Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Thanks BG, I would just add that some doctors have found that a combination of flax (and/or borage), plus a smaller amount of fish oil works even better than flax alone. (I've started adding cottage cheese to my daily routine, but am using up my borage oil caps before buying some fresh flax oil to try.) But as you say, it depends on one's particular condition, or whether they have sarcoidosis or lyme as opposed to classical CFIDS or fibro. Blood tests or saliva tests (or some sort of intracellular tests) might be able to determine deficiencies or imbalances. I for one am still not convinced on the merits of the MP, despite the 50 or so sarc patients that are on it (plus some with lyme) and are doing well. Others with non-sarc or non-lyme CFIDS have found improvement by taking vitamin D ( Jenner), and/or fish oil and flax oil ( Bartosy in Australia completely recovered from CFIDS after 4-5 months of the combo, plus an intitial round of abx for a tooth infection). Both men have websites discussing the paths they chose. d. > > Regarding 's posting about Essential Fatty Acids from Fish, the > following outstanding article on essential fatty acids is pasted > below. Using the flaxseed oil and sulphurated protein combined had > a profound positive effect for me. One of the main things about it > is its positive effects on all inflammatory diseases and > conditions. A particular paragraph is noted below, but I strongly > recommend the whole article be read because of its benefits to > everyone sick or well. The protein carrier actually gets the EFA's > into the cells and repairs them. bg > > http://www.arthritistrust.org/Articles/pub024.pdf > Go to page 3 of the pdf document and read the paragraph headed " The > Essential Fatty Acids: Lost, Strayed, or Stolen? " > > ~~~~~~~~~~~~~~~~~~~~ > > This is another very interesting comment from another site. I want > to remind everyone that some people have faulty Vitamin D hormone > handling capabilities and should not consume fish oil or other forms > of Vitamin D, i.e. in sarcoidosis, fibrosis, etc. (Dr. Marshall's > work). I did great using flaxseed oil combination for years (still > use it), but for several months, after reading Dr. Mercola, I > started using Carlson's fish oil (excellent taste, etc.), but after > a few months I developed Dupuytren's Contracture. Don't know if > there was any correlation or not, but I stopped it after reading > some of its contraindications and returned to the flaxseed oil. bg > > http://goodfats.pamrotella.com/ > > Flax oils vs. fish oil > In his book, Dr. Rudin (see below) points out that most Omega-3 > studies are based on fish oil. Rudin finds this disappointing, as > he's had better results with flaxseed oil in his own studies. This > may be because flaxseed oil starts with the plant form of linolenic > acid, ALA (alpha linolenic acid), whereas fish oil contains the > animal form, DHA (docosahexaenoic acid). The body makes its own DHA > and EPA (eicosapentaenoic acid) from ALA. Although some claim that > the amount of DHA made is small, the body doesn't need much DHA. > Most DHA is contained in cell membranes, and is held there with > little replacement. In contrast, ALA and compounds made from it are > also needed in the body for a number of essential functions. Fish > oil cannot provide ALA, and therefore deprives the consumer of this > critical compound. Some people feel that they need DHA or EPA as a > supplement, and that's their personal choice. However, most sources > covering the different types of oil indicate that plant-based Omega- > 3s, or ALA, is the better choice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 d, I agree with what you have written as well. We really are so different. I think I posted here before that I had been reading about the benefits of phosphatidylserine (PS) for years, by Dr. Khalsa who is head of the memory and dementia areas of a med school in Arizona (I believe it's AZ) and by Dr. Perlmutter on his web site, one of the most renowned neurologists in the country, and many more accolades about its use from other sources. When my brain felt as if it had very slow circulation and my memory needed a big boost in January of 2004, I decided to add the PS to my protocol. I felt worse and worse over the next several months, but didn't think the PS was involved. However, in " Detoxx Book for Physicians " I read that people with autoimmune disorders probably should not use PS as it can make the blood thicker. It was very timely advice, as the nurse at my doctor's office had just had difficulty getting my blood to flow for 3 