Another Question

[Guest guest]

That's a great question, although its rare to have regression, I think for the most part once your child graduates, your so alerted to what can happen that you find yourself still repositioning or at least worrying about it enough to make sure they are not spending increased amounts of time on the back of their head- even though most are old enough and are mobile all day. It's really not a concern, but its something you find yourself worrying about anyway )

' Mom

[Guest guest]

Hi

You are best to test through DDI - www.doctorsdata.com they need a doctors

order, Do DC will do. If you don not have cooperative Dr then you can pay a

little more and use www.directlabs.com - alwasy ask for DDI ELEMENTAL Hair

Test (not toxic) . I will sned you some links off list

HTH

Mandi in UK

> I have been learning so much reading all the posts these past few

> days. Thanks so much! I did see one post that sparked interest for

> me. The one about hair testing for mercury/metals. My family has

> suggested several times that I have my DS tested for this, but I

> don't now who does it. Surely not a regular pediatrician!? Rather

> new to our area anyway, I don't yet have a regular Dr. at this

> point. Can anyone lend direction? Thank you!

>

[Guest guest]

> Hi All!

>

> I have been learning so much reading all the posts these past few

> days. Thanks so much! I did see one post that sparked interest for

> me. The one about hair testing for mercury/metals. My family has

> suggested several times that I have my DS tested for this, but I

> don't now who does it.

Here is my overview page, which gives information and links for the

hair test and other issues

http://www.danasview.net/chelate.htm

Dana

[Guest guest]

Hi Deidre:That's something you would have to ask your orthotist, but they are rarely used. I've read of a few babies wearing them, but not many. The sweat will be the worst for the first few days or so in the band, then after that, 's body temp should adjust to the band on top of his head, and the sweating will significantly decrease. He'll likely still sweat, but not super duper bad. Fall will be here before you know it too, so that'll help w/cooler temps.

Debbie Abby's momMIBlondee10@... wrote:

My mom was thinking about fashioning some "skull caps" for to soak up the sweat on hot days. Is this not recommended or would it be okay?Deidre Piechocki's mumKentwood, MISTARband: coming soon to a noggin near you! For more plagio info

[Guest guest]

Hi Oona,

Just wanted to welcome you to the group! I know you've already gotten some great responses about your question, and I think you might find a lot of information in our files section, as well as studies done on www.plagio.org

Good luck!

'mom

[Guest guest]

At 09:43 PM 8/28/2003, you wrote:

>Hi again, I forgot to mention in my other post that they want hubby

>to have an uptake and scan. Is this a dangerous procedure and is it

>necessary? The endo told hubby they want him to have it so that

>they can see how bad his goiter is.

Unnecessary. He should have an ultrasound, to see if there are nodules.

>Also, if we try to fix his HyperT and goiter with vitamins and diet

>only, what timeframe should we give it to know whether it is working

>or not? The Endo said that he wants to put hubby on Tapezol or PTU

>and that he'd need to be tested 6 weeks after.

I would have a test in 3-4 weeks.

> Would the vit

>regimen take longer than that?

Yes. And not advisable to use vitamins alone (see previous post).

[Guest guest]

Oh, and the RAI-U scan is only used these days to determine the dosage for

RAI. It is outdated and unnecessary for diagnosis. In addition to the

thyroid tests (Free T3 and Free T4) and TSH, the proper tests for Graves'

are TSI antibodies and an ultrasound. You should also have TPO-Antibodies

tested, as they are also commonly found with Graves', and it is good to

have a baseline.

Before ATD therapy, you will want to have a CBC (WBC in particular) and

liver function tests. WBC should be tested every 4 weeks, with thyroid

levels. LFT should be repeated at 4 weeks, 8 weeks, and every 3 months.

Best wishes,

[Guest guest]

Are you wanting a bag to contain 2 g of MgSO4? If so, just figure out how

much 50% MgSO4 equals 2 g.

50% means 50 g in 100 ml.

That translates into 5 g in 10 ml.

Which would be 1 g in 2 ml.

So to get 2 grams of MgSO4 from a 50% MgSO4 solution, you need 4 ml of 50%

MgSO4.

You don't need to know the size of the bag to figure out how many ml's you

need to get 2 g.

