Re: My CFS treatment protocol.

[Guest guest]

Blake, in cleansing the gut do you recommend colonics, liver flushes,

intestinal cleanses, or the like?

I don't see that on your list but from what I've read these can be

important. I'm going to do them myself.

Also, you don't mention transdermal DMPS and transdermal DMSA but they

seem to be used by DAN! folks.

Thanx!

>

> Dear list,

>

> As I have mentioned on this list previously, I have been working on

refining a protocol document for CFS. Over the past month I have made

a number of modifications to this document. The current version is

available at:

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

>

> Once more if anyone has any constructive criticism/suggestions,

please email me on list or off list (blake@...).

>

> Regards,

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

>

>

[Guest guest]

Hi Blake,

Just wanted to say that your protocol looks good and

helpful. Thanks for tying to share it with everyone.

I wish I could offer suggestions but am one of those

very difficult cfs/fibro folks who is allergic to

practically everything-or have a hypersensitivity

reaction-or sudden horrid increase in severe symptoms

by taking most of what is on your list.

Do you offer any advice for those of us who are

allergic or hypersensitive to most of the things

you've listed?

I'm down to trying three last things-(lip.

glutathione-anti-virals and olive leaf)

I can't take seventeen years of only getting worse on

protocols (mostly antibiotics- and am now allergic to

most antibiotics and ended up in hospital once when I

stopped breathing on one-took six months to get over

another allergic reaction to another)

and trying several things and only having poor

reactions-attacks of extreme joint pain-endometriosis

and worsening muscle pain-deadening fatigue with

others

(low dose naltrexone-magnesium-vitamin c-denatured

whey product Immunepro-Carlson's fish oil-flax seed

oil-biodentical compounded t3(actually felt a lot

better for the first time in 17 yrs. on this but then

ended up having bad rash on face-hives and pimple

outbreaks/allergic)

-iron, (if I take anymore than 1 capsule induces

extreme debilitating fatigue and extreme muscle

pain)-dhea(induces per.

neuropathy/vulvodenia)-guaifenesin (induced bad

vulvodenia)

-any anti-depressant other than trazodone (make me too

hyper activated and increase insomnia)-xyrem (induces

bad depression-actually shortens my sleep-gives

hangover-more fatigue)-benzos like

xanax/Klonopin(induces depression-gives

hangover-worsens fatigue)-

nystatin (allergic)-strict anti-candida diets (did

absolutely nothing for me)-morphine (allergic)- D3

(induces endometriosis attacks) and more meds and

supplements that I can't recall at this time.

Do u think this all could have to do with the liver

even though my liver tests are fine?

Do u think there is a glutathione connection?

But if I am allergic or overly sensitive to denatured

whey products-how can I increase glutathione?

I'm going to try lipoceutical glutathione but have to

admit that I won't be surprised if I have a reaction

to it like other things.

Is there some sort of natural way to raise glutathione

like light exercise-deeper sleep-sitting in a

sauna-getting more sunlight? Some sort of food instead

of supplements?

Thank You,

Gena

--- Blake Graham <blanket@...> wrote:

> Dear list,

>

> As I have mentioned on this list previously, I have

> been working on refining a protocol document for

> CFS. Over the past month I have made a number of

> modifications to this document. The current version

> is available at:

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

>

> Once more if anyone has any constructive

> criticism/suggestions, please email me on list or

> off list (blake@...).

>

> Regards,

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Gena, in your case it might be worth trying a process called NAET. It is an

allergy elimination technique that does help some folks. I recall that you can

google it even though it as an acronym.

Adrienne

Re: My CFS treatment protocol.

Hi Blake,

Just wanted to say that your protocol looks good and

helpful. Thanks for tying to share it with everyone.

I wish I could offer suggestions but am one of those

very difficult cfs/fibro folks who is allergic to

practically everything-or have a hypersensitivity

reaction-or sudden horrid increase in severe symptoms

by taking most of what is on your list.

Do you offer any advice for those of us who are

allergic or hypersensitive to most of the things

you've listed?

I'm down to trying three last things-(lip.

glutathione-anti-virals and olive leaf)

I can't take seventeen years of only getting worse on

protocols (mostly antibiotics- and am now allergic to

most antibiotics and ended up in hospital once when I

stopped breathing on one-took six months to get over

another allergic reaction to another)

and trying several things and only having poor

reactions-attacks of extreme joint pain-endometriosis

and worsening muscle pain-deadening fatigue with

others

(low dose naltrexone-magnesium-vitamin c-denatured

whey product Immunepro-Carlson's fish oil-flax seed

oil-biodentical compounded t3(actually felt a lot

better for the first time in 17 yrs. on this but then

ended up having bad rash on face-hives and pimple

outbreaks/allergic)

-iron, (if I take anymore than 1 capsule induces

extreme debilitating fatigue and extreme muscle

pain)-dhea(induces per.

neuropathy/vulvodenia)-guaifenesin (induced bad

vulvodenia)

-any anti-depressant other than trazodone (make me too

hyper activated and increase insomnia)-xyrem (induces

bad depression-actually shortens my sleep-gives

hangover-more fatigue)-benzos like

xanax/Klonopin(induces depression-gives

hangover-worsens fatigue)-

nystatin (allergic)-strict anti-candida diets (did

absolutely nothing for me)-morphine (allergic)- D3

(induces endometriosis attacks) and more meds and

supplements that I can't recall at this time.

Do u think this all could have to do with the liver

even though my liver tests are fine?

Do u think there is a glutathione connection?

But if I am allergic or overly sensitive to denatured

whey products-how can I increase glutathione?

I'm going to try lipoceutical glutathione but have to

admit that I won't be surprised if I have a reaction

to it like other things.

Is there some sort of natural way to raise glutathione

like light exercise-deeper sleep-sitting in a

sauna-getting more sunlight? Some sort of food instead

of supplements?

Thank You,

Gena

--- Blake Graham <blanket@...> wrote:

> Dear list,

>

> As I have mentioned on this list previously, I have

> been working on refining a protocol document for

> CFS. Over the past month I have made a number of

> modifications to this document. The current version

> is available at:

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

>

> Once more if anyone has any constructive

> criticism/suggestions, please email me on list or

> off list (blake@...).

>

> Regards,

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Gena, Your story sounds so much like mine it's uncanny. Plus a few more

here and probably a few more at your end, too. Can you tell me what you were

taking the antibiotics for? I took them for lyme for about a year on and off,

pulsing and am now so allergic to them that if I were in a life threatening

situation I don't think I could be saved! Also, as time goes on I am becoming

more and more sensitized to just about everything. I can only take supplements

in liquid form if it's very pure. After 30 years of all this I can hardly

believe the sensitivities are happening so much now. Overload I guess.

I'm trying very hard to understand most of what everyone is talking about

here, but have to admit I'm at sea. I tend to follow Jill's lead and will

probably get the Yasko test when I can afford it. Good luck to all of us!

Edy

Gena Castanon <gcastanon68@...> wrote:

Hi Blake,

Just wanted to say that your protocol looks good and

helpful. Thanks for tying to share it with everyone.

I wish I could offer suggestions but am one of those

very difficult cfs/fibro folks who is allergic to

practically everything-or have a hypersensitivity

reaction-or sudden horrid increase in severe symptoms

by taking most of what is on your list.