vials of blood for tests. Before the onset of illness about 10 years ago, I thought of myself as a very healthy, active person. Whatever else is going on with me, I learned the PS is something I definitely need to avoid. I know I have hypercoagulation since onset of illness, and PS instead of helping made it worse. I believe as long as I was a very healthy person, these " eccentricities " did not make themselves known; but, in the chronic illness state, I'm learning much about these. The above is just to warn all of you not to assume too many things without paying attention to any changes in your health status. So far I've learned over the past 10 years: 1) I cannot convert beta carotene into Vitamin A; and Vit A is needed to fight infections, eye problems, keep down light sensitivity, and enhance night driving. 2) After being on meds for a good while, byproducts build up and cause painful problems in feet and other areas, because of an apparent defect in Phase I and Phase II detoxification. Also, after dual abx, I had a body " electrical storm " one morning that caused the onset of a horrific pain syndrome that rendered me unable to even get out of bed for 30 minutes after I'd taken a strong pain pill. 3) After using saline nose drops with Pau d'Arco drops in it, I immedicately developed uveitis as a result of the resulting inflammation caused apparently when the drops hit organisms. 4) After adding fish oil to my daily supplements, I began developing new symptoms linked to fibrosis -- similar to what sarcoid patients. There's more, I'm sure, but will stop here. I'm glad I had a healthy, active life up until 10 years ago. I was a type A work horse and loved it. But, now I'm wondering -- WHAT happened!!!! bg > > > > Regarding 's posting about Essential Fatty Acids from > Fish, the > > following outstanding article on essential fatty acids is pasted > > below. Using the flaxseed oil and sulphurated protein > combined had > > a profound positive effect for me. One of the main things about > it > > is its positive effects on all inflammatory diseases and > > conditions. A particular paragraph is noted below, but I > strongly > > recommend the whole article be read because of its benefits > to > > everyone sick or well. The protein carrier actually gets the > EFA's > > into the cells and repairs them. bg > > > > http://www.arthritistrust.org/Articles/pub024.pdf > > Go to page 3 of the pdf document and read the paragraph > headed " The > > Essential Fatty Acids: Lost, Strayed, or Stolen? " > > > > ~~~~~~~~~~~~~~~~~~~~ > > > > This is another very interesting comment from another site. I > want > > to remind everyone that some people have faulty Vitamin D > hormone > > handling capabilities and should not consume fish oil or other > forms > > of Vitamin D, i.e. in sarcoidosis, fibrosis, etc. (Dr. Marshall's > > work). I did great using flaxseed oil combination for years (still > > use it), but for several months, after reading Dr. Mercola, I > > started using Carlson's fish oil (excellent taste, etc.), but after > > a few months I developed Dupuytren's Contracture. Don't > know if > > there was any correlation or not, but I stopped it after reading > > some of its contraindications and returned to the flaxseed oil. > bg > > > > http://goodfats.pamrotella.com/ > > > > Flax oils vs. fish oil > > In his book, Dr. Rudin (see below) points out that most > Omega-3 > > studies are based on fish oil. Rudin finds this disappointing, > as > > he's had better results with flaxseed oil in his own studies. > This > > may be because flaxseed oil starts with the plant form of > linolenic > > acid, ALA (alpha linolenic acid), whereas fish oil contains the > > animal form, DHA (docosahexaenoic acid). The body makes > its own DHA > > and EPA (eicosapentaenoic acid) from ALA. Although some > claim that > > the amount of DHA made is small, the body doesn't need > much DHA. > > Most DHA is contained in cell membranes, and is held there > with > > little replacement. In contrast, ALA and compounds made from > it are > > also needed in the body for a number of essential functions. > Fish > > oil cannot provide ALA, and therefore deprives the consumer of > this > > critical compound. Some people feel that they need DHA or > EPA as a > > supplement, and that's their personal choice. However, most > sources > > covering the different types of oil indicate that plant-based > Omega- > > 3s, or ALA, is the better choice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 Hi: What would Dr. Perlmutter's web site be and where is he located? Thanks, N. Re: BG -- Flax and Fish Oil... d, I agree with what you have written as