Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Blake, in cleansing the gut do you recommend colonics, liver flushes, intestinal cleanses, or the like? I don't see that on your list but from what I've read these can be important. I'm going to do them myself. Also, you don't mention transdermal DMPS and transdermal DMSA but they seem to be used by DAN! folks. Thanx! > > Dear list, > > As I have mentioned on this list previously, I have been working on refining a protocol document for CFS. Over the past month I have made a number of modifications to this document. The current version is available at: > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > Once more if anyone has any constructive criticism/suggestions, please email me on list or off list (blake@...). > > Regards, > > Blake Graham, B.Sc (Honours) > Clinical Nutritionist > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Hi Blake, Just wanted to say that your protocol looks good and helpful. Thanks for tying to share it with everyone. I wish I could offer suggestions but am one of those very difficult cfs/fibro folks who is allergic to practically everything-or have a hypersensitivity reaction-or sudden horrid increase in severe symptoms by taking most of what is on your list. Do you offer any advice for those of us who are allergic or hypersensitive to most of the things you've listed? I'm down to trying three last things-(lip. glutathione-anti-virals and olive leaf) I can't take seventeen years of only getting worse on protocols (mostly antibiotics- and am now allergic to most antibiotics and ended up in hospital once when I stopped breathing on one-took six months to get over another allergic reaction to another) and trying several things and only having poor reactions-attacks of extreme joint pain-endometriosis and worsening muscle pain-deadening fatigue with others (low dose naltrexone-magnesium-vitamin c-denatured whey product Immunepro-Carlson's fish oil-flax seed oil-biodentical compounded t3(actually felt a lot better for the first time in 17 yrs. on this but then ended up having bad rash on face-hives and pimple outbreaks/allergic) -iron, (if I take anymore than 1 capsule induces extreme debilitating fatigue and extreme muscle pain)-dhea(induces per. neuropathy/vulvodenia)-guaifenesin (induced bad vulvodenia) -any anti-depressant other than trazodone (make me too hyper activated and increase insomnia)-xyrem (induces bad depression-actually shortens my sleep-gives hangover-more fatigue)-benzos like xanax/Klonopin(induces depression-gives hangover-worsens fatigue)- nystatin (allergic)-strict anti-candida diets (did absolutely nothing for me)-morphine (allergic)- D3 (induces endometriosis attacks) and more meds and supplements that I can't recall at this time. Do u think this all could have to do with the liver even though my liver tests are fine? Do u think there is a glutathione connection? But if I am allergic or overly sensitive to denatured whey products-how can I increase glutathione? I'm going to try lipoceutical glutathione but have to admit that I won't be surprised if I have a reaction to it like other things. Is there some sort of natural way to raise glutathione like light exercise-deeper sleep-sitting in a sauna-getting more sunlight? Some sort of food instead of supplements? Thank You, Gena --- Blake Graham <blanket@...> wrote: > Dear list, > > As I have mentioned on this list previously, I have > been working on refining a protocol document for > CFS. Over the past month I have made a number of > modifications to this document. The current version > is available at: > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > Once more if anyone has any constructive > criticism/suggestions, please email me on list or > off list (blake@...). > > Regards, > > Blake Graham, B.Sc (Honours) > Clinical Nutritionist > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Gena, in your case it might be worth trying a process called NAET. It is an allergy elimination technique that does help some folks. I recall that you can google it even though it as an acronym. Adrienne Re: My CFS treatment protocol. Hi Blake, Just wanted to say that your protocol looks good and helpful. Thanks for tying to share it with everyone. I wish I could offer suggestions but am one of those very difficult cfs/fibro folks who is allergic to practically everything-or have a hypersensitivity reaction-or sudden horrid increase in severe symptoms by taking most of what is on your list. Do you offer any advice for those of us who are allergic or hypersensitive to most of the things you've listed? I'm down to trying three last things-(lip. glutathione-anti-virals and olive leaf) I can't take seventeen years of only getting worse on protocols (mostly antibiotics- and am now allergic to most antibiotics and ended up in hospital once when I stopped breathing on one-took six months to get over another allergic reaction to another) and trying several things and only having poor reactions-attacks of extreme joint pain-endometriosis and worsening muscle pain-deadening fatigue with others (low dose naltrexone-magnesium-vitamin c-denatured whey product Immunepro-Carlson's fish oil-flax seed oil-biodentical compounded t3(actually felt a lot better for the first time in 17 yrs. on this but then ended up having bad rash on face-hives and pimple outbreaks/allergic) -iron, (if I take anymore than 1 capsule induces extreme debilitating fatigue and extreme muscle pain)-dhea(induces per. neuropathy/vulvodenia)-guaifenesin (induced bad vulvodenia) -any anti-depressant other than trazodone (make me too hyper activated and increase insomnia)-xyrem (induces bad depression-actually shortens my sleep-gives hangover-more fatigue)-benzos like xanax/Klonopin(induces depression-gives hangover-worsens fatigue)- nystatin (allergic)-strict anti-candida diets (did absolutely nothing for me)-morphine (allergic)- D3 (induces endometriosis attacks) and more meds and supplements that I can't recall at this time. Do u think this all could have to do with the liver even though my liver tests are fine? Do u think there is a glutathione connection? But if I am allergic or overly sensitive to denatured whey products-how can I increase glutathione? I'm going to try lipoceutical glutathione but have to admit that I won't be surprised if I have a reaction to it like other things. Is there some sort of natural way to raise glutathione like light exercise-deeper sleep-sitting in a sauna-getting more sunlight? Some sort of food instead of supplements? Thank You, Gena --- Blake Graham <blanket@...> wrote: > Dear list, > > As I have mentioned on this list previously, I have > been working on refining a protocol document for > CFS. Over the past month I have made a number of > modifications to this document. The current version > is available at: > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > Once more if anyone has any constructive > criticism/suggestions, please email me on list or > off list (blake@...). > > Regards, > > Blake Graham, B.Sc (Honours) > Clinical Nutritionist > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Hi Gena, Your story sounds so much like mine it's uncanny. Plus a few more here and probably a few more at your end, too. Can you tell me what you were taking the antibiotics for? I took them for lyme for about a year on and off, pulsing and am now so allergic to them that if I were in a life threatening situation I don't think I could be saved! Also, as time goes on I am becoming more and more sensitized to just about everything. I can only take supplements in liquid form if it's very pure. After 30 years of all this I can hardly believe the sensitivities are happening so much now. Overload I guess. I'm trying very hard to understand most of what everyone is talking about here, but have to admit I'm at sea. I tend to follow Jill's lead and will probably get the Yasko test when I can afford it. Good luck to all of us! Edy Gena Castanon <gcastanon68@...