Another Question

August 27, 2001

Ann, take dandelion root capsules 500mg. It is a mild diuretic.

It has potassium in it and it won't leave your system flushed

bare.

Uva Ursi can be used but you have to take you potassium and

probably magnesium also. Protect your electrolytes. This

herb

is strong so take it in small amounts.

Your symptoms doesn't sound crazy at all.

LIZ D

Another

question

I hope I don't ask too many questions! Just wondering if anyone knows

whether drinking the sea salt flush in the morning(with the lemonade diet)

will cause me to retain water? I have always had a problem with this and

sometimes it is very painful. I almost had to have surgery because I

couldn't use my hands, wrists hurt so much and the doctor thought it might

be Carpel Tunnel but luckily he tried a diuretic first (I also had the

symptom that my brain felt like it was floating..I know sounds crazy) and

that worked. I am just afraid of the pain returning.

Well thanks for all the help!!!!!!!!

Ann

_________________________________________________________________

--- rabbitbrain@...

bUcKsNdOeS

August 28, 2001

Thanks Liz D ~ I think I will try the dandelion root first....I tend to be

potassium deficient and I don't get enough in my diet. Any foods you know

of,besides bananas, that have a lot of potassium? I like bananas alright but

I don't eat them enough.

Thanks again

Ann

>From: Rabbitbrain@...

>Reply-bowel cleanse

>bowel cleanse

>Subject: RE: Another question

>Date: Mon, 27 Aug 2001 17:43:11 -0400

>

>Ann, take dandelion root capsules 500mg. It is a mild diuretic.

>

>It has potassium in it and it won't leave your system flushed

>

>bare.

>

>Uva Ursi can be used but you have to take you potassium and

>

>probably magnesium also. Protect your electrolytes. This

>herb

>

>is strong so take it in small amounts.

>

>Your symptoms doesn't sound crazy at all.

>

>LIZ D

>

> Another

>question

>

>I hope I don't ask too many questions! Just wondering if anyone knows

>

>whether drinking the sea salt flush in the morning(with the lemonade diet)

>

>will cause me to retain water? I have always had a problem with this and

>

>sometimes it is very painful. I almost had to have surgery because I

>

>couldn't use my hands, wrists hurt so much and the doctor thought it might

>

>be Carpel Tunnel but luckily he tried a diuretic first (I also had the

>

>symptom that my brain felt like it was floating..I know sounds crazy) and

>

>that worked. I am just afraid of the pain returning.

>

>Well thanks for all the help!!!!!!!!

>

>Ann

>

>_________________________________________________________________

>

>--- rabbitbrain@...

>

>bUcKsNdOeS

>

August 28, 2001

>Any foods you know of,besides bananas, that have a lot of potassium?

>I like bananas alright but I don't eat them enough.

>

Potato peelings have potassium in them. In the book " Nourishing

Traditions " there is a recipe for potassium broth made with potato

peelings. Book should be easy enough to find at the library. I even

found it here in Holland (was very shocked!) Can't remember the recipe

offhand or I'd type it up for you.

Barbara

August 31, 2001

Riba the pills and interferon the shots used to be " bundled " and the FDA or

whatever, maybe just the drug maker, didn't allow separation of the pills and

the shots. Maybe so you couldn't do another drug maker brand of interferon and

do the riba, who knows, a marketing strategy for sure.

So, Schering, the drug maker, had to get permission from FDA I think to separate

the two and allow the riba to " come with " the PEG interferon, or be sent

separately.

When the doc wriote a script, before peg, it was for rebetron, which meant

combination of interferon and ribavirin. It was a big deal for my doc to be able

to write a script for more interferon, according to my ins company, who already

had their " packaged " together and shipped from their own pharmacy/warehouse.

luckily it wasn't a hassle with my ins company, but I can imagine with some it

could be quite a hassle.

Pat

mailto:alleypat@... andromedagurl@...

note: alleypat@... will be disconnected at the end of August

---------------------------------

August 31, 2001

<< " well, that just goes with it " I'll bet u on that one. Just seems that way.>>

Hope you dont' own a gun haaaaaaaaaaaaaaaaaaa

Hey I let my combo rage loose when my doc did something I didn't agree with!!!!!

I'm always one to utilize my weaknesses into strengths hahahahaha.

What antidepressant are you on?

And that attitude by your doc WON " T be acceptable when you are hurting. Try to

clear a path of understanding with your doc now, before you need help that he

may not provide.

I wonder if a court would rule it insanity if I'd have beheaded my gastro while

on combo?

