Re: My CFS treatment protocol.

[Guest guest]

I use Harry's D-lactate free formula probiotic and it works great for me. A good

book to read that mentions the issue of the probiotics possibly causing

Dysbiosis is " A New IBS Solution " by Mark Pimentel, MD. I folllowed his program

and no longer have gut issues along with the Yasko's program regarding

methylation, etc.

Sue T

jill1313 <jenbooks13@...> wrote:

Harry at customprobiotics makes a d-lactate free formula for autistic

kids. Perhaps there is some connection here with poor methylation, who

knows. But very very high potency formulas (such as VSL#3), or

Harry's, have proven very beneficial. I question the statement that

too much can be bad or feed the bad bacteria. More to the point is

that various " good " bacteria modulate the immune system in different

ways. A good book to read is Bacteria for Breakfast by Karpa. It

has all the research and in readable chapters. IL10, IL2 and various

other cytokines are modulated by the good bacteria--mostly to our

benefit, that's why we call them good bacteria as we are symbiotic

with them. They also manufacture compounds that actually kill the bad

bacteria.

> Too much acidophilus and bifidobacterium is harmful.

> Blake

>

>

>

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[Guest guest]

I'll look at that. I just wrote a little piece on probiotics and plan

to do more--they are a fascinating avenue of research. Some are very

potent and could be genetically engineered to be natural antibiotics

even more potent than they are. In fact, there is some work going on

in that regard.

Don't you wish Harry would lower his prices a little? I experimented

with separate versions of each acidophilus and find that l. salivarus

and/or l.plantarum help my bladder irritation.

> > Too much acidophilus and bifidobacterium is harmful.

> > Blake

> >

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> >

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[Guest guest]

I had them regularly for awhile.The practitioner was wonderful,

respectful and educating. The room was sterile and the water she used

for the flush had a complex filtering system so it was filtered a number

of times.

It relieved me of chronic constipation which had troubled me for many

years. The relief lasted for many years. But lately has come back. That

practioner is no longer working and I don't know if I would trust another.

Gail

jill1313 wrote:

>

> Thanx...

> In terms of expense, I would like to do my own, but I just don't

> believe I have it in me...psychologicall y (colemas...) blech...I keep

> trying to convince myself I could do it, but I don't think so...

>

> And in NY they are so expensive... but they are part of every cleansing

> protocol that I know of, so...

>

> I know of two highly recommended practitioners. I was considering one

> center but they did not use disposables so I walked out of there five

> minutes after I walked in.

>

> I'm very ambivalent about it I must admit.

>

>

> > > >

> > > > Dear list,

> > > >

> > > > As I have mentioned on this list previously, I

> > > have been working on

> > > refining a protocol document for CFS. Over the

> > > past month I have made

> > > a number of modifications to this document. The

> > > current version is

> > > available at:

> > > >

> > > >

> > >

> > >

> >

> http://www.nutritio nal-healing. com.au/content/ articles-

> content.php? heading=CFS% 20treatment% 20protocol

>

<http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%\

20treatment%20protocol>

> > > >

> > > > Once more if anyone has any constructive

> > > criticism/suggestio ns,

> > > please email me on list or off list (blake@).

> > > >

> > > > Regards,

> > > >

> > > > Blake Graham, B.Sc (Honours)

> > > > Clinical Nutritionist

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > removed]

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> > ____________ _________ _________ _________ _________ __

> >

[Guest guest]

Never found out for sure, but it hasn't come up again since I went through

menapause.

Gena Castanon <gcastanon68@...> wrote: Edy,

Hi, on a side note. I tested positive for pretty bad

anemia-but my doc. didn't care to find out why or

where it was coming from-just gave me iron.

I'm only able to handle taking one iron pill-if I take

anymore I have all my cfs/fms symptoms magnified

horribly.

There are all kinds of types of anemia and different

causes.

Did u ever find out what your cause was? Was it just

the heavy periods?

