Re: Anyone moved a whole family and now free of the mitemare?

[Guest guest]

I moved twice and they went with me. Address chronic infections and they will no longer be attracted to you. For me it was Lyme, bartonella, babesia, fungal infections and who knows what else. All mold toxins must be non-existent in your living environment as well.It took me one year on antibiotics- Rx and herbal to be bug free. I am still treating chronic infections though- it's been 2 years total. Lyme is usually the root infection because it shuts down the immune system in a big way.AandrayaOn Nov 10, 2011, at 1:15 PM, Linds J <lj_mom11@...> wrote:

Just curious to see if anyone with kids was able to move and be free? I've heard of some moving and being fine but it seems as they just had themselves or one other person to worry about. I am a family of 4 + a dog. We've been dealing with this since the end of July and have finally realized whats going on. I'm the one bothered the most but my two children had bites. My youngest had a rash on the arms and the derm said heat rash. My oldest had what looked like an allergic reaction all over the chest and belly. I did as well. My huband has had a few days of itching but that may be from all the crap I am using in the wash. The dog shakes his head. I'm pretty sure I have them internally as well. We're trying to figure out the best route in hopes that our children could have normal happy lives. Any

thoughts or suggestions? Thanks

[Guest guest]

Also, my daughter and boyfriend were not bothered by the bugs and skin problems because they had no chronic internal infections.AandrayaOn Nov 10, 2011, at 1:15 PM, Linds J <lj_mom11@...> wrote:

Just curious to see if anyone with kids was able to move and be free? I've heard of some moving and being fine but it seems as they just had themselves or one other person to worry about. I am a family of 4 + a dog. We've been dealing with this since the end of July and have finally realized whats going on. I'm the one bothered the most but my two children had bites. My youngest had a rash on the arms and the derm said heat rash. My oldest had what looked like an allergic reaction all over the chest and belly. I did as well. My huband has had a few days of itching but that may be from all the crap I am using in the wash. The dog shakes his head. I'm pretty sure I have them internally as well. We're trying to figure out the best route in hopes that our children could have normal happy lives. Any

thoughts or suggestions? Thanks

[Guest guest]

We moved twice also.  They followed though on smaller scale.  My husband used to get crawlies but no bites.  My baby had bites which was diagnosed as heat rash as well.  Now I only get bites, and I know they are living in me.

Moving won't help me.  As I have finally realized, I must address my internal issues immediatey.

On Nov 10, 2011 2:24 PM, " Aandraya " <aandraya@...> wrote:

 

Also, my daughter and boyfriend were not bothered by the bugs and skin problems because they had no chronic internal infections.AandrayaOn Nov 10, 2011, at 1:15 PM, Linds J <lj_mom11@...> wrote:

>  >> Just curious to see if anyone with kids was able to move and be free? I've heard of some mov...

[Guest guest]

Have you ever been exposed to ticks? Or mosquitoes now for that matter? Bartonella- a bacterial infection commonly present with Lyme causes itching/crawling/biting/ movement sensations. Have you ever had any skin lesions that don't heal?AandrayaOn Nov 10, 2011, at 1:48 PM, Elissa <elissarachel@...> wrote:

We moved twice also. They followed though on smaller scale. My husband used to get crawlies but no bites. My baby had bites which was diagnosed as heat rash as well. Now I only get bites, and I know they are living in me.

Moving won't help me. As I have finally realized, I must address my internal issues immediatey.

On Nov 10, 2011 2:24 PM, "Aandraya" <aandraya@...> wrote:

Also, my daughter and boyfriend were not bothered by the bugs and skin problems because they had no chronic internal infections.AandrayaOn Nov 10, 2011, at 1:15 PM, Linds J <lj_mom11@...> wrote:

> >> Just curious to see if anyone with kids was able to move and be free? I've heard of some mov...

[Guest guest]

What state do you live in?On Nov 10, 2011, at 1:48 PM, Elissa <elissarachel@...> wrote:

We moved twice also. They followed though on smaller scale. My husband used to get crawlies but no bites. My baby had bites which was diagnosed as heat rash as well. Now I only get bites, and I know they are living in me.