(Can just see Doc shivering! Just kidding!!!... sorta

Gengis Alley Combo Kahn

Pat

mailto:alleypat@... andromedagurl@...

note: alleypat@... will be disconnected at the end of August

---------------------------------

August 31, 2001

--- cher_002@... wrote:

> Wait a min--what do do u mean " packaged " together. R

> u saying u can

> get them separate or what...

Before, the only way you could get ribavirin was to

buy the Schering brand of interferon, Intron-A,

pre-packaged with the ribavirin (Rebetol), the combo

packaging being called 'Rebetron'. You could buy the

interferon by itself, but not the ribavirin. Now

however, you can get the ribavirin separately or

prepackaged with the Peg-Intron. (You see, the FDA has

to approve each of these ways it can be sold). The

benefit is that now a doctor can legally prescribe

ribavirin so you can use it with another brand of

interferon, and NOT just Schering's brand. Soon (early

2002?) there will be another brand of pegylated

interferon available, made by Hoffeman-La Roche,

called Pegasys, and by the FDA approving the sale of

ribavirin 'unbundled' from the interferon, a doctor

could prescribe Pegasys and write a separate

prescription for ribavirin. A person will have more

options now. Not all interferons are the same!

>Ummmmm maybe I should

> " mail " some print

> outs to his office

Good idea - mail now, but take along copies anyway at

your next appt. date.

> I'll bet u dollar to doughnuts when I mention how he

> wd handle the

> sides with me he will say something like " well, that

> just goes with

> it " I'll bet u on that one. Just seems that way.

Try to ask some really specific questions and be

persistant. If it doesn't work, then try talking to

your primary care doctor about your concerns. Try to

get his help, take him info if he's open to it. The

worst side effects are usually in the first few weeks,

so it's right there in the beginning you need the most

help! Try to prepare for it now. I guess you can say,

prepare for the worst, but expect the best. Some

people have very few side effects, and you could be

one of them!

Claudine

PS: If your already not drinking enough, get in the

habit NOW! The treatment medications really dehydrate

you and dehydration can/will make everything much

worse - fatigue, nausea, headaches, etc. DRINK lots of

water!

__________________________________________________

August 31, 2001

Hi Alley....I hope this becomes available in Canada soon. I met a woman today

who's 50 and has had HCV for 30 years. She has been to a gastro but NEVER has

had a liver biopsy!! Sheeesh, Canada is so far behind....we'll never catch up.

I bet Canada has never heard of interferon either....I'll find out at next

Dr. appt. Sheeeeesh.

Carol

Pat wrote:

> Riba the pills and interferon the shots used to be " bundled " and the FDA or

whatever, maybe just the drug maker, didn't allow separation of the pills and

the shots. Maybe so you couldn't do another drug maker brand of interferon and

do the riba, who knows, a marketing strategy for sure.

>

> So, Schering, the drug maker, had to get permission from FDA I think to

separate the two and allow the riba to " come with " the PEG interferon, or be

sent separately.

>

> When the doc wriote a script, before peg, it was for rebetron, which meant

combination of interferon and ribavirin. It was a big deal for my doc to be able

to write a script for more interferon, according to my ins company, who already

had their " packaged " together and shipped from their own pharmacy/warehouse.

>

> luckily it wasn't a hassle with my ins company, but I can imagine with some it

could be quite a hassle.

>

> Pat

>

> mailto:alleypat@... andromedagurl@...

>

> note: alleypat@... will be disconnected at the end of August

>

> ---------------------------------

>

August 31, 2001

Hmmmm, I'd like to see you make a " test " case of this....would rival the OJ

trial. lol Alley.

Pat wrote:

> << " well, that just goes with it " I'll bet u on that one. Just seems that

way.>>

>

> Hope you dont' own a gun haaaaaaaaaaaaaaaaaaa

>

> Hey I let my combo rage loose when my doc did something I didn't agree

with!!!!! I'm always one to utilize my weaknesses into strengths hahahahaha.

>

> What antidepressant are you on?

>

> And that attitude by your doc WON " T be acceptable when you are hurting. Try to

clear a path of understanding with your doc now, before you need help that he

may not provide.

>

> I wonder if a court would rule it insanity if I'd have beheaded my gastro

while on combo?

>

> (Can just see Doc shivering! Just kidding!!!... sorta

>

> Gengis Alley Combo Kahn

>

> Pat

>

> mailto:alleypat@... andromedagurl@...

>

> note: alleypat@... will be disconnected at the end of August

>

> ---------------------------------

>

September 1, 2001

They have heard of it Carol, they have had a class

action suit against Blood Banks there......13 Million?