Gena

--- Edy Rayfield <edyrayEfield@...> wrote:

> I hope this doesn't make anyone squeemish, but I had

> some very bad anemia to the point of almost having

> to have a transfusion a few years ago. I knew I had

> very heavy periods at that time, but the docs wanted

> to look for internal bleeding so I had a colonoscopy

> all the way up to the duidenal. So basically all my

> small and large intestine were looked at. I got to

> watch on a screen as I didn't take the drug to relax

> me. I have to say after a day of just liquids and a

> mild laxitive the inside of my intestines looked as

> pink and beautiful as the day I was born. It was

> interesting and rewarding, so I think I have to

> agree wih Blake that there isn't a lot of residual

> stuff waiting around in there. But I'm only one

> person. Edy

>

> Blake Graham <blanket@...> wrote: Hi

> Jill,

>

> I personally have not used colonics, liver flushes,

> etc. with my clients. The reason being I have had a

> hard time finding reliable data showing they are

> beneficial. I personally don't believe in the

> 'mucoid plaque' hypothesis that many involved in

> alternative medicine promote.

>

> I have read as much as possible about TD-DMPS as I

> could find. Most of the info is biased in that it is

> from it's creator, Dr. Buttar. I have concluded that

> for myself there is not enough data to promote it. I

> am not familiar with the effectiveness of TD-DMSA,

> although have seen good evidence that oral and

> suppository form of DMSA is effective.

>

> Regards,

>

> Blake

>

> Re: My CFS treatment

> protocol.

>

> Blake, in cleansing the gut do you recommend

> colonics, liver flushes,

> intestinal cleanses, or the like?

> I don't see that on your list but from what I've

> read these can be

> important. I'm going to do them myself.

>

> Also, you don't mention transdermal DMPS and

> transdermal DMSA but they

> seem to be used by DAN! folks.

>

> Thanx!

>

>

> >

> > Dear list,

> >

> > As I have mentioned on this list previously, I

> have been working on

> refining a protocol document for CFS. Over the past

> month I have made

> a number of modifications to this document. The

> current version is

> available at:

> >

> >

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> >

> > Once more if anyone has any constructive

> criticism/suggestions,

> please email me on list or off list (blake@...).

> >

> > Regards,

> >

> > Blake Graham, B.Sc (Honours)

> > Clinical Nutritionist

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Edy,

A colleague of mine said he has talked to dozens of gastroenterologists and none

of them have ever seen what is described as mucoid plaque. This colleague also

presented online pictures taken of inside small and large intestines after a

simple enema, and there was no plaque to be seen on any of them.

Blake

Re: My CFS treatment protocol.

Blake, in cleansing the gut do you recommend colonics, liver flushes,

intestinal cleanses, or the like?

I don't see that on your list but from what I've read these can be

important. I'm going to do them myself.

Also, you don't mention transdermal DMPS and transdermal DMSA but they

seem to be used by DAN! folks.

Thanx!

>

> Dear list,

>

> As I have mentioned on this list previously, I have been working on

refining a protocol document for CFS. Over the past month I have made

a number of modifications to this document. The current version is

available at:

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

>

> Once more if anyone has any constructive criticism/suggestions,

please email me on list or off list (blake@...).

>

> Regards,

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

>

>

[Guest guest]

Hi Gena,

In my opinion you shouldn't bother asking your doctors to test for celiac. The

vast majority of people with CFS and Autism who are very sensitive do not test

positive to this test. We do not have celiac disease, we have another form of

hypersensitivity to gluten and casein. The best you can do is frist eliminate

all casein for 3 weeks, then eliminate all gluten (wheat, barley, oats, rye,

spelt, most malts/maltodextrin) for 30 or more days. This should allow you to

determine if you are better off, off these foods.

Blake

Re: My CFS treatment

> protocol.

>

>

> Hi Blake,

>

> Just wanted to say that your protocol looks good

> and

> helpful. Thanks for tying to share it with

> everyone.

>

> I wish I could offer suggestions but am one of

> those

> very difficult cfs/fibro folks who is allergic to

> practically everything-or have a hypersensitivity

> reaction-or sudden horrid increase in severe

> symptoms

> by taking most of what is on your list.

>

> Do you offer any advice for those of us who are

> allergic or hypersensitive to most of the things

> you've listed?

>

> I'm down to trying three last things-(lip.