well. We really are so different. I think I posted here before that I had been reading about the benefits of phosphatidylserine (PS) for years, by Dr. Khalsa who is head of the memory and dementia areas of a med school in Arizona (I believe it's AZ) and by Dr. Perlmutter on his web site, one of the most renowned neurologists in the country, and many more accolades about its use from other sources. When my brain felt as if it had very slow circulation and my memory needed a big boost in January of 2004, I decided to add the PS to my protocol. I felt worse and worse over the next several months, but didn't think the PS was involved. However, in " Detoxx Book for Physicians " I read that people with autoimmune disorders probably should not use PS as it can make the blood thicker. It was very timely advice, as the nurse at my doctor's office had just had difficulty getting my blood to flow for 3 vials of blood for tests. Before the onset of illness about 10 years ago, I thought of myself as a very healthy, active person. Whatever else is going on with me, I learned the PS is something I definitely need to avoid. I know I have hypercoagulation since onset of illness, and PS instead of helping made it worse. I believe as long as I was a very healthy person, these " eccentricities " did not make themselves known; but, in the chronic illness state, I'm learning much about these. The above is just to warn all of you not to assume too many things without paying attention to any changes in your health status. So far I've learned over the past 10 years: 1) I cannot convert beta carotene into Vitamin A; and Vit A is needed to fight infections, eye problems, keep down light sensitivity, and enhance night driving. 2) After being on meds for a good while, byproducts build up and cause painful problems in feet and other areas, because of an apparent defect in Phase I and Phase II detoxification. Also, after dual abx, I had a body " electrical storm " one morning that caused the onset of a horrific pain syndrome that rendered me unable to even get out of bed for 30 minutes after I'd taken a strong pain pill. 3) After using saline nose drops with Pau d'Arco drops in it, I immedicately developed uveitis as a result of the resulting inflammation caused apparently when the drops hit organisms. 4) After adding fish oil to my daily supplements, I began developing new symptoms linked to fibrosis -- similar to what sarcoid patients. There's more, I'm sure, but will stop here. I'm glad I had a healthy, active life up until 10 years ago. I was a type A work horse and loved it. But, now I'm wondering -- WHAT happened!!!! bg > > > > Regarding 's posting about Essential Fatty Acids from > Fish, the > > following outstanding article on essential fatty acids is pasted > > below. Using the flaxseed oil and sulphurated protein > combined had > > a profound positive effect for me. One of the main things about > it > > is its positive effects on all inflammatory diseases and > > conditions. A particular paragraph is noted below, but I > strongly > > recommend the whole article be read because of its benefits > to > > everyone sick or well. The protein carrier actually gets the > EFA's > > into the cells and repairs them. bg > > > > http://www.arthritistrust.org/Articles/pub024.pdf<http://www.arthritistrust.org/\ Articles/pub024.pdf> > > Go to page 3 of the pdf document and read the paragraph > headed " The > > Essential Fatty Acids: Lost, Strayed, or Stolen? " > > > > ~~~~~~~~~~~~~~~~~~~~ > > > > This is another very interesting comment from another site. I > want > > to remind everyone that some people have faulty Vitamin D > hormone > > handling capabilities and should not consume fish oil or other > forms > > of Vitamin D, i.e. in sarcoidosis, fibrosis, etc. (Dr. Marshall's > > work). I did great using flaxseed oil combination for years (still > > use it), but for several months, after reading Dr. Mercola, I > > started using Carlson's fish oil (excellent taste, etc.), but after > > a few months I developed Dupuytren's Contracture. Don't > know if > > there was any correlation or not, but I stopped it after reading > > some of its contraindications and returned to the flaxseed oil. > bg > > > > http://goodfats.pamrotella.com/<http://goodfats.pamrotella.com/> > > > > Flax oils vs. fish oil > > In his book, Dr. Rudin (see below) points out that most > Omega-3 > > studies are based on fish oil. Rudin finds this disappointing, > as > > he's had better results with flaxseed oil in his own studies. > This > > may be because flaxseed oil starts with the plant form of > linolenic > > acid, ALA (alpha linolenic acid), whereas