hi

[Guest guest]

- That is wonderful new, congrats in advanceand prayer are shot

in your direction also.

> Hi everyone,

> It's been awhile since I posted so I thought I would send you a note

to let you know what is going on here. My RA is doing ok, with the

unpredictable Minnesota weather we have been having I have my good

days and my bad days. With school out I have had a week free of work

- it has been a blessing. I start with summer school next week

Tuesday. Summer school will last 6 weeks and will be held Tues, Wed,

& Thurs. in the mornings.

>

> I have been really busy with my wedding plans. The date is coming

up on us so quick. Larry and I will be married on July 1, 2001. Lots

of changes going on. Sometimes I am surprised to think about getting

married again after what I went through with my ex.

>

> I try to keep up on reading my email. So even if I don't respond,

know that you are in my prayers and thoughts. After the wedding I

will still be P - I'm going from Price to Pederson!

>

> P

>

>

----------------------------------------------------------------------

----------

>

> Faith is daring the soul to go beyond what the eyes can see.

>

>

> [Non-text portions of this message have

[Guest guest]

Hi ,

I have been pretty quiet here lately, I will write more later. Hope you and

the kids are enjoying the summer, although I know it is going into the 40's

tonight, I guess summer came during the week in Chicago this year !!!!!!!

We were in Chicago last weekend, my husband's nephew got married in Tinley

Park. We were only there for a little over 48 hours. Too much running

around for me & am paying a dear price for it. It was a beautiful wedding &

we actually danced one dance at the reception. That was quite an

accomplishment for me as I am now in a wheelchair most of the time when I am

out of the house (due to my knee & back).

I will be keeping you in my thoughts and prayers on Thursday when things are

finalized. I don't know what you are going thru, but you are one tough lady

and as hard as this decision had to be for you, I am sure it was not entered

into lightly and is the best for you and the kids. My sister is still in

the midst of her ex's situation. My niece just arrived today and will be

staying until the end of the month. So the kids are water logged from being

in the pool so much & she hasn't even been here for 24 hours !!!!!

I am also keeping good thoughts and prayers for Me Mom & her brushing

results. I feel so bad that she is going thru yet another waiting game. I

tend to agree with you that her son would be much more vocal if he too was

concerned. But I guess it easier when we don't walk in someone's shoes.

How is finding life as a pedestrian???? Are the kids doing anything

special for the summer????

I am going to try to post a little more & be active. It has just been really

difficult with health & family matters.

Take care,my friend.....Hope you enjoyed the little bit of summer you had

last week & I hope things warm up by the holiday.

Gentle, tender, missed you, angel hugs,

Debs

[Guest guest]

You just write about what's going on when you are ready, Debs. No pressure.

It's still plenty warm here, don't worry. We've had some cool evenings, but

I'm not sure it went as low as the 40s, even though they predicted it. For

me anything above 75 is fairly uncomfortable anyway. I have had the air off

for a glorious two days now, but I feel the humidity creeping upward and I

believe I'll have to turn it on again tomorrow. Oh, well.

Congratulations to your husband's nephew! That's a happy reason to come to

Chicago. Good to hear that you could at least make it through one dance.

What's going on with your back?

Thanks for your kind words of support regarding the divorce. I wish some

people I know would give me a little more credit and realize that, as you

say, I didn't enter into this lightly. Sorry that your sister's situation

stinks, but it's great that you are so close to her daughter and that she

enjoys visiting you so.

is occasionally driving the minivan I used to drive (it was sitting

practically idle in Alan's garage), but she doesn't not have it to use on a

whim and NO passengers are allowed. We're still working out the terms of a

replacement car, but we aren't too close yet. She was away for two different

trips already - one with her father and one with her aunt. Now that she's

back, it looks as if she will be working at Jewel. Once that's a sure thing,

then we will be talking more seriously about a car (and still NO passengers

until further notice).

Nothing yet from Me Mom. I'm hoping we hear good news very soon.