> glutathione-anti-virals and olive leaf)

>

> I can't take seventeen years of only getting worse

> on

> protocols (mostly antibiotics- and am now allergic

> to

> most antibiotics and ended up in hospital once

> when I

> stopped breathing on one-took six months to get

> over

> another allergic reaction to another)

>

> and trying several things and only having poor

> reactions-attacks of extreme joint

> pain-endometriosis

> and worsening muscle pain-deadening fatigue with

> others

> (low dose naltrexone-magnesium-vitamin c-denatured

> whey product Immunepro-Carlson's fish oil-flax

> seed

> oil-biodentical compounded t3(actually felt a lot

> better for the first time in 17 yrs. on this but

> then

> ended up having bad rash on face-hives and pimple

> outbreaks/allergic)

> -iron, (if I take anymore than 1 capsule induces

> extreme debilitating fatigue and extreme muscle

> pain)-dhea(induces per.

> neuropathy/vulvodenia)-guaifenesin (induced bad

> vulvodenia)

> -any anti-depressant other than trazodone (make me

> too

> hyper activated and increase insomnia)-xyrem

> (induces

> bad depression-actually shortens my sleep-gives

> hangover-more fatigue)-benzos like

> xanax/Klonopin(induces depression-gives

> hangover-worsens fatigue)-

>

> nystatin (allergic)-strict anti-candida diets (did

> absolutely nothing for me)-morphine (allergic)- D3

> (induces endometriosis attacks) and more meds and

> supplements that I can't recall at this time.

>

> Do u think this all could have to do with the

> liver

> even though my liver tests are fine?

>

> Do u think there is a glutathione connection?

>

> But if I am allergic or overly sensitive to

> denatured

> whey products-how can I increase glutathione?

>

> I'm going to try lipoceutical glutathione but have

> to

> admit that I won't be surprised if I have a

> reaction

> to it like other things.

>

> Is there some sort of natural way to raise

> glutathione

> like light exercise-deeper sleep-sitting in a

> sauna-getting more sunlight? Some sort of food

> instead

> of supplements?

>

> Thank You,

> Gena

>

> --- Blake Graham <blanket@...> wrote:

>

> > Dear list,

> >

> > As I have mentioned on this list previously, I

> have

> > been working on refining a protocol document for

> > CFS. Over the past month I have made a number of

> > modifications to this document. The current

> version

> > is available at:

> >

> >

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> >

> > Once more if anyone has any constructive

> > criticism/suggestions, please email me on list

> or

> > off list (blake@...).

> >

> > Regards,

> >

> > Blake Graham, B.Sc (Honours)

> > Clinical Nutritionist

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________

>

[Guest guest]

It's no as much a matter of taking too much, but a matter of some individuals

building up too much. The exact mechanism of why it can be harmful I do not

completely understand. Something to do with excess levels of particular

chemicals released by these bacteria having some negative concequences. There is

a lab in Australia (http://www.bioscreenmedical.com/) run by CFS researchers.

They do an extremely in depth test for gut flora. They made this claim.

Re: My CFS treatment protocol.

Really? What happens if you take too much?

Thanks,

Trina

Blake Graham <blanket@...> wrote:

Too much acidophilus and bifidobacterium is harmful.

Blake

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[Guest guest]

Hi Blake,

Thanks for the advice.

I will go for it.

Funny thing is that I've hardly been eating any major

gluten for awhile anyhow. Breads-cereals/but I

realize-at least from my research into celiac that

gluten slips into a lot of frozen

products-batters-like frozen chicken nuggets for

instance-or even soups-sauces-puddings and more. Am I

correct on this?

Also, other than in Ice Cream-can u give me an idea

where I'm most likely to encounter cassien?

Thanks, Gena

--- Blake Graham <blanket@...> wrote:

> Hi Gena,

>

> In my opinion you shouldn't bother asking your

> doctors to test for celiac. The vast majority of

> people with CFS and Autism who are very sensitive do

> not test positive to this test. We do not have

> celiac disease, we have another form of

> hypersensitivity to gluten and casein. The best you

> can do is frist eliminate all casein for 3 weeks,

> then eliminate all gluten (wheat, barley, oats, rye,

> spelt, most malts/maltodextrin) for 30 or more days.

> This should allow you to determine if you are better

> off, off these foods.

>

> Blake

>

>

> Re: My CFS

> treatment

> > protocol.

> >

> >

> > Hi Blake,

> >

> > Just wanted to say that your protocol looks good

> > and

> > helpful. Thanks for tying to share it with

> > everyone.

> >

> > I wish I could offer suggestions but am one of

> > those

> > very difficult cfs/fibro folks who is allergic

> to

>

=== message truncated ===

__________________________________________________

[Guest guest]

Blake,

Oh no, what a bummer.

I don't eat a lot of dairy by any means-but the only

medication that gives me any help at all and (I'm not

allergic to) needs to be taken with milk or food at

night.

I find if I take the med without milk or with protein

(instead of a carb like two small cookies or one slice

of bread-I go into what I assume may be a

cross-allergic reaction)

-the protein or different food and different liquid

mixed with my med give me an acute attack of rapid bad

joint pain that travels throughout all of my

joints-intensification of my muscle pain-and often, a

quick and very acute endometriosis attack.

I usually only have that one glass of organic hormone

free milk at night-and the two cookies-sometimes one

slice of cheese per day-a yogurt every now and then.

However,I realize that if u r going to the diet u have

to cut it all out. I wonder how I will keep away from

my reaction to my pills at night then?

I guess it seems that the diet is mainly plainly

cooked meats-vegetables-fruits-water? (What about hard

cheese that doesn't go through modification?)

Thanks again, I'm willing to get going but worried

about the pill issue.

Sincerely,

Gena

--- Blake Graham <blanket@...> wrote:

> Hi Gena,

>

> Yes you are correct, gluten slips in in small

> amounts from all sorts of sauces. If a person wants

> to try this diet it has to be 100% (gluten and

> casein free) for the trial. I personally can't

> tolerate gluten, casein, eggs, peanuts, chocolate,

> and other things.

>

> Casein is in all dairy. Milk, yogurt, butter, cream,

> cheese, ice-cream, etc. and many packages foods

> which contain milk solids, casein, and other dairy

> deriviatives.

>

> Blake

>

> Re: My CFS

> treatment

> > protocol.

> >

> >

> > Good Morning Blake-

> >

> > Thanks so much for all of your detailed

> > explanations.

> >

> > I did test positive for high candida-but I

> tested

> > positive for that almost sixteen years ago. I

> took

> > the

> > diflucan at the time-all the supplements-the

> > supporting herbs-strict anti-candid diet for six

> > months and felt not one ounce better. (Also,

> tried

> > nystatin recently and had an allergic reaction

> to

> > it-along with sporanax among all my other

> > allergies.)

> >

> > However, I will be glad to review the work by

> the

> > doctor u mentioned in the candida/yeast area and

> > see

> > if there is anything new to offer me.

> >

> > I have suspected the gluten intolerance-since I

> am

> > running out of any other option-and am going to

> > ask my

> > doc on Jul. 13th to test me for gluten

> > sensitivity/celiac.

> >

> > I'm aware that some people thought they had

> > cfs/fibro

> > for years and then find out they had celiac all

> > along.

> > I doubt that it is the case in most of our

> > situations

> > or most of the cfs/fm/me that unhidden celiac is

> > the

> > cause of all of our problems-but-could

> definitely

> > be a

> > hidden, contributing factor in a subset of our

> > groups.

> >

> > I will also ask my doc. about the more specific

> > liver

> > tests which I've also wondered about and the

> > others u

> > mentioned.

> >

> > And finally, as far as the gluten free diet

> probe

> > on

> > my own-since diet has never really helped me-I

> > find it

> > difficult to stick to any one strict restrictive

> > diet.

> > However, I am desparate, and have tried many

> > times-to

> > start off for a week eating mostly organic

> > chicken-in

> > the hopes of sticking it out for a month-to see

> if

> > it

> > helps at all (leaving out all

> > flour/carbs/sugars-etc.)

> >

> > Anyhow, thanks again. I will be researching your

> > info

> > and taking it to my doc.

> >

> > Sincerely,

> > Gena

> >

> > --- Blake Graham <blanket@...> wrote:

> >

> > > Hi Gena,

> > >

> > > I would suggest investigating the following

> > areas:

> > >

> > > Gut flora abnormalities are a major cause of

> > > hypersensitivity reactions. In Australia we

> have

> > a

> > > great lab called Bioscreen which does a more

> > > detailed stool bacterial analysis than any

> other

> > lab

> > > I have come across. Assuming you are in the

> U.S.