> wrote: Hi Blake, Just wanted to say that your protocol looks good and helpful. Thanks for tying to share it with everyone. I wish I could offer suggestions but am one of those very difficult cfs/fibro folks who is allergic to practically everything-or have a hypersensitivity reaction-or sudden horrid increase in severe symptoms by taking most of what is on your list. Do you offer any advice for those of us who are allergic or hypersensitive to most of the things you've listed? I'm down to trying three last things-(lip. glutathione-anti-virals and olive leaf) I can't take seventeen years of only getting worse on protocols (mostly antibiotics- and am now allergic to most antibiotics and ended up in hospital once when I stopped breathing on one-took six months to get over another allergic reaction to another) and trying several things and only having poor reactions-attacks of extreme joint pain-endometriosis and worsening muscle pain-deadening fatigue with others (low dose naltrexone-magnesium-vitamin c-denatured whey product Immunepro-Carlson's fish oil-flax seed oil-biodentical compounded t3(actually felt a lot better for the first time in 17 yrs. on this but then ended up having bad rash on face-hives and pimple outbreaks/allergic) -iron, (if I take anymore than 1 capsule induces extreme debilitating fatigue and extreme muscle pain)-dhea(induces per. neuropathy/vulvodenia)-guaifenesin (induced bad vulvodenia) -any anti-depressant other than trazodone (make me too hyper activated and increase insomnia)-xyrem (induces bad depression-actually shortens my sleep-gives hangover-more fatigue)-benzos like xanax/Klonopin(induces depression-gives hangover-worsens fatigue)- nystatin (allergic)-strict anti-candida diets (did absolutely nothing for me)-morphine (allergic)- D3 (induces endometriosis attacks) and more meds and supplements that I can't recall at this time. Do u think this all could have to do with the liver even though my liver tests are fine? Do u think there is a glutathione connection? But if I am allergic or overly sensitive to denatured whey products-how can I increase glutathione? I'm going to try lipoceutical glutathione but have to admit that I won't be surprised if I have a reaction to it like other things. Is there some sort of natural way to raise glutathione like light exercise-deeper sleep-sitting in a sauna-getting more sunlight? Some sort of food instead of supplements? Thank You, Gena --- Blake Graham <blanket@...> wrote: > Dear list, > > As I have mentioned on this list previously, I have > been working on refining a protocol document for > CFS. Over the past month I have made a number of > modifications to this document. The current version > is available at: > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > Once more if anyone has any constructive > criticism/suggestions, please email me on list or > off list (blake@...). > > Regards, > > Blake Graham, B.Sc (Honours) > Clinical Nutritionist > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Hi Adrienne, I'm already familiar with NAET. However, thought it was one of those New Age scams-sorry if I offend anyone. Miss Gena --- " Adrienne G. " <duckblossm@...> wrote: > Gena, in your case it might be worth trying a > process called NAET. It is an allergy elimination > technique that does help some folks. I recall that > you can google it even though it as an acronym. > Adrienne > Re: My CFS treatment > protocol. > > > Hi Blake, > > Just wanted to say that your protocol looks good > and > helpful. Thanks for tying to share it with > everyone. > > I wish I could offer suggestions but am one of > those > very difficult cfs/fibro folks who is allergic to > practically everything-or have a hypersensitivity > reaction-or sudden horrid increase in severe > symptoms > by taking most of what is on your list. > > Do you offer any advice for those of us who are > allergic or hypersensitive to most of the things > you've listed? > > I'm down to trying three last things-(lip. > glutathione-anti-virals and olive leaf) > > I can't take seventeen years of only getting worse > on > protocols (mostly antibiotics- and am now allergic > to > most antibiotics and ended up in hospital once > when I > stopped breathing on one-took six months to get > over > another allergic reaction to another) > > and trying several things and only having poor > reactions-attacks of extreme joint > pain-endometriosis > and worsening muscle pain-deadening fatigue with > others > (low dose naltrexone-magnesium-vitamin c-denatured > whey product Immunepro-Carlson's fish oil-flax > seed > oil-biodentical compounded t3(actually felt a lot > better for the first time in 17 yrs. on this but > then > ended up having bad rash on face-hives and pimple > outbreaks/allergic) > -iron, (if I take anymore than 1 capsule induces > extreme debilitating fatigue and extreme muscle > pain)-dhea(induces per. > neuropathy/vulvodenia)-guaifenesin (induced bad > vulvodenia) > -any anti-depressant other than trazodone (make me > too > hyper activated and increase insomnia)-xyrem > (induces > bad depression-actually shortens my sleep-gives > hangover-more fatigue)-benzos like > xanax/Klonopin(induces depression-gives > hangover-worsens fatigue)- > > nystatin (allergic)-strict anti-candida diets (did > absolutely nothing for me)-morphine (allergic)- D3 > (induces endometriosis attacks) and more meds and > supplements that I can't recall at this time. > > Do u think this all could have to do with the > liver > even though my liver tests are fine? > > Do u think there is a glutathione connection? > > But if I am allergic or overly sensitive to > denatured > whey products-how can I increase glutathione? > > I'm going to try lipoceutical glutathione but have > to > admit that I won't be surprised if I have a > reaction > to it like other things. > > Is there some sort of natural way to raise > glutathione > like light exercise-deeper sleep-sitting in a > sauna-getting more sunlight? Some sort of food > instead > of supplements? > > Thank You, > Gena > > --- Blake Graham <blanket@...> wrote: > > > Dear list, > > > > As I have mentioned on this list previously, I > have > > been working on refining a protocol document for > > CFS. Over the past month I have made a number of > > modifications to this document. The current > version > > is available at: > > > > > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > > > Once more if anyone has any constructive > > criticism/suggestions, please email me on list > or > > off list (blake@...). > > > > Regards, > > > > Blake Graham, B.Sc (Honours) > > Clinical Nutritionist > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Blake, Thanks for your post. I am glad to see that you are including EMFs (or the elimination of them) as part of your protocol. I remember at one point in my illness looking at your site. I wasn't aware that you were also on this list. There is also a Dr. Holt in Perth who has found (accidentally) an interesting link between microwaves and an increase in the histamine produced by mast cells and postulates that this might be the reason that Australia and NZ have such high rates of Asthma and other allergies. (Might just also be why PWC also suffer from so many allergic reactions.) I noticed the article by A. Van Konynenburg, Ph.D http://www.nutritional-healing.com.au/content/articles- content.php?heading= Autism%20treatments%20show%20promise%20in%20Chronic%20Fatigue%20Syndr ome on your article list connecting CFS to Autism. Interestingly, Nicolson has also been making connections in this area and so has a Dr. Goldberg who has come up with the term . You might want to add these to your reading list. http://www.cfids-cab.org/cfs-inform/Mycoplasma/nicolson.etal.02.txt http://www.neuroimmunedr.com/present3/index.htm http://www.whale.to/v/goldberg.html Moreover, a Dr. Miike here in Japan has found that " School