacie ,24 shocking life ofr shocking people !!!!

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March 19, 2008

Thanks for writing, .

I just looked at the run report again, and the word asystole is in there several times. His icd WAS working, when I was allowed to go in the ambulance after he was dead, the icd was still firing, although quite weakly, low battery I suppose after 45 minutes.

We didn't have an autopsy done. It is required in the county where I live, if the person dies at home, but because Tom was already in the hands of the paramedics when he died, it wasnt required.

The death certificate, signed by his nephrologist, says : Cause of death, end stage renal disease. Underlying, congestive heart failure , pulmonary edema.

Love,

RE: question

Dan Mohrbacher <danAedAdvocates> wrote: