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Re: Anybody have a sleep study?

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Blake,

Thanks for this important information! Will share it with our local

support group.

bg

> I did not have a sleep study, but I saw a sleep medicine

specialist and

> was diagnosed with 'circadian rhythm shift' (which basically

means my

> circadian rhythm is out of balance) and was put onto 'bright light

> therapy' which fixed my insomnia after the first day!!!!!!!

>

> Regards, Blake

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I did not have a sleep study, but I saw a sleep medicine specialist and

was diagnosed with 'circadian rhythm shift' (which basically means my

circadian rhythm is out of balance) and was put onto 'bright light

therapy' which fixed my insomnia after the first day!!!!!!!

Regards, Blake

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The sleep apnea dx is definitely separate from the dx of CFIDS/FM. But the sleep

apnea definitely aggravates the CFIDS/FM. I honestly had no idea that I had

sleep apnea. For years my family has told me that I would toss and turn and have

bouts of snoring that would rattle the house. Enough that my husband had moved

to the couch. I also would wake up unrefeshed, tired throughout the day no

matter how much sleep I got, and also my whole body would ache. I tried sleeping

pills, but still woke up feeling the same way. Actually the dx of sleep apnea,

and restless leg was a blessing. Although not a cure for the other dx, it has

made a huge difference in my life. Hope this helps you. ---

earnest4321 <earnest4321@...> wrote:

Thanks . Does your doctor think the sleep apnea is related to

the CFIDS (I mean other than causing fatigue) or is it viewed as a

separate condition? Did they diagnose any other sleep problems, like

insomnia or unrefreshing sleep? Were you aware of the sleep apnea

before the sleep study? I think I have some sleep apnea but I have

problems getting to sleep and not sleeping soundly and then waking up

early.

>

> Has anyone had a sleep study done? What does it consist of and

what

> were the findings. I'm interested in things other than sleep apnea

in

> people with CFIDS. I know I have abnormal sleep and wonder if they

> could find anything in a sleep study. Do you need to see a sleep

> specialist who understands CFIDS to get positive results?

>

>

>

>

>

> This list is intended for patients to share personal experiences

with each other, not to give medical advice. If you are interested

in any treatment discussed here, please consult your doctor.

>

>

>

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(and Earnest),

I don't have CFS or related disorders, but I do have sleep apnea.

My experience with it is much the same as you () have

described. My life would be quite different (assuming I wasn't

actually killed in a driving accident, which could have happened,

considering the way I was driving before I got the machine) if I

didn't have a CPAP machine. It's a real blessing for me. I'm about

to go kayaking and camping again, sleeping in a tent, and I'm

bringing my CPAP machine along again, together with a small lead-

acid battery (made for all-terrain vehicles). I have a Good Knight

machine, which will run on 13 volts d.c. as well as on house power,

and is small enough to travel with. My machine will run for several

nights on one charge. I wouldn't consider going if I couldn't use

my machine there. It really does make a huge difference, in all the

ways you've described and a few more! And my wife actually has said

several times that she likes the sound it makes. Certainly better

than the snoring that went on before!

My sleep study was much like yours, except that they ran the whole

thing in one night. I accepted an Ambien, which apparently does not

interfere with the sleep study, and I was able to sleep for quite a

few hours. Midway through, they came in and hooked me up to a CPAP

machine, and then did the pressure adjustment during the rest of the

night.

Rich

> >

> > Has anyone had a sleep study done? What does it consist of and

> what

> > were the findings. I'm interested in things other than sleep

apnea

> in

> > people with CFIDS. I know I have abnormal sleep and wonder if

they

> > could find anything in a sleep study. Do you need to see a

sleep

> > specialist who understands CFIDS to get positive results?

> >

> >

> >

> >

> >

> > This list is intended for patients to share personal experiences

> with each other, not to give medical advice. If you are

interested

> in any treatment discussed here, please consult your doctor.

> >

> >

> >

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