Refusal " or " School Phobia " is actually Childhood Chronic Fatigue Syndrome (CCFS). Interestingly, the number of children who refuse to go to school here in Japan had skyrocketed from 10,000 in 1990 to 140,000 in 2004 - along with cell phones I might add. I imagine that it is continuing this trend. www.peterboroughme.fsnet.co.uk/fact/memory impairment.pdf Regards, paul doyon > > Dear list, > > As I have mentioned on this list previously, I have been working on refining a protocol document for CFS. Over the past month I have made a number of modifications to this document. The current version is available at: > > http://www.nutritional-healing.com.au/content/articles- content.php?heading=CFS%20treatment%20protocol > > Once more if anyone has any constructive criticism/suggestions, please email me on list or off list (blake@...). > > Regards, > > Blake Graham, B.Sc (Honours) > Clinical Nutritionist > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 It is pretty odd, , but you have little to lose by trying it-besides some money of course. My doc is extremely ethical and conscientious. He invested a great deal of time in investigation and then paying for training for the process. I can't say much about it working on me-have not been especially allergic. But one of my doc's main credentials is all the years he treated me FOR FREE on a weekly basis. I mean, he is not a scammer, and many of the other things he has done for me have helped a lot. Adrienne Re: My CFS treatment > protocol. > > > Hi Blake, > > Just wanted to say that your protocol looks good > and > helpful. Thanks for tying to share it with > everyone. > > I wish I could offer suggestions but am one of > those > very difficult cfs/fibro folks who is allergic to > practically everything-or have a hypersensitivity > reaction-or sudden horrid increase in severe > symptoms > by taking most of what is on your list. > > Do you offer any advice for those of us who are > allergic or hypersensitive to most of the things > you've listed? > > I'm down to trying three last things-(lip. > glutathione-anti-virals and olive leaf) > > I can't take seventeen years of only getting worse > on > protocols (mostly antibiotics- and am now allergic > to > most antibiotics and ended up in hospital once > when I > stopped breathing on one-took six months to get > over > another allergic reaction to another) > > and trying several things and only having poor > reactions-attacks of extreme joint > pain-endometriosis > and worsening muscle pain-deadening fatigue with > others > (low dose naltrexone-magnesium-vitamin c-denatured > whey product Immunepro-Carlson's fish oil-flax > seed > oil-biodentical compounded t3(actually felt a lot > better for the first time in 17 yrs. on this but > then > ended up having bad rash on face-hives and pimple > outbreaks/allergic) > -iron, (if I take anymore than 1 capsule induces > extreme debilitating fatigue and extreme muscle > pain)-dhea(induces per. > neuropathy/vulvodenia)-guaifenesin (induced bad > vulvodenia) > -any anti-depressant other than trazodone (make me > too > hyper activated and increase insomnia)-xyrem > (induces > bad depression-actually shortens my sleep-gives > hangover-more fatigue)-benzos like > xanax/Klonopin(induces depression-gives > hangover-worsens fatigue)- > > nystatin (allergic)-strict anti-candida diets (did > absolutely nothing for me)-morphine (allergic)- D3 > (induces endometriosis attacks) and more meds and > supplements that I can't recall at this time. > > Do u think this all could have to do with the > liver > even though my liver tests are fine? > > Do u think there is a glutathione connection? > > But if I am allergic or overly sensitive to > denatured > whey products-how can I increase glutathione? > > I'm going to try lipoceutical glutathione but have > to > admit that I won't be surprised if I have a > reaction > to it like other things. > > Is there some sort of natural way to raise > glutathione > like light exercise-deeper sleep-sitting in a > sauna-getting more sunlight? Some sort of food > instead > of supplements? > > Thank You, > Gena > > --- Blake Graham <blanket@...> wrote: > > > Dear list, > > > > As I have mentioned on this list previously, I > have > > been working on refining a protocol document for > > CFS. Over the past month I have made a number of > > modifications to this document. The current > version > > is available at: > > > > > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > > > Once more if anyone has any constructive > > criticism/suggestions, please email me on list > or > > off list (blake@...). > > > > Regards, > > > > Blake Graham, B.Sc (Honours) > > Clinical Nutritionist > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Hi Blake, Which probiotic would you recommend? Ta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 I have used the NAET treatment and it works. Gail Adrienne G. wrote: > > Gena, in your case it might be worth trying a process called NAET. It > is an allergy elimination technique that does help some folks. I > recall that you can google it even though it as an acronym. > Adrienne > Re: My CFS treatment protocol. > > Hi Blake, > > Just wanted to say that your protocol looks good and > helpful. Thanks for tying to share it with everyone. > > I wish I could offer suggestions but am one of those > very difficult cfs/fibro folks who is allergic to > practically everything-or have a hypersensitivity > reaction-or sudden horrid increase in severe symptoms > by taking most of what is on your list. > > Do you offer any advice for those of us who are > allergic or hypersensitive to most of the things > you've listed? > > I'm down to trying three last things-(lip. > glutathione- anti-virals and olive leaf) > > I can't take seventeen years of only getting worse on > protocols (mostly antibiotics- and am now allergic to > most antibiotics and ended up in hospital once when I > stopped breathing on one-took six months to get over > another allergic reaction to another) > > and trying several things and only having poor > reactions-attacks of extreme joint pain-endometriosis > and worsening muscle pain-deadening fatigue with > others > (low dose naltrexone-magnesiu m-vitamin c-denatured > whey product Immunepro-Carlson' s fish oil-flax seed > oil-biodentical compounded t3(actually felt a lot > better for the first time in 17 yrs. on this but then > ended up having bad rash on face-hives and pimple > outbreaks/allergic) > -iron, (if I take anymore than 1 capsule induces > extreme debilitating fatigue and extreme muscle > pain)-dhea(induces per. > neuropathy/vulvoden ia)-guaifenesin (induced bad > vulvodenia) > -any anti-depressant other than trazodone (make me too > hyper activated and increase insomnia)-xyrem (induces > bad depression-actually shortens my sleep-gives > hangover-more fatigue)-benzos like > xanax/Klonopin( induces depression-gives > hangover-worsens fatigue)- > > nystatin (allergic)-strict anti-candida diets (did > absolutely nothing for me)-morphine (allergic)- D3 > (induces endometriosis attacks) and more meds and > supplements that I can't recall at this time. > > Do u think this all could have to do with the liver > even though my liver tests are fine? > > Do u think there is a glutathione connection? > > But if I am allergic or overly sensitive to denatured > whey products-how can I increase glutathione? > > I'm going to try lipoceutical glutathione but have to > admit that I won't be surprised if I have a reaction > to it like other things. > > Is there some sort of natural way to raise glutathione > like light exercise-deeper sleep-sitting in a > sauna-getting more sunlight? Some sort of food instead > of supplements? > > Thank You, > Gena > > --- Blake Graham <blankettpg (DOT) com.au <mailto:blanket%40tpg.com.au>> > wrote: > > > Dear list, > > > > As I have mentioned on this list previously, I have > > been working on refining a protocol document for > > CFS. Over the past month I have made a number of > > modifications to this document. The current version > > is available at: > > > > > http://www.nutritio nal-healing. com.au/content/ articles- > content.php? heading=CFS% 20treatment% 20protocol > <http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%\ 20treatment%20protocol> > > > > Once more if anyone has any constructive > > criticism/suggestio ns, please email me on list or > > off list (blake@nutritional- healing.com. au > <mailto:blake%40nutritional-healing.com.au>). > > > > Regards, > > > > Blake Graham, B.Sc (Honours) > > Clinical Nutritionist > > > > > > [Non-text portions of this message have been > > removed] > > > > > > ____________ _________ _________ _________ _________ __ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 I hope this doesn't make anyone squeemish, but I had some very bad anemia to the point of almost having to have a transfusion a few years ago. I knew I had very heavy periods at that time, but the docs wanted to look for internal bleeding so I had a colonoscopy all the way up to the duidenal. So basically all my small and large intestine were looked at. I got to watch on a screen as I didn't take the drug to relax me. I have to say after a day of just liquids and a mild laxitive the inside of my intestines looked as pink and beautiful as the day I was born. It was interesting and rewarding, so I think I have to agree wih Blake that there isn't a lot of residual stuff waiting around in there. But I'm only one person. Edy Blake Graham <blanket@...> wrote: Hi Jill, I personally have not used colonics, liver flushes, etc. with my clients. The reason being I have had a hard time finding reliable data showing they are beneficial. I personally don't believe in the 'mucoid plaque' hypothesis that many involved in alternative medicine promote. I have read as much as possible about TD-DMPS as I could find. Most of the info is biased in that it is from it's creator, Dr. Buttar. I have concluded that for myself there is not enough data to promote it. I am not familiar with the effectiveness of TD-DMSA, although have seen good evidence that oral and suppository form of DMSA is effective. Regards, Blake Re: My CFS treatment protocol. Blake, in cleansing the gut do you recommend colonics, liver flushes, intestinal cleanses, or the like? I don't see that on your list but from what I've read these can be important. I'm going to do them myself. Also, you don't mention transdermal DMPS and transdermal DMSA but they seem to be used by DAN! folks. Thanx! > > Dear list, > > As I have mentioned on this list previously, I have been working on refining a protocol document for CFS. Over the past month I have made a number of modifications to this document. The current version is available at: > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > Once more if anyone has any constructive criticism/suggestions, please email me on list or off list (blake@...). > > Regards, > > Blake Graham, B.Sc (Honours) > Clinical Nutritionist > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Good Morning Blake- Thanks so much for all of your detailed explanations. I did test positive for high candida-but I tested positive for that almost sixteen years ago. I took the diflucan at the time-all the supplements-the supporting herbs-strict anti-candid diet for six months and felt not one ounce better. (Also, tried nystatin recently and had an allergic reaction to it-along with sporanax among all my other allergies.) However, I will be glad to review the work by the doctor u mentioned in the candida/yeast area and see if there is anything new to offer me. I have suspected the gluten intolerance-since I am running out of any other option-and am going to ask my doc on Jul. 13th to test me for gluten sensitivity/celiac. I'm aware that some people thought they had cfs/fibro for years and then find out they had celiac all along. I doubt that it is the case in most of our situations or most of the cfs/fm/me that unhidden celiac is the cause of all of our problems-but-could definitely be a hidden, contributing factor in a subset of our groups. I will also ask my doc. about the more specific liver tests which I've also wondered about and the others u mentioned. And finally, as far as the gluten free diet probe on my own-since diet has never really helped me-I find it difficult to stick to any one strict restrictive diet. However, I am desparate, and have tried many times-to start off for a week eating mostly organic chicken-in the hopes of sticking it out for a month-to see if it helps at all (leaving out all flour/carbs/sugars-etc.) Anyhow, thanks again. I will be researching your info and taking it to my doc. Sincerely, Gena --- Blake Graham <blanket@...> wrote: > Hi Gena, > > I would suggest investigating the following areas: > > Gut flora abnormalities are a major cause of > hypersensitivity reactions. In Australia we have a > great lab called Bioscreen which does a more > detailed stool bacterial analysis than any other lab > I have come across. Assuming you are in the U.S. I > would suggest measuring gut flora via Doctors Data. > Many people have taken probiotics for years and are > still out of balance. > > I would also do a few diagnostic trials of > anti-yeast treatments plus a yeast free diet. Yeast > is another common cause of hypersensitivity > reactions. You could try Saccharomyces boulardii > (3/day) for three weeks then diflucan for three > weeks. Nystatin helps soime yeast infections and > soes noting for others. I suggest trying at least > two different treataments. I leant this from Dr. > Sidney Baker, co-founder of DAN!. I have written up > his version of a yeast free diet which is different > from the standard yeast free diet. > http://www.nutritional-healing.com.au/content/Yeast%20free%20diet.pdf > > I would also wonder about parasitic infections. > Diagnoc-Techs in Kent, Washington does the most > advanced parasite testing I have come across. See: > http://www.diagnostechs.com/body_text/tests/gi/gi_doctor.htm > > I would also wonder about stomach acid deficiency > (hypochlorhydria). Signs this may be present are > reflux/heartburn, very full feeling in stomach after > eating, poor digestion, and being over 60. > > I would also suspect you are sensitivite to gluten > and casein. Would suggest a 30 day trial elimination > og these foods. Then a more extensive elimination > diet to determine other foods sensitivities. > > Another test I would suggest is a functional liver > detoxification profile. 'Liver function tests' which > your doctor orders are not really markers for liver > function, but for liver damage. A functional liver > detoxification profile gives you a fairly good > indication of how your liver is detoxifying. > GLutathione of course relates to liver functions, so > there is a link here. > > Have you tried glutathione IV? This is the best > tolerated form by many hypersensitive people. Of > course there are some people that reacat to this as > well. > > Turmeric and garlic are said to have an effect > raising glutathione. > > Regards, > > blake > > Re: My CFS treatment > protocol. > > > Hi Blake, > > Just wanted to say that your protocol looks good > and > helpful. Thanks for tying to share it with > everyone. > > I wish I could offer suggestions but am one of > those > very difficult cfs/fibro folks who is allergic to > practically everything-or have a hypersensitivity > reaction-or sudden horrid increase in severe > symptoms > by taking most of what is on your list. > > Do you offer any advice for those of us who are > allergic or hypersensitive to most of the things > you've listed? > > I'm down to trying three last things-(lip. > glutathione-anti-virals and olive leaf) > > I can't take seventeen years of only getting worse > on > protocols (mostly antibiotics- and am now allergic > to > most antibiotics and ended up in hospital once > when I > stopped