Fixing VEGF/VIP? Babesia?/Mito hyperbaric

[Guest guest]

Jill

Your comments very much appreciated.

***How do you treat low VIP and low MSH?

If all biotoxins/infections/mycotoxins inflammation gone, often will return. The

most common cause of not returning is one of these not fixed. MSH is being made

all over the world and VIP is coming also as treatments. Both should help

nerves.

Actos can turn off about 8-120 inflammation chemicals per New England J.of

Medicine. With special diet seems to work even better.

2) Do you give EOP as Dr. Shoemaker does?

Seems to help some folks.

If fatigue is due to low VEGF we use Fisol or new Metagenics enteric coated fish

oil at very high doses. I then usually do some mold spore traps to make sure no

mold, and a Babesia FISH and antibody at IGeneX.

**Also, mild hyperbaric oxygen chamber--will fix the mitocohondrial dysfunction.

Yes, it has many useful inflammation roles. Just helped write a paper on its use

with Lyme--no cure but helpful augmenter.

**Sue sent me a fantastic article from Univ Pennsylvania Medl School on

hbo increasing stem cell production and related factors....really great.

I am working on a neuron repair book and would love this reference. No surprise

at all, but do not have reference as you do. Please send.

JL Schaller, MD

jschaller@...

www.personalconsult.com

Re: Etiology/Secondary mito?/VEGF? VIP? Babesia?

Etc/Gult/CoQ10...

DR Schaller, really glad you're on this list (saying again) and

appreciate all the insights. How do you treat low VIP and low MSH? DO

you give EOP as Dr. Shoemaker does? Also, mild hyperbaric oxygen

chamber--will fix the mitocohondrial dysfunction. Sue sent me a

fantastic article from Univ Pennsylvania Medl School on hbo increasing

stem cell production and related factors....really great.

>

> > Thanks Rich.

> >

> > In my case I actually feel that I have raised Glutathione to a

> > point where I

> > get no reaction at all from Whey protein Isolate and can drink it

> > all day.

> > Ive now been on the stuff for 9 months together with other stuff

> > ( listed

> > below )!

> >

> > As I have had chronic fatigue for 16 years or so. Im still

finding

> > I get

> > POTS - so in my case raising Glutathione hasnt reversed the

> > situation. This is

> > the point where I start to agree with Dr. Myhill's views as I am

> > having

> > success with Co Q10 - your thoughts would be greatly appreciated ?

>

> This conversation brings up a few issues I'm having.

>

> First: My own experience doesn't do much to support Rich's thesis

> here, I'm afraid. I've been on big IM doses of glutathione and AMP

> since August. They've done wonders for many aspects of my ME -- my

> brain works as well as it ever did, my joints don't hurt, I sleep

> well, and my immune response seems to be quite a bit better.

>

> However, five months of this glutathione-rich regime have done not

> much more than zip for my post-exertional malaise. On an average

day,

> putting along in second or third gear, I can reliably go a quite a

> bit farther than I used to before the crash comes. But my ability to

> kick it up to fourth or fifth gear -- that is, do actual exercise --

> is no better than it was a year ago. An hour of yoga will wipe me

out

> for 36 hours. An hour of hiking will send me to bed for two days.

> Even too many trips up and down the stairs (we have a three-story

> house) in a single day will take their toll. Basically, if I get my

> heart rate up over about 120 for more than about 30 seconds, that

> will IT for me for a long, long time. More frighteningly (for

reasons

> that will come clear below), this is NOT getting better with age.

>

> My suspicion is that this ongoing situation is quite possibly linked

> to OI/POTS. Which brings me to the second issue:

>

> I have never, ever been able to convince a doctor to test me for

> POTS. Both my California doctor and my Canadian one just look at me

> like I'm from the moon when I mention it. Even my FFC doctor is

> totally unfamiliar with this particular theory (and did not seem

> interested in being educated in it when I mentioned it).

>

> Which really frustrates me, because if you go up my mother's family

> line, half of everyone back to the Civil War died before 60 of

> congestive heart failure. My mother is one of four sisters. Their

> mother, my grandmother, died at 61. The youngest sister had

> congestive heart failure at 50, and spent 7 months in the hospital

> recovering. The oldest one had it at 57, and is now in her 12th year

> with somebody else's heart. Two of their eight children (my

> generation) had heart defects from childhood; one died of congestive

> heart failure at the age of seven.

>

> So here I am, with this raging family history of heart trouble,

and a

> 28-year history with a disease that leads to (and may be caused by)

> congestive heart failure. Nonetheless, I can't get anyone to strap

me

> to a tilt table to save my life (possibly literally). They will put

> me on a treadmill, where I'll perform like a champ. My valves are

> perfect; my recovery rate amazingly good for someone who does NO

> aerobic exercise at all. So, in their eyes, I'm fine. What they

don't

> see is the fact that, after they unhook me and send me home, I go

> straight to bed and spend the next few days there.

>

> I CANNOT get anyone to take this seriously. Anybody got any social

> engineering suggestions for getting some attention about this?

>

> Sara

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested in

any treatment discussed here, please consult your doctor.

