Re: HELP! My friend has Active EBV. Anyone on thyroid for CFS?

[Guest guest]

,

My family has been on a kick for 14+ years to call me a hypochondriac, even

though I was dx'd CFS (unofficially, as there was not test, but positive for EBV

at onset w/high WBC). Anyhow, I recently went to an OBGYN who noticed my

" enlarged thyroid " , so she had a full panel done. My antithyroglobulin was 87 on

a 0-25 scale. She said this was indicative of Hashi's but I did not have the

other antibody anti-TPO that is prevalent in 90% of Hashi patients. I have an

Endo appt at the end of the month to go over all the test results along with an

ultrasound (no nodules but funny looking tissue). Anyhow, my TSH and T3/T4 are

all within range, so she said I'm functionally hypothyroid. What the heck does

that mean??? Now that I have a viable diagnosis of something, my family thinks

it's been my thyroid all along, but how can a thyroid make you physically ill

for so long? I don't think it was acute onset of a horrible flu that started my

thyroid problems. I'm reading like mad trying to figure

out what happened with my thyroid and how to halt symptoms so I don't keep

getting worse! WHAT else can possibly wrong??? It's all so frustrating! I want

to know more too. I'm going to a naturopath next Monday. She apparently has good

luck in treating Hashi patients, but I had to tell her that I was a mixed bag of

symptoms with my CFS so I may be a little more difficult to treat. Yeah, no

kidding!

<d_timmsjosey@...> wrote:

I have hashimoto's. Because of this I have done extrensive research on

my disease and have discovered that many many (like 90%) of CFS and

fibromyalgia cases are simply undiagnosed thyroid disease. Not

everyone falls outside of the so-called " normal " range, so the

diagnosis is missed. This all came about when the TSH test was

developed and used from 1973 onward. The old way of hypo diagnosis was

basically banished (diagnosis by symptoms, not labs).

Anyway, my friend just got diagnosed with active EBV. All this time I

have been trying to see what's going on with her thyroid (it's jumping

and bouncing around, but in the lower end of the free t ranges and the

TSH is bouncing between low to middle of the range). I am trying to

find out how many of you are on thyroid (preferably Armour thyroid)

and how it has improved your situation. Thanks kindly!!!!!!

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

On Mar 14, 2006, at 11:05 AM, wrote:

> I am trying to

> find out how many of you are on thyroid (preferably Armour thyroid)

> and how it has improved your situation.

Me.

Immensely.

Sara

[Guest guest]

,

Thyroid will be affected when a person has a severe illness. Many cfs

patients have thyroid involvement. You will be fortunate if treating

your thyroid fixes your problems. In most cases, although you need to

address the thyroid issues, it will not cure the cfs. I have had

Hashimoto's for 30 years. I no longer have it, but still am

hypothyroid. I take Armour and levoxil - neither of which has ever

fixed my cfs symptoms in any way.

I have found that I have mycoplasma infection and Lyme disease. The

antibiotics I have taken for these two infections have improved my

health and functioning. My thyroid has improved along with other

things while taking these antibiotics. I expect I am one of the

healthier cfs and Lyme patients around, but still not 100%.

Currently I have added Recuperation to my low dose antibiotic regime.

It seems to be helping, and I will be curious to see what my

endocrinologist has to say next month.

Take care,

a Carnes

>

> I have hashimoto's. Because of this I have done extrensive research

on

> my disease and have discovered that many many (like 90%) of CFS and

> fibromyalgia cases are simply undiagnosed thyroid disease. Not

> everyone falls outside of the so-called " normal " range, so the

> diagnosis is missed. This all came about when the TSH test was

> developed and used from 1973 onward. The old way of hypo diagnosis

was

> basically banished (diagnosis by symptoms, not labs).

>

> Anyway, my friend just got diagnosed with active EBV. All this time

I

> have been trying to see what's going on with her thyroid (it's

jumping

> and bouncing around, but in the lower end of the free t ranges and

the

> TSH is bouncing between low to middle of the range). I am trying to

> find out how many of you are on thyroid (preferably Armour thyroid)

> and how it has improved your situation. Thanks kindly!!!!!!

>

>

>

[Guest guest]

Thank you Sara . I have already given my frined some Armour, but she

is scared. Maybe I should send her here .

>

> Me.

>

> Immensely.