> > I

> > > would suggest measuring gut flora via Doctors

> > Data.

> > > Many people have taken probiotics for years

> and

> > are

> > > still out of balance.

> > >

> > > I would also do a few diagnostic trials of

> > > anti-yeast treatments plus a yeast free diet.

> > Yeast

> > > is another common cause of hypersensitivity

> > > reactions. You could try Saccharomyces

> boulardii

> > > (3/day) for three weeks then diflucan for

> three

> > > weeks. Nystatin helps soime yeast infections

> and

> > > soes noting for others. I suggest trying at

> > least

> > > two different treataments. I leant this from

> Dr.

> > > Sidney Baker, co-founder of DAN!. I have

> written

> > up

> > > his version of a yeast free diet which is

> > different

> > > from the standard yeast free diet.

> > >

>

=== message truncated ===

__________________________________________________

[Guest guest]

Hi Gena,

Yes you are correct, gluten slips in in small amounts from all sorts of sauces.

If a person wants to try this diet it has to be 100% (gluten and casein free)

for the trial. I personally can't tolerate gluten, casein, eggs, peanuts,

chocolate, and other things.

Casein is in all dairy. Milk, yogurt, butter, cream, cheese, ice-cream, etc. and

many packages foods which contain milk solids, casein, and other dairy

deriviatives.

Blake

Re: My CFS

> treatment

> > protocol.

> >

> >

> > Hi Blake,

> >

> > Just wanted to say that your protocol looks good

> > and

> > helpful. Thanks for tying to share it with

> > everyone.

> >

> > I wish I could offer suggestions but am one of

> > those

> > very difficult cfs/fibro folks who is allergic

> to

>

=== message truncated ===

__________________________________________________

[Guest guest]

Hi Blake,

Thanks. I forgot about the nuts, beans and rice. I

don't know why. Information overload I suppose.

I absolutely love beans but don't react to them

well-almost like someone does to a known sensitivity

to gluten.

Gena

--- Blake Graham <blanket@...> wrote:

> Hi Gena,

>

> Try taking the medications with some meat. If this

> doesns't work keep experiementing with different

> foods and drinks until you find ssomething that

> works,

>

> All forms of cheeses or yogurt and even organic

> dairy products must be avaoided for the trial.

>

> Avoiding dairy and gluten you can have fruits,

> vegetables, meats, rice, eggs, legumes/beans,

> nuts/seeds, etc.

>

> Blake

>

> Re: My CFS

> > treatment

> > > protocol.

> > >

> > >

> > > Good Morning Blake-

> > >

> > > Thanks so much for all of your detailed

> > > explanations.

> > >

> > > I did test positive for high candida-but I

> > tested

> > > positive for that almost sixteen years ago. I

> > took

> > > the

> > > diflucan at the time-all the supplements-the

> > > supporting herbs-strict anti-candid diet for

> six

> > > months and felt not one ounce better. (Also,

> > tried

> > > nystatin recently and had an allergic reaction

> > to

> > > it-along with sporanax among all my other

> > > allergies.)

> > >

> > > However, I will be glad to review the work by

> > the

> > > doctor u mentioned in the candida/yeast area

> and

> > > see

> > > if there is anything new to offer me.

> > >

> > > I have suspected the gluten intolerance-since

> I

> > am

> > > running out of any other option-and am going

> to

> > > ask my

> > > doc on Jul. 13th to test me for gluten

> > > sensitivity/celiac.

>

=== message truncated ===

__________________________________________________

[Guest guest]

Hi Gena,

Try taking the medications with some meat. If this doesns't work keep

experiementing with different foods and drinks until you find ssomething that

works,

All forms of cheeses or yogurt and even organic dairy products must be avaoided

for the trial.

Avoiding dairy and gluten you can have fruits, vegetables, meats, rice, eggs,

legumes/beans, nuts/seeds, etc.

Blake

Re: My CFS

> treatment

> > protocol.

> >

> >

> > Good Morning Blake-

> >

> > Thanks so much for all of your detailed

> > explanations.

> >

> > I did test positive for high candida-but I

> tested

> > positive for that almost sixteen years ago. I

> took

> > the

> > diflucan at the time-all the supplements-the

> > supporting herbs-strict anti-candid diet for six

> > months and felt not one ounce better. (Also,

> tried

> > nystatin recently and had an allergic reaction

> to

> > it-along with sporanax among all my other

> > allergies.)