Moving won't help me. As I have finally realized, I must address my internal issues immediatey.

On Nov 10, 2011 2:24 PM, "Aandraya" <aandraya@...> wrote:

Also, my daughter and boyfriend were not bothered by the bugs and skin problems because they had no chronic internal infections.AandrayaOn Nov 10, 2011, at 1:15 PM, Linds J <lj_mom11@...> wrote:

> >> Just curious to see if anyone with kids was able to move and be free? I've heard of some mov...

[Guest guest]

You are so correct Elissa. I wish I had figured that out sooner than I did. From: "Elissa " <elissarachel@...>bird mites Sent: Thursday, November 10, 2011 11:48:52 AMSubject: Re: Anyone moved a whole family and now free of the mitemare?

We moved twice also. They followed though on smaller scale. My husband used to get crawlies but no bites. My baby had bites which was diagnosed as heat rash as well. Now I only get bites, and I know they are living in me.

Moving won't help me. As I have finally realized, I must address my internal issues immediatey.

On Nov 10, 2011 2:24 PM, "Aandraya" <aandraya@...> wrote:

Also, my daughter and boyfriend were not bothered by the bugs and skin problems because they had no chronic internal infections.AandrayaOn Nov 10, 2011, at 1:15 PM, Linds J <lj_mom11@...> wrote:

> >> Just curious to see if anyone with kids was able to move and be free? I've heard of some mov...

[Guest guest]

We were unlucky but lucky at the same time, I guess.  our bird mites were identified.

I grew up in NJ near the woods and the shore.  Huge tick population!!!

Ticks on me, ticks on my dogs...you name it!!  I really don't doubt I have lyme.

DR today did an (sp.) Although I know those are not accurate...best I was going to get from him.

On Nov 10, 2011 3:11 PM, <Goldstein@...> wrote:

 

You are so correct Elissa.  I wish I had figured that out sooner than I did.  From: " Elissa " <elissarachel@...>

bird mites Sent: Thursday, November 10, 2011 11:48:52 AMSubject: Re: Anyone moved a whole family and now free of the mitemare?

We moved twice also.  They followed though on smaller scale.  My husband used to get crawlies bu...

[Guest guest]

You're in New Jersey! Go see either Dr. Cameron or Dr. Horowitz- the best of the best. I think they're both in New York. They'll get you on track healing, forget all the bs with the ELISA test. Lyme is a clinical diagnoses and they'll tell you that! My friend here in WI used to travel out there to see Dr. Cameron, she loves him! How long have you had symptoms? If your ELISA comes back positive don't let the doctor try and sell you on a one month treatment. AandrayaOn Nov 10, 2011, at 2:18 PM, Elissa <elissarachel@...> wrote:

We were unlucky but lucky at the same time, I guess. our bird mites were identified.

I grew up in NJ near the woods and the shore. Huge tick population!!!

Ticks on me, ticks on my dogs...you name it!! I really don't doubt I have lyme.

DR today did an (sp.) Although I know those are not accurate...best I was going to get from him.

On Nov 10, 2011 3:11 PM, <Goldstein@...> wrote:

You are so correct Elissa. I wish I had figured that out sooner than I did. From: "Elissa " <elissarachel@...>

bird mites Sent: Thursday, November 10, 2011 11:48:52 AMSubject: Re: Anyone moved a whole family and now free of the mitemare?

We moved twice also. They followed though on smaller scale. My husband used to get crawlies bu...

[Guest guest]

I'm actually in Massachusetts now.  My parents are in jersey still and my brother is in Nyc.  I am seeing someone here on 12/1 but if it doesn't work out...i will travel to nyc.

THANK YOU so much for those dr. names!!!!!

I think my whole family has lyme.   I will refer them to those drs.

I starting noticing symptoms back in 1999 but the more I think about it, the more I can date them back to 8 years old at least.

Recently stress and trauma brought out full scale symptoms.  Pregnancy, loooooong labor, c section, colicky baby (now we know it was reflux), gallbladder attacks from pregnancy, gallbladder surgery when baby was 4 months, then bird mite infestation 5 months later.

I just pray I didn't pass it to my son.