>

> Sara

>

[Guest guest]

HI,

Longterm use of thyroid hormones can eventually bring the antibodies

down to non-existant or undetectable, so you still have Hashi's, just

that on paper it doesn't look that way .

WHy don't you post some labs for me and ranges. SInce you have a

diagnosis, I can tell you exactly where you are at and where you

should be. Don't expect the endo to up your meds though. Also, don't

forget that with thryoid disease, comes hormonal imbalance and adrenal

imbalance. They all go hand in hand, so if you don't fix those too,

you will never feel optimal. I suggest you get the book called

" Hormones, Health, and Happiness " by Dr. Hotze. EXCELLENT book.

SInce you have Hashi's, I will bet you are not on enough meds,

probably don't take natural bio-identical progesterone (and estrogen),

and you might have pooped out adrenals that leave you achy, tired,

gaunt etc... Check out Drrind.com and see if maybe this applies to

you. SOrry to stir the boat lol. I am very passionate about this! I

guess you can't tell lol.

> ,

> Thyroid will be affected when a person has a severe illness. Many cfs

> patients have thyroid involvement. You will be fortunate if treating

> your thyroid fixes your problems. In most cases, although you need to

> address the thyroid issues, it will not cure the cfs. I have had

> Hashimoto's for 30 years. I no longer have it, but still am

> hypothyroid. I take Armour and levoxil - neither of which has ever

> fixed my cfs symptoms in any way.

>

> I have found that I have mycoplasma infection and Lyme disease. The

> antibiotics I have taken for these two infections have improved my

> health and functioning. My thyroid has improved along with other

> things while taking these antibiotics. I expect I am one of the

> healthier cfs and Lyme patients around, but still not 100%.

>

> Currently I have added Recuperation to my low dose antibiotic regime.

> It seems to be helping, and I will be curious to see what my

> endocrinologist has to say next month.

>

> Take care,

> a Carnes

>

> >

> > I have hashimoto's. Because of this I have done extrensive research

> on

> > my disease and have discovered that many many (like 90%) of CFS and

> > fibromyalgia cases are simply undiagnosed thyroid disease. Not

> > everyone falls outside of the so-called " normal " range, so the

> > diagnosis is missed. This all came about when the TSH test was

> > developed and used from 1973 onward. The old way of hypo diagnosis

> was

> > basically banished (diagnosis by symptoms, not labs).

> >

> > Anyway, my friend just got diagnosed with active EBV. All this time

> I

> > have been trying to see what's going on with her thyroid (it's

> jumping

> > and bouncing around, but in the lower end of the free t ranges and

> the

> > TSH is bouncing between low to middle of the range). I am trying to

> > find out how many of you are on thyroid (preferably Armour thyroid)

> > and how it has improved your situation. Thanks kindly!!!!!!

> >

> >

> >

>

[Guest guest]

>

> ,

> Thyroid will be affected when a person has a severe illness. Many

cfs

> patients have thyroid involvement. You will be fortunate if

treating

> your thyroid fixes your problems. In most cases, although you need

to

> address the thyroid issues, it will not cure the cfs. I have had

> Hashimoto's for 30 years. I no longer have it, but still am

> hypothyroid. I take Armour and levoxil - neither of which has ever

> fixed my cfs symptoms in any way.

>

> I have found that I have mycoplasma infection and Lyme disease.

The

> antibiotics I have taken for these two infections have improved my

> health and functioning. My thyroid has improved along with other

> things while taking these antibiotics. I expect I am one of the

> healthier cfs and Lyme patients around, but still not 100%.

>

> Currently I have added Recuperation to my low dose antibiotic

regime.

> It seems to be helping, and I will be curious to see what my

> endocrinologist has to say next month.

>

> Take care,

> a Carnes

>

> >

> > I have hashimoto's. Because of this I have done extrensive

research

> on

> > my disease and have discovered that many many (like 90%) of CFS

and

> > fibromyalgia cases are simply undiagnosed thyroid disease. Not

> > everyone falls outside of the so-called " normal " range, so the

> > diagnosis is missed. This all came about when the TSH test was

> > developed and used from 1973 onward. The old way of hypo

diagnosis

> was

> > basically banished (diagnosis by symptoms, not labs).

> >

> > Anyway, my friend just got diagnosed with active EBV. All this

time

> I

> > have been trying to see what's going on with her thyroid (it's

> jumping

> > and bouncing around, but in the lower end of the free t ranges

and

> the

> > TSH is bouncing between low to middle of the range). I am trying

to

> > find out how many of you are on thyroid (preferably Armour

thyroid)

> > and how it has improved your situation. Thanks kindly!!!!!!