fish oil contains the > > animal form, DHA (docosahexaenoic acid). The body makes > its own DHA > > and EPA (eicosapentaenoic acid) from ALA. Although some > claim that > > the amount of DHA made is small, the body doesn't need > much DHA. > > Most DHA is contained in cell membranes, and is held there > with > > little replacement. In contrast, ALA and compounds made from > it are > > also needed in the body for a number of essential functions. > Fish > > oil cannot provide ALA, and therefore deprives the consumer of > this > > critical compound. Some people feel that they need DHA or > EPA as a > > supplement, and that's their personal choice. However, most > sources > > covering the different types of oil indicate that plant-based > Omega- > > 3s, or ALA, is the better choice. This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 Natasha, He is located in Naples, Florida. Here are three links to his work: http://www.inutritionals.com/brainsustain.shtml http://www.brainrecovery.com/ http://www.perlhealth.com/ bg PS I found it interesting to learn that he had referred some of his Parkinson's patients to the Detoxx treatments, such as done by Dr. Kane, et al. > > > > > > Regarding 's posting about Essential Fatty Acids from > > Fish, the > > > following outstanding article on essential fatty acids is pasted > > > below. Using the flaxseed oil and sulphurated protein > > combined had > > > a profound positive effect for me. One of the main things about > > it > > > is its positive effects on all inflammatory diseases and > > > conditions. A particular paragraph is noted below, but I > > strongly > > > recommend the whole article be read because of its benefits > > to > > > everyone sick or well. The protein carrier actually gets the > > EFA's > > > into the cells and repairs them. bg > > > > > > http://www.arthritistrust.org/Articles/pub024.pdf<http://www.arthriti strust.org/Articles/pub024.pdf> > > > Go to page 3 of the pdf document and read the paragraph > > headed " The > > > Essential Fatty Acids: Lost, Strayed, or Stolen? " > > > > > > ~~~~~~~~~~~~~~~~~~~~ > > > > > > This is another very interesting comment from another site. I > > want > > > to remind everyone that some people have faulty Vitamin D > > hormone > > > handling capabilities and should not consume fish oil or other > > forms > > > of Vitamin D, i.e. in sarcoidosis, fibrosis, etc. (Dr. > Marshall's > > > work). I did great using flaxseed oil combination for years > (still > > > use it), but for several months, after reading Dr. Mercola, I > > > started using Carlson's fish oil (excellent taste, etc.), but > after > > > a few months I developed Dupuytren's Contracture. Don't > > know if > > > there was any correlation or not, but I stopped it after reading > > > some of its contraindications and returned to the flaxseed oil. > > bg > > > > > > http://goodfats.pamrotella.com/<http://goodfats.pamrotella.com/> > > > > > > Flax oils vs. fish oil > > > In his book, Dr. Rudin (see below) points out that most > > Omega-3 > > > studies are based on fish oil. Rudin finds this disappointing, > > as > > > he's had better results with flaxseed oil in his own studies. > > This > > > may be because flaxseed oil starts with the plant form of > > linolenic > > > acid, ALA (alpha linolenic acid), whereas fish oil contains the > > > animal form, DHA (docosahexaenoic acid). The body makes > > its own DHA > > > and EPA (eicosapentaenoic acid) from ALA. Although some > > claim that > > > the amount of DHA made is small, the body doesn't need > > much DHA. > > > Most DHA is contained in cell membranes, and is held there > > with > > > little replacement. In contrast, ALA and compounds made from > > it are > > > also needed in the body for a number of essential functions. > > Fish > > > oil cannot provide ALA, and therefore deprives the consumer of > > this > > > critical compound. Some people feel that they need DHA or > > EPA as a > > > supplement, and that's their personal choice. However, most > > sources > > > covering the different types of oil indicate that plant- based > > Omega- > > > 3s, or ALA, is the better choice. > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 BG; Thank you for your info- Now to anyone out in CFS/CFIDS/FM land-I honestly find the info that I read interesting and like everyone else, I think, helpful, for whatever pertains to our individual situation. I'm curious though as to how most are able to afford all of the natural stuff? I try to get some but on my limited disability, I can't afford much of it. I also had a cat for about 10 years and prior to my cat a dog for almost 13 years. I found that I had no