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Kinda OT - Pulmonary Fibrosis (?)

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My grandmother has just been diagnosed with this after years of living

with a smoker and stripping and refinishing furniture. Does anyone know

anything about it? The doctors haven't given her a time frame yet, but

what she's read is about 2-4 years. There are still more tests that

they want to do, they may not know what stage she's in yet. I saw her

today, she looks good, but is having a hard time breathing. She's been

having a hard time breathing for years, but today was worse than I've

ever seen her. They've got her on megadoses of Prednisone, I hope that

doesn't kill her before the disease dose. :-/ From what I've read it

may be another auto-immune disease, but the doctors don't know for sure.

Ohio

My auctions at eBay - http://tinyurl.com/53lys

)0(~~~)0(~~~)0(

Mom to Brittany, born 8/31/93, dx'd-IDDM 5/28/01; , born 6/28/97;

and Shayna, born 6/1/00.

Vaccine free since 1999! See our site and get more vaccine info at

http://www.loonatics-fringe.com

For Ohio specific Vaccine Info - http://groups.msn.com/OhioVaxInfo/

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can't respond to that but my dad has been diagnosed with eczema (has it all

over and is VERY itchy) - He was (is?) on prednisone too. Isn't eczema

autoimmune too? He already has type 2 diabetes and various other medical

problems. Any miracle cures for eczema besides a homeopath? They will not

see one (is there even one located in KY?). They are very, very entrenched

in the traditional medical establishment.

Kinda OT - Pulmonary Fibrosis (?)

>

> My grandmother has just been diagnosed with this after years of living

> with a smoker and stripping and refinishing furniture. Does anyone know

> anything about it? The doctors haven't given her a time frame yet, but

> what she's read is about 2-4 years. There are still more tests that

> they want to do, they may not know what stage she's in yet. I saw her

> today, she looks good, but is having a hard time breathing. She's been

> having a hard time breathing for years, but today was worse than I've

> ever seen her. They've got her on megadoses of Prednisone, I hope that

> doesn't kill her before the disease dose. :-/ From what I've read it

> may be another auto-immune disease, but the doctors don't know for sure.

>

>

> Ohio

> My auctions at eBay - http://tinyurl.com/53lys

> )0(~~~)0(~~~)0(

> Mom to Brittany, born 8/31/93, dx'd-IDDM 5/28/01; , born 6/28/97;

> and Shayna, born 6/1/00.

> Vaccine free since 1999! See our site and get more vaccine info at

> http://www.loonatics-fringe.com

> For Ohio specific Vaccine Info - http://groups.msn.com/OhioVaxInfo/

>

>

>

>

>

>

>

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At 10:33 PM 11/14/2004 -0500, you wrote:

>

>My grandmother has just been diagnosed with this after years of living

>with a smoker and stripping and refinishing furniture. Does anyone know

>anything about it? The doctors haven't given her a time frame yet, but

>what she's read is about 2-4 years. There are still more tests that

>they want to do, they may not know what stage she's in yet. I saw her

>today, she looks good, but is having a hard time breathing. She's been

>having a hard time breathing for years, but today was worse than I've

>ever seen her. They've got her on megadoses of Prednisone, I hope that

>doesn't kill her before the disease dose. :-/ From what I've read it

>may be another auto-immune disease, but the doctors don't know for sure.

>

>

>Ohio

I'm sorry to hear about your grandmom, .

Basically Pulmonary Fibrosis is from scarring of the lungs. Its kind of

like a stiffening, toughening of the lung tissue and therefore it doesn't

do its job properly (bringing oxygen to the blood). It comes from living

with a smoker and possibly the toxic environment you have described, in

many cases.

But it can be misdiagnosed. Usually supplemental oxygen is the treatmetn.

Prednisone can only bring death in the long run...........one of my

parents neighbors was basically killed by higher and higher doses.

I would get 2nd and 3rd opinions.

It doesn't sound like her symptoms are too serious. Have they tried JUST

oxygen?

Its hard to say without knowing her. Of course, you know what I would say

- see a homeopath

Sheri

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<<I'm sorry to hear about your grandmom, .

Basically Pulmonary Fibrosis is from scarring of the lungs. Its kind of

like a stiffening, toughening of the lung tissue and therefore it

doesn't do its job properly (bringing oxygen to the blood). It comes

from living with a smoker and possibly the toxic environment you have

described, in many cases.>>

That's what my mom told me yesterday.

<<But it can be misdiagnosed. Usually supplemental oxygen is the

treatmetn. Prednisone can only bring death in the long

run...........one of my parents neighbors was basically killed by higher

and higher doses.>>

They've got her on a pretty high dose right now, and she's supposed to

lower it after 30 days and again after 60 days to see what is the least

amount she can handle.

<<I would get 2nd and 3rd opinions.>>

I think she's had at least a 2nd opinion, but I'm not positive about

that.

<<It doesn't sound like her symptoms are too serious. Have they tried

JUST oxygen?>>

Not that I know of. I will ask my mom.

<<Its hard to say without knowing her. Of course, you know what I would

say

- see a homeopath>>

Naturally that was the first thing I asked my mom, but it was hell just

trying to get her to see an open-minded dr. My grandmother is of the

generation where they don't question anything that a doctor/other

authority figure says. :-( I have a feeling that part of a problem is

the combination of all the pharmaceutical meds she is on. :-( I'm sure

they alone would kill her without having lived with a smoker (at least

my grandfather did finally quit after his 4th heart attack) and having

used all those other chemicals.

Ohio

My auctions at eBay - http://tinyurl.com/53lys

)0(~~~)0(~~~)0(

Mom to Brittany, born 8/31/93, dx'd-IDDM 5/28/01; , born 6/28/97;

and Shayna, born 6/1/00.

Vaccine free since 1999! See our site and get more vaccine info at

http://www.loonatics-fringe.com

For Ohio specific Vaccine Info - http://groups.msn.com/OhioVaxInfo/

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