breathing on one-took six months to get > over > another allergic reaction to another) > > and trying several things and only having poor > reactions-attacks of extreme joint > pain-endometriosis > and worsening muscle pain-deadening fatigue with > others > (low dose naltrexone-magnesium-vitamin c-denatured > whey product Immunepro-Carlson's fish oil-flax > seed > oil-biodentical compounded t3(actually felt a lot > better for the first time in 17 yrs. on this but > then > ended up having bad rash on face-hives and pimple > outbreaks/allergic) > -iron, (if I take anymore than 1 capsule induces > extreme debilitating fatigue and extreme muscle > pain)-dhea(induces per. > neuropathy/vulvodenia)-guaifenesin (induced bad > vulvodenia) > -any anti-depressant other than trazodone (make me > too > hyper activated and increase insomnia)-xyrem > (induces > bad depression-actually shortens my sleep-gives > hangover-more fatigue)-benzos like > xanax/Klonopin(induces depression-gives > hangover-worsens fatigue)- > > nystatin (allergic)-strict anti-candida diets (did > absolutely nothing for me)-morphine (allergic)- D3 > (induces endometriosis attacks) and more meds and > supplements that I can't recall at this time. > > Do u think this all could have to do with the > liver > even though my liver tests are fine? > > Do u think there is a glutathione connection? > > But if I am allergic or overly sensitive to > denatured > whey products-how can I increase glutathione? > > I'm going to try lipoceutical glutathione but have > to > admit that I won't be surprised if I have a > reaction > to it like other things. > > Is there some sort of natural way to raise > glutathione > like light exercise-deeper sleep-sitting in a > sauna-getting more sunlight? Some sort of food > instead > of supplements? > > Thank You, > Gena > > --- Blake Graham <blanket@...> wrote: > > > Dear list, > > > > As I have mentioned on this list previously, I > have > > been working on refining a protocol document for > > CFS. Over the past month I have made a number of > > modifications to this document. The current > version > > is available at: > > > > > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > > > Once more if anyone has any constructive > > criticism/suggestions, please email me on list > or > > off list (blake@...). > > > > Regards, > > > > Blake Graham, B.Sc (Honours) > > Clinical Nutritionist > > > > > > [Non-text portions of this message have been > > removed] > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Jill, Just wanted to chime in that I got over my nervousness and had a few colonics with a wonderful lady. I have no idea if I would have done them regularly, if they would have helped any of my fibro pain or fatigue. Of course, this lady, who later became my friend-who I trust-had promising stories from some of her clients with chronic disease of improvement. But, I never had a chance to meet any of those patients in person to see how I would feel. I can say-at one time when I actually had some acute constipation -that one of the colonics brought me out of it greatly. However, I'm sure Blake really knows more about this subject. I can tell u that if u find someone-interview them first-check out and ask about their colonic machinery and how clean everything looks. Ask about their training-etc. I don't think it can harm u if u go to someone experienced-trained (the lady I knew went to school for it)sanitized equipment-etc. ALso, I know here in Texas-that one must have a Doc.'s prescription now to get one done-but some Doc.'s must be handing out the scripts because the one's I knew who practiced colonics are still in business. But, however, I'm sorry I can't promise u that it would be benificial in your overall health problem-and ponder that if it would-then we would all be doing anything to do them regularly and would all be cured. Good luck, Gena --- Blake Graham <blanket@...> wrote: > Hi Jill, > > I personally have not used colonics, liver flushes, > etc. with my clients. The reason being I have had a > hard time finding reliable data showing they are > beneficial. I personally don't believe in the > 'mucoid plaque' hypothesis that many involved in > alternative medicine promote. > > I have read as much as possible about TD-DMPS as I > could find. Most of the info is biased in that it is > from it's creator, Dr. Buttar. I have concluded that > for myself there is not enough data to promote it. I > am not familiar with the effectiveness of TD-DMSA, > although have seen good evidence that oral and > suppository form of DMSA is effective. > > Regards, > > Blake > > Re: My CFS treatment > protocol. > > > Blake, in cleansing the gut do you recommend > colonics, liver flushes, > intestinal cleanses, or the like? > I don't see that on your list but from what I've > read these can be > important. I'm going to do them myself. > > Also, you don't mention transdermal DMPS and > transdermal DMSA but they > seem to be used by DAN! folks. > > Thanx! > > > > > > Dear list, > > > > As I have mentioned on this list previously, I > have been working on > refining a protocol document for CFS. Over the > past month I have made > a number of modifications to this document. The > current version is > available at: > > > > > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > > > Once more if anyone has any constructive > criticism/suggestions, > please email me on list or off list (blake@...). > > > > Regards, > > > > Blake Graham, B.Sc (Honours) > > Clinical Nutritionist > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 I think when black tarry stuff is expelled it is a dump but not from the colon persay. I also, because of colonoscopies, have always doubted that there is impacted stuff there. But we know little about the small intestine, and its my hunch that when people expell goop after a lot of cleansings, it may be a mucus/bile/lymphatic dump, for all we know. But if you go to curezone.com you find some rather impressive stories. These people do colonics, cleansings and sometimes fasting. I don't want to fast, my metabolism is very fast and I'm Type O, I need protein. > > > > Dear list, > > > > As I have mentioned on this list previously, I have been working on > refining a protocol document for CFS. Over the past month I have made > a number of modifications to this document. The current version is > available at: > > > > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > > > Once more if anyone has any constructive criticism/suggestions, > please email me on list or off list (blake@). > > > > Regards, > > > > Blake Graham, B.Sc (Honours) > > Clinical Nutritionist > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Edy, Hi, on a side note. I tested positive for pretty bad anemia-but my doc. didn't care to find out why or where it was coming from-just gave me iron. I'm only able to handle taking one iron pill-if I take anymore I have all my cfs/fms symptoms magnified horribly. There are all kinds of types of anemia and different causes. Did u ever find out what your cause was? Was it just the heavy periods? Gena --- Edy Rayfield <edyrayEfield@...> wrote: > I hope this doesn't make anyone squeemish, but I had > some very bad anemia to the point of almost having > to have a transfusion a few years ago. I knew I had > very heavy periods at that time, but the docs wanted > to look for internal bleeding so I had a colonoscopy > all the way up to the duidenal. So basically all my > small and large intestine were looked at. I got to > watch on a screen as I didn't take the drug to relax > me. I have to say after a day of just liquids and a > mild laxitive the inside of my intestines looked as > pink and beautiful as the day I was born. It was > interesting and rewarding, so I think I have to > agree wih Blake that there isn't a lot of residual > stuff waiting around in there. But I'm only one > person. Edy > > Blake Graham <blanket@...