Della

Cat Haven, Inc

A No-Kill Cat Rescue

Houston, Tx

www.cat-haven.org

another question

What amount of 50% Magnesium sulfate solution should be injected to prepare

an IV bag containing 2 g MgSO4? Help!

Thank you.

50% means 50g/100mls ; how do I know the size of the IV Bag or are they

standard at 500 or 1000mls?

Thanks

[Guest guest]

I put my daughter in a regular kindegarten last year. My thoughts

were that if she failed, we could always put her in a special ed

class. She did well in kindegarten, and she is now in a regular

fist grade class. I already know she'll be in a regular 2nd grade

class for next year.

was right on academically, but she was really delayed speech

wise. She also had some problems with her fine motor skills. She

has a November birthday, so she was one of the older kids in her

class.

Good luck!

Suzi

--- In , " Dena " <warners3@h...>

wrote:

> My daughter will be turning 5 in February and will be headed to

> Kindergarten next fall. My concern is whether or not she will go

to

> a regular class or to an ESE class. She is only speech delayed

and

> is right on target for all of her other skills (will need to keep

a

> close eye on reading skills as they develop though). I have been

> told by other mother's in my area to NOT let them put her in the

ESE

> class because it will be very hard to ever get her out and into

> mainstream. I think it is an option to have her in a " normal "

class

> but then she would be pulled for speech 3 times a week during

> school. I am really concerned now because she is in the preschool

> program and is with other children that do have delays in other

> areas, some are much younger than she and some have behavioral

> problems that I am worried she might pick up just to get attention

in

> class! She has progressed quite a bit there and her speech is

> improving but still so far behind.

>

> I am struggling with myself and if is she in the right place even

> now. I have an appointment with a private school and a Montessori

> school this week but I don't know if they can really give me the

> answers I am looking for. I don't know who can!

>

> Thanks for any info you can share!

>

> Dena

[Guest guest]

Dena,

Any other placement that the regular classroom would NOT be appropriate for your

child. Do not let them place your child in any such program. There is

something called LRE (least restrictive environment) that comes into play. If

speech is the only delay, she NEEDS typical peer models ..and she does NOT need

to learn atypical skills from peers. The IEP team must take your daughter's

individual needs into account when discussing placements. You as a team will

weigh the pros and cons of each placement and then decide which you agree as a

team would be best. There is also something called the Holland Decision which

came out of the 9th circuit court that can be useful in arguing placement. It

is a four prong consideration 1) the academic benefit to the student 2) the

non-academic benefit to the student 3) teacher time on the student and 4) cost

although it is said that cost alone is an unacceptable reason to place a child.

The biggie is that the student cannot take an unreasonable amount of a teacher's

time as obviously there are many children that need to be educated in the

classroom. Even if you aren't in the 9th circuit, you can still think in those

terms in presenting your argument to the team. Perhaps you won't have an issue

at all...many school districts would assume inclusion.

If you tell me which state you live in I can send you the contact for your

state's parent training center. You may also be able to find it by doing a

search. I know when I type " Oregon Parent Training and Information Center " in

my agency's site pops up. Now you can all run there and see my pic if you wish.

Blah! They do free trainings on the IEP process and also provide technical

support and assistance. I'd strongly encourage you to attend some of these

trainings.

I am assuming your daughter is still in ECSE this year? You will have

transition meetings...make sure when you have an IFSP meeting at the early

intervention site that someone from your school district is present. And when

you have an IEP meeting at your local school, make sure your daughter's case

manager from ECSE is there. If you decide to approve an IQ test for your child,

make sure it is a NONVERBAL one, I believe it is called the MacCarthur. I did

this with my daughter and she had a 116 IQ on it. That ended ALL discussions of

any other placement than the regular classroom right there. And I had been

fighting them BIG time until the psych read that result.

Don't worry, you've started at the perfect time to start educating yourself for

next year!

