Re: Digest Number 63

January 5, 2000

In a message dated 1/5/00 11:28:08 AM Eastern Standard Time, dingy7@...

writes:

<< Gosh, 1/4c - that would be expensive! My 1/4 tsp.

worked just fine.

Cheryl >>

Cheryl,

My scented stones turned out just fine (I think--just did it last night) with

1/4 t. alum too. My little tiny jar (about 1/8 c.) cost almost $3.00, so 1/4

c. would be awfully expensive! All the recipes I've seen call for 1/4 t., so

I wonder whether the 1/4 c. is a typo.

Beth

January 27, 2000

In a message dated 1/27/00 2:37:26 AM Pacific Standard Time,

onelist writes:

<< Message: 5

Date: Wed, 26 Jan 2000 21:14:30 EST

From: Deinnopa@...

Subject: Re: Subject: couple of questions..

Is there any way to help promote the verbalizations to come?

We are using signs and always pairing the word with it. He signs and we

deliver the item and say the word as we are giving him the item he

requested.

We hear some voicing over but no words yet.

Should we be targeting the words for the signs we have mastered in echoics?

or will it all come? >>

Carole,

What Dr. P told us (and we are a long way away from this so someone correct

me if I am wrong...) is that our echoics program should consist of the sounds

needed to say the words for her strongest mands. For instance we are doing

signs for " open " , " binky " , " drink " , " music " . So our echoics would be long

" o " , " bih " , " dih " , " mm " . Once we have the sign and the echoic down pat,

then pair the two...so no longer will the sign for music get her music, she

must also give us an " mmm " sound. Then continue to shape it. Music may be a

bad example, pretty difficult word...how about " drink " , first we accept the

sign, then we accept sign and " dih " , then we accept only " dink " . But you are

also working on these sounds in echoics. That's why Santopadre told us

that what counted as a correct response in the a.m., didn't always count as

correct in the p.m. because if you accepted the sign for drink in the a.m.,

but by noon he could pair it with " dih " , then you only accepted " dih " from

then on (with the sign). Of course, expect a little backsliding, maybe the

next morning he'll need prompting again but Dr. P said as long as the overall

direction is upward, don't worry about little glitches...we all have bad days

and some of us need more prompting (read: caffeine) in the morning than

others!! Does this help? Hope so,

All the best,

January 30, 2000

Hi All! I'm new to this teaching methodology and just out of Dr. Carbone and

McGrevey's conference in Ohio. For anyone thinking of this type of ABA, GO TO

THE

WORKSHOP if you have a chance. Just seeing the progress of 1 or 2 of these kids

will give you a renewed spirit.

My question to the folks who have been doing for awhile, has anyone used

this teaching method on a 24 month old? If so, how long are your sessions, and

what is your target for mands per day? Our son is in a Lovaas program, has no

compliance issues whatsoever, and would easily sit at the table for an hour

straight if we did not give him the " go play " SD. My only concern with the

method is the potential for burn-out at an early age. (He tries so hard to

please

that when you really push him in drills at a fast pace, that he literally shakes

and starts biting his fingernails).

Thanks for any advice.

ann

onelist wrote:

> ---------------------------

March 4, 2000

I agree with you, Marty. An open chat forum sounds like just the ticket. I

only hope that it's at a good time for us PST people!

Strength and hope to all........

Simone

>From: Hepatitis Conelist

>Reply-Hepatitis Conelist

>Hepatitis Conelist

>Subject: Digest Number 63

>Date: 5 Mar 2000 11:03:15 -0000

>

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March 4, 2000

I agree with you, Marty. An open chat forum sounds like just the ticket. I

only hope that it's at a good time for us PST people!

Strength and hope to all........

Simone

>From: Hepatitis Conelist

>Reply-Hepatitis Conelist

>Hepatitis Conelist

>Subject: Digest Number 63

>Date: 5 Mar 2000 11:03:15 -0000

>

>------------------------------------------------------------------------

>GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9%

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March 5, 2000

Dear Suzy:

The side effects almost always do change, and usually to the better.

Its easier to say for people who " been there and done that " , but it

really is true. My wife is starting her LAST 8 weeks of therapy and she

has had some very good, and very bad days. That si shwy I suggest

focusing on something positive to get you through the bad ones. You just

have to keep believing it will work for you and that is your goal.