On Nov 10, 2011 3:29 PM, " Aandraya " <aandraya@...> wrote:

 

You're in New Jersey!  Go see either Dr. Cameron or Dr. Horowitz- the best of the best.  I think they're both in New York. They'll get you on track healing, forget all the bs with the ELISA test.  Lyme is a clinical diagnoses and they'll tell you that!  My friend here in WI used to travel out there to see Dr. Cameron, she loves him!  How long have you had symptoms?  If your ELISA comes back positive don't let the doctor try and sell you on a one month treatment.  

AandrayaOn Nov 10, 2011, at 2:18 PM, Elissa <elissarachel@...> wrote:>  >> We were unlucky...

[Guest guest]

Your story I've heard so many times. Pregnancy/childbirth almost always triggers a low grade chronic Lyme to becoming full blown chronic Lyme. Fungal infections are usually present in Lyme and these multiple infections attract bugs to the skin. If you have crawling sensations it's neurolyme, and likely Bartonella. It's all treatable and make sure to get a Lyme specialist who has experience because it's a complicated treatment.AandrayaOn Nov 10, 2011, at 2:42 PM, Elissa <elissarachel@...> wrote:

I'm actually in Massachusetts now. My parents are in jersey still and my brother is in Nyc. I am seeing someone here on 12/1 but if it doesn't work out...i will travel to nyc.

THANK YOU so much for those dr. names!!!!!

I think my whole family has lyme. I will refer them to those drs.

I starting noticing symptoms back in 1999 but the more I think about it, the more I can date them back to 8 years old at least.

Recently stress and trauma brought out full scale symptoms. Pregnancy, loooooong labor, c section, colicky baby (now we know it was reflux), gallbladder attacks from pregnancy, gallbladder surgery when baby was 4 months, then bird mite infestation 5 months later.

I just pray I didn't pass it to my son.

On Nov 10, 2011 3:29 PM, "Aandraya" <aandraya@...> wrote:

You're in New Jersey! Go see either Dr. Cameron or Dr. Horowitz- the best of the best. I think they're both in New York. They'll get you on track healing, forget all the bs with the ELISA test. Lyme is a clinical diagnoses and they'll tell you that! My friend here in WI used to travel out there to see Dr. Cameron, she loves him! How long have you had symptoms? If your ELISA comes back positive don't let the doctor try and sell you on a one month treatment.

AandrayaOn Nov 10, 2011, at 2:18 PM, Elissa <elissarachel@...> wrote:> >> We were unlucky...

[Guest guest]

Thank you Aandraya.  I just looked at dr. camerons website and called their office.  So helpful!!! I think I will go there after all!!!

Did your friend attract bugs?  Will he understand the whole bird mite thing?

On Nov 10, 2011 4:02 PM, " Aandraya " <aandraya@...> wrote:

 

Your story I've heard so many times.  Pregnancy/childbirth almost always triggers a low grade chronic Lyme to becoming full blown chronic Lyme.  Fungal infections are usually present in Lyme and these multiple infections attract bugs to the skin.  If you have crawling sensations it's neurolyme, and likely Bartonella.  It's all treatable and make sure to get a Lyme specialist who has experience because it's a complicated treatment.

AandrayaOn Nov 10, 2011, at 2:42 PM, Elissa <elissarachel@...> wrote:>  >> I'm actually in...

[Guest guest]

What is neuro lyme compared to chronic lyme?  Sounds scary!

I have crawlies...

On Nov 10, 2011 4:08 PM, " Elissa " <elissarachel@...> wrote:Thank you Aandraya.  I just looked at dr. camerons website and called their office.  So helpful!!! I think I will go there after all!!!

Did your friend attract bugs?  Will he understand the whole bird mite thing?

>> On Nov 10, 2011 4:02 PM, " Aandraya " <aandraya@...> wrote:>

 

>> Your story I've heard so many times.  Pregnancy/childbirth almost always triggers a low grade c...>

> On Nov 10, 2011, at 2:42 PM, Elissa <elissarachel@...> wrote:>> >  > >> I'm actually in...

