Guest guest Posted May 29, 2006 Report Posted May 29, 2006 Posted by on Eurolyme. Wallace I just completed my summary of the 2006 ACAM Conference " Infection & Chronic Illness: Integrative Approaches to Lyme Disease, Stealth Infections and Inflammaton " . You can find it on my site here: http://www.betterhealthguy.com/index.php? option=com_content & task=view & id=61 & Itemid=79 The conference was a wealth of information and I hope you find it of value as well. If you have any questions or comments, please email me directly or contact me through my site. Be well, @... www.BetterHealthGuy.com Quote
Guest guest Posted May 29, 2006 Report Posted May 29, 2006 Thanks for sharing this. Excellent summation of the widely varying opinions on how to best treat lyme (and some other infections, i.e. Nicholson and Shoemaker). I particularly liked Burrascano's thoroughness, and found one answer particularly funny. Apparently, when he was asked about " complementary " treatments, he said, " patients are sick because they're infected, not because they need more oxygen. " I'm also happy to see Dr. Shoemaker continuing his research on staph, and VERY HAPPY to see he is now including multiple antibiotic resistant coagulase negative staph in addition to staph aureus as a factor in our illness. I've personally tested negative for every one of the organisms people most often point to, i.e. lyme, mycoplasma, c.pneumonia. But I consistently test positive for antibiotic resistant staphs (as well as strep, pseudomonas and p.acnes). I'm actually feeling a bit encouraged today. First we've got a nobel prize winner saying that 30% of ALL disease is probably bacteria based, and we've got Shoemaker plugging along on staph, number one organism in the world, causing illness. penny > > Posted by on Eurolyme. > > Wallace > > I just completed my summary of the 2006 ACAM Conference " Infection & > Chronic Illness: Integrative Approaches to Lyme Disease, Stealth > Infections and Inflammaton " . You can find it on my site here: > > http://www.betterhealthguy.com/index.php? > option=com_content & task=view & id=61 & Itemid=79 > > The conference was a wealth of information and I hope you find it of > value as well. > > If you have any questions or comments, please email me directly or > contact me through my site. > > Be well, > > @ > www.BetterHealthGuy.com > Quote
Guest guest Posted May 30, 2006 Report Posted May 30, 2006 Hi , Yes, I tried cholestyramine. I tend to be of the same mindset that one of the doctors at the conference was, when he said that there are less difficult methods for detox, such as charcoal and good quality chlorella. I do fine with most abx, but just cannot tolerate Minocycline, period. As far as I'm personally concerned, it's a very bad drug. It rally helped my daughter, though. Based on what you're saying, I think you should ask to be tested for ICH or ICP (Intracranial Hypertension, Intracranial Pressure, aka Pseudotumor Cerebri). There are some pretty simple tests as well as a spinal fluid test to find out if your pressure is elevated. This could be the cause of your headaches, and I think may be a more common factor in the " encephalitis " part of our illness (ME) than we know. There are a lot of forums on ICH/ICP/PTC. I'd start digging through there. You may be very surprised. Living with daily headaches is a bad thing and you shouldn't be forced to do it. Remember Clooney? He had to suffer with daily headaches for a couple of years before they finally dx'd ICH due to a fall he took on a movie. You don't necessarily have had to experience a trauma to have an increase in intracranial pressure. I think the reason I respond well to the ARB (angiotensin receptor blocker) Benicar, and why my frequent migraines have become infrequent, is that the ARB reduces the pressure on my brain somehow. (Moscowitz also suggests that agiontensin inhibitors reduce pressure in viral illnesses like SARS, where encephalitis causes death). And Mark London shared with us yesterday a study that showed a link between ARBs and migraine relief, although the reason is not understood. So if I were you, I'd be getting some tests for ICH/ICP before even considering detoxing from minocycline. Also, if you have a predisposition to ICH as possibly indicated by your constant headaches, I think you'd be better of with a different tetracycline, such as doxycycline, since minocycline is proven to induce pseudotumor cerbri in some patients. penny > > > > > > Posted by on Eurolyme. > > > > > > Wallace > > > > > > I just completed my summary of the 2006 ACAM > Conference " Infection > > & > > > Chronic Illness: Integrative Approaches to Lyme Disease, Stealth > > > Infections and Inflammaton " . You can find it on my site here: > > > > > > http://www.betterhealthguy.com/index.php? > > > option=com_content & task=view & id=61 & Itemid=79 > > > > > > The conference was a wealth of information and I hope you find it > > of > > > value as well. > > > > > > If you have any questions or comments, please email me directly or > > > contact me through my site. > > > > > > Be well, > > > > > > @ > > > www.BetterHealthGuy.com > > > > > > Quote
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