> wrote: Hi > Jill, > > I personally have not used colonics, liver flushes, > etc. with my clients. The reason being I have had a > hard time finding reliable data showing they are > beneficial. I personally don't believe in the > 'mucoid plaque' hypothesis that many involved in > alternative medicine promote. > > I have read as much as possible about TD-DMPS as I > could find. Most of the info is biased in that it is > from it's creator, Dr. Buttar. I have concluded that > for myself there is not enough data to promote it. I > am not familiar with the effectiveness of TD-DMSA, > although have seen good evidence that oral and > suppository form of DMSA is effective. > > Regards, > > Blake > > Re: My CFS treatment > protocol. > > Blake, in cleansing the gut do you recommend > colonics, liver flushes, > intestinal cleanses, or the like? > I don't see that on your list but from what I've > read these can be > important. I'm going to do them myself. > > Also, you don't mention transdermal DMPS and > transdermal DMSA but they > seem to be used by DAN! folks. > > Thanx! > > > > > > Dear list, > > > > As I have mentioned on this list previously, I > have been working on > refining a protocol document for CFS. Over the past > month I have made > a number of modifications to this document. The > current version is > available at: > > > > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > > > Once more if anyone has any constructive > criticism/suggestions, > please email me on list or off list (blake@...). > > > > Regards, > > > > Blake Graham, B.Sc (Honours) > > Clinical Nutritionist > > > > > > [Non-text portions of this message have been > removed] > > > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Thanx... In terms of expense, I would like to do my own, but I just don't believe I have it in me...psychologically (colemas...) blech...I keep trying to convince myself I could do it, but I don't think so... And in NY they are so expensive...but they are part of every cleansing protocol that I know of, so... I know of two highly recommended practitioners. I was considering one center but they did not use disposables so I walked out of there five minutes after I walked in. I'm very ambivalent about it I must admit. > > > > > > Dear list, > > > > > > As I have mentioned on this list previously, I > > have been working on > > refining a protocol document for CFS. Over the > > past month I have made > > a number of modifications to this document. The > > current version is > > available at: > > > > > > > > > > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > > > > > Once more if anyone has any constructive > > criticism/suggestions, > > please email me on list or off list (blake@). > > > > > > Regards, > > > > > > Blake Graham, B.Sc (Honours) > > > Clinical Nutritionist > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 What kind of reaction did you have to nystatin? I was just on it, in a generic of Mycolog II, which has nystatin with an powerful steroid Tiamcinolone, and wound up in the ER, I thought from " steroid excess " . Now I'm reading about " die-off " , Jarisch- Herxheimer reaction, and wonder if that's the problem. I was also on whey at the time, and thought I noticed mild sweats sometimes recently with the whey, before I started on the Mycolog II. I've since discontinued both. Perhaps that, with the added Mycolog II, was too much for my system to handle. Good luck, > > > > > Dear list, > > > > > > As I have mentioned on this list previously, I > > have > > > been working on refining a protocol document for > > > CFS. Over the past month I have made a number of > > > modifications to this document. The current > > version > > > is available at: > > > > > > > > > > > http://www.nutritional-healing.com.au/content/articles-content.php? heading=CFS%20treatment%20protocol > > > > > > Once more if anyone has any constructive > > > criticism/suggestions, please email me on list > > or > > > off list (blake@...). > > > > > > Regards, > > > > > > Blake Graham, B.Sc (Honours) > > > Clinical Nutritionist > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Gail And Adrienne, Though I'm leery-especially after haring from u Gail- once I am in L.A. and have more free cash on hand-I may just go ahead and give NAET a try. First, I'm going to work on my viral probs. (high active HHV-6/CMV) and see if I can handle taking lipoceutical glutathione without a reaction. If I can handle the lip. glutathione, it could be, that over time, it may help with my allergies. Thanks, Gena --- Gail Ilse-Mayberry <gmilsem@...> wrote: > I have used the NAET treatment and it works. > Gail > > Adrienne G. wrote: > > > > Gena, in your case it might be worth trying a > process called NAET. It > > is an allergy elimination technique that does help > some folks. I > > recall that you can google it even though it as an > acronym. > > Adrienne > > Re: My CFS treatment > protocol. > > > > Hi Blake, > > > > Just wanted to say that your protocol looks good > and > > helpful. Thanks for tying to share it with > everyone. > > > > I wish I could offer suggestions but am one of > those > > very difficult cfs/fibro folks who is allergic to > > practically everything-or have a hypersensitivity > > reaction-or sudden horrid increase in severe > symptoms > > by taking most of what is on your list. > > > > Do you offer any advice for those of us who are > > allergic or hypersensitive to most of the things > > you've listed? > > > > I'm down to trying three last things-(lip. > > glutathione- anti-virals and olive leaf) > > > > I can't take seventeen years of only getting worse > on > > protocols (mostly antibiotics- and am now allergic > to > > most antibiotics and ended up in hospital once > when I > > stopped breathing on one-took six months to get > over > > another allergic reaction to another) > > > > and trying several things and only having poor > > reactions-attacks of extreme joint > pain-endometriosis > > and worsening muscle pain-deadening fatigue with > > others > > (low dose naltrexone-magnesiu m-vitamin > c-denatured > > whey product Immunepro-Carlson' s fish oil-flax > seed > > oil-biodentical compounded t3(actually felt a lot > > better for the first time in 17 yrs. on this but > then > > ended up having bad rash on face-hives and pimple > > outbreaks/allergic) > > -iron, (if I take anymore than 1 capsule induces > > extreme debilitating fatigue and extreme muscle > > pain)-dhea(induces per. > > neuropathy/vulvoden ia)-guaifenesin (induced bad > > vulvodenia) > > -any anti-depressant other than trazodone (make me > too > > hyper activated and increase insomnia)-xyrem > (induces > > bad depression-actually shortens my sleep-gives > > hangover-more fatigue)-benzos like > > xanax/Klonopin( induces depression-gives > > hangover-worsens fatigue)- > > > > nystatin (allergic)-strict anti-candida diets (did > > absolutely nothing for me)-morphine (allergic)- D3 > > (induces endometriosis attacks) and more meds and > > supplements that I can't recall at this time. > > > > Do u think this all could have to do with the > liver > > even though my liver tests are fine? > > > > Do u think there is a glutathione connection? > > > > But if I am allergic or overly sensitive to > denatured > > whey products-how can I increase glutathione? > > > > I'm going to try lipoceutical glutathione but have > to > > admit that I won't be surprised if I have a > reaction > > to it like other things. > > > > Is there some sort of natural way to raise > glutathione > > like light exercise-deeper sleep-sitting in a > > sauna-getting more sunlight? Some sort of food > instead > > of supplements? > > > > Thank You, > > Gena > > > > --- Blake Graham <blankettpg (DOT) com.au > <mailto:blanket%40tpg.com.au>> > > wrote: > > > > > Dear list, > > > > > > As I have mentioned on this list previously, I > have > > > been working on refining a protocol document for > > > CFS. Over the past month I have made a number of > > > modifications to this document. The current > version > > > is available at: > > > > > > > > http://www.nutritio nal-healing. com.au/content/ > articles- > > content.php? heading=CFS% 20treatment% 20protocol > > > <http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%\ 20treatment%20protocol> > > > > > > Once more if anyone has any constructive > > > criticism/suggestio ns, please email me on list > or > > > off list (blake@nutritional- healing.com. au > > <mailto:blake%40nutritional-healing.com.au>). > > > > > > Regards, > > > > > > Blake Graham, B.Sc (Honours) > > > Clinical Nutritionist > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > ____________ _________ _________ _________ > _________ __ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Hi Adrienne, If u look at my other message by me today-you and someone else gave me a fresh point of view on the NAET. Currently I don't have any extra cash-working through a specialist with insurance. But, am now willing to give it ago-just not right away-want to wait to try a few other things first - I'm sorry if my message came off as rude-nor, did I make any reference to your doctor specifically or his character. From what u write-I'm sure he is an ethical guy. Once, again, sorry, didn't mean to step on any toes. It was just an assumption about the New Age thing. Gena --- " Adrienne G. " <duckblossm@...> wrote: > It is pretty odd, , but you have little to lose > by trying it-besides some money of course. My doc is > extremely ethical and conscientious. He invested a > great deal of time in investigation and then paying > for training for the process. I can't say much about > it working on me-have not been especially allergic. > But one of my doc's main credentials is all the > years he treated me FOR FREE on a weekly basis. I > mean, he is not a scammer, and many of the other > things he has done for me have helped a lot. > Adrienne > Re: My CFS > treatment > > protocol. > > > > > > Hi Blake, > > > > Just wanted to say that your protocol looks > good > > and > > helpful. Thanks for tying to share it with > > everyone. > > > > I wish I could offer suggestions but am one of > > those > > very difficult cfs/fibro folks who is allergic > to > > practically everything-or have a > hypersensitivity > > reaction-or sudden horrid increase in severe > > symptoms > > by taking most of what is on your list. > > > > Do you offer any advice for those of us who > are > > allergic or hypersensitive to most of the > things > > you've listed? > > > > I'm down to trying three last things-(lip. > > glutathione-anti-virals and olive leaf) > > > > I can't take seventeen years of only getting > worse > > on > > protocols (mostly antibiotics- and am now > allergic > > to > > most antibiotics and ended up in hospital once > > when I > > stopped breathing on one-took six months to > get > > over > > another allergic reaction to another) > > > > and trying several things and only having > poor > > reactions-attacks of extreme joint > > pain-endometriosis > > and worsening muscle pain-deadening fatigue > with > > others > > (low dose naltrexone-magnesium-vitamin > c-denatured > > whey product Immunepro-Carlson's fish oil-flax > > seed > > oil-biodentical compounded t3(actually felt a > lot > > better for the first time in 17 yrs. on this > but > > then > > ended up having bad rash on face-hives and > pimple > > outbreaks/allergic) > > -iron, (if I take anymore than 1 capsule > induces > > extreme debilitating fatigue and extreme > muscle > > pain)-dhea(induces per. > > neuropathy/vulvodenia)-guaifenesin (induced > bad > > vulvodenia) > > -any anti-depressant other than trazodone > (make me > > too > > hyper activated and increase insomnia)-xyrem > > (induces > > bad depression-actually shortens my > sleep-gives > > hangover-more fatigue)-benzos like > > xanax/Klonopin(induces depression-gives > > hangover-worsens fatigue)- > > > > nystatin (allergic)-strict anti-candida diets > (did > > absolutely nothing for me)-morphine > (allergic)- D3 > > (induces endometriosis attacks) and more meds > and > > supplements that I can't recall at this time. > > > > Do u think this all could have to do with the > > liver > > even though my liver tests are fine? > > > > Do u think there is a glutathione connection? > > > > But if I am allergic or overly sensitive to > > denatured > > whey products-how can I increase glutathione? > > > > I'm going to try lipoceutical glutathione but > have > > to > > admit that I won't be surprised if I have a > > reaction > > to it like other things. > > > > Is there some sort of natural way to raise > > glutathione > > like light exercise-deeper sleep-sitting in a > > sauna-getting more sunlight? Some sort of food > > instead > > of supplements? > > > > Thank You, > > Gena > > > > --- Blake Graham <blanket@...> wrote: > > > > > Dear list, > > > > > > As I have mentioned on this list previously, > I > > have > > > been working on refining a protocol document > for > > > CFS. Over the past month I have made a > number of > > > modifications to this document. The current > > version > > > is available at: > > > > > > > > > > > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > > > > > Once more if anyone has any constructive > > > criticism/suggestions, please email me on > list > > or > > > off list (blake@...). > > > > > > Regards, > > > > > > Blake Graham, B.Sc (Honours) > > > Clinical Nutritionist > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Hi Jill, I personally have not used colonics, liver flushes, etc. with my clients. The reason being I have had a hard time finding reliable data showing they are beneficial. I personally don't believe in the 'mucoid plaque' hypothesis that many involved in alternative medicine promote. I have read as much as possible about TD-DMPS as I could find. Most of the info is biased in that it is from it's creator, Dr. Buttar. I have concluded that for myself there is not enough data to promote it. I am not familiar with the effectiveness of TD-DMSA, although have seen good evidence that oral and suppository form of DMSA is effective. Regards, Blake Re: My CFS treatment protocol. Blake, in cleansing the gut do you recommend colonics, liver flushes, intestinal cleanses, or the like? I don't see that on your list but from what I've read these can be important. I'm going to do them myself. Also, you don't mention transdermal DMPS and transdermal DMSA but they seem to be used by DAN! folks. Thanx! > > Dear list, > > As I have mentioned on this list previously, I have been working on refining a protocol document for CFS. Over the past month I have made a number of modifications to this document. The current version is available at: > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > Once more if anyone has any constructive criticism/suggestions, please email me on list or off list (blake@...). > > Regards, > > Blake Graham, B.Sc (Honours) > Clinical Nutritionist > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Hi Gena, I would suggest investigating the following areas: Gut flora abnormalities are a major cause of hypersensitivity reactions. In Australia we have a great lab called Bioscreen which does a more detailed stool bacterial analysis than any other lab I have come across. Assuming you are in the U.S. I would suggest measuring gut flora via Doctors Data. Many people have taken probiotics for years and are still out of balance. I would also do a few diagnostic trials of anti-yeast treatments plus a yeast free diet. Yeast is another common cause of hypersensitivity reactions. You could try Saccharomyces boulardii (3/day) for three weeks then diflucan for three weeks. Nystatin helps soime yeast infections and soes noting for others. I suggest trying at least two different treataments. I leant this from Dr. Sidney Baker, co-founder of DAN!. I have written up his version of a yeast free diet which is different from the standard yeast free diet. http://www.nutritional-healing.com.au/content/Yeast%20free%20diet.pdf I would also wonder about parasitic infections. Diagnoc-Techs in Kent, Washington does the most advanced parasite testing I have come across. See: http://www.diagnostechs.com/body_text/tests/gi/gi_doctor.htm I would also wonder about stomach acid deficiency (hypochlorhydria). Signs this may be present are reflux/heartburn, very full feeling in stomach after eating, poor digestion, and being over 60. I would also suspect you are sensitivite to gluten and casein. Would suggest a 30 day trial elimination og these foods. Then a more extensive elimination diet to determine other foods sensitivities. Another test I would suggest is a functional liver detoxification profile. 