>>

[Guest guest]

Elissa(my daughter is Ellisa)My friend didn't have the mite problem. She was shuffled around by countless doctors though looking for help. If you see Dr. Cameron you are in the best hands. I would go see him if I didn't have my doctor here only 4 hrs away. I live in MN and travel to WI. What symptoms are you experiencing? If you have Lyme and coinfections you want to get on it before it gets out of hand. Coinfections are other microbes that are passed at the time of the same tick bite. 80% with Lyme have at least one coinfection and they need to be treated somewhat differently.Aandraya On Nov 10, 2011, at 3:08 PM, Elissa <elissarachel@...> wrote:

Thank you Aandraya. I just looked at dr. camerons website and called their office. So helpful!!! I think I will go there after all!!!

Did your friend attract bugs? Will he understand the whole bird mite thing?

On Nov 10, 2011 4:02 PM, "Aandraya" <aandraya@...> wrote:

Your story I've heard so many times. Pregnancy/childbirth almost always triggers a low grade chronic Lyme to becoming full blown chronic Lyme. Fungal infections are usually present in Lyme and these multiple infections attract bugs to the skin. If you have crawling sensations it's neurolyme, and likely Bartonella. It's all treatable and make sure to get a Lyme specialist who has experience because it's a complicated treatment.

AandrayaOn Nov 10, 2011, at 2:42 PM, Elissa <elissarachel@...> wrote:> >> I'm actually in...

[Guest guest]

You' re daughter has a great name ;

Does she pronounce it like a-liss-a,?

Symptoms...

Recent and in last 3 years:

Leg numbness

Numbness in side of face (felt drooping) but didn't look droopy.

Eye twitching

Extreme increase in mucus in sinuses and post-nasal drip

Extremely high blood pressure for a few months

Inability to think and speak in a way that makes sense

Dizziness

confusion

Lethargy

Weakening of fingernails

Hair became dry and brittle

Gallbladder attacks

Intense cravings for sugar & caffeine (never ate or drank before)

Migraines

Vision changes (can't see in dark)

Infected Hair follicles

Attention deficit

Pricks on feet

Cracked heels (extreme)

Crawling

Sensitivity to light % forever

diagnoses over the years & I'm only 35: (forever symptoms)

Thoracic outlet syndrome

Carpal tunnel

Ibs

Gastritis

Raynauds phenomenon

Poor circulation (feeling loss in feet, toes, fingers, hands)

Hiatal hernia

Migraines

Temper

Depression

Anxiety

Skin tags

And many more!!

On Nov 10, 2011 4:27 PM, " Aandraya " <aandraya@...> wrote:

 

Elissa(my daughter is Ellisa)My friend didn't have the mite problem.  She was shuffled around by countless doctors though looking for help.  If you see Dr. Cameron you are in the best hands.  I would go see him if I didn't have my doctor here only 4 hrs away.  I live in MN and travel to WI.  What symptoms are you experiencing?  If you have Lyme and coinfections you want to get on it before it gets out of hand.  Coinfections are other microbes that are passed at the time of the same tick bite.  80% with Lyme have at least one coinfection and they need to be treated somewhat differently.

Aandraya On Nov 10, 2011, at 3:08 PM, Elissa <elissarachel@...> wrote:>  >> Thank you Aandr...

[Guest guest]

Are you kidding me? No doctor ever suggested Lyme? You are the classic chronic Lyme case. Please watch the movie Under Our Skin, I believe it might still be on Hulu for free, or else it's on Netflix. You'll see yourself in that film. Excellent film by the way, Dr. Cameron is in it. Also, go to ILADS website and do the Lyme quiz/checklist by Dr. Burrascano. Finally, print out your list below and take it to your appt with Dr. Cameron! I had most of the same symptoms you listed, but different diagnoses over the years. I just can' believe you were never diagnosed with Lyme, especially since you lived in an endemic area.Aandrayamy daughter is E like egg- lisaOn Nov 10, 2011, at 4:26 PM, Elissa <elissarachel@...> wrote:

You' re daughter has a great name ;

Does she pronounce it like a-liss-a,?

Symptoms...

Recent and in last 3 years:

Leg numbness

Numbness in side of face (felt drooping) but didn't look droopy.