Do you offer any advice for those of us who are

allergic or hypersensitive to most of the things

you've listed?

I'm down to trying three last things-(lip.

glutathione-anti-virals and olive leaf)

I can't take seventeen years of only getting worse on

protocols (mostly antibiotics- and am now allergic to

most antibiotics and ended up in hospital once when I

stopped breathing on one-took six months to get over

another allergic reaction to another)

and trying several things and only having poor

reactions-attacks of extreme joint pain-endometriosis

and worsening muscle pain-deadening fatigue with

others

(low dose naltrexone-magnesium-vitamin c-denatured

whey product Immunepro-Carlson's fish oil-flax seed

oil-biodentical compounded t3(actually felt a lot

better for the first time in 17 yrs. on this but then

ended up having bad rash on face-hives and pimple

outbreaks/allergic)

-iron, (if I take anymore than 1 capsule induces

extreme debilitating fatigue and extreme muscle

pain)-dhea(induces per.

neuropathy/vulvodenia)-guaifenesin (induced bad

vulvodenia)

-any anti-depressant other than trazodone (make me too

hyper activated and increase insomnia)-xyrem (induces

bad depression-actually shortens my sleep-gives

hangover-more fatigue)-benzos like

xanax/Klonopin(induces depression-gives

hangover-worsens fatigue)-

nystatin (allergic)-strict anti-candida diets (did

absolutely nothing for me)-morphine (allergic)- D3

(induces endometriosis attacks) and more meds and

supplements that I can't recall at this time.

Do u think this all could have to do with the liver

even though my liver tests are fine?

Do u think there is a glutathione connection?

But if I am allergic or overly sensitive to denatured

whey products-how can I increase glutathione?

I'm going to try lipoceutical glutathione but have to

admit that I won't be surprised if I have a reaction

to it like other things.

Is there some sort of natural way to raise glutathione

like light exercise-deeper sleep-sitting in a

sauna-getting more sunlight? Some sort of food instead

of supplements?

Thank You,

Gena

--- Blake Graham <blanket@...> wrote:

> Dear list,

>

> As I have mentioned on this list previously, I have

> been working on refining a protocol document for

> CFS. Over the past month I have made a number of

> modifications to this document. The current version

> is available at:

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

>

> Once more if anyone has any constructive

> criticism/suggestions, please email me on list or

> off list (blake@...).

>

> Regards,

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Adrienne,

I'm already familiar with NAET. However, thought it

was one of those New Age scams-sorry if I offend

anyone.

Miss Gena

--- " Adrienne G. " <duckblossm@...> wrote:

> Gena, in your case it might be worth trying a

> process called NAET. It is an allergy elimination

> technique that does help some folks. I recall that

> you can google it even though it as an acronym.

> Adrienne

> Re: My CFS treatment

> protocol.

>

>

> Hi Blake,

>

> Just wanted to say that your protocol looks good

> and

> helpful. Thanks for tying to share it with

> everyone.

>

> I wish I could offer suggestions but am one of

> those

> very difficult cfs/fibro folks who is allergic to

> practically everything-or have a hypersensitivity

> reaction-or sudden horrid increase in severe

> symptoms

> by taking most of what is on your list.

>

> Do you offer any advice for those of us who are

> allergic or hypersensitive to most of the things

> you've listed?

>

> I'm down to trying three last things-(lip.

> glutathione-anti-virals and olive leaf)

>

> I can't take seventeen years of only getting worse

> on

> protocols (mostly antibiotics- and am now allergic

> to

> most antibiotics and ended up in hospital once

> when I

> stopped breathing on one-took six months to get

> over

> another allergic reaction to another)

>

> and trying several things and only having poor

> reactions-attacks of extreme joint

> pain-endometriosis

> and worsening muscle pain-deadening fatigue with

> others

> (low dose naltrexone-magnesium-vitamin c-denatured

> whey product Immunepro-Carlson's fish oil-flax

> seed

> oil-biodentical compounded t3(actually felt a lot

> better for the first time in 17 yrs. on this but

> then

> ended up having bad rash on face-hives and pimple

> outbreaks/allergic)

> -iron, (if I take anymore than 1 capsule induces

> extreme debilitating fatigue and extreme muscle

> pain)-dhea(induces per.

> neuropathy/vulvodenia)-guaifenesin (induced bad

> vulvodenia)

> -any anti-depressant other than trazodone (make me

> too

> hyper activated and increase insomnia)-xyrem

> (induces

> bad depression-actually shortens my sleep-gives

> hangover-more fatigue)-benzos like

> xanax/Klonopin(induces depression-gives

> hangover-worsens fatigue)-

>

> nystatin (allergic)-strict anti-candida diets (did

> absolutely nothing for me)-morphine (allergic)- D3

> (induces endometriosis attacks) and more meds and

> supplements that I can't recall at this time.

>

> Do u think this all could have to do with the

> liver

> even though my liver tests are fine?

>

> Do u think there is a glutathione connection?

>

> But if I am allergic or overly sensitive to

> denatured

> whey products-how can I increase glutathione?

>

> I'm going to try lipoceutical glutathione but have

> to

> admit that I won't be surprised if I have a

> reaction

> to it like other things.

>

> Is there some sort of natural way to raise

> glutathione

> like light exercise-deeper sleep-sitting in a

> sauna-getting more sunlight? Some sort of food

> instead

> of supplements?

>

> Thank You,

> Gena

>

> --- Blake Graham <blanket@...> wrote:

>

> > Dear list,

> >

> > As I have mentioned on this list previously, I

> have

> > been working on refining a protocol document for

> > CFS. Over the past month I have made a number of

> > modifications to this document. The current

> version

> > is available at:

> >

> >

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> >

> > Once more if anyone has any constructive

> > criticism/suggestions, please email me on list

> or

> > off list (blake@...).

> >

> > Regards,

> >

> > Blake Graham, B.Sc (Honours)

> > Clinical Nutritionist

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Blake,

Thanks for your post. I am glad to see that you are including EMFs

(or the elimination of them) as part of your protocol. I remember at

one point in my illness looking at your site. I wasn't aware that you

were also on this list. There is also a Dr. Holt in Perth who

has found (accidentally) an interesting link between microwaves and

an increase in the histamine produced by mast cells and postulates

that this might be the reason that Australia and NZ have such high

rates of Asthma and other allergies. (Might just also be why PWC also

suffer from so many allergic reactions.)

I noticed the article by A. Van Konynenburg, Ph.D

http://www.nutritional-healing.com.au/content/articles-

content.php?heading=

Autism%20treatments%20show%20promise%20in%20Chronic%20Fatigue%20Syndr

ome

on your article list connecting CFS to Autism. Interestingly,

Nicolson has also been making connections in this area and so has a

Dr. Goldberg who has come up with the term . You might

want to add these to your reading list.

http://www.cfids-cab.org/cfs-inform/Mycoplasma/nicolson.etal.02.txt

http://www.neuroimmunedr.com/present3/index.htm

http://www.whale.to/v/goldberg.html

Moreover, a Dr. Miike here in Japan has found that " School Refusal "

or " School Phobia " is actually Childhood Chronic Fatigue Syndrome

(CCFS). Interestingly, the number of children who refuse to go to

school here in Japan had skyrocketed from 10,000 in 1990 to 140,000

in 2004 - along with cell phones I might add. I imagine that it is

continuing this trend.

www.peterboroughme.fsnet.co.uk/fact/memory impairment.pdf

Regards,

paul doyon

>

> Dear list,

>

> As I have mentioned on this list previously, I have been working on

refining a protocol document for CFS. Over the past month I have made

a number of modifications to this document. The current version is

available at:

>

> http://www.nutritional-healing.com.au/content/articles-

content.php?heading=CFS%20treatment%20protocol

>

> Once more if anyone has any constructive criticism/suggestions,

please email me on list or off list (blake@...).

>

> Regards,

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

>

>

[Guest guest]

It is pretty odd, , but you have little to lose by trying it-besides some

money of course. My doc is extremely ethical and conscientious. He invested a

great deal of time in investigation and then paying for training for the

process. I can't say much about it working on me-have not been especially

allergic. But one of my doc's main credentials is all the years he treated me

FOR FREE on a weekly basis. I mean, he is not a scammer, and many of the other

things he has done for me have helped a lot.

Adrienne

Re: My CFS treatment

> protocol.

>

>

> Hi Blake,

>

> Just wanted to say that your protocol looks good

> and

> helpful. Thanks for tying to share it with

> everyone.

>

> I wish I could offer suggestions but am one of

> those

> very difficult cfs/fibro folks who is allergic to

> practically everything-or have a hypersensitivity

> reaction-or sudden horrid increase in severe

> symptoms

> by taking most of what is on your list.

>

> Do you offer any advice for those of us who are

> allergic or hypersensitive to most of the things

> you've listed?

>

> I'm down to trying three last things-(lip.

> glutathione-anti-virals and olive leaf)

>

> I can't take seventeen years of only getting worse

> on

> protocols (mostly antibiotics- and am now allergic

> to

> most antibiotics and ended up in hospital once

> when I

> stopped breathing on one-took six months to get

> over

> another allergic reaction to another)

>

> and trying several things and only having poor

> reactions-attacks of extreme joint

> pain-endometriosis

> and worsening muscle pain-deadening fatigue with

> others

> (low dose naltrexone-magnesium-vitamin c-denatured

> whey product Immunepro-Carlson's fish oil-flax

> seed

> oil-biodentical compounded t3(actually felt a lot

> better for the first time in 17 yrs. on this but

> then

> ended up having bad rash on face-hives and pimple

> outbreaks/allergic)

> -iron, (if I take anymore than 1 capsule induces

> extreme debilitating fatigue and extreme muscle

> pain)-dhea(induces per.

> neuropathy/vulvodenia)-guaifenesin (induced bad

> vulvodenia)

> -any anti-depressant other than trazodone (make me

> too

> hyper activated and increase insomnia)-xyrem

> (induces

> bad depression-actually shortens my sleep-gives

> hangover-more fatigue)-benzos like

> xanax/Klonopin(induces depression-gives

> hangover-worsens fatigue)-

>

> nystatin (allergic)-strict anti-candida diets (did

> absolutely nothing for me)-morphine (allergic)- D3

> (induces endometriosis attacks) and more meds and

> supplements that I can't recall at this time.

>

> Do u think this all could have to do with the

> liver

> even though my liver tests are fine?

>

> Do u think there is a glutathione connection?

>

> But if I am allergic or overly sensitive to

> denatured

> whey products-how can I increase glutathione?

>

> I'm going to try lipoceutical glutathione but have

> to

> admit that I won't be surprised if I have a

> reaction

> to it like other things.

>

> Is there some sort of natural way to raise

> glutathione

> like light exercise-deeper sleep-sitting in a

> sauna-getting more sunlight? Some sort of food

> instead

> of supplements?

>

> Thank You,

> Gena

>

> --- Blake Graham <blanket@...> wrote:

>

> > Dear list,

> >

> > As I have mentioned on this list previously, I

> have

> > been working on refining a protocol document for

> > CFS. Over the past month I have made a number of

> > modifications to this document. The current

> version

> > is available at:

> >

> >

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> >

> > Once more if anyone has any constructive

> > criticism/suggestions, please email me on list

> or

> > off list (blake@...).

> >

> > Regards,

> >

> > Blake Graham, B.Sc (Honours)

> > Clinical Nutritionist

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Hi Blake,

Which probiotic would you recommend?

Ta

[Guest guest]

I have used the NAET treatment and it works.

Gail

Adrienne G. wrote:

>

> Gena, in your case it might be worth trying a process called NAET. It

> is an allergy elimination technique that does help some folks. I

> recall that you can google it even though it as an acronym.

> Adrienne

> Re: My CFS treatment protocol.

>

> Hi Blake,

>

> Just wanted to say that your protocol looks good and

> helpful. Thanks for tying to share it with everyone.

>

> I wish I could offer suggestions but am one of those

> very difficult cfs/fibro folks who is allergic to

> practically everything-or have a hypersensitivity

> reaction-or sudden horrid increase in severe symptoms

> by taking most of what is on your list.

>

> Do you offer any advice for those of us who are

> allergic or hypersensitive to most of the things

> you've listed?

>

> I'm down to trying three last things-(lip.

> glutathione- anti-virals and olive leaf)

>

> I can't take seventeen years of only getting worse on

> protocols (mostly antibiotics- and am now allergic to

> most antibiotics and ended up in hospital once when I

> stopped breathing on one-took six months to get over

> another allergic reaction to another)

>

> and trying several things and only having poor

> reactions-attacks of extreme joint pain-endometriosis

> and worsening muscle pain-deadening fatigue with

> others

> (low dose naltrexone-magnesiu m-vitamin c-denatured

> whey product Immunepro-Carlson' s fish oil-flax seed

> oil-biodentical compounded t3(actually felt a lot

> better for the first time in 17 yrs. on this but then

> ended up having bad rash on face-hives and pimple

> outbreaks/allergic)

> -iron, (if I take anymore than 1 capsule induces

> extreme debilitating fatigue and extreme muscle

> pain)-dhea(induces per.

> neuropathy/vulvoden ia)-guaifenesin (induced bad

> vulvodenia)

> -any anti-depressant other than trazodone (make me too

> hyper activated and increase insomnia)-xyrem (induces

> bad depression-actually shortens my sleep-gives

> hangover-more fatigue)-benzos like

> xanax/Klonopin( induces depression-gives

> hangover-worsens fatigue)-

>

> nystatin (allergic)-strict anti-candida diets (did

> absolutely nothing for me)-morphine (allergic)- D3

> (induces endometriosis attacks) and more meds and

> supplements that I can't recall at this time.

>

> Do u think this all could have to do with the liver

> even though my liver tests are fine?

>

> Do u think there is a glutathione connection?

>

> But if I am allergic or overly sensitive to denatured

> whey products-how can I increase glutathione?

>

> I'm going to try lipoceutical glutathione but have to

> admit that I won't be surprised if I have a reaction

> to it like other things.

>

> Is there some sort of natural way to raise glutathione

> like light exercise-deeper sleep-sitting in a

> sauna-getting more sunlight? Some sort of food instead

> of supplements?

