Re: Hashimoto's, CFS and Dianne - Fixing my BIG typo

March 15, 2006

Hi

> Why are you here?? I am confused?

*** LOL - I've been tempted to ask you the same question several times

now :-) For myself, I came here to learn all I could about CFS and what

is/isn't working for people. If I wanted to discuss thyroid only, I

would have gone to a thyroid group.

*** I mean no disrespect when I say I don't know about other people

here, but for myself, I get turned off very quickly by people who keep

insisting that they are right and not allowing others to think for

themselves. I feel very confident that I don't have, and have never had

a thyroid problem. Yes, 's list could be thyroid, but then again it

could be many other illnesses as well. It all depends on how you

interpret it!!

Take care.

Bernie

March 15, 2006

Hi Bernie,

I am on here because my girlfriend was recently diagnosed with active

EBV. She has many CFS/thyroid symptoms and I was trying see what you

all had to say. To be honest, I really thought a lot more people on

here would have said they were on thyroid meds and had great success

etc... I see though that there are many clinically hypo folk on here

insisting it's not thyroid but CFS. To be honest, it's a shame for

those people who are definitely hypo, but probably not being properly

treated. I have heard the story over and over and over.

I am not at all saying I am not open to alternative ideas, but when

one seems so clear to be a possible and real solution (with the right

doctor that is), I can't help but be adamant. I personally just want

to get better. Be 100% optimal so that I can live life and be the best

mom I can be for my babies. I get that there are people that probably

come on saying it's this, it's that etc.... Again, hypothyroidism is

not a quazy disease.

I also thought I might be creating a possible question in some of

y'all's mind (yeah I am a Canadian In texas now lol). I guess I have

done just the opposite. Perhaps you just see me as some crazy witch

doctor like the rest of them. I think I write clearly and succinctly,

but maybe that is just me being arrogant?

>

> Hi

>

> > Why are you here?? I am confused?

>

> *** LOL - I've been tempted to ask you the same question several times

> now :-) For myself, I came here to learn all I could about CFS and what

> is/isn't working for people. If I wanted to discuss thyroid only, I

> would have gone to a thyroid group.

>

> *** I mean no disrespect when I say I don't know about other people

> here, but for myself, I get turned off very quickly by people who keep

> insisting that they are right and not allowing others to think for

> themselves. I feel very confident that I don't have, and have never had

> a thyroid problem. Yes, 's list could be thyroid, but then again it

> could be many other illnesses as well. It all depends on how you

> interpret it!!

>

> Take care.

>

> Bernie

>

March 15, 2006

HI Barbara,

I never said that there weren't cases that had more involved. I am

sure there are. Those other issues will just exacerbate thyroid

issues. All I am saying is that I PERSONALLY feel that many are

getting labelled as CFS, when it is a hard hypo case to diagnose. I

thought I was posting something insightful. I guess it was just

aggravating for people who are on a totally different path. I know it

all gets so frustrating. I get frustrated too.

>

> Hi ,

>

> My son is very ill. He has severe CFIDS, EBV, Mycoplasma p.

infection and we are just awaiting other results.

>

> Although I don't believe that it is the cause of his problems,

certainly thyroid functioning for him has played a part. He was

diagnosed as having growth retardation and it wasn't until he went on

thyroid medication over a year ago that he began to grow. He's got a

lot of catching up to do!! I am not so sure he is on the right

medication though and am just beginning to explore other options.

Locating a doctor knowledgeable in treating this area though has

proved a problem.

>

> I for one appreciate focus being brought to the many different

facets of these debilitating disorders.

>

> Barbara

>

> Re: Hashimoto's, CFS and Dianne -

Fixing my BIG typo

>

> Hi Bernie,

>

> I am on here because my girlfriend was recently diagnosed with active

> EBV. She has many CFS/thyroid symptoms and I was trying see what you

> all had to say. To be honest, I really thought a lot more people on

> here would have said they were on thyroid meds and had great success

> etc... I see though that there are many clinically hypo folk on here

> insisting it's not thyroid but CFS. To be honest, it's a shame for

> those people who are definitely hypo, but probably not being properly

> treated. I have heard the story over and over and over.

>

> I am not at all saying I am not open to alternative ideas, but when

> one seems so clear to be a possible and real solution (with the right

> doctor that is), I can't help but be adamant. I personally just want

> to get better. Be 100% optimal so that I can live life and be the best

> mom I can be for my babies. I get that there are people that probably

> come on saying it's this, it's that etc.... Again, hypothyroidism is

> not a quazy disease.