Eye twitching

Extreme increase in mucus in sinuses and post-nasal drip

Extremely high blood pressure for a few months

Inability to think and speak in a way that makes sense

Dizziness

confusion

Lethargy

Weakening of fingernails

Hair became dry and brittle

Gallbladder attacks

Intense cravings for sugar & caffeine (never ate or drank before)

Migraines

Vision changes (can't see in dark)

Infected Hair follicles

Attention deficit

Pricks on feet

Cracked heels (extreme)

Crawling

Sensitivity to light % forever

diagnoses over the years & I'm only 35: (forever symptoms)

Thoracic outlet syndrome

Carpal tunnel

Ibs

Gastritis

Raynauds phenomenon

Poor circulation (feeling loss in feet, toes, fingers, hands)

Hiatal hernia

Migraines

Temper

Depression

Anxiety

Skin tags

And many more!!

On Nov 10, 2011 4:27 PM, "Aandraya" <aandraya@...> wrote:

Elissa(my daughter is Ellisa)My friend didn't have the mite problem. She was shuffled around by countless doctors though looking for help. If you see Dr. Cameron you are in the best hands. I would go see him if I didn't have my doctor here only 4 hrs away. I live in MN and travel to WI. What symptoms are you experiencing? If you have Lyme and coinfections you want to get on it before it gets out of hand. Coinfections are other microbes that are passed at the time of the same tick bite. 80% with Lyme have at least one coinfection and they need to be treated somewhat differently.

Aandraya On Nov 10, 2011, at 3:08 PM, Elissa <elissarachel@...> wrote:> >> Thank you Aandr...

[Guest guest]

I've heard of that movie...a little scared to watch it.

It does seem clear that I have lyme.  I've always told all my drs about my diagnoses!  No one has ever suggested lyme.

So many seemingly unrelated things going on with me... I can give myself a clinical diagnosis   if only I could prescribe myself meds!!

On Nov 10, 2011 7:01 PM, " Aandraya " <aandraya@...> wrote:

 

Are you kidding me?  No doctor ever suggested Lyme?  You are the classic chronic Lyme case.  Please watch the movie Under Our Skin, I believe it might still be on Hulu for free, or else it's on Netflix.  You'll see yourself in that film.  Excellent film by the way, Dr. Cameron is in it.  Also, go to ILADS website and do the Lyme quiz/checklist by Dr. Burrascano.  Finally, print out your list below and take it to your appt with Dr. Cameron!  I had most of the same symptoms you listed, but different diagnoses over the years.  I just can' believe you were never diagnosed with Lyme, especially since you lived in an endemic area.

Aandrayamy daughter is E like egg- lisaOn Nov 10, 2011, at 4:26 PM, Elissa <elissarachel@...> wrote:

>  >> You' re daugh...

[Guest guest]

You don't want to let the infections get anymore out of hand. Many end up with MS, ALS, and other serious illnesses.AandrayaOn Nov 10, 2011, at 6:50 PM, Elissa <elissarachel@...> wrote:

I've heard of that movie...a little scared to watch it.

It does seem clear that I have lyme. I've always told all my drs about my diagnoses! No one has ever suggested lyme.

So many seemingly unrelated things going on with me... I can give myself a clinical diagnosis if only I could prescribe myself meds!!

On Nov 10, 2011 7:01 PM, "Aandraya" <aandraya@...> wrote:

Are you kidding me? No doctor ever suggested Lyme? You are the classic chronic Lyme case. Please watch the movie Under Our Skin, I believe it might still be on Hulu for free, or else it's on Netflix. You'll see yourself in that film. Excellent film by the way, Dr. Cameron is in it. Also, go to ILADS website and do the Lyme quiz/checklist by Dr. Burrascano. Finally, print out your list below and take it to your appt with Dr. Cameron! I had most of the same symptoms you listed, but different diagnoses over the years. I just can' believe you were never diagnosed with Lyme, especially since you lived in an endemic area.

Aandrayamy daughter is E like egg- lisaOn Nov 10, 2011, at 4:26 PM, Elissa <elissarachel@...> wrote:

> >> You' re daugh...