'Liver function tests' which your doctor orders are not really markers for liver function, but for liver damage. A functional liver detoxification profile gives you a fairly good indication of how your liver is detoxifying. GLutathione of course relates to liver functions, so there is a link here. Have you tried glutathione IV? This is the best tolerated form by many hypersensitive people. Of course there are some people that reacat to this as well. Turmeric and garlic are said to have an effect raising glutathione. Regards, blake Re: My CFS treatment protocol. Hi Blake, Just wanted to say that your protocol looks good and helpful. Thanks for tying to share it with everyone. I wish I could offer suggestions but am one of those very difficult cfs/fibro folks who is allergic to practically everything-or have a hypersensitivity reaction-or sudden horrid increase in severe symptoms by taking most of what is on your list. Do you offer any advice for those of us who are allergic or hypersensitive to most of the things you've listed? I'm down to trying three last things-(lip. glutathione-anti-virals and olive leaf) I can't take seventeen years of only getting worse on protocols (mostly antibiotics- and am now allergic to most antibiotics and ended up in hospital once when I stopped breathing on one-took six months to get over another allergic reaction to another) and trying several things and only having poor reactions-attacks of extreme joint pain-endometriosis and worsening muscle pain-deadening fatigue with others (low dose naltrexone-magnesium-vitamin c-denatured whey product Immunepro-Carlson's fish oil-flax seed oil-biodentical compounded t3(actually felt a lot better for the first time in 17 yrs. on this but then ended up having bad rash on face-hives and pimple outbreaks/allergic) -iron, (if I take anymore than 1 capsule induces extreme debilitating fatigue and extreme muscle pain)-dhea(induces per. neuropathy/vulvodenia)-guaifenesin (induced bad vulvodenia) -any anti-depressant other than trazodone (make me too hyper activated and increase insomnia)-xyrem (induces bad depression-actually shortens my sleep-gives hangover-more fatigue)-benzos like xanax/Klonopin(induces depression-gives hangover-worsens fatigue)- nystatin (allergic)-strict anti-candida diets (did absolutely nothing for me)-morphine (allergic)- D3 (induces endometriosis attacks) and more meds and supplements that I can't recall at this time. Do u think this all could have to do with the liver even though my liver tests are fine? Do u think there is a glutathione connection? But if I am allergic or overly sensitive to denatured whey products-how can I increase glutathione? I'm going to try lipoceutical glutathione but have to admit that I won't be surprised if I have a reaction to it like other things. Is there some sort of natural way to raise glutathione like light exercise-deeper sleep-sitting in a sauna-getting more sunlight? Some sort of food instead of supplements? Thank You, Gena --- Blake Graham <blanket@...> wrote: > Dear list, > > As I have mentioned on this list previously, I have > been working on refining a protocol document for > CFS. Over the past month I have made a number of > modifications to this document. The current version > is available at: > > http://www.nutritional-healing.com.au/content/articles-content.php?heading=CFS%2\ 0treatment%20protocol > > Once more if anyone has any constructive > criticism/suggestions, please email me on list or > off list (blake@...). > > Regards, > > Blake Graham, B.Sc (Honours) > Clinical Nutritionist > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Hi , There is no one sized fit's all approach to probiotics. The best probiotics for an individual are the ones which are low on stool tests, plus others which may have therapeutic value. Too much acidophilus and bifidobacterium is harmful. Acidophilus is much more commonly deficient than bifido in those with CFS, and often not present at all. Blake Re: My CFS treatment protocol. Hi Blake, Which probiotic would you recommend? Ta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Really? What happens if you take too much? Thanks, Trina Blake Graham <blanket@...> wrote: Too much acidophilus and bifidobacterium is harmful. Blake New Message Search Find the message you want faster. Visit your group to try out the improved message search. Share feedback on the new changes to Groups Recent Activity 14 New Members Visit Your Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Hi Trina, It can feed the bad bacteria and cause Dysbiosis. It certainly did that too me and raised my D-Lactate levels too high. I was misled by several docs thinking that could not happen . . but it did to me. Best wishes, Sue T Katrina Tangen <tvpro36@...> wrote: Really? What happens if you take too much? Thanks, Trina Blake Graham <blanket@...> wrote: Too much acidophilus and bifidobacterium is harmful. Blake New Message Search Find the message you want faster. Visit your group to try out the improved message search. Share feedback on the new changes to Groups Recent Activity 15 New Members Visit Your Group . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Harry at customprobiotics makes a d-lactate free formula for autistic kids. Perhaps there is some connection here with poor methylation, who knows. But very very high potency formulas (such as VSL#3), or Harry's, have proven very beneficial. I question the statement that too much can be bad or feed the bad bacteria. More to the point is that various " good " bacteria modulate the immune system in different ways. A good book to read is Bacteria for Breakfast by Karpa. It has all the research and in readable chapters. IL10, IL2 and various other cytokines are modulated by the good bacteria--mostly to our benefit, that's why we call them good bacteria as we are symbiotic with them. They also manufacture compounds that actually kill the bad bacteria. > Too much acidophilus and bifidobacterium is harmful. > Blake > > > > > New Message Search > Find the message you want faster. Visit your group to try out the improved message search. > > > > > Share feedback on the new changes to Groups > > > Recent Activity > > 15 > New Members > > Visit Your Group > > . > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Edy Rayfield wrote: > > I had a colonoscopy all the way up to the duidenal. So basically all > my small and large intestine were looked at. I got to watch on a > screen as I didn't take the drug to relax me. I have to say after a > day of just liquids and a mild laxitive the inside of my intestines > looked as pink and beautiful as the day I was born. It was interesting > and rewarding, so I think I have to agree wih Blake that there isn't a > lot of residual stuff waiting around in there. But I'm only one > person. Edy > > Make that two persons. I had a sigmoidoscopy and I too watched on the TV monitor as the camera worked it's way through my intestine and was utterly surprised and how pink and clean the insides of my intestine looked. Will in Seattle a.k.a. " Sleepless " Quote Link to comment Share on other sites More sharing options...
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