>

> I also thought I might be creating a possible question in some of

> y'all's mind (yeah I am a Canadian In texas now lol). I guess I have

> done just the opposite. Perhaps you just see me as some crazy witch

> doctor like the rest of them. I think I write clearly and succinctly,

> but maybe that is just me being arrogant?

>

> >

> > Hi

> >

> > > Why are you here?? I am confused?

> >

> > *** LOL - I've been tempted to ask you the same question several

times

> > now :-) For myself, I came here to learn all I could about CFS

and what

> > is/isn't working for people. If I wanted to discuss thyroid only, I

> > would have gone to a thyroid group.

> >

> > *** I mean no disrespect when I say I don't know about other people

> > here, but for myself, I get turned off very quickly by people

who keep

> > insisting that they are right and not allowing others to think for

> > themselves. I feel very confident that I don't have, and have

never had

> > a thyroid problem. Yes, 's list could be thyroid, but then

again it

> > could be many other illnesses as well. It all depends on how you

> > interpret it!!

> >

> > Take care.

> >

> > Bernie

> >

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested in

any treatment discussed here, please consult your doctor.

>

March 15, 2006

> > >

> > > > Why are you here?? I am confused?

> > >

> > > *** LOL - I've been tempted to ask you the same question

several

> times

> > > now :-) For myself, I came here to learn all I could about

CFS

> and what

> > > is/isn't working for people. If I wanted to discuss thyroid

only, I

> > > would have gone to a thyroid group.

> > >

> > > *** I mean no disrespect when I say I don't know about other

people

> > > here, but for myself, I get turned off very quickly by people

> who keep

> > > insisting that they are right and not allowing others to

think for

> > > themselves. I feel very confident that I don't have, and have

> never had

> > > a thyroid problem. Yes, 's list could be thyroid, but

then

> again it

> > > could be many other illnesses as well. It all depends on how

you

> > > interpret it!!

> > >

> > > Take care.

> > >

> > > Bernie

> > >

> >

> > This list is intended for patients to share personal

experiences

> with each other, not to give medical advice. If you are

interested in

> any treatment discussed here, please consult your doctor.

> >

March 15, 2006

I just think there are somethings that don't have a clear explanation.

I know lots of healthy people who still have Hashi's (I think I was

born with it). I know lots of unhealthy people who have other viral

infections (or did) that may have precipitated a genetic propensity to

having Hashi's. How else can you explain five people on my husband's

family with Hashi's and other autoimmune disease. It's just not so cut

and dry. We don't really know now do we? We can fight all day about

this. THis was not my intent, but y'all have a good way of welcoming

someone who just happens to be exuberant and thought she had a great

bit of info that you could look into. I have read lots of neat stuff

correlating CFS with hypothyroidism. It's up to you if you want to

find someone who is well-trained to at LEAST rule it out. With a

faulty thyroid, you pick up ever stinkin' germ and viral infection

there is. SO it depends on how you look at what came first, the

Hashi's or the viral infections mentioned here.

>

> Just a note to add here...Hashi is autoimmune..as in the body is

> attacking the thyroid ...trying to destory it as an enemy regardless

> as to how the thyroid status is..so with meds that is a bit like

> topping up a bucket with a whole in it..how big is the whole=how

> much meds needed... some other thyroid conditions just need

> replacement which seem easier to treat, maybe.BW Dianne

>

March 15, 2006

Bernie, , et al,

I feel compelled to jump in here because I feel that there are very tender

feelings about these disease that we should be more careful with.. Bottom line

is, there is no black and white answer. We're all here to get ideas and feel

like we're not alone. Bernie - I belong to the thyroid group, and have recently

dx'd with thyroid issues and 14 yr vet of CFS, but honestly, there's not much

action over at the thyroid group, so a fellow CFS lister said check out the

experimental group; they might have something over there.

Should I not be contributing either???

Truth is, regardless of what came first, it's all a puzzle, and I'm here for

the same reason as many others. The thyroid is just ONE of the many disorders

that can happen to a person with this terrible disease. If I go to the Endo at

the end of this month and he cures me with meds, I'll turn buddhist and donate

my entire life to the religion, but meanwhile all I know is that I'm sick. I

would like nothing more than for my thyroid to be THE problem.

We should all be so compassionate, as sick as we feel most of the time. Please

be kind and open to each other. I've been on this list for two days and the

animosity here is scary.. - Wendi

Dianne <boyzee12000@...> wrote:

> > >

> > > > Why are you here?? I am confused?

> > >

> > > *** LOL - I've been tempted to ask you the same question

several

> times

> > > now :-) For myself, I came here to learn all I could about

CFS

> and what

> > > is/isn't working for people. If I wanted to discuss thyroid

only, I

> > > would have gone to a thyroid group.