Come on guys if I am stating the wrong thing, TC...C

-- Carol <csean@...> wrote:

> Hi Alley....I hope this becomes available in Canada

> soon

__________________________________________________

September 1, 2001

They have heard of it Carol, they have had a class

action suit against Blood Banks there......13 Million?

Come on guys if I am stating the wrong thing, TC...C

-- Carol <csean@...> wrote:

> Hi Alley....I hope this becomes available in Canada

> soon

__________________________________________________

September 1, 2001

Rebetron should be available in Canada. I know a fellow hepper who lived

in Newfoundland (closest town was St. s) who fought to get on

treatment when they first approved it to be part of their socialized

medicine. She succeeded in getting tx and that was probalby one and a

half years ago. She has now left this earth walk so I can't get any

additional details for you.

Now, she wasn't always honest with me but I seriously doubt she would

have lied about that. And she had a real legal battle to be approved for

treatment because they had just approved it and she was fairly advanced

in liver fibrosis.

Just thought I'd toss that out..

Tatezi

Carol wrote:

> Hi Alley....I hope this becomes available in Canada soon. I met a

> woman today who's 50 and has had HCV for 30 years. She has been to a

> gastro but NEVER has had a liver biopsy!! Sheeesh, Canada is so far

> behind....we'll never catch up. I bet Canada has never heard of

> interferon either....I'll find out at next

> Dr. appt. Sheeeeesh.

>

> Carol

>

> Pat wrote:

>

> > Riba the pills and interferon the shots used to be " bundled " and the

> FDA or whatever, maybe just the drug maker, didn't allow separation of

> the pills and the shots. Maybe so you couldn't do another drug maker

> brand of interferon and do the riba, who knows, a marketing strategy

> for sure.

> >

> > So, Schering, the drug maker, had to get permission from FDA I think

> to separate the two and allow the riba to " come with " the PEG

> interferon, or be sent separately.

> >

> > When the doc wriote a script, before peg, it was for rebetron, which

> meant combination of interferon and ribavirin. It was a big deal for

> my doc to be able to write a script for more interferon, according to

> my ins company, who already had their " packaged " together and shipped

> from their own pharmacy/warehouse.

> >

> > luckily it wasn't a hassle with my ins company, but I can imagine

> with some it could be quite a hassle.

> >

> > Pat

> >

> > mailto:alleypat@... andromedagurl@...

> >

> > note: alleypat@... will be disconnected at the end of August

> >

> > ---------------------------------

> >

September 1, 2001

Rebetron should be available in Canada. I know a fellow hepper who lived

in Newfoundland (closest town was St. s) who fought to get on

treatment when they first approved it to be part of their socialized

medicine. She succeeded in getting tx and that was probalby one and a

half years ago. She has now left this earth walk so I can't get any

additional details for you.

Now, she wasn't always honest with me but I seriously doubt she would

have lied about that. And she had a real legal battle to be approved for

treatment because they had just approved it and she was fairly advanced

in liver fibrosis.

Just thought I'd toss that out..

Tatezi

Carol wrote:

> Hi Alley....I hope this becomes available in Canada soon. I met a

> woman today who's 50 and has had HCV for 30 years. She has been to a

> gastro but NEVER has had a liver biopsy!! Sheeesh, Canada is so far

> behind....we'll never catch up. I bet Canada has never heard of

> interferon either....I'll find out at next

> Dr. appt. Sheeeeesh.

>

> Carol

>

> Pat wrote:

>

> > Riba the pills and interferon the shots used to be " bundled " and the

> FDA or whatever, maybe just the drug maker, didn't allow separation of

> the pills and the shots. Maybe so you couldn't do another drug maker

> brand of interferon and do the riba, who knows, a marketing strategy

> for sure.

> >

> > So, Schering, the drug maker, had to get permission from FDA I think

> to separate the two and allow the riba to " come with " the PEG

> interferon, or be sent separately.

> >

> > When the doc wriote a script, before peg, it was for rebetron, which

> meant combination of interferon and ribavirin. It was a big deal for

> my doc to be able to write a script for more interferon, according to

> my ins company, who already had their " packaged " together and shipped

> from their own pharmacy/warehouse.

> >

> > luckily it wasn't a hassle with my ins company, but I can imagine

> with some it could be quite a hassle.

> >

> > Pat

> >

> > mailto:alleypat@... andromedagurl@...

> >

> > note: alleypat@... will be disconnected at the end of August

> >

> > ---------------------------------

> >

September 1, 2001

Dear Carol,

Please be advised that when Bill Clinton was governor of the state of

Arkansas, he sold blood to Canada. This blood came from prisoners in the

state prison. No tessts for HCV or HIV were preformed beforehand. There has

been a book written about this. I don't have all the literature, but it was

my understanding that Cananda had sued him and the state of Arkansas. You

might want to check into this. When I finish up with my own mess, I will

help you. Right now, I can't.

