re disabilty & advice

[Guest guest]

>netsukeme <kcapel@...> wrote: Hi Marti,

>A request that you share info about disability and attorneys when you

>get it, please? The first time I tried to fill out the SSA papers

>for disability I was too sick to comprehend one sheet from the

>other. The second time was last year, 2005, and the system had

>changed considerably, with more individual help available, which was

>gratifying. I was still turned down. They said I was

>still " partially " functional. Still struggling here too, so I'd

>appreciate if you'd share info. Either here on the group, if it's

>permitted, or backchannel me:

>kcapel@...

Hi there,

Just a quick update as requested: filed for disability and SSI - did

it myself. Monumental effort and I feel proud of myself that I did

it. I contacted the attorneys listed on the list's welcome message

(except for in Arizona). No response - not even a callback.

Weird. Starting to realize that there are tests for getting well and

tests for proving illness.

Does anyone have a good attorney that and I can start with to

get some relief? Or some advice on the type of attorney NOT to get.

Is there a group that deals with disability issues and ME/CFIDS or

should we take this backchannel? I know this list is for new

experimental treatments. Please advise.

In researching the archives, I found a message 104644 about ME being

easier to deal with in terms of disability. Checked the website and

it lists a series of tests and symptoms re: Myalgic

Encephalomyelitis (ICD-9 CM---323.9). A place to start at least.

I posted a rather long message regarding the types of tests/protocols

that I should start with. It was directed at Rich but anyone can

respond backchannel or here, if they would like to. I will accept

advice from anyone. I am really struggling to get well and to get up

to speed with latests protocols and would appreciate any help. See

Message #105104.

Blessings,

Marti Z.