> >

> >

> >

>

The body being as complex as it is 2+2=?..I have Hashi and this year

my TSH has gone to over 11 with increased antibodies..Jan05

2.69...May05 7.74 and 06 11+ and yet apart from the weight gain but

with improved muscle tone and strength.. so much else has improved

and I do take a lot of supplements and only on 100 of synthetic

thyroid...my sister is on 200 but no goitre and no

antibodies...Dianne

[Guest guest]

HI, .

The hypothesis I suggested for Hashimoto's thyroiditis in CFS may

fit your case. It's on page 17 of the paper at this url:

http://www.cfsresearch.org/cfs/research/treatment/15.htm

Rich

> My family has been on a kick for 14+ years to call me a

hypochondriac, even though I was dx'd CFS (unofficially, as there

was not test, but positive for EBV at onset w/high WBC). Anyhow, I

recently went to an OBGYN who noticed my " enlarged thyroid " , so she

had a full panel done. My antithyroglobulin was 87 on a 0-25 scale.

She said this was indicative of Hashi's but I did not have the other

antibody anti-TPO that is prevalent in 90% of Hashi patients. I have

an Endo appt at the end of the month to go over all the test results

along with an ultrasound (no nodules but funny looking tissue).

Anyhow, my TSH and T3/T4 are all within range, so she said I'm

functionally hypothyroid. What the heck does that mean??? Now that I

have a viable diagnosis of something, my family thinks it's been my

thyroid all along, but how can a thyroid make you physically ill for

so long? I don't think it was acute onset of a horrible flu that

started my thyroid problems. I'm reading like mad trying to figure

> out what happened with my thyroid and how to halt symptoms so I

don't keep getting worse! WHAT else can possibly wrong??? It's all

so frustrating! I want to know more too. I'm going to a naturopath

next Monday. She apparently has good luck in treating Hashi

patients, but I had to tell her that I was a mixed bag of symptoms

with my CFS so I may be a little more difficult to treat. Yeah, no

kidding!

[Guest guest]

This girl definitely has Hashimoto's. Antibodies tell the tail. A

thyroid biopsy would be 100% definitive, but why go through that lol?

>

> HI, .

>

> The hypothesis I suggested for Hashimoto's thyroiditis in CFS may

> fit your case. It's on page 17 of the paper at this url:

>

> http://www.cfsresearch.org/cfs/research/treatment/15.htm

>

> Rich

>

>

>

>

> > My family has been on a kick for 14+ years to call me a

> hypochondriac, even though I was dx'd CFS (unofficially, as there

> was not test, but positive for EBV at onset w/high WBC). Anyhow, I

> recently went to an OBGYN who noticed my " enlarged thyroid " , so she

> had a full panel done. My antithyroglobulin was 87 on a 0-25 scale.

> She said this was indicative of Hashi's but I did not have the other

> antibody anti-TPO that is prevalent in 90% of Hashi patients. I have

> an Endo appt at the end of the month to go over all the test results

> along with an ultrasound (no nodules but funny looking tissue).

> Anyhow, my TSH and T3/T4 are all within range, so she said I'm

> functionally hypothyroid. What the heck does that mean??? Now that I

> have a viable diagnosis of something, my family thinks it's been my

> thyroid all along, but how can a thyroid make you physically ill for

> so long? I don't think it was acute onset of a horrible flu that

> started my thyroid problems. I'm reading like mad trying to figure

> > out what happened with my thyroid and how to halt symptoms so I

> don't keep getting worse! WHAT else can possibly wrong??? It's all

> so frustrating! I want to know more too. I'm going to a naturopath

> next Monday. She apparently has good luck in treating Hashi

> patients, but I had to tell her that I was a mixed bag of symptoms

> with my CFS so I may be a little more difficult to treat. Yeah, no

> kidding!

>

[Guest guest]

Hi, .

Well, it's good to see that we agree on something!

Yes, she does have Hashimoto's thyroiditis, and I agree that she

doesn't need a thyroid biopsy to prove that.

The question I'm trying to address is, " What causes the Hashimoto's

thyroiditis? " The reason this question is important is that if one

doesn't deal with root causes, one doesn't usually solve the whole

problem. In CFS, there appears to be a more fundamental mechanism

that is causing the Hashimoto's thyroiditis. If the only treatment

given is thyroid hormones, even at high doses, this may give relief of

a lot of symptoms, for a while at least, but it masks the root cause,

and the person will not be completely out of the woods.

Rich

>

> This girl definitely has Hashimoto's. Antibodies tell the tail. A

> thyroid biopsy would be 100% definitive, but why go through that lol?

>

>

[Guest guest]

Hi Rich,

I see what you are saying, but the fact is she has it, so while you

find the root, get the proper treatment. It's not going to be

reversed. I know no one who has reversed it. In fact, the Hashi's

board was started by Bob Dirgo who wrote a book on his reversal and

then later recanted and he is no where to be found. I get finding the

root cause, but it's like looking for a needle in a haystack. It

becomes a long and drawn out dismal life of what if its h. pylori,

EBV, Lyme, too much mercury exposure, mold, lack of mother's

breastmilk. I mean I get what you are saying - truly, but the fact is

if she has Hashi's she has Hashi's. It runs all through my husband's

family (autoimmune disease that is). Right now my hubby is dealing (1

month now) of alopecia. Do you not think a genetic propensity occurs?

In my family it appears so, but no one cares to get tested for

thyroid, so my mother continues to be an alcoholic instead, my Grammie

died 2 summers ago from what I believe was a combo of Lipitor (bad

stuff) and high dose prednisone (12 years of it for a brain clog

(plaque) from high cholesterol. She also had Hashi's. She died from

Liver and intestinal cancer. You should read what Prednisone and

lipitor cause.

I can't help but be adamant. When I sat by my Grammie's side watching

her die, it was what caused me to be adamant about hypothyroidism

awareness. I don't know how to be any other way right now. SOrry if it

offends.

>

> Hi, .

>

> Well, it's good to see that we agree on something!

>

> Yes, she does have Hashimoto's thyroiditis, and I agree that she

> doesn't need a thyroid biopsy to prove that.

>

> The question I'm trying to address is, " What causes the Hashimoto's

> thyroiditis? " The reason this question is important is that if one

> doesn't deal with root causes, one doesn't usually solve the whole

> problem. In CFS, there appears to be a more fundamental mechanism

> that is causing the Hashimoto's thyroiditis. If the only treatment

> given is thyroid hormones, even at high doses, this may give relief of

> a lot of symptoms, for a while at least, but it masks the root cause,

> and the person will not be completely out of the woods.

>

> Rich

>

>

> >

> > This girl definitely has Hashimoto's. Antibodies tell the tail. A

> > thyroid biopsy would be 100% definitive, but why go through that lol?

> >

> >

>

[Guest guest]

Hi again,

My regular MD does not think a biopsy is necessary, as I have no nodules, but

thank you for the link to the CFS/Glutothione connetion. At the naturopath she

will have me do a spit test for the adrenals. Do you know if this test will tell

me if I'm low in Glutothione?

Thanks!

<d_timmsjosey@...> wrote:

This girl definitely has Hashimoto's. Antibodies tell the tail. A

thyroid biopsy would be 100% definitive, but why go through that lol?

>

> HI, .

>

> The hypothesis I suggested for Hashimoto's thyroiditis in CFS may

> fit your case. It's on page 17 of the paper at this url:

>

> http://www.cfsresearch.org/cfs/research/treatment/15.htm

>

> Rich

>

>

>

>

> > My family has been on a kick for 14+ years to call me a

> hypochondriac, even though I was dx'd CFS (unofficially, as there

> was not test, but positive for EBV at onset w/high WBC). Anyhow, I

> recently went to an OBGYN who noticed my " enlarged thyroid " , so she

> had a full panel done. My antithyroglobulin was 87 on a 0-25 scale.

> She said this was indicative of Hashi's but I did not have the other

> antibody anti-TPO that is prevalent in 90% of Hashi patients. I have

> an Endo appt at the end of the month to go over all the test results

> along with an ultrasound (no nodules but funny looking tissue).

> Anyhow, my TSH and T3/T4 are all within range, so she said I'm

> functionally hypothyroid. What the heck does that mean??? Now that I

> have a viable diagnosis of something, my family thinks it's been my

> thyroid all along, but how can a thyroid make you physically ill for

> so long? I don't think it was acute onset of a horrible flu that

> started my thyroid problems. I'm reading like mad trying to figure

> > out what happened with my thyroid and how to halt symptoms so I

> don't keep getting worse! WHAT else can possibly wrong??? It's all

> so frustrating! I want to know more too. I'm going to a naturopath

> next Monday. She apparently has good luck in treating Hashi

> patients, but I had to tell her that I was a mixed bag of symptoms

> with my CFS so I may be a little more difficult to treat. Yeah, no

> kidding!

>

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

I am not sure about the gluthothiane, but I CAN tell you that the

saliva test for adrenals is best. If you can get her to do test that

requires four samples in a day (because levels can be high at night

and low in the morning etc...), even better. Good luck!

>

> Hi again,

>

> My regular MD does not think a biopsy is necessary, as I have no

nodules, but thank you for the link to the CFS/Glutothione connetion.

At the naturopath she will have me do a spit test for the adrenals. Do

you know if this test will tell me if I'm low in Glutothione?

>

> Thanks!

>

> <d_timmsjosey@...> wrote:

> This girl definitely has Hashimoto's. Antibodies tell the tail. A

> thyroid biopsy would be 100% definitive, but why go through that lol?

>

>

> >

> > HI, .

> >

> > The hypothesis I suggested for Hashimoto's thyroiditis in CFS may

> > fit your case. It's on page 17 of the paper at this url:

> >

> > http://www.cfsresearch.org/cfs/research/treatment/15.htm

> >

> > Rich

> >

> >

> >

> >

> > > My family has been on a kick for 14+ years to call me a

> > hypochondriac, even though I was dx'd CFS (unofficially, as there

> > was not test, but positive for EBV at onset w/high WBC). Anyhow, I

> > recently went to an OBGYN who noticed my " enlarged thyroid " , so she

> > had a full panel done. My antithyroglobulin was 87 on a 0-25 scale.

> > She said this was indicative of Hashi's but I did not have the other

> > antibody anti-TPO that is prevalent in 90% of Hashi patients. I have

> > an Endo appt at the end of the month to go over all the test results

> > along with an ultrasound (no nodules but funny looking tissue).

> > Anyhow, my TSH and T3/T4 are all within range, so she said I'm

> > functionally hypothyroid. What the heck does that mean??? Now that I

> > have a viable diagnosis of something, my family thinks it's been my

> > thyroid all along, but how can a thyroid make you physically ill for

> > so long? I don't think it was acute onset of a horrible flu that

> > started my thyroid problems. I'm reading like mad trying to figure

> > > out what happened with my thyroid and how to halt symptoms so I

> > don't keep getting worse! WHAT else can possibly wrong??? It's all

> > so frustrating! I want to know more too. I'm going to a naturopath

> > next Monday. She apparently has good luck in treating Hashi

> > patients, but I had to tell her that I was a mixed bag of symptoms

> > with my CFS so I may be a little more difficult to treat. Yeah, no

> > kidding!

> >

>

>

>

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested in

any treatment discussed here, please consult your doctor.

>

>

>

>

[Guest guest]

Hi, Wendi.

I don't think you need a thyroid biopsy, either.

No, that's a good test for cortisol, DHEA, and secretory IgA, but it

won't tell you about your glutathione level. For that, I would

suggest a red blood cell glutathione test from http://www.immuno-sci-

lab.com. I think it costs about $85.

Rich

>

> Hi again,

>

> My regular MD does not think a biopsy is necessary, as I have no

nodules, but thank you for the link to the CFS/Glutothione

connetion. At the naturopath she will have me do a spit test for the

adrenals. Do you know if this test will tell me if I'm low in

Glutothione?

>

> Thanks!

[Guest guest]

Wow! Thanks, ..

It's hard to get the docs to tell you what it all really means.

Here's what I've got so far:

November - 2005 (went in for panic attacks then)

TSH = 4.94 Ref Range .4-4.5

No T3/T4 run at the time

December - 2005 (went to diff doc for panic attacks to get Xanax! Yoohoo)

TSH = 1.94 Ref Range .4-4.2

FT4 = .94 Ref Range .7-1.8

No T3 run at the time

February - 2006 (OBGYN noticed goiter - sent me for labs)

TSH - 1.96 Ref Range .4-4.5

FT4 - 1.2 Ref Range .8-1.6

FT3 - 3.0 Ref Range 1.6-5.6

Anti-TPO - 11.1 Ref Range 0-34

Thyroglobulin Antibody - 84.7 Ref Range 0-25

Reverse T3 - 273 Ref Range 90-350

Cholestrol is always borderline high - 182(fasting) - 202(not fasting)

Interesting - All I know is that I want this darned goiter to go away. It's

" moderately enlarged " so the radiologist said, but to me I feel like

enstein!

Take Care!

<d_timmsjosey@...> wrote:

Hi ,

Well this is the same story for most hypo folks too. I am 34 now, but

I actually diagnosed myself as hypo at 18. My friend showed me an

article on CFS and I read it and thought how it looked an awful lot

like the hypothroidism I thought I had. I came to my doctor with this

and he basically blew me off. I was young, thin, athletic, but

exhausted. Physically, I did not LOOK like a hypothyroid case. Then at

25 I asked to have the thyroid checked again and for the 2nd time they

told me I was healthy and to stop worrying. By then I had chronic

insomnia, fatigue, brain fog, memory issues, slurring off and on,

hives, heart palps, stomache aches, headaches, sky-high cholesterol

and the list goes on. I felt like a hypochondriac and my family

started to crack jokes about me being s medical freak and worry wart.

In fact, almost 10 years later, my uncle still makes fun of me about

how I was even though I was clearly ill, just not on a lab report.

If you would like, you can join my hypo group called: The Cold Hard

Truth About Hypothyroidism.

Cold_hard_truth_about_hypo/

Here is what your thyroid labs should look like:

TSH should be at or slightly below 1.0 to be optimal. Anything above

2.0 is HIGHLY suspect for hypothyroid. Anything above 3.0 is primary

hypothyroidism. The labs have changed; however, the lab companies, I

guess, are too cheap to change thousands of lab sheets to the new TSH

range which is .3 - 3.14. YOur free t4 should be at LEAST mid range

and the same goes for the Free t3 (ie. range is .8 - 1.8, you should

be at least 1.3). This is for a person NOT on thyroid meds. Most

people function better with their free's above the mid range. SO you

can either post your labs and ranges or you can evaluate them yourself

. The FREE t's are the only accurate tests for thyroid and

occasionally, even those can be off.

>

> ,

>

> My family has been on a kick for 14+ years to call me a

hypochondriac, even though I was dx'd CFS (unofficially, as there was

not test, but positive for EBV at onset w/high WBC). Anyhow, I

recently went to an OBGYN who noticed my " enlarged thyroid " , so she

had a full panel done. My antithyroglobulin was 87 on a 0-25 scale.

She said this was indicative of Hashi's but I did not have the other

antibody anti-TPO that is prevalent in 90% of Hashi patients. I have

an Endo appt at the end of the month to go over all the test results

along with an ultrasound (no nodules but funny looking tissue).

Anyhow, my TSH and T3/T4 are all within range, so she said I'm

functionally hypothyroid. What the heck does that mean??? Now that I

have a viable diagnosis of something, my family thinks it's been my

thyroid all along, but how can a thyroid make you physically ill for

so long? I don't think it was acute onset of a horrible flu that

started my thyroid problems. I'm reading like mad trying to figure

> out what happened with my thyroid and how to halt symptoms so I

don't keep getting worse! WHAT else can possibly wrong??? It's all so

frustrating! I want to know more too. I'm going to a naturopath next

Monday. She apparently has good luck in treating Hashi patients, but I

had to tell her that I was a mixed bag of symptoms with my CFS so I

may be a little more difficult to treat. Yeah, no kidding!

>

>

>

> <d_timmsjosey@...> wrote:

> I have hashimoto's. Because of this I have done extrensive research on

> my disease and have discovered that many many (like 90%) of CFS and

> fibromyalgia cases are simply undiagnosed thyroid disease. Not

> everyone falls outside of the so-called " normal " range, so the

> diagnosis is missed. This all came about when the TSH test was

> developed and used from 1973 onward. The old way of hypo diagnosis was

> basically banished (diagnosis by symptoms, not labs).

>

> Anyway, my friend just got diagnosed with active EBV. All this time I

> have been trying to see what's going on with her thyroid (it's jumping

> and bouncing around, but in the lower end of the free t ranges and the

> TSH is bouncing between low to middle of the range). I am trying to

> find out how many of you are on thyroid (preferably Armour thyroid)

> and how it has improved your situation. Thanks kindly!!!!!!

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> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested in

any treatment discussed here, please consult your doctor.

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