Re: brain problem

[Guest guest]

Hi, Nil.

When you use the cell phone, do you hold it against your left ear?

Rich

>

> Hi all,

>

> I have a problem that I need to take your opinion of. About 3

years ago I started having a problem at my brain.My whole brain,left

side being more,felt as if it was swollen.My left side head felt as

if it would explode.I was not able to make any reasoning and

thinking and decision making. Its severity decreased after a great

struggle,various therapies,resting,etc. 2 days ago it came back. I

again can not make any reasoning,I am forgetful.I just lay down

looking with `empty eyes`. My head feel very swollen again.Can not

feel much.Very little emotions other than the frustration

experienced due to the situation.It feels as if my brain shut itself

down.Can not understand what I read,can not talk and write. I start

feeling strange smell. It is not so strong but it is different.

>

> Similarities between 3 years ago and today are.

>

> I had to make lots of thinking and decision making prior to start

of this problem at both times.

> Both were stressful periods.

> Both required excess cell phone usage.

> Could not perform my regular resting for some time prior to the

start of this problem.

>

> I remember some of the members mentioning that they feel like

autistics.I am wondering if what is happening to me could be the

same thing?

>

> No significant changes at supplements lately,so this can not be

due to supplement changes. No change in adrenal status.

>

> I am wondering what could have caused this?Anyone having similar

problem? Any thoughts?

> Sorry if my writing is not so clear.I could not think anything

whole day and rested.It is only after a long rest that I am able to

write this much.

>

> best wishes.

> Nil

>

>

[Guest guest]

hi Rich,

Yes,always. I also hold normal phones on the left side.I don't know why.

While I was working I used to hold the phone on the left side and take

notes with my right hand.So,it could be a habit. I am not aware if other

people do it this way or if they also use the right side. It could also be

that it was my personal preference for some reason.

Thanks.

Nil

Re: brain problem

> Hi, Nil.

>

> When you use the cell phone, do you hold it against your left ear?

>

> Rich

>

>

[Guest guest]

Hi, Nil.

Well, I don't completely understand what's going on, but I suspect

that your brain has swollen and has therefore raised the pressure of

your cerebrospinal fluid. If the brain swells, it will raise this

pressure, because the brain is in a closed cavity, floating in this

fluid. When the pressure rises, it collapses the arteries feeding

the brain to some degree, and that decreases the blood flow to the

brain. The result is that the brain is not able to function as well

as normal.

Why would your brain swell? Any inflammation of the brain will

produce swelling. You may recall the woman named Roxanne from New

Zealand who was on the list several years ago. In her case, I think

her brain swelled because of a viral infection in her brain (viral

encephalitis). In your case, the fact that it seems to be worse on

the left side, that that is the side where you use your cell phone,

and that this problem followed a period of heavy cell phone use

suggests that the brain swelling may have resulted from exposure to

electromagnetic radiation from your cell phone. There is research

in the literature suggesting that some people report symptoms after

cell phone use, and that they seem to increase with longer calling

time per day. See the abstract below:

Bioelectromagnetics. 2003 Apr;24(3):152-9. Related Articles, Links

Subjective symptoms among mobile phone users--a consequence of

absorption of radiofrequency fields?

Wilen J, Sandstrom M, Hansson Mild K.

National Institute for Working Life, Umea, Sweden. jonna@...

In a previous epidemiological study, where we studied the prevalence

of subjective symptoms among mobile phone (MP) users, we found as an

interesting side finding that the prevalence of many of the

subjective symptoms increased with increasing calling time and

number of calls per day. In this extrapolative study, we have

selected 2402 people from the epidemiological study who used any of

the four most common GSM MP. We used the information about the

prevalence of symptoms, calling time per day, and number of calls

per day and combined it with measurements of the Specific Absorption

Rate (SAR). We defined three volumes in the head and measured the

maximum SAR averaged over a cube of 1 g tissue (SAR(1g)) in each

volume. Two new exposure parameters Specific Absorption per Day

(SAD) and Specific Absorption per Call (SAC) have been devised and

are obtained as combinations of SAR, calling time per day, and

number of calls per day, respectively. The results indicates that

SAR values >0.5 W/kg may be an important factor for the prevalence

of some of the symptoms, especially in combination with long calling

times per day. Copyright 2003 Wiley-Liss, Inc.

PMID: 12669297 [PubMed - indexed for MEDLINE]

I don't know if this is actually what happened in your case, but I

would suggest minimizing your use of the cell phone for a while, to

see if your brain will recover.

Rich

>

> hi Rich,

> Yes,always. I also hold normal phones on the left side.I don't

know why.

