Re: Update on Schardt protocol/a Carnes

[Guest guest]

Dear a and Rivka,

could you please tell us the differences in your protocols?

Thanks a lot.

Massimo

>

> Hi a and others curious about the Schardt protocol.

>

> I am in the middle of my 3rd round of the Schard protocol (each

round

> consists of 50 days of diflucan 200 mg, followed by 14 days of a

> penicillin -- my doc has me on amoxicillin, 3000 mg/day).

>

> This is my report so far:

>

> For the first round, while on the diflucan, i was very sick. Was

it a

> herx or a " normal " relapse, i don't know.

>

> Once off diflucan and on the Amoxy, i did well. Super well.

Amazingly

> well. Lasted 2 weeks. Freaked me out. I haven't felt that well in

17

> years.

>

> Then back on the diflucan for round two: i did okay, did a lot

more

> than usual, much more than usual!, but at the same time, even tho

i

> was doing more, i still had all the same usual CFS/Lyme symptoms

> (exhaustion and brain fog), so i was not *feeling* amazingly well,

> even as i did more than usual.

>

> Then back on Amoxy: same as what i just wrote above: able to do a

lot

> more than usual, but all my exhaustion and brain fog was still

very

> present. but i DID a lot more out in the world!

>

> Then back on the diflucan for round three, and i'm doing amazingly

> well again. I have symptom-free hours now. Symptom-free

afternoons!

> Whole afternoons go by without exhaustion or brain fog. AMAZING!

>

> I have started taking an aqua exercise class, and started

swimming.

> this is the first time i have done that in 17 years.

>

> Still to do: I have 1 more month of the diflucan and then 2 weeks

of

> amoxy. Then i will be done with the protocol.

>

> I hear there is a lyme doc in the U.S. who has his patients doing

> this protocol go on a yeast-free diet. I have not done that. Have

> you, a?

>

> Also, I hear this same doc has patients take a diflucan if

symptoms

> return (2 days before symptoms return, after you gage how long it

> takes for symptoms to return). Has anyone else heard this?

>

> I have been off this list for a while, if anyone else besides

a

> is doing this Schardt protocol, I'd love to hear from them!

>

> Rivka

> rr22rr44@...

>

>

>

>

>

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-->Update

> on Schardt protocol/a Carnes

>

> Posted by: " pjeanneus " <mailto:pj7@...?Subject=

> Re%3AUpdate%20on%20Schardt%20protocol%2Fa%20Carnes>pj7@...

> <pjeanneus> pjeanneus

>

> Thu Dec 28, 2006 4:39 pm (PST)

>

> Hello all,

> I just saw the doctor today. My liver function is completely normal

> after 25 days on Diflucan 200 mg a day. I will start penicillin

> tomorrow for 2 weeks and then do the whole cycle two more times.

>

> I also got a capsacin spray, yes, now I am pepper spraying myself,

to

> see if this relieves the weird pressure headache. I've used it 3

days

> and can't tell if it is helping. Today I have a rather bad pressure

> headache just above both ears.

>

> My lumbar puncture tests continue to come back all normal even the

> cultures they grew for a month. One glitch, they didn't do the MS

> test, but since my MRI was normal the MS test PROBABLY would have

> been normal.

>

> The initial pressure was 210 with 180 being the high range of

normal.

> However, my doc says they never get concerned at 210. We both think

> it could be high for me and that I might be super sensitive to the

> elevated pressure. I did not have any relief of headache after the

> spinal tap. This would lead me to believe that the pressure is not

> causing the headache.

>

> My blood pressure MAY have spikes where is becomes high. Most of

the

> time it is quite normal. But the doc gave me a low dose BP

medication

> today which I will take.

>

> One further thought - I have always responded well to Zithromax

which

> is processed through the liver via the P450 pathway. Diflucan is

also

> processed through P450. The theory behind why it works on borrelia

is

> that borrelia uses a P450 enzyme to reproduce or something?? - this

> makes me think that both Zithromax and now Diflucan may be the best

> thing for me to take NOT TOGETHER. This may also explain why I do

so

> well on Zithromax even though theoretically it is not the best

> antibiotic for borrelia.

>

> Anyway, I plan to continue the Schardt protocol. I feel bad enough

> these 25 days that I actually may be herxing which I never did on

> Zithromax. Of course, it may just be the continuation of whatever

> started seven months ago when I developed the headache and vertigo.

> No one knows.

>

> a Carnes

>

>

[Guest guest]

Rivka,

This is so encouraging. My doctor doesn't want me to go on 50 days

but has me starting the penicillin now. I felt pretty sick the past

25 days on Diflucan. It seemed like a Herx as I even ran a fever -

very rare for me.

We plan to do 3 cycles. I will post in a few days as I get on the

penicillin.

Thanks so much for sharing how you did. I will print it and save for

encouragement.

a Carnes

>

> Hi a and others curious about the Schardt protocol.

>

> I am in the middle of my 3rd round of the Schard protocol (each

round

> consists of 50 days of diflucan 200 mg, followed by 14 days of a

> penicillin -- my doc has me on amoxicillin, 3000 mg/day).

>

> This is my report so far:

>

> For the first round, while on the diflucan, i was very sick. Was it

a

> herx or a " normal " relapse, i don't know.

>

> Once off diflucan and on the Amoxy, i did well. Super well.

Amazingly

> well. Lasted 2 weeks. Freaked me out. I haven't felt that well in

17

> years.

>

> Then back on the diflucan for round two: i did okay, did a lot more

> than usual, much more than usual!, but at the same time, even tho i

> was doing more, i still had all the same usual CFS/Lyme symptoms

> (exhaustion and brain fog), so i was not *feeling* amazingly well,

> even as i did more than usual.

>

> Then back on Amoxy: same as what i just wrote above: able to do a

lot

> more than usual, but all my exhaustion and brain fog was still very

> present. but i DID a lot more out in the world!

>

> Then back on the diflucan for round three, and i'm doing amazingly

> well again. I have symptom-free hours now. Symptom-free afternoons!

> Whole afternoons go by without exhaustion or brain fog. AMAZING!

>

> I have started taking an aqua exercise class, and started swimming.

> this is the first time i have done that in 17 years.

>

> Still to do: I have 1 more month of the diflucan and then 2 weeks

of

> amoxy. Then i will be done with the protocol.

>

> I hear there is a lyme doc in the U.S. who has his patients doing

> this protocol go on a yeast-free diet. I have not done that. Have

> you, a?

>

> Also, I hear this same doc has patients take a diflucan if symptoms

> return (2 days before symptoms return, after you gage how long it

> takes for symptoms to return). Has anyone else heard this?

>

> I have been off this list for a while, if anyone else besides a

> is doing this Schardt protocol, I'd love to hear from them!

>

> Rivka

> rr22rr44@...

[Guest guest]

Massimo,

The differences are that Rivka is getting 50 days of diflucan per

cycle. I am getting 25 days - but the same dose 200 mg a day. Then she

is getting amoxycillion where I am getting penicillin VK. My doctor is

trying to stick as close to what Schardt used in his original research

as possible because she doesn't know anything about how his current

patients are doing. There is very little posted on the internet, at

least not in English.

a Carnes

>

> Dear a and Rivka,

>

> could you please tell us the differences in your protocols?

>

> Thanks a lot.

>

> Massimo