Tammy

[ ] Another question

My daughter will be turning 5 in February and will be headed to

Kindergarten next fall. My concern is whether or not she will go to

a regular class or to an ESE class. She is only speech delayed and

is right on target for all of her other skills (will need to keep a

close eye on reading skills as they develop though). I have been

told by other mother's in my area to NOT let them put her in the ESE

class because it will be very hard to ever get her out and into

mainstream. I think it is an option to have her in a " normal " class

but then she would be pulled for speech 3 times a week during

school. I am really concerned now because she is in the preschool

program and is with other children that do have delays in other

areas, some are much younger than she and some have behavioral

problems that I am worried she might pick up just to get attention in

class! She has progressed quite a bit there and her speech is

improving but still so far behind.

I am struggling with myself and if is she in the right place even

now. I have an appointment with a private school and a Montessori

school this week but I don't know if they can really give me the

answers I am looking for. I don't know who can!

Thanks for any info you can share!

Dena

[Guest guest]

Tammy,

Thank you so much for you post. I really need all the advice and

guidance I can get right now. I am just worried sick wondering what

is " right " for our daughter. I don't want to be in denial but then I

don't want her put somewhere she doesn't belong.

My daughter was tested for IQ and was at 125 without language and

just recently tested again at 109 with the language delay included.

But since she cant get the words out and seems to have a " processing

disorder " per her teacher who I am trying to educate....... she is

feeling that Madison wont be able to function properly in a regular

classroom of 20 something kids. It is hard for me to accept that!

Especially since she is basing the classroom setting on HER classroom

that consists of kids from 3-5yrs old with different delays and

behavioral problems. Madison has started to become quite defiant at

school and I feel that she is bored, doesn't like " nap " time (hasn't

napped in 3 years!) and maybe picking up some of the younger

children's behaviors for attention. Some of them require it due to

their sensory issues but Madison does not. I think she would do

better if she was with her own age group. We are in Florida and our

county does not have different classrooms set up for the different

type delays. Of course there are different classrooms for severely

handicap children.

I just want to help her as much as possible to get her ready for the

right kindergarten class for her.

Thank you so much for your information!

Dena

[Guest guest]

Dena,

I will interject my comments throughout your post.

[ ] Re: Another question

Tammy,

Thank you so much for you post. I really need all the advice and

guidance I can get right now. I am just worried sick wondering what

is " right " for our daughter. I don't want to be in denial but then I

don't want her put somewhere she doesn't belong.

I fully agree and you're doing a great job!

My daughter was tested for IQ and was at 125 without language and

just recently tested again at 109 with the language delay included.

But since she cant get the words out and seems to have a " processing

disorder " per her teacher who I am trying to educate....... she is

feeling that Madison wont be able to function properly in a regular

classroom of 20 something kids.

Have you had an outside evaluation done to get another opinion of whether

Madison has a processing disorder or not? The teacher may (potential though

I'm not buying her expertise if this is a regular classroom teacher diagnosing

her (making that statement) may have a valid point BUT and this is important,

they MUST try the regular classroom with full supports and services BEFORE they

can say that it isn't working. Your daughter hasn't even had a chance to prove

them wrong. Now districts are quite good at skipping this part (the full

supports and services, esp. when it means hiring an aide) but none-the-less it

is a vital consideration that the federal government thought was important

enough to include it in IDEA. Now another thing, was this a regular teacher who

is saying that Madison has a processing disorder? I will have further comments

if it is.

It is hard for me to accept that!

Don't accept it....it's not ok to put her in a restrictive environment without

giving her the consideration of a regular placement. If they try, write a

letter and ask for an IEE (independent educational evaluation) by an outside

source. Personally, when my daughter faced this last year, I would not have

hesitated to file for due process. I wasn't even asking for an aide for my

daughter because I knew she'd be alright but the fuddy-duddy principal wasn't

really educated well enough or caring enough to work through this. I asked for

a district faciliator (I'm in a large district where they have 5 people who do

nothing but facilitate IEPs) to attend and he was quite helpful in helping us

work this out. I also had the EI SLP and the district SLP backing me saying

that they strongly urged MiKayla to be in a regular classroom. After getting an

IEE if the team still is unwilling I would file a complaint with your department

of education. This is a crucial issue for your daughter.

Especially since she is basing the classroom setting on HER classroom

that consists of kids from 3-5yrs old with different delays and

behavioral problems. Madison has started to become quite defiant at

school and I feel that she is bored, doesn't like " nap " time (hasn't

napped in 3 years!) and maybe picking up some of the younger

children's behaviors for attention. Some of them require it due to

their sensory issues but Madison does not.

