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I know Gabe Mirkin treats his patients who have Crohn's disease and ulcerative

colitis, bleeding ulcers in the intestines and colon with antibiotics. My

niece's stomach ulcers were treated successfully with antibiotics too. She

developed Crohn's which her husband has had for 20 years which resulted in him

having dramatic surgery to remove part of his intestines. She was cured with a

regimen of antibiotics. Makes you wonder about the infectious theory here too,

doesn't it?

The Mirkin Report ofJan/99 addresses this issue on the front page. I wasn't

aware that these diseases were being treated as autoimmune and patients given

Methotrexate, prednisone and all the usual garbage.

Hope you get some answers from your doctor.

Bev

rheumatic (no subject)

>From: " , Pat " <pkeith@...>

>

> Has anyone been diagnosed with stomach ulcers? Where did your pain occur?

I understand it is most often between the breastbone and the navel. Mine is

mostly on the left side beneath the rib. I am wondering if it may be something

else in addition to the ulcers which the doctor saw. What treatments did you

use?

> Thanks for writing.

>Pat K.

>

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  • 1 month later...
  • 1 year later...
Guest guest

Connie - For your first visit to Dr. G, write down all of your questions

ahead of time because, if you're like me, you might get flustered and forget

half the stuff you wanted to ask. As for " natural " antioxidants, Dr. Goldberg

frowns on giving any supplements other than reputable children's vitamins,

and he is very leary of " natural " products, because of possibly unknown

effects on our kids.

The first blood draw is pretty massive. We got some EMLA cream and put it on

the needle sites about half an hour before the blood draw, covered with tape.

I asked the nurse to place a VCR right in front of the table, and we brought

along my daughter's favorite video to watch while the blood was being drawn.

The monitor was about two feet away so it was a great distraction. Also, we

brought a favorite snack for her to munch on that she doesn't get very often

- raisins, in our case. Good luck - you're going in the right idrection.

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Blood work is never fun and there are so many tests to be done but they are

all important. Each one provides information and direction to help in the

decision making of what meds to use. Once your child is on the protocol there

will be periodic bloodwork but it is all worth it! Kathy

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  • 5 months later...
  • 6 months later...
Guest guest

Sorry you got some rude responses. Most people on this list are very nice

and helpful but some get tired of repeating things. I recently detailed

progress we've seen and will repost it for you:

<<Yes! I also had to chelate very high levels of arsenic, aluminum and

cadmium. I've had significant improvement in health and functioning. All

gone now: extreme tired spells (like narcolepsy), constant fatique,

difficulty concentrating, brain fog, difficulty remembering the right words

to say, slurring of words, difficulty making eye contact or keeping eyes

focused, allergic to everything, constant sinus and bladder trouble,

difficulty digesting things, clumsiness (ok, I still have bouts of this

sometimes, hee hee), constant need to clear throat, lack of desire and

motivation, major phobias and fears, dizziness, mood swings, etc etc. Also

major hormonal imbalances nearing correction. >>

My son started chelating when he was 6 (he's now 9) and he's had improvements

in all areas. Specifically, I've seen the following improvements since then:

-Used to be overwhelmed by crowds and noise -- now seeks out events and

social gatherings.

- Major burst in conversational language, ability to discuss things and share

things that are important to him

- Significant lessening in visual problems, was unable to converge his eyes,

had blind spots, couldn't track now most of visual problems are gone

- Major allergies and sensativities now lessened -- we've been able to add

back some foods he was allergic to

- Significant increase in muscle tone, strength, dexterity and stamina

- Digestive and stool problems almost gone (used to alternate between

constipation and loose stools)

- Seizures almost gone

- Much more aware and involved in life, able to focus on school work now,

memory problems significantly lessened

I'm sure there is more. One important thing to note is that we have done

other therapies along with chelation, which I think is very important since

you have to rebuild what the child has lost. Best wishes,

Gaylen

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Well now, we are ALL very busy and struggling and digging deep withing ourselves to come up with the strength to handle the day-to-day of bringing up an autistic child. But as parents, that's our job. Again, I encourage you to look through the archives until you have specific questions. Can you share with us a little information about your son's progress so far? How old is he? Is he on any special diets? Is he physically or sensory delayed? Is he verbal? All of this information will be helpful for us to answer some of your questions. Please be patient and stay with it. Chelation is worth every moment of your time.

