Re: my lyme test was positive

[Guest guest]

Joyce, You don't need to take a lot of antibiotics if the Marshall

Protocol works.

a Carnes

> My test from Igenex IGG was positive 3 different ways. I am feeling

sad. Antibiotics destroy my gut as well as the quality of my life! I

guess I will have to go on them. Also my vit. D level25 was high. I

guess I am fitting into a pattern with some of you. Any suggestions?

I will go off of my Vit D supplements. My hMO will send me to their

infectious disease expert. I want to go in armed with which

antibiotics and how to take them. Thanks for your help! joyce kaye

jamkaye@m...

>

>

[Guest guest]

I don't know which antibiotics are best, but how about IV antibiotics?

They don't cripple your gut?

Does anyone know how Dr. Cheney treats Lyme?

Regards, Blake

joyce kaye wrote:

>My test from Igenex IGG was positive 3 different ways. I am feeling sad.

Antibiotics destroy my gut as well as the quality of my life! I guess I will

have to go on them. Also my vit. D level25 was high. I guess I am fitting into a

pattern with some of you. Any suggestions? I will go off of my Vit D

supplements. My hMO will send me to their infectious disease expert. I want to

go in armed with which antibiotics and how to take them. Thanks for your help!

joyce kaye jamkaye@...

>

>

[Guest guest]

Until they get lyme caught up with other bugs like staph the treatment of it

via abx is likely to continue to stay in stone age. They need to be able to

culture the organisms and determine which abx are suitable. I think a few

courses with orals may be better than nothing and hopefully jump start your

immune system enough to be able to handle things when you come off. I think IV

is too big a deal to do considering that you won't know what abx affect you.

I did mention on another list that IGeneX would hopefully be able to

culture the organisms in the future when they get a new building and set about

to

do this--but can't be done in their current building b/c it has to be a

separate facility from the one they do PCR in like right now where they're at.

But

yeah, just like Shoemaker can do deep nasal swab and send it to Esoterix for

culturing, so too should lyme labs be able to do this and I hope to see this

in the future.

In a message dated 10/1/2004 4:10:43 PM Eastern Daylight Time,

writes:

I don't know which antibiotics are best, but how about IV antibiotics?

They don't cripple your gut?

Does anyone know how Dr. Cheney treats Lyme?

[Guest guest]

This is good news! Now you know that your illness is likely caused by

infection and not some mysterious unknown agent that you'll never be able to

figure out and remain sick the rest of your life. All you got to do is beat

the

buggers and you're home free--not that it will be easy battle. Consider

yourself blessed.

In a message dated 10/1/2004 4:10:43 PM Eastern Daylight Time,

writes:

My test from Igenex IGG was positive 3 different ways. I am feeling sad.

Antibiotics destroy my gut as well as the quality of my life! I guess I will

have to go on them. Also my vit. D level25 was high. I guess I am fitting into

a

pattern with some of you. Any suggestions? I will go off of my Vit D

supplements. My hMO will send me to their infectious disease expert. I want to

go in

armed with which antibiotics and how to take them. Thanks for your help!

[Guest guest]

Also, I often see this happen again and again. Long term CFSer gets lyme

test and finds out they are pos and their mouth drops wide open and they get

sad. If you have read reports by other docs like Harvey and , it should

not surprise you that the vast majority of folks in here have lyme. Now I

guess it is so shocking b/c some of us were brainwashed to stand behind our

label of CFS and fight for our right to be CFSers in our mind, but it really

doesn't matter in the end. Other than the fact that maybe you wasted years not

properly focusing your battle and being duped into a hopeless label and

spending thousands on doc appts and supplements and ignoring all the warnings

from

the lyme folks who knew better all along, you should not feel stupid; you

should feel smart for taking a step in the right direction and coming to terms

with reality. Better late than never--look to the future, not the past.

Lyme is but one more agent in our body to bring us down and not always

necessarily the only agent that made us sick. But having said that, it doesn't

belong in our body and it killed my next door neighbor's dog, so it should not

be taken lightly either. But yes, the treatment of lyme is very lame b/c

like I said, there is no current system to culture organisms and tell you which

abx to use. I'm sorry the lyme community has not focussed on this and they

should demanded this years ago. It took listening to aussie man Tony on the

MP list to realize that lyme should be treated the same way TB and chronic

staph infections are--with some very easily applied science of culturing.