Take care, Debs, and know that I am thinking of you and hope that your world

improves dramatically very soon.

Re: [ ] Hi

> Hi ,

>

> I have been pretty quiet here lately, I will write more later. Hope you

and

> the kids are enjoying the summer, although I know it is going into the

40's

> tonight, I guess summer came during the week in Chicago this year !!!!!!!

>

> We were in Chicago last weekend, my husband's nephew got married in Tinley

> Park. We were only there for a little over 48 hours. Too much running

> around for me & am paying a dear price for it. It was a beautiful wedding

&

> we actually danced one dance at the reception. That was quite an

> accomplishment for me as I am now in a wheelchair most of the time when I

am

> out of the house (due to my knee & back).

>

> I will be keeping you in my thoughts and prayers on Thursday when things

are

> finalized. I don't know what you are going thru, but you are one tough

lady

> and as hard as this decision had to be for you, I am sure it was not

entered

> into lightly and is the best for you and the kids. My sister is still in

> the midst of her ex's situation. My niece just arrived today and will be

> staying until the end of the month. So the kids are water logged from

being

> in the pool so much & she hasn't even been here for 24 hours !!!!!

>

> I am also keeping good thoughts and prayers for Me Mom & her

brushing

> results. I feel so bad that she is going thru yet another waiting game.

I

> tend to agree with you that her son would be much more vocal if he too was

> concerned. But I guess it easier when we don't walk in someone's shoes.

>

> How is finding life as a pedestrian???? Are the kids doing

anything

> special for the summer????

>

> I am going to try to post a little more & be active. It has just been

really

> difficult with health & family matters.

>

> Take care,my friend.....Hope you enjoyed the little bit of summer you had

> last week & I hope things warm up by the holiday.

>

> Gentle, tender, missed you, angel hugs,

>

> Debs

[Guest guest]

Welcome to the group Terri in Colorado. I've only been here about 2 mos.

but I find it great to hear and learn so much from this group.

I was dx about 4yrs. ago with RA, have had two major flare-ups, but am

doing very good at this time. I feel God has intervined on my behalf and the

medications are helping.

Hope you hear from your family and friends in NYC soon. May you and you

family feel the Love, Prayers, and concern from us all.

((((((((((((((((((((((((((((((((((((((((((((((((((((((HUGS))))))))))))))))))))

)))))))))))))))))))))))))))

Becky

[Guest guest]

My thoughts and prayers go out to you and your family Terri. Keep us updated

with anything you hear. I am very sorry to hear about your cousins.

HUGS!

Colleen

Check out my website at: http://www.geocities.com/callyanne21/

>From: Terri <marzipan71@...>

>Reply-

>

>Subject: [ ] Hi

>Date: Wed, 12 Sep 2001 06:45:18 -0700 (PDT)

>

>

>Morning All,

>

>I signed up for this list the night before last, but due to the

>circumstances going on right now felt unable to post. I was dx with RA

>this past May I believe it was. Then last week dx with Oa in L3-S1 just

>yesterday. I look forward to getting to know each of you soon.

>

>Jo I am so grateful you heard from your son in NYC. I had three cousins on

>one of the planes that ran into the WTC. Also I work for a mutual fund

>firm here in Colorado even though I'm presently on long term disability.

>Twelve of my co-workers had the opportunity this week to go to the WTC to

>learn all they could from the financial center of our world. Unfortunately

>no one has heard anything from any of them. Also my dads side of the

>family live right outside Manhattan so I have many relatives at present

>awol. I'm keeping each of you and your loved ones close to heart during

>this time. You're in my prayers. Take special care.

>

>{{{{{{{{{{{{{{{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

>

>Terri in Colorado

>

>

>

>---------------------------------

>

[Guest guest]

Welcome to our group, Terri!

I am quite saddened by your news about your cousins. What a horror! I am so

very sorry. I hope by now that you have received good news about any other

family members or co-workers and that you are somehow coping with this great

sorrow.

