Re: Digest Number 63

[Guest guest]

Dear Jessie:

The other day I was in a restaurant with my 17 year old daughter....we were

having a nice time and then this old lady in a wheel chair, who was sitting

with 3 other people, spilled her drink on the table and you could tell she

felt so terrible....everyone was so sweet to her.....I burst into tears! My

17 year old thought I was funny and she giggled at me....I was laughing and

crying at the same time....I felt so silly....but some things just make me

cry...I decided it's okay to cry....that's one thing I've learned on this

treatment....Crying isn't necessarily something you're supposed to stop

yourself from doing.....we've feeling weak, vulnerable, sensitive to our own

and other peoples' feelings, and mayabe, just maybe, we're learning

compassion....it's okay to feel sad.....I always feel much better after a

good cry! Take care, Diane

[Guest guest]

Dear Jessie:

The other day I was in a restaurant with my 17 year old daughter....we were

having a nice time and then this old lady in a wheel chair, who was sitting

with 3 other people, spilled her drink on the table and you could tell she

felt so terrible....everyone was so sweet to her.....I burst into tears! My

17 year old thought I was funny and she giggled at me....I was laughing and

crying at the same time....I felt so silly....but some things just make me

cry...I decided it's okay to cry....that's one thing I've learned on this

treatment....Crying isn't necessarily something you're supposed to stop

yourself from doing.....we've feeling weak, vulnerable, sensitive to our own

and other peoples' feelings, and mayabe, just maybe, we're learning

compassion....it's okay to feel sad.....I always feel much better after a

good cry! Take care, Diane

[Guest guest]

Maureen & ,

has been on Risperdal for a week now, after having an allergic reaction

to prozac about 2 months ago. I was scared to death to give this to him, but

his Neurologist eased my anxiety and skeptically I did give this to him. My

husband cried the other night over the change in our little boy. The

aggressiveness seems to be gone. He plays with the puppy like a normal child

instead of strangling it. He has calmed down and responds to us the first

time. My husband can't wait to go shopping with him (which usually ends up

in the past with our not speaking to each other and sent to bed so we

won't kill him). I'm even losing my panic over sending him back to school.

He has the same personality, but on a much calmer level. I'm trying not to

get too excited, but it is such a relief to maybe have an easier life back.

I sure hope this keeps up.

[Guest guest]

In a message dated 3/14/2000 5:28:28 AM !!!First Boot!!!, MBrayley@...

writes:

<< I'm even losing my panic over sending him back to school.

He has the same personality, but on a much calmer level. I'm trying not to

get too excited, but it is such a relief to maybe have an easier life back.

I sure hope this keeps up.

>>

Oh gosh!! Me too !!! THis sure sounds wonderful!!!

Donna (who's keeping her fingers crossed for you)

[Guest guest]

Jessie,

Yup the crying spells have started also, seems like it doesn't have to be

anything and i cry, havent cried for a long time and seems strange to feel

like doing so at the drop of a pin. will try ice as I have another headache

today. worse than before. Really am not crying a whole lot yet but several

times in the last week, hang in there and God Bless

Suzy

From: jessiefromchino@...

Reply-Hepatitis Conelist

Hepatitis Conelist

Subject: Re: Digest Number 63

Date: Sat, 11 Mar 2000 19:58:28 -0800 (PST)

Hi Suzy, ice really works on me head when it hurts real bad and nothing

else works. I am going throw this crying all the time. I am not a cryier

either. It takes a lot for me to cry. I feel so stupid. Have you had

anything like this happen to you? I even call my son in Fl. to see if he

can ge me out of this mood. I live in Calif. I don't know what I was

thinking. I don't want to worry my family. They are so good to me. God

Bless Jessie

EZ-DOES IT

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[Guest guest]

Jessie,

Yup the crying spells have started also, seems like it doesn't have to be

anything and i cry, havent cried for a long time and seems strange to feel

like doing so at the drop of a pin. will try ice as I have another headache

today. worse than before. Really am not crying a whole lot yet but several

times in the last week, hang in there and God Bless

Suzy

From: jessiefromchino@...

Reply-Hepatitis Conelist

Hepatitis Conelist

Subject: Re: Digest Number 63

Date: Sat, 11 Mar 2000 19:58:28 -0800 (PST)

Hi Suzy, ice really works on me head when it hurts real bad and nothing

else works. I am going throw this crying all the time. I am not a cryier

either. It takes a lot for me to cry. I feel so stupid. Have you had

anything like this happen to you? I even call my son in Fl. to see if he

can ge me out of this mood. I live in Calif. I don't know what I was

thinking. I don't want to worry my family. They are so good to me. God

Bless Jessie

EZ-DOES IT

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[Guest guest]

Diane,

Appetite has improved some but still get full very fast could it be the ton

of water I'm drinking? lol good thing I like water but even I am getting

tired of it, ty to drink at least a gallon and yesterday seems like 2 gal

figured it might help with the headache I was experiencing

I dont mind losing some, just concerned it may keep up, I like you have been

trying to eat healthy when I eat not a problem really have no more craving

for sweets like before I started tx. Thanks for the encouragemant though,

much appreciated.

Suzy

From: DIANSA@...

Reply-Hepatitis Conelist

Hepatitis Conelist

Subject: Re: Digest Number 63

Date: Mon, 13 Mar 2000 23:34:46 EST

Dear Suzy:

Hang in there! The appetite will probably get better after the first

month....It did for me....I'm just finishing 5 months of combo now....Have

lost 17 pounds and never had one day of nausea! I make sure I have a

smoothie with soy protein powder in it every day (almost!) and then at least

I've had something good....I try to make what I do eat

nourishing...reasonably so, anyway.....not a fanatic, but when you're not

eating a lot, you want what you do eat to count....