>

>

>

>

[Guest guest]

Hi Dr Schaller,

I don't have your email addy and read this group on the groups

site, so can't attach a file from here I don't think. SO if you don't

mind, send me a quick email at jenbooks13@... and I'll forward

you the PDF of the hyperbaric article that Sue sent.

I'm almost done with a book I've been working on for 18 months and

then I may try having some testing done or perhaps asking you to

consult with my doc. I want to do some genovations testing if I can

temporarily become a citizen of another state , and look at the

methylation cycle stuff that some of us have become so intrigued by.

The DAN protocol is very good, but it obviously misses a good deal of

what you and a few others are doing.

Yes, you're right, hbo is rarely a cure for lyme and these conditions

but is very helpful for lots of reasons. I'm glad a few docs in the

northeast are finally getting hbo chambers (Dr. Bock, and now

apparently Dr. Schachter). The mild chambers, I mean. Those are

relatively low cost and easy to maintain and safe (don't need trained

hyperbaric techs).

Do you use antifungal drugs and antibiotics? I find for various

reasons these are hard to tolerate. I used a lot of stabilized

allicin recently and it is fairly effective but extremely hard on the

stomach lining as well as, definitely would protect you from bird flu

cuz everybody smells it and stays away so nobody would ever breathe on

you . I stopped using it as my body really needed a break.

> >

> > > Thanks Rich.

> > >

> > > In my case I actually feel that I have raised Glutathione to a

> > > point where I

> > > get no reaction at all from Whey protein Isolate and can

drink it

> > > all day.

> > > Ive now been on the stuff for 9 months together with other

stuff

> > > ( listed

> > > below )!

> > >

> > > As I have had chronic fatigue for 16 years or so. Im still

> finding

> > > I get

> > > POTS - so in my case raising Glutathione hasnt reversed the

> > > situation. This is

> > > the point where I start to agree with Dr. Myhill's views as

I am

> > > having

> > > success with Co Q10 - your thoughts would be greatly

appreciated ?

> >

> > This conversation brings up a few issues I'm having.

> >

> > First: My own experience doesn't do much to support Rich's

thesis

> > here, I'm afraid. I've been on big IM doses of glutathione and

AMP

> > since August. They've done wonders for many aspects of my ME

-- my

> > brain works as well as it ever did, my joints don't hurt, I

sleep

> > well, and my immune response seems to be quite a bit better.

> >

> > However, five months of this glutathione-rich regime have done

not

> > much more than zip for my post-exertional malaise. On an average

> day,

> > putting along in second or third gear, I can reliably go a

quite a

> > bit farther than I used to before the crash comes. But my

ability to

> > kick it up to fourth or fifth gear -- that is, do actual

exercise --

> > is no better than it was a year ago. An hour of yoga will wipe me

> out

> > for 36 hours. An hour of hiking will send me to bed for two

days.

> > Even too many trips up and down the stairs (we have a

three-story

> > house) in a single day will take their toll. Basically, if I

get my

> > heart rate up over about 120 for more than about 30 seconds,

that

> > will IT for me for a long, long time. More frighteningly (for

> reasons

> > that will come clear below), this is NOT getting better with age.

> >

> > My suspicion is that this ongoing situation is quite possibly

linked

> > to OI/POTS. Which brings me to the second issue:

> >

> > I have never, ever been able to convince a doctor to test me for

> > POTS. Both my California doctor and my Canadian one just look

at me

> > like I'm from the moon when I mention it. Even my FFC doctor is

> > totally unfamiliar with this particular theory (and did not seem

> > interested in being educated in it when I mentioned it).

> >

> > Which really frustrates me, because if you go up my mother's

family

> > line, half of everyone back to the Civil War died before 60 of

> > congestive heart failure. My mother is one of four sisters.

Their

> > mother, my grandmother, died at 61. The youngest sister had

> > congestive heart failure at 50, and spent 7 months in the

hospital

> > recovering. The oldest one had it at 57, and is now in her

12th year

> > with somebody else's heart. Two of their eight children (my

> > generation) had heart defects from childhood; one died of

congestive

> > heart failure at the age of seven.

> >

> > So here I am, with this raging family history of heart trouble,

> and a

> > 28-year history with a disease that leads to (and may be

caused by)

> > congestive heart failure. Nonetheless, I can't get anyone to strap

> me

> > to a tilt table to save my life (possibly literally). They

will put

> > me on a treadmill, where I'll perform like a champ. My valves

are

> > perfect; my recovery rate amazingly good for someone who does NO

> > aerobic exercise at all. So, in their eyes, I'm fine. What they

> don't

> > see is the fact that, after they unhook me and send me home,

I go

> > straight to bed and spend the next few days there.

> >

> > I CANNOT get anyone to take this seriously. Anybody got any

social

> > engineering suggestions for getting some attention about this?

> >

> > Sara

> >

> >

> >

> > This list is intended for patients to share personal experiences

> with each other, not to give medical advice. If you are interested in

> any treatment discussed here, please consult your doctor.

> >

> >

> >

> >