Sorry, too, that you have both RA and OA, but you've come to a great place

for information and support. I'm looking forward to hearing more from you.

[ ] Hi

>

> Morning All,

>

> I signed up for this list the night before last, but due to the

circumstances going on right now felt unable to post. I was dx with RA this

past May I believe it was. Then last week dx with Oa in L3-S1 just

yesterday. I look forward to getting to know each of you soon.

>

> Jo I am so grateful you heard from your son in NYC. I had three cousins

on one of the planes that ran into the WTC. Also I work for a mutual fund

firm here in Colorado even though I'm presently on long term disability.

Twelve of my co-workers had the opportunity this week to go to the WTC to

learn all they could from the financial center of our world. Unfortunately

no one has heard anything from any of them. Also my dads side of the family

live right outside Manhattan so I have many relatives at present awol. I'm

keeping each of you and your loved ones close to heart during this time.

You're in my prayers. Take special care.

>

> {{{{{{{{{{{{{{{{{{{{{{{{{{{{hugs}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

>

> Terri in Colorado

[Guest guest]

P,

Please call your rheumy tomorrow! Several of the drugs you are taking

can cause abdominal discomfort and, even worse, GI bleeding (which

can be life-threatening). Vioxx, Zoloft, and Wellbutrin can all do it

alone and, in combination, they may pose a greater risk.

http://news.bbc.co.uk/hi/english/health/newsid_481000/481723.stm

If you mean hydrocodone by " Hydroco, " that is suspect as well. And

hydrocodone is often combined with an analgesic like ibuprofen,

upping the risk for GI trouble; I'm not sure which form of

hydrocodone you are taking though.

Please don't delay - call first thing in the morning, OK? Don't try

to figure it out yourself. You are taking too many drugs. Let your

physician and pharmacist sort out what the main source of trouble may

be. Two weeks is a long time.

In the meanwhile, if you are curious, you can look up any of your

drugs and their side-effects at www.rxlist.com.

Sorry to hear about your frustration with your hands. I can

understand that one too well. Maybe your strength will return.

How is Larry doing?

> Hi everyone!

> Welcome to all of the newbys and there have been quite a few of you

lately. You have found a wonderful place! Lots of information

available and plenty of support.

>

> I have been doing pretty well lately. Some pain (like always) but

it is tolerable. I have noticed that I am loosing a lot of hand

strength, which for me is really frustrating. I tried to open the

hood of my car the other day and it took me both hands and several

tries before I made it. Considering that I am used to taking care of

changing the oil and spark plugs, this was not a fun discovery. LOL

Fortunately for me, Larry is very good with cars. (hard to believe

we've been married 7 months)

>

> Recently (like the last 2 weeks) I have been having stomach

problems every time I eat. I can't eat very much and afterwards I am

so miserable. So far nothing I do is helping the situation. For RA,

I am on Vioxx and Hydroxychlor (generic Planquinil). I also take

Zoloft, Wellbutrin and Allegra. I also use Hydroco and Imitrex as

needed. I am thinking of calling my Rheumatoligist and checking to

see if the medications might be part of the problem. Do you have any

ideas of sites I can go to that might have some helpful information??

>

> P

> linda@m...

>

>

>

[Guest guest]

Hi ,

Have you gotten this figured out yet? I would definitely say that the tummy

problems are probably all the drugs. Didn't someone on here have tummy

problems while on Vioxx? I have a question, how come you are on Zoloft AND

Wellbutrin? I would suggest you call your pharmacist and ask them what the

drug interactions are on all of those, too.

~Rainy Sue

[ ] Hi

> Hi everyone!

> Welcome to all of the newbys and there have been quite a few of you

lately. You have found a wonderful place! Lots of information available

and plenty of support.

>

> I have been doing pretty well lately. Some pain (like always) but it is

tolerable. I have noticed that I am loosing a lot of hand strength, which

for me is really frustrating. I tried to open the hood of my car the other

day and it took me both hands and several tries before I made it.