I would document this as it could obviously be her modeling her peers which

would be another strong argument for inclusion.

I think she would do

better if she was with her own age group. We are in Florida and our

county does not have different classrooms set up for the different

type delays. Of course there are different classrooms for severely

handicap children.

I just want to help her as much as possible to get her ready for the

right kindergarten class for her.

Thank you so much for your information!

Not a problem! Have you tried looking for your state's Parent Training and

Information Center? Every state has one. They offer free training to parents

on issues such as Transition to Kindergarten. If you need me to, I can track

down some Florida contacts for you. In fact if you want to connect with me

privately, email me at tammys_mms@... (my business addy) and I will mail you

some information.

Tammy

Dena

[Guest guest]

Hi, . Yes I think you will notice more stiffness and swelling in

the morning. Or towards evening. My son's ankles and feet were always

very stiff first thing in the am, then after his morning shower would

feel better. It is still that way when he is flaring - which thanks to

the MTX is not that often now. What you are describing is how my son was

until we got the jra under better control. Good luck, Michele

(16,pauci & spondy)

another question

Another question...

Paige has an appt next wed, so we're just waiting until then. I've

noticed that her hand swelling is the worst in the morning and then it's

almost gone during the day (her middle fingers are always swollen

though) and then it starts to get worse in the evinig. It also seems to

get bad if she's been playing outside in the cold all afternoon. Often

she'll wake up in the middle of the night crying and lifting her hands

to us. Have any of you noticed this?

[Guest guest]

No, I don't. Did the archives suggest a connection?

Elaine

Friends come and go, but relatives tend to accumulate.

Hello Flutterbee

On Sunday, June 27, 2004, you wrote

> Seems like i have so many questions... i am going to the endo Thursday at

> 9:00 and am concerned that he will want to do proceedures that are not

> acceptable to me... (been reading in your archives)

> Also, i have little lumpy nodules(sizes of small marbles or split peas)

> vary in size ...from my wrists to my underarms on the inside of my arms, and

> have not thought too much about this, as my dad had what he called fatty

> tumors and are not malignant... but, since finding out that i have

> hyperthyroidism, now i wonder... does anyone in the group have this, too...?

> Scooter

[Guest guest]

No, they did not, at least, what i read did not mention a connection...

Flutterbee

Re: another question

> No, I don't. Did the archives suggest a connection?

>

> Elaine

>

> Friends come and go, but relatives tend to accumulate.

>

> Hello Flutterbee

>

> On Sunday, June 27, 2004, you wrote

>

> > Seems like i have so many questions... i am going to the endo Thursday

at

> > 9:00 and am concerned that he will want to do proceedures that are not

> > acceptable to me... (been reading in your archives)

>

> > Also, i have little lumpy nodules(sizes of small marbles or split peas)

> > vary in size ...from my wrists to my underarms on the inside of my arms,

and

> > have not thought too much about this, as my dad had what he called fatty

> > tumors and are not malignant... but, since finding out that i have

> > hyperthyroidism, now i wonder... does anyone in the group have this,

too...?

> > Scooter

>

>

>

>

>

>

>

[Guest guest]

It varies widely. They have not been able to draw any correlation between alt/ast counts and amount of liver damage, or viral load and amount of liver damage. That's why they usually want a biopsy. -dz-Rhonda <rhondahudson@...> wrote:

How long do you suppose a person has to have Hep C before there is damage tothe liver? Or does it vary from person to person?RhondaBEGIN:VCARDVERSION:2.1N:Hudson;RhondaFN:Rhonda HudsonEMAIL;PREF;INTERNET:rhondahudson@...REV:20040730T164428ZEND:VCARD

[Guest guest]

How frustrating. I ask because as near as I can figure I was probably

infected a good 25 years ago. That seemed a good amount of time for this

stealth disease to do some damage. And here I have no damage but some

inflammation. Curious.

Rhonda

Re: [ ] Another question

> It varies widely. They have not been able to draw any correlation between

alt/ast counts and amount of liver damage, or viral load and amount of liver

damage. That's why they usually want a biopsy. -dz-

>

> Rhonda <rhondahudson@...> wrote:How long do you suppose a person

has to have Hep C before there is damage to

> the liver? Or does it vary from person to person?