[Guest guest]

MS was brought up but ruled out yesterday at the neurologists office.

I think we're going to take the trip in a week or so...

On Nov 10, 2011 8:03 PM, " Aandraya " <aandraya@...> wrote:

 

You don't want to let the infections get anymore out of hand.  Many end up with MS, ALS, and other serious illnesses.AandrayaOn Nov 10, 2011, at 6:50 PM, Elissa <elissarachel@...> wrote:

>  >> I've heard of t...

[Guest guest]

Good thing. Many end up with these bogus diagnoses when they have Lyme which is treatable. On Nov 10, 2011, at 7:10 PM, Elissa <elissarachel@...> wrote:

MS was brought up but ruled out yesterday at the neurologists office.

I think we're going to take the trip in a week or so...

On Nov 10, 2011 8:03 PM, "Aandraya" <aandraya@...> wrote:

You don't want to let the infections get anymore out of hand. Many end up with MS, ALS, and other serious illnesses.AandrayaOn Nov 10, 2011, at 6:50 PM, Elissa <elissarachel@...> wrote:

> >> I've heard of t...

[Guest guest]

What are you going to do when that comes up negative? From: "Elissa " <elissarachel@...>bird mites Sent: Thursday, November 10, 2011 12:18:28 PMSubject: Re: Anyone moved a whole family and now free of the mitemare?

We were unlucky but lucky at the same time, I guess. our bird mites were identified.

I grew up in NJ near the woods and the shore. Huge tick population!!!

Ticks on me, ticks on my dogs...you name it!! I really don't doubt I have lyme.

DR today did an (sp.) Although I know those are not accurate...best I was going to get from him.

On Nov 10, 2011 3:11 PM, <Goldstein@...> wrote:

You are so correct Elissa. I wish I had figured that out sooner than I did. From: "Elissa " <elissarachel@...>

bird mites Sent: Thursday, November 10, 2011 11:48:52 AMSubject: Re: Anyone moved a whole family and now free of the mitemare?

We moved twice also. They followed though on smaller scale. My husband used to get crawlies bu...

[Guest guest]

There is a real good chance that is what you have... take courage !!! This birdmite situation is one where we need tremendous support and courage. Although the movie is upsetting, there is relief in knowing that it is what you have and you can start to get on with things. Hugs! I bought the movie a few years back when it first came out. Awesome movie. Really well put together.From: "Elissa " <elissarachel@...>bird mites Sent: Thursday, November 10, 2011 4:50:29 PMSubject: Re: Anyone moved a whole family and now free of the mitemare?

I've heard of that movie...a little scared to watch it.

It does seem clear that I have lyme. I've always told all my drs about my diagnoses! No one has ever suggested lyme.

So many seemingly unrelated things going on with me... I can give myself a clinical diagnosis if only I could prescribe myself meds!!

On Nov 10, 2011 7:01 PM, "Aandraya" <aandraya@...> wrote:

Are you kidding me? No doctor ever suggested Lyme? You are the classic chronic Lyme case. Please watch the movie Under Our Skin, I believe it might still be on Hulu for free, or else it's on Netflix. You'll see yourself in that film. Excellent film by the way, Dr. Cameron is in it. Also, go to ILADS website and do the Lyme quiz/checklist by Dr. Burrascano. Finally, print out your list below and take it to your appt with Dr. Cameron! I had most of the same symptoms you listed, but different diagnoses over the years. I just can' believe you were never diagnosed with Lyme, especially since you lived in an endemic area.

Aandrayamy daughter is E like egg- lisaOn Nov 10, 2011, at 4:26 PM, Elissa <elissarachel@...> wrote:

> >> You' re daugh...

[Guest guest]

The (sp) test?  I asked him if it could be lyme because the neurologist said it wasn't MS but I had the symptoms.  asked him about the types of tests and that was the best he could do...doesn't understand.  I fully count on it being negative.  I'm going to an LLMD soon!

On Nov 10, 2011 8:18 PM, <Goldstein@...> wrote:

 

What are you going to do when that comes up negative?  ________________________________

From: " Elissa " <elissarachel@...>birdmites...Sent: Thursday, November 10, 2011 12:18:28 PMSubject: Re: Anyone moved a whole family and now free of the mitemare?