> While I was working I used to hold the phone on the left side and

take

> notes with my right hand.So,it could be a habit. I am not aware if

other

> people do it this way or if they also use the right side. It could

also be

> that it was my personal preference for some reason.

> Thanks.

> Nil

> Re: brain problem

>

>

> > Hi, Nil.

> >

> > When you use the cell phone, do you hold it against your left

ear?

> >

> > Rich

> >

> >

>

[Guest guest]

Hi, Rich and Nil,

I have the same exact problem. I recently had a Brain SPECT scan and it

was discovered that I have an area of vasculitis on my left temporal

lobe and encephalitis. This goes along with my diagnosis of Chronic

Lyme Disease. The Lyme seems to have attacked my CNS and I have pretty

much the same symptoms you do. There are days that I just feel lost. I

can no longer drive for fear of running off the road. Sometimes I speak

and the wrong words come out. I also see things that are not there in

my periphial vision.

However, my doctor informed me as I get better with my long-term

antibiotic treatment, the brain will go back to normal. I just pray

that it works.

Hope this helps,

Kelley

> >

> > hi Rich,

> > Yes,always. I also hold normal phones on the left side.I don't

> know why.

> > While I was working I used to hold the phone on the left side and

> take

> > notes with my right hand.So,it could be a habit. I am not aware if

> other

> > people do it this way or if they also use the right side. It could

> also be

> > that it was my personal preference for some reason.

> > Thanks.

> > Nil

> > Re: brain problem

> >

> >

> > > Hi, Nil.

> > >

> > > When you use the cell phone, do you hold it against your left

> ear?

> > >

> > > Rich

> > >

> > >

> >

>

[Guest guest]

Hi Nil

I have been ill for 11 years and have what seems like the same problem with

the left side of my head. I assumed this to be what cfs/fibro is although

some people seem to have it worse than others. It feels as if all the nerves

on the left side of my head are swollen and alight. I also have tinnitus and

what i think is trigeminal nerve pain on the same side although some people

say they have tmj I think it is worse than that. It makes thinking ect very

difficult. It really is a case of thinking makes my brain hurt. When it is

really bad i loose words and cannot put sentences together. It is now like

it most of the time although I sometimes get better hours/days. If I could

cure this then I would not have to live most of my life shut in a room on my

own as stimultion makes it worse.

Wish I could give you some answers but sadly not.

n

>From: " yildiz " <yildiz22@...>

>Reply-

>< >

>Subject: brain problem

>Date: Sun, 16 Apr 2006 23:52:56 +0300

>

>Hi all,

>

>I have a problem that I need to take your opinion of. About 3 years ago I

>started having a problem at my brain.My whole brain,left side being

>more,felt as if it was swollen.My left side head felt as if it would

>explode.I was not able to make any reasoning and thinking and decision

>making. Its severity decreased after a great struggle,various

>therapies,resting,etc. 2 days ago it came back. I again can not make any

>reasoning,I am forgetful.I just lay down looking with `empty eyes`. My head

>feel very swollen again.Can not feel much.Very little emotions other than

>the frustration experienced due to the situation.It feels as if my brain

>shut itself down.Can not understand what I read,can not talk and write. I

>start feeling strange smell. It is not so strong but it is different.

>

>Similarities between 3 years ago and today are.

>

>I had to make lots of thinking and decision making prior to start of this

>problem at both times.

>Both were stressful periods.

>Both required excess cell phone usage.

>Could not perform my regular resting for some time prior to the start of

>this problem.

>

>I remember some of the members mentioning that they feel like autistics.I

>am wondering if what is happening to me could be the same thing?

>

>No significant changes at supplements lately,so this can not be due to

>supplement changes. No change in adrenal status.

>

>I am wondering what could have caused this?Anyone having similar problem?

>Any thoughts?

>Sorry if my writing is not so clear.I could not think anything whole day

>and rested.It is only after a long rest that I am able to write this much.

>

>best wishes.

>Nil

>

>

[Guest guest]

Hi. I'd strongly encourage anyone who has been diagnosed with CFS

and/or Lyme Disease to consider the possibility of actually having

celiac disease. Celiac disease is known as the " great mimic " because

of the way it masquerades as many different illnesses. A good place

to start in trying to understand it is the work of Dr. Green of

Columbia University's Celiac Disease Center. I have not read his

book " Celiac Disease : A Hidden Epidemic " , but I imagine it's very

good based on a few interviews with him that I've heard which I've

linked to below.