[ ] (no subject)

I made a polite request for chelation success stories to be posted to the list. So far, I have received two VERY rude responses. I don't have time to read the archives and pick out the success stories. I'M TOO BUSY TRYING TO FIX MY KID AND FIND SOME STUFF THAT WILL CONVINCE MY HUSBAND THAT WE NEED TO CHELATE. I thought printing out a load of success stories might help. =======================================================

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Wendi,

Thank you for a wonderful Belly Laugh!!!! SO true. So frustrating.

[ ] (no subject)

I made a polite request for chelation success stories to be posted to the list. So far, I have received two VERY rude responses. I don't have time to read the archives and pick out the success stories. I'M TOO BUSY TRYING TO FIX MY KID AND FIND SOME STUFF THAT WILL CONVINCE MY HUSBAND THAT WE NEED TO CHELATE. I thought printing out a load of success stories might help. =======================================================

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Guest guest

That is too bad that you received some rude responses. In the File

section on the side, someone pulled all of the stories

about " Kenny " . I hope that is easier for you.

Personally, after this last weekend, I have seen some success with my

son. His mannerisms are more " boyish " than " stimmish " . And he will

repeat up to 4 syllable words, where before his language has been

more difficult lately.

> I made a polite request for chelation success stories to be posted

to the

> list. So

> far, I have received two VERY rude responses.

>

> I don't have time to read the archives and pick out the success

stories. I'M

> TOO BUSY TRYING TO FIX MY KID AND FIND SOME STUFF THAT WILL

> CONVINCE MY HUSBAND THAT WE NEED TO CHELATE.

>

> I thought printing out a load of success stories might help.

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Maybe we don't have time to post our success stories because we are busy with OUR kids!!! I posted once, that's what the ARCHIVES are for. Sorry its an inconvenience. I did my research at all hours of the night, after my kids are sleeping. Don't expect everybody to stop what they are doing and kiss your butt sister!!

There, now 3 rude responses!!!!!

[ ] (no subject)

I made a polite request for chelation success stories to be posted to the list. So far, I have received two VERY rude responses. I don't have time to read the archives and pick out the success stories. I'M TOO BUSY TRYING TO FIX MY KID AND FIND SOME STUFF THAT WILL CONVINCE MY HUSBAND THAT WE NEED TO CHELATE. I thought printing out a load of success stories might help. =======================================================

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  • 3 weeks later...
Guest guest

Did they study the toxicity levels of the parents? Did mercury and other toxins

cause these differences pre-birth?

S

On Fri, 27 April 2001, fullarmor@... wrote:

>

> <html><body>

> <tt>

> <BR>

> Very Early Markers of Autism, Mental Retardation Identified WASHINGTON <BR>

> (Reuters Health) Apr 25 - Elevated levels of certain neuropeptides and <BR>

> neurotrophins at birth appear to foreshadow the development of autism or <BR>

> mental retardation later in childhood, researchers said Wednesday. Dr. Karin

<BR>

> B. , of the National Institute of Neurological Disorders and Stroke,

<BR>

> Bethesda, land, studied archived neonatal blood samples from children <BR>

> born in four northern California counties from 1983 to 1985 who later <BR>

> developed autism, mental retardation, or cerebral palsy, or developed <BR>

> normally. & quot;Of the analytes tested, vasoactive intestinal peptide <BR>

> concentrations separated children with autism or mental retardation from <BR>

> control children most effectively, but calcitonin gene-related peptide, <BR>

> brain-derived neurotrophic factor, and neurotrophin 4/5 concentrations <BR>

> discriminated nearly as well, & quot; the team reports in the May issue of the

<BR>

> ls of Neurology. Children who developed autism or mental retardation had,

<BR>

> on average, three times as much of these neural growth factors in peripheral

<BR>

> blood as the other subjects. Dr. told Reuters that despite the <BR>

> similarities in the early biological markers for autism and childhood mental

<BR>

> retardation, there is no reason to think they are the same disorder. <BR>

> According to the results of previous research, neural growth factors are <BR>

> crucial in the production of new neurons and the organization of those cells

<BR>

> into distinct networks. The researchers said the abnormal abundance of neural

<BR>

> growth factors in autistic and retarded children may disrupt the normal <BR>

> process of cell migration, differentiation and programmed death during early

<BR>

> nervous system development. & nbsp; & nbsp; & nbsp; & nbsp; Copyright © 2000 Reuters