>

> Thank You,

> Gena

>

> --- Blake Graham <blankettpg (DOT) com.au <mailto:blanket%40tpg.com.au>>

> wrote:

>

> > Dear list,

> >

> > As I have mentioned on this list previously, I have

> > been working on refining a protocol document for

> > CFS. Over the past month I have made a number of

> > modifications to this document. The current version

> > is available at:

> >

> >

> http://www.nutritio nal-healing. com.au/content/ articles-

> content.php? heading=CFS% 20treatment% 20protocol

>

<http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%\

20treatment%20protocol>

> >

> > Once more if anyone has any constructive

> > criticism/suggestio ns, please email me on list or

> > off list (blake@nutritional- healing.com. au

> <mailto:blake%40nutritional-healing.com.au>).

> >

> > Regards,

> >

> > Blake Graham, B.Sc (Honours)

> > Clinical Nutritionist

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> ____________ _________ _________ _________ _________ __

>

[Guest guest]

I hope this doesn't make anyone squeemish, but I had some very bad anemia to the

point of almost having to have a transfusion a few years ago. I knew I had very

heavy periods at that time, but the docs wanted to look for internal bleeding so

I had a colonoscopy all the way up to the duidenal. So basically all my small

and large intestine were looked at. I got to watch on a screen as I didn't take

the drug to relax me. I have to say after a day of just liquids and a mild

laxitive the inside of my intestines looked as pink and beautiful as the day I

was born. It was interesting and rewarding, so I think I have to agree wih

Blake that there isn't a lot of residual stuff waiting around in there. But I'm

only one person. Edy

Blake Graham <blanket@...> wrote: Hi Jill,

I personally have not used colonics, liver flushes, etc. with my clients. The

reason being I have had a hard time finding reliable data showing they are

beneficial. I personally don't believe in the 'mucoid plaque' hypothesis that

many involved in alternative medicine promote.

I have read as much as possible about TD-DMPS as I could find. Most of the info

is biased in that it is from it's creator, Dr. Buttar. I have concluded that for

myself there is not enough data to promote it. I am not familiar with the

effectiveness of TD-DMSA, although have seen good evidence that oral and

suppository form of DMSA is effective.

Regards,

Blake

Re: My CFS treatment protocol.

Blake, in cleansing the gut do you recommend colonics, liver flushes,

intestinal cleanses, or the like?

I don't see that on your list but from what I've read these can be

important. I'm going to do them myself.

Also, you don't mention transdermal DMPS and transdermal DMSA but they

seem to be used by DAN! folks.

Thanx!

>

> Dear list,

>

> As I have mentioned on this list previously, I have been working on

refining a protocol document for CFS. Over the past month I have made

a number of modifications to this document. The current version is

available at:

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

>

> Once more if anyone has any constructive criticism/suggestions,

please email me on list or off list (blake@...).

>

> Regards,

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

>

>

[Guest guest]

Good Morning Blake-

Thanks so much for all of your detailed explanations.

I did test positive for high candida-but I tested

positive for that almost sixteen years ago. I took the

diflucan at the time-all the supplements-the

supporting herbs-strict anti-candid diet for six

months and felt not one ounce better. (Also, tried

nystatin recently and had an allergic reaction to

it-along with sporanax among all my other allergies.)

However, I will be glad to review the work by the

doctor u mentioned in the candida/yeast area and see

if there is anything new to offer me.

I have suspected the gluten intolerance-since I am

running out of any other option-and am going to ask my

doc on Jul. 13th to test me for gluten

sensitivity/celiac.

I'm aware that some people thought they had cfs/fibro

for years and then find out they had celiac all along.

I doubt that it is the case in most of our situations

or most of the cfs/fm/me that unhidden celiac is the

cause of all of our problems-but-could definitely be a

hidden, contributing factor in a subset of our groups.

I will also ask my doc. about the more specific liver

tests which I've also wondered about and the others u

mentioned.

And finally, as far as the gluten free diet probe on

my own-since diet has never really helped me-I find it

difficult to stick to any one strict restrictive diet.

However, I am desparate, and have tried many times-to

start off for a week eating mostly organic chicken-in

the hopes of sticking it out for a month-to see if it

helps at all (leaving out all flour/carbs/sugars-etc.)

Anyhow, thanks again. I will be researching your info

and taking it to my doc.

Sincerely,

Gena

--- Blake Graham <blanket@...> wrote:

> Hi Gena,

>

> I would suggest investigating the following areas:

>

> Gut flora abnormalities are a major cause of

> hypersensitivity reactions. In Australia we have a

> great lab called Bioscreen which does a more

> detailed stool bacterial analysis than any other lab

> I have come across. Assuming you are in the U.S. I

> would suggest measuring gut flora via Doctors Data.

> Many people have taken probiotics for years and are

> still out of balance.

>

> I would also do a few diagnostic trials of

> anti-yeast treatments plus a yeast free diet. Yeast

> is another common cause of hypersensitivity

> reactions. You could try Saccharomyces boulardii

> (3/day) for three weeks then diflucan for three

> weeks. Nystatin helps soime yeast infections and

> soes noting for others. I suggest trying at least

> two different treataments. I leant this from Dr.

> Sidney Baker, co-founder of DAN!. I have written up

> his version of a yeast free diet which is different

> from the standard yeast free diet.

>

http://www.nutritional-healing.com.au/content/Yeast%20free%20diet.pdf

>

> I would also wonder about parasitic infections.

> Diagnoc-Techs in Kent, Washington does the most

> advanced parasite testing I have come across. See:

>

http://www.diagnostechs.com/body_text/tests/gi/gi_doctor.htm

>

> I would also wonder about stomach acid deficiency

> (hypochlorhydria). Signs this may be present are

> reflux/heartburn, very full feeling in stomach after

> eating, poor digestion, and being over 60.

>

> I would also suspect you are sensitivite to gluten

> and casein. Would suggest a 30 day trial elimination

> og these foods. Then a more extensive elimination

> diet to determine other foods sensitivities.

>

> Another test I would suggest is a functional liver

> detoxification profile. 'Liver function tests' which

> your doctor orders are not really markers for liver

> function, but for liver damage. A functional liver

> detoxification profile gives you a fairly good

> indication of how your liver is detoxifying.

> GLutathione of course relates to liver functions, so

> there is a link here.

>

> Have you tried glutathione IV? This is the best

> tolerated form by many hypersensitive people. Of

> course there are some people that reacat to this as

> well.

>

> Turmeric and garlic are said to have an effect

> raising glutathione.

>

> Regards,

>

> blake

>

> Re: My CFS treatment

> protocol.

>

>

> Hi Blake,

>

> Just wanted to say that your protocol looks good

> and

> helpful. Thanks for tying to share it with

> everyone.

>

> I wish I could offer suggestions but am one of

> those

> very difficult cfs/fibro folks who is allergic to

> practically everything-or have a hypersensitivity

> reaction-or sudden horrid increase in severe

> symptoms

> by taking most of what is on your list.

>

> Do you offer any advice for those of us who are

> allergic or hypersensitive to most of the things

> you've listed?

>

> I'm down to trying three last things-(lip.