Here's one on the Leonard Leopate show out of NY:

http://www.wnyc.org/stream/ram?file=/lopate/lopate032505c.ra (requires

Realplayer)

Here's one on NPR:

http://www.npr.org/templates/story/story.php?storyId=4244181

A brief story:

Some time ago I was undergoing DMPS chelation when I met a man

undergoing EDTA chelation that had been diagnosed as having Lyme

Disease by a doctor that I had seen in the past. That same doctor

diagnosed me as having CFS. We started talking about our health

histories and I shared with him what I knew about celiac disease.

Around the same time I was informing my new doctor as to what I knew

about celiac disease. Well, to make a long story short the doctor

decided to run a celiac panel after this guy had a major flare-up of

what he believed to be Lyme Disease (swollen feet, pain, etc). Well,

the panel came back positive and the doctor inquired as to what it

might have been that caused the flare-up. What he discovered was that

this patient had a friend who owned an Italian restaurant and had

given him a huge amount of pasta which he apparently consumed with a

vengeance. The celiac panel came back positive with Antigliadin IgA

levels far above the norm. I spoke to him about the celiac diet and

he subsequently stopped eating all gluten. A few weeks later he

returned for his EDTA treatment and was like a different person. And

this guy was in bad shape. His previous doctor (the one who diagnosed

him with Lyme Disease) had actually put a port in his chest so that he

could receive some very strong antibiotics. Interesting...

Another personal page of interest (Is it FMS, CFS, or Celiac Disease?):

http://www.geocities.com/HotSprings/Spa/4003/

Based on what I know of celiac disease, I think it's quite possible

that many of the people on this list have celiac or like myself have

some degree of gluten sensitivity. Whether or not this gluten

sensitivity is part of that same clinical picture perhaps not

accurately measured using current diagnostic tools or some variation

of the condition remains to be seen. No matter how it turns out, I'm

convinced that celiac is a condition that everyone should be tested

for - particularly people with as of yet unexplained conditions like

CFS/FMS/lyme disease,etc.

Before undertaking any research, a key point to remember is that

celiac disease can manifest itself in many ways - from unexplained

cases of osteoporosis/osteopenia, massive weight loss due to

malabsorption, anemia, irritable bowel symptoms, gall bladder

problems, and most relevant to this thread, neurological issues. Most

doctors who are aware of celiac - and unfortunately many are not - are

only aware of the obvious cases that present with horrible GI symptoms

and weight loss. I urge anyone who might think they have things

neurological going on to view the abstracts available on PubMed. A

search for " gluten neuropathy " (minus the quotes) is a good way to get

started:

PubMed

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

MarkM

> > >

> > > hi Rich,

> > > Yes,always. I also hold normal phones on the left side.I don't

> > know why.

> > > While I was working I used to hold the phone on the left side and

> > take

> > > notes with my right hand.So,it could be a habit. I am not aware if

> > other

> > > people do it this way or if they also use the right side. It could

> > also be

> > > that it was my personal preference for some reason.

> > > Thanks.

> > > Nil

> > > Re: brain problem

> > >

> > >

> > > > Hi, Nil.

> > > >

> > > > When you use the cell phone, do you hold it against your left

> > ear?

> > > >

> > > > Rich

> > > >

> > > >

> > >

> >

>

[Guest guest]

Yes,n

When this happens i also have to be in dark and quiet room for days. Last

time it took me months to have some of my brain back.Life is difficult for

us.

Do you also have tightness on left side of body? I do, especially on left

chest and shoulder.

Nil

RE: brain problem

> Hi Nil

>

> I have been ill for 11 years and have what seems like the same problem

> with

> the left side of my head. I assumed this to be what cfs/fibro is although

> some people seem to have it worse than others. It feels as if all the

> nerves

> on the left side of my head are swollen and alight. I also have tinnitus

> and

> what i think is trigeminal nerve pain on the same side although some

> people

> say they have tmj I think it is worse than that. It makes thinking ect

> very

>

[Guest guest]

Hi Nil

Yes, I do have the tightness down the left side of my body, especialy the

chest and shoulder and it even makes breathing very hard work as my ribs

hurt so much. Sorry this is happening to you but i am glad to find i am not

the only person in the world with this. For me it is now totally disabling.

n

>From: " yildiz " <yildiz22@...>

>Reply-

>< >

>Subject: Re: brain problem

>Date: Mon, 17 Apr 2006 23:17:32 +0300

>

>Yes,n

>

>When this happens i also have to be in dark and quiet room for days. Last

>time it took me months to have some of my brain back.Life is difficult for

>us.

>Do you also have tightness on left side of body? I do, especially on left

>chest and shoulder.

