Re: HHV-6 Foundation on Valcyte effectiveness, safety for CFS

[Guest guest]

My Doctor is treating me for virus, bacteria and fungus with Vit D3 and

other supplements. Also antivirals, antibiotics and antifungals as

needed. Although I don't quite understand his thinking as to the cause (

and he has some very specific ideas, different than those published so

far) he also sees the need to address all the problems and symptoms that

the disease has caused. I feel blessed to have him.

Gail

camp22 wrote:

>

> I think it is very confusing right now, because we have one set of

> list members advocating abx, one set antivirals and another set a

> nutritional/ vitamin protocol. However, that is what this list is

> for, experimental treatments.

>

> I think we have to keep in mind that in dealing w/ 'CFS', we may

> not all have the same pathogen/problem. Therefore, what works for

> one person may not work for another. The only example of this is

> I believe Dr. Lerner's antiviral protocol, where your bloodwork has

> to show signs of viral activity before you get the gancyclovir.

> To me, this is the direction that we should be going-suiting the

> treatment for the individual. The problem is, you only have docs

> who favor abx (Nicholson), or antivirals (Lerner) or nutritional

> methods (Yasko). Then there are docs like Dr. Klimas who admit that

> they really don't know what is going on and treat symptoms, such

> as sleep, pain, etc.

>

> Mike C.

>

>

> >

> >

> > Dear ,How long did you take the antibiotics? Did you take

> anything alont with them. Dr. Nicholson now write that we should be

> taking medications that are antivirals along with the antibiotics. I

> am so confused about all of this, as I am sure that many people are

> as well.Mira@ ...: david-hall@. ..: Sun, 1 Jul

> 2007 16:37:03 +0000Subject: Re: HHV-6 Foundation

> on Valcyte effectiveness, safety for CFS

>

>

[Guest guest]

My Doctor is treating me for virus, bacteria and fungus with Vit D3 and

other supplements. Also antivirals, antibiotics and antifungals as

needed. Although I don't quite understand his thinking as to the cause (

and he has some very specific ideas, different than those published so

far) he also sees the need to address all the problems and symptoms that

the disease has caused. I feel blessed to have him.

Gail

camp22 wrote:

>

> I think it is very confusing right now, because we have one set of

> list members advocating abx, one set antivirals and another set a

> nutritional/ vitamin protocol. However, that is what this list is

> for, experimental treatments.

>

> I think we have to keep in mind that in dealing w/ 'CFS', we may

> not all have the same pathogen/problem. Therefore, what works for

> one person may not work for another. The only example of this is

> I believe Dr. Lerner's antiviral protocol, where your bloodwork has

> to show signs of viral activity before you get the gancyclovir.

> To me, this is the direction that we should be going-suiting the

> treatment for the individual. The problem is, you only have docs

> who favor abx (Nicholson), or antivirals (Lerner) or nutritional

> methods (Yasko). Then there are docs like Dr. Klimas who admit that

> they really don't know what is going on and treat symptoms, such

> as sleep, pain, etc.

>

> Mike C.

>

>

> >

> >

> > Dear ,How long did you take the antibiotics? Did you take

> anything alont with them. Dr. Nicholson now write that we should be

> taking medications that are antivirals along with the antibiotics. I

> am so confused about all of this, as I am sure that many people are

> as well.Mira@ ...: david-hall@. ..: Sun, 1 Jul

> 2007 16:37:03 +0000Subject: Re: HHV-6 Foundation

> on Valcyte effectiveness, safety for CFS

>

>

[Guest guest]

And, of course, too many antibiotics can impact the body not well fortified

with probiotics and hence allow yeasts to go wild. So now we have bacteria

and viruses and yeasts to content with, all hard hitting our immune systems.

mjh

Posted by: " yakcamp22 " _yakcamp22@... _

(mailto:yakcamp22@...?Subject=

Re:%20HHV-6%20Foundation%20on%20Valcyte%20effectiveness,%20safety%20for%20CFS)

_yakcamp22 _ (yakcamp22)

Tue Jul 3, 2007 12:42 pm (PST)

a- I agree that progress is being made. I was putting myself in

the shoes of someone who might have just joined this list who sees

that CFS is possibly bacterial or virally caused. To me that is a

huge

issue if you are going to see a doc who only does one or the other.

After my message last night, I was reading some of Garth Nicholson's

papers, and he was saying that the mycoplasma (bacterial) infections

could cause the immune system to weaken to the point where viral

issues are a big problem. So, we may be dealing w/ both, and the

sickest patients may end up requiring abx and antivirals, or

massive anti-oxidantants and other supplements (Yasko).

Mike C

************************************** See what's free at http://www.aol.com.

[Guest guest]

a- I agree that progress is being made. I was putting myself in

the shoes of someone who might have just joined this list who sees

that CFS is possibly bacterial or virally caused. To me that is a

huge

issue if you are going to see a doc who only does one or the other.

After my message last night, I was reading some of Garth Nicholson's

papers, and he was saying that the mycoplasma (bacterial) infections

could cause the immune system to weaken to the point where viral

issues are a big problem. So, we may be dealing w/ both, and the

sickest patients may end up requiring abx and antivirals, or

massive anti-oxidantants and other supplements (Yasko).

Mike C

>

> Mike, I think things are getting clearer than they used to be.

Those

> of us who took antibiotics also took a lot of supplements etc.

> Currently Montoya is only treating those with elevated EBV and HHV6

> with Valcyte, so he is not suggesting treating all patients with

> antivirals. And Dr. Stratton started an antibiotic protocol based

on

> folks who tested positive for c. pneumoniae. I continue to hear

good

> comments from that group. The Lyme doctors are looking more and

more

> for babesia which they seem to think is a big player. To me this

> looks like some progress.