Considering that I am used to taking care of changing the oil and spark

plugs, this was not a fun discovery. LOL Fortunately for me, Larry is very

good with cars. (hard to believe we've been married 7 months)

>

> Recently (like the last 2 weeks) I have been having stomach problems every

time I eat. I can't eat very much and afterwards I am so miserable. So far

nothing I do is helping the situation. For RA, I am on Vioxx and

Hydroxychlor (generic Planquinil). I also take Zoloft, Wellbutrin and

Allegra. I also use Hydroco and Imitrex as needed. I am thinking of

calling my Rheumatoligist and checking to see if the medications might be

part of the problem. Do you have any ideas of sites I can go to that might

have some helpful information??

>

> P

> linda@...

>

>

>

[Guest guest]

Hi

Please let me wish you a Happy Birthday!!!Sorry it is late but I have not

been on the computer in awhile.

Love Joanne

[Guest guest]

Dear ....I'm glad you've come here. You can cry, express your

feelings, whatever you need here. This is a group of caring,

understanding folks.

Will you have internet access when you get to Germany? I hope so, so

you can come here whenever you want & need.

I'll keep you & yours in my prayers.

Hugs of Hope...

Tess (Portland, Oregon)

[Guest guest]

Dear Theresa: Hang in there from an old military wife. I know the days can be

bad but as long as you have the support of this group, it will be easier to

face. I will keep you in my prayers as I know all on this list will. If you

ever need to " unload " we are here. Bless your husband for his support. Jan in

CA (Momacat - MeMa)

Note: forwarded message attached.

---------------------------------

[Guest guest]

thanx so much for everyones concern!!!!! ti definatly helps. i know my hubby

still has a hard time understanding. i think thats why i need some

communication with people who are going through the same thing.thanx

again...teresa in maryland..i too plan on retiring in OK. i love ft. sill

[Guest guest]

Hi : I am also an old Army wife...transplanted

to

Oklahoma from NH and never went back....medical

benifits here and all....I dont think denial is

uncommon at any age when you are diagnosed with

autoimmune disease and I am sure many in this group

went though it...this group is a great place to start

to get support...they even give the greatest pity

partys...LOL...and will usually help in anyway the

can...anyway wanted to say HI....Kathi in OK

--- drillandwife@... wrote:

> my name is teresa..i have been on the list for a

> while now but have not been

> an active participant,so forgive me,i am a little

> late. i am a military

> wife,mother of 3 and am 29 years old with R.A. and

> degenerative disc

> disease.i guess my reason for not participating is

> pure denial. i have been

> diagnosed for 2 years but because of my age i

> refused to believe it would

> ever get the best of me.i also fell into the same

> sink hole as my husband,i

> couldnt SEE anything wrong so how is this

> possible.now almost a year without

> seeing my dr. i am feeling the wrath of R.A. i have

> severe pain in my feet.

> almost to where i cant walk and do a lot of crying.

> not to mention my back.

> we will be going to germany in oct. after fighting

> our way through the red

> tape with the military and my illness. i guess i'm

> just looking for someone i

> can cry to cause my spouse has enough on his plate.

> pleasr...keep me in your

> prayers..aln i'll do the same to you!!!!!!!!!!!!!!!

> love teresa

>

__________________________________________________

[Guest guest]

This presciption is permanently refillable!

(((((((((((((((((((((((Debs)))))))))))))))))))))))))

(((((((((((((((((((((((Debs)))))))))))))))))))))))))

(((((((((((((((((((((((Debs)))))))))))))))))))))))))

[Guest guest]

Debs,

You are having such a terrible time, I wish there was something I could do

for you. Hope you can rest and you start feeling better. What an awful time

you have had with all this. Very gentle hugs to you,

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Hi All,

>

> Sorry I have been quiet again. Having trouble typing right now. I passed

> out Sunday morning in the bathroom and must have knocked my hand into the

> wall and took off my acrylic and real nail right down to the quick. The

> bleeding wouldn't stop once again and I also bruised the middle finger next

> to it. So when I type, the words come out real strange. Thank goodness for

> spellcheck!

