Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 In a message dated 9/25/00 3:53:56 PM Pacific Daylight Time, hudecz@... writes: << I was wondering if any of you have experienced hair loss? I mean a lot of hair! This is really upsetting me...I would like to think that I am not vain but I guess I am...I have medium length brown hair that I get a hand full of every time I wash my hair!!!!!! This has been happening for the last month......I did start having low-grade fevers again about a month ago and went thru a very bad spell for a few weeks......also I remember losing some hair after having both of my children-which was probably hormonal.....but this is different because it >> Taking MSM did wonders for my hair loss. It really helped. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 In a message dated 9/25/2000 5:53:49 PM Central Daylight Time, hudecz@... writes: > > I was wondering if any of you have experienced hair loss? I mean a lot of > hair! This is really upsetting me...I would like to think that I am not vain > but I guess I am...I have medium length brown hair that I get a hand full of > every time I wash my hair!!!!!! This has been happening for the last month... > ...I did start having low-grade fevers again about a month ago and went thru > a very bad spell for a few weeks......also I remember losing some hair after > having both of my children-which was probably hormonal.....but this is > different because it is lasting a long time and there seems to be a lot of it. > ....also-for the women on the list-my periods have been off-they have not > been regular....also I have always had real bad pms-my husband will vouch for > this! Anyways-any suggestions out there? > Been there, seen that, done all that. When I flare, I loose hair. My doc says that is a thyroid function. As I write, I have finally, after five months this time, stopped loosing hair. I say inositol did it. That's all that I have done different. If that is something you don't want to try, you might ask your doc about some T3... if thyroid is the problem, you should be able to stop loosing hair with this or the inositol. Just cut my hair really short so I won't have too many months of fuzzys as it all grows back. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 , I would definitely have your IGF-1 levels tested if your experiencing hair loss. People taking HGH or GH stimulators have reported new hair growth and maybe a depressed HGH level (something many PWC's have) is causing the hair loss. Just a thought and it's a pretty inexpensive and common test. Steve Bullock hormones and hair loss > > I was wondering if any of you have experienced hair loss? I mean a lot of hair! This is really upsetting me...I would like to think that I am not vain but I guess I am...I have medium length brown hair that I get a hand full of every time I wash my hair!!!!!! This has been happening for the last month......I did start having low-grade fevers again about a month ago and went thru a very bad spell for a few weeks......also I remember losing some hair after having both of my children-which was probably hormonal.....but this is different because it is lasting a long time and there seems to be a lot of it.....also-for the women on the list-my periods have been off-they have not been regular....also I have always had real bad pms-my husband will vouch for this! Anyways-any suggestions out there? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 , I've been experiencing significant hair loss since I've had CFS (almost 4 years). I lose huge clumps every time I wash my hair, plus huge clumps when I comb it and throughtout the day. My carpet is one big hair ball! I saw a few dermatologists about it early on in my illness. The first was really surprised by how much I was losing -- he said it was a " profound " amount. But each dermatologist said that because of something to do with my hair follicles, they could tell I had healthy hair underneath growing back. I do notice tiny hairs growing back sometimes -- and I'm not bald yet, so it must be true! They called it tellegrum something-or-other and said it happens when your body is under a physical stress. In my case, I don't know if it's due to my chronic fevers, hormone changes, nutritional deficiences or immune system problems. I also experienced a change in my periods after CFS. My periods used to be very heavy and last up to 7 days. Now they're very light and last 1-3 days. I also have chronic yeast infections which drive me completely crazy! The joys of CFS. ;-) Laurel << I was wondering if any of you have experienced hair loss? I mean a lot of hair! This is really upsetting me...I would like to think that I am not vain but I guess I am...I have medium length brown hair that I get a hand full of every time I wash my hair!!!!!! This has been happening for the last month......I did start having low-grade fevers again about a month ago and went thru a very bad spell for a few weeks......also I remember losing some hair after having both of my