We were un...

[Guest guest]

Yes, she is right because it can lead to those things if untreated.From: "Aandraya" <aandraya@...>bird mites Sent: Thursday, November 10, 2011 5:02:33 PMSubject: Re: Anyone moved a whole family and now free of the mitemare?

You don't want to let the infections get anymore out of hand. Many end up with MS, ALS, and other serious illnesses.AandrayaOn Nov 10, 2011, at 6:50 PM, Elissa <elissarachel@...> wrote:

I've heard of that movie...a little scared to watch it.

It does seem clear that I have lyme. I've always told all my drs about my diagnoses! No one has ever suggested lyme.

So many seemingly unrelated things going on with me... I can give myself a clinical diagnosis if only I could prescribe myself meds!!

On Nov 10, 2011 7:01 PM, "Aandraya" <aandraya@...> wrote:

Are you kidding me? No doctor ever suggested Lyme? You are the classic chronic Lyme case. Please watch the movie Under Our Skin, I believe it might still be on Hulu for free, or else it's on Netflix. You'll see yourself in that film. Excellent film by the way, Dr. Cameron is in it. Also, go to ILADS website and do the Lyme quiz/checklist by Dr. Burrascano. Finally, print out your list below and take it to your appt with Dr. Cameron! I had most of the same symptoms you listed, but different diagnoses over the years. I just can' believe you were never diagnosed with Lyme, especially since you lived in an endemic area.

Aandrayamy daughter is E like egg- lisaOn Nov 10, 2011, at 4:26 PM, Elissa <elissarachel@...> wrote:

> >> You' re daugh...

[Guest guest]

That was not true, the Western Blot is a much better test, but still not very sensitive. Lyme literate doctors usually use Igenix Labs in California because they specialize in vector borne diseases. If you use your insurance lab it's very unreliable. Amazing to me that even the doctors out east are still clueless about Lyme. Trust me, once you start treatment you'll see your symptoms start to drop off. On Nov 10, 2011, at 7:30 PM, Elissa <elissarachel@...> wrote:

The (sp) test? I asked him if it could be lyme because the neurologist said it wasn't MS but I had the symptoms. asked him about the types of tests and that was the best he could do...doesn't understand. I fully count on it being negative. I'm going to an LLMD soon!

On Nov 10, 2011 8:18 PM, <Goldstein@...> wrote:

What are you going to do when that comes up negative? ________________________________

From: "Elissa " <elissarachel@...>birdmites...Sent: Thursday, November 10, 2011 12:18:28 PMSubject: Re: Anyone moved a whole family and now free of the mitemare?

We were un...

[Guest guest]

Yes, I so wish I had known 20 something years ago that Lyme was what I had. Could have saved me years of needless suffering and dozens of diagnoses. I guess it is never too late to treat, but I try to be realistic about what can be accomplished after so many years too. I may never get 100% but I'll be better than I was. That I do know.From: "Aandraya" <aandraya@...>bird mites Sent: Thursday, November 10, 2011 5:36:06 PMSubject: Re: Anyone moved a whole family and now free of the mitemare?

That was not true, the Western Blot is a much better test, but still not very sensitive. Lyme literate doctors usually use Igenix Labs in California because they specialize in vector borne diseases. If you use your insurance lab it's very unreliable. Amazing to me that even the doctors out east are still clueless about Lyme. Trust me, once you start treatment you'll see your symptoms start to drop off. On Nov 10, 2011, at 7:30 PM, Elissa <elissarachel@...> wrote:

The (sp) test? I asked him if it could be lyme because the neurologist said it wasn't MS but I had the symptoms. asked him about the types of tests and that was the best he could do...doesn't understand. I fully count on it being negative. I'm going to an LLMD soon!

On Nov 10, 2011 8:18 PM, <Goldstein@...> wrote:

What are you going to do when that comes up negative? ________________________________

From: "Elissa " <elissarachel@...>birdmites...Sent: Thursday, November 10, 2011 12:18:28 PMSubject: Re: Anyone moved a whole family and now free of the mitemare?

We were un...