Re: Dr Rosenbaum CFS Specialist?

[Guest guest]

I went to him for a while but he seems very hesitant in prescribing

treatments, though he is supposed to be very knowledgeable.

I am guessing from what I have heard is that he had some experiences with

the AMA attacking him down & is trying to be careful not to jeapordize his

practice or license.

So though he was a kind man,He would not prescribe the Gamma Globulin IV's

I have been getting for many years, so, I did not continue to go see him,.

Though I will have to admit, at this stage of my 22 yrs of CFIDS, Fibro, MCS

etc, there is not much most Drs. can do for me I feel.

[Guest guest]

Hi, I'm basically a lurker, but I have to comment here, because my husband

(who is the PWC) and I just met this doctor at MGH who claims to have a

special interest in CFS. We came in with a pile of documentation 2 inches

thick -- all the tests that Cheney and Sharp ordered, all the notes, all the

correspondence. This doctor didn't even look at the pile. He just told my

husband to mediate and accept his lot in life. Watch what he eats. Oh, and

go into intensive psychotherapy.

@#$$%@##%$%

On 5/26/05, erikmoldwarrior <erikj6@...> wrote:

>

> http://www.michaelrosenbaummd.com/philosophy.html

>

> Isn't it a bit odd that Dr Rosenbaum advertises himself as a " CFS

> specialist " but under his statement of philosophy, he refers to

> chronic fatigue and his own example of " burnout " from stress?

> And his subsequent recovery by dietary intervention?

>

> But at the VERY end of the blurb, he makes a small concession to CFS

> by stating that if someone has Chronic Fatigue Syndrome then

> immunological abnormalities should be investigated.

>

> Is is consistent with your understanding of what a " CFS specialist " is

> to mix tired/burnout/chronic fatigue in with what YOU are suffering

> from?

>

> -

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

> ------------------------------

> *

[Guest guest]

Too bad if you actually paid his bill! No use encouraging such rip-offs.

Really. I mean it.

Adrienne

Re: Dr Rosenbaum CFS Specialist?

Hi, I'm basically a lurker, but I have to comment here, because my husband

(who is the PWC) and I just met this doctor at MGH who claims to have a

special interest in CFS. We came in with a pile of documentation 2 inches

thick -- all the tests that Cheney and Sharp ordered, all the notes, all the

correspondence. This doctor didn't even look at the pile. He just told my

husband to mediate and accept his lot in life. Watch what he eats. Oh, and

go into intensive psychotherapy.

@#$$%@##%$%

On 5/26/05, erikmoldwarrior <erikj6@...> wrote:

>

> http://www.michaelrosenbaummd.com/philosophy.html

>

> Isn't it a bit odd that Dr Rosenbaum advertises himself as a " CFS

> specialist " but under his statement of philosophy, he refers to

> chronic fatigue and his own example of " burnout " from stress?

> And his subsequent recovery by dietary intervention?

>

> But at the VERY end of the blurb, he makes a small concession to CFS

> by stating that if someone has Chronic Fatigue Syndrome then

> immunological abnormalities should be investigated.

>

> Is is consistent with your understanding of what a " CFS specialist " is

> to mix tired/burnout/chronic fatigue in with what YOU are suffering

> from?

>

> -

>

>

>

>

>

> This list is intended for patients to share personal experiences with each

> other, not to give medical advice. If you are interested in any treatment

> discussed here, please consult your doctor.

>

>

> ------------------------------

> *

[Guest guest]

Sounds great, but you have no choice when it comes to paying medical bills.

Every time I have tried not to pay one, even for legitimate reasons, it ruins my

credit. I would not recommend this to anyone unless they already have bad

credit and don't really care. A better approach would be to write a letter to

the doctor really laying out your situation, telling him how he didn't help at

all, and asking him to refund you money.

Doris

----- Original Message -----

Too bad if you actually paid his bill! No use encouraging such rip-offs.

Really. I mean it.

Adrienne

[Guest guest]

Hi , and Doris,

, are you saying that you met Dr. Rosenbaum and he made the

comments you mention below? Just curious because that doesn't sound

like him. I used to be a patient of his and I would be surprised if

this was his reaction to your being in his office for an appointment.

Once while I was a patient of his, we decided to begin a series of

Myer's Cocktail IV's. The nurse gave me the first one with

preservatives rather than a preservative-free bag which I had

specified that I wanted. After I left the office, for the next 24

hours, I felt really awful and had a splitting headache as a result.

I wrote Dr. Rosenbaum a letter about it, saying I didn't feel that I

should have to pay for the IV. He phoned me as soon as he received

it, apologized and said that I would not have to pay for the wrong IV.

, regarding his website I think that he is talking about two

different subjects when he first writes of general chronic fatigue,

which could be the result of burn out and/or poor nutrition and then

says at the end that CFS is related to immune system problems. He can

treat many more people who have general chronic fatigue that CFIDS,

so I think his site is worded to bring in a wider range of patients.

It's just marketing.

I didn't get any better while going to Dr. Rosenbaum, but that has

been true of everything that I have tried so far. Some people who

had been getting weekly Myers IV's for more than a year said they

felt that they were " a little better. " I couldn't afford to do them

that long.

But, I'm ready to follow Doris's plan and get on some antibiotics and

antivirals. It seems that people on this list and elsewhere who have

improved significantly have done something to kill pathogens. Yet

many doctors are hesitant to go that route. So far, not one of the so-

called CFIDS specialists I have been to have suggested it and if I

suggested it, they were against it.