> Rhonda

>

>

[Guest guest]

I don't know how many have gained weight. I have. I went from 100 lbs to 140

lbs in about 6 months - prior to treatment. Since RAI I have steadily gained 4

to 5 lbs a year. Sometimes I lose a bit but it seems to be a difficult aspect

of this disease for me.

You could look at http://www.thyroid.about.com/. I know that weight gain is

frequently discussed there.

Kate

another question

How many people who have graves diease gained weight? and if so How

long does it take before you can work on losing it? Also how many

people actually get the eye disorder?

[Guest guest]

Janet,

I am sorry to hear that your daughter is still feeling so poorly. I

am sure that Monday morning can't get here soon enough for you. I

am surprised that your ped doesn't have an answering service for on-

call needs.

My daughter also has migrating joint pain. It will often travel

from her knees to her ankles. She rarely ever has had swollen or

warm joints. She does get swollen lymph nodes in her neck along

with sore throats whenever she flares.

As far as the hot/cold thing. This seems worse with Aundrea when

she is on prednisone or following mtx medication. Last night she

kept getting hotflashes at the basketball game and would go stand

outside in the cold (15 degrees here) and then come back inside.

Later that night she was cold and wanted to wear her coat in the

house and slept inside her sleeping bag.

Perhaps your daughter fever is causing the hot/cold problems.

I know they say that jra isn't suppose to be genetic but I

personally have my doubts about that. In our family I have

hypothyroid, so does my mom, my nephew has poly jra my cousin has

pauci jra, my sister has chrones diseases and my uncle has ra. All

autoimmune disorders. I have read many other instances where

relatives are afflicted with a related autoimmune disorder. I think

it only should make it even more necesary to get your daughter seen

by a rheumy given your own arthritis conditions.

Some suggestions to offer regarding giving your daughter some pain

relief until you can make something happen on Monday.

1) My daughter can live in a hot bath during flares. She eats in

the tub, does homework in the tub, reads etc... It is often the only

time she can have a break from the pain.

2) we use heating pads or warm up a rice pack in the microwave to

put on painful joints. I have heard some people alternate with ice

but Aundrea has always preferred heat.

3) I makes tons of fruit smoothies for Drea when she is in a flare.

due to the sore throat its hard for her to swallow. If you have a

blender just toss in some yogurt, splash of milk, frozen fruit, cool

whip and some sweet n low. You can also replace yogurt and milk

with o.j. if you want.

By the way what is your daughters name? Please continue to let us

know how you and she are doing. I hope today will turn out a little

better.

(drea 9 systemic)---

In , " janet " <janet3339@h...> wrote:

>

> DEAR ALL

> I HAVE POSTED ONCE ABOUT MY 11 YEAR OLD DAUGHTER UNDER THE

> SUBJECT " NEED HELP " ANOTHER SYMPTOM SHE IS HAVING, IS HOT AND COLD

> ALL NIGHT LONG THAT SEEMS TO KEEP HER AWAKE ALOT....HAS ANYONE HAD

> THIS TROUBLE WITH THEIR CHILDREN....IM NEARLY OUT OF MY WITS WITH

> WORRYING....CALLED THE PED FRIDAY AGAIN AND AS USUALL HE DID NOT

> RETURN MY CALL, I CANT STAND TO SEE MY LITTLE GIRL LIKE THIS FOR

> ANOTHER MINUTE. LOOKING SO PALE, WEAK, NO APPETITE, NO

> AMBITION....NOT TO MENTION THE FEVERS AND PAIN IN HER KNEES AND

> LOWER LEGS WHEN THE PAIN MEDS WEAR OFF. IM CALLING THE FAMILY DR

> MONDAY AND DEMANDING TO SEE SOMEONE THAT WILL GIVE US

> ANSWERS...THANK YOU SO MUCH FOR ALLOWING ME TO VENT HERE....I

TRULY

> FEEL YOU FOLKS WILL UNDERSTAND. OH ONE MORE QUESTION, HER KNEES

DONT

> SEEM TO BE REAL SWOLLEN OR RED, JUST PAIN THAT TRAVELS DOWN THE

LEG

> OR GOES FROM THE ANKLE, ALTHOUGH I DO REALIZE THAT SOMETIMES KIDS

> CAN HAVE A HARD TIME REALLY PIN POINTING HOW IT FEELS. THANK YOU

> ONCE AGAIN

> HUGS

> JANET

[Guest guest]

Dear Janet, What kind of arthritis does your child have? If you have

already told us, please forgive me, sometimes I go thru the email pretty

quickly. Could your child be having fevers at night if she is hot and cold?