Ltd. All rights <BR>

> reserved. Republication or redistribution of Reuters content is expressly <BR>

> prohibited without the prior written consent of Reuters. Reuters shall not be

<BR>

> liable for any errors or delays in the content, or for any actions taken in

<BR>

> reliance thereon. & nbsp; & nbsp; <BR>

> & nbsp; & nbsp; & nbsp;    & nbsp; <BR>

> RECOMMENDED LINKS & nbsp; & nbsp; <BR>

> RELATED SPECIALTIES<BR>

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> & lt;A HREF= & quot;<a

href= " http://neurology.medscape.com/home/topics/FamilyMedicine/directories/dir-F\

M.News.html " >http://neurology.medscape.com/home/topics/FamilyMedicine/directorie\

s/dir-FM.News.html</a> & quot; & gt;Family Medicine & lt;/A & gt;<BR>

> <BR>

> & lt;A HREF= & quot;<a

href= " http://neurology.medscape.com/home/network/MedStudent/directories/dir-MEDS\

..News.html " >http://neurology.medscape.com/home/network/MedStudent/directories/di\

r-MEDS.News.html</a> & quot; & gt;Med Students & lt;/A & gt;<BR>

> <BR>

> & lt;A HREF= & quot;<a

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> <BR>

> & lt;A HREF= & quot;<a

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UR.News.html</a> & quot; & gt;Neurology & lt;/A & gt;<BR>

> <BR>

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> <BR>

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ED.News.html</a> & quot; & gt;Pediatrics & lt;/A & gt;<BR>

> <BR>

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ews.html " >http://neurology.medscape.com/home/topics/psychiatry/directories/dir-P\

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  • 1 month later...
Guest guest

Good job ; You're in!

Your bud from Tucson,

Suzanne

From: LAVJULIE@...

Reply-

Subject: (no subject)

Date: Wed, 6 Jun 2001 01:00:19 EDT

Hi:

I am a new member and just wanted to test if I joined this right?

Thanks

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

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  • 4 weeks later...
Guest guest

Hi ,

I am a native Minnesotan and my son has been a patient of Dr. G for just over

a year. I would be interested in who your physician is and also see if he

would be willing to go through a physician training session. I think they

are starting these now. I now live in Illinois and have many friends in the

MPLS area. I also was at the Des Moines conference. I would be very

interested in your details. Good job getting this physician interested. It

is so hard!! If you have questions feel free to e-mail me privately!!

Thanks!! Kathy B

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Guest guest

Kathy,

You've had such a hard time. What are your doctor's saying is wrong with you?

Are you still getting Remicade treatments? I hope you find some relief soon.

Tery

kringlemom@... wrote:

> i am still running a fever and i am so dizzy. my shoulder blades are sore

>and my feet are swollen. my spine is acting like the plastic carnival snakes.

>i haven't been to work since monday. i just wish it would pass now ok?? i

>gotta go. thanks again for everything.

>

>

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Guest guest

I am sorry. you are just really going through it. I wish it would

pass too. I wish I could snap my finger and make it go away. Hang

in there sweetie. I know you can't see it right now, but there is a

light at the end of the tunnel, and I promise it is not a Choo Choo

train.

> i am still running a fever and i am so dizzy. my shoulder blades

are sore

> and my feet are swollen. my spine is acting like the plastic

carnival snakes.

> i haven't been to work since monday. i just wish it would pass now

ok?? i

> gotta go. thanks again for everything.

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Guest guest

this morning they said i was definatly in a flare. whether it is from the

sporanox i took for the nail fungus, or the fungus itself. they want me to

start taking prednisone 5mg for 7 days???

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Guest guest

Hate to say it but 5 mg. does nothing for me but guess I'm pretty bad-need

knee and hip replacement and my shoulder feels the same. Nothing has really

worked on my pain, even pain meds but 15 mgs of prednisone does take it away

but I won't take it.

Temple

Kuddle Kritters Farm

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html

http://www.homestead.com/kuddlekraft/index.html

http://www.homestead.com/kuddlekrittersdairygoats/index.html

Re: [ ] (no subject)

> this morning they said i was definatly in a flare. whether it is from the

> sporanox i took for the nail fungus, or the fungus itself. they want me to

> start taking prednisone 5mg for 7 days???

>

>

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Guest guest

,

Has your knee replacement surgery been scheduled yet? Are

they still considering doing the TKR before your abdominal

reconstruction? I remember well the pain I had before my

TKR. I wish you could find a pain med that gave you

relief.

a

Re: [ ] (no subject)

Hate to say it but 5 mg. does nothing for me but guess I'm

pretty bad-need

knee and hip replacement and my shoulder feels the same.

Nothing has really

worked on my pain, even pain meds but 15 mgs of prednisone

does take it away

but I won't take it.

Temple

Kuddle Kritters Farm

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html

http://www.homestead.com/kuddlekraft/index.html

http://www.homestead.com/kuddlekrittersdairygoats/index.html

Re: [ ] (no subject)

> this morning they said i was definatly in a flare.

whether it is from the

> sporanox i took for the nail fungus, or the fungus

itself. they want me to

> start taking prednisone 5mg for 7 days???

>

>

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Guest guest

a,

Even though I went through my tentative list of procedures in an email I

wrote a bit ago, I will again because I appreciate your concern. Yes -

September 14. But the surgeon told me not to expect total pain free because

I need the hip done on the same side and the pain from the hip will still

transfer to the knee. Yes the pain is unbelievable whenever I try to move.

It's also amazing to me how much it tips in.

At church on Sunday we were talking about alcohol/drug addiction and I just

sat there thinking that if narcotics helped my pain, I would not hesitate to

take them constantly. Is this addiction? I think not! But they don't

help-sooo.

Temple

Kuddle Kritters Farm

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html

http://www.homestead.com/kuddlekraft/index.html

http://www.homestead.com/kuddlekrittersdairygoats/index.html

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Guest guest

,

Taking needed pain medication is not addiction. It is

dependency, just like a diabetic depends on insulin. Those

that take pain meds for recreation are at risk of addiction.

I sure wish the narcotics gave you relief. Bone on bone

pain is the worse, and not having pain meds that work is

really the pits. Are you getting the pain pump after

surgery? It really was a blessing for me. The morphine

pump was already hooked up when I woke from my tkr's and I

was in control of my own pain meds. It really made a big

difference, and I didn't miss all those pain meds in my

butt!

a

Re: [ ] (no subject)

a,

Even though I went through my tentative list of procedures

in an email I

wrote a bit ago, I will again because I appreciate your

concern. Yes -

September 14. But the surgeon told me not to expect total

pain free because

I need the hip done on the same side and the pain from the

hip will still

transfer to the knee. Yes the pain is unbelievable

whenever I try to move.

It's also amazing to me how much it tips in.

At church on Sunday we were talking about alcohol/drug

addiction and I just

sat there thinking that if narcotics helped my pain, I

would not hesitate to

take them constantly. Is this addiction? I think not!

But they don't

help-sooo.

Temple

Kuddle Kritters Farm

3 Fox Haven Way

Chelmsford, MA 01824

dat2352@...

http://www.homestead.com/kuddlekrittersfarm/index.html

http://www.homestead.com/kuddlekraft/index.html

http://www.homestead.com/kuddlekrittersdairygoats/index.html

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  • 1 month later...

welcome to our group Becky. You will find friends, kowledge, and

compassion here. Everyone is so willing to help one another.

Lynn (MeMom)

----------

> From: MaBeck742@...

>

> Subject: [ ] (no subject)

> Date: Wednesday, August 22, 2001 1:12 AM

>

>

> Hi to all, this is Becky who has joined our group. Each night I come

online

> to read the mail, there is so many of you that I feel like I am just

> listening at this point to get to know you all. I'm scheduled to receive

my

> first Remicade treatment 0n Thursday, August 30. Up to now I've had no

ill

> side effects from any of the medication that I taken. The most

uncomfortable

> thing I experience is " Heavy Hot Flashes, " my Rheumy wants to think this

is

> caused from the Tamoxifen I'm taking. Does anyone else have this problem?

I

> haven't taken any harmones since breast cancer diagnoses and went through

> menopause in my early fifties. Overall I feel very Blessed and am

responding

> fairly well to the 20mg MTX

> weekly and 6mg prednisone daily along with blood pressure cap., a multi

> vitamin, vitamin E, potassium, and Citra Cal calcium supplement.

> I'll be out of town for a few days as I'm carrying my mother to my

sisters

> who lives south of Lafayette, LA . We are leaving Thursday, AM, will

return

> on Tuesday, August 28.