>

> a

[Guest guest]

Dear Mike,Like you I have been reading Garth Nicholson's website and to me it

has become clear that what starts the whole process is the mycoplasma. I am just

concerned that not everybody who tests for it has it in their body or that the

test are not in the right way. I also know that if a blood sample is not taken

at the right time of the week--do not send blood samples near the end of the

week or they may end up stuck someplace for the weekend-- or become too warm in

transit, then the mycoplasma will die, which will lead to a false negative

finding for the patients. Consequently their doctor will give them antivirals

which would work either for a while or on a limited basis because the mycoplasma

is still living in the white blood cells of their immune system. I tend to trust

Garth Nicholson, because from reading his book about the history of his and his

wife's search for the truth about the power of the mycoplasma infection, I have

learned that his wife had a major case of CFS that nearly killed her and that he

had a milder case after she recovered. They both recovered after taking

doxycycline for extended periods of time. Again, from what I have gathered in my

mentally impaired CFS mind, the mycoplasma lives and travels around the body in

the white blood cells. After eating a white blood cell from the inside it goes

to eat all other cells in our tissues and eats those from the inside as well.

After such a feast it leaves the cell wearing the outer layer of their meal like

a Halloween costume and it fools the immune system into thinking that it is part

of our bodies. Then it slips into another cell and eats it from the inside as

well. Their mode of transport and their meals are white blood cells. No wonder

we all have opportunistic infections as our immune system is being eaten up

alive. I recommend that people read their book entitled " Project Day Lily " which

is available on their website.Mira@...:

yakcamp22@...: Tue, 3 Jul 2007 19:42:37 +0000Subject:

Re: HHV-6 Foundation on Valcyte effectiveness, safety for

CFS

a- I agree that progress is being made. I was putting myself in

the shoes of someone who might have just joined this list who sees

that CFS is possibly bacterial or virally caused. To me that is a

huge

issue if you are going to see a doc who only does one or the other.

After my message last night, I was reading some of Garth Nicholson's

papers, and he was saying that the mycoplasma (bacterial) infections

could cause the immune system to weaken to the point where viral

issues are a big problem. So, we may be dealing w/ both, and the

sickest patients may end up requiring abx and antivirals, or

massive anti-oxidantants and other supplements (Yasko).

Mike C

>

> Mike, I think things are getting clearer than they used to be.

Those

> of us who took antibiotics also took a lot of supplements etc.

> Currently Montoya is only treating those with elevated EBV and HHV6

> with Valcyte, so he is not suggesting treating all patients with

> antivirals. And Dr. Stratton started an antibiotic protocol based

on

> folks who tested positive for c. pneumoniae. I continue to hear

good

> comments from that group. The Lyme doctors are looking more and

more

> for babesia which they seem to think is a big player. To me this

> looks like some progress.

>

> a

_________________________________________________________________

Make every IM count. Download Windows Live Messenger and join the i’m Initiative

now. It’s free. 

http://im.live.com/messenger/im/home/?source=TAGWL_June07

[Guest guest]

a,

Sorry, I am just getting back on this list after couple years

absence, and just saw your message. I have Lyme, and one of the truly

only things that I saw a huge improvement with was Famvir. Much more

so than a couple years of IV antibiotics.

I do test positive for EBV, but not for herpes (also no signs or

symptoms of herpes- I don't even get cold sores). The bad news is it

didn't last. I even tried going off for about a year and then back

on, but it didn't help. So, not sure what it was killing off that

made me feel better.

>

> I also suspect that the viruses are not the MAIN players. I just

> started taking Valtrex because my IgG EBV titre was very high after

> several years of antibiotics following Dr. Nicolson's protocol for

> mycoplasma.

>

> Yesterday I was going through old files and came across a

> pathologist's comments about borrelia (Lyme disease bacteria) being

> INSIDE cells. He commented that antivirals may kill borrelia.

>

> So it may be that Valtrex and Valcyte are killing mycoplasma and

> borrelia as well as reducing viral load.

>

> I would be interested in any other input on this possibility.

>

> a Carnes

>

>

[Guest guest]

Hi, .

It was probably virus that famvir knocked down in you and your

relapsing is a common story for PWCs whether they experienced similar

temporary benefit from antiobiotics or an antiviral. It may have been

old EBV itself that you knocked down, but the problem with relapse,

IMO, is that the root issue of glutathione depletion and methylation

cycle blocks were not addressed in you.

This is what Rich's new simplified treatment currently being tried by

over 50 PWCs now is intended to correct to bring about cure that

sticks. You may want to look into it, it's not expensive and many of

the those experimenting with it are having discussions as of late here

and at http://www.immunesupport.com on their discussion board.

<tansyhl@...> wrote:

>

> a,

> Sorry, I am just getting back on this list after couple years

> absence, and just saw your message. I have Lyme, and one of the truly

> only things that I saw a huge improvement with was Famvir. Much more

> so than a couple years of IV antibiotics.

>

> I do test positive for EBV, but not for herpes (also no signs or

> symptoms of herpes- I don't even get cold sores). The bad news is it

> didn't last.

[Guest guest]

Epstein-Barr is a Herpes virus. So, you do have a kind of Herpes.

mjh

I do test positive for EBV, but not for herpes (also no signs or

symptoms of herpes- I don't even get cold sores). The bad news is it

didn't last. I even tried going off for about a year and then back

on, but it didn't help. So, not sure what it was killing off that

made me feel better.

************************************** See what's free at http://www.aol.com.