>Nil

> RE: brain problem

>

>

> > Hi Nil

> >

> > I have been ill for 11 years and have what seems like the same problem

> > with

> > the left side of my head. I assumed this to be what cfs/fibro is

>although

> > some people seem to have it worse than others. It feels as if all the

> > nerves

> > on the left side of my head are swollen and alight. I also have tinnitus

> > and

> > what i think is trigeminal nerve pain on the same side although some

> > people

> > say they have tmj I think it is worse than that. It makes thinking ect

> > very

> >

>

[Guest guest]

Hi,

I just started reading this thread and find it interesting since I

have some similar issues (not exactly the same). I have been able to

reduce most of the tightness in the left side of my body and improve

my brain function by following Dr. Stoll's 3LS Wellness Program

(Skilled Relaxation, Whole Foods Diet, Right Exercise). Have any of

you tried it?

Best wishes,

Jan

>

> Hi Nil

>

> Yes, I do have the tightness down the left side of my body,

especialy the

> chest and shoulder and it even makes breathing very hard work as my

ribs

> hurt so much. Sorry this is happening to you but i am glad to find i

am not

> the only person in the world with this. For me it is now totally

disabling.

>

> n

[Guest guest]

Hi Jan,

No, never heard of it. Do you have a website we can look at?

Thanks ahead of time...

in Champaign IL

> >

> > Hi Nil

> >

> > Yes, I do have the tightness down the left side of my body,

> especialy the

> > chest and shoulder and it even makes breathing very hard work as

my

> ribs

> > hurt so much. Sorry this is happening to you but i am glad to

find i

> am not

> > the only person in the world with this. For me it is now totally

> disabling.

> >

> > n

>

[Guest guest]

Yes, Nil. When you can. Till then, for heaven's sake, take care of

yourself and rest.

in Champaign IL

>

> Hi ,n,Sue,Jan and all,

> I wish to write so much on this subject but my brain status does

not allow

> me to think and write at this point. Could not manage writing one

single

> answer since morning. So,I just gave up.I will write when I feel

better.Sure

> you will understand.

> Thanks so much.

> Nil

> Re: brain problem

>

>

> > Hi,

> >

> > I just started reading this thread and find it interesting since I

> > have some similar issues (not exactly the same). I have been

able to

> > reduce most of the tightness in the left side of my body and

improve

> >

>

[Guest guest]

Yes n

it is the same thing we are talking about.My arm and my left leg

arae also very tight. I sometimes practice relaxation exercises and I am

unable to relax my left arm and leg.When I try to relax my left arm it gets

more tightened and my left hand starts contracting and going upwards out of

my control.

I also have pain at my left jaw and teeth.

Best wishes.

Nil

Re: brain problem

> Hi Nil

>

> Yes, I do have the tightness down the left side of my body, especialy the

> chest and shoulder and it even makes breathing very hard work as my ribs

> hurt so much. Sorry this is happening to you but i am glad to find i am

> not

> the only person in the world with this. For me it is now totally

> disabling.

>

> n

>

>

[Guest guest]

Jan yes,similar approach helped me last time. It took me about 6 months to

recover a bit.Thanks and best wishes.

Nil

Re: brain problem

> Hi,

>

> I just started reading this thread and find it interesting since I

> have some similar issues (not exactly the same). I have been able to

> reduce most of the tightness in the left side of my body and improve

> my brain function by following Dr. Stoll's 3LS Wellness Program

> (Skilled Relaxation, Whole Foods Diet, Right Exercise). Have any of

> you tried it?

>

[Guest guest]

I'm wondering if this is similar to muscular tightness or cramping?

Or is it something else entirely. Does it feel like it's " muscles " or

something else?

>

> Yes n

> it is the same thing we are talking about.My arm and my left leg

> arae also very tight. I sometimes practice relaxation exercises and

I am

> unable to relax my left arm and leg.When I try to relax my left arm

it gets

> more tightened and my left hand starts contracting and going

upwards out of

> my control.

> I also have pain at my left jaw and teeth.

>

> Best wishes.

> Nil

>

[Guest guest]

Hi Nil,

Have you looked into food allergies and orthomolecular nutrition?

These things helped me a lot, too.

Best wishes,

Jan

>

> Jan yes,similar approach helped me last time. It took me about 6

months to

> recover a bit.Thanks and best wishes.

> Nil

-----Jan De, CMT -- Co-author of " Recapture Your Health " -----

Life Spring Healing Arts, Boulder, CO -- http://lifespringarts.com

(Therapeutic and Relaxation Massage, Holistic Health Care)

Sunrise Health Coach Publications -- http://sunrisehealthcoach.com

(Books for Holistic Healing and Vibrant Health)

[Guest guest]

Hi Jan,

What does " orthomolecular nutrition " mean?

>

> Hi Nil,

>

> Have you looked into food allergies and orthomolecular nutrition?

>

> These things helped me a lot, too.

>

> Best wishes,

> Jan

>

>