children-which was probably hormonal.....but this is different because it is lasting a long time and there seems to be a lot of it.....also-for the women on the list-my periods have been off-they have not been regular....also I have always had real bad pms-my husband will vouch for this! Anyways-any suggestions out there? >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 I too experience drastic hair loss. My dermatologist diagnosed me with tilligens..whatever also. He prescribed a steriod drop but when I used it , i lost more hair. My thyroid has been very difficult to regulate since I have been sick (about 4 years for me too). This could have something to do with the hair loss. My hair is all over. I have to apologise when I stay at relatives homes or a friend. There does not seem to be anything I can do either. It is very disconcerting. I am going to try HGH injections and someone posted that ..that should help. I will keep you posted..barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 Laurie notices a major change of my hair (thin brittle lifeless) with the onset of CFIDS, as I became better my hair returned to normal ... hoping that some gray will disappear but I suspect that is age related.... M Lassesen, M.S. ex " Dr.Gui (MSDN) " , " Dr. VB " cv: http://www.folkarts.com/kenl/ KenL@... Phone: 360 297.4717 Cell: 360 509.8970 Fax 520 832.6836 ----- Original Message ----- From: hudecz I was wondering if any of you have experienced hair loss? I mean a lot of hair! This is really upsetting me...I would like to think that I am not vain but I guess I am...I have medium length brown hair that I get a hand full of every time I wash my hair!!!!!! This has been happening for the last month......I did start having low-grade fevers again about a month ago and went thru a very bad spell for a few weeks......also I remember losing some hair after having both of my children-which was probably hormonal.....but this is different because it is lasting a long time and there seems to be a lot of it.....also-for the women on the list-my periods have been off-they have not been regular....also I have always had real bad pms-my husband will vouch for this! Anyways-any suggestions out there? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 Yep, I had approx. a 50% hair loss over the last two years. Have a low thyroid function along with endocrine problems, including pituitary, adrenals and full hyterectomy. Have an " integrated medicine " doctor who seems to be mostly focused on very gentle slow treatment on the gut and brain. What are the best thyroid tests to run and what are side effects of inositol? Last week I got it all whacked off short and had it colored BRIGHT red. Looks much better than the flat blonde bob. Does anyone know if any of the lost hair will regrow. Mine started to a little and I have inch long tufts around the receding hair line that stopped growing months ago. Thanks, Uma -- In egroups, RGray80533@a... wrote: > In a message dated 9/25/2000 5:53:49 PM Central Daylight Time, > hudecz@n... writes: > > > > > I was wondering if any of you have experienced hair loss? I mean a lot of > > hair! This is really upsetting me...I would like to think that I am not > vain > > but I guess I am...I have medium length brown hair that I get a hand full > of > > every time I wash my hair!!!!!! This has been happening for the last > month... > > ...I did start having low-grade fevers again about a month ago and went > thru > > a very bad spell for a few weeks......also I remember losing some hair > after > > having both of my children-which was probably hormonal.....but this is > > different because it is lasting a long time and there seems to be a lot of > it. > > ....also-for the women on the list-my periods have been off-they have not > > been regular....also I have always had real bad pms-my husband will vouch > for > > this! Anyways-any suggestions out there? > > > > > Been there, seen that, done all that. When I flare, I loose hair. My doc > says that is a thyroid function. As I write, I have finally, after five > months this time, stopped loosing hair. I say inositol did it. That's all > that I have done different. If that is something you don't want to try, you > might ask your doc about some T3... if thyroid is the problem, you should be > able to stop loosing hair with this or the inositol. > Just cut my hair really short so I won't have too many months of fuzzys as it > all grows back. > Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 I had a some profound hair loss starting about 4 years ago (around time of onset) that only stopped about 6 months ago. Uma, my hair actually grew back in places like on my hairline. It was very interesting. I have been taking thyroid supplementation for awhile (over a year) so I don't know why all of a sudden there was a change for the better. I am sort of inclined to " blame " the whey (specifically IPro) but can't make any real connections. It *is* better with more hair... and I also did the same thing - dyed it sort of a very bright purplish color from dark brown just bc I couldn't stand the way it was... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 ,I think you are right on target in suspecting that the ImmunePro wasresponsible for the improvement in your hair growth. Hair is madeprimarily from the alpha keratin proteins. Alpha keratins areparticularly high in the amino acid cysteine (11.2 mole percent). Guess why whey protein is useful in building up glutathione. That'sright, it's high in cysteine. I'd say you have a BINGO!Rich Van K. > I had a some profound hair loss starting about 4 years ago (aroundtime of> onset) that only stopped about 6 months ago. Uma, my hair actuallygrew> back in places like on my hairline. It was very interesting. Ihave been> taking thyroid supplementation for awhile (over a year) so I don'tknow why> all of a sudden there was a change for the better. I am sort ofinclined to> " blame " the whey (specifically IPro) but can't make any realconnections.> It *is* better with more hair... and I also did the same thing -dyed it> sort of a very bright purplish color from dark brown just bc Icouldn't> stand the way it was...> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2000 Report Share Posted September 25, 2000 on 9/25/00 6:42 PM, hudecz at hudecz@... wrote: > I was wondering if any of you have experienced hair loss? I mean a lot of > hair! This is really upsetting me...I would like to think that I am not vain > but I guess I am...I have medium length brown hair that I get a hand full of > every time I wash my hair!!!!!! This has been happening for the last > month......I did start having low-grade fevers again about a month ago and > went thru a very bad spell for a few weeks......also I remember losing some > hair after having both of my children-which was probably hormonal.... 1) Sudden hair loss is a cardinal sign of 's Syndrome (WS), which is a form of hypothyroidism characterized by a low body temperature (<98.2 or so). WS cannot be detected by any thyroid blood tests. The only way to test yourself for it is to take your body temperature with a normal glass, oral thermometer (not digital). You take your temp at 3-, 6- and 9-hours after waking and repeat the measurements for around 5 days straight. If your average daily body temperature is significantly below 98.6 F, and you have the symptoms of WS--hair loss, fatigue, headaches/migraines, depression, heat/cold intolerance, easy sweating, loss of sweating, flushing, hypoglycemia, unexplained weight gain or inability to lose weight, constipation, post-prandial sleepiness...--then you have WS. Note that the most common cause for the onset of WS is childbirth/pregnancy... If the above scenario applies to you and you're interested in learning more and/or treating it, contact me. I have WS and I've been treating it for a few months now, with good results. 2) Another possibility that is based on some hearsay from Dr. Mercola's website is that drinking mostly distilled water can cause hair loss in people; and apparently it can happen quite suddenly and dramatically. best, Hud Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 In a message dated 9/25/2000 9:06:01 PM Central Daylight Time, uma@... writes: > What are the best > thyroid tests to run and what are side effects of inositol? > > Last week I got it all whacked off short and had it colored > BRIGHT red. Looks much better than the flat blonde bob. Does > anyone know if any of the lost hair will regrow. Mine started to a > little and I have inch long tufts around the receding hair line that > stopped growing months ago. Uma, Thyroid tests for resistance do not exist, FDA approved. Don't know of any side effects to inositol. Heard lecithin might be a problem -- undocumented-- if you have gall bladder probems. My hair's auburn now. I've already gone through the bright red. You might find that you look like you have more hair if you darken the red a little... I did. As far as the receding hair. It might return as you get more well... if no " male pattern " baldness runs in the family. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Barbara, I truly believe that a little inositol will either slow down the loss of your hair, or stop the loss entirely. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 In a message dated 9/25/2000 9:47:38 PM Central Daylight Time, jane_doe_press@... writes: > had a some profound hair loss starting about 4 years ago (around time of > onset) that only stopped about 6 months ago. Uma, my hair actually grew > back in places like on my hairline. It was very interesting. I have been > taking thyroid supplementation for awhile (over a year) so I don't know why > all of a sudden there was a change for the better. I am sort of inclined to > " blame " the whey (specifically IPro) but can't make any real connections. > It *is* better with more hair... and I also did the same thing - dyed it > sort of a very bright purplish color from dark brown just bc I couldn't > stand the way it was... > , to hazard a guess as to why after almost a year on thyroid supplimentation... you stopped losing and actually gained back hair.... ....when you began the drug your thyroid was stressed so much so that you were almost totally thyroid resistant. As you got better and the stress on your thyroid was reduced, your body accepted more of the thyroid hormone for usage --either from the supplement exclusively, or a combination of what your body makes and the supplement. This allowed the thyroid to again adequately regain control your hair production. You may even find that soon you will be lowering your thyroid dosage. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 How much inositol do you recommend..500? 1000? more? I am familair with inositol but would like some feed back on dosing..Thank you Ruth..Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Ruth..right now my thyroid is in hyper mode. It was hypo..and my medication was adjusted but the dose was too much...I believe this has something but not all to do with this heavy hair loss I am experiencing. Also, I am in a bad relapse and bedridden most the time. My nails are peeling and splitting also. Will inositol help the nails as well? barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 My hair used to be VERY thick, but not anymore. I have noticed that a lot comes off in my hands when I wash it. This has been going on for some time. It still looks OK, but I miss the way it used to be. It has also become quite fine. I noticed that when Ken was still early in his recovery, his hair had become very fine and thinner (not bald - he is one of the lucky guys that doesn't have to expect pattern baldness), and since his recovery, his hair is thicker again and not so fine. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 I have also noticed that surgery and long antibiotic usage will precipitate hair loss. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 In a message dated 9/26/2000 12:05:37 PM Central Daylight Time, Sanzibarr@... writes: > Will inositol help the nails as well? barbara > Barbara, I can't say. I thought good nail growth was related to calcium... does anyone know if it's hormonal instead? Inositol is good for resistant hormones. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 In a message dated 9/26/2000 12:05:55 PM Central Daylight Time, Sanzibarr@... writes: > How much inositol do you recommend..500? 1000? more? I am familair with > inositol but would like some feed back on dosing..Thank you Ruth..Barbara > I started taking 600mg once a day and worked up to 1200mg once a day. There are some on this service that have taken more than that. I haven't. I started to add another 600mg today, on top of the 1200mg, but I was feeling so good I wanted to enjoy it. My best experience has been with myo-inositol. D-chiro-inositol is made in the body by myo-inositol. When I took straight D-chiro the medium contained too many calories and I did not seem to get the best benefits, as quickly as I have with the myo. Good luck. Sorry about your relapse. I don't know what you might expect on the inositol. You may feel really better, or you may herx because you are able to absorb more of whatever else you are taking... ie whey, antibiotics, antivirals. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2000 Report Share Posted September 26, 2000 Barbara, Nails are also made from keratin, as hair is, and also require quite a bit of cysteine. I think the peeling and splitting could very well be due to depletion of cysteine, which also produces glutathione depletion. You might be a good candidate for one of the nondenatured whey protein supplements. Rich > Ruth..right now my thyroid is in hyper mode. It was hypo..and my medication > was adjusted but the dose was too much...I believe this has something but not > all to do with this heavy hair loss I am experiencing. Also, I am in a bad > relapse and bedridden most the time. My nails are peeling and splitting > also. Will inositol help the nails as well? barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2000 Report Share Posted October 2, 2000 Ruth - cool. sounds good to me. Thanks for the speculation. I am in a major doc related work related crash so will be awhile til I get to lower doses of anything. But I look forward to the day. > , to hazard a guess as to why after almost a year on thyroid > supplimentation... you stopped losing and actually gained back hair.... > ...when you began the drug your thyroid was stressed so much so that you were > almost totally thyroid resistant. As you got better and the stress on your > thyroid was reduced, your body accepted more of the thyroid hormone for usage > --either from the supplement exclusively, or a combination of what your body > makes and the supplement. This allowed the thyroid to again adequately > regain control your hair production. You may even find that soon you will be > lowering your thyroid dosage. > Ruth Quote Link to comment Share on other sites More sharing options...
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