Re: Neurogenesis,Huntington's.etc./Chemo therapy for ME/CFS?

[Guest guest]

> Awhile back, I took a deep breath and did some searches on Huntington's. It

was actually scary at the time. The idea being, that they would be on some front

lines of brain and muscle repair issues.

> I found a number of sites and discussion groups. I choose not to be intrusive

on the forums so far, but I have found some fascinating things.

>

> One is research on neurogenesis (neuron repair). This field seems to be

advancing rapidly, which is exciting for a number of diseases.

>

> You can search too, but here is a very interesting site with alot about

neurogenesis and other brain and muscle repair.

>

> Included are findings and theories about Huntington's...for instance that it

includes low blood flow to the brain, that it may be an autoimmune disease, and

some suggested treatment protocols. There is a Forum, too.

>

> hdlighthouse.org

>

> Enjoy,

>

> Katrina

[Guest guest]

,

I don't know the answer to your question. But here's something interesting. I

had a CFIDS friend in the 90s who was put on a Chemotherapy drug for a rare

arthritis. Later, whenever I saw him, he was out in the town square doing salsa

dancing! He was better in all ways ...energy, pain, brain...still with some

limitation and some side effects of the drug. His reports to me were limited and

we were in public, between dance sets, so I never got details. And I was trying

to compute how in the heck going on Chemo for arthritis made his CFIDS better

??!!

I knew of someone else on a chemo drug for arthritis too, but no reports...

I for one cannot imagine me surviving chemo at this stage! hmm, maybe for one

week...

Katrina

>>> are there any professional researchers looking at Huntington's, ME/CFS, etc.

interested in or actually doing pilot studies for " rebooting " our immune systems

> a fresh within a single week using chemo therapy?

>

>

>

> I know this is being done in MS successfully now. MS is an autoimmune disease

and the patient(s) in one recent study are reporting strikingly improved and

unexpected quality of life-- particularly in the area of brain function clarity

and well-being. <<<<

>

[Guest guest]

> ,

>

> I don't know the answer to your question. But here's something interesting.

I had a CFIDS friend in the 90s who was put on a Chemotherapy drug for a rare

arthritis. Later, whenever I saw him, he was out in the town square doing salsa

dancing! He was better in all ways ...energy, pain, brain...still with some

limitation and some side effects of the drug. His reports to me were limited and

we were in public, between dance sets, so I never got details. And I was trying

to compute how in the heck going on Chemo for arthritis made his CFIDS better

??!!

>

> I knew of someone else on a chemo drug for arthritis too, but no reports...

>

> I for one cannot imagine me surviving chemo at this stage! hmm, maybe for

one week...

>

> Katrina

>

> >>> are there any professional researchers looking at Huntington's, ME/CFS,

etc. interested in or actually doing pilot studies for " rebooting " our immune

systems

> > a fresh within a single week using chemo therapy?

> >

> >

> >

> > I know this is being done in MS successfully now. MS is an autoimmune

disease and the patient(s) in one recent study are reporting strikingly improved

and unexpected quality of life-- particularly in the area of brain function

clarity and well-being. <<<<

> >

[Guest guest]

That is amazing because based on my research of chemo I had basically decided I

probably wouldn't do it even if I had cancer. There really is no " evidence "

that it helps more than it hurts. What a mind blower that would be if it were

the cure for CFIDS.

Doris

----- Original Message -----

From: davidhall2020

I also said I too know of two cases over the past number of years, both people

with cfids, who also got cancer. One actually told her story, wondering if

anyone else had a similar " chemo relief " experience, on another message board

back in October.

Anyway, they went through months of treatment for their cancers. Both

reported feeling absolutely fantastic(minus the immediate post treatment day

nausea) all the way through their months of therapy. Their CFIDS symptoms were

ALL(this what they said) gone during this period. But when they had put their

cancers in remission and the chemo was stopped, their CFIDS systems came back

full tilt.