> >

> > However, I will be glad to review the work by

> the

> > doctor u mentioned in the candida/yeast area and

> > see

> > if there is anything new to offer me.

> >

> > I have suspected the gluten intolerance-since I

> am

> > running out of any other option-and am going to

> > ask my

> > doc on Jul. 13th to test me for gluten

> > sensitivity/celiac.

> >

> > I'm aware that some people thought they had

> > cfs/fibro

> > for years and then find out they had celiac all

> > along.

> > I doubt that it is the case in most of our

> > situations

> > or most of the cfs/fm/me that unhidden celiac is

> > the

> > cause of all of our problems-but-could

> definitely

> > be a

> > hidden, contributing factor in a subset of our

> > groups.

> >

> > I will also ask my doc. about the more specific

> > liver

> > tests which I've also wondered about and the

> > others u

> > mentioned.

> >

> > And finally, as far as the gluten free diet

> probe

> > on

> > my own-since diet has never really helped me-I

> > find it

> > difficult to stick to any one strict restrictive

> > diet.

> > However, I am desparate, and have tried many

> > times-to

> > start off for a week eating mostly organic

> > chicken-in

> > the hopes of sticking it out for a month-to see

> if

> > it

> > helps at all (leaving out all

> > flour/carbs/sugars-etc.)

> >

> > Anyhow, thanks again. I will be researching your

> > info

> > and taking it to my doc.

> >

> > Sincerely,

> > Gena

> >

> > --- Blake Graham <blanket@...> wrote:

> >

> > > Hi Gena,

> > >

> > > I would suggest investigating the following

> > areas:

> > >

> > > Gut flora abnormalities are a major cause of

> > > hypersensitivity reactions. In Australia we

> have

> > a

> > > great lab called Bioscreen which does a more

> > > detailed stool bacterial analysis than any

> other

> > lab

> > > I have come across. Assuming you are in the

> U.S.

> > I

> > > would suggest measuring gut flora via Doctors

> > Data.

> > > Many people have taken probiotics for years

> and

> > are

> > > still out of balance.

> > >

> > > I would also do a few diagnostic trials of

> > > anti-yeast treatments plus a yeast free diet.

> > Yeast

> > > is another common cause of hypersensitivity

> > > reactions. You could try Saccharomyces

> boulardii

> > > (3/day) for three weeks then diflucan for

> three

> > > weeks. Nystatin helps soime yeast infections

> and

> > > soes noting for others. I suggest trying at

> > least

> > > two different treataments. I leant this from

> Dr.

> > > Sidney Baker, co-founder of DAN!. I have

> written

> > up

> > > his version of a yeast free diet which is

> > different

> > > from the standard yeast free diet.

> > >

>

=== message truncated ===

__________________________________________________

[Guest guest]

Hi ,

I've read your posts about this and am sorry that I

can't put my finger as to what may be the cause of

your reaction.

Actually, any steroid should stop an allergic

reaction-that's partly what they are used for. (Though

I have heard of rare instances of some people actually

being allergic to prednisone.)

It seems more likely that you were having an allergic

to the nystatin, or other meds.

Some would say that you could have been having a

herxheimer-but it's hard to tell and I don't hold too

much faith in herxheimers if a true allergic reaction

seems more probable.

I broke out in a rash (hives) with nystatin.

Good luck,

Gena

--- <explorer@...> wrote:

> What kind of reaction did you have to nystatin? I

> was just on it,

> in a generic of Mycolog II, which has nystatin with

> an powerful

> steroid Tiamcinolone, and wound up in the ER, I

> thought

> from " steroid excess " . Now I'm reading about

> " die-off " , Jarisch-

> Herxheimer reaction, and wonder if that's the

> problem. I was also

> on whey at the time, and thought I noticed mild

> sweats sometimes

> recently with the whey, before I started on the

> Mycolog II. I've

> since discontinued both. Perhaps that, with the

> added Mycolog II,

> was too much for my system to handle.