problem with the dog and with my cat until the last year or so. I did catsit for about a month for a friend of mine and I had a severe reaction to her cat and the vet said that it had to do with the cat dander. My cat was too big to give him a bath (almost 20 lbs) and had a very strong mind of his own but I purchased a flea comb from the vets and that seemed to take care of not only the fleas but his dander (no pun intended). I too was very bonded to both my cat and dog but had to give them up as I was starting to get a really bad allergy from him and have since tested positive to having allergies from animals. We do have to do whatever is within our limits to take care of ourselves and our frame of mind and if I even had a 'minor' allergy from a cat or dog I would most likely have one as I love animals. So now, at times, I watch silly old movies, etc to give myself a good laugh as laughter is such good medicine. Thanks again all for your helpful ideas, N. Re: BG -- Flax and Fish Oil... Natasha, He is located in Naples, Florida. Here are three links to his work: http://www.inutritionals.com/brainsustain.shtml<http://www.inutritionals.com/bra\ insustain.shtml> http://www.brainrecovery.com/<http://www.brainrecovery.com/> http://www.perlhealth.com/<http://www.perlhealth.com/> bg PS I found it interesting to learn that he had referred some of his Parkinson's patients to the Detoxx treatments, such as done by Dr. Kane, et al. > > > > > > Regarding 's posting about Essential Fatty Acids from > > Fish, the > > > following outstanding article on essential fatty acids is pasted > > > below. Using the flaxseed oil and sulphurated protein > > combined had > > > a profound positive effect for me. One of the main things about > > it > > > is its positive effects on all inflammatory diseases and > > > conditions. A particular paragraph is noted below, but I > > strongly > > > recommend the whole article be read because of its benefits > > to > > > everyone sick or well. The protein carrier actually gets the > > EFA's > > > into the cells and repairs them. bg > > > > > > http://www.arthritistrust.org/Articles/pub024.pdf<http://www.arthriti<http://www\ ..arthritistrust.org/Articles/pub024.pdf<http://www.arthriti> strust.org/Articles/pub024.pdf> > > > Go to page 3 of the pdf document and read the paragraph > > headed " The > > > Essential Fatty Acids: Lost, Strayed, or Stolen? " > > > > > > ~~~~~~~~~~~~~~~~~~~~ > > > > > > This is another very interesting comment from another site. I > > want > > > to remind everyone that some people have faulty Vitamin D > > hormone > > > handling capabilities and should not consume fish oil or other > > forms > > > of Vitamin D, i.e. in sarcoidosis, fibrosis, etc. (Dr. > Marshall's > > > work). I did great using flaxseed oil combination for years > (still > > > use it), but for several months, after reading Dr. Mercola, I > > > started using Carlson's fish oil (excellent taste, etc.), but > after > > > a few months I developed Dupuytren's Contracture. Don't > > know if > > > there was any correlation or not, but I stopped it after reading > > > some of its contraindications and returned to the flaxseed oil. > > bg > > > > > > http://goodfats.pamrotella.com/<http://goodfats.pamrotella.com/<http://goodfats.\ pamrotella.com/<http://goodfats.pamrotella.com/>> > > > > > > Flax oils vs. fish oil > > > In his book, Dr. Rudin (see below) points out that most > > Omega-3 > > > studies are based on fish oil. Rudin finds this disappointing, > > as > > > he's had better results with flaxseed oil in his own studies. > > This > > > may be because flaxseed oil starts with the plant form of > > linolenic > > > acid, ALA (alpha linolenic acid), whereas fish oil contains the > > > animal form, DHA (docosahexaenoic acid). The body makes > > its own DHA > > > and EPA (eicosapentaenoic acid) from ALA. Although some > > claim that > > > the amount of DHA made is small, the body doesn't need > > much DHA. > > > Most DHA is contained in cell membranes, and is held there > > with > > > little replacement. In contrast, ALA and compounds made from > > it are > > > also needed in the body for a number of essential functions. > > Fish > > > oil cannot provide ALA, and therefore deprives the consumer of > > this > > > critical compound. Some people feel that they need DHA or > > EPA as a > > > supplement, and that's their personal choice. However, most > > sources > > > covering the different types of oil indicate that plant- based > > Omega- > > > 3s, or ALA, is the better choice. > > > > > > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
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