>

> Hopefully this will heal a little bit and I can start plunking on the keys

> again.

>

> Gentle, tender, angel hugs,

>

> Debs in FL

>

>

>

[Guest guest]

Tess,

I can feel the hugs and smell the chicken soup as I type. Sending same back

to you sweetie.

{{{{{{{{{{{{{{{{{{{{{{{{{Tess}}}}}}}}}}}}}}}}}}}}}}}}}}}}

{{{{{{{{{{{{{{{{{{{{{{{{{Tess}}}}}}}}}}}}}}}}}}}}}}}}}}}}

{{{{{{{{{{{{{{{{{{{{{{{{{Tess))))))))))))))))))))))))))))

Good friends are hard to find in life! Thanks for being mine.

Gentle, tender, angel hugs,

Debs in FL

[Guest guest]

Hi ,

Thanks for your concern. Boy, you have really had a tough time of it! How

are all the new joints working? My ortho thinks that within the next few

months, I will be needing my first hip replacement, but first I gotta get

this knee thing straightened out. This was the first knee that I had

replaced and it was pretty much a text book recovery, so go figure! I will

probably be asking for some advice as I get closer to the hip replacement,

but for right, now I will just take one day at a time.

Did you get the same weather that Chicago had a few days ago, rain and then

cooler weather? Hope you enjoy your weekend with friends and family.

Gentle, tender, angel hugs,

Debs in FL

[Guest guest]

I was also told that hips are much easier than knees. I guess the whole

mindset would have to change. Protecting the hip joint. Hmmmmmmm. I still

subconsciously move my knees I guess just out of habit. I am not sorry that

I had them done, but I could do with less complications. If I was abusing

them or something like that, I could better understand it, however, both of

these problems occurred while using the commode. Kinda scares me to do

anything that may be considered out of the ordinary!

Take care.

Debs in FL

[Guest guest]

Debs,

Knock on wood the joints are great-just gave up the crutches this week and I

am happy-if I could better control my asthma I'd be a happy duckie but you

are scaring me with problems with you knee. The hip was a breeze compared

to the knee- only thing is that the rehab period is focused on protecting

rather than working it. Was hard to remember-still need to not bend much

etc. Suppose to use a cane but I hate it.

Temple

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html FAMILY

http://www.homestead.com/kuddlekrittersdairygoats/index.html FARM

http://www.homestead.com/kuddlekraft/index.html CRAFTS

[Guest guest]

Hi, don't be afraid, there's a whole new mess of drugs out there to take and

they seem to be doing very well on lots of us. What were some of your lab

results, like white blood count, hemoglobin, or platelets? There are so many

well informed folks on this lits that will be able to help you understand cml,

you will wonder one day why you were even worried. I am 78 and have had cml for

13 years, live every day to the fullest, and never think about it unless iI am

posting about it. Ask away, there will be someone that can answer your

questions. One of the first things to do is be sure you have a good oncologist,

a specialist in hematology, and take it from there. Good luck, blessings,

Bobby, and one more thing, would you put a name to your post? It's nice to say

Hi, someone, instead of just HI !!!

Thanks.

evaob365 <evaob365@...> wrote:

Just diagnosed!! Dont understand anything ...but scared out of my

mind . Had biopsy and now no word from anyone about anything for 2

weeks. The waiting and not understanding what is going on is driving my

family and I crazy. Hope to hear something soon.

a (Bobby) Doyle

Brecksville, Ohio, USA

DX 05/1995

02/2000 - Gleevec Trial/OHSU

06/2002 - Gleevec/Trisenox Trial/OHSU

06/2003 - Gleevec/Zarnestra Trial/OHSU

04/2004 - Sprycel Trial/MDACC, CCR in 10 months

#840 - Zavie's Zero Club

09/2006 - out of CCR

[Guest guest]

Call your doctor. You should have heard something now.. =don't be afraid. We

are all here for you and most of us are doing so well!!!!