> glutathione-anti-virals and olive leaf)

>

> I can't take seventeen years of only getting worse

> on

> protocols (mostly antibiotics- and am now allergic

> to

> most antibiotics and ended up in hospital once

> when I

> stopped breathing on one-took six months to get

> over

> another allergic reaction to another)

>

> and trying several things and only having poor

> reactions-attacks of extreme joint

> pain-endometriosis

> and worsening muscle pain-deadening fatigue with

> others

> (low dose naltrexone-magnesium-vitamin c-denatured

> whey product Immunepro-Carlson's fish oil-flax

> seed

> oil-biodentical compounded t3(actually felt a lot

> better for the first time in 17 yrs. on this but

> then

> ended up having bad rash on face-hives and pimple

> outbreaks/allergic)

> -iron, (if I take anymore than 1 capsule induces

> extreme debilitating fatigue and extreme muscle

> pain)-dhea(induces per.

> neuropathy/vulvodenia)-guaifenesin (induced bad

> vulvodenia)

> -any anti-depressant other than trazodone (make me

> too

> hyper activated and increase insomnia)-xyrem

> (induces

> bad depression-actually shortens my sleep-gives

> hangover-more fatigue)-benzos like

> xanax/Klonopin(induces depression-gives

> hangover-worsens fatigue)-

>

> nystatin (allergic)-strict anti-candida diets (did

> absolutely nothing for me)-morphine (allergic)- D3

> (induces endometriosis attacks) and more meds and

> supplements that I can't recall at this time.

>

> Do u think this all could have to do with the

> liver

> even though my liver tests are fine?

>

> Do u think there is a glutathione connection?

>

> But if I am allergic or overly sensitive to

> denatured

> whey products-how can I increase glutathione?

>

> I'm going to try lipoceutical glutathione but have

> to

> admit that I won't be surprised if I have a

> reaction

> to it like other things.

>

> Is there some sort of natural way to raise

> glutathione

> like light exercise-deeper sleep-sitting in a

> sauna-getting more sunlight? Some sort of food

> instead

> of supplements?

>

> Thank You,

> Gena

>

> --- Blake Graham <blanket@...> wrote:

>

> > Dear list,

> >

> > As I have mentioned on this list previously, I

> have

> > been working on refining a protocol document for

> > CFS. Over the past month I have made a number of

> > modifications to this document. The current

> version

> > is available at:

> >

> >

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> >

> > Once more if anyone has any constructive

> > criticism/suggestions, please email me on list

> or

> > off list (blake@...).

> >

> > Regards,

> >

> > Blake Graham, B.Sc (Honours)

> > Clinical Nutritionist

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

> __________________________________________________

>

[Guest guest]

Jill,

Just wanted to chime in that I got over my nervousness

and had a few colonics with a wonderful lady.

I have no idea if I would have done them regularly, if

they would have helped any of my fibro pain or

fatigue.

Of course, this lady, who later became my friend-who I

trust-had promising stories from some of her clients

with chronic disease of improvement. But, I never had

a chance to meet any of those patients in person to

see how I would feel.

I can say-at one time when I actually had some acute

constipation -that one of the colonics brought me out

of it greatly.

However, I'm sure Blake really knows more about this

subject. I can tell u that if u find someone-interview

them first-check out and ask about their colonic

machinery and how clean everything looks. Ask about

their training-etc. I don't think it can harm u if u

go to someone experienced-trained (the lady I knew

went to school for it)sanitized equipment-etc.

ALso, I know here in Texas-that one must have a Doc.'s

prescription now to get one done-but some Doc.'s must

be handing out the scripts because the one's I knew

who practiced colonics are still in business.

But, however, I'm sorry I can't promise u that it

would be benificial in your overall health problem-and

ponder that if it would-then we would all be doing

anything to do them regularly and would all be cured.

Good luck,

Gena

--- Blake Graham <blanket@...> wrote:

> Hi Jill,

>

> I personally have not used colonics, liver flushes,

> etc. with my clients. The reason being I have had a

> hard time finding reliable data showing they are

> beneficial. I personally don't believe in the

> 'mucoid plaque' hypothesis that many involved in

> alternative medicine promote.

>

> I have read as much as possible about TD-DMPS as I

> could find. Most of the info is biased in that it is

> from it's creator, Dr. Buttar. I have concluded that

> for myself there is not enough data to promote it. I

> am not familiar with the effectiveness of TD-DMSA,

> although have seen good evidence that oral and

> suppository form of DMSA is effective.

>

> Regards,

>

> Blake

>

> Re: My CFS treatment

> protocol.

>

>

> Blake, in cleansing the gut do you recommend

> colonics, liver flushes,

> intestinal cleanses, or the like?

> I don't see that on your list but from what I've

> read these can be

> important. I'm going to do them myself.

>

> Also, you don't mention transdermal DMPS and

> transdermal DMSA but they

> seem to be used by DAN! folks.

>

> Thanx!

>

>

> >

> > Dear list,

> >

> > As I have mentioned on this list previously, I

> have been working on

> refining a protocol document for CFS. Over the

> past month I have made

> a number of modifications to this document. The

> current version is

> available at:

> >

> >

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> >

> > Once more if anyone has any constructive

> criticism/suggestions,

> please email me on list or off list (blake@...).

> >

> > Regards,

> >

> > Blake Graham, B.Sc (Honours)

> > Clinical Nutritionist

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

I think when black tarry stuff is expelled it is a dump but not from

the colon persay. I also, because of colonoscopies, have always

doubted that there is impacted stuff there. But we know little about

the small intestine, and its my hunch that when people expell goop

after a lot of cleansings, it may be a mucus/bile/lymphatic dump, for

all we know. But if you go to curezone.com you find some rather

impressive stories. These people do colonics, cleansings and sometimes

fasting. I don't want to fast, my metabolism is very fast and I'm Type

O, I need protein.

> >

> > Dear list,

> >

> > As I have mentioned on this list previously, I have been working on

> refining a protocol document for CFS. Over the past month I have made

> a number of modifications to this document. The current version is

> available at:

> >

> >

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> >

> > Once more if anyone has any constructive criticism/suggestions,

> please email me on list or off list (blake@).

> >

> > Regards,

> >

> > Blake Graham, B.Sc (Honours)

> > Clinical Nutritionist

> >

> >

> >

[Guest guest]

Edy,

Hi, on a side note. I tested positive for pretty bad

anemia-but my doc. didn't care to find out why or

where it was coming from-just gave me iron.

I'm only able to handle taking one iron pill-if I take

anymore I have all my cfs/fms symptoms magnified

horribly.

There are all kinds of types of anemia and different

causes.

Did u ever find out what your cause was? Was it just

the heavy periods?

Gena

--- Edy Rayfield <edyrayEfield@...> wrote:

> I hope this doesn't make anyone squeemish, but I had

> some very bad anemia to the point of almost having

> to have a transfusion a few years ago. I knew I had

> very heavy periods at that time, but the docs wanted

> to look for internal bleeding so I had a colonoscopy

> all the way up to the duidenal. So basically all my

> small and large intestine were looked at. I got to

> watch on a screen as I didn't take the drug to relax

> me. I have to say after a day of just liquids and a

> mild laxitive the inside of my intestines looked as

> pink and beautiful as the day I was born. It was

> interesting and rewarding, so I think I have to

> agree wih Blake that there isn't a lot of residual

> stuff waiting around in there. But I'm only one

> person. Edy

>

> Blake Graham <blanket@...> wrote: Hi

> Jill,

>

> I personally have not used colonics, liver flushes,

> etc. with my clients. The reason being I have had a

> hard time finding reliable data showing they are

> beneficial. I personally don't believe in the

> 'mucoid plaque' hypothesis that many involved in

> alternative medicine promote.