> You all take care. Becky

>

>

>

>

>

>

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Hi Becky ,

Glad you could join us I will be watching for you. I am new to this to but

everyone is so nice here and very understanding . I know you will enjoy us.

Have a nice trip. Happy Thoughts........ Kathy in Fl

Ruf-Caimi <ruf-caimi@...> wrote: welcome to our group Becky. You

will find friends, kowledge, and

compassion here. Everyone is so willing to help one another.

Lynn (MeMom)

----------

> From: MaBeck742@...

>

> Subject: [ ] (no subject)

> Date: Wednesday, August 22, 2001 1:12 AM

>

>

> Hi to all, this is Becky who has joined our group. Each night I come

online

> to read the mail, there is so many of you that I feel like I am just

> listening at this point to get to know you all. I'm scheduled to receive

my

> first Remicade treatment 0n Thursday, August 30. Up to now I've had no

ill

> side effects from any of the medication that I taken. The most

uncomfortable

> thing I experience is " Heavy Hot Flashes, " my Rheumy wants to think this

is

> caused from the Tamoxifen I'm taking. Does anyone else have this problem?

I

> haven't taken any harmones since breast cancer diagnoses and went through

> menopause in my early fifties. Overall I feel very Blessed and am

responding

> fairly well to the 20mg MTX

> weekly and 6mg prednisone daily along with blood pressure cap., a multi

> vitamin, vitamin E, potassium, and Citra Cal calcium supplement.

> I'll be out of town for a few days as I'm carrying my mother to my

sisters

> who lives south of Lafayette, LA . We are leaving Thursday, AM, will

return

> on Tuesday, August 28.

> You all take care. Becky

>

>

>

>

>

>

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  • 4 months later...

Becky,

33! That sure was a houseful! Your niece is a very special baby girl because

she shares her birthday with my mom, and my mom is a very special lady!

I hope you feel well and have a lot of fun in Texas!

Have a safe and happy New Year.

a

[ ] (no subject)

We made it through Christmas and it was good; I had a total of 33 here at my

house Christmas Day afternoon. My niece who had had her baby girl on Friday,

Dec. 21 even came for a little while. Now if all (especially me) holds

together, my husband and I will leave Friday, Dec 29 for Texas.

do hope and pray Jessie does well as he continues to recoup from the

surgery. As far the cold maybe it won't stay that way long; I live about 175

miles from there in Meridian, MS. We're practically neighbors.

To all of you may the New Year start with being pain free, able to be up and

about, with Hope for the New Year.

Blessings to you all.

Becky

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just wanted to check in and say hi. dan's tooth is almost completely healed.

still waiting on the roofer. been too cold for him to really do anything

anyway. my parents made it home safely and are happy to have 65 degree days.

i am still trying to accept the fact my elbow is giving me problems. i really

crash when i don't take the prednisone, even such a small amount. been trying

every other day now. i have spots again. i made an appt with a dermatologist,

but can't get in until the 9th. they do not itch, but just look ugly, on my

trunk and back. same as before. find my mind wandering 9 years ago to the

christmas before my husband took his life. i try to keep moving. wish i

wouldn't do that. well have a safe, painfree, and happy new year. kathy in il

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Kathy,

It's a relief that Dan's tooth is healing nicely. Sorry about that elbow. I

have

one that is really giving me a lot of grief too, so I can sympathize. I'm about

ready to go get it injected. I hope they find out what's causing this rash!

I hope you can get your mind wandering to less upsetting things. The holidays

bring back many memories of lost loved ones. When I start to dwell and get sad,

I put on music that makes me feel better. I hope the New Year brings you

less pain and more happiness.

a

Re: [ ] (no subject)

just wanted to check in and say hi. dan's tooth is almost completely healed.

still waiting on the roofer. been too cold for him to really do anything

anyway. my parents made it home safely and are happy to have 65 degree days.

i am still trying to accept the fact my elbow is giving me problems. i really

crash when i don't take the prednisone, even such a small amount. been trying

every other day now. i have spots again. i made an appt with a dermatologist,

but can't get in until the 9th. they do not itch, but just look ugly, on my

trunk and back. same as before. find my mind wandering 9 years ago to the

christmas before my husband took his life. i try to keep moving. wish i

wouldn't do that. well have a safe, painfree, and happy new year. kathy in il

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