LOL,

Anne

September 1, 2001

Dear Carol,

Please be advised that when Bill Clinton was governor of the state of

Arkansas, he sold blood to Canada. This blood came from prisoners in the

state prison. No tessts for HCV or HIV were preformed beforehand. There has

been a book written about this. I don't have all the literature, but it was

my understanding that Cananda had sued him and the state of Arkansas. You

might want to check into this. When I finish up with my own mess, I will

help you. Right now, I can't.

LOL,

Anne

September 1, 2001

Thanks Connie....I was just getting so disgusted with Canada and the fact that

they haven't even done a biopsy on a friend who's had HCV for 30 years. I was

being sarcastic me thinks lol. I know about the class action suit for anyone

infected through blood banks. What I didn't know, was that Canada bought blood

from USA. Since blood donations here are not for monetary reward but strictly

from compassion I guess a lot of people fell under the false impression that

the blood was safer. Of course it isn't if it's not screened.

Carol

Constance Dickson wrote:

> They have heard of it Carol, they have had a class

> action suit against Blood Banks there......13 Million?

>

> Come on guys if I am stating the wrong thing, TC...C

>

> -- Carol <csean@...> wrote:

> > Hi Alley....I hope this becomes available in Canada

> > soon

>

> __________________________________________________

>

September 1, 2001

Thanks Connie....I was just getting so disgusted with Canada and the fact that

they haven't even done a biopsy on a friend who's had HCV for 30 years. I was

being sarcastic me thinks lol. I know about the class action suit for anyone

infected through blood banks. What I didn't know, was that Canada bought blood

from USA. Since blood donations here are not for monetary reward but strictly

from compassion I guess a lot of people fell under the false impression that

the blood was safer. Of course it isn't if it's not screened.

Carol

Constance Dickson wrote:

> They have heard of it Carol, they have had a class

> action suit against Blood Banks there......13 Million?

>

> Come on guys if I am stating the wrong thing, TC...C

>

> -- Carol <csean@...> wrote:

> > Hi Alley....I hope this becomes available in Canada

> > soon

>

> __________________________________________________

>

September 1, 2001

Thanks Anne....but I wasn't infected through a blood transfusion so I'm not in

the litigation process, thank God....I don't think I could handle that right

now. I was simply interested in the fact that it happened. I was quite

shocked. I think if there was more publicity over this a lot of Canadians would

be up in arms, so to speak.

Thanks anyway Anne

Happy moving

Carol

AVansi7465@... wrote:

> Dear Carol,

> Please be advised that when Bill Clinton was governor of the state of

> Arkansas, he sold blood to Canada. This blood came from prisoners in the

> state prison. No tessts for HCV or HIV were preformed beforehand. There has

> been a book written about this. I don't have all the literature, but it was

> my understanding that Cananda had sued him and the state of Arkansas. You

> might want to check into this. When I finish up with my own mess, I will

> help you. Right now, I can't.

> LOL,

> Anne

>

January 6, 2002

It's great if you are able to have a psychiatrist prescribe your

anitdepressant medications! They are the experts when it comes to those

meds. And yes, you can take both of them with no problem. As for the print

out of Rebetol, the reason you have been unable to get one is because

until now it was never sold alone, just in combination with the Intron-A

as " Rebetron " . If you go to that web site page I told you about you can

print the info out from there. The info on the Intron-A is just mixed in

with the info about the Rebetol, so you kind of have to sort it out - but

it is there.

C

--- runabout_104 <runabout104@...> wrote:

> Gosh, I hope I am not being a nusiance to the group with my endless

> questions. I am required to see a psch while on this medication and

> as i hv stated to the group b4, I hv more emotional symtons and

> emotional turmoil and depression-more than I expected. Of course, I

> do hv some physical symtons also (headaches, loss of appetite, the

> usual things. Anyway, psch wants me to start on paxil again and he

> also put me on xanax. What about the xanax in regards to the

> interferon and rebetol. Oh, and by the way, each time I hv got the

> rebetol filled @ the pharmacy I hv asked for a print out on the

> rebetol and for some reason, " they can't give me one " . Keep telling

> me they will try and get me one next month! Hvn't figured that one

> out either as I thought these dys u cd get a print out on any

> medication u get from a pharmacy. Oh, this rinky dink town I live in -

> -u just wdn't belive the medical care or rather lack of medical care

> and now even the pharmacies are showing their true colors!!.

> cher

>

January 6, 2002