> > >

> > > *** I mean no disrespect when I say I don't know about other

people

> > > here, but for myself, I get turned off very quickly by people

> who keep

> > > insisting that they are right and not allowing others to

think for

> > > themselves. I feel very confident that I don't have, and have

> never had

> > > a thyroid problem. Yes, 's list could be thyroid, but

then

> again it

> > > could be many other illnesses as well. It all depends on how

you

> > > interpret it!!

> > >

> > > Take care.

> > >

> > > Bernie

> > >

> >

> > This list is intended for patients to share personal

experiences

> with each other, not to give medical advice. If you are

interested in

> any treatment discussed here, please consult your doctor.

> >

March 15, 2006

Hi Wendi - See my comments below***

>

> Bernie, , et al,

>

> I feel compelled to jump in here because I feel that there are

very tender feelings about these disease that we should be more

careful with.. Bottom line is, there is no black and white answer.

We're all here to get ideas and feel like we're not alone. Bernie - I

belong to the thyroid group, and have recently dx'd with thyroid

issues and 14 yr vet of CFS, but honestly, there's not much action

over at the thyroid group, so a fellow CFS lister said check out the

experimental group; they might have something over there.

> Should I not be contributing either???

*** No one at any time has asked that , or anyone else for that

matter, not contribute to this group. I have mentioned several times

that I don't believe that " I " have a thyroid problem, based on both a

lack of symptoms and testing over a 15 year period. I don't feel that

I need to be defending my position, and I don't appreciate someone

continually badgering me and insinuating that I am wrong because I

don't happen to fall in with their own beliefs.

>

> We should all be so compassionate, as sick as we feel most of the

time. Please be kind and open to each other. I've been on this list

for two days and the animosity here is scary.. - Wendi

*** I'm not quite sure what you reading to give you the impression

that the " animosity here is scary " as I certainly haven't come across

this over the past two days (or the past two weeks for that matter).

If you go back and read my messages, and those of other members, you

will find that we have kept our replies very friendly and at no time

have we shown any animosity towards anyone on this group. Because I

felt I have said all that needs to be said on my behalf, and also

felt that this could turn into a flaming session, I chose to no

longer participate in this conversation. I was not angry or upset as

was implied, I just know when to bow out.

There seems to be only ONE person getting upset because of the fact

that we are questioning some of her opinions. We aren't always going

to agree with each other and that is fine as that is what makes for

great conversation, when we can debate back and forth in a friendly,

mature, non-judgemental way :-)

Take care.

Bernie

March 15, 2006

Bernie wrote:

*** No one at any time has asked that , or anyone else for that

matter, not contribute to this group. I have mentioned several times

that I don't believe that " I " have a thyroid problem, based on both a

> lack of symptoms and testing over a 15 year period. I don't feel

that I need to be defending my position, and I don't appreciate

someone continually badgering me and insinuating that I am wrong

because I don't happen to fall in with their own beliefs.

Good Lord Bernie, I was not badgering you or insinuating anything. I

was genuinely interested to know what thyroid tests EXACTLy you have

had. I really wanted to know. If you don't want to divulge in my

postings then just ignore me. Geez louise. Someone just pull out a gun

and shoot me right now lol.

>

> >

> > We should all be so compassionate, as sick as we feel most of the

> time. Please be kind and open to each other. I've been on this list

> for two days and the animosity here is scary.. - Wendi

>

> *** I'm not quite sure what you reading to give you the impression

> that the " animosity here is scary " as I certainly haven't come across

> this over the past two days (or the past two weeks for that matter).

> If you go back and read my messages, and those of other members, you

> will find that we have kept our replies very friendly and at no time

> have we shown any animosity towards anyone on this group. Because I

> felt I have said all that needs to be said on my behalf, and also

> felt that this could turn into a flaming session, I chose to no

> longer participate in this conversation. I was not angry or upset as

> was implied, I just know when to bow out.

>

> There seems to be only ONE person getting upset because of the fact

> that we are questioning some of her opinions. We aren't always going

> to agree with each other and that is fine as that is what makes for

> great conversation, when we can debate back and forth in a friendly,

> mature, non-judgemental way :-)

>

> Take care.

>

> Bernie

>

March 15, 2006

I understand your intentions, Bernie, thank you for explaining. I just read your

post, if that in fact was you, " why are you here anyway - this isn't a thyroid

board " ... I worried that I too was in the wrong place.. I'm new here and didn't

want to get anyone incensed, that's all.

Cheers.

<d_timmsjosey@...> wrote: