Re: They're not laughing anymore

[Guest guest]

,

Thank you for your work on keeping us informed on mould issues.

When I moved a few years ago my sinus infections got better and then suddenly

returned with a venegence.

If you hadn't told us about mould sensitivity I would never had twigged that

the return of my sinus infections had coincided with the delivery of a shipment

of clothes/bedding from a moudly flat that I had been very ill in.

, I'm so glad to you have survived. It's a miracle given what was thrown

at you.

Thanks once again.

Kindest regards,

Annette

---------------------------------

Win a BlackBerry device from O2 with . Enter now.

[Guest guest]

annette barclay wrote:

,

Thank you for your work on keeping us informed on mould

issues. When I moved a few years ago my sinus infections got

better and then suddenly returned with a vengeance.

If you hadn't told us about mould sensitivity I would never had

twigged that the return of my sinus infections had coincided with

the delivery of a shipment of clothes/bedding from a moudly flat

that I had been very ill in.

, I'm so glad to you have survived. It's a miracle given what

was thrown at you.

Thanks once again.

Kindest regards,

Annette

Hi " Tapanui " , You're welcome.

Can't tell you how hard it was to survive!

" Twigged " ? That's a good one, but we don't ken to sech talk in

Nevada, reckon that must mean " caught on " .

Thanks for relating this incident.

That's exactly what happened to me when I returned from the military

and unpacked my belongings after being stationed in Hitler's moldy

headquarters: " Verdun Kaserne " - named in honor of the Nazi victory

over the Allied Expeditionary force.

It was to be used for " Operation Sea Lion " the invasion of England,

but became a base for tanks when the Nazis lost the air war in

Battle of Britain.

http://www.thirdreichruins.com/misc_sites3.htm#giessen

My building was right behind the Winkelturm.

Moldy or What?

But these molds didn't bother me, only the toxigenic ones -

in specific locations - like the basement stores and armory.

And this " susceptibility " was the commonality I saw in other CFSers

in Incline. Not everyone has it.

-

[Guest guest]

,

So did you hit a plateau with Dr. Shoemaker, and are you looking for

other doctors who can help you at this point? Have you found

anything other than mold avoidance to be helpful with the " universal

reactor " problem (saunas, liver cleanses, cholestyramine,

homeopathics, NAET, mercury detox, I don't know what else...)? I

think I'm headed in the universal reactor direction, and it's not

pretty.

Does Candida fit into your situation, like if you get increased

levels of Candida from eating sugar, does that act as an internal

trigger for your inflammatory responses?

(I did read your story in Mold Warriors, will have to read it again.)

Thanks!

> >

> > Cheney has done a LOT OF good work.

> > My main problem with Cheney is he focusses on viruses.

> >

>

> Funny.

> That was the problem I had with Dr Cheney from the first day of the

> Incline Epidemic.

> I asked for help with the mold and was told that the type of

> reactivity I complained of was not a normal component of the human

> response to mold toxins at any range of exposure.

> So I asked what else could cause my type of reactivity.

> The explanation was that a virus might cause a generalized

> upregulation of an out-of-control immunological response and turn

me

> into a " Universal Reactor " .

> The problems that I had with mold seemed so primary that I inisted

> that there must be a mechanism for this specificity.

> When I was assured that a viral reactivation would not result in a

> specific targeted response to a certain toxin, out of sheer

> frustration I replied " Then it must be a bacteria, because

> whatever's got ahold of me seems to care A GREAT DEAL about mold " .

> When Dr Cheney asked me to volunteer to be in the CDC study to

> define the parameters of " CFS " , at first I refused, thinking that

> my " mold illness " would mess up research into viral etiologies -

and

> above all, I just wanted this damned illness to be researched.

> But Dr Cheney didn't seem to care about the " mycotoxin connection "

> and then I had the devious thought that " If I am a prototype for

> CFS, then that will FORCE them to examine my mold complaints! "

> One cannot have an unexplained anomaly like that running around in

> someone serving as a defining example of an illness.

> When I volunteered, Dr Cheney said as an inducement that special

> attention would necessarily be given to my case.

> Instead, researchers and doctors turned and RAN from my story and

> complaints about " the mycotoxin connection " .

> Much to my eternal amazement, absolutely NOBODY but Dr Shoemaker

> would respond to my story about these specific mycotoxins, even

> though they were present at the site of other CFS onsets - like the

> basketball team and teachers at Truckee High school as told in

> Osler's Web.

> This is crazy. I was at virtual ground zero for the initiation of

> the CFS phenomenon and I can't even get anyone to just go out to

the

> teachers lounge where everyone got sick, and feel the toxins there.

> I remember telling Dr Cheney that there was going to be an

epidemic

> of people just like me - all complaining about mold.

> People thought I was absolutely nuts. The idea was so preposterous

> that they would laugh and scoff at such an impossibly stupid thing.

> That was twenty years ago and things have changed considerably.

> They're not laughing anymore.

> -

>

[Guest guest]

" shakerz25 " wrote:

> ,

> So did you hit a plateau with Dr. Shoemaker, and are you looking for

other doctors who can help you at this point? Have you found

anything other than mold avoidance to be helpful withthe " universal

reactor " problem (saunas, liver cleanses, cholestyramine,

homeopathics, NAET, mercury detox, I don't know what else...)? I

think I'm headed in the universal reactor direction, and it's not

pretty.

Does Candida fit into your situation, like if you get increased

levels of Candida from eating sugar, does that act as an internal

trigger for your inflammatory responses?

(I did read your story in Mold Warriors, will have to read it again.)

Thanks!

No, Dr Shoemaker is still following my experience and picking up on

new information and clues.

He is very open minded and doesn't miss an opportunity to examine

anomalies.

I tried all that stuff years ago and it just didn't compare to pure

avoidance. If I spend too much time in a mycotoxin zone, the candida

takes off like a rocket. If I maintain avoidance, sugar intake

doesn't seem to make any difference either way.

You are right. This " Universal Reactor " state is absolutely death

defying. In an advanced stage of reactivity, a Universal Reactor

wouldn't be caught dead without some means of commiting " euthanasia " .

The worst fear is hitting a point in which doctors keep you alive

against your will and having no means to reason with them and get out

of the situation.

Dr Shoemaker is the only doctor I have found who absolutely

understands every nuance.

He knows exactly what I am talking about and conveys it back to me in

words that show perfect comprehension of my description.

I just find it amazing that other doctors are stagnating in some kind

of " holding pattern " instead of capitalizing on a means to help their

patients who in a desperate plight.

-

[Guest guest]

What a coincidence! 1.) I joined your group and 2.) I started

reading " Mold Warriors " . Both today. In fact, I even read 's

section because I worked up in Tahoe around the same time as he did.

Because of a total CFIDs-like relapse due to quite a collection of

factors, I'm in the process of starting a protocol roughly based on

Shoemaker's work. A little of Marshall's too maybe. It's with a

doctor in Santa , CA. Among other things, I'm using choley resin

daily (cholystyramine)and have submitted blood tests for the

complete Shoemaker panel. Results for all sorts of wild diagnostics

announced March 7, my next appointment.

It's curious because I got CFIDs back in 1988 in San Francisco

working in a sick network TV building. Just never pursued it. Too

tired and would have had to go through Workers Comp on top of

everything else. I was in a union. Talk about hellish. So I just

bailed. (Later I learned that there were about twenty miscarriages

around that same period, same building.)

I finally got better but never ~all~ the way and then all sorts of

disasters hit me (including a roof-caved-in wet house.)

I'm particularly intrigued by the genetic aspect of Shoemaker's

mold/toxins stuff because along the way, I was found to possess both

celiac genes: HLA DQ2 and HLA DQ8. I also have the Marsh III villous

atrophy damage to the small intestine as proven by biopsy. So I'm

now 100% gluten and dairy free but still full-on celiac..

And talk about luck, I was also recently poisoned by a salmon:

Scombroid Histamine Poisoning that caused a 911 call. Anaphylactic-

like reaction. Nearly died and have never been the same. That's what

finally forced me to try again to find a doctor who could help.

But I lucked out this time. I was referred to an extremely good

Integrative M.D. in Santa and that's why I'm reacquainting and

studying up on all these therapies now.

Y'know, I just can't help but notice all the similarities I had (and

have!) to the mold/toxin people not to mention that one of my celiac

genes is on the " too bad " list in the book.. dang.

Anyway, I just thought I'd say hi and if anybody else is at the end

of their rope and needs the name of a good doctor who'll work like a

detective, I'm relieved to say I think I've found one around here.

So just email me privately for his name.

Oops. It's late. Gotta crash :-)

~Robin

[Guest guest]

> Dr Shoemaker is the only doctor I have found who absolutely

> understands every nuance.

> He knows exactly what I am talking about and conveys it back to me

> in words that show perfect comprehension of my description.

> I just find it amazing that other doctors are stagnating in some

> kind of " holding pattern " instead of capitalizing on a means to help

> their patients who in a desperate plight.

> -

Hi . So glad to hear these good things about Dr Shoemaker since

I'm just starting the whole business with one of his " followers " out

here. The choley resin is working for me but the poisoning somehow

got me into a candida zone and so I'm also having to deal with that

too. I eat Paleo -- only meat, vegetables, bone/root broths and

ferments.

Sugar and starches have always been difficult and even with that

minimal amount I'm having the candida stuff. I even got thrush. Uck.

Do enzymes help you and also do you take HCl with meals? Since i had

an h, pylori ulcer two years ago I produce like no stomach acid and

those HCl's have been a real help..

Thanks for sharing your story.

~Robin

[Guest guest]

Hi .

Do enzymes help you and also do you take HCl with meals? Since i had

an h, pylori ulcer two years ago I produce like no stomach acid and

those HCl's have been a real help..

~Robin

Prior to mold avoidance, no digestive enzymes, supplements or anything

else I did seemed to help.

After six months, none of them seemed necessary.

I've taken no medications at all since 2001 when I was knowingly in a

mycotoxin zone and was trying to compensate with CSM.

I finally got tired of fighting to stay alive in a moldy area and got

out.

Since then I take nothing, not even aspirin.

-

[Guest guest]

wrote:

> This " Universal Reactor " state is absolutely death defying. In an

>advanced stage of reactivity, a Universal Reactor wouldn't be caught

>dead without some means of commiting " euthanasia " . The worst fear is

>hitting a point in which doctors keep you alive against your will

and

>having no means to reason with them and get out of the situation.

, I know what you are talking about. I think in the Fall and a

week or two after the Full Moon, I become a Universal Reactor. (I

don't know why the Full Moon affects me.) The amount of time I spend

in a Universal Reactor state has been increasing over time, but I

think I have a better understanding now of what to do about it. I

hope so at least. Shoemaker sounds like a really good doctor.

I think help or treatment may only be a few years away. Also, keep in

mind, the worst eventually passes. AND the human mind has an amazing

ability to leave the body when things get too bad. I've experienced

this and I've read that this is the universal way of coping with

really bad experiences.

I think I'll go take some Klonopin and Benadryl. That takes the edge

off for me.

Vickie

[Guest guest]

See, mold avoidance doesn't seem to be the simple answer for me.. at least

not yet. Or maybe I have mold in my house. My house used to be a flat roof

structure but that roof failed, flooded and soaked all the insulation in the

drywall. I thought we replaced most of it but maybe there's a problem

there..

The crawl space under the house is wet year round; We're at the base of a

hill :-/

I'm going to have someone look at it. You don't happen to know of a good

mold inspection/remediation company around here -- Northern California?

I know my house sounds like a recipe for mold, but the house gets so much

fresh air and I sleep with the windows open. I also have Austin air cleaners

in many of the rooms, including the bedroom of course. In the summer, it

gets so incredibly hot under the roof I think that would kill ~any~ mold

that might be growing in the old flat roof that's still under the new

pitched roof...

I also don't smell any mold in my house. However........ if I even get a

tiny whiff of ANY kind of mold outside or, well, anywhere, it really knocks

me for a loop. I mean it's like a direct hit to the brain, bam!, so I know

that something's going on there...

I think I mentioned I still have oral candidiasis (thrush) and so maybe my

thing is a deep candida problem.. Maybe the candida mold is causing me to

have that super-sensitivity to the outdoor (safe) molds...

Here's a pretty cool site I found that explains all the different molds. It

helped me to understand what Dr. Shoemaker was referring to in his book:

http://www.moldacrossamerica.org/MoldProfiles.htm

Glad to hear you're doing so well, . By the way, were you one of the

mold genotypes? You know the HLA DR stuff ... Also do you happen to have

long arms -- I'm serious :-) -- I was surprised to read about the case of

the other woman, , who happened to be so naturally flexible and whose

" wingspan " is wider than she was tall. Dr. Shoemaker said he noticed that

seemed to be a common trait among people with low MSE... Curious, huh?

Anyway, was able to get away from the mold but still had symptoms.

Dr. Shoemaker said he would love to be able to prescribe MSE for her but it

was still not FDA approved...

And BTW what is a Universal Reactor? I haven't heard that term before.

Thanks.

~Robin

[Guest guest]

Marie, I think when we have chronic fungal infections, and generate

lots of antibodies to them, we are more sensitive to mold.

THe long wingspan thing, I discussed with Kurt Rowley a while back. I

think its a marker for marfan's disease--but like all diseases that

runs on a clinical spectrum. Its a connective tissue disorder and

perhaps someday they'll find that whatever genes are involved there

are also next to or involved with mold genes, or that the connective

tissue disorder makes you more sensitive. I have long arms/legs, a

slight scoliosis, and a slight pectum whatever it is--anyway, my

sternum is a little unusually shaped. So I probably have a subclinical

version of Marfan's, or I'm on that spectrum. You could compare it to

the autism spectrum--some kids are in a terrible state and very

nonfunctional, others are high functioning aspergers' who have

successful careers and marriages, but have some mildly autistic traits.

I think I asked Kurt to forward my email to Dr. Shoemaker, and also

curious what Dr. Schaller thinks, I think one would find a connection,

and its a Marfans' type connection.

> Glad to hear you're doing so well, . By the way, were you one of the

> mold genotypes? You know the HLA DR stuff ... Also do you happen to have

> long arms -- I'm serious :-) -- I was surprised to read about the

case of

> the other woman, , who happened to be so naturally flexible

and whose

> " wingspan " is wider than she was tall. Dr. Shoemaker said he noticed

that

> seemed to be a common trait among people with low MSE... Curious, huh?

> Anyway, was able to get away from the mold but still had

symptoms.

> Dr. Shoemaker said he would love to be able to prescribe MSE for her

but it

> was still not FDA approved...

>

> And BTW what is a Universal Reactor? I haven't heard that term before.

> Thanks.

>

> ~Robin

>

>

>

[Guest guest]

" Vickie " wrote:

> , I know what you are talking about. I think in the Fall and a

week or two after the Full Moon, I become a Universal Reactor. (I

don't know why the Full Moon affects me.) The amount of time I spend

in a Universal Reactor state has been increasing over time, but I

think I have a better understanding now of what to do about it. I

> hope so at least. Shoemaker sounds like a really good doctor.

>

So far, Dr Shoemaker is the only doctor I've encountered who ACTS

just like a doctor is supposed to, and follow up on little clues

such as the one you just described.

My intense reactivity to mold allows me to make observations that

others have no interest in, but which are critical factors to me.

The intense gravity at the Full Moon initiates a greater propensity

for mycotoxin release. This is similar to weather changes, when

areas of toxigenic molds should be avoided to escape increased

exposure to mycotoxins.

One might think that if a prototype for CFS figured out anything

that allowed a demonstrable control over symptoms, that sufferers

and doctors would be interested in examining the clues.

Instead, the anomaly is rejected on the basis of " Who the Hell do

you think you are? "

I'm the Incline Village survivor who walked out of the NIH/CFS

study - ampligen program at a severe point of illness and returned

six months later with pictures of myself on top of Mt. Whitney by

following a strategy of extreme avoidance of mycotoxins.

Dr Shoemaker, whose credo is " In the face of obvious abnormalities,

skepticism is inappropriate " was the only person to view this

abnormality without a level of skepticism that caused instant

dismissal of the concept.

-

[Guest guest]

FUll Moon today at 4:45 am EST.

A sign of Magnesium deficiency is suicidal thoughts.

In a message dated 2/13/2006 4:40:51 PM Eastern Standard Time,

vickie77077@... writes:

, thanks for the information about mycotoxin release being

initiated by gravity of the Full Moon. I have been searching a long

time for information that would explain that. I keep one eye on the

calendar because I sometimes feel suicidal on the Full Moon. (I don't

normally feel suicidal at other times.) It helps me keep things in

perspective: " Oh, it's just the @#$% & * Full Moon. " It really freaked

me out that died on the Full Moon, and Bob committed suicide on

the Full Moon. (Bob and , we miss you.)

Vickie

>

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Wow, you do indeed sound like a classic case of mold illness.

" Safe outdoor molds " ? Why would a mold spore that was dangerous to

your lungs indoors suddenly turn safe if it happens to drift outside?

As far as I can tell, your lungs don't care if the mold you inhale

has walls around you or not. Only the " Indoor Air Quality Experts "

have this strange notion. I'm not sure why anybody believes it when

this is so obviously wrong.

In '98 I found a CFS support group leader who had to drive eight

miles out of her way to avoid a specific Eucalyptus grove or be

knocked for a loop for days afterward, but believed the likely

culprit was terpenes from Eucalyptus - which is the same answer I

got when I described the similar problem to doctors. But I had

noticed that I didn't have a consistent response to all Eucalyptus,

which raised an inconsistency.

I simply got a sample of the offending mold, Stachybotrys, tested

myself - and recognized the familiar " hits "

When I asked the CFS group leader about this inconsistency, you

could hear it in her voice: " No, that's the funny thing. It isn't to

all Eucalyptus, just this grove! "

This was something I had a great deal of trouble with as described

in Mold Warriors, when I was hang gliding and flew through a spore

plume over Mt Hull and got knocked out of the sky in 1984.

It was such an intense plume that I thought that I'd pass out while

I was flying seven miles back to the landing area.

Yes I have the double dreaded mold gene and wingspan, but that

seems to correspond to the most extreme case - not as an exclusion

to see who WON " T get sick. These mycotoxins are bad - to anyone and

anything.

A " Universal Reactor " is an victim of chemical sensititivies who is

assaulted by so many susceptibilities that continued survival

outside of a bubble is almost impossible. I was amazed when mold

avoidance alone abated my other reactivities.

If you saw Annettes description of becoming ill after unpacking

clothing from a moldy flat, you must realize that this is a level of

induced response that is far beyond the abilities of remediation

companies to deal with. This is a " moment to moment " strategy of

survival that depends entirely upon your ability to assess exposure

and take appropriate action.

Some reject this type of approach with disdain " That's not a cure " .

No, it is not. But instead of lying flat on my back praying for

death, I've spent years out having adventures and wondering why

people would make the choice to remain completely out of control of

their illness when they complain so much that they " would do

anything " .

Even if researchers are not interested in prescribing avoidance

protocols, at least this abnormality is a significant clue, one that

should have been investigated twenty years ago when I brought it to

the attention of researchers, but remained actively dismissed and

rejected until Dr Shoemaker looked at my story and asked " How the

Hell can he do that? "

-

robin ann <grainwreck@...> wrote:

> See, mold avoidance doesn't seem to be the simple answer for me..

at least not yet. Or maybe I have mold in my house. My house used to

be a flat roof structure but that roof failed, flooded and soaked

all the insulation in the drywall. I thought we replaced most of it

but maybe there's a problem there..

>

> The crawl space under the house is wet year round; We're at the

base of a hill :-/ I'm going to have someone look at it. You don't

happen to know of a good mold inspection/remediation company around

here -- Northern California?

> I know my house sounds like a recipe for mold, but the house gets

so much fresh air and I sleep with the windows open. I also have

Austin air cleaners in many of the rooms, including the bedroom of

course. In the summer, it gets so incredibly hot under the roof I

think that would kill ~any~ mold that might be growing in the old

flat roof that's still under the new pitched roof...

>

> I also don't smell any mold in my house. However........ if I even

get a tiny whiff of ANY kind of mold outside or, well, anywhere, it

really knocks me for a loop. I mean it's like a direct hit to the

brain, bam!, so I know that something's going on there...

>

> I think I mentioned I still have oral candidiasis (thrush) and so

maybe my thing is a deep candida problem.. Maybe the candida mold is

causing me to have that super-sensitivity to the outdoor (safe)

molds...

> Here's a pretty cool site I found that explains all the different

molds. It helped me to understand what Dr. Shoemaker was referring

to in his book:

>

> http://www.moldacrossamerica.org/MoldProfiles.htm

>

> Glad to hear you're doing so well, . By the way, were you one

of the mold genotypes? You know the HLA DR stuff ... Also do you

happen to have long arms -- I'm serious :-) -- I was surprised to

read about the case of the other woman, , who happened to be

so naturally flexible and whose " wingspan " is wider than she was

tall. Dr. Shoemaker said he noticed that seemed to be a common trait

among people with low MSE... Curious, huh?

> Anyway, was able to get away from the mold but still had

symptoms. Dr. Shoemaker said he would love to be able to prescribe

MSE for her but it was still not FDA approved...

>

> And BTW what is a Universal Reactor? I haven't heard that term

before.

> Thanks.

>

> ~Robin

>

>

>

[Guest guest]

Vickie

If you are the person who cannot tolerate oral Magnesium, even in small

doses.....

then, before you see you doc, invest $2.00 in 4 lbs of Epsom salts and use 2

to 3 cups in a nice warm soaking bath.... do this several times a week. I

take them daily before bed.

Some of the Mg and SO4 will be absorbed through your skin, this will be

relaxing, so take your healing bath just before bedtime.

Hope this helps

mjh -- who responds to those natural signals, too.

In a message dated 2/13/2006 6:13:37 PM Eastern Standard Time,

vickie77077@... writes:

mjh, that's interesting. I am going to ask my doctor for magnesium

shots next time I go in.

Vickie

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Vickie

I am needle adverse... but I have had IVs of MgSO4, not by choice.

My body needs significants amounts of Mg and I take small doses of liquid

form several times daily usually. Very effective for me, and a whole lot

cheaper than prescription injectable versions.

Hope this helps

mjh

In a message dated 2/13/2006 6:34:02 PM Eastern Standard Time,

vickie77077@... writes:

mjh, I can tolerate magnesium. It is sulfur that I have problems

with. I just recently discovered Epsom salts baths, lotion, etc., and

find it VERY helpful. Have you ever tried the magnesium shots? I

understand that they are available as either magnesium sulfate or

magnesium chloride, with taurine for pain. Epsom salts baths sound a

lot better than shots, though. hmm.

Vickie

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

I start feeling the moon effects about three days beforehand.

mjh

In a message dated 2/13/2006 7:19:19 PM Eastern Standard Time,

grainwreck@... writes:

The magnesium shots have REALLY helped me. And thanks for the moon info. I'm

having a particularly bad time now and, of course, we're having a full moon

here too. :-)

~Robin

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

, thanks for the information about mycotoxin release being

initiated by gravity of the Full Moon. I have been searching a long

time for information that would explain that. I keep one eye on the

calendar because I sometimes feel suicidal on the Full Moon. (I don't

normally feel suicidal at other times.) It helps me keep things in

perspective: " Oh, it's just the @#$% & * Full Moon. " It really freaked

me out that died on the Full Moon, and Bob committed suicide on

the Full Moon. (Bob and , we miss you.)

Vickie

>

> > wrote:

>

> So far, Dr Shoemaker is the only doctor I've encountered who ACTS

> just like a doctor is supposed to, and follow up on little clues

> such as the one you just described.

> My intense reactivity to mold allows me to make observations that

> others have no interest in, but which are critical factors to me.

> The intense gravity at the Full Moon initiates a greater

propensity

> for mycotoxin release. This is similar to weather changes, when

> areas of toxigenic molds should be avoided to escape increased

> exposure to mycotoxins.

> One might think that if a prototype for CFS figured out anything

> that allowed a demonstrable control over symptoms, that sufferers

> and doctors would be interested in examining the clues.

> Instead, the anomaly is rejected on the basis of " Who the Hell do

> you think you are? "

> I'm the Incline Village survivor who walked out of the NIH/CFS

> study - ampligen program at a severe point of illness and returned

> six months later with pictures of myself on top of Mt. Whitney by

> following a strategy of extreme avoidance of mycotoxins.

> Dr Shoemaker, whose credo is " In the face of obvious abnormalities,

> skepticism is inappropriate " was the only person to view this

> abnormality without a level of skepticism that caused instant

> dismissal of the concept.

> -

>

[Guest guest]

I'd think this had to do with lymphatics. Think about the tides and

the moons. I bet your lymphatic system " swells " during a full moon and

if you're already toxic that would make you feel worse.

> >

> > So far, Dr Shoemaker is the only doctor I've encountered who ACTS

> > just like a doctor is supposed to, and follow up on little clues

> > such as the one you just described.

> > My intense reactivity to mold allows me to make observations that

> > others have no interest in, but which are critical factors to me.

> > The intense gravity at the Full Moon initiates a greater

> propensity

> > for mycotoxin release. This is similar to weather changes, when

> > areas of toxigenic molds should be avoided to escape increased

> > exposure to mycotoxins.

> > One might think that if a prototype for CFS figured out anything

> > that allowed a demonstrable control over symptoms, that sufferers

> > and doctors would be interested in examining the clues.

> > Instead, the anomaly is rejected on the basis of " Who the Hell do

> > you think you are? "

> > I'm the Incline Village survivor who walked out of the NIH/CFS

> > study - ampligen program at a severe point of illness and returned

> > six months later with pictures of myself on top of Mt. Whitney by

> > following a strategy of extreme avoidance of mycotoxins.

> > Dr Shoemaker, whose credo is " In the face of obvious abnormalities,

> > skepticism is inappropriate " was the only person to view this

> > abnormality without a level of skepticism that caused instant

> > dismissal of the concept.

> > -

> >

>

[Guest guest]

mjh, that's interesting. I am going to ask my doctor for magnesium

shots next time I go in.

Vickie

>mjh wrote:

>

> FUll Moon today at 4:45 am EST.

>

> A sign of Magnesium deficiency is suicidal thoughts.

>

>

> In a message dated 2/13/2006 4:40:51 PM Eastern Standard Time,

> vickie77077@... writes:

>

> , thanks for the information about mycotoxin release being

> initiated by gravity of the Full Moon. I have been searching a

long

> time for information that would explain that. I keep one eye on

the

> calendar because I sometimes feel suicidal on the Full Moon. (I

don't

> normally feel suicidal at other times.) It helps me keep things in

> perspective: " Oh, it's just the @#$% & * Full Moon. " It really

freaked

> me out that died on the Full Moon, and Bob committed suicide

on

> the Full Moon. (Bob and , we miss you.)

>

> Vickie

> >

>

>

>

>

> mjh

> " The Basil Book "

> http://foxhillfarm.us/FireBasil/

>

>

>

[Guest guest]

Jill, that makes sense. I wonder if the fluid in the brain increases

too.

Vickie

>Jill wrote:

>

> I'd think this had to do with lymphatics. Think about the tides and

> the moons. I bet your lymphatic system " swells " during a full moon and

> if you're already toxic that would make you feel worse.

>

[Guest guest]

mjh, I can tolerate magnesium. It is sulfur that I have problems

with. I just recently discovered Epsom salts baths, lotion, etc., and

find it VERY helpful. Have you ever tried the magnesium shots? I

understand that they are available as either magnesium sulfate or

magnesium chloride, with taurine for pain. Epsom salts baths sound a

lot better than shots, though. hmm.

Vickie

>mjh wrote:

>

> Vickie

>

> If you are the person who cannot tolerate oral Magnesium, even in

small

> doses.....

>

> then, before you see you doc, invest $2.00 in 4 lbs of Epsom salts

and use 2

> to 3 cups in a nice warm soaking bath.... do this several times a

week. I

> take them daily before bed.

>

> Some of the Mg and SO4 will be absorbed through your skin, this

will be

> relaxing, so take your healing bath just before bedtime.

>

> Hope this helps

> mjh -- who responds to those natural signals, too.

>

[Guest guest]

Wow. , this is indeed a serendipitous thing to have stumbled on this

group, and you!, while picking up " Mold Warriors " for the very first time...

Okay. My wet home, lies just downwind of one of the world's largest (I

swear!) eucalyptus groves. It is mammoth and hundreds of feet tall. You

would not want to visit me :-)

The giants trees serve as a great big block of the regular west wind that

comes off the ocean (I'm in Petaluma) Our house, yard and lives are

continually littered with eucalyptus leaves. The trees were here long before

our house, over a hundred years, and so the soil is probably, to a large

degree, Eucalyptus mulch.

So now there's that...

Okay and then I have the long arms thing :-)

I also happen to know I have the two celiac genes (rare) because of the

celiac test. One of these two is on the list of the double dreaded genes.. I

find out March 7th what my whole component is because my doctor ran the

complete " Shoemaker Panel " , including MSH and VEGF and thatsort of thing. He

also is testing the VitD's for inflammation ala Marshall but that's another

story...

Right now, I'm looking for someone to test the molds on the year-round wet

crawl space under the house. I wonder if they're lookingfor the same thing

you're talking about? Sound like not...

So question: The mold you are talking about favors Eucalyptus trees? Or

what's the connection...?

Okay. Also, it sounds like I might want to move to a different house...

Where is there the least possibility of this stuff you're talking

about? Everywhere I like seems to be pretty moist -- I grew up in

Oregon... My husband works in San Francisco but it's okay if I move away for

awhile if it'll help me get well..

And Thanks!!, . You seem to have already helped at least one person by

your story in the book... Put me in a direction...

:-)

~Robin

[Guest guest]

The magnesium shots have REALLY helped me. And thanks for the moon info. I'm

having a particularly bad time now and, of course, we're having a full moon

here too. :-)

~Robin

[Guest guest]

Sorry . ERIK. I keep spelling your name wrong. Ack!! ~Robin

[Guest guest]

robin ann wrote:

>

> Sorry . ERIK. I keep spelling your name wrong. Ack!! ~Robin

>

Thanks. I don't want people to confuse me with those damned Swedes!

That would be simply Ludefisk!

The Eucalyptus grove where I first said " Hey. What the heck is

different about THIS grove? " was at the end of Lincoln Ave in San

, not too far from the " Lloyd WRONG " Civic Center.

Most eucs don't bother me at all so.

Just like houses.

Eucalyptus is a great source of decomposing cellulose, favorite food

for toxic mold.

I used to have the problem with the " Moon " thing, took me a long

time to figure out the association with mold release and take

appropriate measures.

Part of the " test " that confirms " Times of mycotoxin release " is to

experience similar times in a pristine location.

When the Moon and " weather changes " fail to affect you although they

must surely still be happening, the " barometric pressure on the

organs " concept is ruled out.

-