>

> Good luck,

>

>

>

> >

> > > Hi Gena,

> > >

> > > I would suggest investigating the following

> areas:

> > >

> > > Gut flora abnormalities are a major cause of

> > > hypersensitivity reactions. In Australia we have

> a

> > > great lab called Bioscreen which does a more

> > > detailed stool bacterial analysis than any other

> lab

> > > I have come across. Assuming you are in the U.S.

> I

> > > would suggest measuring gut flora via Doctors

> Data.

> > > Many people have taken probiotics for years and

> are

> > > still out of balance.

> > >

> > > I would also do a few diagnostic trials of

> > > anti-yeast treatments plus a yeast free diet.

> Yeast

> > > is another common cause of hypersensitivity

> > > reactions. You could try Saccharomyces boulardii

> > > (3/day) for three weeks then diflucan for three

> > > weeks. Nystatin helps soime yeast infections and

> > > soes noting for others. I suggest trying at

> least

> > > two different treataments. I leant this from

> Dr.

> > > Sidney Baker, co-founder of DAN!. I have written

> up

> > > his version of a yeast free diet which is

> different

> > > from the standard yeast free diet.

> > >

> >

>

http://www.nutritional-healing.com.au/content/Yeast%20free%

> 20diet.pdf

> > >

> > > I would also wonder about parasitic infections.

> > > Diagnoc-Techs in Kent, Washington does the most

> > > advanced parasite testing I have come across.

> See:

> > >

> >

>

http://www.diagnostechs.com/body_text/tests/gi/gi_doctor.htm

> > >

> > > I would also wonder about stomach acid

> deficiency

> > > (hypochlorhydria). Signs this may be present are

> > > reflux/heartburn, very full feeling in stomach

> after

> > > eating, poor digestion, and being over 60.

> > >

> > > I would also suspect you are sensitivite to

> gluten

> > > and casein. Would suggest a 30 day trial

> elimination

> > > og these foods. Then a more extensive

> elimination

> > > diet to determine other foods sensitivities.

> > >

> > > Another test I would suggest is a functional

> liver

> > > detoxification profile. 'Liver function tests'

> which

> > > your doctor orders are not really markers for

> liver

> > > function, but for liver damage. A functional

> liver

> > > detoxification profile gives you a fairly good

> > > indication of how your liver is detoxifying.

> > > GLutathione of course relates to liver

> functions, so

> > > there is a link here.

> > >

> > > Have you tried glutathione IV? This is the best

> > > tolerated form by many hypersensitive people. Of

> > > course there are some people that reacat to this

> as

> > > well.

> > >

> > > Turmeric and garlic are said to have an effect

> > > raising glutathione.

> > >

> > > Regards,

> > >

> > > blake

> > >

> > > Re: My CFS

> treatment

> > > protocol.

> > >

> > >

> > > Hi Blake,

> > >

> > > Just wanted to say that your protocol looks

> good

> > > and

> > > helpful. Thanks for tying to share it with

> > > everyone.

> > >

>

=== message truncated ===

__________________________________________________

[Guest guest]

In a message dated 01/07/2006 16:13:52 GMT Standard Time,

gcastanon68@... writes:

Edy,

Hi, on a side note. I tested positive for pretty bad

anemia-but my doc. didn't care to find out why or

where it was coming from-just gave me iron.

I'm only able to handle taking one iron pill-if I take

anymore I have all my cfs/fms symptoms magnified

horribly.

There are all kinds of types of anemia and different

causes.

Did u ever find out what your cause was? Was it just

the heavy periods?

Gena

**** You might want to look into why you have low iron levels ie it could be

that you have

too much iron munching bacteria in your gut ?

Regards

CS

[Guest guest]

Gena

My Dad discovered on his own, no thanks to the Drs., that he needs folic acid to

remedy his anemia. Drs. didn't help figure out what it was from (the anemia)

just gave b-12 (which didn't improve it much) told him to take multi vit, which

didn't help either. He has distinct symptoms he notes when the folic acid

levels are low and he's not on it. So much for all the knowledge of modern

medicine.

Diane in MI

Re: Re: My CFS treatment protocol.

In a message dated 01/07/2006 16:13:52 GMT Standard Time,

gcastanon68@... writes:

Edy,

Hi, on a side note. I tested positive for pretty bad

anemia-but my doc. didn't care to find out why or

where it was coming from-just gave me iron.

I'm only able to handle taking one iron pill-if I take

anymore I have all my cfs/fms symptoms magnified

horribly.

There are all kinds of types of anemia and different

causes.

Did u ever find out what your cause was? Was it just

the heavy periods?

Gena

**** You might want to look into why you have low iron levels ie it could be

that you have

too much iron munching bacteria in your gut ?

Regards

CS

[Guest guest]

Yes, Gena, It was definetly heavy periods. Once those stopped, no more anemia.

Luckily my GYN was a woman and understood, but til then all the docs were men

and put me through a battery of tests from looking for cancer to bleeding

ulcers. Ridiculous! I can't tell you how many times I said ....... it's my

periods!

bhammanuk@... wrote:

In a message dated 01/07/2006 16:13:52 GMT Standard Time,

gcastanon68@... writes:

Edy,

Hi, on a side note. I tested positive for pretty bad

anemia-but my doc. didn't care to find out why or

where it was coming from-just gave me iron.

I'm only able to handle taking one iron pill-if I take

anymore I have all my cfs/fms symptoms magnified

horribly.

There are all kinds of types of anemia and different

causes.

Did u ever find out what your cause was? Was it just

the heavy periods?

Gena

**** You might want to look into why you have low iron levels ie it could be

that you have

too much iron munching bacteria in your gut ?

Regards

CS

[Guest guest]

Diane and all

I have peripheral neuropathy symptoms and am taking B12 1 mg per day since

long time. My folic acid was high once so I stopped taking folic acid. My

folic acid is normal at this point. I don't know if serum folic acid tests

are reliable. I have difficulty to understand how come my folic acid is

still within normal limits while I have been taking 1 mg b1 per day for at

least a year time. The type I am taking is methylcobalamin.On the other side

I have some neurological problems. I am suspicious that these might be

related to my folic acid status.

Diane

May I ask which distinct symptoms your dad is getting when his folic acid

levels are low?

All

Does folic acid accumulate in the body? About two years ago I had taken a

supplement with high folic acid levels and after some time my folic acid

levels went above the limits. Than I stopped folic acid and am continuing

with B12 only for the last year testing for folic acid from time to time.It

is always within the limits now. I am wondering if folic acid accumulated

in my body due to long term high level intake and I am still using it up or

do I have some problem with my folic acid metabolism that even though I am

taking B12 continually this does not deplete folic acid. Or is it possible

that serum folic acid tests unreliable?

Thanks.

bw

Nil

Re: Re: My CFS treatment protocol.

> Gena

> My Dad discovered on his own, no thanks to the Drs., that he needs folic

> acid to remedy his anemia. Drs. didn't help figure out what it was from

> (the anemia) just gave b-12 (which didn't improve it much) told him to

> take multi vit, which didn't help either. He has distinct symptoms he

> notes when the folic acid levels are low and he's not on it. So much for

> all the knowledge of modern medicine.

> Diane in MI

>

[Guest guest]

Hi, Nil.

I think it's possible that you do have one or more genetic

variations (SNPs) in enzymes that affect your folate metabolism.

This is common in autism, and it is beginning to look as though it

is common in CFS as well. You might try taking folinic acid or 5-

methyl tetrahydrofolate (FolaPro), or both. It would be even better

if it's feasible for you to get the genetic variations panel offered

by http://www.testing4health.com. Then you would know what your

genetic variations are. But if this is not feasible, I think it

would be worth trying the active forms of folate to see if they help

your neuropathy.

Rich

>

> Diane and all

>

> I have peripheral neuropathy symptoms and am taking B12 1 mg per

day since

> long time. My folic acid was high once so I stopped taking folic

acid. My

> folic acid is normal at this point. I don't know if serum folic

acid tests

> are reliable. I have difficulty to understand how come my folic

acid is

> still within normal limits while I have been taking 1 mg b1 per

day for at

> least a year time. The type I am taking is methylcobalamin.On the

other side

> I have some neurological problems. I am suspicious that these

might be

> related to my folic acid status.

[Guest guest]

Dad has s/s of anemia: tiredness is one of them. Also, without the folate, he

gets sores in his mouth that don't heal.

Diane in MI

Re: Re: My CFS treatment protocol.

.Diane

May I ask which distinct symptoms your dad is getting when his folic acid

levels are low?

.

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