A joint doesn't have to be red and swollen to hurt. n often has joint

problems without swelling. Pain is pain, it doesn't matter if there is

swellling. Keep pushing for your child, insist on answers. (n,

16, systemic)

ANOTHER QUESTION

>

>

> DEAR ALL

> I HAVE POSTED ONCE ABOUT MY 11 YEAR OLD DAUGHTER UNDER THE

> SUBJECT " NEED HELP " ANOTHER SYMPTOM SHE IS HAVING, IS HOT AND COLD

> ALL NIGHT LONG THAT SEEMS TO KEEP HER AWAKE ALOT....HAS ANYONE HAD

> THIS TROUBLE WITH THEIR CHILDREN....IM NEARLY OUT OF MY WITS WITH

> WORRYING....CALLED THE PED FRIDAY AGAIN AND AS USUALL HE DID NOT

> RETURN MY CALL, I CANT STAND TO SEE MY LITTLE GIRL LIKE THIS FOR

> ANOTHER MINUTE. LOOKING SO PALE, WEAK, NO APPETITE, NO

> AMBITION....NOT TO MENTION THE FEVERS AND PAIN IN HER KNEES AND

> LOWER LEGS WHEN THE PAIN MEDS WEAR OFF. IM CALLING THE FAMILY DR

> MONDAY AND DEMANDING TO SEE SOMEONE THAT WILL GIVE US

> ANSWERS...THANK YOU SO MUCH FOR ALLOWING ME TO VENT HERE....I TRULY

> FEEL YOU FOLKS WILL UNDERSTAND. OH ONE MORE QUESTION, HER KNEES DONT

> SEEM TO BE REAL SWOLLEN OR RED, JUST PAIN THAT TRAVELS DOWN THE LEG

> OR GOES FROM THE ANKLE, ALTHOUGH I DO REALIZE THAT SOMETIMES KIDS

> CAN HAVE A HARD TIME REALLY PIN POINTING HOW IT FEELS. THANK YOU

> ONCE AGAIN

> HUGS

> JANET

>

>

>

>

>

>

>

>

[Guest guest]

Janet,

Sorry to hear about your daughter it can be so frustrating with our

jra kids I know I'm not new here. A idea ya can try would be a heating blanket,

I know with my son's they seem to take alot of hot showers/bath just to warm up

and (soak the joints).Can I ask how long your daughter has had jra? Take care

Teena & 15

janet <janet3339@...> wrote:

DEAR ALL

I HAVE POSTED ONCE ABOUT MY 11 YEAR OLD DAUGHTER UNDER THE

SUBJECT " NEED HELP " ANOTHER SYMPTOM SHE IS HAVING, IS HOT AND COLD

ALL NIGHT LONG THAT SEEMS TO KEEP HER AWAKE ALOT....HAS ANYONE HAD

THIS TROUBLE WITH THEIR CHILDREN....IM NEARLY OUT OF MY WITS WITH

WORRYING....CALLED THE PED FRIDAY AGAIN AND AS USUALL HE DID NOT

RETURN MY CALL, I CANT STAND TO SEE MY LITTLE GIRL LIKE THIS FOR

ANOTHER MINUTE. LOOKING SO PALE, WEAK, NO APPETITE, NO

AMBITION....NOT TO MENTION THE FEVERS AND PAIN IN HER KNEES AND

LOWER LEGS WHEN THE PAIN MEDS WEAR OFF. IM CALLING THE FAMILY DR

MONDAY AND DEMANDING TO SEE SOMEONE THAT WILL GIVE US

ANSWERS...THANK YOU SO MUCH FOR ALLOWING ME TO VENT HERE....I TRULY

FEEL YOU FOLKS WILL UNDERSTAND. OH ONE MORE QUESTION, HER KNEES DONT

SEEM TO BE REAL SWOLLEN OR RED, JUST PAIN THAT TRAVELS DOWN THE LEG

OR GOES FROM THE ANKLE, ALTHOUGH I DO REALIZE THAT SOMETIMES KIDS

CAN HAVE A HARD TIME REALLY PIN POINTING HOW IT FEELS. THANK YOU

ONCE AGAIN

HUGS

JANET

---------------------------------

[Guest guest]