Also, since my wife started the combo, she still remains

undetectable, so, although we do not know what the future will actually

be, you need to always be thankful for the small things. Keep us

informed as to your progress. A year from now, you may still remember

how it made you feel, but, you'll be done with the therapy under any

circumstances. Marty

March 9, 2000

In a message dated 3/9/00 4:40:42 AM Pacific Standard Time,

onelist writes:

<< << And Clondine is NOT a major drug??? Is DH (yours) aware of the

pitfalls

of Clondine? What it can do with B/P? >>

>>

Maureen:

You know, if we were to take into consideration ALL the doctor's and parent's

opinions of various medications, I don't think our kids would be on

ANYTHING....the Risperdal is an anti-psychotic drug....not to be used lightly

and only if other avenues of treatment have been exhausted.

Since we're relatively new to this ADHD diagnosis, we still have a lot of

med's to consider if ' combo isn't effective. I wouldn't base my

opinions on just one doctor......my brother is a doctor in Fla. and he says

ALL meds have some kind of side effects, even OTC ones! Even the " safe "

herbal ones can cause considerable reactions!

That's what I both like and dislike about being on a list....you get a LOT of

different opinions, comments, and suggestions, BUT, the bottom line is,

listen to your CHILD's doctor, and trust that he/she will make the right

decision for your child.....if there's any doubts, get a second, third and

fourth opinion.....

Maureen, I appreciate your concern....you sound as passionate as I do, but it

kind of scared me........

March 10, 2000

Marty,

Thanks for the words of encouragement, I certainly need them, one week

down, figured i'd give it a month and reevaluate, figure anyone can endure

something for that long, have always drank lots of water , perhaps thats

helped but even I am getting tired of drinking,, the nausea is really bad,

kept waiting for it to subside but it hasn't so I called to see if I could

get some compazine or something, have lost about 7 lbs. not all in the

last week, but I am still eating just get full so fast and lots of things

dont taste good, luckily I can stand to lose a few lbs just not my idea of

losing, plus I always put on about 10 lbs in th e winter,, cold

weather, hibernation and all that, I am trying to hang in there and not as

bad in some aspects as I thought but then at other times it feels unbearable

I was glad i found these sites before i started and knew some of the

things I do because all your little suggestions have proved enormously

helpful. well I've got to go visit a friend in the hosp. Did you find a

new job yet.. thank you once again

Suzy

From: " byteme " <byteme@...>

Reply-Hepatitis Conelist

Hepatitis Conelist

Subject: Re: Digest Number 63

Date: Sun, 05 Mar 2000 12:49:33 -0600

Dear Suzy:

The side effects almost always do change, and usually to the better.

Its easier to say for people who " been there and done that " , but it

really is true. My wife is starting her LAST 8 weeks of therapy and she

has had some very good, and very bad days. That si shwy I suggest

focusing on something positive to get you through the bad ones. You just

have to keep believing it will work for you and that is your goal.

Also, since my wife started the combo, she still remains

undetectable, so, although we do not know what the future will actually

be, you need to always be thankful for the small things. Keep us

informed as to your progress. A year from now, you may still remember

how it made you feel, but, you'll be done with the therapy under any

circumstances. Marty

______________________________________________________

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March 10, 2000

Hopefully you and your wife will be able to sail through the last 8 weeks of

therapy, What a year you've had, I'm praying for you and your wife to help

make it through as i've done frequently for everyone withthis disease.

Suzy

From: " byteme " <byteme@...>

Reply-Hepatitis Conelist

Hepatitis Conelist

Subject: Re: Digest Number 63

Date: Sun, 05 Mar 2000 12:49:33 -0600

Dear Suzy:

The side effects almost always do change, and usually to the better.

Its easier to say for people who " been there and done that " , but it

really is true. My wife is starting her LAST 8 weeks of therapy and she

has had some very good, and very bad days. That si shwy I suggest

focusing on something positive to get you through the bad ones. You just

have to keep believing it will work for you and that is your goal.

Also, since my wife started the combo, she still remains

undetectable, so, although we do not know what the future will actually

be, you need to always be thankful for the small things. Keep us

informed as to your progress. A year from now, you may still remember

how it made you feel, but, you'll be done with the therapy under any

circumstances. Marty

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

March 10, 2000

Suzy

Hang in there girl and like Marty said stay positive about this treatment and

that it is going to work for you as hard as it is to take. Seems like the

six month stage has made my husband sides alittle better either that or he is

just getting used to it. He is asleep right now after having a very bad day

yesterday and last night so like Marty said you have some really bad days and

some good days so focus of the good days and smile and be grateful for those

when they come around. You have a long way to go and you will find a way to

deal with it - its your hope of putting the dragon to sleep remember that and

stay positive that you are going to do that. Your in our prayers wishing

there was more we could do to help you and every one out there. Staying

positive!!!! YOU CAN DO THIS!!!!!!!!!!!!

Winne

March 10, 2000