>

> I have read as much as possible about TD-DMPS as I

> could find. Most of the info is biased in that it is

> from it's creator, Dr. Buttar. I have concluded that

> for myself there is not enough data to promote it. I

> am not familiar with the effectiveness of TD-DMSA,

> although have seen good evidence that oral and

> suppository form of DMSA is effective.

>

> Regards,

>

> Blake

>

> Re: My CFS treatment

> protocol.

>

> Blake, in cleansing the gut do you recommend

> colonics, liver flushes,

> intestinal cleanses, or the like?

> I don't see that on your list but from what I've

> read these can be

> important. I'm going to do them myself.

>

> Also, you don't mention transdermal DMPS and

> transdermal DMSA but they

> seem to be used by DAN! folks.

>

> Thanx!

>

>

> >

> > Dear list,

> >

> > As I have mentioned on this list previously, I

> have been working on

> refining a protocol document for CFS. Over the past

> month I have made

> a number of modifications to this document. The

> current version is

> available at:

> >

> >

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> >

> > Once more if anyone has any constructive

> criticism/suggestions,

> please email me on list or off list (blake@...).

> >

> > Regards,

> >

> > Blake Graham, B.Sc (Honours)

> > Clinical Nutritionist

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Thanx...

In terms of expense, I would like to do my own, but I just don't

believe I have it in me...psychologically (colemas...) blech...I keep

trying to convince myself I could do it, but I don't think so...

And in NY they are so expensive...but they are part of every cleansing

protocol that I know of, so...

I know of two highly recommended practitioners. I was considering one

center but they did not use disposables so I walked out of there five

minutes after I walked in.

I'm very ambivalent about it I must admit.

> > >

> > > Dear list,

> > >

> > > As I have mentioned on this list previously, I

> > have been working on

> > refining a protocol document for CFS. Over the

> > past month I have made

> > a number of modifications to this document. The

> > current version is

> > available at:

> > >

> > >

> >

> >

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> > >

> > > Once more if anyone has any constructive

> > criticism/suggestions,

> > please email me on list or off list (blake@).

> > >

> > > Regards,

> > >

> > > Blake Graham, B.Sc (Honours)

> > > Clinical Nutritionist

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

What kind of reaction did you have to nystatin? I was just on it,

in a generic of Mycolog II, which has nystatin with an powerful

steroid Tiamcinolone, and wound up in the ER, I thought

from " steroid excess " . Now I'm reading about " die-off " , Jarisch-

Herxheimer reaction, and wonder if that's the problem. I was also

on whey at the time, and thought I noticed mild sweats sometimes

recently with the whey, before I started on the Mycolog II. I've

since discontinued both. Perhaps that, with the added Mycolog II,

was too much for my system to handle.

Good luck,

> >

> > > Dear list,

> > >

> > > As I have mentioned on this list previously, I

> > have

> > > been working on refining a protocol document for

> > > CFS. Over the past month I have made a number of

> > > modifications to this document. The current

> > version

> > > is available at:

> > >

> > >

> >

> >

> http://www.nutritional-healing.com.au/content/articles-content.php?

heading=CFS%20treatment%20protocol

> > >

> > > Once more if anyone has any constructive

> > > criticism/suggestions, please email me on list

> > or

> > > off list (blake@...).

> > >

> > > Regards,

> > >

> > > Blake Graham, B.Sc (Honours)

> > > Clinical Nutritionist

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> > __________________________________________________

> >

[Guest guest]

Gail And Adrienne,

Though I'm leery-especially after haring from u Gail-

once I am in L.A. and have more free cash on hand-I

may just go ahead and give NAET a try.

First, I'm going to work on my viral probs. (high

active HHV-6/CMV) and see if I can handle taking

lipoceutical glutathione without a reaction.

If I can handle the lip. glutathione, it could be,

that over time, it may help with my allergies.

Thanks,

Gena

--- Gail Ilse-Mayberry <gmilsem@...> wrote:

> I have used the NAET treatment and it works.

> Gail

>

> Adrienne G. wrote:

> >

> > Gena, in your case it might be worth trying a

> process called NAET. It

> > is an allergy elimination technique that does help

> some folks. I

> > recall that you can google it even though it as an

> acronym.

> > Adrienne

> > Re: My CFS treatment

> protocol.

> >

> > Hi Blake,

> >

> > Just wanted to say that your protocol looks good

> and

> > helpful. Thanks for tying to share it with

> everyone.

> >

> > I wish I could offer suggestions but am one of

> those

> > very difficult cfs/fibro folks who is allergic to

> > practically everything-or have a hypersensitivity

> > reaction-or sudden horrid increase in severe

> symptoms

> > by taking most of what is on your list.

> >

> > Do you offer any advice for those of us who are

> > allergic or hypersensitive to most of the things

> > you've listed?

> >

> > I'm down to trying three last things-(lip.

> > glutathione- anti-virals and olive leaf)

> >

> > I can't take seventeen years of only getting worse

> on

> > protocols (mostly antibiotics- and am now allergic

> to

> > most antibiotics and ended up in hospital once

> when I

> > stopped breathing on one-took six months to get

> over

> > another allergic reaction to another)

> >

> > and trying several things and only having poor

> > reactions-attacks of extreme joint

> pain-endometriosis

> > and worsening muscle pain-deadening fatigue with

> > others

> > (low dose naltrexone-magnesiu m-vitamin

> c-denatured

> > whey product Immunepro-Carlson' s fish oil-flax

> seed

> > oil-biodentical compounded t3(actually felt a lot

> > better for the first time in 17 yrs. on this but

> then

> > ended up having bad rash on face-hives and pimple

> > outbreaks/allergic)

> > -iron, (if I take anymore than 1 capsule induces

> > extreme debilitating fatigue and extreme muscle

> > pain)-dhea(induces per.

> > neuropathy/vulvoden ia)-guaifenesin (induced bad

> > vulvodenia)

> > -any anti-depressant other than trazodone (make me

> too

> > hyper activated and increase insomnia)-xyrem

> (induces

> > bad depression-actually shortens my sleep-gives

> > hangover-more fatigue)-benzos like

> > xanax/Klonopin( induces depression-gives

> > hangover-worsens fatigue)-

> >

> > nystatin (allergic)-strict anti-candida diets (did

> > absolutely nothing for me)-morphine (allergic)- D3

> > (induces endometriosis attacks) and more meds and

> > supplements that I can't recall at this time.

> >

> > Do u think this all could have to do with the

> liver

> > even though my liver tests are fine?

> >

> > Do u think there is a glutathione connection?

> >

> > But if I am allergic or overly sensitive to

> denatured

> > whey products-how can I increase glutathione?

> >

> > I'm going to try lipoceutical glutathione but have

> to

> > admit that I won't be surprised if I have a

> reaction

> > to it like other things.

> >

> > Is there some sort of natural way to raise

> glutathione

> > like light exercise-deeper sleep-sitting in a

> > sauna-getting more sunlight? Some sort of food

> instead

> > of supplements?