Hi, Tina -

We saw siginificant improvement in Josh's sensory and motor planning when we

did the listening therapy last summer (a 16 week program). Our OT worked with

us. She was trained in the listening therapy and arranged with her supervisor

at the local hospital to purchase several sets of the therapy and then she

handled it like a lendling library (with a small fee for parents) so that parent

would not have to foot the bill for the headphones and CDs unless they saw

results. Josh listened for pretty much the entire 16 weeks and then, nearing

the end, he just took off the headphones and said, All done. He wouldn't put

them back on. But, we're thinking about buying the headphones and 2 or 3 of the

CDs for " refreshers " or for use at school.

As for FasForWord - I've been looking into it - many people have seen amazing

results. I found SLP sort of near me who works with it or can guide a family

through its use. I'm also trying to talk her into giving a demo at our school

to see if the school will foot the bill (they just got put on the warning list

for math and reading - they're blaming the special ed students for lowering the

numbers in the NCLB stats - not surprising).

If you want more info on the listening therapy, contact me.

Sherry

tvs <tinavels@...> wrote:

Does anyone know if the listening program or fast fowards are good ?

Where to buy them, how much? Does a speech therapist have them?

And does anyone want to sell theirs? Thanks for the input, tina

[Guest guest]

I have yet to have surgery because the neurosurgeon I am seeing at UVA

doesn't recommend surgery for pain alone because of the risks involved

performing

the surgery and the fact that pain can be worse after the surgery. This is

applicable to thoracic surgery at T6/7 level. The ribs have to be cracked

open, lung deflated, heart moved to the side just to get to the disc. From what

I have heard, surgery should always be the last choice especially if pain is

the major symptom and no other neurological factors are present. I have heard

this is true of other area as well. I also know people who have had severe

back problems and have been walking within 2 days of surgery at L4/5 and

L5/S1. The resulting pain they describe is like a bad backache, nothing like he

had experienced before.

I am in plenty of pain right now and they are having a hard time controlling

it using narcotics, muscle relaxants, antidepressants, Neurontin, and TENS

unit. Even with all the meds I am taking, he still believes that this is the

best course of action right now because performing the surgery may not relieve

the pain. Once I started to exhibit neurological problems or caudia equina,

then surgery is imminent. Unfortunately, I have had to stop working

(companies decision) and will start collecting LTD in June. I also have to

apply to

social security within the next month. Personally, I would rather be working

but with the pain, side effects and other problems starting to develop, I

don't think I could work.

The Lord has kept me strong to date along with my church family and friends.

I wish both you and your mother the best of luck with her pending surgery

and whatever treatment lies ahead for you.

God Bless,

[Guest guest]

> Dana, I read your new baby link on the website--you mention your son

> had IgA deficiency.

I have never had my son tested, so that info must have been what

someone else had written about their own child.

Dana

[Guest guest]

, the degree of pain is still there and can be for up to 1 yr. I am 6

mths out and for the most part 70% of the time I am pain free. There are

certain things that will aggreivate it, and then I just make a mental note of

that and watch myself the next time. Unfortunatley when we start to age our

bodies tend to go against us.

<watermelanie@...> wrote:hi everyone,

i printed out all the replies about surgery for my mom. we survived our trip.

she's doing really bad today because of the car ride. part of me feels

fortunate that my boo-boo is in my neck. my cervical discs just don't have to

carry as much weight as a lumbar disc. i have a great neck pillow attached to

the headrest of my car which makes driving pretty comfortable for me.

anyhow, i didn't have too bad of a time with all the driving. it was probably

easier on my neck than staring at a computer screen all day at work.

so, on to my question for the surgery people. when you say that you still have

a lot of pain after surgery, do you mean that you don't feel that much better or

that you are just surprised at the level of pain that is still there?

thanks

melanie