It will get better! I promise! diane

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[Guest guest]

Suzy, I read your e-mail about the not having craving for sugar. All I

want is sugar mostly ice cream, pudding anything cold. I have always had

a sweet tooth. Not like I have know. I have never been a good eater.

Don't like veggies fruit is ok. I just hope this sweet tooth goes away.

God Bless Jessie

EZ-DOES IT

[Guest guest]

Jessie,

Isn't it strange how everyone is different? I am just amazed how so many

people can react totally different ways to the same tx. Actually when I went

on a diet and started eating a little better a couple years ago, my sweet

tooth diminished also, so maybe it has to do with my diet. since I am

usually not real hungary then I try to eat a little healthier, i am like

you never have liked to eat a whole lot of veg but like fruit, do try to

eat some because I know i should but prob not every day. Take Care

ZSuzy

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[Guest guest]

In a message dated 03/09/2000 8:25:57 AM Central Standard Time,

Ltb3105@... writes:

<< my brother is a doctor in Fla. and he says

ALL meds have some kind of side effects, even OTC ones! >>

This is most certainly true, and Dr. Leventhal began his presentation by

saying just that. My point was that some meds have more side effects and/or

more serious side effects than others. I wasn't trying to scare you, just

inform you about something I had heard from a credible authority. Sorry.

Maureen

[Guest guest]

,

So glad to hear how well is doing on Risperdal. I hope the

improvements continue. God bless your DH and his tears of joy - what a

wonderful moment! I pray my will do as well on Risperdal. The docs

started on .25 mg of it three nights ago in the hospital. She's home

now and is supposed to begin a morning dose of .25 mg. on Monday. Does

take it twice a day also? Thanks for sharing.

Maureen

[Guest guest]

Hi Maureen,

only takes Risperdal once a day (1mg) at bedtime and that seems to do

it. He sleeps great, so much more peacefully. He's also staying dry until

morning and is very proud of himself for that. We are too!!!!

[Guest guest]

Dear Suzy:

Just checked my mail after a long while.....glad your appetite is up

some.....I think we combo recipients have discovered the secret to losing

weight........GALLONS of water......not 8 glasses a day.....GALLONS! te he,

Diane

[Guest guest]

In a message dated 3/20/00 1:46:44 AM Central Standard Time, MBrayley@...

writes:

<< He's also staying dry until

morning and is very proud of himself for that. >>

Way to go, ! What a nice improvement! Glad to hear things are going so

well.

is sleeping better since being on .25 mg. Risperdol at bedtime for the

past ten days. This is a big improvement for her, particularly since she is

in a hip spica cast and has to sleep on her back. (She is used to sleeping

on her stomach, all curled up.) She also has been expressing herself better

- articulating her wants and needs somewhat better. We're happy to see these

improvements.

Maureen

[Guest guest]

In a message dated 3/26/00 12:30:21 AM Eastern Standard Time, MRASMUS@...

writes:

<< is sleeping better since being on .25 mg. Risperdol at bedtime for

the

past ten days. This is a big improvement for her, particularly since she is

in a hip spica cast and has to sleep on her back. (She is used to sleeping

on her stomach, all curled up.) She also has been expressing herself better

- articulating her wants and needs somewhat better. We're happy to see

these

improvements. >>

WOW Maureen!!!! And we're happy to hear about them. Keep it coming!!!!

Donna

[Guest guest]

Maureen,

I'm glad to hear 's doing better. It's gotta be so hard for all of

you. I know I couldn't sleep on my back. At least the Risperdal makes you

sleepy. It's great hearing about 's speech improving. caught

his first fish camping this weekend. He was so shocked and when Dad told him

he could eat it for dinner if he liked, that he'd cook it for him on the

barbeque, replied, " NO EAT MY FISH " and threw it back in the lake

bucket and all. We laughed until we cried... That was one of his longest

sentences spontaneusly.

[Guest guest]

In a message dated 3/28/00 12:33:06 AM Central Standard Time, MBrayley@...

writes:

<< caught

his first fish camping this weekend. He was so shocked and when Dad told

him

he could eat it for dinner if he liked, that he'd cook it for him on the

barbeque, replied, " NO EAT MY FISH " and threw it back in the lake

bucket and all. We laughed until we cried... That was one of his longest

sentences spontaneusly. >>

Thanks for sharing this, . I'm still smiling!

Maureen

[Guest guest]

test

Gerald J Buchko buchgera@...

CD20

>

>

> Kurt - This is the same article which we brought over from but

there

> is more of it. I have questions out to two professionals on the issue,

> hopefully we'll get some more understanding. The issue is a serious one

for people

> wishing to use Rituxan in the future.

>

>

> --------------------------------------------------------------------------

----

>

[Guest guest]

what is complement

CD20

> >

> >

> > Kurt - This is the same article which we brought over from but

> there

> > is more of it. I have questions out to two professionals on the issue,

> > hopefully we'll get some more understanding. The issue is a serious

one

> for people

> > wishing to use Rituxan in the future.

> >

> >

>

> --------------------------------------------------------------------------

> ----

> >

[Guest guest]

,

If you are still looking for stability ball workouts, try Target. They have

Voights Butt Leggs, Tummy (I don't have this one....yet), they have a

Sansone video, one by Kathy smith and I think a few others. But to be

honest, I put stability ball workouts in the love 'em or hate 'em category. Most

of the ones I own are either way too easy or require way too much coordination

and balance for me ( I only work out on the ball on occassion) So look on e-bay

for them cheap so you wont be disappointed. Also if you have any thrift store

near you, check them out once in a while, I've found a ton of newer videos for

only a dollar or two there. In fact thats where I bought most of my Crunch and

Yoga Zone videos.

a

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