Anyone with experience of Shoemaker Protocol?

[Guest guest]

Dear All,

I've read the files on Dr Shoemaker, and I was wondering if anyone

had any experience good/bad of his protocol. If there has been a

previous discussion on this can someone point me in the right

direction of where the messages are, please. Also I read Patti

Schmidt's story of seeing Dr Shoemaker on the immunesupport site,

what was the outcome of the story? Did she stay well?

Many thanks,

health and happiness to all,

Jo

[Guest guest]

Shoemaker's an interesting cat. Very brilliant. Talk is a little bigger

than his results though. If one asks me should they see him, I suggest if they

have good insurance and don't mind flying in or travelling to see him, then

sure. But don't expect miracles. I liked getting different perspective from

him and seeing test results that other docs don't give, like VEGF and MSH,

both of which were low in me. He will give you his VCS test which you will

most likely fail and then prescribe cholestyramine (CSM) to get rid of them,

and it may do a decent job of making you feel a little better after using it

many weeks first though, and then you have to decide if you like using CSM the

rest of your life. I found I did just as well doing heavy sauna rather than

CSM. If you have staph infection in nose, Shoe will try to find this too and

treat it, although now he can't use his staphage lysate any more, so that is

one less reason I'd have to go to him if I could do it over again. He did

not find the toxic forming coag neg staph in my nose for instance, which

surprised him. He's a good guy and we could all use more docs like him.

Definitely not greedy like too many other big name CFS guru and so for that he

has my

respect.

I am not sure about the Patti who wrote that article on Shoe. I know I

spoke to one who saw him and did better at first as he treated her for

misdiagnosed lyme, but then needed more aggressive lyme treatment and this seems

to be

all too common stories from those who have seen him is he is in denial about

prevalence of lyme and in fact ignored my IGeneX IgM which was pos, and made

no comments on it which I think was him trying to blame my illness on mold

only.

In a message dated 11/3/2004 3:42:21 AM Eastern Standard Time,

writes:

I've read the files on Dr Shoemaker, and I was wondering if anyone

had any experience good/bad of his protocol. If there has been a

previous discussion on this can someone point me in the right

direction of where the messages are, please. Also I read Patti

Schmidt's story of seeing Dr Shoemaker on the immunesupport site,

what was the outcome of the story? Did she stay well?

[Guest guest]

--

> I am not sure about the Patti who wrote that article on Shoe. I

>know I spoke to one who saw him and did better at first as he

>treated her for misdiagnosed lyme, but then needed more aggressive

>lyme treatment and this seems to be all too common stories from

>those who have seen him is he is in denial about prevalence of lyme

>and in fact ignored my IGeneX IgM which was pos, and made

> no comments on it which I think was him trying to blame my illness

> on mold only.

>

I don't get the impression that he is in denial about Lyme.

Just that mold is a bigger mediator of peoples illnesses than they

think.

I'm not a patient and I'm not doing Dr Shoemakers protocols but he's

the only doctor and one of the very few people that understands what

I'm talking about when I say " mycotoxin avoidance " .

-

[Guest guest]

I agree, he's way ahead of the curve when it comes to mycotoxins and any

other toxins for that matter. When I say in denial of lyme I mean giving a

long

term chronically ill patient 3 weeks of doxy and acting like that is the

lyme cure. If that's not denial then we understand the word a little

differently. I understand that undertreating for lyme may be the best thing to

do in

comparison to loading a patient up with IV abx that have a terrible record of

curing and waste money not to mention not being healthy to do those large

amounts of abx, but to act like 3 weeks really kills all the lyme, ignoring

IGeneX WB's and even doing 3 weeks doxy on himself when he has had bouts of

lyme

is denial if you ask me.

In a message dated 11/3/2004 4:44:12 PM Eastern Standard Time,

writes:

I don't get the impression that he is in denial about Lyme.

Just that mold is a bigger mediator of peoples illnesses than they

think.

I'm not a patient and I'm not doing Dr Shoemakers protocols but he's

the only doctor and one of the very few people that understands what

I'm talking about when I say " mycotoxin avoidance " .