> >

> > Thank You,

> > Gena

> >

> > --- Blake Graham <blankettpg (DOT) com.au

> <mailto:blanket%40tpg.com.au>>

> > wrote:

> >

> > > Dear list,

> > >

> > > As I have mentioned on this list previously, I

> have

> > > been working on refining a protocol document for

> > > CFS. Over the past month I have made a number of

> > > modifications to this document. The current

> version

> > > is available at:

> > >

> > >

> > http://www.nutritio nal-healing. com.au/content/

> articles-

> > content.php? heading=CFS% 20treatment% 20protocol

> >

>

<http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%\

20treatment%20protocol>

> > >

> > > Once more if anyone has any constructive

> > > criticism/suggestio ns, please email me on list

> or

> > > off list (blake@nutritional- healing.com. au

> > <mailto:blake%40nutritional-healing.com.au>).

> > >

> > > Regards,

> > >

> > > Blake Graham, B.Sc (Honours)

> > > Clinical Nutritionist

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> > ____________ _________ _________ _________

> _________ __

> >

[Guest guest]

Hi Adrienne,

If u look at my other message by me today-you and

someone else gave me a fresh point of view on the

NAET.

Currently I don't have any extra cash-working through

a specialist with insurance. But, am now willing to

give it ago-just not right away-want to wait to try a

few other things first -

I'm sorry if my message came off as rude-nor, did I

make any reference to your doctor specifically or his

character. From what u write-I'm sure he is an ethical

guy.

Once, again, sorry, didn't mean to step on any toes.

It was just an assumption about the New Age thing.

Gena

--- " Adrienne G. " <duckblossm@...> wrote:

> It is pretty odd, , but you have little to lose

> by trying it-besides some money of course. My doc is

> extremely ethical and conscientious. He invested a

> great deal of time in investigation and then paying

> for training for the process. I can't say much about

> it working on me-have not been especially allergic.

> But one of my doc's main credentials is all the

> years he treated me FOR FREE on a weekly basis. I

> mean, he is not a scammer, and many of the other

> things he has done for me have helped a lot.

> Adrienne

> Re: My CFS

> treatment

> > protocol.

> >

> >

> > Hi Blake,

> >

> > Just wanted to say that your protocol looks

> good

> > and

> > helpful. Thanks for tying to share it with

> > everyone.

> >

> > I wish I could offer suggestions but am one of

> > those

> > very difficult cfs/fibro folks who is allergic

> to

> > practically everything-or have a

> hypersensitivity

> > reaction-or sudden horrid increase in severe

> > symptoms

> > by taking most of what is on your list.

> >

> > Do you offer any advice for those of us who

> are

> > allergic or hypersensitive to most of the

> things

> > you've listed?

> >

> > I'm down to trying three last things-(lip.

> > glutathione-anti-virals and olive leaf)

> >

> > I can't take seventeen years of only getting

> worse

> > on

> > protocols (mostly antibiotics- and am now

> allergic

> > to

> > most antibiotics and ended up in hospital once

> > when I

> > stopped breathing on one-took six months to

> get

> > over

> > another allergic reaction to another)

> >

> > and trying several things and only having

> poor

> > reactions-attacks of extreme joint

> > pain-endometriosis

> > and worsening muscle pain-deadening fatigue

> with

> > others

> > (low dose naltrexone-magnesium-vitamin

> c-denatured

> > whey product Immunepro-Carlson's fish oil-flax

> > seed

> > oil-biodentical compounded t3(actually felt a

> lot

> > better for the first time in 17 yrs. on this

> but

> > then

> > ended up having bad rash on face-hives and

> pimple

> > outbreaks/allergic)

> > -iron, (if I take anymore than 1 capsule

> induces

> > extreme debilitating fatigue and extreme

> muscle

> > pain)-dhea(induces per.

> > neuropathy/vulvodenia)-guaifenesin (induced

> bad

> > vulvodenia)

> > -any anti-depressant other than trazodone

> (make me

> > too

> > hyper activated and increase insomnia)-xyrem

> > (induces

> > bad depression-actually shortens my

> sleep-gives

> > hangover-more fatigue)-benzos like

> > xanax/Klonopin(induces depression-gives

> > hangover-worsens fatigue)-

> >

> > nystatin (allergic)-strict anti-candida diets

> (did

> > absolutely nothing for me)-morphine

> (allergic)- D3

> > (induces endometriosis attacks) and more meds

> and

> > supplements that I can't recall at this time.

> >

> > Do u think this all could have to do with the

> > liver

> > even though my liver tests are fine?

> >

> > Do u think there is a glutathione connection?

> >

> > But if I am allergic or overly sensitive to

> > denatured

> > whey products-how can I increase glutathione?

> >

> > I'm going to try lipoceutical glutathione but

> have

> > to

> > admit that I won't be surprised if I have a

> > reaction

> > to it like other things.

> >

> > Is there some sort of natural way to raise

> > glutathione

> > like light exercise-deeper sleep-sitting in a

> > sauna-getting more sunlight? Some sort of food

> > instead

> > of supplements?

> >

> > Thank You,

> > Gena

> >

> > --- Blake Graham <blanket@...> wrote:

> >

> > > Dear list,

> > >

> > > As I have mentioned on this list previously,

> I

> > have

> > > been working on refining a protocol document

> for

> > > CFS. Over the past month I have made a

> number of

> > > modifications to this document. The current

> > version

> > > is available at:

> > >

> > >

> >

> >

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

> > >

> > > Once more if anyone has any constructive

> > > criticism/suggestions, please email me on

> list

> > or

> > > off list (blake@...).

> > >

> > > Regards,

> > >

> > > Blake Graham, B.Sc (Honours)

> > > Clinical Nutritionist

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> >

> >

> >

> __________________________________________________

> >

[Guest guest]

Hi Jill,

I personally have not used colonics, liver flushes, etc. with my clients. The

reason being I have had a hard time finding reliable data showing they are

beneficial. I personally don't believe in the 'mucoid plaque' hypothesis that

many involved in alternative medicine promote.

I have read as much as possible about TD-DMPS as I could find. Most of the info

is biased in that it is from it's creator, Dr. Buttar. I have concluded that for

myself there is not enough data to promote it. I am not familiar with the

effectiveness of TD-DMSA, although have seen good evidence that oral and

suppository form of DMSA is effective.

Regards,

Blake

Re: My CFS treatment protocol.

Blake, in cleansing the gut do you recommend colonics, liver flushes,

intestinal cleanses, or the like?

I don't see that on your list but from what I've read these can be

important. I'm going to do them myself.

Also, you don't mention transdermal DMPS and transdermal DMSA but they

seem to be used by DAN! folks.

Thanx!

>

> Dear list,

>

> As I have mentioned on this list previously, I have been working on

refining a protocol document for CFS. Over the past month I have made

a number of modifications to this document. The current version is

available at:

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

>

> Once more if anyone has any constructive criticism/suggestions,

please email me on list or off list (blake@...).

>

> Regards,

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

>

>

[Guest guest]

Hi Gena,

I would suggest investigating the following areas:

Gut flora abnormalities are a major cause of hypersensitivity reactions. In

Australia we have a great lab called Bioscreen which does a more detailed stool

bacterial analysis than any other lab I have come across. Assuming you are in

the U.S. I would suggest measuring gut flora via Doctors Data. Many people have

taken probiotics for years and are still out of balance.

