a's AACFS conference summary is out!

[Guest guest]

AACFS conference summary available:

" Good Enough to Take It to the Bedside "

American Association for Chronic Fatigue Syndrome

October 8-10, 2004, Madison, Wisconsin

Summary by a M. Carnes

Our thanks to a Carnes for taking an immense amount of

information and

synthesizing to a readable document. It is technical, and to explain

scientific terms would have been impossible.

In Wisconsin, we are encouraged by the research, but are quite aware

of the

immense task that lay ahead. My thanks to all of you who work in the

advocacy arena. Pull together we must... to form a community.

Many patients from Wisconsin who had never attended a conference

walked

away amazed at what IS AVAILABLE. However, far fewer patients

attended this

conference than I would have liked. One astute woman from Milwaukee

called

to ask why should she come, pay all that money, expend all that

energy only

to hear about CFS all in your head. She did come for our pre-

conference

workshop on Thursday and for the 3 day AACFS conference. Now, her

view is

changed. With determination and knowledge, she will forge ahead, not

accepting the trench mantra...nothing can be done. She sees that we

have

MD's & researchers who know a thing and care about the science and

the

patient population. More importantly, she knows that SHE must

persist.

The conference summary pdf link is: http://www.wicfs-me.org/

Home page, scroll down to NEW...

[Direct link to PDF file:

http://www.wicfs-me.org/Pdf%20Files/AACFS%202004%20Report.pdf

Direct link to MS WORD file:

http://www.wicfs-me.org/word_docs/AACFS%202004%20Report.doc ]

Cheers,

PAT FERO

WISCONSIN