Congratulations, Doris, thanks for telling us your inspiring story.

I'm very happy for you.

Sandy

Blue Christensen <sbluechristensen@g...> wrote:

> Hi, I'm basically a lurker, but I have to comment here, because my

husband

> (who is the PWC) and I just met this doctor at MGH who claims to

have a

> special interest in CFS. We came in with a pile of documentation 2

inches

> thick -- all the tests that Cheney and Sharp ordered, all the

notes, all the

> correspondence. This doctor didn't even look at the pile. He just

told my

> husband to mediate and accept his lot in life. Watch what he eats.

Oh, and

> go into intensive psychotherapy.

> @#$$%@##%$%

>

>

> On 5/26/05, erikmoldwarrior <erikj6@e...> wrote:

> >

> > http://www.michaelrosenbaummd.com/philosophy.html

> >

> > Isn't it a bit odd that Dr Rosenbaum advertises himself as a " CFS

> > specialist " but under his statement of philosophy, he refers to

> > chronic fatigue and his own example of " burnout " from stress?

> > And his subsequent recovery by dietary intervention?

> >

> > But at the VERY end of the blurb, he makes a small concession to

CFS

> > by stating that if someone has Chronic Fatigue Syndrome then

> > immunological abnormalities should be investigated.

> >

> > Is is consistent with your understanding of what a " CFS

specialist " is

> > to mix tired/burnout/chronic fatigue in with what YOU are

suffering

> > from?

> >

> > -

> >

> >

> >

> >

> >

> > This list is intended for patients to share personal experiences

with each

> > other, not to give medical advice. If you are interested in any

treatment

> > discussed here, please consult your doctor.

> >

> >

> > ------------------------------

> > *

[Guest guest]

But, I'm ready to follow Doris's plan and get on some antibiotics and

antivirals. It seems that people on this list and elsewhere who have

improved significantly have done something to kill pathogens. Yet

many doctors are hesitant to go that route. So far, not one of the so-

called CFIDS specialists I have been to have suggested it and if I

suggested it, they were against it.

Sandy,

I've had the same experience, when I tell Drs I feel much better when I'm on

antbx for something, they act like they never heard me speak, instead want me to

take muscle relaxants, antidepressants, pain pills, sleep meds, etc! You have to

beat them off to get away without those things that fail, have horrible side

effects for me and do nothing long term to help my health. I don't understand

why they are so loose with the other drugs and won't Rx some simple generic

antbx!

Marcia

[Guest guest]

oh, no! We did not meet with Dr. Rosenbaum! I was speaking generically of

frustration when meeting with a different doctor recently who professes

knowledge of CFS. I beg everyone's pardon -- especially Dr. Rosenbaum's! --

for any vagueness in my comments.

On 5/27/05, Marcia <mgrahn@...> wrote:

>

> But, I'm ready to follow Doris's plan and get on some antibiotics and

> antivirals. It seems that people on this list and elsewhere who have

> improved significantly have done something to kill pathogens. Yet

> many doctors are hesitant to go that route. So far, not one of the so-

> called CFIDS specialists I have been to have suggested it and if I

> suggested it, they were against it.

>

> Sandy,

>

> I've had the same experience, when I tell Drs I feel much better when I'm

> on antbx for something, they act like they never heard me speak, instead

> want me to take muscle relaxants, antidepressants, pain pills, sleep meds,

> etc! You have to beat them off to get away without those things that fail,

> have horrible side effects for me and do nothing long term to help my

> health. I don't understand why they are so loose with the other drugs and

> won't Rx some simple generic antbx!

>

> Marcia

>

>

>

[Guest guest]

I don't understand why they are so loose with the other drugs and

won't Rx some simple generic antbx!

On another list there is a fellow who talks a great deal about his

idea that all of our problems are caused by bacteria. His pet peeve

seems to be the fact that Dr's no longer CULTURE bugs and then

prescribe appropriate ABX.

Nowadays, it is true they don't culture anymore, but prescriber broad-

spectrum antibiotics, breeding resistant bacteria which fuels their

warped argument against prescribing ABX. It is really crazy, if you

think about it and this warped thinking perpetuates illness and

infection and... more medications to treat the symptoms. They never

get to the root of a problem anymore.

How hard can it be?

*S*

[Guest guest]

I have to throw this in so that it might help someone.

When I saw an ENT for the chronic sore throat and ringing in my

ears that I have had for 7 months, the detail man (drug rep)

happened to come in to the waiting room. He was there to confirm

a dinner at a very expensive steak place, Morton's I think, w/ my

doc. Turns out he was w/ the company that makes the $5/day pill

for acid reflux. Guess what, the ENT diagnosed me with acid

reflux, even tho I have never had heartburn-the acid was apparently

going straight to my larynx-yeah, right. Buyer beware (there is

a Latin term for it, but I can't remember!! Caveot emptor?)

Mike C

> I don't understand why they are so loose with the other drugs and

> won't Rx some simple generic antbx!

>

> On another list there is a fellow who talks a great deal about his

> idea that all of our problems are caused by bacteria. His pet

peeve

> seems to be the fact that Dr's no longer CULTURE bugs and then

> prescribe appropriate ABX.

> Nowadays, it is true they don't culture anymore, but prescriber

broad-

> spectrum antibiotics, breeding resistant bacteria which fuels

their

> warped argument against prescribing ABX. It is really crazy, if

you

> think about it and this warped thinking perpetuates illness and

> infection and... more medications to treat the symptoms. They

never

> get to the root of a problem anymore.

> How hard can it be?

> *S*