I would also do a few diagnostic trials of anti-yeast treatments plus a yeast

free diet. Yeast is another common cause of hypersensitivity reactions. You

could try Saccharomyces boulardii (3/day) for three weeks then diflucan for

three weeks. Nystatin helps soime yeast infections and soes noting for others. I

suggest trying at least two different treataments. I leant this from Dr. Sidney

Baker, co-founder of DAN!. I have written up his version of a yeast free diet

which is different from the standard yeast free diet.

http://www.nutritional-healing.com.au/content/Yeast%20free%20diet.pdf

I would also wonder about parasitic infections. Diagnoc-Techs in Kent,

Washington does the most advanced parasite testing I have come across. See:

http://www.diagnostechs.com/body_text/tests/gi/gi_doctor.htm

I would also wonder about stomach acid deficiency (hypochlorhydria). Signs this

may be present are reflux/heartburn, very full feeling in stomach after eating,

poor digestion, and being over 60.

I would also suspect you are sensitivite to gluten and casein. Would suggest a

30 day trial elimination og these foods. Then a more extensive elimination diet

to determine other foods sensitivities.

Another test I would suggest is a functional liver detoxification profile.

'Liver function tests' which your doctor orders are not really markers for liver

function, but for liver damage. A functional liver detoxification profile gives

you a fairly good indication of how your liver is detoxifying. GLutathione of

course relates to liver functions, so there is a link here.

Have you tried glutathione IV? This is the best tolerated form by many

hypersensitive people. Of course there are some people that reacat to this as

well.

Turmeric and garlic are said to have an effect raising glutathione.

Regards,

blake

Re: My CFS treatment protocol.

Hi Blake,

Just wanted to say that your protocol looks good and

helpful. Thanks for tying to share it with everyone.

I wish I could offer suggestions but am one of those

very difficult cfs/fibro folks who is allergic to

practically everything-or have a hypersensitivity

reaction-or sudden horrid increase in severe symptoms

by taking most of what is on your list.

Do you offer any advice for those of us who are

allergic or hypersensitive to most of the things

you've listed?

I'm down to trying three last things-(lip.

glutathione-anti-virals and olive leaf)

I can't take seventeen years of only getting worse on

protocols (mostly antibiotics- and am now allergic to

most antibiotics and ended up in hospital once when I

stopped breathing on one-took six months to get over

another allergic reaction to another)

and trying several things and only having poor

reactions-attacks of extreme joint pain-endometriosis

and worsening muscle pain-deadening fatigue with

others

(low dose naltrexone-magnesium-vitamin c-denatured

whey product Immunepro-Carlson's fish oil-flax seed

oil-biodentical compounded t3(actually felt a lot

better for the first time in 17 yrs. on this but then

ended up having bad rash on face-hives and pimple

outbreaks/allergic)

-iron, (if I take anymore than 1 capsule induces

extreme debilitating fatigue and extreme muscle

pain)-dhea(induces per.

neuropathy/vulvodenia)-guaifenesin (induced bad

vulvodenia)

-any anti-depressant other than trazodone (make me too

hyper activated and increase insomnia)-xyrem (induces

bad depression-actually shortens my sleep-gives

hangover-more fatigue)-benzos like

xanax/Klonopin(induces depression-gives

hangover-worsens fatigue)-

nystatin (allergic)-strict anti-candida diets (did

absolutely nothing for me)-morphine (allergic)- D3

(induces endometriosis attacks) and more meds and

supplements that I can't recall at this time.

Do u think this all could have to do with the liver

even though my liver tests are fine?

Do u think there is a glutathione connection?

But if I am allergic or overly sensitive to denatured

whey products-how can I increase glutathione?

I'm going to try lipoceutical glutathione but have to

admit that I won't be surprised if I have a reaction

to it like other things.

Is there some sort of natural way to raise glutathione

like light exercise-deeper sleep-sitting in a

sauna-getting more sunlight? Some sort of food instead

of supplements?

Thank You,

Gena

--- Blake Graham <blanket@...> wrote:

> Dear list,

>

> As I have mentioned on this list previously, I have

> been working on refining a protocol document for

> CFS. Over the past month I have made a number of

> modifications to this document. The current version

> is available at:

>

>

http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\

0treatment%20protocol

>

> Once more if anyone has any constructive

> criticism/suggestions, please email me on list or

> off list (blake@...).

>

> Regards,

>

> Blake Graham, B.Sc (Honours)

> Clinical Nutritionist

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi ,

There is no one sized fit's all approach to probiotics. The best probiotics for

an individual are the ones which are low on stool tests, plus others which may

have therapeutic value. Too much acidophilus and bifidobacterium is harmful.

Acidophilus is much more commonly deficient than bifido in those with CFS, and

often not present at all.

Blake

Re: My CFS treatment protocol.

Hi Blake,

Which probiotic would you recommend?

Ta

[Guest guest]

Really? What happens if you take too much?

Thanks,

Trina

Blake Graham <blanket@...> wrote:

Too much acidophilus and bifidobacterium is harmful.

Blake

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[Guest guest]

Hi Trina,

It can feed the bad bacteria and cause Dysbiosis. It certainly did that too me

and raised my D-Lactate levels too high. I was misled by several docs thinking

that could not happen . . but it did to me.

Best wishes,

Sue T

Katrina Tangen <tvpro36@...> wrote:

Really? What happens if you take too much?

Thanks,

Trina

Blake Graham <blanket@...> wrote:

Too much acidophilus and bifidobacterium is harmful.

Blake

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.

[Guest guest]

Harry at customprobiotics makes a d-lactate free formula for autistic

kids. Perhaps there is some connection here with poor methylation, who

knows. But very very high potency formulas (such as VSL#3), or

Harry's, have proven very beneficial. I question the statement that

too much can be bad or feed the bad bacteria. More to the point is

that various " good " bacteria modulate the immune system in different

ways. A good book to read is Bacteria for Breakfast by Karpa. It

has all the research and in readable chapters. IL10, IL2 and various

other cytokines are modulated by the good bacteria--mostly to our

benefit, that's why we call them good bacteria as we are symbiotic

with them. They also manufacture compounds that actually kill the bad

bacteria.

> Too much acidophilus and bifidobacterium is harmful.

> Blake

>

>

>

>

> New Message Search

> Find the message you want faster. Visit your group to try out the

improved message search.

>

>

>

>

> Share feedback on the new changes to Groups

>

>

> Recent Activity

>

> 15

> New Members

>

> Visit Your Group

>

> .

>

>

>

>

>

>

[Guest guest]

Edy Rayfield wrote:

>

> I had a colonoscopy all the way up to the duidenal. So basically all

> my small and large intestine were looked at. I got to watch on a

> screen as I didn't take the drug to relax me. I have to say after a

> day of just liquids and a mild laxitive the inside of my intestines

> looked as pink and beautiful as the day I was born. It was interesting

> and rewarding, so I think I have to agree wih Blake that there isn't a

> lot of residual stuff waiting around in there. But I'm only one

> person. Edy

>

>

Make that two persons.

I had a sigmoidoscopy and I too watched on the TV monitor as the camera

worked it's way through my intestine and was utterly surprised and how

pink and clean the insides of my intestine looked.

Will in Seattle

a.k.a. " Sleepless "