Sharon

_____

From: [mailto: ] On Behalf Of

evaob365

Sent: Sunday, March 09, 2008 7:49 AM

Subject: [ ] Hi

Just diagnosed!! Dont understand anything ...but scared out of my

mind . Had biopsy and now no word from anyone about anything for 2

weeks. The waiting and not understanding what is going on is driving my

family and I crazy. Hope to hear something soon.

[Guest guest]

Hi,

Don't be afraid. Lab tests can take a long time, depending on the

lab. I think that mine, almost 8 years ago, took 2 weeks.

I've done well on 400 mg. Gleevec since June, 2001. I've had minimal

side-effects.

Just wanted to welcome you to the group and you'll learn a lot here!

Take care,

Zazzy

>

> Just diagnosed!! Dont understand anything ...but scared out of my

> mind . Had biopsy and now no word from anyone about anything for 2

> weeks. The waiting and not understanding what is going on is

driving my

> family and I crazy. Hope to hear something soon.

>

[Guest guest]

Hi Zazz,

I just realized I never knew you had been on 400 mg Gleevec all this time. When

it works right it really works right! So happy something has gone well for you.

I know for sure of one other person who's still on 4-- mg and has not had to

increase dosage or change drugs.

Hooray for you!

L

[ ] Re: Hi

Hi,

Don't be afraid. Lab tests can take a long time, depending on the

lab. I think that mine, almost 8 years ago, took 2 weeks.

I've done well on 400 mg. Gleevec since June, 2001. I've had minimal

side-effects.

Just wanted to welcome you to the group and you'll learn a lot here!

Take care,

Zazzy

>

> Just diagnosed!! Dont understand anything ...but scared out of my

> mind . Had biopsy and now no word from anyone about anything for 2

> weeks. The waiting and not understanding what is going on is

driving my

> family and I crazy. Hope to hear something soon.

>

[Guest guest]

Thanks for the info I just want to be able to breathe again. Take care.Eva

@...: chanson@...: Sun, 9 Mar 2008 17:47:35

+0000Subject: [ ] Re: Hi

Hi,Don't be afraid. Lab tests can take a long time, depending on the lab. I

think that mine, almost 8 years ago, took 2 weeks. I've done well on 400 mg.

Gleevec since June, 2001. I've had minimal side-effects. Just wanted to welcome

you to the group and you'll learn a lot here! Take care,Zazzy>> Just diagnosed!! Dont

understand anything ...but scared out of my > mind . Had biopsy and now no word

from anyone about anything for 2 > weeks. The waiting and not understanding what

is going on is driving my > family and I crazy. Hope to hear something soon.>

_________________________________________________________________

Your chance to win great prizes with Windows Live Mail and MobileMail.

Click here to learn how.

http://g.msn.ca/ca55/207

[Guest guest]

Hi,

Welcome to the club that nobody really wants to be a member of.

Diagnosing CML is very easy. They do the biopsy to confirm the diagnosis.

Treatment is very simple. One single pill a day and the outcome has been

spectacular. 85% of all patients reach a high level of remission. For the

other 15%, there are more than 4 new drugs that work in those cases where

Gleevec doesn't

There is a wealth of knowledge and compassion on this list. Just ask and we

will help.

Hoping to enroll you in the Zero Club real soon,

Zavie

Zavie (age 69)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.2 log reduction Jun/07

3.6 log reduction Sep/07

3.5 log reduction Feb/08

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-202-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of

evaob365

Sent: March 9, 2008 10:49 AM

Subject: [ ] Hi

Just diagnosed!! Dont understand anything ...but scared out of my

mind . Had biopsy and now no word from anyone about anything for 2

weeks. The waiting and not understanding what is going on is driving my

family and I crazy. Hope to hear something soon.